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Local Action Plan 2017-2020

Yorkshire & Humber

Background

As of 1st January 2017 there were XXX people known to the Association with MND, 6 MND Association branches and groups, XXX regularly active Multi-Disciplinary Teams (MDTs) and 2 MND Care Centres/Network (Sheffield and Leeds). In addition we are about to fund an additional MND coordinator post in Bradford (2 days per week).The total population is c.5.2m. Expected incidence or the number of people expected to develop MND each year is XXX people and the expected prevalence or the number of people living with MND at any one time is XXX people. This three-year Local Action Plan (LAP) has been developed by the Local Delivery Team (LDT) in consultation with key stakeholders. It defines priorities and activities to support the Regional Delivery Plan (RDP) developed from the strategic goals and objectives of the Association as set out in our 2017-2021 Strategy. The RDP includes Regional Performance Indicators (RPIs) which will be used to monitor progress alongside quarterly narrative reports to the Directors Team. This plan will be formally refreshed mid-way through the Strategy in 2019

Local Map

Membership of Yorkshire & Humber LDT

- Amy Senior, Local Campaigns Contact/York Group - Brian Jackson, Local Campaigns Contact/South Yorkshire Branch - Colin Pearson, RCDA Cleveland, North & East Yorkshire - Jane Evans, RCDA South Yorkshire, North Derbyshire, North & North East Lincolnshire - Julie Compton (JC), Campaigns Manager (CM), North - Linda Tuttle – MND CNS/Team Leader, Leeds Care Centre - Mandy Metcalfe, Regional Fundraiser Manager (RFM), North and West - Sarah Milner, Volunteering Development Co-ordinator (VDC), Greater Manchester,

Lancashire & Yorkshire - Sal Hastings, RCDA West Yorkshire & Harrogate - Tracey Thompson, Regional Delivery Manager (RDM), North

- Theresa Walsh – MND Specialist Nurse, Sheffield Care Centre

Key Stakeholders & Partners

Representatives from: - Leeds and Sheffield Care Centre - Other Health & Social Care Professionals as approp - Branch and Group input into Local Action Plans - Service user group input into plans (plwMND, Carers,

family members) - Other volunteers, as appropriate such as AVs, local

Campaigns Contacts etc.,

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What are we going to do? How will we do it? Who will be involved?

Timeframe Outcome Activity

RDP Outcome 1: Intelligence gathering, needs assessment and analysis Gather and analyse data from the Transforming MND Care audit for (1) care centres/networks and (2) other services not funded by the Association

Support the Sheffield and Leeds Care Centres to complete the audit as part of their contractual obligations Support at least one other teams/services to complete the audit each year

RDM, RCDA, CCCs RCDAs

By the end of 2017 and every 2 years Annually

1a, 1b

Gather and analyse data from other sources in relation to regional services

Use the following data sources to highlight shortfalls in services, and to inform local clinical and social care priorities:

- Improving MND Care survey - Regional service mapping - Other identified data sources (including

those provided by NHS and Social Care e.g. HES data)

(Link to RDP Outcome 2 below: activity 2c)

LDT Ongoing 1c, 1d, 1e

Prioritise available data and intelligence to inform local and national campaigning, where appropriate

Work with LDT and other stakeholders (including B&Gs and volunteers) to use local data to inform local campaigning as appropriate Specific priorities identified include: XXX

CM, RCDAs, RDM, LDT

Ongoing 1f, 1g, 1h

RDP Outcome 2: Driving service improvement Create and implement improvement plans following the use of the Transforming MND Care audit

Work with Sheffield and Leeds Care Centres to implement the audit improvement plans as required Work alongside at least one other teams in the LDT area each year who have undertaken the audit, to implement their improvement plan

CCCs, RCDAs RCDAs

By the end of 2017 Annually

2a, 2b

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Use influencing and negotiation to improve health and social care services not funded by the Association where there are identified shortfalls

Utilise LDT meetings and wider consultation to help identify shortfalls & inform local clinical and social care priorities, and work with regional staff and HSCPs to influence better provision. Target commissioners where there appear to be fundamental shortfalls in provision. In particular:

