inform winter 2013
DESCRIPTION
Independence Australia Client NewsletterTRANSCRIPT
WINTER EdITIoN 2013InformA newsletter for our community
incorporating PolIoPerspectives
disabilityCare updatePolio Day 2013
2 Inform
Welcome
Inform incorporating Polio Perspectives is published quarterly by
ABN 80 973 805 243
208 Wellington StreetCollingwood Victoria 3066
PO Box 1189Collingwood Victoria 3066
T 1300 704 456F 1300 704 451E [email protected] [email protected] www.independenceaustralia.com
EdIToRJen Sykes
dESIGNER Bridget Hoadley
PRINTER Genuine Print
Chief Executive OfficerPeter Turner
BoARd oF dIRECToRSChairmanBrian Meltzer
deputy ChairmanCliff Wise
MembersPeter DaddoLyn DaviesElizabeth JonesJeremy LongDanny O’Neil Paul Solomon
Inform incorporating Polio Perspectives, is the official newsletter of Independence Australia. We welcome articles of interest and reserve the right to edit or reject submissions as we see fit. Published articles do not necessarily reflect the policies of the organisation. Any information included is not intended to be a substitute for professional medical advice.
Deadline for the next edition is CoB FRIdAY 8 NovEMBER 2013
Brrrr! As I write this, there are icicles hanging off my nose and ears. Not complaining though (well maybe a little bit) as I adore these days that are super crisp in the morning then blossom into beautiful sunny winter days. There have been many things happening since the previous issue, none bigger than the launch of DisabilityCare Australia. (See opposite page for more information). Polio Day 2013 is in Geelong this year. There is a lovely symmetry
to this, with the DisabilityCare Australia launch in the Barwon region and also national headquarters based in Geelong. You can find all the details for Polio Day, as well as the registration form, on pages 26 & 27.
I hope you enjoy reading about these and many other things in this jam packed bumper winter edition!
And I leave you with this:
“Live so that when your children think of fairness, caring, and integrity, they think of you” – H. Jackson Brown Jr.
From the GMMarcia Baron
July 1 saw the launch of DisabilityCare Australia in four sites across Australia (Victoria, South Australia, New South Wales and Tasmania). It doesn’t seem that long ago when we were all involved in the campaign “Every Australian Counts”. We should congratulate ourselves on a job well done.There are going to be challenges that we all face in bedding down DisabilityCare so that it becomes a normal part of the support system that every Australian is entitled to receive. A major challenge is around workforce – the Modern Award will have an impact on the way our support workers work and
are paid and this will affect you. The changes are positive for our staff as the new conditions provide better recognition for the important work they perform. We hope that these changes will attract new workers and that those workers already in the sector stay.Our theme for this year’s Inform is “Person Centred Practice”. Our Psychology & Counselling team will be running workshops “Stand Up For Yourself” in various regions this year. The workshops aim to give people the skills and resources to be more confident in articulating their needs and wants to carers, family, and others. These skills may improve or expand the quality of life and range of choices for individuals with a physical disability and we hope assist you in planning for DisabilityCare. I encourage you to attend these workshops.
Jen Sykes
From the Editor
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In Home Service
disabilityCare Australia
DisabilityCare Australia’s first stage commenced in the Barwon region on July 1 2013. People living in Barwon can access the scheme if they:
• Have a significant and permanent disability that affects their ability to participate in the community and employment and they require care and support, or could benefit from early intervention requirements.
• Meet residence requirements• Live in LGAs of the City of Greater Geelong, the
Colac-Otway Shire, the Borough of Queenscliffe and the Surf Coast Shire and
• Meet age requirements.Fact sheets and publications about DisabilityCare Australia, with information for both service providers and people with a disability, can be found at www.disabilitycareaustralia.gov.au
Geelong announced as national disabilityCare Australia HQThe national headquarters of DisabilityCare Australia will be established in Geelong. The decision to locate the headquarters in Geelong is another major milestone for Victorians with a disability, their families, carers and service providers. Victoria has long been at the forefront of disability reform and the announcement recognises Victoria’s substantial contribution to the development of all aspects of the scheme and the strong local disability services sector in Geelong.
Board and Independent Advisory Council of disabilityCare AustraliaThe Australian Government has appointed a long-standing champion of disability reform in Australia, Bruce Bonyhady AM, as the inaugural Chair of the Board of DisabilityCare Australia. The Board will set the strategic direction of DisabilityCare Australia and play an important role in safeguarding its financial sustainability, including by commissioning and considering actuarial advice in its decisions.Mr Bonyhady brings considerable expertise to the position of Chair of the Board, including through his work as Convenor of the Independent Panel that advised the Productivity Commission and Government during the Inquiry into Disability Care and Support and as a Member of the Disability Investment Group.Mr Bonyhady has also held a number of senior positions in the funds management industry and insurance industry in Australia and internationally. He is a Deputy Chair of the National Disability Insurance Scheme Advisory Group to the Council of Australian Governments (COAG), current President of Philanthropy Australia and is the father of two sons with a disability.The board members appointed by the Australian Government have extensive experience in the disability sector, insurance matters, financial management and corporate governance. The appointments have been endorsed by all States and Territories.The Board of DisabilityCare Australia will receive advice from an Independent Advisory Council established by the National Disability Insurance Scheme Act. The Australian Government has appointed Dr Rhonda Galbally AO as the Principal Member of the Independent Advisory Council. Dr Galbally is a long-standing and passionate advocate for the rights of people with disability. She is a Deputy Chair of the National Disability Insurance Scheme Advisory Group, Chair of the National People with Disability and Carer Council and Chair of the National Disability and Carer Alliance. Her joint role as Member of the Board and Principal Member of the Independent Advisory Council will ensure a strong and dynamic relationship between the two bodies.The Independent Advisory Council will help to ensure that the Board has a ready source of advice from the perspective of people with lived experience of disability. The Council is made up of people with disability, their carers, those experienced in service delivery and disability in rural and remote areas and those with skills, experience or knowledge in the supply of equipment, or the provision of services, to people with disability.
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veteran Clients
The importance of working smoke alarmsSmoke alarm facts.If you don’t have a working smoke alarm installed in your home and a fire occurs:
• You are 57% more likely to suffer property loss and damage
• You are 26% more likely to suffer serious injuries• You are four times more likely to die.
All smoke alarms:• Contain a battery• Need to be tested regularly• Need to be replaced after 10 years
Why should I have a smoke alarm?When you are asleep you lose your sense of smell. A smoke alarm is your electronic nose. It will alert you if there is smoke from a fire. A small fire can grow to involve an entire room in 2-3 minutes. A smoke alarm provides an early warning and time to escape.Smoke alarms are compulsory in every home.Since 1 August 1997, Victorian law states that smoke alarms must be installed in all homes, units, flats and townhouses. It is the legal responsibility of all owners and landlords to install working smoke alarms.Residential homes constructed before 1 August 1997 need only 9 volt battery powered smoke alarms installed. Residential homes constructed after 1 August 1997 must have smoke alarms connected to 240 volts mains power. In addition a back up battery must be installed in the smoke alarm.
