100:00:05,320 --> 00:00:08,480DR BEN GAUNTLETT: Ladies andgentlemen, distinguished guests

200:00:08,480 --> 00:00:13,480good disability policy benefits allAustralians now and in the future.

300:00:14,360 --> 00:00:17,360On behalf of the centre ofresearch excellence in disability

400:00:17,360 --> 00:00:20,880and health, and the AustralianHuman Rights Commission,

500:00:20,880 --> 00:00:23,120I'd like to welcomeyou to our webinar,

600:00:23,120 --> 00:00:27,600of the National Disabilitystrategy beyond 2020.

700:00:27,600 --> 00:00:29,520My name is Ben Gauntlett,

800:00:29,520 --> 00:00:32,160and I'm the DisabilityDiscrimination Commissioner

900:00:32,160 --> 00:00:34,840at the Australian HumanRights Commission.

1000:00:34,840 --> 00:00:37,760I will be facilitating

the panels today.

1100:00:37,760 --> 00:00:41,040I'll be making brief introductoryremarks explaining the

1200:00:41,040 --> 00:00:42,880programme shortly.

1300:00:42,880 --> 00:00:46,280But before that, I'd like toinvite Mr Damian Griffis

1400:00:46,280 --> 00:00:48,600of First Peoplesdisability network to do

1500:00:48,600 --> 00:00:51,960an acknowledgement of country.

1600:00:51,960 --> 00:00:53,760DAMIAN GRIFFIS: Thanks, Ben.

1700:00:53,760 --> 00:00:56,160And I'd like to acknowledgethe Traditional Owners on who's

1800:00:56,160 --> 00:00:58,880land we're gathered on today.

1900:00:58,880 --> 00:01:02,920I'm speaking to you fromAwabakal and Worimi country.

2000:01:02,920 --> 00:01:06,680I know we have people onthe line from Gadigal country,

2100:01:06,680 --> 00:01:13,680Wurundjeri country,Ngambri and Ngunnawal country, Larrakia and Kaurna country and Noongar country

2200:01:13,680 --> 00:01:15,280just to name a few.

2300:01:15,280 --> 00:01:18,080I'd like to acknowledge Elderspast present and emerging

2400:01:19,080 --> 00:01:21,840and take the opportunity tomake special acknowledgement

2500:01:22,360 --> 00:01:25,440of two of our founding Eldersare Vale Lester Bolstock

2600:01:25,440 --> 00:01:29,120and Aunty Gayle Rankinewho we lost recently.

2700:01:29,120 --> 00:01:32,480Thank you, Ben.

2800:01:32,480 --> 00:01:33,560BEN: Thank you, Damian.

2900:01:33,560 --> 00:01:37,320And thank you to everyone who hasjoined for today's discussion.

3000:01:37,320 --> 00:01:39,680I'd like to also acknowledgethe Traditional Owners

3100:01:39,680 --> 00:01:43,480of the land on which we meettoday and pay my respects to

3200:01:43,480 --> 00:01:46,000elder's past and present.

3300:01:46,000 --> 00:01:49,160We have more than 800registered in 10 days,

3400:01:49,160 --> 00:01:51,480which is an excellent turnout.

3500:01:51,480 --> 00:01:54,360Our event today hasthree objectives.

3600:01:54,360 --> 00:01:57,640First, to encourage peopleto make submissions on the

3700:01:57,640 --> 00:02:02,520National Disability strategyposition paper, July 2020.

3800:02:02,520 --> 00:02:07,040Second, to promote the importance ofresearch evidence and data

3900:02:07,040 --> 00:02:10,200when formulating disability policy.

4000:02:10,200 --> 00:02:13,440Third, to encourage all membersof the community to take

4100:02:13,440 --> 00:02:16,560an interest in a broadrange of policies,

4200:02:16,560 --> 00:02:21,400affecting people withdisability now and in the future,

4300:02:21,400 --> 00:02:24,680not just the 4.4 millionAustralians who presently have

4400:02:24,680 --> 00:02:28,360a disability, not just the peoplewith disability in their families,

4500:02:28,360 --> 00:02:31,800and support networks, everyone.

4600:02:31,800 --> 00:02:34,560As the National HumanRights institution,

4700:02:34,560 --> 00:02:38,480the Australian Human RightsCommission is deeply interested

4800:02:38,480 --> 00:02:42,200to ensure we have a nationaldisability strategy that is

4900:02:42,200 --> 00:02:44,920reflective of humanrights considerations,

5000:02:44,920 --> 00:02:49,920

and acknowledges our communityvalues of diversity and inclusion.

5100:02:50,560 --> 00:02:53,880To properly do this, we needall levels of government to

5200:02:53,880 --> 00:02:57,000be aware of the importanceof objective evidence,

5300:02:57,000 --> 00:03:02,000data and accessible informationfor people with disability.

5400:03:02,760 --> 00:03:06,000Therefore, we are holdingthis event jointly with the

5500:03:06,000 --> 00:03:09,320centre of research excellencein disability in health,

5600:03:09,320 --> 00:03:12,840which is a cross Universitycollaboration that aims to

5700:03:12,840 --> 00:03:18,040gather the evidence needed to guidesocial and health policy reform

5800:03:18,040 --> 00:03:22,440for people withdisability in Australia.

5900:03:22,440 --> 00:03:24,960We have sought to keep ourpanels and intubating videos

6000:03:24,960 --> 00:03:29,960short and with a lot of presentersto ensure a variety of views.

6100:03:30,600 --> 00:03:34,280Today, our first panel willlook at what the previous

6200:03:34,280 --> 00:03:37,600National Disabilitystrategy remembered for

6300:03:37,600 --> 00:03:42,280and whether we should adopta similar approach in the future.

6400:03:42,280 --> 00:03:44,520Our second panel, wIllconsider what is the role

6500:03:44,520 --> 00:03:49,520of National Disability strategiesin Australia and overseas.

6600:03:50,560 --> 00:03:54,920Finally, our third panel willlook at specific issues under

6700:03:54,920 --> 00:03:57,840the National Disability strategy.

6800:03:57,840 --> 00:04:02,36010 years ago, when all levelsof government were considering

6900:04:02,360 --> 00:04:06,920

our national disability strategy,following the shut out report,

7000:04:06,920 --> 00:04:08,880issues were different.

7100:04:08,880 --> 00:04:12,480But the underlying concern ofthe rights opportunity and

7200:04:12,480 --> 00:04:17,040well being of people withdisability are the same.

7300:04:17,040 --> 00:04:19,360The Convention on the Rightsof Persons with Disabilities

7400:04:19,360 --> 00:04:23,000had just been signedand ratified by Australia.

7500:04:23,000 --> 00:04:26,360The National Disability InsuranceScheme was about to commence,

7600:04:26,360 --> 00:04:29,320and questions existed wherethere are laws protecting

7700:04:29,320 --> 00:04:34,360the human rights of people withdisabilities were fit for purpose.

7800:04:34,360 --> 00:04:37,76010 years later, a considerableamount of effort has gone into

7900:04:37,760 --> 00:04:41,600reviewing the previousstrategy and consulting as

8000:04:41,600 --> 00:04:43,400to the new strategy.

8100:04:43,400 --> 00:04:47,240This has led to the developmentof a position paper which seeks

8200:04:47,240 --> 00:04:50,600to consider the good aspectsthe previous strategy and learn

8300:04:50,600 --> 00:04:52,680from some of the challengesfaced.

8400:04:52,680 --> 00:04:54,760The position paper seeks

8500:04:54,760 --> 00:04:57,200to follow with minor amendment,

8600:04:57,200 --> 00:05:00,880the previous National Disabilitystrategies approach Concerning

8700:05:00,880 --> 00:05:04,120its vision, and outcome areas,

8800:05:04,120 --> 00:05:08,960the vision suggested isan inclusive Australian society that

89

00:05:08,960 --> 00:05:13,240enables people with disabilityto fulfil their potential as

9000:05:13,240 --> 00:05:16,680equal members ofthe community and the outcome

9100:05:16,680 --> 00:05:20,880areas being first,economic security.

9200:05:20,880 --> 00:05:24,320Second, inclusiveinaccessible communities.

9300:05:24,320 --> 00:05:27,760Third, rights protection,justice and legislation.

9400:05:27,760 --> 00:05:31,440Fourth, personal and communitysupport, fifth be learning and

9500:05:31,440 --> 00:05:35,720skills and finally health.

9600:05:35,720 --> 00:05:39,040However, the position paper alsoseeks to make improvements

9700:05:39,040 --> 00:05:42,920new strategy by relyingupon guiding principles,

9800:05:42,920 --> 00:05:45,560an increased focus oncommunity attitudes,

9900:05:45,560 --> 00:05:49,800strengthening accountabilityby clearly describing roles

10000:05:49,800 --> 00:05:52,600and responsibilities ofgovernment, monitoring outcomes

10100:05:52,600 --> 00:05:56,480and reporting, better promotingand communicating the strategy

10200:05:56,480 --> 00:06:01,000for action plansand engagement plan and focusing upon

10300:06:01,000 --> 00:06:03,960workforce development.

10400:06:03,960 --> 00:06:08,960I acknowledge it is a stressfultime for people with disability in

10500:06:09,600 --> 00:06:14,960Australia, the COVID-19 pandemichas caused understandable

10600:06:14,960 --> 00:06:18,840unrest with many people withdisability questioning

10700:06:18,840 --> 00:06:22,160how they are perceived in society.

10800:06:22,160 --> 00:06:24,360There are also significant

concerns with reforms

10900:06:24,360 --> 00:06:27,400the National DisabilityInsurance Scheme,

11000:06:27,400 --> 00:06:31,280and the issues raised bythe role of people with disability

11100:06:31,280 --> 00:06:34,680interacting withthe disability role commission.

11200:06:34,680 --> 00:06:39,560But the strategy is, in a sense,a critical piece of infrastructure

11300:06:39,560 --> 00:06:42,480upon which other policies build off.

11400:06:42,480 --> 00:06:44,440We need to get it right.

11500:06:44,440 --> 00:06:46,800And we need people withdisabilities to be central to

11600:06:46,800 --> 00:06:51,040its implementationand assessment for the next decade.

11700:06:51,040 --> 00:06:53,320Please constructively comment.

11800:06:53,320 --> 00:06:56,280I hope that

I encourage you to do so.

11900:06:57,800 --> 00:07:01,920Our first panel will bea reflection on the last

12000:07:01,920 --> 00:07:04,600National Disability strategy.

12100:07:04,600 --> 00:07:08,080And as was mentioned inthe introduction, we have a series of

12200:07:08,080 --> 00:07:11,400short videos, which we'll beplaying where people will

12300:07:11,400 --> 00:07:16,400provide comment on to informthe panel's views on certain issues.

12400:07:17,400 --> 00:07:20,400We've asked them muchadmired campaign director,

12500:07:20,400 --> 00:07:23,240Kirsten Dean of everyAustralian counts.

12600:07:23,240 --> 00:07:24,800To answer the question,

12700:07:24,800 --> 00:07:29,800What will the last National Disabilitystrategy be remembered for?

12800:07:34,320 --> 00:07:37,880

I have to admit that I havemixed feelings when I look back

12900:07:37,880 --> 00:07:42,640on shutout and the very firstnational disability strategy.

13000:07:42,640 --> 00:07:46,720On the one hand, it wasthe first time that governments all

13100:07:46,720 --> 00:07:49,840around Australia cametogether and articulated

13200:07:49,840 --> 00:07:52,920a vision for people withdisability in this country,

13300:07:52,920 --> 00:07:57,240and promised to do their bit tohelp make that vision happen.

13400:07:57,240 --> 00:08:00,880On the other hand, I'm reallystruck when I reread both

13500:08:00,880 --> 00:08:04,680those documents of howfar we still have to go.

13600:08:04,680 --> 00:08:08,640Many people with disability inthis country still experience

13700:08:08,640 --> 00:08:11,960the kinds of discriminationand barriers that are described in

13800:08:11,960 --> 00:08:13,720those pages.

13900:08:13,720 --> 00:08:17,440And the gap in life outcomesbetween people with disability,

14000:08:17,440 --> 00:08:21,480and those without disabilityis still too large.

14100:08:21,480 --> 00:08:25,400I really hope this next NationalDisability strategy starts to

14200:08:25,400 --> 00:08:28,880change that picture.

14300:08:28,880 --> 00:08:31,880Thank you for that video.

14400:08:31,880 --> 00:08:36,240I'll then now move tointroduce our first panel,

14500:08:36,240 --> 00:08:40,960which will be reflecting onthe last National Disability strategy.

14600:08:40,960 --> 00:08:45,960As previously articulated,the position paper seeks to adopt

14700:08:46,880 --> 00:08:51,120certain aspects ofthe last national disability strategy,

14800:08:51,120 --> 00:08:54,840but also seeks to makeimprovements on the strategy for

14900:08:54,840 --> 00:08:58,000relying on guidingprinciples, an increased focus

15000:08:58,000 --> 00:09:02,160on community attitudes,strengthening accountability,

15100:09:02,160 --> 00:09:06,560including by clearly describingthe roles (INAUDIBLE)

15200:09:06,560 --> 00:09:08,720articulating clearmonitoring outcomes

15300:09:08,720 --> 00:09:10,960and the need for better report.

15400:09:10,960 --> 00:09:14,120Better promoting and communicatingthe strategy in such things

15500:09:14,120 --> 00:09:18,000as total action, an engagementplan and focusing upon

15600:09:18,760 --> 00:09:21,280workforce development.

15700:09:21,280 --> 00:09:23,400Our panellists for this session

15800:09:23,400 --> 00:09:26,040are Professor Gwynnyth Llewellyn,

15900:09:26,040 --> 00:09:29,040who is a co director ofthe centre of research excellence

16000:09:29,040 --> 00:09:33,160in disability and healthand director at the centre of

16100:09:33,160 --> 00:09:38,200disability research and policyat the University in Sydney.

16200:09:38,200 --> 00:09:40,920Gwynnyth it is also the headof the who collaborating

16300:09:40,920 --> 00:09:44,840Centre in health, workforcedevelopment, and rehabilitation

16400:09:44,840 --> 00:09:46,920and long term care.

16500:09:46,920 --> 00:09:49,160Our research focuses upon developing

16600:09:49,160 --> 00:09:52,240Health and Social Policyand Practise solutions

16700:09:52,240 --> 00:09:54,720enable disabledindividuals and their

16800:09:54,720 --> 00:09:57,240families to fully participate in society.

16900:09:59,160 --> 00:10:02,960Our second panellist is CommissionerMr Robert Fitzgerald,

17000:10:02,960 --> 00:10:05,760who is New South Wales firstageing disability

17100:10:05,760 --> 00:10:09,760Commissioner, which is taskedwith protecting adults with

17200:10:09,760 --> 00:10:12,280disability and older people.

17300:10:12,280 --> 00:10:16,240Fitzgerald served on the Royal Commissioninstitutional

17400:10:16,240 --> 00:10:21,240responses to child sexualabuse from 2013 to 2017.

17500:10:22,160 --> 00:10:25,200He also spent time asProductivity Commissioner and

17600:10:25,200 --> 00:10:28,560Community and DisabilityServices Commissioner.

17700:10:28,560 --> 00:10:32,160As Productivity Commissioner

Commissioner Fitzgerald reviewed

17800:10:32,160 --> 00:10:34,080the National Disability agreement,

17900:10:34,080 --> 00:10:37,360which was entered into in2009 by state and territory

18000:10:37,360 --> 00:10:41,520government to promote cooperation,enhance accountability,

18100:10:41,520 --> 00:10:45,880and clarify rolesand responsibilities.

18200:10:45,880 --> 00:10:50,480And our final panellist for thissession is Professor Karen Fisher,

18300:10:50,480 --> 00:10:55,480who is a professor at the UNSW,Social Policy Research Centre.

18400:10:56,320 --> 00:10:59,400Her research interests arethe organisation of social services

18500:10:59,400 --> 00:11:03,960in Australia and in China, disabilityand mental health policy,

18600:11:03,960 --> 00:11:08,960inclusive research and evaluationand social policy processes.

187

00:11:09,800 --> 00:11:12,600Professor Fisher was involvedin the review of the

18800:11:12,600 --> 00:11:15,080National Disability strategy in2019 for the UNSW

18900:11:18,600 --> 00:11:21,080social policy research centre.

19000:11:23,680 --> 00:11:28,680If I might then ask the panelliststo make themselves available.

19100:11:31,520 --> 00:11:34,560Gwynnyth, Imight start with you.

19200:11:34,560 --> 00:11:36,800Thank you for attending today.

19300:11:36,800 --> 00:11:41,320The vision and outcome areassuggested in the position paper

19400:11:41,320 --> 00:11:46,120are very similar to the previousNational Disability strategy.

19500:11:46,120 --> 00:11:49,640What are your views on adoptinga similar approach in

19600:11:49,640 --> 00:11:54,840the next nationaldisability strategy?

19700:11:54,840 --> 00:11:56,480PROF GWYNNYTH LLEWELLYN: Thankyou, Ben.

19800:11:56,480 --> 00:12:01,080And I'm speaking from the midnorth coast of New South Wales

19900:12:01,080 --> 00:12:05,920on (UNKNOWN) country, and I'mpaying my respects to elder's past,

20000:12:05,920 --> 00:12:08,920present and emerging.

20100:12:08,920 --> 00:12:12,960To answer your question,the NDS brought Australia into

20200:12:12,960 --> 00:12:16,920a new way of thinking aboutpeople with disability.

20300:12:16,920 --> 00:12:20,520People with disability in theirlives are foregrounded no longer

20400:12:20,520 --> 00:12:24,480in the back seat,or indeed invisible,

20500:12:24,480 --> 00:12:27,640for the first time a positivevision aimed at fulfilling life

20600:12:28,640 --> 00:12:31,720affirming outcomes.

20700:12:31,720 --> 00:12:35,400The Human Rights imperativebroadcast far and wide that

20800:12:35,400 --> 00:12:40,520Australia was now committed tothe rights of people with disability.

20900:12:40,520 --> 00:12:45,360The social imperative made itcrystal clear that excluding people

21000:12:45,360 --> 00:12:48,600with disability from mainstreamAustralian society was

21100:12:48,600 --> 00:12:51,440no longer acceptable.

21200:12:51,440 --> 00:12:54,880And the economic imperativedemonstrated that Australian

21300:12:54,880 --> 00:12:59,720discourse about disability and peoplewith disability had to change.

21400:12:59,720 --> 00:13:02,880It would be in everyone's interestfor people with disability

21500:13:02,880 --> 00:13:07,560to be active participantsin the Australian economy.

21600:13:07,560 --> 00:13:12,000

The vision and the outcomesbuilt on those three imperatives

21700:13:12,000 --> 00:13:15,440and they remain relevant today.

21800:13:15,440 --> 00:13:19,080And this is because 10 yearson although some progress has

21900:13:19,080 --> 00:13:22,280been made, this has been slow.

22000:13:22,280 --> 00:13:27,200At the CRA our assertion ondisadvantage and inequality for

22100:13:27,200 --> 00:13:32,200people with disability demonstrateslittle progress in many areas

22200:13:33,040 --> 00:13:35,400of the strategy.

22300:13:35,400 --> 00:13:40,000For example, inequality inlabour force participation by

22400:13:40,000 --> 00:13:44,880people with disability overthe last decade has not been reduced.

22500:13:44,880 --> 00:13:48,920People with disability are much morelikely to experience violence

22600:13:48,920 --> 00:13:53,920

and much less likely to feel safein their own neighbourhoods.

22700:13:54,720 --> 00:13:58,400The previous strategy reliedon governments, big business

22800:13:58,400 --> 00:14:01,720and the community allgetting on board.

22900:14:01,720 --> 00:14:06,320But to get on board means you firsthave to know the strategy exists,

23000:14:06,320 --> 00:14:09,240and the 2019 consultation round to

23100:14:09,240 --> 00:14:13,400help shape this new strategyfound that less than half of the

23200:14:13,400 --> 00:14:17,040participants knewabout the existence of

23300:14:17,040 --> 00:14:20,720a national disability strategy.