Social Care Pathway

Improve access of pwMND to early intervention/Social Care. Audit numbers of pwMND involved with Social Care (stepped approach)

In particular look further into time it takes for social care funding for adaptations in North Yorkshire

Respiratory Pathway

Improve access to community respiratory services pathways in line with NICE guideline/Transforming MND Care audit tool (timely) in Sheffield Care Centre catchment, following recent change in service

(Link back to RDP Outcome 1; outcome activities 1c, 1d and 1e) West Yorkshire Gaps (Calderdale, Huddersfield, Halifax, Kirklees, Holmfirth). Anecdotal negative experience of

RCDAs, CM, CC RCDAs, CC, CM RCDAs RCDAs, CC RCDA,

Ongoing Ongoing 2017 and ongoing 2017 and ongoing 2017 and ongoing

2c

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diagnosis and post diagnosis care (good experience of community team care). Scope:

Patient involvement groups (bottom up approach)

Support for carers

Counselling (collaborative/partnership approach)

Wheelchair services Commissioned by Harrogate & Rural District CCG York and N. Yorkshire WCS provided by NRS and subcontracted for clinical assessment by Blatchfords. Recently highlighted in HSJ article as having on of highest proportions of adults waiting more than 19 weeks for a wheelchair (Q3 2016 NHSE data/not MND specific data). Own anecdotal data (St Michael’s hospice) suggests that issues are evident for pwMND, e..g not taking on any additional work:

Document issues/cases affecting local pwMND

Palliative Care Need identified for hospice/palliative care beds in Bridlington/East Riding of Yorkshire (not all MND patients want to be cared for in care homes or moved to Beverley)

RCDA, LDT, CM, LDT discussion

2017 and ongoing

RDP Outcome 3: Protecting and extending care and support Manage the contract and relationships with care centres and networks

Work collaboratively with Sheffield and Leeds Care Centres to progress developments in clinical care services and pathways Maintain membership of Care Centre Steering Groups and develop greater strategic focus, including attendance from CCG commissioners

RDM, RCDAs, CCCs,

Ongoing 2017 and ongoing

3a

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and NHS Trust Business Managers as appropriate. Refresh Terms of Reference.

CCCs, RDM, RCDAs

Support and develop MDTs Continue to support the development and delivery of community MDTs by regular attendance and assisting with assessing against the NICE guideline to highlight areas of improvement, including

- Name MDTs XXX (hosted by XXX)

RCDAs, CCs 2017 and ongoing 3b

Increase the number of referrals to the Association

Ensure that all newly diagnosed pwMND are provided with adequate opportunities to engage with Association including understanding the offer of Association membership, e.g. Association and B&G packs given out at clinic where appropriate/displayed at clinic etc., Secure the engagement of neurologists outside of Sheffield and Leeds Care centres to ensure appropriate referrals are made?? Monitor existing referral pathways, analyse where the number of pwMND known to the Association does not correlate to expected prevalence and take action where appropriate Standardise referral pathways to volunteer Association Visitors (AVs), introducing the Association Visitor Coordinator (AVC) role where appropriate

RCDAs, CCCs, B&Gs CCCs, RCDAs RCDAs, CCCs RCDAs, AV, AVCs, B&Gs

Ongoing Ongoing Ongoing Ongoing

3c

Facilitate the delivery of a programme of regional masterclasses

Promote the delivery of the 2017 regional Advanced Masterclasses for HSCPs on cognitive change in Preston on 10th May and York on 30th May. See link below www.mndassociation.org/advancedmasterclasses

All

Up to end of May 2017

3d

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Contribute to the development of the ongoing masterclass programme, ensuring these are promoted throughout the LDT area to key HSCPs

LDT Ongoing

Provide training and development opportunities for HSCPs according to local needs and priorities