Smoke alarm models• 9 volt battery powered• 240 volt (mains power) with 9 volt replaceable
backup battery• 240 volt (mains power) with 10 year long life
rechargeable, non replacement battery• Specialised models for people who are deaf and
hard of hearing (More information contact VicDeaf 03 9473 1111; TTY: 9473 1199) www.vicdeaf.com.au
Where can I buy a smoke alarm?Hardware stores, electrical retailers, department stores, fire protection companies.
How do I install a smoke alarm?9 volt powered smoke alarms can be installed by anyone following the instructions on the pack. Be careful when using a step ladder. 240 volt (mains power) smoke alarms must be installed by a licensed electrician.
Where do I put my smoke alarm?Smoke alarms must be located between each bedroom area and the rest of the house.In addition inside any bedroom where someone sleeps with the door shut.In a two storey home a smoke alarm is required on each storey, located in the path that people will use to evacuate.
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General News
Celebrating IndependenceIndependence Australia held its inaugural “Celebrate Independence” day on Thursday 4 July at Rydges Bell City in Preston.Approximately 50 people braved the wild and windy weather to be in attendance to learn about the services that Independence Australia offer. Information was available on attendant care, case management, recreation and respite, training, health products, equipment, travel and free massages and manicures were also on offer.A number of free workshops were held all of which created much interest. The Independence Australia psychology team ran 2 sessions on mindfulness and improving decision making. There were also sessions on diet and nutrition, Travellers’ Aid and a Boccia demonstration. There was an opportunity to have a go at Boccia and we may just have witnessed the start of the journey for some future paralympians!It was a fantastic day at a great venue and hopefully will be bigger and even better next year.
This is your opportunity to comment on any aspect of the service you receive from Independence Australia. You may have already received the survey by mail, or been invited to complete the survey on SurveyMonkey.
Your feedback is valuable and helps our organisation continue to develop its service in supporting people in their homes and communities.
Customer Survey 2013
Over the next few months you are invited to participate in Independence Australia’s Annual Customer Survey.
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Meet our Case Management and outreach Support Services team ObjectivesThe Independence Australia Case Management and Outreach Support Services enable clients to live as independently as possible in the community. The following goals can and have been achieved:
• Assisting with funding applications for recreation/attendant care hours/equipment (Disability Support Register, other agencies, philanthropic trusts)
• Supporting people with disabilities to access transitional or long term rental accommodation (i.e. Office of Housing) and supporting them to maintain their tenancies thereafter.
• Assisting people to negotiate with a range of other service providers e.g. Councils, Centrelink, hospitals, schools etc
• Advocacy• Liaising and negotiating support and services with
clients who receive compensation through TAC or WorkCover insurance agencies.
EligibilityAny person with a disability or older person who lives in the Melbourne Metro region can apply for case management services through Independence Australia. Referrals can be made by individuals, family members, carers, health professionals and other disability service providers. Independence Australia receives block funding provided by the Department of Human Services, which enables our service to be free of charge.For further information, or to discuss possible referral, please contact Melissa Sahyoun or David Maxwell on 1300 704 456.
Melissa and David.
Have you ever been interested in joining a social group but didn’t know where to start? Would you like to break down social barriers and build self esteem?
From our Recreation Coordinator
Well, look no further. Independence Australia has a recreational department that can help you get started.
What do we offer?The program is designed to deliver person centred planning by;
• Working one on one with people who need a little help to take the next step
• Develop an Individual Support Plan (ISP) to set recreational goals
• Make referrals to appropriate servicesRecreation means different things to different people and can vary depending on one’s ability and their support network they have around them.
In the past we have assisted people in various areas including;
• Mobility and travel, • IT and computer training, • referrals to social groups, • community engagement, • holidays, • music and dancing, • art and craft• independence to live a better life in the community!
For further information, please contact the recreational coordinator Lisa Edwards on 1300 704 456 or email at [email protected]
Meet Our People
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Mobility Aids AustraliaIn December 2012, Independence Australia acquired a company called Mobility Aids Australia to expand the range of services we offer. Mobility Aids Australia has been involved in the provision of equipment for 16 years. The primary goal of their dedicated team is to find the right mobility and lifestyle solution for every client. They understand that every client is different so finding the right product, at the right price, is the key to continued success. Branch Manager Martin Prentice says “When you come to see us, we build up a full profile of you and your preferences – weight, height, left/right hand, environment, terrain, intended hours of use per day etc. We want to ensure that you get the mobility or healthcare solution that is right for you”.Mobility Aids Australia has helped thousands of people live more independent, satisfying and productive lives and their reputation is founded on providing the most professional, informative advice and service in the industry.They have a huge range of products in their Springvale showroom and in some cases they can bring a selection of products to your home so that you can try them where you will be actually using them.Independence Australia is extremely pleased and excited to welcome the team at Mobility Aids Australia on board.Mobility Aids Australia 1/820 Princes Highway, Springvale03 9546 7700 [email protected] www.mobilityaids.com.au
Meet Our People
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Psychology and Counselling
Introducing Emma and danielEmma ThompsonHello there, my name is Emma Thompson and I will be on placement at Independence Australia for the next six months. I am in my second year studying the Doctorate of Health Psychology at Deakin University.When I am not studying I enjoy reading, travelling, shopping at my local markets, spending time with my family and friends, and planning for my upcoming wedding.Over the course of my studies I have developed a strong interest in chronic pain management, and my current research thesis is focused on identifying pain-related beliefs and perceptions that influence adherence to treatment recommendations among chronic pain patients. From my research and communication with health professionals, I understand that pain is a common challenge that individuals with physical disability face. While on placement at Independence Australia, I will be assisting the Psychology and Counselling team to develop a program to help provide individuals with physical disabilities strategies to better manage their chronic pain symptoms. I am very excited to be working with the Psychology and Counselling team at Independence Australia in the coming months. I hope to learn about the role of psychologists in the field of physical disability and gain a greater understanding of the experiences and challenges faced by clients.I look forward to meeting you all soon.