23400:14:20,720 --> 00:14:25,280Without robust mechanisms tomeasure the strategies aims,

23500:14:25,280 --> 00:14:29,560it's not possible to monitorif progress has been made,

236

00:14:29,560 --> 00:14:33,360or if not, what are the roadblocks.

23700:14:33,360 --> 00:14:38,360Evidence is needed to realignpolicies and initiate new actions

23800:14:39,080 --> 00:14:43,880to broadcast good newsand to reward effort.

23900:14:43,880 --> 00:14:46,280How labour is also needed?

24000:14:46,280 --> 00:14:50,240Because it takes hard labour tobring about strategic societal

24100:14:50,240 --> 00:14:54,760and behavioural change,constancy and commitment to

24200:14:54,760 --> 00:14:59,960the NDS's vision and outcomeareas is the solid beginning.

24300:14:59,960 --> 00:15:05,040My view is that changing coursemidstream on the building blocks

24400:15:05,040 --> 00:15:09,920of the NDS would seriouslyrock and potentially

24500:15:09,920 --> 00:15:14,960capsize the momentumalready underway.

24600:15:14,960 --> 00:15:19,200Thanks, Ben forthe opportunity to speak.

24700:15:19,200 --> 00:15:20,640BEN: Thank you very much Gwynnyth,

24800:15:20,640 --> 00:15:24,600for those insightful comments,(INAUDIBLE)

24900:15:24,600 --> 00:15:25,880not wanting to rock the boat.

25000:15:25,880 --> 00:15:28,400I might then ask Robert Fitzgeraldfor his views,

25100:15:29,120 --> 00:15:30,920Robert, the vision and the

25200:15:30,920 --> 00:15:34,200outcome areas suggestingthe position paper are very similar

25300:15:34,200 --> 00:15:36,560to the previous NationalDisability strategy,

25400:15:36,560 --> 00:15:39,920which you've reviewed in your roleas productivity Commissioner,

25500:15:39,920 --> 00:15:43,000what are your views on adoptinga similar approach in

25600:15:43,000 --> 00:15:48,000the next nationaldisability strategy?

25700:15:49,400 --> 00:15:52,200ROBERT FITZGERALD: Thanks, Ben. Andit's a joy to be with you and Gwynnyth

25800:15:52,200 --> 00:15:54,480and Karen and others today.

25900:15:54,480 --> 00:15:55,960I was thinking aboutthis this morning.

26000:15:55,960 --> 00:15:58,880And there's a book that waswritten by Charles Dickens

26100:15:58,880 --> 00:16:02,800nearly 160 years ago called'Great Expectations'.

26200:16:02,800 --> 00:16:06,720And in that book, people wouldhave expected a better life.

26300:16:06,720 --> 00:16:10,400And in a sense, I think that reflectsthe strategy that's coming to

26400:16:10,400 --> 00:16:14,040an end, it is a documentthat is roundly across the

26500:16:14,040 --> 00:16:16,880nation supported by

people with disability,

26600:16:16,880 --> 00:16:20,880and most of us had ever beenassociated in that space.

26700:16:20,880 --> 00:16:23,840And really, I think Karen willshow that in her consultations,

26800:16:23,840 --> 00:16:25,720that didn't change.

26900:16:25,720 --> 00:16:28,440But what was very clear,and the productivity Commission's

27000:16:28,440 --> 00:16:30,760review of the NationalDisability agreement showed it,

27100:16:31,240 --> 00:16:35,000whatever the objectivesor outcomes you settled upon,

27200:16:35,000 --> 00:16:37,440they will have almost no effect.

27300:16:37,440 --> 00:16:40,120Unless there is a rigorousoversight of the implementation

27400:16:40,120 --> 00:16:44,960of the next strategy, there isa very substantial effort to have

27500:16:44,960 --> 00:16:48,000

a good quality outcomes framework.

27600:16:48,000 --> 00:16:51,640That framework is in fact, agreedby the states and territory,

27700:16:51,640 --> 00:16:54,560but administered by a body likethe Productivity Commission,

27800:16:54,560 --> 00:16:57,040and that there is someoversight by a group such

27900:16:57,040 --> 00:17:00,320as the Human Rights Commission,otherwise, 10 years from now,

28000:17:00,320 --> 00:17:04,160whatever the outcomes or visionthat is elected, or selected,

28100:17:04,160 --> 00:17:06,080will, in fact, have failed.

28200:17:06,080 --> 00:17:08,720Because the way in whichgovernments or all of us operate is

28300:17:08,720 --> 00:17:13,440that we need a number of differentlevers or efforts to make it work.

28400:17:13,440 --> 00:17:16,680The second thing is that inthis new role that I've got,

285

00:17:16,680 --> 00:17:20,080one of our statutory functionsis to review the performance of

28600:17:20,080 --> 00:17:22,400the New South Wales Governmentin relation to the

28700:17:22,400 --> 00:17:24,840implementation of itsobligations under the

28800:17:24,840 --> 00:17:26,560National Disability strategy.

28900:17:26,560 --> 00:17:31,000And tomorrow, we releasea position paper about that role.

29000:17:31,000 --> 00:17:33,320And I think a couple of thingsin the outcome areas that

29100:17:33,320 --> 00:17:35,840I would just highlightin relation to that.

29200:17:35,840 --> 00:17:38,720The first thing the outcomeareas, I think the six are fine,

29300:17:38,720 --> 00:17:41,960but I'll add one in a moment,is that we need to absolutely

29400:17:41,960 --> 00:17:45,720acknowledge the issue of safeguardingof people with disability,

29500:17:45,720 --> 00:17:49,440we have to name and call outthe issues of abuse, neglect,

29600:17:49,440 --> 00:17:51,120and exploitation.

29700:17:51,120 --> 00:17:54,120We have to name and call outhow are we going to prevent it?

29800:17:54,120 --> 00:17:55,600How are we going to moderate it?

29900:17:55,600 --> 00:17:57,560And how are we goingto respond to it.

30000:17:57,560 --> 00:18:00,040And if we look at the royal commissions

30100:18:00,040 --> 00:18:01,040both ageing and disability,

30200:18:01,040 --> 00:18:03,320if we look at the followup from the death of

30300:18:03,320 --> 00:18:05,840Anne Marie Smith and others,they're all crying out for

30400:18:05,840 --> 00:18:08,800that and acknowledgement thatnot only does the service system

30500:18:08,800 --> 00:18:11,960need improving, but asa community, we have to be aware of

30600:18:11,960 --> 00:18:13,480these issues.

30700:18:13,480 --> 00:18:15,120The second bed related issue and the

30800:18:15,120 --> 00:18:18,360Productivity Commission recommendedthis was a specific area in

30900:18:18,360 --> 00:18:20,480relation to family and carers.

31000:18:20,480 --> 00:18:23,440I'm fully aware that some inthe disability sector does

31100:18:23,440 --> 00:18:24,880not support that.

31200:18:24,880 --> 00:18:28,000But the hard reality is unlesswe acknowledge their role

31300:18:28,000 --> 00:18:31,200and support them, then in fact,the level of abuse and neglect

31400:18:31,200 --> 00:18:32,600will continue to rise,

31500:18:32,600 --> 00:18:37,520

the vast majority of abuse withinthis space occurs by parents,

31600:18:37,520 --> 00:18:40,240by siblings, by carers.

31700:18:40,240 --> 00:18:41,560And so in a sense,

31800:18:41,560 --> 00:18:42,880I think weneed to strengthen that either

31900:18:42,880 --> 00:18:45,480as a separate outcome or part of it.

32000:18:45,480 --> 00:18:48,320The third is we absolutely haveto get right the whole issue

32100:18:48,320 --> 00:18:52,680about housing, access to it,the safety of it, the affordability.

32200:18:52,680 --> 00:18:54,840And God knows the design of it.

32300:18:54,840 --> 00:18:57,920How long have we talked aboutproper design of housing for

32400:18:57,920 --> 00:19:00,840people with disability as partof the common way in which we

32500:19:00,840 --> 00:19:02,800approach these issues?

32600:19:02,800 --> 00:19:05,680So I think there are strengthsin the current framework,

32700:19:05,680 --> 00:19:09,200just as Gwynnyth indicated,and certainly that's been the experience,

32800:19:09,200 --> 00:19:10,960both in the Royal Commission sorry,

32900:19:10,960 --> 00:19:14,360in relation to the ProductivityCommission, but also recently.

33000:19:14,360 --> 00:19:17,720But I would just go back tothe vision, I noticed that the proposal in

33100:19:17,720 --> 00:19:21,560the position paper is that weremove the word citizens.

33200:19:21,560 --> 00:19:25,040One of the learnings out of COVID,and there's three major ones,

33300:19:25,040 --> 00:19:29,080is we've restored the notionof humanity, humans matter.

33400:19:29,080 --> 00:19:32,880The second thing is, we've restoredthe notion of citizenship,

33500:19:32,880 --> 00:19:37,600

we matter as citizens, not asconsumers, not simply as users

33600:19:37,600 --> 00:19:41,360of services, but suddenlygovernments treat us as citizens.

33700:19:41,360 --> 00:19:43,800And I think the visionstatement should have that.

33800:19:43,800 --> 00:19:46,760The third one and it is inthe document is about community

33900:19:46,760 --> 00:19:47,760engagement.

34000:19:47,760 --> 00:19:51,000We now realise just howimportant community inclusion

34100:19:51,000 --> 00:19:53,120and engagement really is.

34200:19:53,120 --> 00:19:56,280And that's a strength that wasin the performance strategy,

34300:19:56,280 --> 00:19:59,360that needs to be furtherelevated in the new strategy.

34400:19:59,360 --> 00:20:01,680But the question is,how do we do that?

345

00:20:01,680 --> 00:20:02,840We've lost in a sense,

34600:20:02,840 --> 00:20:06,560the capacity to mobilisethe community as part of the solution to

34700:20:06,560 --> 00:20:11,200our problems, we have to reengagein that in a very effective way.

34800:20:11,200 --> 00:20:13,920So my final comment is, I thinkthe strategy or the foundations

34900:20:13,920 --> 00:20:17,040as Gwynnyth said are sound,they do need quiggin.

35000:20:17,040 --> 00:20:20,320But most importantly, they needto sit within a much stronger

35100:20:20,320 --> 00:20:23,280framework of design, codesign with people with

35200:20:23,280 --> 00:20:28,360disability, implementation, oversight,and a very robust outcome

35300:20:28,360 --> 00:20:32,960framework, which is reported onpublicly in a very timely way.

35400:20:32,960 --> 00:20:35,960And one of the things the laststrategy has suffered from is the

35500:20:35,960 --> 00:20:40,160lack of timely public reporting,and more importantly,

35600:20:40,160 --> 00:20:42,000the evaluation of initiatives.

35700:20:42,000 --> 00:20:44,960So they're just someopening thoughts Ben.

35800:20:44,960 --> 00:20:48,000BEN: Thank very much Robertfor those insightful comments.

35900:20:48,000 --> 00:20:52,440I may come back to you onissue, of housing, when we get to

36000:20:52,440 --> 00:20:54,920consider what are some of the keyissues going forward

36100:20:54,920 --> 00:20:57,480relating to nationaldisability strategy.

36200:20:57,480 --> 00:21:00,880But Karen, if I might go to you,then, the vision and outcome

36300:21:00,880 --> 00:21:04,120area suggesting the positionpaper are very similar to the

36400:21:04,120 --> 00:21:08,480

previous National Disabilitystrategy, as has been commented upon.

36500:21:09,240 --> 00:21:13,120You've previouslyreviewed the National Disability Strategy

36600:21:13,600 --> 00:21:15,400University of New South Wales.

36700:21:15,400 --> 00:21:18,000What are your views onadopting a similar approach

36800:21:18,000 --> 00:21:21,680in the next nationaldisability strategy?

36900:21:21,680 --> 00:21:24,120PROF KAREN FISHER: I think the answer tothat is already been answered.

37000:21:24,120 --> 00:21:26,640It sounds like it's a good idea.

37100:21:26,640 --> 00:21:30,320Certainly, we know historically,the reason that those outcomes

37200:21:30,320 --> 00:21:34,280were formed were they werethe priorities that came out of

37300:21:34,280 --> 00:21:37,400the engagement with people withdisability across Australia

374

00:21:37,400 --> 00:21:39,000from the shutout report.

37500:21:39,000 --> 00:21:42,520And they're consistent withpriorities in the UN Convention

37600:21:42,520 --> 00:21:44,760on the Rights of Peoplewith disability.

37700:21:44,760 --> 00:21:49,160The reason for those prioritiesis that they are the ones

37800:21:49,160 --> 00:21:54,040that resonate with people withwhat they want in their lives.

37900:21:54,040 --> 00:21:57,680We were asked two years ago bythe government to review the

38000:21:57,680 --> 00:22:01,960way the currentstrategy was implemented.

38100:22:01,960 --> 00:22:06,480And virtually everyone, peoplewith disability and governments

38200:22:06,480 --> 00:22:09,160agreed with the outcomes themselves.

38300:22:09,160 --> 00:22:13,040There were some cross cuttinggaps, and those were particularly

38400:22:13,040 --> 00:22:16,800around gender equalityand participation.

38500:22:16,800 --> 00:22:20,000But no one said that weneed more outcomes.

38600:22:20,000 --> 00:22:23,080What they emphasised wasthat we need to change that

38700:22:23,080 --> 00:22:28,160we are implementing those outcomesand thinking across outcomes.

38800:22:28,160 --> 00:22:33,160So they gave examples of policyinitiatives such as the standards,

38900:22:34,760 --> 00:22:37,640bringing in Universal Design,and making sure that we

39000:22:37,640 --> 00:22:42,400actually implement those typesof policies and enforce them.

39100:22:42,400 --> 00:22:46,000But that way that we canactually address questions of

39200:22:46,760 --> 00:22:49,880housing and transportand digital information,

39300:22:49,880 --> 00:22:53,640

ones that aren't specificallyreferred to in the outcomes,

39400:22:53,640 --> 00:22:57,280but obviously a very core to them.

39500:22:57,280 --> 00:23:00,160The other big finding in thatreview is was that people were

39600:23:00,840 --> 00:23:04,520very disappointed with the waythat the outcomes have been

39700:23:04,520 --> 00:23:05,800implemented.

39800:23:05,800 --> 00:23:09,040It hasn't really made a bigdifference to people's lives,

39900:23:09,040 --> 00:23:11,000the goals weren't to change.

40000:23:11,000 --> 00:23:13,960But again, they were quiteclear about what we need to do

40100:23:13,960 --> 00:23:16,120to make that path better, too.

40200:23:16,120 --> 00:23:20,000It's really about inclusivepolicy involvement of people

40300:23:20,000 --> 00:23:21,440with disability.

40400:23:21,440 --> 00:23:25,640And I think that means clearresponsibility centrally from

40500:23:25,640 --> 00:23:29,840our governments, but mostimportantly, locally.

40600:23:29,840 --> 00:23:33,520So in local community,people can become involved,

40700:23:33,520 --> 00:23:38,480they can then have a voice aboutwhat their priorities are,

40800:23:38,480 --> 00:23:41,680and how the money can be spentto make a difference that they

40900:23:41,680 --> 00:23:44,480can see, the action that they need.

41000:23:44,480 --> 00:23:47,680So they live, they actuallyimprove now, we can't expect them

41100:23:47,680 --> 00:23:50,040to wait around foranother 10 years to go,

41200:23:50,040 --> 00:23:54,240oh, that didn't work did, I thinkthe other advantage of looking

41300:23:54,240 --> 00:23:57,600

at that central through tolocal is that that gives us the

41400:23:57,600 --> 00:24:02,360opportunity to really addressthe big gaps around diversity.

41500:24:02,360 --> 00:24:07,560So particularly for people inregional and rural communities,

41600:24:07,560 --> 00:24:12,560and intersectional groups,and people who don't and won't ever

41700:24:14,120 --> 00:24:18,000use an NDIS package.

41800:24:18,000 --> 00:24:21,840The first plan, really, that wasone of the major achievements.

41900:24:21,840 --> 00:24:26,320But 90% of people withdisability will not get a plan.

42000:24:26,320 --> 00:24:31,760They rely on the other parts ofthe National Disability strategy.

42100:24:31,760 --> 00:24:36,360And so one of the achievementsI think of that that first strategy

42200:24:36,360 --> 00:24:40,840was the disability inclusionplanning guide that was developed

42300:24:40,840 --> 00:24:42,400for local governments.

42400:24:42,400 --> 00:24:46,920It's a way for us to be able toactually articulate how people

42500:24:46,920 --> 00:24:48,200can be involved.

42600:24:48,200 --> 00:24:53,200And I think that's a key forthe next strategy. Thank you.

42700:24:54,480 --> 00:24:55,960BEN: Thank you very much, Karen.

42800:24:55,960 --> 00:25:00,200I might then for the next 11minutes try and throw open

42900:25:00,200 --> 00:25:04,400the discussion in relation torelating back some of the answers

43000:25:04,400 --> 00:25:07,080we've had under Mentimeter,

43100:25:07,080 --> 00:25:10,880to what panellists have said, whattheir views are on the three things

43200:25:10,880 --> 00:25:14,640I think the next National Disabilitystrategy needs to focus on

433

00:25:14,640 --> 00:25:17,480or achieve in the next 10 years.

43400:25:17,480 --> 00:25:19,800Um, I noticed when lookingat the Mentimeter,

43500:25:19,800 --> 00:25:23,840we've had employment, communityattitudes, inclusion,

43600:25:23,840 --> 00:25:27,000and housing are allcritical concepts there.

43700:25:27,720 --> 00:25:30,680I might go to you, Robert,because you mentioned the

43800:25:30,680 --> 00:25:32,720issue of housing.

43900:25:32,720 --> 00:25:35,680What three issues do youthink are important for

44000:25:35,680 --> 00:25:40,960the National Disabilitystrategy in the future?

44100:25:40,960 --> 00:25:44,640I think you're on mute Robert.

44200:25:44,640 --> 00:25:45,760ROBERT: If we just take housing,

44300:25:45,760 --> 00:25:48,280

let me just underline what I said before,

44400:25:48,880 --> 00:25:51,920the National Housing agreement,which was signed up

44500:25:51,920 --> 00:25:54,60018 months ago, two years ago,

44600:25:54,600 --> 00:25:57,360notwithstanding the NationalDisability agreement,

44700:25:57,360 --> 00:26:00,840notwithstanding national strategy,did not mention people with

44800:26:00,840 --> 00:26:02,240disability.

44900:26:02,240 --> 00:26:03,880Now, that's extraordinary.

45000:26:03,880 --> 00:26:07,120That's astonishing that ninegovernments of Australia committed

45100:26:07,120 --> 00:26:10,440to a national disability agreement,although much, you know,

45200:26:10,440 --> 00:26:14,640much weakened, at the presenttime, didn't even have it in.

45300:26:14,640 --> 00:26:16,880And yet, it's central

to the strategy.

45400:26:16,880 --> 00:26:19,320So the question abouthousing, accessible housing,

45500:26:19,320 --> 00:26:22,320affordable housing, housing thatis appropriately designed for

45600:26:22,320 --> 00:26:25,280people with disability isnow a critical issue,

45700:26:25,280 --> 00:26:29,600as we see the increasing level ofdisability associated with ageing.

45800:26:29,600 --> 00:26:32,640I mean, this is a huge issuefor an ageing population,

45900:26:32,640 --> 00:26:35,600yet alone for people that havehad disability all their lives

46000:26:35,600 --> 00:26:36,880who are ageing.

46100:26:36,880 --> 00:26:39,480So that's one issue, wereally got to get into it.