Utilise existing meetings/structures/mechanisms to consult with HSCPs about local action plans including local training and development needs and priorities, e.g. MDTs, study days, YH Partnwrship Meetings etc., Expand membership of LDT to include HSCP gaps particularly in relation to Social Care and Palliative Care (hospice) providing another route to consult about T&D needs and priorities Support the care centres to plan and deliver an annual study day for HSCPs Work with Hull MND Planning Group to re-establish local education event Continue to increase MND awareness amongst GPs e.g. promote the Red Flags tool amongst GPs and help speed up referras to neurologists Scope specialist MND nurse competencies training developed by Leeds Care Centre (due to be discussed at Care Partnership meeting in May). Potential to be rolled out to wider audience (e.g. respiratory and hospice nurses). Scope potential funding opportunities Address specialist MND training and development needs identified for paid carers, both in the home and in private care agencies (possible link here to local campaigning and to the work we have already done as an Association around competencies/JDs for paid carers?)

RCDAs, CCCs LDT, RCDA RCDAs, CCCs RCDA, Hull MND Planning Group RCDAs, HSCPS, Care Centres CC, RCDA, Jenny Bedford RCDA, (Rachel Boothman, Jenny Bedford)

Ongoing 2017 and ongoing 2017 Early 2018 Ongoing ?? ??

3e

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Recruitment, retention and succession planning of all regionally based volunteers

Review and identify volunteer role requirements for each local Branch and Group, specific to local need Review and identify care volunteer requirements (including Association Visitors) in this LDT area, ensuring the re-phasing of recruitment targets for 2017 are realistic and based on local need. Develop/refresh written local volunteer recruitment plans, to include re-phasing care volunteers recruitment targets Increase the number of active Care volunteers (including Association Visitors and clinic volunteers) by 11 by end of 2017 (making the total 32*) and review capacity and need beyond this date. See details below Local need in CP’s patch (North & East Yorks):

- 1 x AV or Care Volunteer in York, - 1 x Care Volunter in Hull

(currently has 5; making the total 7)

Local need in SH’s patch (West Yorkshire): - 3 x AVs across West Yorkshire - 3 x Care Volunteers (Clinic volunteers)

across West Yorkshire (currently has 5; making the total here 11)

Local need in JE’s patch (N Derbys,S Yorks, N & NE Lincs)

- 1 x AVs in Sheffield - 1 x AV in Barnsley - 1 x Doncaster (currently has 11 – making total here 14)

VDC, Branches and Groups RDM, RCDA, VDC VDC, RCDA VDC, RCDAs

April 2017 and ongoing April 2017 and ongoing April 2017 and ongoing By the end of 2017 and ongoing

3f

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*Note: there will be some attrition, with anticipated leavers

Recruit one AVC (Association Visitor Coordinator) per RCDA, according to local need, as appropriate Continue to introduce new approaches to the recruitment of volunteers e.g.

Bespoke local training as appropriate;

Shared volunteering schemes through partnership approaches with local hospices, e.g. partnership working with Marie Curie Befriending service in Bradford, Airedale and Craven

Maintain relationships with targeted groups to allow for succession planning into regional volunteering roles, e.g. people affected by MND, retired HSCPs.,

Identify and explore potential models for succession planning e.g. Board of Trustees

Continue to increase cross branch/group working and collaboration to improve sharing of best practice, support, fundraising, strategic awareness and maximise capacity/resources, Scope a regional joint Branch & Group Forum (strategic focus), alongside B&Gs Develop and implement a recruitment plan to establish local Campaigns Contacts for all B&Gs by 2019. Aim to have 2 more campaigns contacts in each VDC area by end of 2017

VDC, RCDA VDCs, RCDAs RCDAs, VDCs, CM, RF, B & Gs CM, VDC, RCDA VDC

April 2017 and ongoing 2017 and ongoing 2017 and ongoing 2017 and Ongoing Ongoing

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Ensure local volunteer centres are up to date with all our volunteering roles (including new ones) Use volunteering events / social media / newsletters and word of mouth to promote local volunteering needs., e.g. consider an article in Thumb Print; exploring what volunteering roles are available? (over 50 roles). Local marketing for this? Support B&Gs to explore local volunteer recruitment Explore potential for VDC and RCDA to attend educational days in Care Centres to promote volunteer recruitment (Preston model). Meet care centre staff to promote new care volunteering roles Discuss ? Promote STRONG (new Association volunteering initiative) and microvolunteering and encourage B&Gs to use this Promote and encourage use of Volunteer Forum

