Transcript
Page 1: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Newsletter

October2018

MessagefromSARDAA,CEO

DearFriend,

Wehavebeenverybusyworkingtoimprovelivesaffectedbypsychosis.Beonthelookoutforthenextmessage&thenextnewsletter,wewillhavesomeamazingannouncementsaboutgiantstepswehavemadeaswehavebeencreatingveryimportantalliancesandmoreprogressinreclassification.

Staytunedforopportunitiesforyoutomakeahugedifference!

Pleaseremembertousetheterm,BrainHealth/BrainIllness

Page 2: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Warmestregards,LindaStalters,MSN,APRN(ret)ChiefExecutiveOfficerSchizophreniaAndRelatedDisordersAllianceofAmerica

HelpGraceLee,aSARDAAstaffmemberlivingwith

schizoaffectivedisorder,raisefundstosupportSARDAAimprovelivesaffectedby

psychosis.WeMUSTchangetreatmentandaccesstotreatment

andSTOPcriminalizingpeoplewithaBRAINillness.

Supporther5KwalkHERE

Page 3: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

VisitLEAPInstitutetolearnmoreabout

LEAP!

MessagefromFFS,FamilyandFriends,

Coordinator

Ihavenotyetbeenafanofprofessionalsports.Infactthehyperenthusiasmandgreatmoneywhichfindtheirwayintoithasalwaysbeenabitofasorespotwithme,likewhydoesconcernforourfellowbeingsandtheirplightnotdrawsuch

support?Samewithbigmoneyandentertainment,etc.Ihavenotspentmuchinthewayofresourceshereeither.AsI'vesaidI'mattunedtothingsinlifewhichrelatetomypathinlifeascarepartnerofadaughterdiagnosedwithSchizoaffectiveDisorder.InalocalnewspaperInotedtheheadline“ForChickCorea,MusicisanAntidotetoLife'sDark(substitutechallenging)Side”.MusicianArmandoAnthony“Chick”Coreawasinterviewedabouthislifeasakeyboardist,nowontourwithhisakousticbandofthree.Hesaid“I'mhappywhenIseemyaudiencesmilingandenjoyingthemusicorinsomewayexperiencingpleasurefromit.Musicandartareakindofantidotetothedarksideoflifesoit'sapleasuretobeabletodeliverthiseverytimeIplay”.Related,andregardingsports,I

Page 4: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

recentlyheardsomeoneontheradiosaythatthegamesgivehimsomerelieffromtheconcernsoftheday.WiththisIfindI'vesoftenedmyopinionoftheseinterestsheldbysomanyinoursociety.Weneedthesereprievesfromthechallengesinlifewhichweinevitablyface,a.k.a.'selfcare'.Indulge...Iwill,withoutguiltforreceivingsomepleasure.Thequalityofourlivesdependsonit.

WithHeart,MaryRoss

Areyouinterestedinmeetingotherpeopleonthephoneona

conferencecallwhoisafamilymemberorfriendofsomeonelivingwithschizophreniaorarelateddisorder?DoyouliveontheWestCoast?Hereisachancetoreceivetrainingtoguidefamilyandfriendsofthediagnosedaboutthe6StepsofRecovery.YouwillreceivetrainingmaterialsandusetheBlueBookformattoleadmeetingswithaco-leader.Formoreinformation,contacttheofficeat240-423-9432orinfo@sardaa.org.Youcanalsodirectlycontactme,SandyDimiterchik,at832-439-1586orsandy.dimiterchik@sardaa.org.IlookforwardtospeakingtoyouandstartinganadditionalFFSgroup!

MessagefromSAStaffSupporter

SAUpdates

BySandyDimiterchik

Octoberisaspecialmonthforpeoplewithbraindisorders.ThereistheMentalIllnessAwarenessWeekfromOctober7-13andWorldMentalHealthDayonOctober10.GraceLee,representingSARDAA,isparticipatinginTheWalkforMentalHealthAwareness–HoustononOctober6,2018.Formoreinformationortodonate,gotohttps://my.reason2race.com/gileejelly/TheWalkHouston2018

SowhatcanyoudoasaSAmember?YoucanbecomeaBrainHealthAdvocateonourwebsite,www.sardaa.org.Also,trytoattendanin-personSAgrouporcallintoourconferencecallsforthediagnosedorfamilyandfriends.AlloftheinformationaboutSAgroupscanbefoundonourwebsite,www.sardaa.org.Wearealwayslookingforleaders,co-leaders,andsubstitutes!Fightstigmabysubmittingyourpersonalrecoverystorytoinfo@sardaa.org.Youalsocansubmitartwork,poetry,orshortstories.Volunteerorworkinyourcommunitysothatyoucandisprovemythsabouthavingabraindisorder.