46200:26:39,480 --> 00:26:42,800The second one, I did mentiona little bit, but it is about how do

463

00:26:42,800 --> 00:26:46,320we actually strengthenthe community connectedness that

46400:26:46,320 --> 00:26:48,880creates a safe environmentwithin which people live.

46500:26:49,880 --> 00:26:51,960Everyone's talking atthe moment about homecare,

46600:26:51,960 --> 00:26:55,400providing support to ageingpeople within the home.

46700:26:55,400 --> 00:26:58,160But we have to be able todo that in a safe way.

46800:26:58,160 --> 00:26:59,960Now, that's not justsimply about having good

46900:26:59,960 --> 00:27:02,040safeguarding measures, which it is.

47000:27:02,040 --> 00:27:05,120It's not simply about havinga better trained workforce,

47100:27:05,120 --> 00:27:08,200which it is, but it's actuallyabout the community being part

47200:27:08,200 --> 00:27:09,560of that solution.

47300:27:09,560 --> 00:27:10,960And so I think the notions of

47400:27:10,960 --> 00:27:14,600Community Inclusion goes wellbeyond our notion of simply

47500:27:14,600 --> 00:27:17,920ensuring that people with disabilitylive without discrimination.

47600:27:17,920 --> 00:27:19,920I think it's a much broader concept.

47700:27:19,920 --> 00:27:22,440And I think COVID hasshown that to us.

47800:27:22,440 --> 00:27:27,480But the third point that I wouldreally raise is that underpinning

47900:27:27,480 --> 00:27:32,360all of this is thatthe codesign of the implementation

48000:27:32,360 --> 00:27:35,320is critical Ben, so I couldgo through and we could talk

48100:27:35,320 --> 00:27:37,520about 20 issues,they're all important.

48200:27:37,520 --> 00:27:40,320But if they're not co designedwith people with disability,

48300:27:40,320 --> 00:27:44,400and they're not over citedand evaluated, it won't matter what's in

48400:27:44,400 --> 00:27:45,400the document.

48500:27:45,400 --> 00:27:48,600So I go back to that broaderpoint, that whatever the

48600:27:48,600 --> 00:27:51,120whatever the peoplewith disability want in

48700:27:51,120 --> 00:27:55,800this document, it needs to beunderpinned by a very robust regime.

48800:27:55,800 --> 00:27:57,280BEN: Thank you very much Robert.

48900:27:57,280 --> 00:28:02,080I might go then to Karen thenGwynnyth in relation to this.

49000:28:02,080 --> 00:28:05,080Karen what are the three thingsyou think the next national

49100:28:05,080 --> 00:28:08,840disability strategy needs tofocus on or achieve in the last

49200:28:08,840 --> 00:28:13,12010 years or in the next

10 years rather?

49300:28:13,120 --> 00:28:16,720KAREN: So I might take thatyour opening comment about

49400:28:16,720 --> 00:28:21,520what's coming up inthe Mentimeter on attitudes and

49500:28:21,520 --> 00:28:22,720community attitudes.

49600:28:22,720 --> 00:28:26,880So this is how people areviewed in the community.

49700:28:26,880 --> 00:28:30,440We've also done extensiveresearch on this area and

49800:28:30,440 --> 00:28:33,520in Australia andcomparing internationally.

49900:28:33,520 --> 00:28:37,120And we know of course thatattitudes are vital because

50000:28:37,120 --> 00:28:40,840if people are not respectedand valued in their community,

50100:28:40,840 --> 00:28:45,960then that's the firstbarrier to doing anything else.

502

00:28:45,960 --> 00:28:49,440Our research on that has shownthat it's very important that

50300:28:49,440 --> 00:28:54,440we have government ledinitiatives at three levels to

50400:28:55,480 --> 00:28:58,560change attitudes, thoseare personal level.

50500:28:58,560 --> 00:29:02,120And that's where we seethe great initiatives such as

50600:29:02,120 --> 00:29:05,880employability mean, where peopleactually get to understand that,

50700:29:05,880 --> 00:29:10,080yes, we are all partof the same humanity,

50800:29:10,080 --> 00:29:13,640and diversity is valuable.

50900:29:13,640 --> 00:29:17,400The second is organisational,and this is where we see for example,

51000:29:17,400 --> 00:29:21,080within our workplace,the responsibility of employers

51100:29:21,080 --> 00:29:26,120and co workers to actuallyunderstand and welcome and respect

51200:29:26,120 --> 00:29:28,200their co workers with disability.

51300:29:28,200 --> 00:29:30,680And the third isthe legal structures.

51400:29:30,680 --> 00:29:34,280Australia actually has quitereasonable anti discrimination

51500:29:34,280 --> 00:29:36,720legislation and standards.

51600:29:36,720 --> 00:29:40,520Our problem is the mechanismsfor enforcing them can be

51700:29:40,520 --> 00:29:43,400quite difficult forpeople to access.

51800:29:43,400 --> 00:29:48,400And so I think, again, weneed reform at that level.

51900:29:50,000 --> 00:29:51,600BEN: Thank you verymuch for that Karen,

52000:29:51,600 --> 00:29:53,320I do know you

52100:29:53,320 --> 00:29:55,960have published an excellentjournal article on community

52200:29:55,960 --> 00:29:58,360attitudes, which is tolook at the structural,

52300:29:58,360 --> 00:30:01,520organisational and personal levelsin terms of community values

52400:30:01,520 --> 00:30:03,960for people with disability which

52500:30:03,960 --> 00:30:06,360I must confess, I've alignedextensively in speeches.

52600:30:06,360 --> 00:30:08,000So I'm very grateful for that.

52700:30:08,480 --> 00:30:11,000I might go to you,then Gwynnyth, um,

52800:30:11,000 --> 00:30:12,800what are the three thingsyou think the next

52900:30:12,800 --> 00:30:16,320National Disability strategyneeds to focus on or achieve in

53000:30:16,320 --> 00:30:18,560the next 10 years?

53100:30:18,560 --> 00:30:21,600GWYNNYTH: OK, my first one isthat children,

53200:30:21,600 --> 00:30:23,240needs to focus on children and

53300:30:23,240 --> 00:30:27,080young people with disability,they're remarkably absent from

53400:30:27,080 --> 00:30:28,800the current strategy.

53500:30:28,800 --> 00:30:30,360And they're not many adults.

53600:30:30,360 --> 00:30:34,600They have their own needs, theirwishes, choices and dreams.

53700:30:34,600 --> 00:30:39,320And we owe it to them to listento them to respect and recognise

53800:30:39,320 --> 00:30:43,920in the next strategy,the particularities of their childhood and

53900:30:43,920 --> 00:30:48,800young adulthood, they and theirfamilies will be the judges

54000:30:48,800 --> 00:30:53,320of the strategies success infulfilling their potential.

54100:30:53,320 --> 00:30:57,960And they'll be the judges of allof us for what we offer in this

54200:30:57,960 --> 00:31:00,480next strategy.

54300:31:00,480 --> 00:31:02,480And the second, whichas Robert said,

54400:31:02,480 --> 00:31:06,080is absolutely fundamentaland overarching.

54500:31:06,080 --> 00:31:11,080And interestingly, where Australiadoes well outside our country,

54600:31:11,760 --> 00:31:15,120and that's disability inclusion.

54700:31:15,120 --> 00:31:19,760It's enforced inAustralia's aid efforts

54800:31:19,760 --> 00:31:23,120in other countries to bedisability inclusive,

54900:31:23,120 --> 00:31:28,040to have people with disabilityat the table from the get go,

55000:31:28,040 --> 00:31:29,720but not in Australia.

55100:31:29,720 --> 00:31:33,000So my second one is thatthis strategy requires

55200:31:33,000 --> 00:31:37,920disability inclusive process as itshould mandate them across all

55300:31:37,920 --> 00:31:40,080aspects of society.

55400:31:40,080 --> 00:31:43,280And it does mean involveskeeping people with disability

55500:31:43,280 --> 00:31:48,280from the get go, not consultinghalfway down the track,

55600:31:48,960 --> 00:31:52,560we need their insights,their experiences their reflections.

55700:31:52,560 --> 00:31:56,360Otherwise, how do weget fit for purpose.

55800:31:56,360 --> 00:31:59,760The third one is sort ofa follow on from that.

55900:31:59,760 --> 00:32:04,760And it's where disability inclusive,it has been almost totally

56000:32:05,560 --> 00:32:08,600missing fromthe Australian landscape.

56100:32:08,600 --> 00:32:13,080

And it's something that we areall confronted with right now.

56200:32:13,080 --> 00:32:16,800It's the impact ofemergencies on individuals,

56300:32:16,800 --> 00:32:21,360families, communities,emergencies produced by

56400:32:21,360 --> 00:32:25,640natural disasters, the Black Sunday fires,bush fires,

56500:32:25,640 --> 00:32:30,160it's emergenciesdriven by pandemics.

56600:32:30,160 --> 00:32:33,840We've learned a lot of lessons,I think, and many more to learn

56700:32:34,600 --> 00:32:39,360from what didn't happenor hasn't happened in relation to

56800:32:39,360 --> 00:32:44,360preparation for people withdisabilities and their disability and

56900:32:44,880 --> 00:32:48,840their families, and forthe community as a whole,

57000:32:48,840 --> 00:32:53,840as Robert said, to come togetherto ensure everybody's safety

57100:32:54,720 --> 00:32:56,960and well being.

57200:32:56,960 --> 00:33:01,200And we really need to engagewith the emergency management

57300:33:01,200 --> 00:33:03,760sector to bring it together.

57400:33:03,760 --> 00:33:07,400It's a very good exampleof a mainstream sector.

57500:33:07,400 --> 00:33:10,920We need to bring it togetherwith people with disability,

57600:33:10,920 --> 00:33:14,160the community health,disability sectors,

57700:33:14,160 --> 00:33:19,120so that we can ensure that allAustralian citizens are as safe as

57800:33:19,120 --> 00:33:21,400they possibly can be.

57900:33:21,400 --> 00:33:23,520I'd go for those threeBen, but of course,

58000:33:23,520 --> 00:33:28,120I'd like to say I also wouldprefer Roberts and Karen.

58100:33:28,120 --> 00:33:33,000So I think you have to giveus at least nine or more.

58200:33:33,000 --> 00:33:35,120Thanks.

58300:33:35,120 --> 00:33:39,080BEN: Obviously, we all like topick as much as we can,

58400:33:39,080 --> 00:33:41,480in terms of getting the

58500:33:41,480 --> 00:33:44,680next national disabilitystrategy be fit for purpose.

58600:33:44,680 --> 00:33:47,200Oh, we've only got twoor three minutes left.

58700:33:47,200 --> 00:33:50,240But I thought what I might askeach of you to comment on very,

58800:33:50,240 --> 00:33:53,440very simply because today'sabout being constructive, is about

58900:33:53,440 --> 00:33:57,000acknowledging the good, and the bad

59000:33:57,000 --> 00:34:00,720for the last strategy, what wasthe best thing that occurred under

59100:34:00,720 --> 00:34:03,840the previous nationaldisability strategy?

59200:34:04,840 --> 00:34:08,960I might start with you,Karen, if that's alright.

59300:34:08,960 --> 00:34:11,920KAREN: I think the NDA isa major achievement.

59400:34:11,920 --> 00:34:15,440And it's something thatthe world is looking to, obviously,

59500:34:15,440 --> 00:34:19,280it's got a long way to go tillit's satisfies all needs.

59600:34:19,280 --> 00:34:24,400And it's fair and equitable. ButI think we're on the path.

59700:34:24,400 --> 00:34:28,080And I think it's an example wherewhat you've just said about

59800:34:28,080 --> 00:34:31,840being constructive, we actuallyneed to have the opportunities

59900:34:31,840 --> 00:34:36,200for people with disability to beinvolved, right at the top in

600

00:34:36,200 --> 00:34:41,200terms of governance to makesure we get that right.

60100:34:43,080 --> 00:34:44,440BEN: Thank you, Karen.

60200:34:44,440 --> 00:34:46,920Gwynnyth I might go to you thenin terms of what you think.

60300:34:47,760 --> 00:34:50,240GWYNNYTH: Yeah,I can answer Ben,

60400:34:50,240 --> 00:34:52,360but I'mnot sure that it's a direct link

60500:34:52,360 --> 00:34:54,640back to the strategy.I think what is?

60600:34:54,640 --> 00:34:57,880Well, it's a direct link in one wayI already mentioned about we've

60700:34:57,880 --> 00:35:01,040changed the discourse aboutdisability in Australia,

60800:35:01,040 --> 00:35:03,520we wouldn't have got, I think,

60900:35:03,520 --> 00:35:06,840the Royal Commission, theDisability Royal Commission,

610

00:35:06,840 --> 00:35:09,200if we hadn't had a strategy,

61100:35:09,200 --> 00:35:14,040and the means by which to arguefor the Royal Commission,

61200:35:14,040 --> 00:35:18,120we wouldn't have hadthe Productivity Commission, I believe,

61300:35:18,120 --> 00:35:22,800continuing to say, we needto do better around people

61400:35:22,800 --> 00:35:26,800with disability, havingthe strategy, you know,

61500:35:26,800 --> 00:35:31,800having a document something whichis practical, you can turn to,

61600:35:33,920 --> 00:35:36,880even though there may be manypeople in the community

61700:35:36,880 --> 00:35:42,200who are unaware of its existence,the discourse in the conversation

61800:35:42,200 --> 00:35:45,520around people withdisability has changed,

61900:35:45,520 --> 00:35:47,160hasn't changed far enough.

62000:35:47,160 --> 00:35:50,560We need to keep drivingthat, but it has changed.

62100:35:50,560 --> 00:35:55,560And I don't have evidence inthe sense of the direct link.

62200:35:55,560 --> 00:36:00,560But when I literally reflecton the conversations I have,

62300:36:02,240 --> 00:36:07,400as a researcher in this area,families of people with disabilities

62400:36:07,400 --> 00:36:12,720with mainstream services likeemergency management, like

62500:36:12,720 --> 00:36:14,400health,

62600:36:14,400 --> 00:36:19,160start to see people no longersurprised that you want to

62700:36:19,160 --> 00:36:22,640talk about disability, nolonger surprised that you say,

62800:36:23,640 --> 00:36:28,640this organisation needs toabsolutely include people

62900:36:30,280 --> 00:36:35,200with disability as equal citizens,

members of our community.

63000:36:35,200 --> 00:36:36,600They're not surprised.

63100:36:36,600 --> 00:36:39,320That would not havehappened 10 years ago.

63200:36:39,320 --> 00:36:42,920So that has to bea strength.

63300:36:42,920 --> 00:36:43,920BEN: Thank you. Gwynnyth.

63400:36:43,920 --> 00:36:47,800And finally, if I might very brieflymove to you, Robert.

63500:36:48,800 --> 00:36:51,160ROBERT: It's great strengthis that it actually

63600:36:51,160 --> 00:36:53,520existed and it's seen that it's

63700:36:53,520 --> 00:36:55,440seen the test of time.

63800:36:55,440 --> 00:36:59,680The fact that Karen's consultations,the fact that most people with

63900:36:59,680 --> 00:37:03,400disability in their advocacy groups, supportthe current framework,

64000:37:03,400 --> 00:37:04,600support the outcomes,

64100:37:04,600 --> 00:37:08,160indicates how intelligentthe conversation was

64200:37:08,160 --> 00:37:10,840by governments andthe disability sector.

64300:37:10,840 --> 00:37:14,080And most importantly, peoplewith disability, 10 years ago,

64400:37:14,080 --> 00:37:15,560they got it right.

64500:37:15,560 --> 00:37:17,800What happened, I think, was, partly,

64600:37:17,800 --> 00:37:21,960because of the good thing,that is the NDIS diverted attention,

64700:37:21,960 --> 00:37:24,840it diverted governments,the disability sector,

64800:37:24,840 --> 00:37:28,000money and, frankly,intelligent conversation about

64900:37:28,000 --> 00:37:30,280other needs for peoplewith disability.

65000:37:30,280 --> 00:37:33,200But I think the good thingis that, even today,

65100:37:33,200 --> 00:37:36,280it's a sound foundationto move forward

65200:37:36,280 --> 00:37:39,000subject to all the commentsKaren and Gwen and I have made.

65300:37:39,000 --> 00:37:40,240I think that's remarkable.

65400:37:40,240 --> 00:37:42,400And you don't see itoften in social policy.

65500:37:42,400 --> 00:37:44,960You don't see it inpublic policy very often.

65600:37:44,960 --> 00:37:47,720So, you know, that's a greatstrength and a great credit

65700:37:47,720 --> 00:37:50,640to the people with disability thatwere engaged in that process.

65800:37:50,640 --> 00:37:53,400So, actually, I think we're ina good place for the future.

65900:37:53,400 --> 00:37:55,360

However, the truth is,as everyone knows,

66000:37:55,360 --> 00:37:58,320the actual outcomeshave been fairly poor

66100:37:58,320 --> 00:38:00,360and all of the measures we have,

66200:38:00,360 --> 00:38:03,040measured by the productivitycommission on the dashboard,

66300:38:03,040 --> 00:38:04,800show we've actually gone backwards.

66400:38:04,800 --> 00:38:07,560So let's not be too rosyabout this picture.

66500:38:07,560 --> 00:38:09,680We've got a long way to catch up,

66600:38:09,680 --> 00:38:12,680but I think there is a strengthin the process that was

66700:38:12,680 --> 00:38:15,520and in the process that could be.

66800:38:15,520 --> 00:38:16,640BEN: Thank you, Robert.

66900:38:16,640 --> 00:38:19,600Well, I'd like to thankKaren, Gwynnyth, and Robert

67000:38:19,600 --> 00:38:22,960for their insightful contributions.

67100:38:22,960 --> 00:38:26,320They say that the averageattention span and online seminar

67200:38:26,320 --> 00:38:29,040is 8.25 seconds (INAUDIBLE).

67300:38:29,040 --> 00:38:32,440With keeping with that veryrapid attention span,

67400:38:32,440 --> 00:38:34,560I'm gonna move on to the next panel.

67500:38:34,560 --> 00:38:38,760But I do wanna acknowledge yourenormous contribution today

67600:38:38,760 --> 00:38:41,920and disability policy,more generally, in Australia.

67700:38:41,920 --> 00:38:45,000Our next panel considerswhat is needed

67800:38:45,000 --> 00:38:47,440under the nationaldisability strategy.

67900:38:47,440 --> 00:38:52,080And once again, we've produceda video relating to that

68000:38:52,080 --> 00:38:57,480which you'll see an individualby name Heidi Lapalia

68100:38:57,480 --> 00:39:00,640from Women with DisabilitiesAustralia presenting.

68200:39:00,640 --> 00:39:03,160And the question thatHeidi has been asked is,

68300:39:03,160 --> 00:39:07,680what is the role of the NationalDisability Strategy in Australia?

68400:40:53,040 --> 00:40:55,720Thank you very much for that, Heidi.

68500:40:55,720 --> 00:40:57,280To those who may be unaware,

68600:40:57,280 --> 00:41:01,720Heidi was a youth representativeat the Conference State Parties

68700:41:01,720 --> 00:41:03,080in New York.

68800:41:03,080 --> 00:41:05,240For Australia, and I'm surethat's one of many events

68900:41:05,240 --> 00:41:07,920the United Nations shewill attend (INAUDIBLE)

69000:41:07,920 --> 00:41:10,120representing peoplewith disabilities.

69100:41:10,120 --> 00:41:12,720Well, our next panelconsiders what is needed

69200:41:12,720 --> 00:41:15,000under the NationalDisability Strategy.

69300:41:15,000 --> 00:41:17,680At the present, NationalDisability Strategy

69400:41:17,680 --> 00:41:22,360refers to the convention onthe rights of people with disabilities.

69500:41:22,360 --> 00:41:25,360The Position Paper alsorefers to the convention

69600:41:25,360 --> 00:41:28,040on the rights of personswith disabilities.

