life without brain disease 2019 annual report€¦ · florey institute of neuroscience and mental...
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LIFE WITHOUT BRAIN DISEASE
2019 ANNUAL REPORT
WHO WE ARE
IMAGINE LIFE WITHOUT BRAIN DISEASEThat might seem far-fetched, but not to us. Since 1992, the American Brain Foundation has been committed to bringing researchers and donors together in the relentless pursuit of prevention, improved treatments, and cures for brain diseases and disorders. We know brain diseases are interconnected, and our innovative, whole-brain approach gives us an edge in understanding and combating them. We understand that when we cure one brain disease, we will cure many.
OUR GOALS• To find cures for brain diseases and disorders • To advance, support, and celebrate brain research • To bring researchers, patients, and caregivers together• To give hope to those affected by brain disease
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Brain diseases such as Alzheimer’s and Parkinson’s disease, epilepsy, stroke and migraine affect one in six Americans. These diseases are among the leading causes of disability in the world. Another 100 million Americans live with mental health disorders and chronic pain, both of which are associated with functional and structural changes within the brain. As a result, there are very few among us who are not directly or indirectly touched by brain disease.
This makes our mission to defeat brain disease and find cures all the more important.
We would like to extend a very warm and special thank you to the supporters and partners who made it possible for the American Brain Foundation to support 28 early-career researchers studying over 12 brain diseases in 2019. With your help, we awarded over 2.5 million dollars to brain research and established three new endowments supporting research and initiatives in collaboration with our partner the American Academy of Neurology.
Our unique and critical partnership with the American Academy of Neurology means we can tap into the largest brain trust of neurologists and brain disease researchers in the world. Our awards champion research across the whole brain, leading to groundbreaking discoveries that could lead to cures not just for one disease, but for many. Take our Scientific Breakthrough Awardee Dr. Jerry Mendell as an example. His groundbreaking gene therapy treatment for spinal muscular atrophy is curing the disease in babies and being used effectively to treat Duchenne’s muscular dystrophy in boys.
In our pursuit of cures, the American Brain Foundation built a research fund to find a biomarker for Lewy body dementia and launched the Brain Squad, our monthly donor program. We also honored other leaders in the fight against brain disease, including Jeffrey Lurie and Ann Romney for their contributions to advancements in autism and multiple sclerosis research.
Thank you for helping us advance our mission and making scientific breakthroughs for brain research possible. Your contributions have helped us continue our ambitious project to become the largest national charitable organization for the brain. With your help, we won’t have to imagine a world without brain disease—we’ll be able to live in one.
David Dodick, MD, FAAN Jane RansomBoard Chair Executive Director
MESSAGE FROM BOARD CHAIR AND EXECUTIVE DIRECTOR
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ALSSuma Babu, MBBS, MPH Massachusetts General HospitalPeter Creigh, MD University of Rochester Jennifer Marsella, MD University of Rochester
ALZHEIMER’S DISEASE, LEWY BODY DISEASES, AND OTHER DEMENTIASWilliam Mantyh, MDUniversity of California, San Francisco Bhavana Patel, MD University of Florida
COGNITIVE AGING AND AGE-RELATED MEMORY LOSSKimberly Albert, PhD Vanderbilt University Christian Camargo, MDUniversity of Miami Brice McConnell, MD, PhD University of Colorado Sanaz Sedaghat, PhD Northwestern University
EPILEPSYLisseth Burbano, MDFlorey Institute of Neuroscience and Mental Health Hiroki Nariai, MD University of California, Los Angeles
HEADACHE AND MIGRAINEFaisal Amin, MD, PhDRigshospitalet
MULTIPLE SCLEROSISOmar Al-Louzi, MDMassachusetts General Hospital Emily Harrington, MD, PhD Johns Hopkins University Ulrike Kaunzner, MD, PhD New York Presbyterian Hospital Ryan Schubert, MD University of California, San Francisco
NEUROMUSCULAR DISEASEKatharine Nicholson, MD Massachusetts General Hospital Davut Pehlivan, MD Baylor College of Medicine Shruti Raja, MDDuke University Reza Seyedsadjadi, MDMassachusetts General Hospital
PARKINSON’S DISEASEDavid Coughlin, MDUniversity of California, San Diego Anna Goodheart, MD Massachusetts General Hospital
STROKE AND VASCULAR DISEASESXiaoyan Jiang, PhD University of Pittsburg Kevin Keenan, MD University of California, San Francisco Juneyoung Lee, PhDThe University of Texas Health Science Center at Houston Sunil Sheth, MD The University of Texas Health Science Center at Houston
TOURETTE SYNDROMEWissam Georges Deeb, MD University of Florida Jennifer Vermilion, MDUniversity of Rochester
Funding World-Class ResearchThe American Brain Foundation funds research across the whole spectrum of brain diseases and disorders, investing in new generations of clinical neuro-scientists by identifying the best and brightest early-career scientific investigators and advancing their innovative research projects. In 2019, we invested over $2.4M in research projects led by 28 emerging researchers conducting investigations into brain diseases.
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“The clinical research training fellowship helped launch my career. Because of this fellowship, I learned how to bring new treatments forward to help my patients.... It is an honor to be part of the American Brain Foundation and to give back and support young investigators excited about research careers in neurology.”
The ALS Association
Alzheimer’s Association
American Academy of Neurology
American Epilepsy Society
American Heart Association
Consortium of MS Centers
Epilepsy Foundation of America
International Headache Society
The Mary E. Groff Charitable Trust
McKnight Brain Research Foundation
Muscle Study Group
Myasthenia Gravis Foundation
National Multiple Sclerosis Society
Parkinson’s Foundation
Society of Vascular and Interventional Neurology
Tourette Association of America
OUR PARTNERSThanks to our growing list of partners who share our vision of life without brain disease and help make these scholarships and awards possible.
