manitoba cervical cancer screening program cancercare manitoba june 2009 mccsp registry...

Manitoba Cervical Cancer Screening Program

CancerCare Manitoba

June 2009

MCCSP Registry Infrastructure and Evaluation

Presentation Overview• Program Overview• Registry Infrastructure

– Business Process– Database Linkages– Support and Maintenance– Upgrades and Change Requests

• Information Utilization– Operations– Surveillance & Monitoring– Evaluation– Research

www.everytwoyears.ca

MCCSP Overview• Established January 2000

• Program of Manitoba Health

• Managed by CancerCare Manitoba

• Public Health Act Regulation (2009 & 2001)

• 398,770 women age 18-69 (01-06-2008)

• 7 cytology laboratory partners

• 27 Colposcopists


MCCSP Program Guidelines

• Screening starts with sexual activity

• May stop at age 70

• Pap test annually x 3 • 3 Negative 2 years

• Unsatisfactory/Low Grade = repeat 6-9 months

• Persistent Unsat/Low Grade = colposcopy

• High Grade = colposcopy


MCCSP Registry is….• A confidential centralized database of all

cervical cancer screening test results

– Includes cytology, colposcopy, associated pathology

– Demographic information on all females 18-69– Regulated by the Cervical Cancer Screening

Registry Regulation 31/2009


Registry Infrastructure• Screening Reports

– Cytology (April 2001)– Colposcopy (January 2003)

• Standardized nomenclature and dictionaries• Manitoba Health Population (18-69)• Hysterectomy tariff codes• Cancer Registry – cervical cancers• In Process

– Population expansion (10-17)– Vaccination status (MIMS, DPIN/Health Admin– All Gynecological cancers


Information Systems• Computerized and automated

– Manage dataflow and information needs• Information comes from

– Laboratory test results– Colposcopy reports– Demographic data– Health care providers– Cancer Registry– Manitoba Health databases

• Gather and consolidate data• Relies on the cooperation of the health

care community


System Infrastructure (Literally)

• Database Server– Linux – Oracle 10

• EDI Server– M/S Windows NT

• LAN network HUB (10/100 Base T Ethernet)• IP Routers

– To external laboratories • Modem to modem communication

– To Manitoba Health WAN


Business Processes• Acquire report data (electronic and manual)• Enter/edit report data • Process reports• Edit/check and validate• Link data on individuals• Determine follow up events• Perform QA• Query individual’s screening histories


Business Processes Cont’d• Generate follow up reminders• Generate standard reports• Consolidate

– Cancer data– Hysterectomy data– Population data– Duplicates

• Perform data queries• Perform system administration• Provide electronic histories to cytology

laboratories


Electronic Transmissions from Laboratories


File Upload Process

• Population Upload– Data from Manitoba Health– Modem to modem connection– Data is FTPd to Cervical Cancer

Screening Server– ISIS software

• Population upload function– Match by PHIN, surname, DOB– Update patient demographics– Population Table


File Upload Process Cont’d

• Cancer Upload Process– Data from Cancer Registry system

• Maxon Database (Sybase)• SQL script

– Extracted data is FTPd to Cervical Cancer Screening Server

– ISIS software• Cancer Upload Function

– Match by PHIN, surname, DOB/ Cancer Number/Dx Date

– Updates patient cancer information– Cancer Table


Reports• ISIS software generated reports• CCSP reporting

– PowerBuilder programs• Extracted from Oracle Database

– Population based– RHA/FSA– Health Care Provider Reports

• Ad-hoc reports extracted to EXCEL (also Comma Separated Values, ASCII text, dBase 2/3, Data Interchange Format, Lotus)


Database Linkages• Cytology Laboratories (electronic

transmission)– PHIA compliant– Results– CPSM MANQAP Quality Standards

• Manitoba Health – Population– Administrative Databases– MIMS– DPIN

• Cancer Registry • Future Pathology Laboratory Linkage

through E-Path (AIM)


Support & Maintenance• CCMB Health Information Services

– Project management/application support and development– System administration– Database management– Hardware maintenance for Cytology laboratory systems– Electronic linkage (Transmed)

• MCCSP Team– Program management – Data entry– Quality assurance – Development of Requests for Change– User acceptance testing

• Artificial Intelligence in Medicine (AIM)– Upgrades– New developments– Support for Laboratory Data Interface Improvements at

laboratories


Support & Maintenance Cont’d

• ISIS Production Database• ISIS Production Patient Inquiry• ISIS Test Database• ISIS Test Patient Inquiry• Transmed • FTP Script• Database SQL Scripts• Cancer Extract SQL Script• PowerBuilder Reporting Application


Upgrades and Change Requests

• Annual support maintenance (AIM)• Quarterly submissions• Quarterly upgrades • Testing at AIM• Remote testing by AIM• User acceptance testing at MCCSP• Production implementation by CCMB HIS


Information Utilization• Operations• Surveillance/Monitoring• Recruitment and Promotion• Evaluation• Research


Operations• Opt out (21)• Screening Results to

– Women (empowers and educates)– Cytology laboratories (MANQAP

Reporting/QA)– Health care providers (improves clinical

management and educates on screening guidelines)

• Follow Up and Monitoring– High Grade Abnormal Results (January 2003)– Low Grade Abnormal Results (April 2006)– Letters to health care providers– Letters to women


Surveillance• Screening patterns by

– Age– RHA– FSA– Time

• Abnormal Pap test management and follow up• Workload

– Cytology– Colposcopy – Provider

• Impact on participation, abnormalities, cancer incidence


Recruitment and Promotion

• Definition of eligible population• Recruitment letters• Reminder letters• Target populations and

communities• Pap Test Learning Module


Evaluation• Reaching target populations

• Statistical reports

• Pap Clinic Week


Research

• Cancer incidence and screening participation

• HPV Pilot Study (2006)• HPV Surveillance (2008)• Pap test utilization and impact of

recruitment letters (2010)


Future Questions• Manitoba Cervical Cancer Screening Program

– 788-8627– 1-866-616-8805– [email protected]

• EveryTwoYears.ca

• TellEveryWoman.ca

• Women can call for copies of their own results


mailto:[email protected]

manitoba cervical cancer screening program cancercare manitoba june 2009 mccsp registry...

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