VDC, B&Gs VDC, B&Gs, RCDA VDC, RCDA, CC, VDC, B&Gs VDC, RCDA, B&Gs

2017 and ongoing Ongoing 2017 and ongoing April 2017 and ongoing Ongoing

Provide support and learning and development opportunities for all regionally-based volunteers

Provide induction for all new volunteers and agree ongoing learning and development priorities for volunteers in all roles Deliver AV/care volunteer development and training opportunities, as agreed by the Association’s Care Volunteers Steering Group/sub group. To include at least one AV/Care Volunteer Development Day per year to include an agreed core topic (2017: Whole Family approach and Safeguarding update)

VDC RCDA

Ongoing Annually

3g

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Hold AV/Care volunteer support meetings for each AV team Provide peer support within all volunteering roles to encourage / ensure retention and promote new initiatives and confidence through collaboration e.g. explore provision of volunteers regional forum Better promotion/ use of Volunteer Zone Utilise refresher days, ‘Get Connected– Confidence through Collaboration’ (regional events) for longer term volunteers.

RCDA/AVC VDC, Regional team VDC, Regional Team Regional Team

Quarterley 2017 and ongoing Ongoing Get Connected Day May 2017

Promote the Champion the Charter campaign as a means to influence local authorities and open doors for service development

Continue to promote the MND Champion the Charter campaign and achieve up to 5 more adoptions in Yorkshire and Humber;

- Prioritise local authorities who have

already signed the charter (e.g. Sheffield

& Wakefield), and also target;

- Bradford Council (utilise the publicity to be

generated by the recruitment to the IBC

funded MND Coordinator post hosted by

Marie Curie Bradford);

- Rotherham, Doncaster and Barnsley

councils;

- York Council;

CM, B&Gs, campaigns contacts

- Brian

Jackson

CC

South

Yorks

-

2017 and ongoing

- Dec 2017

-

-

-

- Dec 2017

-

-

- March 2017

3h

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- North Lincolnshire, Leeds, N Lincs, NE

Lincs, Hull and East Yorkshire, Kirklees

and Harrogate

Following adoption, continue to work with the councils to monitor and improve services they offer for pwMND Local CC / LDT to lead the approach using

Championing The Charter resources

- Amy

Senior

CC York

-

- CC

CM, campaigns contacts, B&Gs, LDTs CM, LDT

-

2017 and ongoing 2017 and ongoing

Develop and deliver local campaigns where needed

Use local data to inform priorities for local campaigning Build and strengthen relationships between local campaigns contacts, AVs and RCDAs in order to better inform localised campaigning efforts and provide evidence Develop a local process to look at identifying local Campaigning issues (JC’s ‘local issues’ forms and involving volunteers in LDTs)

CM, RCDA, LCC, LDT LCC, CM, RCDA, AVs (CVs), LDT Branches and groups Regional Staff Care volunteers AV’s

Ongoing Ongoing Ongoing

3i

Support the delivery of national campaigns

To be advised of national campaigns and to promote these accordingly. Also to ensure coordinated with local initiatives where appropriate, e.g. see next point Scope the needs of pwMND, families and carers in relation to future financial security/planning, based on needs identified in local consultation questionnaire (January 2017) - and link to Association’s national campaigning work on ‘financial impact of MND on pwMND’ (DEMOS

CM, LDT RDM, Head of Policy, Trusts Fundraising, CM, others as appropriate, LDT, DEMOS

Ongoing May 2017 and ongoing. National campaigns/DEMOS launched June 2017.

3j

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project). National piece of work to link back into the LDT (see also RDP outcome 4, activity 4b)

Parliamentary reception 06/06/17

Promote and increase numbers in the Campaigns Network

Widely promote to stakeholders in order to increase numbers in the Campaigns Network from 342 to 489 by end of 2019 (for whole of North region) Scope existing network numbers, identify gaps for CCs and develop recruitment plans Increase volunteer campaigns contacts by two by end of 2017 Utilise national volunteering processes and initiatives to increase Campaigns networks. E.g. Campaigns Contacts/Network Members, STRONG, Microvolunteering., Promote Campaigning network using campaigning materials at local events / B&G events / Social Media etc.