The American Epilepsy Society and the Epilepsy Foundation of America have supported the American Brain Foundation’s Susan S. Spencer, MD Clinical Research Training Fellowship since 2010. The late Susan S. Spencer, MD, was a pioneer in epilepsy research and treatment and a past president of the American Epilepsy Society. The award was created to launch a new generation of top-notch, patient-focused epilepsy clinician scientists who will carry on the scientific and clinical excellence modeled by Dr. Spencer during her career.
“Partnerships like these allow us to pool resources and reduce administrative burden, ensuring that the majority of funding goes to the researchers doing the work. “ – Epilepsy Foundation
Merit Cudkowicz, MD, Chair of Neurology at Massachusetts General Hospital, is a celebrated researcher dedicated to the study and treatment of patients with neurodegenerative disorders, including ALS. She received a Next Generation Research Grant in 1996 and has since become a member of the American Brain Foundation’s Research Advisory Committee.
RESEARCHER PROFILEOUR PARTNERS
PARTNER PROFILE
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Financial Highlights
Our audited financial statements are available on our website or by request.
Functional Expenses:Programming $3,537,320Fundraising $394,689Operations $665,762
Program Expenses:Awards $308,122Grants $2,540,348Public Awareness $688,850
Grant Expense by Disease
ALS
COGNITIVE AGING AND AGE-RELATED MEMORY LOSS
EPILEPSY
STROKE AND VASCULAR DISEASES
HEADACHE AND MIGRAINE
PARKINSON’S DISEASE
NEUROMUSCULAR DISEASE AND
DISORDERS
TOURETTESYNDROME MULTIPLE
SCLEROSIS
14%
7%
7%
12%
6%
9%
17%
4% 7%
17%
ALZHEIMER’S DISEASE, LEWY BODY DISEASES, AND OTHER DEMENTIAS
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IMPACT BY THE NUMBERS
Active grant dollars for research in 2019.
$2,365,347Over 250 researchers have received scholarships and funding from the American Brain Foundation.
250Over $30 million has been granted for Next Generation Research Grants.
$30 MIL.Active research projects
28More than 85% of our researchers have gone on to secure funding from the NIH and other entities.
85%
$787,219
$1,395,664
$4,467,308
$3,251,402
$3,853,425
$13,755,018
Total funds raised 2015-2019
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New Endowments Gifts from generous donors made it possible for the American Brain Foundation to establish three new endowed funds:
The Joseph B. Green Endowment Funds clinical research training scholarships
The Cheryl A. Jay Endowment Supports the American Academy of Neurology’s new lectureship in health care disparities
The Ted M. Burns Endowment Underwrites a new American Brain Foundation award for humanism in neurology
In order to maintain the idealism and compassion of neurology, humanism must remain primary as practices evolve. The Ted M. Burns Humanism in Neurology Award acknowledges the influence of the most benevolent and innovative in the field. The award aims to celebrate neurologists whose work embodies humanism–in patient care, education, advocacy, and everyday encounters. By recognizing outstanding neurologists, the award aims to inspire others to improve healthcare delivery and the lives of their colleagues and patients.
This new award is named in honor of Ted M. Burns, MD, a visionary in fostering trainees and colleagues and for foreseeing novel mechanisms to make the full scope of neurology accessible locally and abroad.
He has mastered the delivery of compassionate, patient-centered care, and has a track record of calling attention to and addressing disingenuous practices in medicine and inequalities in care.
Dr. Burns is currently the Harrison Distinguished Teaching Professor in the Department of Neurology at the University of Virginia. He has served as the director of UVA’s residency and clinical neurophysiology training programs, among other positions, and his skills have been recognized at UVA on multiple occasions. Dr. Burns has raised his voice to lobby professional organizations, pharmaceutical companies, the FDA, and the United States Congress on patients’ behalf. Dr. Burns is also a beloved friend and mentor to many, and his honest and kind approach to patient care does not go unnoticed.
Thank you to the generous donors who helped establish this new endowment.
TED M. BURNS HUMANISM IN NEUROLOGY AWARD
NEW ENDOWMENTS
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Ted M. Burns Endowment DonorsAnthony A. Amato, MD, FAAN
Rowena Atzenweiler
Richard J. Barohn, MD, FAAN
Matthew J. Barrett, MD
Michael G. Benatar, MD, FAAN
Margaret Bettin
Thomas Brannagan
Dennis Burns
Jeffrey M. Burns, MD
Mark and Sara Burns
Roger L. Burns
Ann Camac, MD
Linda Carson
Micaela T. Chatman, MD
Stacey Clardy, MD, PhD
The Copaken Family
Marla and Stan Craven
Mr. Jason Crowell
Eugene Sorets and Merit E. Cudkowicz, MD, MSc
Steven T. DeKosky, MD, FACP, FANA, FAAN
Mazen M. Dimachkie, MD, FAAN
Stephen N. Donahue, MD
William Elias
Matthew Elliott
Jenny and Jef Field
Myla Goldman, MD, MSc, FAAN
Howard P. Goodkin, MD, PhD, FAAN
Jennifer Grillo
Gary S. Gronseth, MD, FAAN
Paul Gross
Marsha D. and Robert A. Gross, MD, PhD, FAAN
Amanda C. Guidon, MD
Jeffrey Guptill, MD, FAAN
Laurie Gutmann, MD, FAAN
Ludwig Gutmann, MD, FAAN
Amy K. Guzik, MD
Kelly G. Gwathmey, MD
Allison L. Harding
Michael K. Hehir, II, MD
Doreen Ho, MD
Katherine B. Hoffman
Caitlin M. Jenkins
