inclusion north bulletin 110

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1 In this bulletin you will hear about some of the work Inclusion North is doing and information about what is happening across the country. Find Inclusion North on Facebook and Twitter  You can find out more about all the work we are doing by following us on Facebook and twitter at: Facebook: www.facebook.com/InclusionNorth Twitter: @InclusionNorth 2015 Family Carers Survey Summary In September 2015 we did a simple survey to try to find out a bit more about what family carers think. We also wanted to know more about how Inclusion North makes a difference to people. This gives us some ideas about the sort of work we need to do and whether we’re doing it right.  You can see the summary report of what people said on the link below http://bit.ly/1LDSEaX Inclusion North Bulletin Issue Number 110 24 th  Februar 2016

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8/20/2019 Inclusion North Bulletin 110

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In this bulletin you will hear about some of thework Inclusion North is doing and informationabout what is happening across the country.

Find Inclusion North on Facebook and Twitter

 You can find out more about all the work we aredoing by following us on Facebook and twitter at:

Facebook: www.facebook.com/InclusionNorth 

Twitter: @InclusionNorth

2015 Family Carers Survey Summary

In September 2015 we did a simple survey to try to findout a bit more about what family carers think. We alsowanted to know more about how Inclusion North makes adifference to people.

This gives us some ideas about the sort of work we needto do and whether we’re doing it right. 

You can see the summary report of what people said onthe link below

http://bit.ly/1LDSEaX 

Inclusion North BulletinIssue Number 110

24th

 Februar 2016

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Reflecting on Good Partnership Working by

Gateshead Partnership Board

Gateshead were committed and determined to make the

best of their partnership working with Inclusion North andset out on a journey to make it a success….. 

Thoughts from the board…… 

We wanted to have a committed, driven, strong board

that understands what it’s job is and is a place of

expertise and respected opinion so people come to us for

support in the direction and delivery of our learningdisability services.

We set out to check up on all the members who were on

paper committed, but who often didn’t come along to the

meeting. We asked people to commit by signing up to our

working together agreement.

We got a brilliant committed new chair who wasindependent of the council and who had been a long

standing active member of the board for years.

We agreed a working group to design an action plan to

drive forward change and get the views of people living in

Gateshead.

 All of this work has created a more dynamic, focused andcommitted partnership in Gateshead. This has given

Gateshead the ability to drive forward change that is

wanted and needed for their local population. They are

able to gather this information from people and families

from being well connected and supportive – this is

highlighted in the response to the 100 voices work we

have just done across the region.

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We believe that this shows that with a determination to

working alongside people with learning disabilities,

families and other professionals, the partnership board

are a brilliant driver for change and better services.

New Winterbourne View report

Sir Stephen Bubb is leading the work looking at new

safeguards and support for adults with learning

disabilities after the abuse that happened at

Winterbourne View.

Sir Stephen has now published his latest and final report

called Time for Change – The Challenge Ahead.

You can read the full report here

http://bit.ly/1SN6eAo 

 And here is the EasyRead of the report

http://bit.ly/1QbH3p7 

The report looks at the progress made in the last year by

the transforming care programme, and also looks at the

big challenges ahead and what the best way to meet

them might be.

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Making sure people get better care and

support 

The Royal College of Nursing (RCN) supports nurses,

people training to be a nurse, midwives and health care

assistants.

The RCN give them advice and support and help make

their work the best it can be.

They have made a report called Connect for Change,

which is about what the Royal College of Nursing think

needs to happen to help move people out of hospital and

into homes.

You can read their Connect for Change report here

http://bit.ly/1PV8lhX

You can see the EasyRead report here

http://bit.ly/1PV8lhX 

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Positive Behavioural Support Resources

The PBS Academy is a group of organisations and

people who are working together to promote Positive

Behavioural Support (PBS) for working with children andadults who are at risk of behaviour that challenges.

There are booklets for people with learning disabilities

about having a good life, which you can download on the

link below

http://bit.ly/1QtvSE1 

There is new information for Commissioners and Care

Managers about best practice and contracts which you

can see here

http://bit.ly/1Q5B95o 

There is also a checklist for Service Providers which youcan see here

http://bit.ly/1oXBIHO 

The PBS Academy hope to have more resources for

Family Carers available soon. 

You can find out more about the PBS Academy on their

website at

http://bit.ly/1LCyi1U 

You can also follow PBS Academy on Twitter

@PBSacademyUK 

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Making Freedom Real – Makaton for Adults

Makaton is an important way of communicating for many

people with learning disabilities or communication

problems.

It has a strong track record in helping people

communicate and this is a basic requirement of human

rights and the right to personal freedom.

It is a concern that good work in schools appears to betoo often stopped as people become adults.