CM, B&G VDC, CM VDC, CM VDC, Regional staff, CM Volunteers LDT

2019 3k

Increase the number of B&Gs involved in campaigning

Utilise Campaigns Contacts / Campaigns Managers and regional staff to promote the validity of campaigning, forms of campaigning and reducing barriers / perceptions Guest speakers using CC and CM at B&G events to share ideas / good practice / experiences. Use Branch & Group Social Media / Newsletters / AGMs to share good practice / successes

CM / LCC, Regional Staff and Volunteers LCC, CM, B&G B&G, CM, LCC

Ongoing Ongoing Ongoing

3l

RDP Outcome 4: Innovation and new work

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Develop new volunteering roles Establish and embed the Association Visitor Cordinator Role (AVC), aiming to recruit 1 x per RCDA patch (3 in total) Embed the new Care Volunteer roles and new bespoke modular training, dependent on local need. This includes the Support Group Facilitator, Carers Champion, MND Support Volunter (Clinic Volunter and Care Ambassador roles amalgamated) See also RDP Outcome 3 above (activities 3f)

VDC, RCDA RCDA, VDC, B&G

March 2018 Ongoing

4a

Develop new care and support services

Scope the needs of pwMND, families and carers in relation to future financial security/planning, based on needs identified in local consultation questionnaire (January 2017) - and link to Association’s national campaigning work on ‘financial impact of MND on pwMND’ (DEMOS project). National piece of work to link back into the LDT (see also RDP outcome 3, activity 3j) To establish a new partnership with Marie Curie Helper Service in West Yorkshire, to include:

- Publicising support available (AVs, Helpers) to MDT;

- Attending Marie Curie training; - Following up new referrals by joint visits

with Marie Curie - Offering bespoke training and support to

Helper Service; - Stepped approach – aim to provide

specialist training and support to small cohort of MC volunteers who support pwMND. Ideally include them in existing AV support, learning and development structures and scope dual volunteering (MC and MND Association).

RDM, Head of Policy, Trusts Fundraising, CM, others as appropriate, LDT RCDA, VDC, Marie Curie (MC)

June 2017 2017 – March 2018

4b

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Pilot and evaluate a ‘small aids’ and ‘communication aids’ Rotary funded pilot project, with West Yorkshire OT and SALT community teams, including; Supporting each team to order and use stock; Developing recording forms in line with other RCDAs and share with wider Care Directorate; Recording impact at end of pilot Work collaboratively with local SLT services and the care centre in South Yorkshire to promote the roll out of timely and accessible Voice Banking service Develop a “First contact” group at St Luke’s hospice drop-in, Sheffield (based on Butterwick hospice model in Middlesbrough), in collaboration with St Lukes and Carer Centre, using complimentary therapies etc.,

RCDA, OTs, SALTs RCDA, local SALTS, CC RCDA, CC, St Luke’s

2017 – March 2018 2017- 2018 2017 and ongoing

Engage people with MND and carers in co-producing and co-delivering our services

Develop, send out and analysis a consultation questionnaire for pwMND, to include in local action plan Design and deliver a regional consultation/Get Connected event to feed into local action plan, with B&Gs (to include pwMND and carers) Explore further opportunities for coproduction and codelivery as part of discrete project managed pieces of work

LDT (Association regional staff and Care Centres) LDT LDT

Jan – March 2017 May 2017 Ongoing

4d

Implement carers workplans

Increase number of carers grant awards Ensure carers access support offered by local providers, B&Gs etc.,

B&Gs, VDC, RCDA LDT, B&Gs, RCDA

Ongoing Ongoing

4e

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Explore ideas and opportunities to provide and/or increase bereavement support Consider development of past and current carers support groups (see RDP outcome 2, activity 2c)