Karen C. Johnston, MD, MSc
Vern C. Juel, MD, FAAN
Henry J. Kaminski, MD, FAAN
Chafic Y. Karam, MD
Dan Kloster
Jay and Linda Knox
Noah A. Kolb, MD
Lee I. Kubersky, MD
Linda Kusner
Margaret Lamothe
Ronald and Melissa Langstaff
Nancy Law
Ikjae Lee, MD
Kenneth V. Leone, MD
Yuebing Li, MD, PhD
Ms. Stephanie Lowenhaupt
Janice M. Massey, MD, FAAN and Edward W. Massey, MD
Michelle L. Mauermann, MD
Nikolaus McFarland, MD, PhD
Alexander J. Menze, MD
Ms. Bridget Moss, NP
Tahseen Mozaffar, MD, FAAN
Lora Murray
Carol A. and Ted J. Murray, DDS
Marion Nickel
Donald B. Nolan, MD
Alexia Oetken
Karen L. Roos, MD, FAAN and Robert M. Pascuzzi, MD, FAAN
Lawrence H. Phillips, II, MD, FAAN
James R. Poston, MD
Glen Quackenbush
Jeffrey B. Ratliff, MD
Shane and Melinda Rau
Neil A. Reddy
Marcus C. Rice, MD, FAAN
Karen Roberts
Ken and Jane Rodney
Denise M. Rossi
Michael Rubenstein, MD
Robert L. Ruff, MD, PhD, FAAN
James A. Russell, DO, FAAN
Katherine Ruzhansky, MD
Donald Sanders
Chad Saunders, MD
Samuel A. Schulhof
Michael L. Schumann
Reza Seyedsadjadi
Aziz I. Shaibani, MD, FAAN
Nicholas J. Silvestri, MD
Gordon Smith, MD, FAAN
Nina J. Solenski, MD
Andrew M. Southerland, MD
Tredway Spratley
Stephen Stechschulte
Joanna Suski, MD
Russell H. Swerdlow, MD
Lauren S. Talman
Samuel A. Taylor, Jr., MD
Joyce Thompson
David E. Traul, MD, PhD
Paul T. Twydell, DO
Wendy A. Waldman, MD
Hua Wang, MD, PhD
Melanie D. Ward, MD
David Wentz
Robert Wingert
Gil I. Wolfe, MD, FAAN
G. F. Wooten, MD, FAAN
Donna T. Chen and Bradford B. Worrall, MD, MSc, FAAN
Gary D. Zuck
Randinne Zuck
Potamkin Prize for Research in Pick’s, Alzheimer’s, and Related DiseasesFunded by the American Brain Foundation through the philanthropy of the Potamkin Family
Randall J. Bateman, MD Washington University School of Medicine
The Potamkin Prize is the highest honor in Alzheimer’s research that recognizes premier scientific research in Alzheimer’s disease and related dementias. The 2019 prize was awarded to Randall J. Bateman, MD, of Washington University School of Medicine in St. Louis, MO. Dr. Bateman was selected for his many contributions to the understanding of this brain disease, which include developing a blood test that detects the earliest stages of Alzheimer’s and more.
Sheila Essey Award: An Award for ALS ResearchFunded by the American Brain Foundation through the philanthropy of the Essey Family
Aaron Gitler, PhD Stanford University School of Medicine
The Sheila Essey Award recognizes an individual who has made significant research contributions in the search for the cause, prevention of, and cure for ALS. The 2019 recipient Aaron Gitler, PhD, of the Stanford University School of Medicine, was recognized for his research on a protein called TPD-43. These proteins are thought to play a major role in ALS when they clump together.
AMERICAN ACADEMY OF NEUROLOGY SCIENTIFIC AWARDS
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Bruce S. Schoenberg International Award in Neuroepidemiology
Dreifuss-Penry Epilepsy Award
Founders Award
Harold Wolff-John Graham: An Award for Headache/Facial Pain Research
Irwin Schatz Award for Autonomic Disorders
John Stolk Award in Movement Disorders for Young Investigators
Neuro-oncology Investigator Award
Neuro-oncology Scientific Award
Norman Geschwind Prize in Behavioral Neurology
Michael S. Pessin Stroke Leadership Prize
Mitchell B. Max Award for Neuropathic Pain
Movement Disorders Research Award
Neuroendocrine Research Award
Sleep Science Award
S. Weir Mitchell Award
Wayne A. Hening Sleep Medicine Investigator Award
Mridha Spirit of Neurology Humanitarian AwardSponsored by the American Brain Foundation and funded through the philanthropy of the Mridha Family
James H. Bower, MD
Serving Humanity with Dedication, Kindness, and CareDr. Jim Bower truly epitomizes the ideals of the Mridha Spirit of Neurology Award. He has served populations in Ethiopia, Egypt, Senegal, Nigeria, and Tanzania with compassion, integrity, and altruism for almost twenty years and led the way in supporting neurologic resources and educational needs in sub-Saharan Africa.
Association of Indian Neurologists in America Lifetime Achievement AwardSponsored by the American Brain Foundation
Ram Ayyar, MD, FAAN
An Invaluable Resource and Mentor to Neurologists A Professor of Neurology at the University of Miami, Dr. Ram Ayyar is internationally recognized as a clinician, teacher, researcher, and leader in the field of neuromuscular medicine and electrophysiology. He has over 100 peer-reviewed publications and has presented on neuromuscular disease for audiences around the world. Dr. Ayyar has also been recognized for his excellence in teaching by both Wayne State University and the University of Miami.
LIFETIME AND HUMANITARIAN AWARDS
Additional Scientific AwardsAmerican Academy of Neurology Awards funded by the American Brain Foundation
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Ann Romney Public Leadership in Neurology Award
An Ambassador for Brain Health
We honored Ann Romney, the former First Lady of Massachusetts, for her leadership in the fight to defeat multiple sclerosis (MS) and all neurologic diseases. Through her inspiring book In This Together, Romney shared her personal experience with MS. She is an ambassador for the health of the whole brain and spearheaded pathbreaking MS research by helping establish the Ann Romney Center for Neurologic Diseases at the Brigham & Women’s Hospital.