Daniel QuinMy name is Daniel Quin and I’m a second year Master of Psychology (Educational and Developmental) student at the Australian Catholic University. I’m passionate about understanding how disadvantage can be supported and hindered by our community, so much so that I am also completing a PhD on school disengagement. In joining the Psychology and Counselling team at Independence Australia I was drawn to the client-driven approach. Throughout my course I have been encouraged to understand thoughts, behaviours and emotions from the perspective of the client. In this way I am learning how I can best support the client to work through their unique circumstances. I’m also looking forward to making the most of my experiences as a teacher in contributing to the Peer Support Groups. Despite growing up in country Victoria I think I am now almost a local of Collingwood, having gone past Independence Australia for the last 20 years on my way to Smith Street! Along with my studies I am kept busy caring for my young children and I appreciate volunteering to teach at my daughter’s school. I enjoy running and riding but the cold winter mornings in Melbourne have recently been testing my personal commitment to a healthy mind and body!
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Psychology and Counselling
Stand up for yourselfIn May, Independence Australia ran a workshop called “Stand up for Yourself”.The workshop’s aim was to give people the skills and resources to be more confident in articulating their needs and wants to carers, family, and others. Such skills may improve or expand the quality of life and range of choices for individuals with disabilities.
A small group of people with disabilities completed this two day assertiveness based workshop that we facilitated in Collingwood. The participants reported that they found the workshop to be well constructed, and educational, and felt that the facilitators were kind, clear, and knowledgeable.
Additionally, participants enjoyed the interactive nature of the Psychology and Counselling program; they were provided with the opportunity to observe, and identify different types of communication. Participants were also given the chance to try assertive communication in pairs using prepared scripts as well as drawing from their own personal experiences. One of the challenges that many people face is passive aggressive behaviour, and this was explored in some detail.
The next workshop will be in the Eastern region in late August followed soon after by workshops in the southern and western regions. The workshops have been made possible by funding from The Flora and Frank Leith Charitable Fund.
If you know any clients who might benefit from this program contact Jenny Koadlow on 03 9418 0410 or email [email protected]
Pain Management workshopsPain affects most people with a spinal cord injury or other physical disability. It is estimated for about half of people with spinal injuries pain is severe and long lasting. The effect on mood and quality of life of uncontrolled pain is devastating. Medical treatment options are also often limited. Our clients report a love/hate relationship with medication
prescribed to manage their pain. The medication relieves their pain but often at the expense of their quality of life. Side effects of pain medication include severe drowsiness, fatigue, and constipation.All pain is real. However pain is also a personal experience and pain management programs have proved successful in reducing the level of suffering. Given this the counselling service is developing a pain management workshop for clients. The proposed workshop
will utilise a mindfulness based cognitive therapy approach to pain identification and management. The workshop will be interactive, psycho-educational and skills based. It is designed to assist individuals to understand pain and to provide participants with strategies and skills for managing pain.We hope to offer a number of workshops depending on demand. To register your interest please call Dr Andrew Sinclair on 03 9418 0474.
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our News
An ‘unstoppable’ teamThe laneway behind Independence Australia’s Collingwood office has been given new life thanks to the talents of world renowned graffiti artists. Over the weekend 27-29 June, artists Rone and Wonderlust transformed the Independence Australia building with the artwork ‘Unstoppable’. The street art forms part of the ‘Don’t Stop’ series, which features prominently on buildings around Collingwood and Fitzroy.
Rone and Wonderlust form part of the Everfresh crew who collaborate with other street artists to produce internationally renowned street art as well as art exhibited in galleries. Rone’s works can be seen
in countries as far and wide as Vanuatu, Germany, Dominican Republic and Spain. The artwork displays the positive message ‘unstoppable’, which is an interpretation of how we see our community regardless of ability.To officially launch the ‘Unstoppable’ artwork a BBQ lunch was held. The lunch was attended by staff, Collingwood neighbours, a representative from the Yarra City Council and artist Rone. The project was made possible thanks to the generous support of Yarra City Council, Masters Northland, and of course artists Rone and Wunderlust. To see more of the artwork from the Everfresh artists visit www.everfreshstudio.com.
Students making their steps countOn October 18, schools across Australia will be making their steps count by participating in the event Steps for Independence. Steps for Independence aims to raise disability awareness amongst school students and raise funds for support services that assist people living with a disability to regain or retain their independence. The event will challenge students to get active and count their steps with their class for just one hour. Schools will be provided with pedometers and supporting materials to help educate and generate discussion about disability awareness. Registrations are now open to both primary and secondary schools. If you have students or teachers in
your family or friendship groups, we encourage you to let them know about this event. We’d love to see many schools taking part this year!For more information about Steps for Independence visit www.stepsforindependence.com.au or call Independence Australia on 03 9418 0415.
Photo Credit: Emily Vanderlism www.flickr.com/photos/vanderlism/
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our News
Save the date Later this year Independence Australia will host Accessibility Weekend as part of Spinal Injury Awareness Week (SIAW).Accessibility Weekend celebrates the importance of accessibility and inclusion and invites Victoria’s favourite tourist attractions to open their doors for free to those who use a wheelchair and their carers. Last year over 25 venues across Victoria participated in this event and we look forward to growing that number again this year. Accessibility Weekend is now in its 9th year and this year will be held on November 16-17. Over the coming months the participating venues will be announced, so be sure to stay tuned for updates.
Run MelbourneCongratulations to the Independence Australia Run Melbourne team who woke up early on Sunday 21 July and pulled on their runners. The team made up of staff, clients and friends joined 25,000 others at Federation Square to run or walk for a cause.
Melbourne put on its finest winter weather for the event. Despite the temperature not breaking into the double digits runners enjoyed blue skies and sunshine.
The Independence Australia team included runners who completed the 21.5km and the 10km run, and those who walked or ran 5km. For some, Run Melbourne was their first fun-run and it was an achievement to cross the finish line.
Thank you to everyone who participated and also to those who supported the event by making a donation.
AUGUST
The Skilling Challenge Friday 9 August MCG, Melbourne www.independenceaustralia.com/skillingchallenge More info [email protected]
oCToBER
Steps for Independence Friday 18 October Australia-wide FREE More info [email protected]
Polio Day Saturday 26 October Geelong Ticket info to come More info [email protected]
NovEMBER
Spinal Injury Awareness Week 11-17 November Australia-wide FREE More info [email protected]
Accessibility Weekend 16-17 November Victoria-wide FREE More info [email protected]
Daddo Charity Golf Day Friday 29 November Moonah Links Golf Course Ticket info to come More info [email protected]
dECEMBER
Client Christmas Party Saturday 1 December Ivanhoe Centre, Ivanhoe FREE More info [email protected]
at Independence Australia
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General News
Mobile phones and cameras – things you should knowMobile phones have created a scenario where we are contactable at just about any time and in any place. While this can be hugely convenient, there are certain situations where it may be more prudent to wait until later to make or receive that phone call.Visual and audio recording applications that are a standard feature of the popular phones used today can also be problematic in some circumstances. How and when we use our phones should be guided by common sense but there are some legal perspectives that you need to be aware of.Below is a list of some things to keep in mind.