Page 5: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

OnOctober6,IamtakingpartintheNamiWalkslocatedinmycommunityhereinLafayette,Louisiana.Signingupasanindividual,IhopetomeetnewpeopleandsharewiththemmyexperiencesandprovideinformationaboutSARDAA,SA,andourfreeapp,SchizophreniaHealthStorylines.Ifyouhaven’theardoftheapp,nowisagotimetodownloadittoyourcomputerand/orsmartphone.Ithasmanyfunctions,includingmedicinereminders,symptomtracking,andjournaling.

SAGroupsFoundThroughoutTheWorld

SARDAAisaglobalorganization.TheSA(SchizophreniaAlliancePsychosisSupportandAcceptance)groupscanbefoundnotonlythroughouttheUnitedStates,butinternationally.WehavegroupsinRussia,Iran,India,Hungary,Kenya,andOrebro.TheBlueBookhasbeentranslatedintodifferentlanguages–Spanish,German,Farsi,Russian,andHungarian.TheconferencecallsareinEnglishandopentopeopleinothercountries.Simplycall1-720-362-6499.Formoreinformationcheckoutourwebsitesardaa.orgorcallthemainofficetoreceivethetranslatedversionsat1-240-423-9432or1-800-493-2094.Youcanalsocontactusatinfo@sardaa.org.IfyouwouldliketostartaSAgroup,[email protected].

PersonalStoryofSAMembers

FranN.Iamschizophrenic.Mylasthospitalstaywasin1980,inthestatehospitalforsixmonthsbecausemyhusbandwouldnolongerbringmehome;hewantedadivorceafter13yearsandtwosmallchildren.Withnohometogoto,Iwaitedatthestatehospitalforabedatanadultfostercarehome.

Aftersixmonths,Iwasplacedinaverynicehome.MichiganVocationalRehabilitationsentmetoabusinessschoolwhileIwasthere.Aftertwosemestersatthebusinessschool,itwastimetofindajob.ByJuly1981,Ihadajobasabookkeeperforasmallcompanyandworkedforoneyearwhilestilllivingatthefostercarehome.Itwastimetotrylivingonmyown.Iwasafraidofeverything.Livingalone,havingrelapses,andjusttakingcareofmyself.Imovedintoarentedhomeandcontinuedtoworkandsupportmyself.

WhileIwasatthefostercarehome,Ireadapamphletthatdescribedmysymptomsperfectly.BeforeIreadit,IdidnotknowIhad

Page 6: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

schizophrenia.Thepamphletsaidthatschizophreniawasincurablebutcouldbecontrolledwithmedication.Allofmyrelapseswerefromgoingoffmymedication.Fromthattimeon,Ihavedecidedtobewell.InevergooffmymedicationoreverhaveitadjustedandIhavebeenstablesince1980.IknowIstillhavethediseasebutamcontrollingitwithmedication.

In1983,Iboughtmyownhomeandhavemychildreneveryotherweekend(myhusbandhascustodyofthechildren,butIamstillpartoftheirlives).Ialsostartedtoattendcollegeatnight.IhavebeentakingoneclassasemesterforthesepastsixyearsandwillreceiveaCertificateinAccountingthisDecember.

BecauseItookaccountingcoursesatthecommunitycollege,IwaspromotedtoAccountingSupervisorin1985.Ihaveaverygoodjobandenjoyitverymuch.IntheeightyearsIhavebeenworking,Ihavenothadtotaketimeoffformyschizophrenia.Ithasnotbeeneasy.Ifeelverytiredinthemorningsandforcemyselftogotowork.Mylifeislowkeyed,asIcannottakemuchstress.

MysocialworkerheardaboutSchizophreniaAllianceandsuggestedIgetinvolvedinit.SinceIhavemetJoanneV.andthemembersofhergroup,mylifehasbeentransformed.IamaSAleaderandnowhaveagroupofverycaringandfriendlypeopletomeetwithonceaweek.Asaleader,mylifehasbeenenhancedbythepossibilityofhelpingothersandmyselftowardrecovery.Thankyou,SA

Wewelcomeyourmessage/artfromSAMembersforinclusioninthe

newsletter.Pleasesubmityourmessageto:[email protected],Houston,TX77094-8222forconsiderationfornextmonth'snewsletter.