Jeffrey Lurie Commitment to Cures Award
Raising Awareness and Philanthropy for Autism
An accomplished movie producer and the owner of the Philadelphia Eagles, Jeffrey Lurie knows autism intimately after having grown up with a brother with the disorder. His personal philanthropy has directed millions of dollars toward autism research and awareness. Lurie also created the Eagles Autism Challenge that featured Philadelphia Eagles players, alumni, coaches, executives, cheerleaders, and mascot.
Edgar J. Kenton III, MD, FAAN, FAHA American Brain Foundation Board Chair’s Award
Champion of Philanthropy and Diversity
The American Brain Foundation honored Dr. Kenton posthumously for being an invaluable member of the Board and a champion of philanthropy and diversity in the field of neurology. He was a distinguished neurologist, longtime supporter of the Foundation’s research mission, and leadership donor.
Jerry Mendell, MD Scientific Breakthrough Award
Pathbreaker in Spinal Muscular Atrophy Research
The American Brain Foundation believes that curing one brain disease means curing many. At our Commitment to Cures gala, we honored Dr. Mendell with the Scientific Breakthrough Award for his gene therapy research for spinal muscular atrophy. His work is not only curing the disease in babies, but it is also being used effectively in treating boys with Duchenne’s muscular dystrophy.
2019 HONOREES
COMMITMENT TO
CURESWe celebrated advancements in brain research, brought the neurologic community together, and honored those who have made contributions to our cause at our annual event, Commitment to Cures. Thank you to those who attended this incredible night and donated. With your help, we raised $387,835. Here are those we honored at the event.
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Bike Helmet Giveaway | Minneapolis, MN, June 2019The American Brain Foundation helped distribute 1,000 bike helmets to families at the American Academy of Neurology’s event in June. Families stopping by the Foundation’s tent played a giant version of Connect 4, won prizes, and donated in support of brain disease research.
Brain Health Fair | Philadelphia, PA, April 2019The American Brain Foundation participated in the American Academy of Neurology’s annual Brain Health Fair. The Brain Health Fair is a free event where neurology patients, caregivers, and members of the public interested in brain health and the science of the brain can connect with experts to learn about the brain.
“Robin’s Wish” Screening | Mountain View, CA, November 2019The American Brain Foundation held a private screening of the forthcoming documentary “Robin’s Wish” at the Mountain View Center for the Performing Arts. The film deepened our understanding of Robin Williams as a beautiful human being, detailed his head-on collision with Lewy body dementia and stressed the importance of brain disease research. Board members Susan Schneider Williams and David Eagleman, PhD, introduced 80 people to the American Brain Foundation in their remarks following the screening. The event was graciously underwritten by the Hand Foundation.
Raising Awareness about Brain Health
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“The American Brain Foundation is unique in its scope, vision, leadership, and its emphasis on training and funding the next generation of neuroscientists.”
– David Anderson, MD, FAAN
Recurring Gifts Make a DifferenceThe American Brain Foundation launched the Brain Squad, a special community of dedicated monthly donors. The Brain Squad provides critical sustaining support that keeps researchers in the lab working to identify causes, improve treatments, and discover cures for brain diseases and disorders—creating hope for patients and their loved ones.
Monthly donors are the backbone of the American Brain Foundation. Their ongoing support allows us to spend less time fundraising and more time finding a cure for brain disease.
Join the community!
It’s Affordable. Give at the level that fits your budget.It’s Easy. Your gift processes automatically each month from your checking account or credit card.It’s Impactful. Cure one, cure many. Our research spans the spectrum of brain disease.It’s Rewarding. Make a difference in advancing treatments and diagnoses.
Visit americanbrainfoundation.org/brainsquad
Thank you to our incredible donors for your continued support which makes what we do at the American Brain Foundation possible. You are the heart of our organization, and your help gets us one step closer to a world without brain disease.
DONOR SPOTLIGHT
TO OUR DONORS
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Rowland Circle Members
$1,000,000+Rita Green, PhD* and Joseph B. Green, MD, FAAN*
$50,000 - $99,999The Essey Family *
The Potamkin Family
$25,000 - $49,999Don and Julie Kawahigashi
Jill Kawahigashi
Mark Kawahigashi
