Minutes of the

Enfield Learning Disability

Partnership Board

21st August 2017

This Meeting’s Big Issues Were

1/ Charging Policy 2/ Building Community Capacity

2/ Membership of the Board

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Present -

People Who Were There

Niel Niehorster Co-Chair - London Borough of Enfield Head of

Integrated Learning Disability Services

Richard Armstrong Autism and Learning Disability Councillor

Sheila Barry Specialist Participant

Bill Barry Peer Advocate

Louise Collins Deputy Learning Disability and Autism Councillor

Jane Richards Carer2Carer network

Surojit Walawalker (Wally)

Family Carers Champion - Parent Carer and CAPE Chair

Wendy Berry Family Carers Champion - Parent Carer/ CAPE

Bernadette Reigar Parent Carer/ (CAPE)

Naomi Gilder Autism and Learning Disability Councillor, Co Chair

Stephen Smith Autism and Learning Disability Councillor

Elizabeth Taoushanis Autism and Learning Disability Councillor

Sue Wilkinson Advocacy Support, EDA Advocacy Project

Victor Chanaryn Autism and Learning Disability Councillor

Jay Bansal Autism and Learning Disability Councillor

Lesley Walls Specialist Participant – Voluntary Sector

Priscilla Surfraz Acting Manager, Community Nurses

Geoff Lambrick London Borough of Enfield, Service Manager

Assessment and Care Management, Chair

Cllr Ekechi Councillor

Chris O’Donnell Facilitator - Person Centred Planning Coordinator

Paulette Blackwood Acute Liaison Nurse, North Middlesex Hospital.

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Shirley-Anne Wheeler London Borough of Enfield Service Manager Equals

Employment

Danny Newland Carers Centre – For Pamela Burke

Sarah McLean SEND Project Manager

Apologies –

People who could not be there

Kellie Scott Autism and Learning Disability Councillor, Co-Chair

Stephen Young Peer Advocate, Formont User Forum

Cllr Christiana During Councillor

Ineta Miskinyte Service Development Manager LBE

Cllr Elaine Hayward Councillor

Katherine O’Donnell Clinical Director Enfield, Barnet Enfield and Haringey Mental Health Trust.

Josephine Carroll Central and North West London NHS Foundation Trust

Tamara McNamara Acute Liaison Nurse, Barnet and Chase farm Hospital

Deanna Rogers Specialist Participant, Voluntary Sector. Champion for Hate Crime

Soobhash Ramphul Acting Manager, Community Nurses

Cllr Sarah Doyle Councillor

Pamela Burke Chief Executive, Enfield Carers Centre

Margaret Denney Autism and Learning Disability Councillor

Guests

Doug Wilson Head of Strategy & Commissioning (presenting)

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Chris went through a presentation about the

‘Think Local Act Personal’ Community Capacity Project

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The group had these comments on the presentation

There had been a forum called ‘Developing Personalised Outcomes’.

This included family Carers and senior council officers, focused on implementing personalisation.

As personalisation is now standard practice, this group has now

stopped meeting.

Carers have asked council officers about a new forum to replace

this.

Carers felt that a Community Capacity Project was not what

they were seeking at this point.

They also thought it was unlikely to achieve savings. There are

many examples of good practice around Community Capacity already running in Enfield.

Members thought we could learn very little from membership,

apart from some information sharing.

Action – Chris to join the ‘Building Community Capacity’ mailing list and keep the board informed of anything that might be interesting the future

?

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Doug Wilson then gave this presentation on the Care

Charging Consultation

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The board had these questions about the presentation

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Question: Members asked about Council Tax Income. The

Adult Social Care Precept went to fund adult social care services, but

there was also a 1.9% general increase. Did any of this also go to

adult social care?

Answer: No. Most of this extra income went to Children’s

Services.

Question: Of the money that came into Adult Social Care, how

is it spent?

Answer: On Services. About 1/3 went to Learning Disability

Services. Learning Disability and Elderly services are the biggest

areas of growth.

Question: The Independent Living Fund has now closed, and

the money has been transferred to Local Authorities. Has

this been included as extra income?

Answer: No. The ILF money has come to the council, but so has the

cost of the services people had been buying with it. Additionally,

the government built a 5% reduction in the transfer, so the

council is worse off as a result.

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Question: In terms of accountability, who was it that made this

proposal?

Answer: It came from the Income Assessment Team.

Members noted their disappointment that no one from this team

was available to come to the board.

Carers also referred to the slide that mentioned 271 people not paying

any care charge. This is because they will have been assessed as

not being required to pay a charge.

One carer asked how most people in Enfield would react if

their Council Tax went up by £100 a month? That is effectively what is

proposed for some of the poorest people in the borough.

There were group discussions and workshops about the

proposal.

These will be sent in as part of the consultation.

These will be sent out separately.

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The Board then went through

the new Work Plan

The board were pleased to see the Learning Disabilities and Autism Council adding Equalities and Inclusion to their work

Plan.

Wally pointed out that it can be very difficult to meaningfully include people with profound and multiple learning disabilities.

Wally has experience of this over many years.

Action – Sue and Wally to arrange to meet and discuss ideas for

including people with profound and multiple disabilities in the A&LD council.

Sue said there will be an election for new representatives from

STARS coming up.

Action – The Equalities and Inclusion plan will include the Lesbian,

Gay, bisexual and transgender + community.