69700:41:28,040 --> 00:41:31,760And perhaps, unsurprisingly,other countries or regions

69800:41:31,760 --> 00:41:35,200like New Zealand, Ireland,and the European Union

699

00:41:35,200 --> 00:41:38,880have national disability strategies.

70000:41:38,880 --> 00:41:42,760A critical issue to the efficacyof the revised strategy

70100:41:42,760 --> 00:41:46,520is the extent to which non-governmentorganisations or entities

70200:41:46,520 --> 00:41:49,520are encouraged toundertake certain conduct

70300:41:49,520 --> 00:41:52,720and the extent to whichcommunity values are picked up

70400:41:52,720 --> 00:41:56,320in the revised strategy.

70500:41:57,160 --> 00:41:59,880The speakers we have today are,

70600:41:59,880 --> 00:42:01,720we're very grateful to have,

70700:42:01,720 --> 00:42:04,160the Honourable Senator Anne Ruston,

70800:42:04,160 --> 00:42:07,240who is the minister forfamilies and social services.

70900:42:07,240 --> 00:42:10,680Having held the position since 2019,

71000:42:10,680 --> 00:42:13,000Senator Ruston isfrom South Australia

71100:42:13,000 --> 00:42:18,000and has served as a senator forSouth Australia since 2012.

71200:42:18,520 --> 00:42:23,200She was the assistance minister foragricultural and water services.

71300:42:23,200 --> 00:42:26,120What is perhaps not commonly known

71400:42:26,120 --> 00:42:30,320is the important role thatSenator Ruston had in the formation

71500:42:30,320 --> 00:42:33,440for the advisory committeefor the COVID-19 response

71600:42:33,440 --> 00:42:36,400for people with disability.

71700:42:36,400 --> 00:42:39,040Whilst there has beensome conjecture

71800:42:39,040 --> 00:42:42,000over the timing ofthe formation of the committee,

71900:42:42,000 --> 00:42:44,520what may not be appreciated by many

72000:42:44,520 --> 00:42:47,720is the persistentand much-appreciated effort

72100:42:47,720 --> 00:42:51,200Senator Ruston went to in ensuringthe committee was formed

72200:42:51,200 --> 00:42:53,960and the consultations she undertook

72300:42:53,960 --> 00:42:58,120during the early stages ofthe pandemic with people with disability

72400:42:58,120 --> 00:43:01,240and their representativeorganisations.

72500:43:01,240 --> 00:43:04,320Our second panellistis Rosemary Kayess,

72600:43:04,320 --> 00:43:08,440who is a senior research fellow atthe University of New South Wales

72700:43:08,440 --> 00:43:11,000Social Policy Research Centre

72800:43:11,000 --> 00:43:13,280and the academic lead engagement

72900:43:13,280 --> 00:43:17,800of the University of New South WalesDisability Innovation Institute.

73000:43:17,800 --> 00:43:21,880Rosemary was awardedthe 2019 human rights medal

73100:43:21,880 --> 00:43:24,240by the Australian HumanRights Commission

73200:43:24,240 --> 00:43:26,920and was elected tothe United Nations Committee

73300:43:26,920 --> 00:43:30,680on the Rights of Personswith Disability 2018

73400:43:30,680 --> 00:43:35,800and was appointed itsvice-chair in March 2019.

73500:43:35,800 --> 00:43:38,960It goes without saying thatmany people with a disability

73600:43:38,960 --> 00:43:42,080owe an enormous debt ofgratitude to Rosemary

73700:43:42,080 --> 00:43:45,160for her tireless advocacyover the years.

73800:43:45,160 --> 00:43:48,600And our final panellistis Paula Tesoriero

739

00:43:48,600 --> 00:43:50,560who is the DisabilityRights Commissioner

74000:43:50,560 --> 00:43:52,520at the New ZealandHuman Rights Commission

74100:43:52,520 --> 00:43:54,400and the chair of the Global Alliance

74200:43:54,400 --> 00:43:57,440of National Human RightsInstitutions Working Group

74300:43:57,440 --> 00:43:59,840for people with disability.

74400:43:59,840 --> 00:44:04,480Paula is also a paralympic goldmedalist, in fact, cycling,

74500:44:04,480 --> 00:44:08,000and a dear friend of the AustralianHuman Rights Commission.

74600:44:08,000 --> 00:44:12,080If I could ask our panellistsall to be ready for questions

74700:44:12,080 --> 00:44:13,560and be on screen,

74800:44:13,560 --> 00:44:15,160if I might ask the first question

74900:44:15,160 --> 00:44:17,960

to you, then, please,Senator Ruston,

75000:44:17,960 --> 00:44:20,040and I thank you verymuch for being here,

75100:44:20,040 --> 00:44:25,320what is the role of a NationalDisability Strategy in Australia?

75200:44:25,320 --> 00:44:27,160SENATOR ANNE RUSTON: Well,thank you very much, Ben,

75300:44:27,160 --> 00:44:30,320and can I acknowledgethe extraordinary work and leadership

75400:44:30,320 --> 00:44:33,360that you have affordedthe disability sector

75500:44:33,360 --> 00:44:37,040and particularly, me, in my 12months, as being the minister.

75600:44:37,040 --> 00:44:39,920I can also thank Damian forhis welcome to country and

75700:44:39,920 --> 00:44:43,200I, too, pay my respects toElders, past, present,

75800:44:43,200 --> 00:44:46,120of all the lands inwhich we meet today.

75900:44:46,120 --> 00:44:49,080And particularly, canI acknowledge the extraordinary work

76000:44:49,080 --> 00:44:52,320that advocacy groups havedone in assisting us

76100:44:52,320 --> 00:44:54,880in the development ofpolicy going forward.

76200:44:54,880 --> 00:44:58,520Ben, sort of in inresponse to, you know,

76300:44:58,520 --> 00:45:01,120what is the role of a NationalDisability Strategy,

76400:45:01,120 --> 00:45:03,640I mean many of yourspeakers previously

76500:45:03,640 --> 00:45:06,560have outlined, you know,some of the good things

76600:45:06,560 --> 00:45:09,160and some of the bad things thatoccurred in the previous strategy.

76700:45:09,160 --> 00:45:13,120But, to my mind, where I'dlike to see the next strategy

768

00:45:13,120 --> 00:45:15,040really focus is...

76900:45:15,040 --> 00:45:18,480You know, clearly, the strategyprovides policy framework

77000:45:18,480 --> 00:45:21,400for us as decision-makersand policymakers

77100:45:21,400 --> 00:45:24,880about how we should bedeveloping strategy

77200:45:24,880 --> 00:45:27,600and most importantly to makesure that disability strategy

77300:45:27,600 --> 00:45:31,040is mainstream into the thinkingacross the whole of government.

77400:45:31,040 --> 00:45:35,920I think the idea that we talk aboutdisability strategy in isolation,

77500:45:35,920 --> 00:45:37,440I think, is flawed

77600:45:37,440 --> 00:45:40,440and I think we do need tomake sure that our strategy

77700:45:40,440 --> 00:45:43,240is absolutely plugged in atevery possible juncture

77800:45:43,240 --> 00:45:47,200into mainstream policy development.

77900:45:47,200 --> 00:45:51,360Certainly, very importantthat we give visibility

78000:45:51,360 --> 00:45:53,640about the rights ofpeople with disability.

78100:45:53,640 --> 00:45:57,240And I think that includesmaking sure that, once again,

78200:45:57,240 --> 00:46:00,280we mainstream what wedo around providing.

78300:46:00,280 --> 00:46:01,840There should be no difference

78400:46:01,840 --> 00:46:03,680in the rights of somebodywith disability

78500:46:03,680 --> 00:46:06,640and somebody who liveswithout disability.

78600:46:06,640 --> 00:46:08,840And so I think that isextremely important,

78700:46:08,840 --> 00:46:11,960that we shine a light on it because

78800:46:11,960 --> 00:46:15,280it's all well and good forus to talk about things.

78900:46:15,280 --> 00:46:17,840But unless we, youknow, raise awareness

79000:46:17,840 --> 00:46:20,200and we actually get peopleto start thinking about

79100:46:20,200 --> 00:46:24,040some of the things that we do interms of our discrimination,

79200:46:24,040 --> 00:46:26,240much of it is not intentional.

79300:46:26,240 --> 00:46:30,360And I think that by shininga light on some of these things,

79400:46:30,360 --> 00:46:32,960hopefully, we can actually get ridof some of that unconscious bias

79500:46:32,960 --> 00:46:37,040that occurs towardspeople with disability.

79600:46:37,040 --> 00:46:41,200I think, you know, toprovide national leadership,

79700:46:41,200 --> 00:46:43,280we really do need to

make sure that we get

79800:46:43,280 --> 00:46:46,800a clearer understanding ofthe interface that exists between

79900:46:46,800 --> 00:46:51,160the states and territories,the advocacy sector,

80000:46:51,160 --> 00:46:54,080the support services thatexist within the sector.

80100:46:54,080 --> 00:46:57,920But first and foremost, we need toget a very clear understanding of

80200:46:57,920 --> 00:47:01,880what people who live every daywith disability actually want.

80300:47:01,880 --> 00:47:05,160So I've always hada great view that you will

80400:47:05,160 --> 00:47:08,280only ever get good policyif you actually make the policy

80500:47:08,280 --> 00:47:10,160with the people whothe policy applies to

80600:47:10,160 --> 00:47:12,880are actually sittingin the room with you.

80700:47:12,880 --> 00:47:16,800I think one of the big challengesthat we have going forward

80800:47:16,800 --> 00:47:20,320in the development of this strategyand the role that it plays

80900:47:20,320 --> 00:47:25,320is understanding the interfacebetween the NDIS and the NDS.

81000:47:25,880 --> 00:47:30,160Certainly, there's been a lot offocus on the NDIS of recent years,

81100:47:30,160 --> 00:47:33,240and that's absolutelyexcellent and so it should be.

81200:47:33,240 --> 00:47:36,320But I think inthe process of doing that,

81300:47:36,320 --> 00:47:39,480we have to understand what ournext strategy is gonna look like

81400:47:39,480 --> 00:47:44,000and how that actually fits inand meshes with the NDIS.

81500:47:44,000 --> 00:47:46,320Clearly, we all know thatonly probably around

81600:47:46,320 --> 00:47:48,800

10% of people wholive with disability

81700:47:48,800 --> 00:47:51,440will actually be onour NDIS package.

81800:47:51,440 --> 00:47:53,840So what the disabilitystrategy has to do,

81900:47:53,840 --> 00:47:58,240it has to pick up forthe other 90% of Australians

82000:47:58,240 --> 00:48:00,680who aren't on a package

82100:48:00,680 --> 00:48:04,680and making sure thattheir needs are being met

82200:48:04,680 --> 00:48:08,120by more mainstreamresponses and policies

82300:48:08,120 --> 00:48:10,400that relate to makingsure that, as I say,

82400:48:10,400 --> 00:48:14,480we have that equityargument put in place.

82500:48:14,480 --> 00:48:20,560I think strengthening the role thatthe NDIS' place going forward

82600:48:20,560 --> 00:48:23,680is gonna be somethingthat we need to focus on

82700:48:23,680 --> 00:48:26,080on the development of the new role.

82800:48:26,080 --> 00:48:28,400And from a federalgovernment perspective,

82900:48:28,400 --> 00:48:30,720and Ben knows this all too well,

83000:48:30,720 --> 00:48:33,560is the focus that we needas a federal government

83100:48:33,560 --> 00:48:35,400on employment outcomes.

83200:48:35,400 --> 00:48:40,280(INAUDIBLE) that peoplewith disability are often

83300:48:40,280 --> 00:48:41,760under-represented in our workforce

83400:48:41,760 --> 00:48:46,400and the impact of COVID of recent timeshas seen that exacerbated.

83500:48:46,400 --> 00:48:49,280So I really think that one ofthe things that we do need to

836

00:48:49,280 --> 00:48:53,520absolutely embed inthe new disability strategy

83700:48:53,520 --> 00:48:57,520is what role it can play inmaking sure that we are deliverin

83800:48:57,520 --> 00:49:01,840good employment outcomesfor people with disabilities.

83900:49:01,840 --> 00:49:06,800So I think, more broadly,that the role of the strategy

84000:49:06,800 --> 00:49:09,640has to be to provide thatoverarching guidance

84100:49:09,640 --> 00:49:12,800to every single Australian,not just people with disability

84200:49:12,800 --> 00:49:15,160or people who interface withdisability in their daily lives

84300:49:15,160 --> 00:49:16,920but to every Australian

84400:49:16,920 --> 00:49:19,520so that we can actuallyraise the awareness

84500:49:19,520 --> 00:49:22,120of the importance ofan inclusive society,

84600:49:22,120 --> 00:49:24,720that we rid ourselvesof discrimination,

84700:49:24,720 --> 00:49:29,120particularly, I think, easilythat it's unconscious

84800:49:29,120 --> 00:49:32,120and acknowledge that we have to

84900:49:32,120 --> 00:49:35,040deal with inequities inthe broader population

85000:49:35,040 --> 00:49:37,760but also the inequities that exist

85100:49:37,760 --> 00:49:40,680within the disability sector itself.

85200:49:40,680 --> 00:49:44,520But most particularly today,thank you to everybody who's online,

85300:49:44,520 --> 00:49:47,800I hope that I can encourage youand Ben can encourage you

85400:49:47,800 --> 00:49:50,120and the other speakerscan encourage you all

85500:49:50,120 --> 00:49:52,280to make submission to the process

85600:49:52,280 --> 00:49:54,640of the development ofthe next strategy.

85700:49:54,640 --> 00:49:56,880Because, as I said before,

85800:49:56,880 --> 00:49:59,840the ability for us tobe informed by people

85900:49:59,840 --> 00:50:03,120who the policies are actuallygonna impact the most

86000:50:03,120 --> 00:50:05,440will mean that we will developa strategy that's gonna be

86100:50:05,440 --> 00:50:08,000much better and muchmore fit for purpose

86200:50:08,000 --> 00:50:10,720than we could ever hope to withoutyour voices around the table.

86300:50:10,720 --> 00:50:12,920So I thank you very muchfor your participation

86400:50:12,920 --> 00:50:15,720and I really look forward tothe feedback that we get today

86500:50:15,720 --> 00:50:18,960and the feedback that we get when

you all put your submissions in

86600:50:18,960 --> 00:50:20,840as we developthe strategy going forward.

86700:50:20,840 --> 00:50:22,360So thank you, Ben.

86800:50:22,360 --> 00:50:26,520BEN: Thank you very much, minister,for those insightful comments.

86900:50:26,520 --> 00:50:30,320I might then move to Rosemary Kayess.

87000:50:30,320 --> 00:50:33,880Rosemary, what is the role ofa national disability strategy

87100:50:33,880 --> 00:50:38,240in Australia or elsewhere?

87200:50:48,960 --> 00:50:51,160Are you there, Rosemary?

87300:50:51,160 --> 00:50:54,760ROSEMARY KAYESS: Yeah,once I unmute myself. I am.

87400:50:54,760 --> 00:50:58,360Thank you. Thanks, Ben.

87500:50:58,360 --> 00:51:03,160I would just like to echothe thoughts of the other speakers

87600:51:03,160 --> 00:51:07,080in acknowledging the Traditional Owners onthe lands,

87700:51:07,080 --> 00:51:08,960the various lands on which we speak

87800:51:08,960 --> 00:51:12,080and I'd like to pay myrespects to their Elders,

87900:51:12,080 --> 00:51:13,640past, present, and emerging.

88000:51:13,640 --> 00:51:18,640I am speaking to youtoday from Gadigal land.

88100:51:19,600 --> 00:51:24,200I'm not going to say anything that'smuch different to anybody else.

88200:51:24,200 --> 00:51:27,400I'm just gonna frame itslightly differently.

88300:51:27,400 --> 00:51:29,640Because from my perspective,

88400:51:29,640 --> 00:51:32,640the role of the NationalDisability Strategy

88500:51:32,640 --> 00:51:37,640is about unpacking the visionthat we have for Australia.

88600:51:38,320 --> 00:51:42,720We've committed internationallythrough the ratification

88700:51:42,720 --> 00:51:46,720of the convention on the rightsof persons with disabilities

88800:51:46,720 --> 00:51:51,960to an inclusive diverse communitywhere people with disability

88900:51:51,960 --> 00:51:54,800enjoy and can exercise

89000:51:54,800 --> 00:51:58,520all human rightsand fundamental freedoms.

89100:51:58,520 --> 00:52:04,560So we have a vision ofan equitable sustainable

89200:52:04,560 --> 00:52:08,640and resilient communitythat respects and values

89300:52:08,640 --> 00:52:11,880people with disability,

89400:52:12,480 --> 00:52:16,440a community that recognisesthat impairment

89500:52:16,440 --> 00:52:19,600is just one aspectof human diversity,

89600:52:19,600 --> 00:52:24,600not as something asother or different.

89700:52:25,160 --> 00:52:30,160And that impairment isinherent to human dignity.

89800:52:30,760 --> 00:52:34,440So it's a vision

89900:52:34,440 --> 00:52:38,120where we move away from

90000:52:38,120 --> 00:52:41,840the long-held deficit approach,

90100:52:41,840 --> 00:52:44,440where the rights ofpeople with disability

90200:52:44,440 --> 00:52:48,200have been denied or diminished

90300:52:48,200 --> 00:52:50,800based on their impairment

90400:52:50,800 --> 00:52:55,800and generally being basedaround issues of severity,

90500:52:55,800 --> 00:52:59,120type, or diagnosis.

90600:52:59,120 --> 00:53:05,640

So, for me, the role ofthe strategy is to unpack that vision,

90700:53:05,640 --> 00:53:08,120how do we unpack that vision

90800:53:08,120 --> 00:53:11,400in such a way that we can transform

90900:53:11,400 --> 00:53:16,400Australia's law policyand practise to achieve the vision.

91000:53:18,200 --> 00:53:21,800So CRPD provides us a roadmap

91100:53:21,800 --> 00:53:26,800on how the transformation can occur

91200:53:27,680 --> 00:53:32,680and the NDS should beunderpinned by CRPD,

91300:53:33,280 --> 00:53:36,120its principles, its standards,

91400:53:36,120 --> 00:53:40,600and identify the keymeasures that will be

91500:53:40,600 --> 00:53:44,800across governmentsand across portfolios

91600:53:44,800 --> 00:53:48,640to provide a nationallyconsistent plan

91700:53:48,640 --> 00:53:52,920to implement the CRPDprinciples and standards.

91800:53:52,920 --> 00:53:58,080And these need to bebased on concrete actions

91900:53:58,080 --> 00:54:03,440and attached to specificmeasurable goals and targets.

92000:54:03,440 --> 00:54:07,120And that's got to operatewithin a robust monitoring

92100:54:07,120 --> 00:54:11,040evaluationand accountability framework.

92200:54:11,040 --> 00:54:16,040But most of all, and this hasbeen repeated by my colleagues,

92300:54:16,520 --> 00:54:18,680stated and repeated by my colleagues

92400:54:18,680 --> 00:54:20,920that have been speaking previously,

92500:54:20,920 --> 00:54:24,520it has to be informed by a rigorous

92600:54:24,520 --> 00:54:29,520disability-inclusive researchagenda and evidence base.

92700:54:30,240 --> 00:54:37,240Because if the role of the NationalDisability Strategy is anything,

92800:54:37,240 --> 00:54:43,680it's about Australia comingto grips with understanding

92900:54:43,680 --> 00:54:47,600that disability is justpart of our humanity.

93000:54:47,600 --> 00:54:51,400And so we need to understand

93100:54:51,400 --> 00:54:54,600the experience ofpeople with disability

93200:54:54,600 --> 00:54:56,800to be able to ensure

93300:54:56,800 --> 00:55:00,160that our vision foran inclusive society

93400:55:00,160 --> 00:55:04,400where people with disabilityare participating members

93500:55:04,400 --> 00:55:06,200can happen.

93600:55:06,200 --> 00:55:08,880So I'll just leave the role there

93700:55:08,880 --> 00:55:13,280and see how we go from here.