Theodore and Dana Kawahigashi
Edgar J. Kenton, III, MD, FAAN *
John S. and Leigh P. Middleton
John E. Taylor *
$10,000-$24,999Robert H. Ackerman, MD, FAAN*
James Essey
Richard P. Essey*
Ralph F. Józefowicz, MD, FAAN
Sharon Klein
Michael W. Michelson
Roger Pick and Mary-Louise Warren Pick
Patti Klein, MD and Martin M. Shenkman, CPA, MBA, PFS, AEP, JD
David B. Watson, MD
$5,000 - $9,999Nicola and Angelo M. Alves, MD, PhD, FAAN
Martha and David C. Anderson, MD, FAAN
Paula Arrojo and Franco Finstad
Jonathan and Betsy Blattmachr
The Copaken Family
Kevin P. and Linda L. Goodno
Barbara S. Koppel, MD, FAAN and Timothy A. Pedley, MD, FAAN
Kelly and Jason Perlewitz
Charles D. and Catherine M. Rydell, CAE
Aziz I. Shaibani, MD, FAAN
$2,500 - $4,999Deganit Armon, PhD and Carmel Armon, MD, FAAN
Jeffrey Ehren and Angela M. Babb, CAE
Gabrielle and Christopher Becker
Michael G. Benatar, MD, FAAN
Wei Brian
Peter A. Calabresi, MD, FAAN
William C. Davison, MD, FAAN
David W. Dodick, MD, FACP, FRCP (C), FAAN
David Eagleman, PhD
Dean Flanagan
Howard P. Goodkin, MD, PhD, FAAN
Claudia C. Robertson, MD and J. Clay Goodman, MD, FAAN
Rosalyne H. and Robert C. Griggs, MD, FAAN
Gary S. Gronseth, MD, FAAN
Laurie Gutmann, MD, FAAN
Deborah Hall, MD, PhD, FAAN
Anne and S. Matthews Hamilton
Andrew Imholte
Nicholas E. Johnson, MD, FAAN
Adele and Francis I. Kittredge, Jr., MD, FAAN
Ira Lubert
Nancy L. Mueller, MD
Lawrence H. Phillips, II, MD, FAAN
Laleh and Chris J. Prusinski, DO, FAHA, FAAN
Jane and John Ransom
Maisha T. Robinson, MD
Kathleen and Jeffrey Rosenfeld, MD, PhD, FAAN
Natalia S. Rost, MD, MPH, FAAN, FAHA
Shantanu Roychowdhury
Ralph L. Sacco, MD, MS, FAAN, FAHA
Fred R. Salit
Susan Schneider Williams
Joseph I. Sirven, MD, FAAN
A. Gordon Smith, MD, FAAN
Laurel B. and James C. Stevens, MD, FAAN
Zack Tedoff
Ann H. Tilton, MD, FAAN
Sherilynne and Douglas Will, MD
Robert R. Young, MD, FAAN
$1,000 - $2,499Anonymous (5)
Elaine and James R. Allen, MD
Orly Avitzur, MD, FAAN, MBA
Richard J. Barohn, MD, FAAN
Thomas P. Bleck, MD, FAAN
David Boscarino
Dennis Burns
Ellyn C. Bush, MD
Elaine W. Camarda
David L. Camenga, MD, FAAN
Ellen and Terrence L. Cascino, MD, FAAN
Jesse M. Cedarbaum, MD, FAAN
Stacey Clardy, MD, PhD
Suzanne Cohn
Steven and Linda Copp
Lisa M. DeAngelis, MD, FAAN and Peter Okin, MD
Bryan X. DeSouza, MD, FAAN
Stephen N. Donahue, MD
Catherine and Dana Elliott
Charlotte and Stanley Fahn, MD, FAAN
Eoin P. Flanagan
Charles C. Flippen, II, MD, FAAN
Scott E. and Deborah I. Friedman, MD, FAAN, MPH, FAHS
Joseph H. Friedman, MD, FAAN
Erich W. Garland, MD
Sharon Gold
James N. Goldenberg, MD
Christine Gougar
Madeleine M. Grigg Damberger, MD
Marsha D. and Robert A. Gross, MD, PhD, FAAN
Ludwig Gutmann, MD, FAAN
Kelly G. Gwathmey, MD
Mark Hallett, MD, FAAN
Margaret E. and John M. Hannam, MD
Cynthia L. Harden, MD
Robert Hayes
Michael K. Hehir, II, MD
Margie and Jeff Honickman
Linda M. Famiglio, MD and Jonathan P. Hosey, MD, FAAN
Janet L. Jankowiak, MD
Frances E. Jensen, MD, FACP, FAAN
Karen C. Johnston, MD, MSc
Chafic Y. Karam, MD
Maria Kreppel
Lynda Krick
Sheng-Han Kuo, MD
Annette M. Langer-Gould, MD, PhD
Kathy and Bruce Levi
Paton J. Lewis
Madigan Linnane
Kavin Malhotra, MD
Michael Marron
Janice M. Massey, MD, FAAN and Edward W. Massey, MD, FAAN
Charlotte L. Max
Luanne Metz, MD
Ellen S. and Aaron E. Miller, MD, FAAN
Carol A. and Ted J. Murray, DDS
Ahsan M. Naduvil Valappil, MD
Sandra F. Olson, MD, FAAN
Alison M. Pack, MD
Karen L. Roos, MD, FAAN and Robert M. Pascuzzi, MD, FAAN
Jeffrey and Marsha Perelman
Lisa Perla
Christine E. and Ben Phelps
James R. Poston, MD
Oscar E. Pradilla
Gil D. Rabinovici, MD, FAAN
Jane and J. Carroll Ramseyer, MD, FAAN
Jeffrey B. Ratliff, MD
Pavle Repovic, MD, PhD
Susan and Kurt Rodmyre
Kyle Roeckeman
Wendy and Paul Rosen
Robert L. Ruff, MD, PhD, FAAN
Donald Sanders
Nitin Banwar, MD and Heidi B. Schwarz, MD, FAAN
Lisa M. Shulman, MD, FAAN
Lily and Richard Siegel, MD
Marylou V. Solbrig, MD
Kenneth W. Sommerville, MD, FAAN
Andrew M. Southerland, MD
Stephen Stechschulte
Matthew B. Stern and Janet Ries Stern
Joanna Suski, MD
Tena Taormina
Samuel A. Taylor, Jr., MD
Joyce Thompson
Hua Wang, MD, PhD
Melanie D. Ward, MD
Alejandra K. and Michael F. Waters, MD, PhD, FAAN, FAHA
David Wentz
Nick Wiseman
Donna T. Chen and Bradford B. Worrall, MD, MSc, FAAN
Pamela W. and George K. York, III, MD, FAAN
$500 - $999Bassel W. Abou-Khalil, MD, FAAN
Anthony A. Amato, MD, FAAN
Brenda Banwell, MD, FAAN
Steven R. Beck
Sarah M. Benish, MD, FAAN
Jeremy Benoit
Anne Blay
Cynthia Bodkin, MD, FAAN
Thomas Brannagan
Jeffrey M. Burns, MD
Mark and Sara Burns
Virginia Caldwell
Linda Carson
Teresa and Gregory D. Cascino, MD, FAAN
Yoon-Hee Cha, MD
Seemant Chaturvedi, MD, FAAN, FAHA
Jerome H. Chin, MD, MPH, PhD, FAAN
Nancy J. and Robert Coni, DO
Aline and Joshua Copp
Susan and Eric Corcoran
Maria Corona