YourstorymightbeincludedinaSARDAAnewsletterandmightbepublishedinafutureeditionoftheSABlueBook.

Page 7: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

PhoneSupportGroups

SAConferenceCallGroupsOnlyforindividualsdiagnosed

Sundays-7pmEasternTimeMondays-4pmEasternTimeThursdays-7pmEasternTime

Fridays-7pmEasternTimeSaturdays-1pmEasternTime

YoungAdultSAConferenceCallGroupSaturdays-3pmEasternTime

SpiritofSAConferenceCallForSALeadersandPotentialLeaders

FirstWednesdayofEachMonth-7pmEasternTime

FamilyandFriendsSupportGroupNotforindividualsdiagnosed

EveryTuesday-7pmEasternTime

Page 8: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Toll-freeCallsCall-ininformation(855)640-8271

EntryCode88286491#InternationalNumber(720)362-6499

FacebookSupportGroupOnlyforindividualsdiagnosed

JOINTheFacebookGroupHereThisisaClosedgroup,asktobeadded.

Page 9: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

BritishStudyShowsCannabisUseAdverselyAffectsIndividualsWithEarlyPsychosisPsychiatryResearchLaurelRangerSeptember11,2018Cannabisuseinpatientswithearlypsychosisisariskfactorforrelapse,ahighernumberofre-hospitalizations,andlongerlengthofstay(LOS)inhospital,particularlyinblackmalepatients,accordingtostudyresultspublishedinPsychiatryResearch.

READMORE

EarlyInterventioninSchizophrenia:TheRAISEProgramToriRodriguez,MA,LPCSeptember6,2018Historically,therehavebeenlowexpectationsforrecoveryinschizophrenia,whichisassociatedwithhighratesofmorbidity,mortality,anddisability,aswellasestimatedannualeconomiccostsof$155.7billionanda10%to15%employmentrate.1Inrecentyears,thefocusofmentalhealthpolicyandtreatmentforindividualswithschizophreniaintheUnitedStateshasshiftedfromstabilizationofthosewithchronicdiseasetointerventionintheearlystagesoftheillness.

READMORE

GradingtheStates:AnAnalysisofInvoluntaryPsychiatricTreatmentLawsTreatmentAdvocacyCenterSeptember2018GradingtheStates:AnAnalysisofU.S.PsychiatricTreatmentLawsexaminesthelawsthatprovideforinvoluntarytreatmentforpsychiatricillnessineachstate.Todoso,weaskasimplequestion:Doesthestatelawallowanindividualinneedofinvoluntaryevaluationortreatmenttoreceivetimelycare,forsufficientduration,inamannerthatenablesandpromoteslong-termstabilization?

TheUnitedStatesiseffectivelyrunning50differentexperiments,

Page 10: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

withnotwostatestakingthesameapproach.Asaresult,whetherornotanindividualreceivestimely,appropriatetreatmentforanacutepsychiatriccrisisorchronicpsychiatricdiseaseisalmostentirelydependentonwhatstateheorsheisinwhenthecrisisarises.

Inadditiontoprovidingadetailedassessmentofeachstate’streatmentlawsincomparisonwiththoseoftherestofthecountry,thereportalsoidentifiesspecificstatutorychangesstatescanmaketogreatlyimproveaccesstocareforthispopulation.

READMOREFULLREPORT

LithiumMonotherapyEffectiveinTreatingBipolarDisorderinChildrenCalebRansSeptember13,2018Lithiummonotherapymaybesafeandeffectivefortreatingacutemaniaandpreventingmoodinstabilityinchildrenandadolescentswithbipolardisorder,accordingtostudyresultspublishedinEuropeanPsychiatry.

Inthissystematicreview,researcherssearchedmajordatabasesforstudiesthatincludedchildrenandadolescentswhoweretreatedwitheitherlithiummonotherapyorlithiumincombinationwithotherpsychoactivetherapiesforbipolardisorder.Afterapplyingthesearchcriteria,theinvestigatorsfound30studiesthatincludedatotalof12randomizedtrials.Themajorityofstudieswereshort-term,beingconductedforlessthan8weeks,withtheexceptionofonethatcontinuedformorethan6months.