93800:55:13,920 --> 00:55:16,200BEN: Thank you very much, Rosemary.

93900:55:16,200 --> 00:55:20,200As usual, your contribution was

94000:55:20,200 --> 00:55:23,480one that will resonatedeeply with both

94100:55:23,480 --> 00:55:27,040people with a disabilityand those without a disability

94200:55:27,040 --> 00:55:28,200who are listening to this

94300:55:28,200 --> 00:55:32,040and probably those whowatch it later on.

94400:55:32,040 --> 00:55:34,400If I might then go to you, Paula.

94500:55:34,400 --> 00:55:38,440By contrast, Australia,there is, in New Zealand

94600:55:38,440 --> 00:55:40,360a National Disability Strategy,

94700:55:40,360 --> 00:55:43,800that was entered into

in 2016 to 2026.

94800:55:44,880 --> 00:55:48,920A disability action plan,that was entered in 2019.

94900:55:49,560 --> 00:55:52,000An independentmonitoring mechanism

95000:55:52,000 --> 00:55:54,480(INAUIDIBLE).

95100:55:54,480 --> 00:55:57,080An ombudsmanand civil society.

95200:55:59,120 --> 00:56:04,480Paula, what is the role in your viewof a national disability strategy?

95300:56:05,880 --> 00:56:07,080PAULA TESORIERO: Thank Ben.

95400:56:08,120 --> 00:56:12,600I will begin by justgreeting you, in te reo Maori,

95500:56:12,600 --> 00:56:14,520the language of ourIndigenous people

95600:56:14,520 --> 00:56:21,520(SPEAKS INDIGENOUS LANGUAGE)

95700:56:28,840 --> 00:56:32,080And like other speakers before

me, I will also pay my respect

95800:56:32,080 --> 00:56:37,320to the Traditional Owners ofthe lands, that you are currently in.

95900:56:37,320 --> 00:56:40,720And to which I am beamingacross the Tasman into.

96000:56:41,440 --> 00:56:45,800So, in my view of a strategy

96100:56:45,800 --> 00:56:51,600is effectively, viewing it,is the same as that of the CIPD,

96200:56:51,600 --> 00:56:55,840which is to articulate a vision,or a roadmap to progress

96300:56:55,840 --> 00:56:58,000the lives of peoplewith disabilities

96400:56:58,000 --> 00:57:02,000to live freely and fullyas equal citizens.

96500:57:02,000 --> 00:57:05,160As such, in my view,that roadmap must

96600:57:05,160 --> 00:57:08,560be voiced and leadby disabled people,

967

00:57:08,560 --> 00:57:10,160it can be a real chance, I think

96800:57:10,160 --> 00:57:13,680to model article 4.3 of the convention,

96900:57:13,680 --> 00:57:16,040which is aboutthe full participation

97000:57:16,040 --> 00:57:20,280of, people with disabilitiesin matters that affect us.

97100:57:20,280 --> 00:57:25,920Any strategy developed since the CIPDcan and should serve in my view,

97200:57:25,920 --> 00:57:29,040is a means to implement the CIPD in

97300:57:29,040 --> 00:57:33,600the unique cultural and socialcontext of the nation.

97400:57:34,120 --> 00:57:35,960That it will be in,with a particular

97500:57:35,960 --> 00:57:39,280focus on Indigenous disabled people.

97600:57:40,120 --> 00:57:43,680A strategy may primarilyspeak to those,

97700:57:43,680 --> 00:57:46,840

whose duty it is, toadvance those rights.

97800:57:46,840 --> 00:57:51,400But it needs to do so,in the voices of communities.

97900:57:51,400 --> 00:57:54,360And I say that, in itsplural form, because

98000:57:54,360 --> 00:57:58,000of that really importantnotion of intersectionality.

98100:57:58,000 --> 00:58:01,200And often, the multipleidentities that we have,

98200:58:02,040 --> 00:58:05,280I see a strategy is somethingwhich really puts a stake

98300:58:05,280 --> 00:58:11,040in the ground about our experiences,including illustrating

98400:58:11,040 --> 00:58:15,720the disparities from which progresstowards a vision can be measured.

98500:58:15,720 --> 00:58:19,200It's a way of reallycommunicating what's important.

98600:58:19,960 --> 00:58:23,000A strategy can also bea really powerful tool

98700:58:23,000 --> 00:58:25,720for the government focalpoint for the CIPD.

98800:58:26,360 --> 00:58:29,480In working with localand central government agencies

98900:58:29,480 --> 00:58:32,560to inform their prioritywork programs,

99000:58:32,560 --> 00:58:35,000the budgets and resource allocation,

99100:58:35,000 --> 00:58:36,920it can also provide a great mandate

99200:58:36,920 --> 00:58:41,760for advocates, can helpagencies make good decisions,

99300:58:41,760 --> 00:58:43,400informed by evidence

99400:58:43,400 --> 00:58:45,240and ensure that people with disabilities

99500:58:45,240 --> 00:58:47,880are included in all strategies,

99600:58:47,880 --> 00:58:51,640because at the end ofthe day, every government agency

997

00:58:51,640 --> 00:58:54,280should be thinking about disability,

99800:58:54,280 --> 00:58:57,240because every policy isa disability policy,

99900:58:58,160 --> 00:59:02,120in my view, and in conclusion,it's really, really important.

100000:59:02,120 --> 00:59:05,360And this has certainly been the casein the New Zealand experience,

100100:59:05,360 --> 00:59:10,080that a strategy really needsan accompanying action plan.

100200:59:10,080 --> 00:59:14,280It needs robust data, researchand an evidence plan

100300:59:14,280 --> 00:59:19,600to sit alongside it, and providea real framework for accountability.

100400:59:19,600 --> 00:59:23,360Because ultimately,a strategy will only be

100500:59:23,360 --> 00:59:25,520worth the paper it'swritten on, if we can

100600:59:25,520 --> 00:59:30,880actually see demonstrableprogress for those we serve.

100700:59:30,880 --> 00:59:34,720So I'll leave it thereuntil later on, thank you, Ben.

100800:59:35,640 --> 00:59:37,360BEN: Thank you very much.

100900:59:38,040 --> 00:59:42,520Paula, and I mightthen, continue with

101000:59:42,520 --> 00:59:45,480(INAUDIBLE) strategy more generally,

101100:59:45,480 --> 00:59:50,120I do know, we only have,a little over ten minutes,

101200:59:50,120 --> 00:59:52,400before we move on to our next panel,

101300:59:52,400 --> 00:59:56,160but Minister, if I might kindly goto you again,

101400:59:56,160 --> 00:59:57,640and ask you, a follow up.

101500:59:59,040 --> 01:00:02,040What is some ofthe biggest challenges facing

101601:00:02,040 --> 01:00:03,760The National Disability strategy.

1017

01:00:04,880 --> 01:00:06,120PROF ANNE KAVANAGH: Thanks Ben.

101801:00:06,120 --> 01:00:08,640I mean certainly there area whole heap of challenges,

101901:00:08,640 --> 01:00:12,200many of which have already beenarticulated by previous speakers

102001:00:12,200 --> 01:00:17,360But, I think I'd like to approachthis or, on my intention

102101:00:17,360 --> 01:00:19,920is to approach this more aboutwhat are the opportunities that

102201:00:19,920 --> 01:00:25,240a new strategy can can deliver forus and I think, you know, one of the

102301:00:25,240 --> 01:00:29,960The big challenges is how dowe design, a strategy that is,

102401:00:29,960 --> 01:00:33,920recognises that, you know, people witha disability come in,

102501:00:33,920 --> 01:00:36,240you know, many different have,

102601:00:36,240 --> 01:00:37,880will have manydifferent disabilities,

102701:00:37,880 --> 01:00:41,000which will require differentresponses in terms of strategy.

102801:00:41,000 --> 01:00:44,640So, our opportunity goingforward to design a strategy

102901:00:44,640 --> 01:00:47,400that is not, a one sizefits all type strategy

103001:00:47,400 --> 01:00:49,520that we really do need to focus on,

103101:00:49,520 --> 01:00:51,960you know, the veryindividual needs of

103201:00:51,960 --> 01:00:57,560a very broad range of people wholive in a society with disability.

103301:00:58,480 --> 01:01:01,000I mean, going back to the oneof the biggest challenges,

103401:01:01,000 --> 01:01:04,000I think the biggest challengethat I face as the as

103501:01:04,000 --> 01:01:08,840the lead on the strategy, fromthe federal government's perspective,

103601:01:09,480 --> 01:01:13,160is trying to develop

a strategy that is consistently

103701:01:13,160 --> 01:01:15,720adopted by the statesand territories.

103801:01:15,720 --> 01:01:18,920You know, Paula hasthe luxury of not having,

103901:01:18,920 --> 01:01:22,280you know, seven statesand two territories in which to

104001:01:22,280 --> 01:01:24,600to actually manage when youroll out your strategy,

104101:01:24,600 --> 01:01:27,400you roll it out for onecountry, unfortunately,

104201:01:27,400 --> 01:01:30,640I roll out a strategy for manydifferent jurisdictions.

104301:01:30,640 --> 01:01:34,160And that in itself, I think,presents some challenges

104401:01:35,560 --> 01:01:37,880in relation toconsistency of adoption

104501:01:37,880 --> 01:01:39,960of the things that wewe want to do.

104601:01:39,960 --> 01:01:41,480And I think that would be one area,

104701:01:41,480 --> 01:01:43,080I've been really keento get feedback

104801:01:43,080 --> 01:01:46,040on about how we've seendifferent states and territories

104901:01:46,040 --> 01:01:49,320respond differently to date,around some of the initiatives

105001:01:49,320 --> 01:01:52,360that were in the previousstrategy, and how we might do

105101:01:52,360 --> 01:01:55,680a better job of making surethat we get consistent

105201:01:55,680 --> 01:01:59,120nationally consistentresponses to delivering on

105301:01:59,120 --> 01:02:02,840the wide range of thingsthat we expect our states

105401:02:02,840 --> 01:02:06,320and territories to deliver on behalfof people living with disability.

105501:02:07,120 --> 01:02:12,040I also think, you know, the,

the community expectation and engagement,

105601:02:12,040 --> 01:02:14,760I think is a reallybig one going forward.

105701:02:14,760 --> 01:02:18,200As I said, in primary question,you know, it's all well

105801:02:18,200 --> 01:02:22,000and going to raise awareness thatwe we actually have to make,

105901:02:22,000 --> 01:02:24,120we have to changethe dial, we actually have

106001:02:24,120 --> 01:02:27,160to have outcomes achieved by this.

106101:02:27,160 --> 01:02:30,440And I think the ideathat governments in

106201:02:30,440 --> 01:02:34,400and of themselves are able to makethose changes by themselves,

106301:02:34,400 --> 01:02:39,520I think is, is flawed, and thatmuch of this strategy does need

106401:02:39,520 --> 01:02:43,120to address greater engagementof the broader community,

1065

01:02:43,120 --> 01:02:47,080whether it be employers, whetherit be service providers,

106601:02:47,080 --> 01:02:50,560it but most importantly, the generalcommunity about understanding

106701:02:51,160 --> 01:02:54,640how we can have a better society,if everybody understands

106801:02:54,640 --> 01:02:58,840the individual needs of people.And that goes across any,

106901:03:00,040 --> 01:03:02,520you know, differentlevels of ability.

107001:03:02,520 --> 01:03:05,200And I think the probablythe final one is around

107101:03:06,160 --> 01:03:08,560translation ofintention into action.

107201:03:09,120 --> 01:03:12,360I think everybody made commentabout the first strategy

107301:03:12,360 --> 01:03:15,600was to, was great in terms ofits intention,

107401:03:15,600 --> 01:03:18,560probably its implementation

is what led it down.

107501:03:19,080 --> 01:03:23,720And I think, you know, to engagethe people of a very broad range

107601:03:23,720 --> 01:03:29,720of people that need to, to enablethe implementation of the intention,

107701:03:30,200 --> 01:03:31,800you know, includingmaking sure that,

107801:03:31,800 --> 01:03:33,920it's data informedand evidence based.

107901:03:34,680 --> 01:03:36,960And the communicationthat sits around that,

108001:03:36,960 --> 01:03:40,440I think is gonna be oneof the, where all be

108101:03:40,440 --> 01:03:44,080the great success of the nextstrategy, if we get it right.

108201:03:44,080 --> 01:03:47,200So, that would be that wouldbe my take on from here.

108301:03:47,200 --> 01:03:50,480But obviously, as I say, I'm heremuch more interested in here,

108401:03:50,480 --> 01:03:53,000and what you've got to saythan what I've got to say.

108501:03:53,000 --> 01:03:54,760So thanks very much, Ben.

108601:03:55,320 --> 01:03:58,560BEN: Thank you very much Minister,they were particularly apt comments.

108701:03:58,560 --> 01:04:00,760I might go to Rosemary then,

108801:04:01,640 --> 01:04:02,840In relation to the issue,

108901:04:02,840 --> 01:04:05,120What do you think are some of the biggestchallenges

109001:04:05,120 --> 01:04:07,760facing the NationalDisability Strategy.

109101:04:09,360 --> 01:04:10,560ROSEMARY: Well, for me,

109201:04:10,560 --> 01:04:16,640and others have mentionedthis and alluded to it.

109301:04:16,640 --> 01:04:21,480But for me, the biggest challengesis about leverage and commitment,

1094

01:04:21,480 --> 01:04:28,480but also having a strong crossportfolio, focus in expertise.

109501:04:29,480 --> 01:04:34,640I mean at the moment,the current strategy has left

109601:04:34,640 --> 01:04:38,080all the heavy liftingto one department.

109701:04:38,080 --> 01:04:40,440And this fails torecognise that it's

109801:04:40,440 --> 01:04:43,840a whole governmentresponse that's needed.

109901:04:43,840 --> 01:04:47,480I mean, people with disabilityand not a homogenous group.

110001:04:47,480 --> 01:04:51,680They are not defined by theirdisability or their diagnosis.

110101:04:52,400 --> 01:04:55,880But in a policy context,they are invisible,

110201:04:55,880 --> 01:05:00,280outside the portfolio ofthe Department of Social Services,

110301:05:00,280 --> 01:05:02,800and that's unfair on the department,

110401:05:02,800 --> 01:05:05,400and unfitted people with disability.

110501:05:05,920 --> 01:05:09,640And the common experienceclearly exposed is,

110601:05:09,640 --> 01:05:13,000unless DSS to pick up the pieces,

110701:05:13,000 --> 01:05:17,320which meant that very narrowlyservice focused response

110801:05:17,320 --> 01:05:20,120because that fallswithin their remit

110901:05:20,680 --> 01:05:25,000But health, housing, transport, tax,

111001:05:25,000 --> 01:05:29,080justice, you knowtourism, infrastructure,

111101:05:29,080 --> 01:05:31,240National Parks and Wildlife,

111201:05:31,240 --> 01:05:34,480I mean, they all shapeand have an impact on

111301:05:34,480 --> 01:05:38,200the lives of people withdisability, as well as

111401:05:38,200 --> 01:05:42,600mainstream women's Indigenouschildren and youth

111501:05:42,600 --> 01:05:47,680and multicultural policyas an impact as well.

111601:05:48,720 --> 01:05:53,400So, for me, the biggestchallenge is to have

111701:05:54,080 --> 01:06:01,200a strong imbedded standingengagement mechanism.

111801:06:01,200 --> 01:06:05,280Under 4.3, under Article4.3, the convention

111901:06:05,280 --> 01:06:09,720is all are, identified forpeople with disability.

112001:06:09,720 --> 01:06:15,600It's recognised broadlyacross all types of fields

112101:06:15,600 --> 01:06:21,280that the successful implementationof anything that is

112201:06:21,280 --> 01:06:25,160the understanding ofthe experience of (UNKNOWN).

112301:06:26,520 --> 01:06:29,080

I mean, it's critical,it's not so much

112401:06:29,080 --> 01:06:31,680about it being a legal obligation,

112501:06:31,680 --> 01:06:37,080No one to see our PT it is,or an ideological one.

112601:06:37,080 --> 01:06:41,360But it's a reallypractical one, DPO's.

112701:06:41,360 --> 01:06:45,120And representative organisationsand advocacy groups

112801:06:45,120 --> 01:06:49,320On critical expertiseand information that needs

112901:06:49,320 --> 01:06:54,440to inform the process to ensuremeasures will be effective.

113001:06:55,760 --> 01:07:02,560For this, I believe we need toestablish a standing mechanism

113101:07:07,680 --> 01:07:10,400that ensures peoplewith disability have

113201:07:13,160 --> 01:07:15,960a high level voice into the process.

1133

01:07:17,960 --> 01:07:21,600The other thing I think,goes back to leverage.

113401:07:22,600 --> 01:07:27,000And it goes back to commitment.

113501:07:28,480 --> 01:07:34,560There needs to be, strongvisible commitment.

113601:07:34,560 --> 01:07:37,600And it needs to be atthe highest level.

113701:07:37,600 --> 01:07:43,600And this goes for both nationaland state territories as well.

113801:07:44,200 --> 01:07:50,760So, you would want to seean overarching focal point

113901:07:51,760 --> 01:07:56,200that has cross portfolioinfluence and leverage,

114001:07:56,840 --> 01:08:01,520you would want to seethe robust reporting

114101:08:01,520 --> 01:08:08,520being clearly publicand transparent.

114201:08:08,520 --> 01:08:12,480So you'd wanna see, a report toParliament every year.

114301:08:13,080 --> 01:08:16,720And then it's delivered by the primeminister or the premier,

114401:08:16,720 --> 01:08:21,440Premier, that you'd demonstratingthat there's ownership

114501:08:21,440 --> 01:08:24,600and commitment tothe vision that we've got

114601:08:24,600 --> 01:08:30,160for an inclusive community fromthe highest levels of our government.

114701:08:30,920 --> 01:08:37,920And so I think it's about embeddingdisability in all the work

114801:08:39,000 --> 01:08:45,600The government does, not justlooking at our impairments,

114901:08:45,600 --> 01:08:51,880and having policiesaround how we care,

115001:08:52,800 --> 01:08:56,160treat and protect peoplewith disability.

115101:08:56,160 --> 01:09:00,080What we need is a governmentthat recognises us

1152

01:09:00,080 --> 01:09:05,000as whole people and contributingmembers of our society.

115301:09:07,880 --> 01:09:11,040BEN: Thank you, Rosemary,I go to Paula

115401:09:11,040 --> 01:09:13,840and I do know that we do haveunfortunately,

115501:09:13,840 --> 01:09:15,760time commitments for the next panel,

115601:09:15,760 --> 01:09:18,040but what I'll do Paula, is I'llgo to you and then I'll,

115701:09:18,040 --> 01:09:21,080I'll finish up with the ministerby asking her a question about

115801:09:21,080 --> 01:09:24,880the Mentimeter datawith the community values here and

115901:09:24,880 --> 01:09:26,480then we'll move to the next panel.

116001:09:26,480 --> 01:09:32,160Paula, what do you think are the, someof the biggest challenges facing

116101:09:32,160 --> 01:09:34,120the National Disability Stratefy.

1162

01:09:34,120 --> 01:09:37,520PAULA: Thanks Ben, I will, speakas quickly as possible

116301:09:37,520 --> 01:09:39,400and build on some of the points,

116401:09:39,400 --> 01:09:43,760I think, made bythe previous speakers.

116501:09:43,760 --> 01:09:48,000So I think the real generalchallenge, but obviously, it's also

116601:09:48,000 --> 01:09:53,360an opportunity, is to bethinking about how ambitious,

116701:09:53,360 --> 01:09:56,920you want to have this strategy.And I would always encourage us

116801:09:56,920 --> 01:10:01,040to be really ambitious asa disability community around

116901:10:01,040 --> 01:10:06,520the type of strategy that wewant to have in both countries.

117001:10:06,520 --> 01:10:09,240I think a general challengeto that and Rosemary touched on it.

