michael hoenig university of iowa center for disabilities and development
TRANSCRIPT
Michael Hoenig
University of Iowa Center for Disabilities and Development
When Cancer Meets Blindness: One Survivor’s Story
Learning Objectives
Describe the psychosocial impact of a cancer diagnosis from the perspective of an individual experiencing a lifelong disability
Identify strategies to ensure effective communication with cancer patients who experience a disability
Articulate the impact which blindness and other disabilities have on prescription of cancer treatment and follow-up
Background
Brief personal history Events leading up to diagnosis
The Diagnosis
Complete shock “You might lose your right arm” The pity party First ray of hope
Initial Consultation
Accessing my records Oh No… Oh Good! Initial work-up
Exploring Treatment Options
The “big decision” Access to information Second opinion
Choosing a Treatment Option
The “intake dilemma” Surgery
My Hospital Stay
“Here’s your lunch” “Is it my cell phone?” “The view from Bed B” Chaotic discharge
Recovery
Gauze, gauze, gauze Intense fatigue Gastrointestinal discomfort
Recovery (continued)
Emotional roller coaster SupportFreedom!
“That’s a wrap”
Ruth’s crash courseCommon sense approachHome routine
Milestones
Increased strength and mobility in my hand and arm
Increased appetite The “right-handed” shower Enjoying space to be on my own
Freedom, TAKE 2
Graduating from wraps to a sleeve and a glove
Using the keyboard Returning to work Tolerating immune therapy Planning trips
Where Am I Now?
Clear ScanWorking full-time Concerns shared with
Offices of Patient Experience
New Life Perspective Celebration bonfire!
Disability Communication Resource
Presenter Contact Information:
Mike Hoenig, MAState and Community ProjectsCenter for Disabilities and Development100 Hawkins Drive, Room S376Iowa City, IA 52242-1011Phone: 319-353-6448Email: [email protected]