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TRANSCRIPT
Designing for Patients Designing for Ourselves
Pat Mastors President | Co-Founder The Patient Voice Institute Hx Refactored | May 14, 2014 PatientVoiceInstitute.org [email protected] Twitter: @Pmastors @PatientVoices
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
Designing an Ecosystem Focused on Care
…use our empathy to identify and address unmet needs… Asking “What if”?
My plan today:
§ Success stories – “unmet needs” § A major announcement! § Q & A
Michael Graves Architect & Designer
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
Michael Graves Architect & Designer
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
Patty Skolnik Corporate Executive, Wife, Mother
Patty Skolnik Corporate Executive, Wife, Mother
Pat Mastors TV News Reporter, Wife, Mother
Pat Mastors TV News Reporter, Wife, Mother
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
Pat Mastors TV News Reporter, Patient Advocate
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.
• NQF • PfP • CU Safe Patient Project • IPFCC • IHI Forum • QNet
…Patient advocates finally get a seat at the table (but something’s not working…)
§ We’re often an afterthought § We have few resources (funding,
infrastructure) § We also have to make a living
(is our time valuable?)
…Patient advocates Finally Get a Seat at the Table, but how effective can we be?
§ We have different, sometimes singular stories § No “database” of patients § We don’t all agree on approach (“partnership” vs. more aggressive stance) § Those who are successful are SWAMPED!
…We Finally Get a Seat at the Table…
Patient Voices Need a home
Pulling from PwP & IHI experiences…
WHAT IF…? We Built a New Community for Patient Voices…
Welcome Newly
Activated
Training Development
Support
Speakers Advisors
Consultants
WHAT IF it was a resource for any entity seeking Authentic Patient Perspective ?
Surveys Focus Groups
Geographically Or by Topic
Speakers Advisors
Consultants
WHAT IF all who joined embraced Reliable, Consistent Principles…
Safety
Partnership
Compassionate Interaction
Access to Meaningful Information
Continuity in Care
WHAT IF everyone in this new community pledged to weave their authentic personal story into those Reliable, Consistent Principles?
WHAT IF…we enlisted known Patient Engagement Leaders to show us the way?
Introducing The Patient Voice Institute (PVI) http://patientvoiceinstitute.org/
E-Patient Dave Alicia Cole Regina Holliday Patty Skolnik
Pat Mastors Jean Rexford Diane Stollenwerk Libby Hoy
Senior Advisors
“Patient Voice Principles”
We want “Frictionless”…
We want Interoperability…
“Frictionless Interoperability” The missing piece
How it Translates (Why it Matters)
What about the next person?
Design an Ecosystem Focused on Care… For Yourself
PatientVoiceInstitute.org Pat Mastors President | Co-Founder [email protected] Twitter: @Pmastors @PatientVoices
Copyright © 2014,The Patient Voice Institute, All Rights Reserved.