117101:10:09,240 --> 01:10:13,000Is, is really around the engagementwith people disabilities.

117201:10:13,000 --> 01:10:17,480So, we need to feel confident thatour strategy will lead to change

117301:10:17,480 --> 01:10:21,400and that there'll be a way tohold people to account for that.

117401:10:21,400 --> 01:10:23,920It's all of the players involved.

117501:10:24,720 --> 01:10:28,720Some particular observations, fromthe New Zealand experience.

117601:10:28,720 --> 01:10:32,120So, our first strategy predatedthe CIPD.

117701:10:32,680 --> 01:10:36,040Biology was a, OK strategy,some would say

117801:10:36,040 --> 01:10:37,480it was pretty good and pretty good,

117901:10:37,480 --> 01:10:43,960because at the time, you know, preCIPD days, it really talked about

118001:10:43,960 --> 01:10:47,880disability inthe social model language.

118101:10:47,880 --> 01:10:52,200And so many people looked to our

strategy, as, as a bit of a model,

118201:10:53,000 --> 01:10:56,520but it lacked some prettyimportant factors.

118301:10:56,520 --> 01:11:00,600So, it lacked the resource toimplement it effectively.

118401:11:00,600 --> 01:11:03,480It lacked a suitablemonitoring framework,

118501:11:03,480 --> 01:11:07,160it lacked an action plan,it lacked governance,

118601:11:07,160 --> 01:11:09,960critically governance bypeople with disabilities.

118701:11:10,720 --> 01:11:15,160And the result really,of all of this, is that

118801:11:15,160 --> 01:11:18,800there was a slowor intermittent progress.

118901:11:18,800 --> 01:11:23,280And we as a independentmonitoring mechanism

119001:11:23,280 --> 01:11:26,040released our reportin June this year,

119101:11:26,040 --> 01:11:28,840our head devaluing the examination,

119201:11:28,840 --> 01:11:31,520our report is called MakingDisability Rights Real

119301:11:31,520 --> 01:11:34,560and I think it reallyreflects actually that slow

119401:11:34,560 --> 01:11:38,040or intermittent progressagainst the CIPD.

119501:11:38,040 --> 01:11:39,600Of course, there'sbeen some progress,

119601:11:39,600 --> 01:11:43,440but actually not the steep changesthat we would like to see.

119701:11:43,440 --> 01:11:48,160So moving ahead now to our, we we'reat terms of our current strategy,

119801:11:48,160 --> 01:11:50,320We're on to our second one.

119901:11:50,880 --> 01:11:53,600And the accompanyingaction plan supporting it

120001:11:54,240 --> 01:11:58,200was just a couple of months ago,released here in New Zealand.

120101:11:58,880 --> 01:12:02,080Some really interesting things,I think, to note about it.

120201:12:02,640 --> 01:12:07,160One, it was very much championat that highest level.

120301:12:07,160 --> 01:12:10,480So we have a minister forfor disability issues.

120401:12:10,480 --> 01:12:14,640And our focal point forthe CIPD in New Zealand

120501:12:14,640 --> 01:12:18,880has a very close relationshipand reports through to that minister.

120601:12:18,880 --> 01:12:23,680So she really championedthe development of the action plan.

120701:12:24,240 --> 01:12:27,240The action plan here,building off the strategy

120801:12:27,240 --> 01:12:30,920was co designed withpeople with disabilities.

120901:12:30,920 --> 01:12:35,080It also incorporates the principlesof our Treaty of Waitangi,

1210

01:12:35,080 --> 01:12:38,200which is obviouslyan important aspect of

121101:12:38,200 --> 01:12:40,520the way that, that we do things.

121201:12:41,000 --> 01:12:45,320The strategy has, as I mentioned,an agreed action plan.

121301:12:45,320 --> 01:12:48,400That's a living document, you know,it doesn't stand still forever,

121401:12:48,400 --> 01:12:51,080we can add things toit and build on it.

121501:12:51,080 --> 01:12:53,320And what's reallyimportant as well, is that

121601:12:53,320 --> 01:12:57,280a range of organisationsonly actions within it.

121701:12:57,280 --> 01:12:59,080And that brings in,that I think that

121801:12:59,080 --> 01:13:02,360collective responsibilityfor delivery.

121901:13:02,360 --> 01:13:05,840It's also supported by governance,which you touched on earlier

122001:13:05,840 --> 01:13:11,320Ben, we have an independentmonitoring mechanism, just my role,

122101:13:11,320 --> 01:13:13,800the chief ombudsmanand our seven DPO's.

122201:13:13,800 --> 01:13:17,560And collectively wemonitor the CIPD.

122301:13:17,560 --> 01:13:19,040And we do that througha range of ways.

122401:13:19,040 --> 01:13:22,480But one of the things thathas been really important,

122501:13:22,480 --> 01:13:27,840I think, is, we meet witha large range of ministers

122601:13:27,840 --> 01:13:32,240on a quarterly basis here.And we agreed with government,

122701:13:32,240 --> 01:13:37,720six top priorities that we wantedto see demonstrable progress

122801:13:37,720 --> 01:13:43,720on and got that commitment fromthe start of this government's term.

1229

01:13:43,720 --> 01:13:47,040And then I think, hasfocused us all really

123001:13:47,040 --> 01:13:48,960not that all the otherthings don't matter.

123101:13:48,960 --> 01:13:51,160But actually, there arethese six that would make

123201:13:51,160 --> 01:13:53,240a really demonstrable difference.

123301:13:54,040 --> 01:13:57,360The strategies also voicein the voices of people

123401:13:57,360 --> 01:14:04,360with disabilities and it's builtaround, eight key outcomes that

123501:14:04,360 --> 01:14:08,880really reflect whatthe world for people with

123601:14:08,880 --> 01:14:14,240disabilities would look like wheneach of those outcomes is achieved.

123701:14:14,240 --> 01:14:19,240So by all means, notperfect, far from it,

123801:14:19,800 --> 01:14:22,760and we have a long way to goand realising the rights of

123901:14:22,760 --> 01:14:24,920people with disabilities here.

124001:14:24,920 --> 01:14:27,600But I think that there area number of us that do have

124101:14:27,600 --> 01:14:32,320a lot more confidence in thisstrategy and action plan in

124201:14:32,320 --> 01:14:35,760the way that it was developed insome of the mechanisms around it,

124301:14:35,760 --> 01:14:40,760to support its delivery and to supportits accountability mechanisms.

124401:14:42,400 --> 01:14:46,320So thank you, Minister,Reston and RoseMarie,

124501:14:46,320 --> 01:14:49,320for being part of thispanel with you. Thanks Ben.

124601:14:49,320 --> 01:14:51,400BEN: Thank you very much, Paula,

124701:14:51,400 --> 01:14:54,040Minister, I might doto courtesy of having some

124801:14:54,040 --> 01:14:56,720final remarks if you'd like

and I do know in Mentimeter,

124901:14:56,720 --> 01:14:59,560there is a question runningabout community values

125001:14:59,560 --> 01:15:00,640and attitudes.

125101:15:00,640 --> 01:15:05,200Um, I just, if you have maybeone minute, anything you'd

125201:15:05,200 --> 01:15:08,160like to say I'm very gratefulfor you to add that and then

125301:15:08,160 --> 01:15:10,040we'll move on to the next panel,

125401:15:10,040 --> 01:15:12,000which looks at specificissues under

125501:15:12,000 --> 01:15:14,640the National Disability Strategy.

125601:15:14,640 --> 01:15:15,920ANNE: Look, thank you very much, Ben.

125701:15:15,920 --> 01:15:17,680And I certainly lookingvery much forward to

125801:15:17,680 --> 01:15:21,680saying what the Mentimeterhas thrown up in terms

125901:15:21,680 --> 01:15:23,320of the really big issues.

126001:15:23,320 --> 01:15:26,400But I think the thingthat has been so important to

126101:15:26,400 --> 01:15:29,200me here today is to getan understanding of the role of

126201:15:29,200 --> 01:15:31,920government that we can playaround national leadership

126301:15:31,920 --> 01:15:33,440and the promotion of inclusion.

126401:15:33,440 --> 01:15:36,720But I suppose my finalcomment would be about

126501:15:36,720 --> 01:15:39,600how clearly importantmaking sure that our

126601:15:39,600 --> 01:15:43,160national disability strategy hasgot a strong outcomes framework,

126701:15:43,160 --> 01:15:45,280so that we can measureour performance and

126801:15:45,280 --> 01:15:47,960we can determine whether outcomes

are really being delivered

126901:15:47,960 --> 01:15:50,280for people with disability,

127001:15:50,280 --> 01:15:52,600and none more so and more

127101:15:52,600 --> 01:15:56,120important than your work onthe National Disability data asset

127201:15:56,120 --> 01:15:59,200to make sure that we arebeing clearly defining

127301:15:59,200 --> 01:16:01,400what it is that we'remeasuring against,

127401:16:01,400 --> 01:16:04,040because if you can't measureit, you can't manage it.

127501:16:04,040 --> 01:16:06,040So thank you so much forwhat you've done today.

127601:16:06,040 --> 01:16:08,560It's been an absolute pleasure tobe here and I've also enjoyed

127701:16:08,560 --> 01:16:10,320very much listening tothe other speakers,

127801:16:10,320 --> 01:16:11,720

which I'll continue to do so.

127901:16:11,720 --> 01:16:13,600So thanks very much Ben.

128001:16:13,600 --> 01:16:16,200BEN: Thank you so much for comingMinister, highly appreciate if

128101:16:16,200 --> 01:16:18,720you attend one of the panels.

128201:16:18,720 --> 01:16:21,000If I might then move to

128301:16:21,000 --> 01:16:22,880our third panel for the day.

128401:16:23,880 --> 01:16:28,120This is issues for the newNational Disability strategy.

128501:16:28,880 --> 01:16:33,080I'm about to roll your video for the

128601:16:34,320 --> 01:16:36,960next panel.

128701:16:36,960 --> 01:16:39,200The individual in a video hisname is Brandon he lives

128801:16:39,200 --> 01:16:44,200independently, navigates his life,much as most Australians do,

1289

01:16:45,080 --> 01:16:49,280pays his bills, does his banking,catches public transport.

129001:16:49,280 --> 01:16:50,800Listens to talkback radio.

129101:16:50,800 --> 01:16:55,600And as he says don't hold itagainst him he's a Carlton supporter.

129201:16:56,840 --> 01:16:59,360We asked Brandon toanswer the question why

129301:16:59,360 --> 01:17:02,360is accessible communicationand engagement with people

129401:17:02,360 --> 01:17:07,360with disability matter inthe National Disability strategy.

129501:17:46,320 --> 01:17:51,520Brandon is proof that sometimesthe most persuasive advocacy

129601:17:51,520 --> 01:17:54,680uses an economy of words.

129701:17:55,400 --> 01:17:57,960Our next panel looks atindividual issues for the

129801:17:57,960 --> 01:18:01,640new National Disability strategy.

1299

01:18:01,640 --> 01:18:05,720The position paper refers tothe use of title action plans.

130001:18:05,720 --> 01:18:10,720And there is also a clear needfor monitoring and identified

130101:18:10,720 --> 01:18:15,720workforce development isespecially important issue.

130201:18:16,640 --> 01:18:18,760We have four speakers in this panel.

130301:18:18,760 --> 01:18:22,160Unfortunately, Jim (UNKNOWN) wasunable to join us at the last

130401:18:22,160 --> 01:18:27,000minute but our first panellistis Professor Anne Kavanagh,

130501:18:27,000 --> 01:18:29,200who is the CO directorand lead investigator with the

130601:18:29,200 --> 01:18:32,040centre of research excellencein disability health,

130701:18:32,040 --> 01:18:34,720and the Academic Director atthe Melbourne Disability Institute

130801:18:34,720 --> 01:18:37,240at the University of Melbourne.

130901:18:37,240 --> 01:18:41,440Their major research focuses onthe health of people with disability,

131001:18:41,440 --> 01:18:45,240and she focuses on how socialdeterminants such as employment,

131101:18:45,240 --> 01:18:49,360housing, poverty and educationinfluence the health of people with

131201:18:49,360 --> 01:18:51,600disability.

131301:18:51,600 --> 01:18:56,560Our next panellist is a colleagueand friend, Edward Santow,

131401:18:56,560 --> 01:18:58,320the Human Rights Commissioner at the

131501:18:58,320 --> 01:19:00,680Australian Human RightsCommission, and has held that role

131601:19:00,680 --> 01:19:03,520since August 2016.

131701:19:03,520 --> 01:19:06,960Edward has carried Human RightsCommission human rights

131801:19:06,960 --> 01:19:09,880and technology project,which discussion paper was

131901:19:09,880 --> 01:19:12,800released in December 2019.

132001:19:12,800 --> 01:19:16,440And includes a proposal forthe policy action to improve access

132101:19:16,440 --> 01:19:20,440to digital and other technologiesfor people with disability

132201:19:20,440 --> 01:19:25,200as a priority in the nextNational Disability strategy.

132301:19:25,200 --> 01:19:28,200Mary Sayers is the CEO ofChildren and Young People with

132401:19:28,200 --> 01:19:32,960disabilities Australia, Australia'speak disability organisation

132501:19:32,960 --> 01:19:36,160for young people withdisability in Australia.

132601:19:36,160 --> 01:19:38,920While it would be impossiblefor me to summarise the

132701:19:38,920 --> 01:19:43,520immense productive work ofSayer in a succint way, I do note

132801:19:43,520 --> 01:19:47,040the National Disability

youth Summit 2020,

132901:19:47,040 --> 01:19:50,760which is occurring later this month,and the education Roundtable,

133001:19:50,760 --> 01:19:54,680you chair for people withdisability education.

133101:19:54,680 --> 01:19:57,600And finally Mr DamianGriffis is the CEO of

133201:19:57,600 --> 01:20:00,960First Peoples disability network,and was the CO delegation

133301:20:00,960 --> 01:20:04,720lead of the civil society forAustralia second and third,

133401:20:04,720 --> 01:20:08,000periodic reviews for the Committeeon the Rights of Persons

133501:20:08,000 --> 01:20:13,000with disabilities inGeneva in September 2019.

133601:20:14,000 --> 01:20:19,000If I might then turn to Anne,Anne given your previous research

133701:20:20,960 --> 01:20:25,280and experience, what criticalissues need to be considered in

133801:20:25,280 --> 01:20:27,880the new NationalDisability strategy?

133901:20:27,880 --> 01:20:32,880And perhaps as importantly, how?

134001:20:36,440 --> 01:20:40,120ANNE: Thanks, Ben, havingcome at the end of this.

134101:20:40,120 --> 01:20:43,640So lots of people have said thingsI probably would have said.

134201:20:43,640 --> 01:20:48,640And I just wanted to reiteratethat solutions don't sit in

134301:20:49,920 --> 01:20:51,560single departments.

134401:20:51,560 --> 01:20:56,560And I think, first of all, COVID,like Rosemary and others have

134501:20:57,160 --> 01:21:00,960shown has demonstratedthat that is the case.

134601:21:01,440 --> 01:21:05,480And that the fault linesbetween departments had seen

134701:21:05,960 --> 01:21:09,480potentially people with disabilitiesfall through the gaps in

134801:21:10,000 --> 01:21:11,920the response.

134901:21:11,920 --> 01:21:16,080But we've also seen thatadvocacy has led to change.

135001:21:16,080 --> 01:21:21,160And that, again, we area strong community that has,

135101:21:21,160 --> 01:21:25,880through various mechanismsinfluenced some policy

135201:21:25,880 --> 01:21:27,360around COVID.

135301:21:27,360 --> 01:21:30,440But I guess there's manythings I'd like to emphasise.

135401:21:31,200 --> 01:21:33,600I'd like to emphasise employment,

135501:21:33,600 --> 01:21:36,600as one of those, we've talkeda lot about how labour force

135601:21:36,600 --> 01:21:38,520participation is low.

135701:21:39,040 --> 01:21:42,320And employment is notjust human rights,

135801:21:42,320 --> 01:21:44,160but it's also a resource for health.

135901:21:44,160 --> 01:21:49,040And our work, I guess constantlydemonstrates that employment is

136001:21:49,040 --> 01:21:51,400critical for the mentalhealth and well being

136101:21:51,400 --> 01:21:52,800of people with disabilities.

136201:21:52,800 --> 01:21:56,400In fact, we've shown throughour various quantitative work

136301:21:56,400 --> 01:22:01,000that improving employment leadsto... reduces inequalities

136401:22:01,000 --> 01:22:04,800in mental health between peoplewith them without disabilities.

136501:22:04,800 --> 01:22:07,800Yet, if people withdisabilities are employed,

136601:22:07,800 --> 01:22:10,360they tend to have poor quality jobs.

136701:22:10,360 --> 01:22:13,520They tend to be they're morelikely to be underemployed

136801:22:13,520 --> 01:22:15,560and will want more hours.

136901:22:15,560 --> 01:22:19,280And we've people report frommany of it much of our work,

137001:22:19,280 --> 01:22:24,520the amount of discrimination they'veexperienced in getting jobs.

137101:22:24,520 --> 01:22:27,440So just to reflect oncommunity attitudes,

137201:22:27,440 --> 01:22:30,680which we've talked a lot about inour community Attitudes Survey

137301:22:30,680 --> 01:22:35,840of over 2000 Australians, actually20% of people agreed that

137401:22:35,840 --> 01:22:40,240employers should be able to refusepeople with disabilities jobs,

137501:22:40,240 --> 01:22:44,840and 27 were actually ambivalentabout it so they weren't sure,

137601:22:44,840 --> 01:22:47,840which usually means theymay actually hold more

137701:22:47,840 --> 01:22:49,880discriminatory attitudes.

137801:22:49,880 --> 01:22:52,760We also showed peoplehad low expectations.

137901:22:52,760 --> 01:22:56,080I also would like to emphasisein terms of employment,

138001:22:56,080 --> 01:23:00,000that education, employmenttransition is critical.

138101:23:00,000 --> 01:23:04,000We still found 13% of peoplebelieve they should be exclusive.

138201:23:04,000 --> 01:23:09,080People disability should be exclusivelyeducated in special schools,

138301:23:09,080 --> 01:23:12,800and that teenagers with disabilityare experiencing high levels

138401:23:12,800 --> 01:23:17,360of bullying in schools, which isaffecting their mental health

138501:23:17,360 --> 01:23:21,960and well being and again, futuresocial and economic participation.

138601:23:21,960 --> 01:23:23,880So now we have COVID.

138701:23:23,880 --> 01:23:27,520

And so what are the opportunitiesand the perils of that for

138801:23:27,520 --> 01:23:28,840people with disabilities?

138901:23:28,840 --> 01:23:32,400I think we really need tofocus on this head on in the

139001:23:32,400 --> 01:23:37,200new strategy, because otherwise,most marginalised people in

139101:23:37,200 --> 01:23:42,280our community, people withdisabilities will miss out.

139201:23:42,280 --> 01:23:45,520And I need think we need tomove beyond simply focusing on

139301:23:45,520 --> 01:23:49,160individuals and skill developmentand mutual obligation.

139401:23:49,160 --> 01:23:52,600A lot of the work we've donewith people using employment

139501:23:52,600 --> 01:23:55,560services shows that thisfocus on individuals can be

139601:23:55,560 --> 01:23:58,760demoralising when there's no jobs.

1397

01:23:58,760 --> 01:24:00,880So what can government do?

139801:24:00,880 --> 01:24:02,760We need to design jobs,

139901:24:02,760 --> 01:24:04,640we need to designstimuluses packages now

140001:24:05,880 --> 01:24:09,800that actually create jobsfor people with disabilities.

140101:24:09,800 --> 01:24:13,720Our focus should be toencourage government to think

140201:24:13,720 --> 01:24:16,640about the kinds of jobs thatwould enable people with

140301:24:16,640 --> 01:24:21,160disabilities to stay, or becomeengaged in the workforce,

140401:24:21,160 --> 01:24:23,360particularly young people withdisabilities who will be

140501:24:23,360 --> 01:24:27,680left behind with itdisrupted education.