• It is common knowledge that talking or texting on a hand-held mobile while driving is illegal but did you know that it includes holding it away from your face on loud speaker, even if you are in stationary traffic?
• Handling your phone while using it as a navigational device is also illegal.
• To use your phone while driving it must be in a fixed bracket.
• In Victoria,you would be fined for using a hand held mobile in the driver’s seat, even if you are legally parked at the side of the road but the engine is running, as technically you are deemed to still be “in charge of a motor vehicle”.
• In all States & Territories, there is legislation prohibiting the use of a listening device (such as a mobile phone) to record a private conversation without the consent of the participants of that conversation. Such legislation also generally restricts the publishing of unauthorised recordings.
• There are a number of existing criminal laws that address the taking and use of unauthorised images for offensive purposes.
So use your phone safely and smartly. There are many reasons that mobile phones are a fantastic tool in this day and age, particularly in emergency situations, but please be mindful of the ever present temptations and pitfalls.
Partnership with Netball victoriaIndependence Australia is pleased to announce a two year community partnership with Netball Victoria.The partnership will assist the growth and development of Victoria’s participation in the 2013 National All Abilities Netball Competition. In 2012, Netball Victoria saw in excess of 900 people with a disability involved with their programs and identified the importance of providing a strong pathway for these participants.Netball Victoria CEO Michelle Plane was delighted with the news of the partnership, “At Netball Victoria we understand the importance of everyone having an equal opportunity to enjoy and participate in a sport they love, whatever their circumstances may be in life. We want to include everyone and what better way than for people to participate in our Nationals All Abilities Netball Competition than with the support of Independence Australia”.
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General News
Circles of CareFree ExpoThis expo is being run by the Eastern Metropolitan Region Palliative Care Consortium and will be held on Thursday 17 October from 10am–3pm. The venue is the Whitehorse Centre, 397 Whitehorse Road Nunawading.There will be information on carer supports, community supports and advance care planning with opportunities for relaxation, tai chi, massage, reiki and music.Dr Sally Cockburn, a Melbourne GP and health advocate, will lead a discussion on advance care planning and give a light hearted insight into caring.Respite is available at no charge for carers on the day. Phone Commonwealth Respite and Carelink Centres on 1800 059 059.
volunteers needed for research project
A community website for people with spinal cord injury in Victoria and throughout Australia. Visit the website for comprehensive information about spinal cord injury, how to keep healthy, how to access supports and services and tips for returning to work and leisure and engaging in the community.
Register now to contribute on discussion forums and comment on articles on the website.www.spinalhub.com.au
Are you over 18 years of age and have an acquired spinal cord injury? If so, you may be interested in a research project.I am a researcher in the Department of Occupational Therapy at Monash University, and I am undertaking a study on the meaning and experience of participation for people living with an acquired spinal cord injury. Volunteers are needed who are between 18-65 years of age, have
an acquired spinal cord injury and are living in the community. Involvement consists of an initial interview of 1-2 hours, followed by a possible further interview of 30-60 minutes. The interview would be conducted in a place of convenience to you, or over the telephone. The information gained from this study will be used to develop future interventions to support people with spinal cord injury to improve their participation in the activities that they want and need to do. The aim is to enable people to participate in ways that have personal meaning
to them and will contribute to their health and well-being.If you are interested in assisting in this study, please contact Linda Barclay by telephone on 03 9904 4493 or by email on [email protected].
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Experiences of people with disabilities reporting crime projectThe Victorian Equal Opportunity and Equal Rights Commission is conducting research into the experiences of people with disabilities in Victoria when they report crime. The project aims to:
• identify the nature and extent of crimes against people with disabilities in Victoria
• understand what barriers people with disabilities face when reporting crime and gaining redress
• work with Victoria Police and other authorities to break down these barriers and provide better services to people with disabilities.
The project is focusing on crimes against the person. These include assault, family violence, sexual assault, indecent assault, and causing serious injury and covers crimes that occur at home, on the street, on transport, and in services such as disability services and hospitals.
The research will not include property crimes such as theft and fraud or the experiences of people with disabilities who have committed crimes. The project is limited to those who have been victims of crime.
How you can participateThe Commission is keen to hear from people with any type of disability, including mental health disabilities. Carers, family members, social workers, service providers and Police are also encouraged to participate. It recognises every person is different and many will not wish to tell their stories. For those that do, there are a number of ways to take part:
1. Complete confidential on-line survey for people with disability and for people who provide care and support. An Easy English survey is also available. You can call us on 1300 292 153 to do the survey on the phone. Or you can print out the survey and post it to the address below. Contact the Commission to arrange a confidential interview. Please feel free to bring along a support person to that interview if you wish to.
2. Tell your story to a disability, family or other support service and give your permission to pass on the case study to the Commission at the address below. You do not need to provide your name, address or any other identifying information.
3. Email your story to us or post it to our address
If you are from an organisation, you can make a submission (contact details below) Wendy Sanderson 03 9032 3492 (voice), 1300 289 621 (TTY) or email [email protected]:
Confidential Research Victorian Equal Opportunity and Human Rights Commission Level 3, 204 Lygon Street Carlton Vic 3053
A Reference Group including representatives from the Office of the Public Advocate, Disability Services Commissioner, Victoria Police, Victorian Advocacy League for Individuals with Disability, Victims Support Agency, Women with Disabilities Victoria, University of Ballarat and the Commission's Disability Reference Group will oversee the project. All information is kept confidential. No individual will be identified in the research. The Victorian Equal Opportunity and Human Rights Commission complies with Victorian privacy laws and the confidentiality provisions of the Equal Opportunity Act 2010.Victorian Equal Opportunity and Human Rights Commission Level 3, 204 Lygon Street, Carlton 3053 1300 891 848 [email protected] www.humanrightscommission.vic.gov.auClosing date for participation is Wednesday 30 October.
General News
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General News
1718 26
Vale MIchael Judson
anaesthesIa and surgery
PolIo day 2013PolIoPerspectives
Polio Reference Group (PRG) ReportOur May meeting saw us reach a full complement of representatives. We welcomed Lyn Bates and Ros Pickhaver. The PRG still lacks independent representatives however, and we’re working on that.