Transport

Action - Chris to send out transport policy

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Carers.

There needs to be more clarity about the role of CAPE and the Carers Centre.

Action – Sarah McClean, Niel, Wendy and Jane to meet to discuss a

sustainable pathway for carers.

Action –Sarah McLean will contact One-to-One, who are doing some

work around transition (Jane to provide contact details).

Although there have been no PBS sessions with carers for some

time, EILDS would like to resume when the practitioners have

capacity. CAPE will be kept informed.

Autism

Sarah Davis has now left the A&LD council. Faye Medcalf will take

over.

Lesley said that funding for the Autism group has still not been

agreed.

The board noted that Autism work stream would cease unless funding is agreed.

Action – Chris to follow up Autism funding with Ineta

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Health.

Richard has coordinated a health survey. He will take it to the next

Health Sub Group.

The board suggested that the health sub group add a priority about

continuing health care.

Action – Chris to add Continuing Heath Care to the work plan

ToRToR

Chris then talked through the Terms of Reference from 2015.

The board suggested some corrections to the language used in the

Tor, to make it more Easy Read.

The board discussed membership, and made some changes to

who will be invited to future meetings.

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Question: Carers asked if they could choose which Councillors to

invite.

Answer: No. Individual councillors are nominated to attend different

meetings by the whole council.

ToRToR

Action – Chris will send out an updated Terms of Reference

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Current Financial Situation

(-)£3.8M At the end of July EILDS was projecting an over spend of about £3.8 m.

(+)£1.155M

However savings of £1.155m have been identified to be achieved in this financial year.

=(-)£2.5M This leaves about a £2.5m over spend.

It is hoped some one-off moneys and grant moneys will be used

to reduce this figure.

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Last Minutes were agreed

Outcomes from February 2017

Who Will do What By When Outcome

Chris Send information on how the new funding for the Autism work stream will be spent.

31st July Deferred until funding is agreed

A&LD Representatives

Make sure support for people with profound and multiple learning disabilities is discussed at their next meeting.

24th May Discussed in minutes

Pamela Feedback to the board on her discussions with Rupa about the next steps for PBS sessions with families.

21st August Discussed in minutes

Pamela Feedback to the board on the progress of the work with the Clinical Commissioning Group to offer carers training on the Continuing Healthcare Process

21st August Defer to next meeting. Danny does offer support to individuals. Carers have a lot of experience to offer as well.

Chris Send information on the ‘Access hubs’ where people can make on the day appointments.

16th June This was done

Chris Provide information on the transitions groups to Elizabeth so that she can arrange to attend

16th June This was done

Chris Produce a top level work plan for 2017 – 19 and circulate with these minutes. Champions can then add specific outcomes before the next meeting.

16th June This was done

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Chris Will update the board on the options for paying expenses.

21st August Chris is still following up options through the council. The A&LD council could also pay expenses, but we would need to top up their budget – or set an amount and A&LD Council will invoice annually.

A&LD Representatives

Discuss options for paid work and feedback at the next board

21st August Representatives are happy to attend as volunteers, provided expenses are paid. There may also be paid work as part of their function on the board, for example, escorting members with complex needs to the board.

Ineta Look into a sector wide arrangement where acute hospitals reimburse support costs for people whose behaviour can be challenging when in acute hospital.

21st August deferred

Chris Chase up Library’s after Fusion project has finished.

Via work plan report August 2017

Unfortunately, Chris had to cancel this meeting due to family illness. He will reconvene before the next board.

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Any Other Business

Many Blue badge holders are still not aware they are not allowed to park

in personal disabled parking bays.

Carers would like to be involved in consultations at an earlier stage.

If this was agreed it would have to be offered to all groups.

The carers centre could coordinate.

There are still issues about at what stage carers would be involved.

There are now specific CHC nurses in hospitals to do assessments

before people are discharged.

The next Big Issue will be the Voluntary and Community Services Restructure. This had been deferred from the august

meeting due to availability of speakers and to make space for the charging consultation.

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Summary of Actions

Who Will do What By When

Chris Join the ‘Building Community Capacity’ mailing list and keep the board informed of anything that might be interesting the future

18/09/17

Sue and Wally Arrange to meet and discuss ideas for including people with profound and multiple disabilities in the A&LD council.

Feedback at

next meeting

Chris Update the Equalities and Inclusion plan to include the Lesbian, Gay, Bisexual and Transgender + communities.

18/09/17

Chris Send out transport policy With next

agenda on 30th

October

Sarah McClean, Niel, Wendy and Jane

Meet to discuss a sustainable pathway for carers Feedback at

next meeting

Sarah McLean Contact One-to-One, who are doing some work around transition (Jane to provide contact details).

Feedback at

next meeting

Chris Follow up Autism funding with Ineta Feedback at

next meeting

Chris Add Continuing Heath Care to the health work plan 18/09/17

Chris Send out an updated Terms of Reference with these minutes.

With next

agenda on 30th

October

Pamela Feedback to the board on the progress of the work with the Clinical Commissioning Group to offer carers training on the Continuing Healthcare Process

Feedback at

next meeting

Chris Update the board on the options for paying expenses. Feedback at

next meeting

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Chris Chase up Library’s after Fusion project has finished. Feedback at

next meeting

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The ‘Big Issues’ for our meeting on

August 21st 2017 will be….

Meetings for the next year

November 20th

Restructure of Voluntary and Community Sector