READMORE

RemissionofSchizophreniaSeenWithAmisulpride,ClozapineHealthDayNewsSeptember5,2018Remissioncanbeachievedformostcasesofschizophreniaandschizophreniformdisorderwithamisulprideandclozapine,accordingtoastudypublishedonlineAug.13intheTheLancetPsychiatry.

READMORE

UsingNeurocognitiveProfilestoPredictConversiontoPsychosisinHigh-RiskPatientsSchizophreniaResearchEmilyPondSeptember10,2018Patientneurocognitionprofilesmaybeeffectivediagnostictoolsforidentifyingfunctionaloutcomesamongpatientswithhighriskforpsychosis,suggestedresearchpublishedinSchizophreniaResearch.

Page 11: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Researchersrecruited324participants(meanage,18.4years)currentlyinthefirstphaseoftheNorthAmericanProdromeLongitudinalStudy.Thestudycohortcomprised166individualsatClinicalHighRisk(CHR)forpsychosis,49non-CHRyouthswithafamilyhistoryofpsychosis,and109healthycontrolparticipants.Participantswerefollowedfor2.5years,withstudyvisitsevery6monthstoassesssocialfunctioningandclinicalsymptomsofpsychosispertheStructureInterviewforProdromal.

READMORE

RecoverytoPractice(RTP)WebinarsandPodcasts:

PODCAST:Long-actingInjectableAntipsychoticsinMentalHealthRecoverySAMHSAExpertspeakers:AnthonyCarino,MD,DirectorofPsychiatry,JanianMedicalCare;AssistantClinicalProfessorofPsychiatry,ColumbiaUniversityCollegeofPhysiciansandSurgeonsDelbertRobinson,MD,AssociateProfessor,TheCenterforPsychiatricNeuroscience,TheFeinsteinInstituteforMedicalResearch;ProfessorofMolecularMedicine&Psychiatry,HofstraNorthwellSchoolofMedicine

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:MoreThanOne:ConsideringMultipleMedicationsinaRecoveryPlanSAMHSAExpertspeakers:HunterMcQuistion,MD,MedicalDirector,Psychiatry,ClinicalProfessorofPsychiatry,GouverneurHealth,NYCScottStroup,MD,Psychiatrist,NewYorkPresbyterianHospital;ProfessorofPsychiatryatColumbiaUniversityCollegeofPhysiciansandSurgeons

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:Recovery-orientedApproachestoPsychopharmacologySAMHSAExpertsspeakers:CurtisAdams,MD,SeniorPsychiatrist,DivisionofCommunityPsychiatry;AssistantProfessorofPsychiatry,UniversityofMarylandSchoolofMedicine

Page 12: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

MichaelBirnbaum,MD,Director,EarlyTreatmentProgram,NorthwellMedicalCenter;AssistantProfessorofPsychiatry,HofstraNorthwellSchoolofMedicine

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:RightMed,RightTime:HowMedicationcanSupportRecoverySAMHSAExpertsspeakers:TraceeBurroughs-Gardner,MD,ChiefExecutiveOfficer,UrbanBehavioralAssociates,Maryland

PatriciaDeegan,PhD,founder,PatDeeganandAssociates,disabilityrightsadvocate

PODCASTPODCASTCitationsPODCASTTranscript

SAMHSAawards$215.2milliontosupportjustice-involvedindividualswhohavesubstanceuseorco-occurringmentalandsubstanceusedisordersTheSubstanceAbuseandMentalHealthServicesAdministration(SAMHSA)recentlyawardedupto$215.2millionoverfiveyearsforjustice-involvedindividualswhohavementalandsubstanceusedisorders.

Theseprogramsareintendedtoprovideeffectivetreatmentservicestoreducefurthercriminaljusticeinvolvementandtopromoterecoveryforjustice-involvedindividualswhohavesubstanceusedisordersorco-occurringmentalandsubstanceusedisorders.

“ProvidingtreatmentandrecoveryservicestoAmericanswhoareinvolvedwiththecriminaljusticesystemandstrugglingwithaddictionisacrucialstepinofferingthemasecondchance,”saidHHSSecretaryAlexAzar.“Drugcourtsinparticularareaneffectivewayofhelpingpeopleaccesstreatmentandenterrecovery,andHHSisproudtosupportstate,local,andtribalgovernmentsinrunningtheseprograms.”