One of our key projects from the Convenors’ meeting has come to fruition. That is printing of the poster for GPs’ waiting rooms and community health centres. This poster asks ‘Was your family affected by polio? There may be late effects – talk to your doctor today. Information and support is available’. (See page 23).We felt we could go ahead with this now that Polio Australia’s Clinical Practice document is on the internet and in hard copy. Doctors have no excuse today not to check this document when confronted by post polio patients. Thanks to Bridget Hoadley in Independence Australia’s marketing and design department for this striking work.We hope this poster will help nudge people who have been silent about their childhood illness, into recognition of likely late effects and contact with Polio Network Victoria.The meeting also heard about plans for Polio Day, this year in Geelong at The Pier, a beautiful venue (because we deserve it!). Changing Gears is the theme, since
that is what so many of us are having to do these days. It is nicely co-incidental that we will gather in Geelong, home to the Barwon unit of DisabilityCare, which cuts out at 65 years, just when polio survivors are needing extended support.The PRG was well represented at Independence Australia’s Expo on Thursday 4 July. We reprinted ‘Iron Wills’ (selling well even to the US) in order to have plenty on hand for this forum where we had a stall. Thanks to Shirley Glance and Bev Watson for their attendance on the day.Publication of Iron Wills was designed to go into profit and with the support of the Holsworth Local Heritage Trust, we have been able to keep it in circulation. Copies have been donated to local libraries. It was initially printed from the Special Purpose Post Polio fund, which has been reimbursed and remains stable.Iron Wills has been entered into the Victorian Community History awards so hopefully we'll have some exciting news to announce at Polio Day.
The other publication of importance is the Information Kit, handed out to people on first contact with the Polio Network. This folder has become somewhat top heavy. So work has been undertaken by Jen Sykes to refine it to the bare essentials. More specific information can be passed on as required.
Another issue raised by the Convenors’ meeting, was to have a question about polio added to the SCCT assessment tool. Independence Australia’s Deanna Varney (Manager, support services, who has been such a strength to our group) has overseen a letter to Dr Rosemary Lester, Chief Health Officer for Victoria, who attended the last Polio Day.
A similar letter has gone to the Immigration Minister asking that a specific question be included on migration applications, so when asked ‘do you have a disability’, some idea of the number of ‘new polios’ coming into the country can be understood. Reaching young migrant polios is a real challenge.
The PRG’s next meeting is on August 16 and we welcome your thoughts on issues of importance for us to tackle.Fran Henke, Chair
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Hume Post Polio Support Group – 18th birthday lunch at Ironbark Tavern in Chiltern.Twenty two members sat down to a roast meal with birthday cake for dessert. Margaret Goodman, one of the group’s founding members spoke at length, followed by John Flitton from the Lions Club who had supported the group by printing their pamphlet.After the fantastic meal, Rex Fuge, who manages the local museum, took everyone on an historical jaunt through Chiltern and its fascinating history. A great day was had by all.
Support Group News
Useful Information
Polio Australia03 9016 7678
Polio Services victoria
03 9288 3900
Post Polio [email protected]
Breakdown Service (RACv)131 111
Carers Australia1800 242 636
Centrelink (disability)132 717
Centrelink (Aged)132 300
Commonwealth Respite & Carelink Centres1800 052 222
Council of the Ageing (CoTA) 03 9654 4443
disabled Motorists Australia03 9386 0413
Independent Living Centre03 9362 6111
TAdvIC03 9853 8655
State-wide Equipment Program1300 747 937
Polio Support Groups
BallaratWednesday (Bi-monthly)Bayside (Hampton) First Tuesday (Monthly)BairnsdaleBendigoSaturday (Bi-monthly)EasternThird Saturday (Monthly)GeelongFirst Monday (Monthly)
EchucaHumeSecond Saturday (Monthly)Knox-Yarra RangesSaturday (Bi-monthy)Mornington Peninsula Second Saturday (Monthly)Northern (Coburg) First Saturday (Monthly)Shepparton
South Eastern Second Saturday (Monthly) TraralgonThursday (Bi-monthly)WarrnamboolFourth Tuesday (Monthly)
For more information regarding the groups, contact Jen Sykes on 03 9418 0452
Congratulations Lou Pruscino
Bairnsdale PSG member Lou Pruscino was recently awarded life membership of the Howitt Park Bowls Club. Lou joined the club in 1981 and over the years held a number of committee positions. He was the club champion for the 1992/93 season.Due to the late effects of polio, Lou has had to make adjustments to the way he plays, but can still be seen regularly sending down the bowls, and making his way around the green with the aid of two walking sticks.Club President Terry White said “When you play against such a player, you know you have a fight on your hands. Lou played pennant while only missing a handful of games over all those years. Lou is a great friend, competitor, clubman and is always ready to play bowls or to help others.”Well done Lou!
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Polio Perspectives
vale Michael JudsonFran Henke
With the death of Michael Judson in April, Polio Network Victoria, Polio Australia and South Eastern Post Polio Support Group, have lost a strong and articulate friend.Michael was born in Goosnargh, Lancashire, often proudly showing a photograph of St Mary’s, the church where he and his three brothers were actively involved as choir boys.He had fond memories of harvest festivals and church activities involving the whole village.Polio did not stop Michael joining the Army Cadets and becoming an award-winning marksman. He pursued shooting as a hobby after emigrating.He and June married when he was 21 and June was 19. After their daughter Michelle was born they moved to Australia, then Darren their son was born.Michael developed an interest in technology and computing that took him initially to Peter Isaacson newspapers. He later worked in petrochemicals and the fashion industry.But his strongest passion was for community groups, particularly polio awareness to which he brought his sharp mind and sense of humour.In January this year with typical candour, he advised by email of his illness and the necessity to withdraw from all positions. He was given eight weeks, which he stretched to 12, cheerily seeing friends and family for as long as he could.The polio community was well represented at Michael’s funeral, which featured music by his favourite Celtic group, The Chieftains. His ashes will be taken to Goosnargh and spread at St Mary’s Church.With the news of the gravity of his illness, members of the Polio Reference Group of which he was a member, struggled to find a way to let him know before he died how important he was to us.An award was discussed but there was not sufficient time to do it in the manner we wanted. So a letter was presented to him.His contribution has been particular. Throughout the existence of the PAC then the PRG, Michael was always on top of procedure and guidelines. If an issue was to be sorted Michael would sit down with those involved and talk it through until the correct outcome was reached.
He always stuck to his principles, even when it came to sitting at the Governor’s table for the 25th anniversary Polio Day. Michael refused to be nudged into the necessary suit. He met the Governor anyway of course.Late last year there were two important interstate events for Polio Australia for which he was a Victorian delegate. Despite not feeling strong he drove alone to Canberra and back, then to Sydney and back.My understanding is that he didn’t fully communicate his health problems to doctors. He always had polio matters to discuss.May his legacy to us be, that ‘cracking hardy’ – that lifelong habit of polio survivors – be tempered with ‘coming clean’.We can’t afford to lose any more wonderful and valuable people too early.
18 Inform
Polio Perspectives
Anaesthesia and surgeryInfection by the polio virus decades ago may have implications for some people undergoing surgical procedures today. With proper preparation and consultation undergoing surgery is generally safe.