Marla and Stan Craven
Eugene Sorets and Merit E. Cudkowicz, MD, MSc
Shannon and Timothy Demant
Rajiv U. and Upinder K. Dhand, MD, FAAN
Tom Erwin
Glen R. Finney, MD
Katherine Francescon
Julio and Sabrina Gallud
Christopher Glisson, DO
Alan Greene
James C. Grotta, MD, FAAN
Heather Grutzius
Jeffrey Guptill, MD, FAAN
Jonathan Hicks
Patricia Ramsay and Steven H. Horowitz, MD, FAAN
Renee Houlehan
Nicholas Intrieri
Richard S. Isaacson, MD, FAAN
Deborah Iversen
Erin Jackson
Gregory A. Jicha, MD, PhD
Elaine C. Jones, MD, FAAN
Henry J. Kaminski, MD, FAAN
Brett M. Kissela, MD, MS, FAAN
Joshua Kleiman
Individual Giving
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Janice E. Knoefel, MD
David S. Knopman, MD, FAAN
Noah A. Kolb, MD
Anita Koshy, MD
Linda Kusner
Kaitlyn Labich
Frederick G. Langendorf, MD
Ronald and Melissa Langstaff
Nancy Law
Ikjae Lee, MD
Yuebing Li, MD, PhD
Donald S. Marks, MD
Michelle L. Mauermann, MD
Jeffrey C. McClean, II, MD
Jennifer McVige, MD
Alexander J. Menze, MD
Thomas Meyers
John C. Morris, MD, FAAN
Mark J. Morrow, MD, FAAN
Nabil A. Moufarrej, MD
Stephen E. Nadeau, MD, FAAN
John G. Nutt, MD, FAAN
Daniel Ontaneda, MD
Toni Pearson, MD
Martin D. Penry
Amanda L. Piquet, MD
Marcus C. Rice, MD, FAAN
Marc Richter
Tony and Mia Robertson
Denise M. Rossi
James A. Russell, DO, FAAN
Linda M. Selwa, MD, FAAN and James F. Selwa, MD, MBA
Reza Seyedsadjadi
Nilay R. Shah, MD, FAAN
Nicholas J. Silvestri, MD
Lynn M. and Matthew E. Simmons, MD
Tredway Spratley
Michael Sweigart
James Tackett
Brian A. Trimble, MD
Luis A. Villa Lopez, MD
Mary Welch, MD
Howard Wettan
Roy Wiley
Gil I. Wolfe, MD, FAAN
Deborah Woodard
Suzanne Yager
Ji-Yeoun Yoo, MD
Dario M. Zagar, MD
Blas M. Zelaya, MD
$250 -$499Matthew and Emily Abitbol
Isaac Annan, MD
Charlotte and Steve Bahn
Matthew J. Barrett, MD
Arthur and Terry Bartolozzi
Steven Baumgartner
Charles P. Benedict, MD
Kenneth H. Berger
Michael Berger
Cindy Bergethon, MD and Peter R. Bergethon, MD
Judith and James L. Bernat, MD, FAAN
Christopher T. Bever, Jr., MD, MBA, FAAN
Jennifer Bickel, MD
David Binswanger
Betsy Bjelde
Judy Blume
Katie Boyle
Deborah Y. Bradshaw, MD
Lauren Brill
James and Katherine Brogan
Margaret E. Burnett, MD
Roger L. Burns
Sandra Burns
Maria Cannady
Micaela T. Chatman, MD
Tanuja Chitnis, MD
Kathleen Cho
Lukas T. Clark, MD
Jacquelyn R. Cofield
Anna Maria B. Craun, RN, MBA
Jason Crowell
Heather Cruz
Marylou D’Anna
Heather Dawley
James De Meules
Richard Dilsheimer
Robert DiMantova
Angela Dycus
Wilma J. Eaton *
Deanna Ekholm
William Elias
Matthew Elliott
Michelle Fabian, MD
Judith Falloon
Farrell Farhoudi
Karin R. Swartz, MD and Dominic B. Fee, MD
Carly Ferry
Jaimie Field
Lee and Jeff Forgosh
Barbara Forster
Miriam L. Freimer, MD
Brad French
Kris Fridgen
Erica Frontiero
Felicia Gliksman, DO
Leila Goldberg
Myla Goldman, MD, MSc, FAAN
Andrew D. Goodman, MD, FAAN
Nathan and Melissa Gray
Launa Greer
Kathy and Alan Hammerand
Katie M. and Timothy Hansley
H. Huntley Hardison, MD
Erin Harris
Ameer Hassan, DO
Ernesto Henriquez
Doreen Ho, MD
Jo Ann M. Hoeppner
Laurence Huang
Kenneth R. Huff, MD
Damon Hughes
Oje U. Imoukhuede, MD
Lindsey Johnson, MD
Vern C. Juel, MD, FAAN
Nurit Kahane Haase
Karen Kasmirski
Randy Kershner
Michael D. Kessler
Christi Kokaisel
Sai S. Kolla, MD
Marguerite Kraftson
Lee I. Kubersky, MD
Doris Kung, DO, FAAN
Margaret Lacalle
Ping Lan
Karen A. LeComte, MD
Alex Levin
Steven L. Lewis, MD, FAAN
Christopher Lock, MD, PhD
Michelle L. Macartney
Samuel H. Markind, MD
Bridget McDonald
Daniel L. Menkes, MD, FAAN
Suzanne Miller
Tahseen Mozaffar, MD, FAAN
Robyn Murray-Josd
Kathryn Nichol, PhD
Donald B. Nolan, MD
Sarah Olmanson
Daniel Orozco, MD
Rebecca Penfold Murray and Michael Murray
Jerome B. Posner, MD, FAAN
Sharon Quimby
George Rall
Lynn M. Rankin, MD
Richard Rappaport
Todd A. Rave, MD
Kinshuk Sahaya, MD
Sioux Saunders
Clarence and Barbara Schutt
Amy Schwartz
Mallie Scott
Eric J. Seachrist
Jane and Stephen M. Sergay, MB BCh, FAAN
Vicki Shanker, MD, FAAN
Howard Shecter
Denise Shouse
Steven Shur
Michael H. Silber, MB, ChB, FAAN
Lisa G. Smith
Babette and Harvey Snyder
David Solomon
Thomas Sperring
Dusan Stefoski, MD, FAAN
Jane and Austin J. Sumner, MD, FAAN
Gretchen Thielen
Sharon Thomas Parrott
Hope Thomas
Caitlin Tribelhorn
Mardi Morard Trimble
Marie and Jon Tuhy
Paul T. Twydell, DO
Michelle Uher
David K. Urion, MD, FAAN
Thomas R. Vidic, MD, FAAN
Wendy Vokaty
Katherine K. Wang, MD
Maggie W. Waung, MD, PhD
Andrea and Cameron Weiss
Kirk C. Wilhelmsen, MD, PhD
Michael R. Wilson, MD
Jerry Wind and Barbara Eberlein
George F. Wittenberg, MD, PhD, FASNR and Alyson Bonavoglia
Jinmei Woan, MD
Michael L. Wynn, DO, FAAN
Robyn G. Young, MD
Hui-Juan Zhang, MD, PhD
*donor is deceased
Our awards champion research across the whole brain, leading to groundbreaking discoveries that could lead to cures not just for one disease, but for many.