The Centre for Welfare Reform have published a report

which suggests that there is a basic failure in adult social

care to support people who use Makaton to use and build

on their skills as adults.

You can find out more on the Centre for Welfare

Reform’s website at 

http://bit.ly/20SFCgJ 

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Housing Guide for Families

The Housing and Support Alliance (H&SA) has beenfunded by NHS England to write a guide for families on

how they can change their surroundings or housing tobetter meet the needs of their child with learningdisabilities and challenging behaviour.

H&SA is also writing a guide and producing a trainingvideo for housing, health and social care organisations sothat they can better help families get the housing theyneed.

They want to make sure that the guide and videos are asuseful as possible to families and professionals, so theyare asking for people’s help to tell them about the areasin which they most need advice, support and informationwhen it comes to getting the right housing.

H&SA have made a survey for families to tell them about

their experience of getting the housing they need

http://svy.mk/1SQfhAD 

They have also made a survey for people who work in

housing, health and social care to share examples of

what does and does not work

http://svy.mk/1QAg4FR 

H&SA also want to hear from family networks that they

can meet with in February 2016. To take part in this,

contact Kate at

[email protected] 

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Challenging potentially unlawful decisions by

public bodies

Housing and Support Alliance are also running a session

that will help care providers understand how to address

potentially unlawful decisions by public bodies about the

provision of services to disabled people.

The session will have particular focus on the legal dutiesunder the Care Act 2014.

 As well as looking at legal rights and obligations, the

session will focus on useful ways that decisions by publicbodies can be challenged, including the role of judicialreview.

 A judicial review is when a court can look at an actionmade by a public body to decide if it was lawful or not.

The session will have plenty of time for questions anddiscussion. Attendees with specific questions arewelcome to send them in advance to Steve at

[email protected]

 As many questions as possible will be addressed duringthe session.

The session takes place on

14th April in London

There are a limited number of free places for people with

learning disabilities and family members. If you would like

to go to the session, contact Mariana at

[email protected]

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Workshop for siblings in Leeds

Sibs want to start a support group for adult siblings of

people with a lifelong learning disability and/or autism.

They are having a workshop where you will have the

opportunity to share experiences with other adult siblings

locally and learn more about developing a sibling group

in Leeds.

Sibs hope you will come to the workshop and join the

growing community of adult siblings in the UK.

The workshop takes place on

9th March

From

7.00pm to 9.00pm

You can find out more on the event flyer here

http://bit.ly/1WG6jnZ 

You can book a place on their website at

http://bit.ly/1TCP5JU 

You can contact Sibs on

[email protected]

or by calling

01535 645453 

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CQC Regional Event in Sunderland

Sunderland People First are holding a Care QualityCommission (CQC) day. The event is for people with

Learning Disabilities, their families / carer’s andsupporters.

CQC are very keen to get feedback, good or poor, aboutany service that people have used.

There will be a presentation about CQC and how theycarry out inspections.

 A CQC Inspector will also be here to talk about a day intheir life.

The event takes place on

29th March

From

10.00am to 3.00pm

 A Buffet Lunch will be provided and travel costs paid.

There will also be a £15 Love to Shop voucher availableto each participant.

If you would like to come along, please contact DonnaJohnson at

[email protected]

or call

0191 281 8737

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Uncut Cords: Changing Families, ChangingCarers

Uncut Cords is a genuine and passionate new book

written by seven York mothers of teenage and adultchildren with learning disabilities.

Each chapter is themed and composed of short, self-contained stories.

 As part of York Literature Festival, Dame Philippa Russell

will be supporting the authors as a speaker at an eventon

18th March

from

2.00pm to 4.00pm

at

Quaker Meeting HouseFriargateYorkYO1 9RL

You can find out more on the event flyer here

http://bit.ly/1TwEzmk 

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Good Practice in Looking After Your Weight

The Improving Health and Lives (IHaL) team are

preparing their next 'reasonable adjustments' report.

They know that many people with learning disabilities are

either underweight or overweight. Both of these can lead

to poorer health.

The focus of the next IHaL report will be about looking

after your weight for people who are overweight.

The aim of the report is to share information, knowledge

and best practice throughout the country to support

people in improving services and care.

They would like to include as many good case studies as

possible in this report so that other people can benefitand use this information to support people with learning

disabilities to look after their weight.

If you would like to share your stories, examples of your

work or resources with IHaL, please send them to

[email protected] 

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Doctors, Talk to me

 A group of young people with learning disabilities have

been working with Harriet at Healthwatch, along with

Fixers, Paperworks and Youthwatch.

They have made a short film called ‘Doctors, Talk to me’

which is aimed at doctors, dentists and other people in

healthcare.

The film was made to give people an idea about how

scary going to the doctors can be if they don’t explain

what they’re doing. 