This article outlines several issues for the person with a history of polio to consider when preparing for surgery. Some points are of increased importance if you had respiratory complications during the acute polio stage (such as use of an iron lung or swallowing difficulties) or if you had a history of respiratory problems in subsequent years, for example, asthma, sleep apnoea or shortness of breath. Many people who have had polio have a polio scoliosis which may also lead to respiratory deficiencies.
Preparing for surgeryAs a person who has had polio you have
a responsibility to inform and educate surgical staff, including dentists, of:
• Information about previous experience with anaesthesia/surgery;• Any drug reactions or
allergies;• Your medical history
including your history of polio;
• Current medications;• User of respiratory aids (such as
BPAP/BiPAP);• Presence of dental prostheses
(such as dentures/plates/caps);• Your current level of functioning;• Your fatigue level.Be sure to give the surgeon and anaesthetist an accurate picture of your functional and physical status.Point out your degree of muscle weakness and any other symptoms you might have (e.g. fatigue, joint pain). Outline your current mobility status, ability to transfer, use of aids and/or orthoses, and level of assistance required for personal care tasks.
Other ways to help yourself before your operation are to:
• Cease smoking;• Try to lose some weight if you are
overweight;• Reduce your alcohol intake;• Be as fit as possible and free from any
illness/colds.
Prior to undergoing surgeryObtain a second opinion if you have any doubts about the proposed surgery.It is important to establish communication with your
• Surgeon• Anaesthetist
In most cases, you will have seen your surgeon prior to admission to hospital. Your anaesthetist will most likely see you prior to your surgery, after your admission to hospital. If you have any concerns about having an anaesthetic, organise a consultation with your anaesthetist before your admission to hospital. Depending on your respiratory history and current status, the anaesthetist may request some pre-operative lung function tests and other relevant investigations. You may also need to see a respiratory physician.
Lung Function TestsPrior to surgery, lung function tests may be recommended for people:
• Muscles of respiration (such as trunk or neck) were affected by the polio virus.
• Who are experiencing new breathing, swallowing or sleeping difficulties.
Take the results of any previous respiratory tests and sleep studies to your anaesthetic consultation. If you any questions for your anaesthetist write them down so that you
19Inform
Polio Perspectivesdon’t forgat them during your discussion.
Breathing Apparatus (e,g, CPAP, BiPAP)If you use home ventilator support, make sure that you bring it in to hospital with you and discuss its use and operation/settings with the:
• Surgeon• Anaesthetist• Nursing staff on the ward and recovery room staff.
If your surgery is elective, you should be clear as to what the surgery entails. Also, make enquiries as to what the post operative care will entail including the likely requirement for any pain management. If you have any concerns, discuss these issues with your surgeon and anaesthetist, and if appropriate a Respiratory Physician.Remember to seek another opinion if your queries are not answered to your satisfaction.
Main types of Anaesthesia The type of anaesthetic that is employed by your anaesthetist will depend on what type of surgery you are undergoing and what is considered best and acceptable for you.Local AnaesthesiaThis type of anaesthetic is used for very local, superficial surgery (such as suturing a laceration). A local anaesthetic is injected to numb the surgical site.Regional AnaesthesiaAnaesthesia is injected around a nerve, or group of nerves, to numb the area of the body that requires surgery (e.g. epidural, spinal nerve block). A sedative is often used concurrently.General AnaesthesiaUsing a combination of injected drugs and inhaled gases, the patient is maintained in a state of unconsciousness throughout the surgical procedure. If required, a tube may be placed via your mouth into your windpipe (trachea). A ‘premedication’ is sometimes used prior to major surgery to help you relax.It is thought that some people who have had a history of polio may be more sensitive to anaesthetics and muscle relaxants due to the initial damage to the central nervous system during the acute viral phase, and also due to a reduced number of functioning motor units supplying the muscles.Care should be taken with the use of certain analgesics and sedatives.Diligent monitoring by staff during your surgery and post operative phase reduces the risk of complications.If you have limited movement notify your anaesthetist so that appropriate padding/protection is provided during surgery.
Post-operative CarePain ManagementMake sure you give the hospital staff an accurate indication of your pain levels so that adequate post-operative analgesia can be offered. Depending on the region of your surgery, pain can inhibit your ability to breathe deeply, cough, clear secretions, and move around. Patients with a history of swallowing problems may require assistance to clear secretions.MobilityBe aware that co-ordination can be impaired after use of sedatives or anaesthesia which may increase the risk of falling. However, you should aim to get up and about as soon as possible. This will help prevent any deterioration in your mobility status. Remember to take in to hospital any aids/equipment you might need during your stay to make your post-operative stay as comfortable as possible (e.g. electric wheelchair, slide board, walking aids, orthoses, CPAP). Ask for assistance from hospital staff, as required, to achieve such activities as bed mobility, transferring, walking, and personal care tasks (such as washing, dressing etc).TemperatureOperating suites and recovery rooms tend to be airconditioned, so are generally rather cool. Many people who have had polio are extremely sensitive to cold, especially in their limbs. Therefore take warm pyjamas and clothes with you and ask for extra blankets if you need them.
• Recovery room staff and nurses need to be told if you require artificial heat to regulate your body temperature. It needs to be explained that adding more blankets, without providing an artificial heat source may not be sufficient.
• Hospital policy may dictate what kind of additional heating methods can be used.
Other useful ideasTake this leaflet to hospital and to any pre-operative assessments.
• Carry around important health information in case of emergency (e.g. a card in your wallet, Medical Alert bracelet).
• Be concise and accurate about your medical history – perhaps type it up and highlight any areas relevant to your current situation.
• If you are having Day Surgery, try to arrange someone to stay with you for at least 24 hours after your procedure.
Source: Joint Polio Services Victoria and Polio Network Victoria publication Published May 2001
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Polio Perspectives
Polio Health and Wellness Retreat
Touched by Polio Art Exhibition The “Touched by Polio: from casts to catharsis” Art Exhibition Launch and Fundraising Auction was held on a very hot and windy evening in March, and was attended by around 40 people who braved the unpleasant weather conditions. Thirteen of the thirty five pieces were sold on the night, with 6 more having been sold since. The pieces have ranged from $150 to $500 and the total raised so far is $4,455. Check the exhibition website for pieces that have been sold already and consider making an offer for one of the remaining artworks. You can view the remaining pieces here www.polio.org.au/art/Each one tells a story, and any one of them can be packaged and sent anywhere that mail is delivered! If you simply must have one of these amazing pieces, email Mary-ann with your offer. And remember, it’s all for a good cause! Note: Postage costs will vary according to size and destination, and will be added to the purchase price.Polio Australia is keen to promote this exhibition widely, so if you have a solid contact for free exhibition space in the Melbourne metropolitan area, please contact Mary-ann Liethof on 03 9016 7678 or [email protected]
Story Time Fran Henke
Butterfly Dianne Kennedy
Splish, Splosh, Splash! Heather O'Flaherty
The 2013 Health and Wellness Retreat, held at the Stamford Grand in Glenelg, South Australia, got the thumbs up from the 70 polio survivors and their spouses/family members who attended. Participants came from all over Australia: 17 from NSW; 2 from the Northern Territory; 7 from Queensland; 25 from South Australia; 4 from Tasmania; 12 from Victoria; and 3 from Western Australia. Polio Australia National Program Manager Mary-ann Liethof was also delighted to have 2 volunteer helpers, Vivienne and Alex, who researched and wrote up a
report on the logistics of the Retreat as part of their final year of Physiotherapy studies at the University of South Australia.
