how telling your story can make an impact - nami presentation
TRANSCRIPT
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HOW TELLING YOUR STORY
CAN MAKE AN IMPACT ANDHELP CREATE CHANGE
Susan Inman,
author, A fter Her Brain Bro keVancouver, Canada
Randye Kaye,
author, Ben Behind His Voices
Trumbull, Conn.
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STORIES
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Agenda
Sharing:Susan and Randyes Stories
Clarifying: Your Story and Why Tell it?
Brainstorming: Small Group Feedback Combining: Tell us your group findings
What Issues?
Who needs to hear the messages? Storytelling Basics
In print, in person, in media, online
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Susans StorySelected Advocacy Issues:
Need for science based public
education about psychoticdisorders
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Advocacy Issues, cont.
Need for science based education about
psychotic disorders for all programs
training mental health professionalsaddress history of unjustified parent blaming
Need for appropriate education for
consumers about psychotic disorders
address dangers to consumers about unjustified
family blaming
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Using an Incident for Advocacy
my daughters story told in WRAP program
that participants had suffered childhood
trauma and abuse from parents who were
never there for them
wrote description of her experience and
sent to senior management of mental health
services
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Incident for Advocacy, cont.
wrote Huffington Post Canada article:
How Peer Workers Can Hurt People with MentalIllnesses
Advocacy Issues:
appropriate training and supervision of peersupport workers
need for expensive programs for people withpsychotic illnesses (ex. CBT and Cognitive
Remediation Programs)
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Randyes Story
Ben Behind His
Voices:
One Familys Journey
from the Chaos of
Schizophrenia to
Hope
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Once upon atime, a hug
was all it
took
Stage One
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Diagnosis and Reality
Stage Two
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Support, Education
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Recovery:
the Rocky
RoadIncident
Stage Three
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Recovery Village
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Possible Advocacy Issues
Listen to the Family/Long-Term Caregivers
Need for Treatment Changes in Gradual
Steps
Necessity for Community for Recovery
Assisted Outpatient Treatment (Treatment
Advocacy Center) Role of Clear Structure for Success
Loneliness and Mental Illness
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SEARCH: What Families Need
When Mental Illness Strikes
Support
Education Acceptance
Resilience
Communication skills
Hope and Humor
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Randyes Responses
NAMI Family-to-Family
Book
Blogs: BBHV and Mental Illness in theFamily
Letters to Editor, comments online
Theatre: Momoirs
Speaking: APA, APNA, US PsychCongress, Nursing/Psych/Counselingstudents, Hospital Staffs, Police, etc.
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Whats YourStory?
(Personal or Agency)
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Thinking
What?: Overall storyor specific incident?
Why tell this story?
(Purpose) To Whom? (PotentialAudience)
Whats in it for my
Audience? (KeyPoints, Call to
Action?)
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Where to Start? Write it Down!
Overall Situation
One Incident to Focus On Today
Some Details
Who, What, When, Where
Feelings/Emotions
Discovering its Meaning/Impact
What could have been done differently?(Need for Change/Solution-Oriented)
Supporting Facts, Statistics?
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Group Brainstorm!
Pick Facilitator
Notes common threads
Story Share (1 minute)
Feedback (1 minute)
Other meanings/issues
Ideas where/how to tell it
Clarify Common Threads
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Group Summaries
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Where to Tell Your Story
Public Speaking: support groups
programs training mental healthprofessionals
staff professional development
religious organizations radio and television
conferences: submit proposals
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Where to Tell Your Story
In Writing:
letters to the editor
letters to politicians op-ed pieces
comments on online articles and blogs
Use Hyperlinks to Educate:
ex. www.treatmentadvocacycenter.org
ex. www.nimh.nih.gov
http://www.treatmentadvocacycenter.org/http://www.treatmentadvocacycenter.org/ -
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Some Resources
Toastmasters (toastmasters.org)
Keep The Promise Coalition
NAMI (nami.org) Healthy Place (healthyplace.com)
After Her Brain B rokeresource list
Ben Behind His Voicesresource list Randye and Susans mailing lists
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[email protected]@gmail.com
Tell Your Story.
Make an Impact.
Create Change!
mailto:[email protected]:[email protected]:[email protected]:[email protected]