140601:24:27,680 --> 01:24:31,080Do we know what people withdisabilities seize the opportunities

140701:24:31,560 --> 01:24:34,400in the labour market going forward.

140801:24:34,400 --> 01:24:37,200And I guess there's beena huge focus on monitoring

140901:24:37,200 --> 01:24:38,200and outcomes.

141001:24:38,200 --> 01:24:40,160And I just want to drawpeople's attention,

141101:24:40,160 --> 01:24:43,240and the outcomes framework tothe work that the extensive

141201:24:43,240 --> 01:24:46,520work the CRA has donein this regard.

141301:24:46,520 --> 01:24:50,040We, through witnessleadership, have developed

141401:24:50,040 --> 01:24:53,080a monitoring framework, whichwas developed with people with

141501:24:53,080 --> 01:24:57,440lived experience ofdisabilities, and is extensive,

141601:24:57,440 --> 01:25:00,280and looks at allthe databases around.

141701:25:00,280 --> 01:25:03,920So I urge the government tolook very carefully at that,

141801:25:03,920 --> 01:25:08,640and people with disabilities inthe sector because it was produced,

141901:25:08,640 --> 01:25:10,120it's careful work.

142001:25:10,120 --> 01:25:14,000And it's looked atthe kinds of data we need.

142101:25:14,000 --> 01:25:16,880But coming back to the asset,which you might ask me about

142201:25:16,880 --> 01:25:21,040a bit more, but I think the disabilitydata asset is critical here,

142301:25:21,040 --> 01:25:24,000we need to do more thanjust monitor outcomes,

142401:25:24,000 --> 01:25:28,280we need to actually monitorthe impact of specific policies.

142501:25:28,280 --> 01:25:31,320And we can only do that bylinking up data between various

142601:25:31,320 --> 01:25:36,320

jurisdictions and across differentportfolios from the NDS, IS

142701:25:37,400 --> 01:25:41,880to services, DSS,to health and so forth,

142801:25:41,880 --> 01:25:45,440because we need to learn whetherthese policies are working,

142901:25:45,440 --> 01:25:48,600what are the government jobs,stimulus packages doing in terms

143001:25:48,600 --> 01:25:51,040of creating jobs for peoplewith disabilities, are people

143101:25:51,040 --> 01:25:53,600with disabilities being left behind,

143201:25:53,600 --> 01:25:57,200and we need to listen to peoplewith disabilities in this

143301:25:57,200 --> 01:26:00,680recovery period, we need tolearn from what happens and

143401:26:00,680 --> 01:26:05,680we need to reform based onthe evidence that's produced.

143501:26:06,480 --> 01:26:08,280BENThank you very much, Anne.

1436

01:26:08,280 --> 01:26:12,040And I also acknowledgethe enormous contribution that

143701:26:12,040 --> 01:26:14,640the centre of researchexcellence in disability health

143801:26:14,640 --> 01:26:17,640doesn't in disability research,more generally in Australia,

143901:26:17,640 --> 01:26:21,480and it's something we hopecontinues now and into the future.

144001:26:21,480 --> 01:26:26,440I might then go to Ed, Ed,given your previous research

144101:26:26,440 --> 01:26:29,680and experience, what criticalissues need to be considered in

144201:26:29,680 --> 01:26:32,000the new NationalDisability strategy,

144301:26:32,000 --> 01:26:35,640and perhaps as importantly, how?

144401:26:35,640 --> 01:26:38,520EDWARD SANTOW: Thank you, Ben, andI'm coming to you from Gadigal land

144501:26:38,520 --> 01:26:42,600and I pay tribute to the Elderspast present emerging here.

144601:26:42,600 --> 01:26:45,720And to me, it starts withtechnology, technology

144701:26:45,720 --> 01:26:48,000is central to our lives.

144801:26:48,000 --> 01:26:51,080In our recent consultation,we heard from the community

144901:26:51,080 --> 01:26:53,920from industry,government and experts.

145001:26:53,920 --> 01:26:56,760And across the diversity ofall of those stakeholders,

145101:26:56,760 --> 01:26:59,520we heard one thing again and again,

145201:26:59,520 --> 01:27:03,080our human rights depend moreand more on being able to

145301:27:03,080 --> 01:27:08,040access and use new technology,including in fundamental areas

145401:27:08,040 --> 01:27:11,400like education, governmentservices, and employment.

145501:27:11,400 --> 01:27:15,240And so if we take equality

seriously as a country,

145601:27:15,240 --> 01:27:17,960all members of the Australiancommunity should be able to

145701:27:17,960 --> 01:27:21,000access and use criticaltechnologies,

145801:27:21,000 --> 01:27:25,240regardless of theirdisability or other status.

145901:27:25,240 --> 01:27:29,080Our highlight two issues inparticular to answer your question.

146001:27:29,080 --> 01:27:32,800First, the next NationalDisability strategy should put

146101:27:32,800 --> 01:27:35,560new technologies front and centre.

146201:27:35,560 --> 01:27:39,920Now more than ever, access totechnology is an enabling right.

146301:27:39,920 --> 01:27:43,800It's a critical gateway youhave to go through to enjoy

146401:27:43,800 --> 01:27:46,640a whole range of other human rights.

146501:27:46,640 --> 01:27:49,480

The National Disabilitystrategy should reflect that.

146601:27:50,480 --> 01:27:53,400The strategy should promote better,more inclusive design of

146701:27:53,400 --> 01:27:56,640products and services thatrely on new tech and

146801:27:56,640 --> 01:28:00,680Australian Governments canand should lead the way.

146901:28:00,680 --> 01:28:03,840Secondly, a National Disabilitystrategy sets out a vision

147001:28:03,840 --> 01:28:08,080that can't be an endin and of itself.

147101:28:08,080 --> 01:28:12,640As Paula Terreiro said a momentago, the strategy must be

147201:28:12,640 --> 01:28:16,680supported by positive PracticalAction, in other words,

147301:28:16,680 --> 01:28:20,800to make the vision real,and that informs the approach that

147401:28:20,800 --> 01:28:23,160we've taken in path Dabout human rights and

147501:28:23,160 --> 01:28:25,680technology discussion paper.

147601:28:25,680 --> 01:28:26,680Some of our proposed changes,

147701:28:26,680 --> 01:28:29,120well known to many,if not all of you,

147801:28:29,120 --> 01:28:31,920may echo those put forward byothers like improvements to

147901:28:31,920 --> 01:28:35,120the NDIS, and makingthe NBN more affordable

148001:28:35,120 --> 01:28:36,840for people with disability.

148101:28:36,840 --> 01:28:39,160But we also proposed someother changes as well,

148201:28:39,160 --> 01:28:41,360such as the developmentof a new disability

148301:28:41,360 --> 01:28:43,240communication technologystandard under the

148401:28:43,240 --> 01:28:46,840Disability Discrimination Act,that would give clear guidance

148501:28:46,840 --> 01:28:49,880to those who develop informationcommunication technology

148601:28:49,880 --> 01:28:53,360as well as some of the morecutting edge communication tech

148701:28:53,360 --> 01:28:56,480like virtual and augmented reality.

148801:28:56,480 --> 01:28:59,400What digital CommunicationTechnology Centre would do

148901:28:59,400 --> 01:29:02,600is it would help to ensurethese products and services are

149001:29:02,600 --> 01:29:05,800designed and deployed in waysthat are accessible to people

149101:29:05,800 --> 01:29:09,320with disability in other words,living out that critical vision in

149201:29:09,320 --> 01:29:12,040the National Disability strategy.

149301:29:12,040 --> 01:29:15,480Finally, at the risk of embarrassinghim, I'd like to pay tribute

149401:29:15,480 --> 01:29:17,560to Dr. Ben Gauntlets leadership.

149501:29:17,560 --> 01:29:21,040I've worked really closely withBen, my colleague and friend,

149601:29:21,040 --> 01:29:24,360and he's been absolutelyinstrumental in this key element of

149701:29:24,360 --> 01:29:29,760our own project onhuman rights in tech.

149801:29:29,760 --> 01:29:31,000BEN: Thank you very much Ed.

149901:29:31,000 --> 01:29:33,600It's a shame your technologydidn't fall at that point to

150001:29:33,600 --> 01:29:36,120your microphone,but these things happen.

150101:29:36,120 --> 01:29:40,520Um, I might then move to Mary,giving your previous research

150201:29:40,520 --> 01:29:43,480and experience what criticalissues need to be considered in

150301:29:43,480 --> 01:29:48,480the new national disability strategyand perhaps as importantly, how?

150401:29:50,360 --> 01:29:51,360

MARY SAYERS: Thanks, Ben.

150501:29:51,360 --> 01:29:53,280First, I'd like to acknowledgethe traditional custodians

150601:29:53,280 --> 01:29:55,280of the land I'm meeting onin Melbourne,

150701:29:55,280 --> 01:29:58,560the Wurundjeri people of the Kulinnation and pay my respects

150801:29:58,560 --> 01:30:03,120to Elder's past and presentand acknowledge that this was and

150901:30:03,120 --> 01:30:07,280always will be Aboriginal landand sovereignty was never ceded.

151001:30:07,280 --> 01:30:10,960When the next disabilitystrategy ends a baby born with

151101:30:10,960 --> 01:30:14,240disability in 2021 will be 10.

151201:30:14,240 --> 01:30:17,840A current 10 year old studentwith disability will be 20.

151301:30:17,840 --> 01:30:21,760And a young person aged15 now will be 25.

1514

01:30:21,760 --> 01:30:26,760Whilst 10 years for us adultsmight seem a short timeframe for

151501:30:26,760 --> 01:30:28,520children and youngpeople with disability,

151601:30:28,520 --> 01:30:33,320what happens in the next 10 yearswill have lifelong impacts.

151701:30:33,320 --> 01:30:37,600It will impact on theirfriendships and peer networks,

151801:30:37,600 --> 01:30:41,480which we know are so protective,their educational outcomes,

151901:30:41,480 --> 01:30:45,200their post school transition tofurther education and employment,

152001:30:45,200 --> 01:30:48,800their ability to liveindependently with who they want,

152101:30:48,800 --> 01:30:52,120and be welcomedand involved in the community

152201:30:52,120 --> 01:30:53,960as they wish and want.

152301:30:53,960 --> 01:30:57,160Therefore, it's imperativethat we get the next 10 year

152401:30:57,160 --> 01:30:59,560National Disability strategy right.

152501:30:59,560 --> 01:31:01,600We know what needs to be done.

152601:31:01,600 --> 01:31:06,600The evidence is in, the human rightsare clear, and we cannot wait.

152701:31:07,400 --> 01:31:09,680Children and young peoplewith disability need

152801:31:09,680 --> 01:31:14,960a childhood, adolescence and earlyadulthood just like everyone else,

152901:31:14,960 --> 01:31:18,400they need to have loving homeenvironments with their families

153001:31:18,400 --> 01:31:21,680have high expectationsand hopes for the future.

153101:31:21,680 --> 01:31:25,240They need to be involved in highquality early childhood education

153201:31:25,240 --> 01:31:29,240and care, have a good transitionto school and be educated

153301:31:29,240 --> 01:31:32,960alongside their non disabled

peers with high quality

153401:31:32,960 --> 01:31:37,360differentiated curriculum thatall students are learning and

153501:31:37,360 --> 01:31:41,320have the same experiences astheir non disabled peers.

153601:31:41,320 --> 01:31:44,640They need to be able to takerisks and they need to have rites

153701:31:44,640 --> 01:31:47,800of passage just likeother young people.

153801:31:47,800 --> 01:31:50,600Therefore, just a few ofthe areas that I think need the

153901:31:50,600 --> 01:31:54,440National Disabilitystrategy needs to include.

154001:31:54,440 --> 01:31:57,760We need a commitment fromall stakeholders that the

154101:31:57,760 --> 01:32:01,520National Disability InsuranceScheme does not promote

154201:32:01,520 --> 01:32:06,960medicalised therapy and specialmodels to try and fix children.

154301:32:06,960 --> 01:32:10,560Rather than provide servicesand support that helps

154401:32:10,560 --> 01:32:13,760children and youngpeople have full inclusion in

154501:32:13,760 --> 01:32:18,360the community in mainstream andeducational settings and services.

154601:32:18,360 --> 01:32:21,320We need an NDIS thatconsiders the developmental needs

154701:32:21,320 --> 01:32:26,320of children, young people giventhe 56% of them of participants

154801:32:27,280 --> 01:32:30,440in the NDIS are aged under 25.

154901:32:30,440 --> 01:32:33,480Not just an adult based scheme.

155001:32:33,480 --> 01:32:36,080The biggest influencefor children and

155101:32:36,080 --> 01:32:39,160young people on the laidoutcomes is education.

155201:32:39,160 --> 01:32:42,520We need all states and territoriesin the Australian Government

155301:32:42,520 --> 01:32:46,080to make a strong commitment toensuring inclusive education

155401:32:46,080 --> 01:32:49,400as defined by the conventionon the rights of persons with

155501:32:49,400 --> 01:32:54,400disability that is high qualitynot segregated from their piece,

155601:32:54,400 --> 01:32:58,760which CPRD and the evidencetells us is so wrong.

155701:32:58,760 --> 01:33:03,440We need a national inclusiveeducation plan, legislative reform,

155801:33:03,440 --> 01:33:06,720monitoring and accountabilityto prevent the discrimination

155901:33:06,720 --> 01:33:11,080that happens from low expectations,segregation, exclusion,

156001:33:11,080 --> 01:33:14,040gatekeepingand restrictive practises.

156101:33:14,040 --> 01:33:17,200We need better data to monitorhow our current mainstream

1562

01:33:17,200 --> 01:33:21,400and disability specific services areimproving outcomes for children,

156301:33:21,400 --> 01:33:23,000and young people.

156401:33:23,000 --> 01:33:27,320But most importantly, we needthe National Disability strategy

156501:33:27,320 --> 01:33:31,400to facilitate children and youngpeople with disabilities voice.

156601:33:31,400 --> 01:33:33,440As Ben mentioned, nextweek, we're holding

156701:33:33,440 --> 01:33:36,000a National Youth Disability summit,

156801:33:36,000 --> 01:33:40,600we are hosting over 200 youngpeople with disability who have

156901:33:40,600 --> 01:33:42,160registered to attend.

157001:33:42,160 --> 01:33:46,520It has been completely designed,owned and delivered by

157101:33:46,520 --> 01:33:50,440young people with disabilityand four of these five days,

1572

01:33:50,440 --> 01:33:51,920the adults have to get out.

157301:33:51,920 --> 01:33:54,600It's only young peoplewith disability.

157401:33:54,600 --> 01:33:57,320Young people know whatthey need in their lives,

157501:33:57,320 --> 01:34:00,520how systems need to change,and they must be involved in

157601:34:00,520 --> 01:34:02,920CO design and co creation.

157701:34:02,920 --> 01:34:05,800I'll have a few more pointsin a general discussion.

157801:34:05,800 --> 01:34:08,960But I just wanted to reemphasise how crucial this

157901:34:08,960 --> 01:34:13,960next ten year NDS is,we can't afford to wait.

158001:34:16,960 --> 01:34:19,040BEN: Thank you verymuch, Mary.

158101:34:19,040 --> 01:34:22,520Damian, if I might then go to you.

1582

01:34:22,520 --> 01:34:26,320How would you answer the questionposed to the other panel?

158301:34:26,320 --> 01:34:27,960DAMIAN: Thanks, Ben.

158401:34:27,960 --> 01:34:32,200Um, it's difficult to think of anymore disadvantaged Australians

158501:34:32,200 --> 01:34:35,360than First Nationspeople with disability.

158601:34:35,360 --> 01:34:38,320This is because they often facemultiple barriers to their

158701:34:38,320 --> 01:34:42,040meaningful participation withintheir own communities and

158801:34:42,040 --> 01:34:44,120the wider community.

158901:34:44,120 --> 01:34:48,280First Nations people with disabilityexperienced discrimination

159001:34:48,280 --> 01:34:52,840based upon their indigeneityand or disability.

159101:34:53,360 --> 01:34:56,760We need to recognise that manyFirst Nations people with

159201:34:56,760 --> 01:34:59,440disability live in poverty.

159301:34:59,440 --> 01:35:04,440Sometimes what we see isa denial of the most fundamental

159401:35:04,440 --> 01:35:07,960of human rights and human needs.

159501:35:07,960 --> 01:35:12,960That is access to shelter, accessto food, and access to health.

159601:35:14,440 --> 01:35:19,560To address these criticalissues, we need innovation.

159701:35:19,560 --> 01:35:23,280We need to protect and promotecommunity based solutions

159801:35:24,280 --> 01:35:29,000that put First Nations communitiesat the heart of decision making.

159901:35:29,000 --> 01:35:33,960And we need long term partnershipsbetween communities,

160001:35:33,960 --> 01:35:38,960government and NGOs, not shortterm project based thinking.

160101:35:40,440 --> 01:35:43,360None of these issuesare insurmountable,

160201:35:43,360 --> 01:35:48,360especially if we apply the samecommitment and mobilisation

160301:35:48,840 --> 01:35:52,360that we have seen in addressingCOVID-19 in Indigenous

160401:35:52,360 --> 01:35:57,360communities, which has beenextraordinarily successful to date.

160501:35:58,720 --> 01:36:01,360First Nations people withdisability must be more than

160601:36:01,360 --> 01:36:06,520a paragraph in the NDS preamble.

160701:36:06,520 --> 01:36:11,560We must have our own strategywithin the NDS strategy.

160801:36:11,560 --> 01:36:14,440Meeting the needs of FirstNations people with disabilities,

160901:36:14,440 --> 01:36:19,600one of the most critical socialjustice issues in Australia today.

161001:36:19,600 --> 01:36:22,440As a nation, we should bemeasured by how well we meet

161101:36:22,440 --> 01:36:26,040

the needs of some of ourmost vulnerable people.

161201:36:26,040 --> 01:36:31,040The NDS must be a heartbase document, not an audit.

161301:36:32,480 --> 01:36:37,680It must be about how as a nation,we truly and meaningfully

161401:36:37,680 --> 01:36:41,080and innovatively realisethe human rights of

161501:36:41,080 --> 01:36:43,880First Nations peoplewith disability and all

161601:36:43,880 --> 01:36:46,280Australians with disability.

161701:36:46,280 --> 01:36:50,000Thanks, Ben.

161801:36:50,000 --> 01:36:51,600BEN:Thank you verymuch time, you know,

161901:36:51,600 --> 01:36:54,400I know we've only got 10minutes left for this panel.

162001:36:54,400 --> 01:36:57,640So I'm going to have to askyou to be relatively synced in

1621

01:36:57,640 --> 01:37:02,240your answers the next question,but, um, and if I might put it to

162201:37:02,240 --> 01:37:05,440you then on the Mentimeterand the code for Mentimeter

162301:37:05,440 --> 01:37:09,920for people who may haveforgotten is 4104984.

162401:37:10,680 --> 01:37:13,360The final question is how canwe work together to ensure

162501:37:13,360 --> 01:37:16,960the strategy is understoodand followed across all sectors?

162601:37:16,960 --> 01:37:19,920Government, non governmentand community?

162701:37:19,920 --> 01:37:23,760What's your view on this?

162801:37:23,760 --> 01:37:27,120ANNE: I'm sorry, I think I'll justrepeat back the question because

162901:37:27,120 --> 01:37:30,120I'm not quite sure I heardit that we need

163001:37:30,120 --> 01:37:31,280work together government,

163101:37:31,280 --> 01:37:34,360non government and whatwas the other part of it?

163201:37:34,360 --> 01:37:35,960BEN: How can we work togetherto ensure that

163301:37:35,960 --> 01:37:38,240strategy is understoodand followed across

163401:37:39,960 --> 01:37:44,400government, non governmentand the community?