There was some successful fundraising through raffle ticket sales and in addition a piece from the ‘Touched By Polio’ exhibition was sold for $400. Polio Australia was also delighted to receive a few generous donations towards the continuation of its work. It was a wonderful acknowledgement of the benefits of this annual program.
If all goes according to plan, the 2014 Retreat will be held again in New South Wales, where it all began.
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Polio Perspectives
We’re still hereThe second “We’re Still Here” descent on Canberra took place on Wednesday 26 June. What a day to be in nation’s capital as the ongoing and much speculated upon leadership issue of the ALP reached its climax. Everyone assembled in the lobby, to be escorted to the Sir Richard Baker Room. The Polio Family Tree was displayed there and people could add their leaves.
Despite the other events of the day, a number of parliamentarians who support Polio Australia’s cause addressed the group. Next was the opportunity for individual appointments with MPs and after lunch question time.
Another well coordinated campaign.
Australian Polio RegisterPolio Australia is still calling for people to add their name to the Australian Polio Register. Numbers are ammunition in the quest for greater recognition and funding for services for polio survivors and this is one way of gathering this important data.You can find the form online at www.polioaustralia.org.au
Polio Services victoria newsBlaise Doran has left his role of service coordinator and physiotherapist at Polio Services Victoria to take up a position at the Royal Children’s Hospital.At the time of writing there was no indication of when a new Polio Services Victoria coordinator will be appointed. Blaise will be greatly missed by many members of the polio community and also by other services working with this community. Blaise has been a great support to Polio Network Victoria, particularly the time he has given to attending our annual Polio Days.We wish him well in his new role.
Polio Survivors SurveyPost Polio Victoria has created a survey to assess the needs of polio survivors in Victoria. It covers a comprehensive
range of issues and you can fill it in online at http://bit.ly/18Ysm4x
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Polio Perspectives
Fran sails into publishing for her 70thSome people jump from a plane or go up in a balloon to mark their 70th birthday, but Fran Henke has published her first novel, a true story of love and survival in the extraordinary days of early Victoria.
The Other Side of the Wind: A Story of Survival was launched on June 22 by Dr Mary Ann Ghaffurian, daughter of Lucy Purcell who more than 20 years ago, told Fran a story of the arrival of her ancestors to Geelong.Author of 13 non-fiction books, Fran, a polio survivor, always wanted to write fiction but journalism intervened. A career in print, radio and publishing saw her working in London, Sydney, Melbourne and regional newspapers. She spent almost four years as a member of the Commonwealth Film Censorship Board and has written books on gardening, leading to columns on gardens for magazines and newspapers. As well as working as a media advisor for State and Federal MPs, Fran’s work in raising awareness of the needs of polio survivors has seen her win community service awards. She is chair of the Polio Reference Group, Victoria.But the story she heard in 1992 caught her imagination. Extensive research brought the story to life and led her to write The Other Side of the Wind.“Mrs Purcell told me that her ancestors came out to Australia on a sailing ship, landing at Pt Henry, near Geelong,’’ Fran said.“There was no wharf in those days so boxes and bags were thrown onto the beach. The couple found one was missing, so the husband when back to the ship to find it, but the wind changed and the ship – with him on board – took off through the Heads, leaving his wife stranded
on the beach. It took him six months to get back to Australia”.So, The Other Side of the Wind is set in 1851 in the new colony of Victoria. Boom town Geelong has grown on the sheep’s back, to become the main destination for people arriving from to join the gold rush.These people are making new lives – conservative graziers, bureaucrats with brutal pasts in the penal settlements, extroverted individuals determined to make their fortunes, ordinary folk escaping the clearances.Women are playing a key role, throwing off the shackles of old world convention, blazing trails in unexpected directions. They are striving to survive, to bring kindness and quality to the male-dominated society with its military rule under pressure from free settlers and free thinkers.This is the robust canvas onto which the newly married couple Edward and Catherine Anderson, arrive. They become unexpectedly separated after a wind shift sees Edward left on board and Catherine stranded in the new colony.How will the fragile artist Edward cope again at sea? How will Catherine manage in the frontier town without money and her beloved husband?If you would like information on how to get a copy you can contact Fran on 03 5979 7274 or [email protected]
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Polio Perspectives
Copies of the poster have been sent to all the Polio Support Groups to take to health professionals and/or community health centres. There are still copies left – please contact Jen Sykes on 03 9418 0452 or [email protected] if you have an idea for displaying one.
Independence Australia's Psychology Service offers free, confidential counselling for people with physical disabilities and their family members. Although our speciality is working with people who have spinal cord injuries and their families, we frequently work with people who have other physical disabilities such as polio, cerebral palsy or multiple sclerosis.Our experienced psychologists are available for individual, couples or family counselling. We also run various support groups for people with spinal cord injuries and their family members. People may attend for a wide range of concerns, including:
• Depression • Anger and frustration• Stress and worry• Grief and loss
• Relationship issues• Adjustment to living
with a disability• Self-esteem
• Thoughts of suicide• Pain and fatigue• Social isolation
and more.
Free counselling
24 Inform
Iron Wills – victorian Polio Survivors’ StoriesAt Polio Day 2012, the book ‘Iron Wills – Victorian Polio Survivors’ Stories’ was launched by Andrea Coote, the Parliamentary Secretary for Families and Community Services. Told by Victorians struck down by the poliomyelitis virus, this story describes how lives changed, mostly in early childhood, from diagnosis, to treatment, school, work, and to the dreadful discovery that worse was yet to come: the late effects of polio.
Their accounts reveal often painful and funny, highly personal, aspects of the epidemics. How families managed the often tough treatment meted out, also many wonderful ongoing relationships with physiotherapists, nurses and doctors.