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$1,000,000+American Academy of Neurology
$100,000 - $999,999The ALS AssociationAnonymousMcKnight Brain Research Foundation
$50,000 - $99,999Alzheimer’s AssociationPotamkin Advised Fund of the Aspen Community FoundationMuscle Study GroupInternational Headache SocietyMyasthenia Gravis Foundation of America Inc.Parkinson’s FoundationSociety of Vascular & Interventional NeurologyTourette Association of America
$25,000 - $49,999American Epilepsy SocietyEpilepsy Foundation of America
The Mary Elizabeth Groff Charitable TrustMuscular Dystrophy Association
$10,000-$24,999Alexandria Real Estate Equities, IncLurie Family FoundationM&T Charitable FoundationThe Nancy Lurie Marks Family FoundationPhiladelphia EaglesProskauerRunnin’ for Research, Inc.
$5,000 - $9,999Deloitte Tax LLPDrexel University College of MedicineFredrikson & Byron, P.A.Goldman SachsThe HAND FoundationThe Rainwater Charitable FoundationThomas Jefferson University, Department of Neurology
$2,500 - $4,999Becker Charitable FundCelia Gow Calabresi TrustCommunity Foundation of Greater Fort Wayne, Inc.The Hamilton Family FoundationJust Media, Inc.Peapack-Gladstone Bank
$1,000 - $2,499BiogenChildren’s Hospital of PhiladelphiaContemporary Staffing SolutionsDrexel Neurosciences InstituteEvans Insulation CompanyGeisingerGold Country Enterprises, LLCJani-Dhuna FoundationJEP Management, Inc.Johnson & Johnson Family of CompaniesNBK FoundationNorth American Neurophthalmology Society
NYU Langone HealthThe Ohio State University Wexner Medical CenterPennsylvania Neurological SocietyPromptcare CompaniesThe Saramar Charitable FundSolve Technologies, Inc.University of California, IrvineUniversity of Maryland School of MedicineUniversity of New Mexico Department of NeurologyUniversity of Pittsburgh Medical Center Department of NeurologyVirginia Commonwealth University Department of NeurologyWashington University School of MedicineThe Weichert Palestrini TeamWest Virginia University Department of Neurology
Organizational Giving
Legacy DonorsThe American Brain Foundation proudly recognizes donors who have included the Foundation in their legacy plans.
Anonymous (2)Robert H. Ackerman, MD, FAAN *Elaine and James R. Allen, MDPatricia Smith Cook, MD, FAANJane A. Daroff, DCSW, LISW and Robert B. Daroff, MD, FAANCynthia E. and Jasper R. Daube, MD, FAANEdward David, MD, JDRobert* and Sandra K. DavisSusan C. Dunlop, MBA, CFRE and John R. DunlopRichard P. Essey *
Nordeli Estronza, MDDina Sewell and Michael F. Finkel, MD, FAANGilles GallantClaudia C. Robertson, MD and J. Clay Goodman, MD, FAANRita Green, PhD* and Joseph B. Green, MD, FAAN*Sheilah and Elliott G. Gross, MD, FAANKathryn Hart, RNDaniel B. Hier, MD, FAAN, MBAJanet L. Jankowiak, MDCheryl A. Jay, MD *
Debbie and Robert T. Leshner, MD, FAANNicole and Eric LieblerBess and Arthur Nicholas*Sandra and Ronald Olson*Rimma and Jay H. Rosenberg, MD, FAANEsther E. and Lewis P. Rowland, MD, FAAN *Charles D. and Catherine M. Rydell, CAEKapil D. Sethi, MD, FRCP (UK), FAANJane and Bruce Sigsbee, MD, FAANDee E. Silver, MDDeborah R. Syna, MD
John E. Taylor *Lynne P. Taylor, MD, FAAN and Bruce Bagamery, PhDDebra S. and Raymond W. Valpey, MD* deceased
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DONOR-ADVISED FUNDS SPOTLIGHT
Martin and Patti Shenkman
“We opened our donor-advised fund with the American Brain Foundation several years ago because we firmly support the mission of the Foundation to help cure brain disease. The Foundation’s tagline, ‘Cure One, Cure Many,’ resonates with us in that there are so many common links between different brain diseases.
We believe that supporting brain research through the Foundation leverages our other donations to brain research, since every project we support is part of a larger effort to cure brain disease generally.”