LDT, RCDA, B&Gs RCDA, CC, B&Gs, Care volunteers

Ongoing Ongoing

Implement children and young people’s workplans

Increase the number of CYP grant awards Scope holding a number of family days locally, in response to findings of questionnaire with pwMND Consider supporting the care centre(s) in planning and delivering an event for CYP/families (see Manchester CC model) ??? To discuss Delivering a time limited project with National Citizenship Service (NCS) locally with a view to increasing the engagement of young people, to raise awareness around MND Scope needs of children and young people affected by MND locally, including mapping existing specialist CYP services we could collaborate/partner with

B&Gs, RCDA, VDC LDT,RCDA, VDC, B&Gs CC, LDT RCDA, VDC, CM RCDA, Care Centre, B&G, LDT

Ongoing ?? ?? September 2017 ??

4f

RDP Outcome 5: Working with others Map regional and local stakeholders and partners, analysing gaps, assessing effectiveness and prioritising involvement

Map provision of local services; Advocacy? Support for Carers? Support for children and young people? Benefits & Entitlements advice? Bereaved families?

RCDAs, RDM, CM

June – September 2017 (summer LDT)?

5a

5b

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Form and manage relationships, partnerships and alliances and work effectively with them

From above identify where partnerships and alliances might improve our reach and/or effectiveness and develop local relationships, e.g. work with (but not exclusively)

- Local hospices - Local children and young people services - Regional Neurological Alliances - Ian Pratt Foundation - Local bereavement services - Local MPs, elected memebers, those

driving forward policy - Local commissioners - Local National Citizenship Service (NCS)

(see RDP outcome 4, activity 4f above) Scope a West Yorkshire SIG/Network by piloting and evaluating 2 events in 2017/18 (in addition to existing York Partnership Meetings). Whilst collaborating with Leeds care centre the network would rotate a locality/community lead

All RCDA, CC, local HSCPs

Ongoing 2017 – March 2018

RDP Outcome 6: Raising awareness, promotion and marketing Promote and market our resources and services to pwMND/families/carers

Actively engage in MND Awareness month each year (June) sharing plans and promoting activities Promote the roll out of the national Welfare Benefits Project Roll out access to voice banking volunteers (subject to evaluation) B&Gs and Association Visitors/Care Volunteers to provide information and resources, including promotion of MND Connect (keeping supplies of up to date materials)

All All RCDAs B&Gs, AVs, RCDA, VDC

Annually Ongoing Ongoing Ongoing

6a

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Promote and market our online and other educational resources, events and activities to HSCPs

Through MDTs and links with HSCPs, promote the use of the Association’s:

- Professionals Forum - Online learning modules - Education Events - Branded presentational materials - Social Media tools/website

RCDA, MDTs, CCs

6b

Raise awareness of MND and promote the work of the MND Association with key regional stakeholders

Network mapping – key influences and targets? In line with 5a and 5b above

LDT July – September 2017 (summer LDT)

6c

Promote research opportunities for pwMND

Include research updates in MND study days /education events/B&G events,where appropriate Working with the care centres, actively promote research opportunities to pwMND through B&G newsletters and social media Ensure regional conferences include a research element/presentation

RCDA, B&G, CC RCDA, B&G, CC RDM

Ongoing Ongoing Annually

6d

Promote the MND Association research portfolio

Actively promote the MND register once it is fully developed amongst HSCPs and pwMND Use opportunities to promote the research we fund to potential funders/donors

RCDA All

TBC Ongoing

6e

Work alongside the national communications team to identify and respond to regional media opportunities

Ensure comms team receieve regular updates on the work delivered in the local action plan so they can publicise good news stories Suggest suitable personal stories Respond to other media opportunities on an ad-hoc basis as appropriate

All All All

Ongoing (Quarterly) Ongoing Ongoing

6f

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Work alongside the national conferencing team to deliver the regional conferences programme

Plan,deliver and promote the regional conferences; York in 2020 ensuring accessibility to pwMND and volunteers across this LDT area

RDM, Regional staff, B&Gs

2020 6g

RDP Outcome 7: Fundraising Develop fundraising groups Moving away from traditional model and looking

at Networks approach instead – using social media face book page for example Working with VDC on any opportunities as they arise, including with ‘individual fundraisers’, offering them continued support after they complete their activities/events. . Work with local Groups that are already developing – e.g. Hull, Scarborough, Bridlington and York . Priority to get fundraising volunteer in West Yorkshire and to work closely with South Yorkshire.