This is a free resource to share with people who work

with people with learning disabilities.

You can see the film on the link below

http://bit.ly/1RYUGJB 

There is a poster to go with the film, which you can

download at

http://bit.ly/1QAAqi6 

Higher quality printed copies of the poster are available

by emailing Harriet at

[email protected] 

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Mixed Ability Sport Survey

Mixed Ability Sports want to find out people’s views onbringing together disabled and non-disabled people who

take part in regular sports and activities.

They are asking both groups of people to complete theirMixed Ability Sport Survey.

You can take the survey online at

http://bit.ly/1QXKBaT 

Or you can download an electronic copy of their surveyform here

http://bit.ly/1TwC03F 

and return it to

[email protected] 

You can also find out more about Mixed Ability Sports on

their website at

http://bit.ly/21c6qhH

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'Talk About Taking Part’ survey 

Wheelpower have made a survey will find out what canbe done to help more wheelchair users lead healthy

active lives and take part in sport and physical activity.

People who use a wheelchair in everyday life, or whowould use one for sport, are urged to complete thesurvey.

They are keen to find the views of those who don’t takepart in any sport as well as people who already leadactive lives.

The survey takes around 10 minutes to complete andaims to find out what activities wheelchair users currentlytake part in, what they would like to try or do more of inthe future, and how Wheelpower can support them to dothat.

You can do the survey on the link below

http://bit.ly/1VBGRQ1 

The last day that you can do the survey is

6th May

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Free access and transport to Newcastle

museums

Disabled Access Day is for  all disabled people and their

families, friends and carers.

People take part by going to a place they haven’t visitedbefore, taking photos of themselves there and tellingpeople about their experiences on Twitter or Facebook.

Disabled Access Day 2016 takes place on

12th March

Rob Latham at Tyne & Wear museums tells us that all of

their events for Disabled Access Day are free and so is

any communication support.

Free transport can be arranged, for any deaf or disabled

person who does not have access to a car and / or

cannot use public transport comfortably.

You can see a list of events that this offer is open for

here

http://bit.ly/1Uk4Pkw 

You can also find out more on the Tyne & Wear

museums website at

http://bit.ly/24n37mW

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Dance Syndrome’s Thunderclap campaign 

Dance syndrome are an Inclusive dance group led by

people with learning disabilities, and which was started

by Jen Blackwell.

Jen has written a message to the trustees ofDanceSyndrome that they want your help in sharing onsocial media for their ‘thunderclap’ on 8th March.

Jen’s message is: 

"Thanks very much for everything that u are doing forDanceSyndrome and I really can't believe it as I amchanging other people’s lives through dancing. I couldn'thave done it without support and u guys have touchedmy heart and for that I am very thankful"

Jen want’s people to share this on

8th March

because it is also International Women’s Day 

You can take part by sharing this on one or all of the links

below

Twitter

http://bit.ly/1QXwBhk 

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Facebook

http://on.fb.me/1mUzDL3 

 And here is the Thunderclap page that also tells youmore about Dance Syndrome

http://bit.ly/1UjX3ab

Self Advocates Health Action Heroes

York Advocacy were able to get a grant from NHS

England on behalf of the Self-Advocates Forum.

They used the grant to help find a creative way to show

some of the work self-advocates had been engaged inaround access to healthcare.

For the project they created a ‘Superheroes Comic’ with

characters based on themselves and villains intent on

stopping them being involved and included in issues

around health!

You can read the comic here

http://bit.ly/1OskHKs 

 And here is the story about how the comic was made

http://bit.ly/21nGg8d 

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What is coming up next at Inclusion North

24th February North East Family Carers Network

25th February Yorkshire and Humber Family Carers

2nd March Yorkshire & Humber Lead Officers

14th March South Tees Provider Forum

17th March Yorkshire & Humber Leadership Group

22nd March Care Act session Darlington

23rd March Care Act session Newcastle

If you would like to know more about any of these events

contact Marie on 0113 244 4792

[email protected] 

If you would like any information on any of ourmeetings, training or projects you can contact theoffice on: 

Tel: 0113 244 4792

E-mail: [email protected] 

Or you can write to us at:

Inclusion North CICWoodhouse Community Centre197 Woodhouse StreetLeeds, LS6 2NY

You can visit our website at:

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Inclusion North Member Areas 2015-16

If you live in one of these areas you can come to ourmember events.

 Yorkshire and the HumberBarnsleyBradfordCalderdale

DoncasterHullLeedsNorth LincolnshireNorth YorkshireSheffieldWakefieldYork

North EastDarlingtonDurhamGatesheadHartlepoolMiddlesbroughNewcastleNorth Tyneside

NorthumberlandRedcar and ClevelandSouth TynesideStocktonSunderland