Then comes the bombshell: how could there be a comeback! What was going on? It took years to convince the medical profession and even family members that Post Polio
Polio Network Victoria
Victorian Polio Survivors’ StoriesIron WillsA unique account of epidemic and aftermath
Iron Wills – Victorian Polio Survivors’ Stories
A unique account of epidemic and afterm
ath
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Syndrome was a reality. But through the fraternity of survivors through support groups, our own research and self-management has been the salve.Through papers and material from high profile survivors and health professionals, Iron Wills also explores the dilemma of post polio, the silence, the battle to be taken seriously by health professionals and government.Illustrated by photographs from family albums, as well as historical pictures, the aim is to validate the journey, to provide a unique record for others to learn from, before it’s too late.Iron Wills is available at a cost of $20. You can order a copy by filling out the form below.
I would like to order copies of Iron Wills at $20 per copy.
Total $
My details
Name
Address
Phone
Payment
Visa MasterCard Amex Diners
Cardholder Name
Card Number
Expiry /
Signature
Cheque Money Order (Make payable to Independence Australia)
Iron Wills – victorian Polio Survivors’ Stories order Form
Please send completed form to Jen Sykes [email protected] Independence Australia, 208 Wellington Street, Collingwood vIC 3066
Polio Perspectives
25Inform
Polio Perspectives
Polio Network victoria websitePolio Network Victoria has a new web address.www.independenceaustralia.com/polio Here you will find information about PPS/Late Effects of Polio, support groups, newsletters from Victorian groups and interstate networks and much more. Our aim is to expand the information available and the next project will be to include links to information sheets.
Special Purpose Post Polio FundThe aim of the fund is to finance the development of educational material and to conduct at least one post polio educational event per annum. Should larger sums of money become available, it would be desirable to be able to move beyond education to other forms of support for people with post polio once the educational activities have been undertaken each year.The Polio Reference Group (PRG) will recommend allocation of funds from the Special Purpose Post Polio Fund taking into account:
• The aim of the Special Purpose Post Polio Fund• The cost of the project• The complexity and length of time taken to
complete the project
PRG recommendations will be based on input from the combined February PRG and Support Groups Convenors review and planning meeting. The PRG will formally recommend any fund allocation to specific projects to Independence Australia.Money from the fund was used for Polio Day 2012 and the production of the Book “Iron Wills – Victorian Polio Survivors’ Stories’.To enhance the fund’s capacity to support its aims we are looking for ways to grow it over the next number of years as the need for awareness and education will only continue to increase.Contributions of any size are welcome to the fund and you can make a donation by filling in the form below.
Special Purpose Post Polio Fund
Please accept my gift of $ All donations of $2 or more are tax deductible.
My details
Name
Address
Phone
Payment
Visa MasterCard Amex Diners
Cardholder Name
Card Number
Expiry /
Signature
Cheque Money Order (Make payable to Independence Australia)
Please send completed form to Jen Sykes [email protected] Independence Australia, 208 Wellington Street, Collingwood vIC 3066
26 Inform
Polio Perspectives
All fields are required. Return this form by Friday 11 October to Jen Sykes, Independence Australia, 208 Wellington Street, Collingwood, VIC 3066 P 03 9418 0452 F 1300 704 451 E [email protected]
Personal Details
1. Name
2. Name
3. Name
4. Name
5. Name
6. Name
7. Name
8. Name
Contact Details
Address
Suburb Postcode
Contact Phone
Contact Mobile
Contact Email
Dietary Requirements
Ticket Details
I would like to book tickets for $20 each Total = $
I am not able to attend but would like to donate $20 to Independence Australia.
Payment Details
Visa MasterCard Amex Diners or Cheque Money Order Make payable to Independence Australia
Cardholder Name
Card Number Expiry /
Signature
Please send completed form by Friday 11 October to Jen Sykes, Independence Australia, 208 Wellington Street, Collingwood, VIC 3066
Polio Day Booking Form
Total ticket amountTotal ticket number
Polio day 2013 – Changing GearsJoin us for Polio Day 2013 on Saturday 26 October at the gorgeous The Pier Geelong, located on Cunningham Pier, 10 Western Beach Foreshore Road Geelong.This year’s event, Changing Gears, will address the changing pace of our lifestyles and bring together lots of useful and practical information to help you lead a happy and healthy life.
Our venue for the day, The Pier Geelong, is a striking landmark situated right in the heart of Geelong’s vibrant and modern waterfront precinct. It is an iconic venue set on the water with panoramic sweeping bay and city views. It is just a hop, skip and jump from many of Geelong’s attractions including the beautifully restored 1892 Carousel, the famous Bollards Trail and Eastern Beach.
The day will run from 10:30am–3:00pm and will include a number of short presentations including
• Advances in equipment – Ben McMurtrie from Geelong Orthotics and Peter Willcocks from the Aids & Equipment Action Alliance and member of the Bayside Post Group
• DisabilityCare – the latest news• Travel opportunities for people with a disability–
John Kenwright from Parks Victoria• Tales of first hand travel experiences – Bev Watson
from the Bendigo Polio Group and Polio Reference Group member and Shirley Glance from the Bayside Polio Group
• Fatigue – Margaret Petkoff, occupational therapist from Polio Services Victoria
• Diet & Nutrition – Karen Binks, Geelong based exercise physiologist and nutritionist
• Seated Tai Chi – Geoffrey Moss from Geelong Tai Chi.
There will also be a mobility equipment display set up by Mobility Aids Australia.
The booking form to attend this day is on the opposite page.
Apart from the interesting presentations, Polio Day is always the perfect opportunity to catch up with old friends and to make some new ones as well.
Ticket cost is $20 and this includes morning tea and lunch.
We look forward to seeing you there.
27Inform
Polio Perspectives
All fields are required. Return this form by Friday 11 October to Jen Sykes, Independence Australia, 208 Wellington Street, Collingwood, VIC 3066 P 03 9418 0452 F 1300 704 451 E [email protected]
Personal Details
1. Name
2. Name
3. Name
4. Name
5. Name
6. Name
7. Name
8. Name
Contact Details
Address
Suburb Postcode
Contact Phone
Contact Mobile
Contact Email
Dietary Requirements
Ticket Details
I would like to book tickets for $20 each Total = $
I am not able to attend but would like to donate $20 to Independence Australia.
Payment Details
Visa MasterCard Amex Diners or Cheque Money Order Make payable to Independence Australia
Cardholder Name
Card Number Expiry /
Signature
Please send completed form by Friday 11 October to Jen Sykes, Independence Australia, 208 Wellington Street, Collingwood, VIC 3066
Polio Day Booking Form
Total ticket amountTotal ticket number
Independence Australia offer a wide range of specialist community support services and accommodation options.
Our services include:
Supporting people with a disability or other physical need to regain, retain and extend their independence
• In-home Support• Accommodation and Housing• Respite• Counselling• Case Management
• Outreach Support• Recreation• Information• Post Polio Support
For enquiries please contact us on 1300 704 456 or service.enquiry @independenceaustralia.com
CS AdvertA4 2012.indd 1 29/03/2012 11:33:14 AM