163501:37:44,400 --> 01:37:48,640ANNE: I mean, this is this isabsolutely critical.

163601:37:48,640 --> 01:37:50,840I think,

163701:37:50,840 --> 01:37:55,240with the strategy is not going towork unless we do achieve that.

163801:37:55,240 --> 01:37:59,040And I think we'vedemonstrated that, again,

163901:37:59,040 --> 01:38:02,040I'd like to bring us back tothe example of COVID-19.

164001:38:03,800 --> 01:38:07,800Because I think this draws

attention to the fact that

164101:38:08,560 --> 01:38:12,920people with disabilities, thoseof us experiencing day to day

164201:38:14,440 --> 01:38:19,440issues with how government workswith how to cover our concerns,

164301:38:20,760 --> 01:38:25,760heard other people that havethe the knowledge on how,

164401:38:27,080 --> 01:38:29,600how to solve these, these problems.

164501:38:29,600 --> 01:38:33,680But we also need to, we needto measure those outcomes,

164601:38:33,680 --> 01:38:36,000and we need to holdgovernment accountable.

164701:38:36,000 --> 01:38:37,960So

164801:38:37,960 --> 01:38:41,400I think there's a lot of innovationout there in the sector,

164901:38:41,400 --> 01:38:44,640there's a lot of ideas, weneed to harness those ideas,

165001:38:44,640 --> 01:38:48,360

we need to work with governmentcome up with practical solutions.

165101:38:48,360 --> 01:38:53,440And we need to learn and reformbased on what we learn from

165201:38:53,440 --> 01:38:57,040our ongoing monitoringand evaluation.

165301:38:57,040 --> 01:39:02,040And of those those of what wedo, I just also wanted to to

165401:39:04,440 --> 01:39:08,080put a bit of hope there, I thinkthe National Disability data asset

165501:39:08,080 --> 01:39:10,200shows the government's commitment,

165601:39:10,200 --> 01:39:13,600and potential to do thatdifferently through linking up

165701:39:13,600 --> 01:39:18,840and making available fortransparency and accountability,

165801:39:18,840 --> 01:39:21,480data on what's been happening.

165901:39:21,480 --> 01:39:23,080I think the other commitment from

166001:39:23,080 --> 01:39:26,160

the Department of Social Servicesto the National Disability

166101:39:26,160 --> 01:39:31,040research partnership, is yetanother indication that we may see

166201:39:31,040 --> 01:39:35,600quite a lot of differencesmoving forward in terms of,

166301:39:35,600 --> 01:39:40,800of research, that's able toshed more light on how we can

166401:39:40,800 --> 01:39:45,760best move forward to improvethe lives of people with disabilities.

166501:39:45,760 --> 01:39:50,960And and so I hope, some hope forthe future in those initiatives,

166601:39:50,960 --> 01:39:54,200the National Disabilitystrategies, one mechanism,

166701:39:54,200 --> 01:39:59,200those are other mechanismsthat work alongside of that.

166801:39:59,200 --> 01:40:00,960BEN: Thank you very much, Anne.

166901:40:00,960 --> 01:40:02,640Ed, how can we work together to

1670

01:40:02,640 --> 01:40:07,000ensure the strategies understoodand followed across all sectors,

167101:40:07,000 --> 01:40:10,360government, non governmentand the community?

167201:40:10,360 --> 01:40:13,080And in particular, the questionI'd like to ask you relating to

167301:40:13,080 --> 01:40:16,720technologies, how much dowe need laws to say this?

167401:40:16,720 --> 01:40:20,360Or can we rely uponguiding principles?

167501:40:20,360 --> 01:40:23,000ED: Maybe I'll start bysaying what is attractive,

167601:40:23,000 --> 01:40:25,480but we know doesn't work.

167701:40:25,480 --> 01:40:29,960It doesn't work just to putout a really appealing vision.

167801:40:29,960 --> 01:40:33,440And then just hope thateverybody is going to be kind of

167901:40:33,440 --> 01:40:34,600mesmerised by it,

168001:40:34,600 --> 01:40:37,640and that it willgalvanise really significant action.

168101:40:37,640 --> 01:40:39,280We're not putting outa feature film here,

168201:40:39,280 --> 01:40:43,440what we're trying to do is actuallychange people's behaviour.

168301:40:43,440 --> 01:40:45,200And we know thatthe only thing I mean,

168401:40:45,200 --> 01:40:48,520we've got literally hundredsof years of experience here,

168501:40:48,520 --> 01:40:52,200we know that the only thing thattends to work is the tried and true,

168601:40:52,200 --> 01:40:53,800and that is carrot and stick.

168701:40:53,800 --> 01:40:57,800So governments can throughthe mechanisms that support

168801:40:57,800 --> 01:41:01,840the national strategy, they canprovide incentives that will make it

168901:41:01,840 --> 01:41:06,360more appealing for people,

in the case of technology to

169001:41:06,360 --> 01:41:09,920design and implement newtechnologies in ways that are

169101:41:09,920 --> 01:41:12,200truly inclusive.

169201:41:12,200 --> 01:41:14,080They can do that throughtheir procurement and

169301:41:14,080 --> 01:41:16,520a range of other mechanisms.

169401:41:16,520 --> 01:41:19,080But ultimately, to answer yourquestion, there has to be

169501:41:19,080 --> 01:41:21,800a backstop, the backstop isthe law, that's the stick.

169601:41:22,280 --> 01:41:24,760There's got to be minimum standardsthat we know are going to

169701:41:24,760 --> 01:41:26,040be enforced.

169801:41:26,040 --> 01:41:30,560Because a human right that isnot enforced isn't...

169901:41:30,560 --> 01:41:31,680It's just a good idea.

170001:41:32,440 --> 01:41:35,000That was something that FrankBrennan really emphasised in

170101:41:35,000 --> 01:41:36,840his National Human Rightsconsultation report.

170201:41:36,840 --> 01:41:39,640And it's something that I thinkis, is vitally important always to

170301:41:39,640 --> 01:41:43,000remember.

170401:41:43,000 --> 01:41:48,000BEN: Thank you Ed. Mary, howwould you answer that question?

170501:41:48,800 --> 01:41:52,680MARY: The way I would answer that being isaround respecting all parts

170601:41:52,680 --> 01:41:57,760that the different stakeholders play,and I guess,

170701:41:57,760 --> 01:42:02,680disability advocacy organisationsplay a critical role in amplifying

170801:42:02,680 --> 01:42:05,160the voice of their members.

170901:42:05,920 --> 01:42:08,160And so we need to make sure that

171001:42:10,160 --> 01:42:14,960disability advocacy organisationsare seen as part of the solution

171101:42:14,960 --> 01:42:19,040and working in partnership withgovernment to actually achieve

171201:42:19,040 --> 01:42:20,280the outcomes.

171301:42:20,280 --> 01:42:24,120But that cannot be donewithout genuine co design,

171401:42:24,120 --> 01:42:27,680that involves actually people withdisability and from the lens

171501:42:27,680 --> 01:42:31,560that we see his childrenand young people with disability,

171601:42:31,560 --> 01:42:34,160they need to be involvedfrom the start.

171701:42:34,160 --> 01:42:36,680For example, as I mentioned, 56%

171801:42:36,680 --> 01:42:39,160of NDS's participantsare aged under 25.

171901:42:40,400 --> 01:42:44,840Yet we have no formalised consultative

structure to include them in

172001:42:44,840 --> 01:42:49,120the policy work and the policydevelopment for the NDIS.

172101:42:49,120 --> 01:42:54,120We know across a whole range ofpolicy areas voices lost, so

172201:42:56,120 --> 01:42:57,120excuse me.

172301:42:57,120 --> 01:43:01,560So I think recognising thatwe all have a role to play.

172401:43:01,560 --> 01:43:05,440And that is a really importantand the National Disability strategy to

172501:43:05,440 --> 01:43:09,480galvanise I will absolutelyagree with Edward we need

172601:43:09,480 --> 01:43:12,400carrots and sticks inthe children's space,

172701:43:12,400 --> 01:43:14,920there is so much legislative reform.

172801:43:14,920 --> 01:43:20,360We don't have independentoversight for protecting children,

172901:43:20,360 --> 01:43:23,560

and young people fromabuse in this country.

173001:43:23,560 --> 01:43:26,280There's a whole range ofreform that needs to happen.

173101:43:26,280 --> 01:43:30,400So that's probably enough for me.

173201:43:30,400 --> 01:43:32,920BEN: Thank you very much, Mary.

173301:43:32,920 --> 01:43:37,200And Damian might throw to you tofinish off for everyone before

173401:43:37,200 --> 01:43:41,200I conclude the eventby asking Annah from

173501:43:41,680 --> 01:43:43,920Centre for Research Excellenceand disability health to

173601:43:43,920 --> 01:43:46,440make some concluding remarks Damian.

173701:43:46,440 --> 01:43:47,800DAMIAN: Thanks, Ben.

173801:43:47,800 --> 01:43:51,200I agree with all myfellow panellists.

173901:43:51,200 --> 01:43:55,640But something we've been advocating

for, for a long time now,

174001:43:55,640 --> 01:43:59,440the first peoples disabilitynetwork is a mechanism that

174101:43:59,440 --> 01:44:02,040could perhaps look similar tothe closing the gap structure

174201:44:03,280 --> 01:44:05,040that exists at the moment.

174301:44:05,040 --> 01:44:07,000Closing the Gap is far from perfect.

174401:44:07,000 --> 01:44:11,520But what it does do is for at leastone day a year the Prime Minister

174501:44:11,520 --> 01:44:16,440is required to report to Parliamentabout the situation for

174601:44:16,440 --> 01:44:19,040Aboriginal and TorresStrait Islander people,

174701:44:19,040 --> 01:44:21,160in Australia today.

174801:44:21,160 --> 01:44:24,320We havelong thought and wondered why

174901:44:24,320 --> 01:44:27,840there isn't a similar approach

that address, that focuses

175001:44:27,840 --> 01:44:31,520on the situation forAustralians with disability.

175101:44:31,520 --> 01:44:35,200And the National Disabilitystrategy could inform and come up

175201:44:35,200 --> 01:44:38,160with the measurements to do that.

175301:44:38,160 --> 01:44:41,800And in fact, in some ways,disability is more advantaged in

175401:44:41,800 --> 01:44:43,920the Aboriginal and TorresStrait Islander experience in

175501:44:43,920 --> 01:44:47,080the sense that there area number of mechanisms that can

175601:44:47,080 --> 01:44:51,440be used already to determinethe experience for young children

175701:44:51,440 --> 01:44:55,600with disability and education,the employment experience,

175801:44:55,600 --> 01:44:58,680the transport experience,the housing experience.

1759

01:44:58,680 --> 01:45:02,800So we think that idea has valueand then that could be one way of

176001:45:02,800 --> 01:45:06,200having some high profilemechanism to review

176101:45:06,200 --> 01:45:09,960the situation annually, perhapseven more regularly than that,

176201:45:09,960 --> 01:45:14,960but thanks.

176301:45:15,560 --> 01:45:17,080BEN: Thank you very much Damian.

176401:45:18,360 --> 01:45:21,800Unfortunately, one ofthe challenges in the online world is

176501:45:21,800 --> 01:45:24,080the need to

176601:45:24,080 --> 01:45:27,760move between participants quicklyand to get rapid answers.

176701:45:27,760 --> 01:45:32,520Um, I'm sure we could all speakabout these issues in differently,

176801:45:32,520 --> 01:45:35,880particularly the issue of howwe enforce and make sure that the

1769

01:45:35,880 --> 01:45:38,640National Disability strategyis fit for purpose,

177001:45:38,640 --> 01:45:40,960important data and enforcement.

177101:45:40,960 --> 01:45:45,720But I might ask Hannah Badlandfrom RMIT University and a

177201:45:45,720 --> 01:45:49,000member of the Centre for ResearchExcellence and disability

177301:45:49,000 --> 01:45:54,000and health to give her perspectiveon today's proceedings.

177401:45:55,440 --> 01:45:56,760HANNAH BADLAND: Right, thank you, Ben,

177501:45:56,760 --> 01:45:59,000and thank you to the previous speakers,

177601:45:59,000 --> 01:46:02,400so I respectfully recognisethe sovereign relationship

177701:46:02,400 --> 01:46:05,840and acknowledge traditionalcustodians of country and

177801:46:05,840 --> 01:46:08,640the Elders past, present and future,

177901:46:08,640 --> 01:46:11,120

on whose unseeded lands we'veconducted business.

178001:46:11,640 --> 01:46:14,520Today, on speaking on (UNKNOWN) land,

178101:46:14,520 --> 01:46:18,320the eastern Kulin nation,and I uphold the Indigenous notion

178201:46:18,320 --> 01:46:21,400that if we care for country,it will care for us.

178301:46:21,400 --> 01:46:23,880So thank you to the AustralianHuman Rights Commission in

178401:46:23,880 --> 01:46:27,880the centre of research, Centrefor Research Excellence in

178501:46:27,880 --> 01:46:30,720disability and health fororganising this really thought

178601:46:30,720 --> 01:46:33,640provoking panel sessionand thank you also to the panellists

178701:46:33,640 --> 01:46:36,000for sharing yourexpertise and thoughts.

178801:46:36,000 --> 01:46:39,200Special thanks to Senator Rustonfor her ongoing active

178901:46:39,200 --> 01:46:44,200contributions in the spaceand including your participation today.

179001:46:44,680 --> 01:46:48,440So the next strategy isa critical opportunity to shape in

179101:46:48,440 --> 01:46:52,400realistic policy approaches thatcan be to optimise outcomes

179201:46:52,400 --> 01:46:54,440for people with disability.

179301:46:54,440 --> 01:46:57,120It has the potential to strengthenthe measuring and monitoring

179401:46:57,120 --> 01:46:59,520of disability related outcomes.

179501:46:59,520 --> 01:47:02,880And importantly, this has been saida lot by the panellists today

179601:47:02,880 --> 01:47:07,080link across sectors and portfoliosand bidding and outcomes

179701:47:07,080 --> 01:47:10,120framework which is regularlyreported on again,

179801:47:10,120 --> 01:47:12,640something that's beenmentioned several times.

179901:47:12,640 --> 01:47:15,760It will enable us to betterunderstand trajectories over time

180001:47:15,760 --> 01:47:20,360and equities and also identifiedthe range of policy leaders to

180101:47:20,360 --> 01:47:24,280improve the outcomes ofpeople with disability.

180201:47:24,280 --> 01:47:27,800And there's, Anne Ruston saidwhat gets measured gets done.

180301:47:27,800 --> 01:47:30,800So adopting an agile approachmay become more important in

180401:47:30,800 --> 01:47:34,800future also given the legacy ofthe COVID policy responses that

180501:47:34,800 --> 01:47:40,040we're yet to learn howthey shape down.

180601:47:40,040 --> 01:47:43,160So there's also an opportunity forthe (UNKNOWN) to link in

180701:47:43,160 --> 01:47:45,080with existing tools and resources.

180801:47:45,080 --> 01:47:48,520

And Anne mentionedthe Centre for Research Excellence

180901:47:48,520 --> 01:47:51,200and disability and healthhas produced the disability

181001:47:51,200 --> 01:47:54,320and well being monitoringframework and indicators, has

181101:47:54,320 --> 01:47:58,080been developed in consultationwith people with lived experience

181201:47:58,080 --> 01:48:02,600of disability, it also includesperson and area level Indicators

181301:48:02,600 --> 01:48:06,040that can be actionedacross Australia,

181401:48:06,040 --> 01:48:10,520and indicators have beenmet to the CRPD in the ICS.

181501:48:10,520 --> 01:48:15,320So, to conclude, and as many ofthe speakers have identified today,

181601:48:15,320 --> 01:48:18,520the success of the next NationalDisability strategy lies

181701:48:18,520 --> 01:48:22,320in the importance ofan underlying framework

181801:48:22,320 --> 01:48:25,280and incorporating the livedexperience for a diverse range

181901:48:25,280 --> 01:48:29,640of people with disability, formulationa broad range of policies,

182001:48:29,640 --> 01:48:32,120including the delivery of systemsthat safeguard.

182101:48:32,880 --> 01:48:33,880The panellists

182201:48:33,880 --> 01:48:36,120have recognised the benefits ofbuilding on the good effects

182301:48:36,120 --> 01:48:39,160already achieved throughthe previous strategy,

182401:48:39,160 --> 01:48:41,880but more needs to bedone in a timely way.

182501:48:41,880 --> 01:48:44,440So thank you for your time.Thank you for this opportunity.

182601:48:44,440 --> 01:48:46,360And please make your voiceheard, the submissions

182701:48:46,360 --> 01:48:51,360

on the position paper close onthe 30th of September. Thank you.

182801:48:53,120 --> 01:48:55,040BEN: Thank you very much Hannah.

182901:48:55,040 --> 01:48:57,320I too would like to

183001:48:57,320 --> 01:49:00,760acknowledge the tremendousassistance that the centre

183101:49:00,760 --> 01:49:04,160of research excellencedisability in health organising

183201:49:04,160 --> 01:49:07,360Space Programme and alsotheir assistance more generally to

183301:49:07,360 --> 01:49:09,320the Australian HumanRights Commission,

183401:49:09,320 --> 01:49:12,600ensuring that we have gooddisability policy that is good for

183501:49:12,600 --> 01:49:13,760all Australians.

183601:49:13,760 --> 01:49:14,920In organising today

183701:49:14,920 --> 01:49:17,800I'd also like to acknowledge

the work of the social

183801:49:17,800 --> 01:49:19,920(UNKNOWN) delight to deal withand have dealt with

183901:49:19,920 --> 01:49:21,800innumerable tech issues.

184001:49:21,800 --> 01:49:23,360And I'd like to also acknowledge

184101:49:23,360 --> 01:49:25,600the interpreters fortheir role today.

184201:49:25,600 --> 01:49:29,880A copy of today's event will beavailable on YouTube at a later date.

184301:49:29,880 --> 01:49:34,480But most importantly, what wewant and we need is for people,

184401:49:34,480 --> 01:49:39,400all people to engage withthe National Disability strategy,

184501:49:39,400 --> 01:49:43,440and the position paperthat has been released and asked

184601:49:43,440 --> 01:49:46,640whether these policiesand procedures are fit for purpose.

184701:49:48,880 --> 01:49:51,480

The ultimate role of the AustralianHuman Rights Commission,

184801:49:51,480 --> 01:49:55,360it's to shine the brightestlight to the darkest places.

184901:49:55,360 --> 01:49:59,720Almost one year ago today,the CRPD committee released its

185001:49:59,720 --> 01:50:03,440concluding observationsrelating to Australia.

185101:50:03,440 --> 01:50:06,160Some of those observations peoplewill think relate to everyone,

185201:50:06,160 --> 01:50:10,080like housing, the need formandatory housing standards,

185301:50:10,080 --> 01:50:14,600universal design principles,but others relating to issues such

185401:50:14,600 --> 01:50:19,080as forced sterilisation beingrecognised as equal before the law,

185501:50:19,080 --> 01:50:22,760or indefinite detention onthe basis of mental health or cognitive

185601:50:23,520 --> 01:50:26,000disability are concernswhich Australia can

185701:50:26,000 --> 01:50:29,000and should and doesneed to deal with.

185801:50:29,000 --> 01:50:33,680Good policy means that we donot have as many dark places

185901:50:33,680 --> 01:50:37,160to have the greatestcircumstances arise.

186001:50:37,160 --> 01:50:40,240We need to get the policy rightto ensure that people with

186101:50:40,240 --> 01:50:44,320disability can live the livesof their choosing, to do so,

186201:50:44,320 --> 01:50:48,520a mantra nothing about uswithout us needs to be respected

186301:50:48,520 --> 01:50:52,920now and in the future, and atall levels of decision making.

186401:50:52,920 --> 01:50:56,400Thank you again for attending.Please participate in the process.

186501:50:56,400 --> 01:51:01,400And I wish you a goodday. Thank you.