RF,VDC, branches & groups RF, VDC, B&Gs

Ongoing Ongoing

7a

Deliver regional legacy marketing events

Deliver one legacy event in the Northern region during the period of the current strategy. This won’t be in the Yorkshire & Humber region

RF, LDT

2019

7b

Deliver regional thank-you events Organising one thank you event in the Yorkshire & Humber area, for local B&Gs/volunteers, to celebrate local fundraising achievements Planning from quarter 3.

RF, LDT, B&Gs

2018

7c

Promote the fundraising portfolio

RF to ensure team are aware of the fund raising portfolio and how to be involved/promote

All

Ongoing

7d

Deliver fundraising workshops Consider delivering RF’s ‘Money For Nothing’ which looks at Gift Aid and quick wins for Fundraisers . RF to audit branches & groups at Get Connected regional consultation event, to inform content of workshops

RF, branches & groups RF, branches & groups

Ongoing May 2017

7e

Identify and refer potential opportunities for fundraising

Everyone to highlight opportunities

All

Ongoing

7f

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Promote joint working between B&Gs in relation to fundraising Support and strengthen groups of individual fundraisers to share good practice and ideas.

RF, branches & groups RF, branches & groups

Ongoing Ongoing

RDP Outcome 8: Fit for purpose regional systems and processes Use evidence and intelligence to inform and demonstrate the impact of our work

Use existing relevant tools to measure impact and improvement (e.g. Transforming MND Care Audit tool, Improving MND Care Survey, evaluations of project work etc.,)

All Ongoing 8a

Implement the diversity and equality strategy in the regions

Ensure the volunteer recruitment plan reflects the difference and diversity within the community that we serve – leading to the recruitment of more diverse volunteer teams

VDC, branches & groups

Ongoing 8b

Consult and engage with volunteers and key stakeholders

Ensure LDT meetings are accessible to those B&Gs and other volunteers who may wish to attend. Facilitate meetings with volunteers and HSCPs where helpful Engage stakeholders in the work of the local delivery team and in the local action plan in a range of ways including via questionnairres, regional Get Connected/consultation events, joint B&Gs events, existing structures etc.,

All Ongoing 8c

Work collaboratively to develop and deliver work

Establish task and finish groups and discrete project managed groups where needed to deliver on work Coordinate the delivery of the local action plan through the LDT and wider stakeholder consultation events

All All

Ongoing Ongoing

8d

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Embed project management

Ensure all regional staff receive training and support in Project Management methodology

All End 2017 8e

Agree and adopt a process for developing, monitoring and reviewing local action plans

Hold Local Delivery Team Meetings three times per year to reflect on priorities, assess and monitor progress, and regularly review. Ensure the Local Action Plan, including key action points and updates, are regularly shared with local B&Gs – using a variety of media including newsletters, social media, website, B&G Forum events, regional Get Connected events etc.,

RDM, All B&Gs

Four monthly Ongoing

8f

Ensure clarity of our regional care and support offer and customer journey

Develop and publicise the support offered to pw/pabMND, families/carers through websites, newsletters and social media Ensure that all pwMND who want to have contact with the relevant Branch/Group and/or have support of an AV/Care Volunteer either by f-to-f contact, telephone or email have access to this Actively promote membership of Asssociation to pwMND and carers locally

RCDA, B&Gs, AVs RCDA, B&Gs, AVs

Ongoing Ongoing

8g

Use a suite of standardised educational materials

Promote and use the emerging standardised/Association branded educational materials at events and conferences etc.,

RCDA Ongoing 8h

Contact Regional Delivery Manager: Tracey Thompson Telephone: 07541963528 Email: tracey.thompson@mndassociation.org