national cancer institute: utilizing data for cancer prevention and control
DESCRIPTION
National Cancer Institute: Utilizing Data for Cancer Prevention and Control. Abdul R Shaikh, PhD, MHSc Program Director Health Comm. and Informatics Research Branch Division of Cancer Control and Population Sciences National Cancer Institute [email protected] @abdulrshaikh. - PowerPoint PPT PresentationTRANSCRIPT
April 18, 2012
Abdul R Shaikh, PhD, MHScProgram DirectorHealth Comm. and Informatics Research BranchDivision of Cancer Control and Population SciencesNational Cancer [email protected]@abdulrshaikh
National Cancer Institute: Utilizing Data for Cancer Prevention and Control
NCI: Established by congress in 1937, is the leading Federal agency and world’s largest organization solely dedicated to cancer-related research, training, and dissemination of information.
DCCPS: aims to reduce the risk, incidence, and deaths from cancer as well as enhance the quality of life for cancer survivors. The Division conducts and supports an integrated program of the highest quality behavioral, epidemiologic, genetic, health services, and surveillance cancer research.
“Much of the suffering and death from cancer could be prevented by more systematic efforts to reduce tobacco use, improve diet and physical activity, reduce obesity, and expand the use of established screening tests. The American Cancer Society estimates that in 2011 about 171,600 cancer deaths will be caused by tobacco use alone. In addition, approximately one-third of the 571,950 cancer deaths expected to occur in 2011 are attributed to poor nutrition, physical inactivity, overweight, and obesity.”1
1. American Cancer Society. Cancer Prevention & Early Detection Facts & Figures 2011. Atlanta: American Cancer Society; 2011.
.
Multi-level peer support,
consumers/clinicians, information, monitoring
Decision support, care coordination,
collaboration
Follow-up and decision support, care coordination, patient
engagement
Compliance, care coordination, collaboration,
reminder systems
Transition to 1o, surveillance, health
promotion, end-of-life
Meeting the challenge of ‘Big Data’The availability of massive, rich datasets offers enormous potential for cancer prevention and control
Basic and Translational Science: - Exploratory & confirmatory research for understanding factors and
mechanisms influencing cancer risk & prognosis- Secondary use of health-related data- Educate, inform, and provide decision support for consumer and clinical health outcomes- Understand the role of behavioral and structural determinants of
population health- Commercialization pathways (Open Innovation challenges & SBIR)
Data Sources-SEER, HINTS, CPS-Tobacco, CLASS, CHIS, ATUS, Cancer Imaging Archive, QuitNowTXT library.
. 2010/2011 Open Innovation Challenges:
PARTICIPANTS: 2010: 7 registered teams – 2 winners2011: 26 registered teams – 4 semi-finalists – 2 winners
OUTCOMES: • Increasing the utility of research data for the non-research
community• Building an ecology of scientists, developers, and
entrepreneurs• Accelerate development and commercialization of consumer
HIT products to prevent cancer and other chronic diseases
Increasing the Usability of Public Data for Cancer Prevention & Control
Recent winners
LocalHealthData.org
. SBIR: Innovative Health IT for Broad Adoption by Healthcare Systems and Consumers (R44)
Purpose: - Accelerate development and commercialization of evidence-based consumer health IT products to prevent cancer and other chronic diseases, facilitate patient-provider communication, and improve disease outcomes.- Facilitate 3rd party (i.e., large business) partnerships early in the development process (funding priority for applicants that demonstrate upfront commitment)
Background: - Federal initiatives; consumer demand & commercial investment; NIH, AHRQ, NIST, and ONC interest; tied to COMPETES open innovation challenges
Technical Scope: - R44 Phase II and Fast Track applications (up to $1 million); Large business partner & LOI
Surveillance Epidemiology and End Results (SEER)
http://seer.cancer.gov/PopulationChildren to adults
MethodData collected from cancer registries that cover ~26% of the US
population; follow-up with individual cases until deathContent