READMORE

SAMHSA’sAnnualMentalHealth,SubstanceUseDataProvideRoadmapforFutureActionSeptember14,2018TodaytheSubstanceAbuseandMentalHealthServicesAdministrationreleasedthe2017NationalSurveyonDrugUseandHealth(NSDUH).Theannualsurveycompriseshighlyanticipated

Page 13: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

datathathelpprovideastatisticalcontextforthecountry’sopioidcrisisandotherbehavioralhealthmatters.

“SAMHSA’sNationalSurveyonDrugUseandHealthcontainsannualdatathatprovidescriticalinformationwhichhelpsusunderstandimportantconceptsaroundmentalhealthandsubstancemisuseacrossthenation,’’saidDepartmentofHealthandHumanServicesSecretaryAlexM.AzarII.“PresidentDonaldTrump,AssistantSecretaryElinoreMcCance-KatzandIshareavisionforapathforward,onethatinvolvesconnectingAmericanstotheevidence-basedtreatmenttheyneed.”

READMORE

TreatmentAdvocacyCenterprovidescomparisonsbetweenAssistedOutpatientTreatmentversusMentalHealthCourts,here;homelessnessamongveteranswithseriousmentalillness,here;whethertheuseofanti-psychoticmedicationsandthepresenceofasecurityofficermaypreventneedingtoresorttoseclusionandrestraintininpatientpsychiatrichospitalsettings,here;andfascinatingnewresearchindicatingthatnitrates-chemicalsusedtocuremeatssuchasinbeefjerky,hotdogs,andotherprocessedmeats-maycontributetomania,here.

DonatetoSARDAA

Page 14: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

BrainCampaign:TakethePledge

IwillchangemylanguagefromBehavioralorMentaldisordertoBraindisease.Iwilleducateotherstochangetheirlanguagefrommentalillnessestobrainillness.Iwillnotusestigmatizing,discriminatoryorderogatorylanguagerelatedtobraindiseases.Iwillencouragemypeers,familymembers,andcolleaguestoadvocatewhentheyseediscriminatorylanguageorpracticesinthemediaorinpublic.Iwilladvocatethatpeoplewithbraindiseaseshaveequalandcomprehensivehealthcare.Iwilltreatallpeoplewithbraindiseaseswithrespectandcompassion.

HelpSupportSchizophreniaandRelatedDisordersAllianceof

America

AmazondonatestoSchizophrenia&RelatedDisordersAlliance.Shopforgreatdealsatsmile.amazon.com/ch/33-1213657

EasystepstosupportSchizophreniaandRelatedDisordersAllianceofAmericathroughAmazonSmile:

SignintoyourAmazonaccountatsmile.amazon.com.

SelectSchizophreniaandRelatedDisordersAllianceofAmericaSearchforandselectSchizophreniaandRelatedDisordersAllianceof

Americaasyourcharity.Onceselected,youwillreceiveaconfirmationemail.

ShopandcheckoutasyouwouldonAmazon.Noextracostispassedontoyou,butAmazonwillautomaticallydonate0.5%ofyourpurchasestoSchizophreniaandRelatedDisordersAllianceof

America.

PleasesharewithyourfriendsandfamilytojoinyoutosupportSchizophreniaandRelatedDisordersAllianceofAmerica!

BychoosingSchizophreniaandRelatedDisordersAllianceofAmericaasyourcharityonsmile.amazon.com,Amazonwilldonate

0.5%ofyoureligiblepurchasestoSchizophreniaandRelatedDisordersAllianceofAmerica.

PleasetakeamomenttofindouthowyoucanhelpsupportSARDAA,

Page 15: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

notonlytodaybuteveryday-atnoextracosttoyou!!

IT'SSOSIMPLE:justbookmarkthislinkhttp://smile.amazon.com/ch/33-1213657,startshoppingandsupportuseverytimeyoushop.

ShopwithPayPalandchooseSARDAAtoDonatewithPayPalGivingFundtohelpsupportSARDAA.

TexasandLouisianaFriends:

Re-EnrollYourKrogerPlusCards

YoucansupportSARDAAwithoutspendingapenny!Register

SchizophreniaandRelatedDisordersonyourKrogerPlusCardandtheywilldonateapercentagetoSARDAAeachtimeyouuseyour

card.

Pleaseregisteronlineatwww.krogercommunityrewards.com

Linkto:SchizophreniaandRelatedDisorders–KrogerPlusCardXA142

HelpChangeLives--DonateNow

Thankyoutothosewhoalreadymadeadonation.Everycontributionmakesadifference.

Sincerely,

JordanHelwig,CreativeDesignerAngelWhite,Editor


Top Related