– Martin and Patti Shenkman
Alliance FundAnonymous Fund Association of Indian Neurologists in America Lifetime Achievement Award FundBaumel-Eisner Alzheimer’s/Dementia Research FundBruce S. Schoenberg International Award in Neuroepidemiology FundCalvin L. Calhoun, Sr., MD, Diversity Research FundThe Carter Virginia Copp Memorial FundThe Cheryl A. Jay Endowment
Debasish and Chinu Mridha Spirit of Neurology Award FundDreifuss-Penry Epilepsy Award FundGeneral Research FundGeorge C. Cotzias Lecture FundHarold Wolff-John Graham Award FundJon Stolk Award EndowmentThe Joseph B. Green EndowmentKenneth M. Viste, Jr., MD Patient Advocate of the Year Award Fund
Michael S. Pessin and Lawrence M. Brass Stroke Research FundMitchell Max Neuropathic Pain FundMovement Disorders Research Award FundMultiple Sclerosis FundNeuro-Infectious Disease Young Investigators’ Research FundNeuro-Oncology Research Award FundNeuro-Oncology Scientific Award FundNorman Geschwind Prize in Behavioral Neurology Fund
Raymond Adams Fund for Clinical ResearchSidney Carter Award in Child Neurology FundSleep Science Award FundSusan S. Spencer Epilepsy Research FundThe Ted M. Burns Humanism in Neurology Award FundWayne A. Hening Sleep Medicine Investigator Award Fund
Endowments and Donor-Advised Funds
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Board of Directors
Jacqueline French, MD, FAAN
Dr. Jacqueline French is Chief Medical and Innovation Officer of the national Epilepsy Foundation (Maryland); a professor in the Department of Neurology at NYU Grossman School of Medicine; and co-director of epilepsy research and clinical trials at the NYU Langone Health Comprehensive Epilepsy Center. She is also the president of the Epilepsy Study Consortium.
James Erwin
Jimmy Erwin is Executive Vice President of Chicago Title Commercial. Erwin and his wife, Pam, co-founded the Will Erwin Headache Research Foundation in honor of their son, Will, who suffered from debilitating cluster headaches until age 28 when he took his own life due to the excruciating pain. WEHRF is dedicated to finding a cure for headaches and providing relief for those who experience them.
Frances E. Jensen, MD, FACP, FAAN
Dr. Frances E. Jensen is a Professor of Neurology, Chair of Neurology, and Co-Director of Penn Translational Neuroscience Center in the University of Pennsylvania’s Perelman School of Medicine where she focuses on epilepsy and stroke and how epilepsy interacts with other disorders. She also co-authored The Teenage Brain: A Neuroscientist’s Survival Guide to Raising Adolescents and Young Adults (Harper Collins, April 2015).
Cindy McCain
Cindy McCain has dedicated her life to improving the safety, health, and well-being of women, children, and families. Her advocacy work includes combating brain disease. This work is deeply personal, as her husband, the late U.S. Senator John McCain, died of glioblastoma, an aggressive form of malignant brain tumor. She also lives with migraine and advocates for those with this debilitating disease.
Sean C. Sansiveri
Sean C. Sansiveri is Vice President of Business and Legal Affairs for the National Football League Players Association where he leads the NFLPA’s health and safety initiatives. His efforts have resulted in the creation of standardized protocols governing the evaluation and management of concussions, the development of team-specific emergency action plans and the utilization of independent neurotrauma specialists on the sidelines of all NFL games.
David W. Dodick, MD, FAAN Chair Mayo Clinic Arizona
Susan Schneider Williams, BFA Vice Chair, Artist and Advocate
Shafali Jeste, MD, FAAN Secretary UCLA Semel Institute
James Essey Treasurer, TemPositions Group
Kevin Goodno Immediate Past Chair Fredrikson & Byron, P.A.
Walter F. Mondale Honorary Chairman
Officers
Meet Our New Directors
David Eagleman, PhD Neuroscientist & Entrepreneur
James Erwin Chicago Title Company
Jacqueline French, MD, FAAN New York University and Epilepsy Foundation
Dan Gasby Author, Alzheimer’s & Brain Health Advocate
Robert C. Griggs, MD, FAAN University of Rochester Department of Neurology
James C. Grotta, MD, FAAN Memorial Hermann –Texas Medical Center
Frances E. Jensen, MD, FACP, FAAN University of Pennsylvania, Department of Neurology
Sharon L. Klein Wilmington Trust, N.A.
Cindy McCain Businesswoman and Philanthropist
Suzanne Miller Empire State Properties
Ronald C. Petersen, PhD, MD, FAAN Mayo Clinic, Department of Neurology
Sean C. Sansiveri NFL Players Association
Martin Shenkman, CPA, MBA, PFS, AEP, JD Shenkman Law
Joseph I. Sirven, MD, FAAN Mayo Clinic
Ben Utecht Former NFL World Champion, National Concussion Advocate
Ex Officio, Voting Director
James C. Stevens, MD, FAAN Allied Physicians, Inc.
Ex Officio, Non-Voting Directors
Jane Ransom, Executive Director American Brain Foundation
Mary Post, MBA, CAE, Chief Executive Officer American Academy of Neurology
Honorary Directors
Rich Clifford, Richard EsseyLeeza Gibbons, Billy McLaughlin
Directors
StaffJane Ransom Executive Director
Emily Christian Director, Advancement & External Relations
Kim Howard Operations & Executive Office Manager
Julia Miglets-Nelson, PhD Grant Writing & Program Manager
Liam Moore Advancement & External Relations Manager
Lisa Dahlberg Personal Philanthropy Advisor
Sharla Donohue Database Administrator
Andrea Nargan Data & Research Specialist
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Tel: 612.928.6300 | Toll Free: [email protected]
AmericanBrainFoundation.org