Cancer incidence, prevalence, and survival data; cancer site, stage, morphology, treatment; limited demographics (age, race/ethnicity, region)Data
100% of cancer cases in registries; Six million cases with 350,000 added each year; 1973 to 2009;Note
Need specialized software to analyze (SEER*Stat or SEER*Prep) downloaded from website;
Must sign user agreement to obtain; limited to research purposes;Can be linked to Medicare data
PopulationAdults (18+)
Method2003, 2005: Random digit dial (RDD)2007: Dual frame/dual mode2012: Address frame/self-administered mail mode
ContentHealth communications trends and practices Cancer information access and usage Cancer risk perceptionMental models of cancer Health behaviorsNumeracy
Data2003 (n= 6,469); 2005 (n= 5,586); 2007 (n= 7,674); 2012 (n=3,956)*;
Note* Data available summer, 2012
http://hints.cancer.gov
http://riskfactor.cancer.gov/studies/tus-cps/
Population -
Adolescents/adults 15+ 1992-06; 18+ 2007-
Method –National HH address-based frame, 8 panels
Conducted every 3-4 years by Census for NCI
65% telephone (allows cell phone if preferred); 35% in-home
Translated into Spanish and 4 Asian languages
Content: monitor, evaluate and conduct research on Cigarette & other tobacco product usage patterns; Cessation- attempts, intentions, & treatment
Policy- work, home, “real” price, attitudes & clinician advice
Data: ~240,000 U.S. respondents per cycle
Notes: National, state, sub-state estimates;
Health disparities (e.g. race/ethnicity; low SES, rural)
Economic aspects with CPS detailed occupational, & health disability data
Panel design links to other CPS data (e.g., ASEC, ATUS, Food Security, Internet Use)
Panel design allows for adding prospective Follow-Up (2002-03, 2010-2011)
Linkage to outcome data (mortality and SEER data) through NLMS
http://class.cancer.gov/index.aspx
National Health Interview Survey (NHIS)http://www.cdc.gov/nchs/nhis.htmPopulation
Households, families, adults and childrenMethod
Face to face interviewContent
Cancer control supplements (1987, 1992, 2000, 2005, 2010):• Diet and nutrition• Physical activity• Cancer screening• HPV• Sun avoidance• Tobacco use and control• Cancer survivorship
Datan~40,000 households (~87,000 individuals)Initiated in 1957
California Health Interview Survey (CHIS)
PopulationAdult, adolescent and child questionnairesVery diverse racial/ethnic population
MethodTelephone survey (landline/cell phone) of all California counties
Content Health behaviors (Diet/drug use/sexual/sun safety)Health statusHealth conditions (asthma, diabetes etc.)Cancer history and preventionHealth insurance
Data 2001, 2003, 2005, 2007, 2009 data available ~40-50,000 respondents/survey
NoteMany latino and asian groups represented; oversamples of Koreans and VietnameseFielded in five languages: English, Spanish, Chinese, Vietnamese, and Korean
http://www.chis.ucla.edu
American Time Use Surveyhttp://www.bls.gov/tus/; http://riskfactor.cancer.gov/studies/atus.htmlPopulation
Adolescents/adults 15 and older Method
Self report telephone interview using 24 hour recallContent
Estimates of activities people do (work, childcare, socializing, exercising, eating, educational, sports and religious activities), whom they were with, and the time spent doing them by sex, age, educational attainment, labor force status, and other characteristics, as well as by weekday and weekend day.
Eating and health module.Data
n ~ 13,000 per yearData currently available: 2003-2009
NoteData files can be linked to Current Population Survey (CPS)
http://cancerimagingarchive.net
Other NCI data sources and toolsCancer Prevalence & Cost of Care: http://costprojections.cancer.gov
Cancer Trends Progress Report: http://progressreport.cancer.gov/
Health Disparities Calculator (HD*Calc): http://seer.cancer.gov/hdcalc/index.html
PopSciGrid Community Health Data Portal: http://1.usa.gov/L9ShpY
State Cancer Profiles: http://statecancerprofiles.cancer.gov/
Data Resource Contacts - NCI DCCPS
Audie Atienza ([email protected]; Behavioral Research Program)
Eric J (Rocky) Feuer ([email protected]; Surveillance Research Program)
Richard Moser ([email protected]; Behavioral Research Program)
Abdul R Shaikh ([email protected]; @abdulrshaikh; Behavioral Research Program)