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How health and care services should support people whose behaviour is very difficult. This is an EasyRead version of: Positive and Proactive Care: reducing the need for restrictive interventions.

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Page 1: How health and care services should support … › government › ...How health and care services should support people whose behaviour is very difficult. This is an EasyRead version

How health and care servicesshould support people whosebehaviour is very difficult.

This is an EasyRead version of:Positive and Proactive Care: reducing theneed for restrictive interventions.

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What is in this paper

About us 1

About this paper 2

About restrictive intervention (RI) 5

About the Mental CapacityAct (2005)

9

Who this advice is for 12

What our advice says 18

The most important thingswe believe

21

Actions - the most importantthings to do

24

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About us

We are called the Department of Health.

We are in charge of health and adultsocial care and support in England.

We want to make sure abuse neverhappens.

This means services must understandbetter ways to support people.

We asked people about better ways ofsupporting people whose behaviour is verydifficult.

This paper is about our new advice formaking sure staff do this properly.

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About this paper

In 2011 there was a TV programme abouta hospital called Winterbourne View.

Some staff at Winterbourne View treatedthe people who stayed there very badly.

We looked at care in other services forpeople whose behaviour is very difficult.

We found many staff do not understandhow to support people when they dothings like:

l hurt other people

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l hurt themselves

l run away.

Staff might stop them or make them dosomething they do not want to do.

This is called restrictive intervention.

We explain more about this in a moment.

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Sometimes staff have to do this to keepthe person or other people safe.

Sometimes it is wrong and is abuse.

This paper is about our advice for makingrestrictive intervention happen less in:

l health services

l adult social care.

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About restrictive intervention

Restrictive intervention is when staff:

l make someone do something they donot want to do or

l stop them doing something they wantto do.

They must only do this if there is no otherway to keep people safe.

When we talk about restrictiveintervention in this paper, we use RI forshort.

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We want health and social care servicesto:

l only use RI when other things have notworked

l understand other ways of supportingpeople when their behaviour is verydifficult

l share good ways of working

LAW l stick to the law and tell other peoplewhen they use RI.

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Different types of RI

There are 4 main types of RI

1. Physical restraint or interventionwhen you stop the person moving partof their body. For example, hold themso they cannot hurt other people.

Staff must keep talking to the person tocalm them. They must check that they aresafe.

2. Mechanical restraint when you usesomething else to stop the personusing part of their body. For example, ahelmet, belt or splint on their arm.

Staff should only do this when nothingelse stops the person hurting them self orother people.

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3. Chemical restraint when you makesomeone take medicine to calm down.

Staff should only do this in a realemergency and use as little medicine asthey can.

4. Seclusion when you keep someoneaway from other people, this could bein a locked room. It is usually so theycannot hurt them.

LAW

Staff can only do this if the law allows it.

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About the Mental Capacity Act(2005)

In the advice we talk a lot about theMental Capacity Act (MCA).

When we write MCA in this paper wemean the Mental Capacity Act.

The MCA is a law about making decisions.Mental capacity means being able tomake your own decisions.

Staff must tell you about treatment orcare in ways you understand. They mustask if you agree with it.

The Act tells them how to find out if youcan make your own decisions.

You might be able to make somedecisions, but not others.

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The Act tells people what to do if youcannot make some decisions for yourself.

1. 2. 3. 4. 5.

People must think about 5 importantthings when they use the Act:

1. Start off by thinking everyone canmake their own decisions

2. Give the person all the support theycan to help them make a decision

3. No-one should be stopped frommaking a decision just becausesomeone else thinks it is wrong or bad

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4. If someone does something or decidesfor someone who does not havecapacity they must think if this is whatthe person wants

5. If someone does something or decidesfor another person they must do it in away that makes sure the person keepsas many of their rights and freedom aspossible.

If you need treatment or care in a hospitalor care home you should be free to dothings you want to do.

The Act says what must happen if youcan’t make your own decisions and staffstop you from leaving a hospital or carehome to give you care or treatment.

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Who this advice is for

Services

Lots of different people must make sureservices use RI well and give safe care.

This includes:

l people who run and manage services

l people who plan and buy services

l people who check how good servicesare

l staff who work in health and socialcare services wherever they give care

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l local groups who check services aresafe

l people who train health and socialcare staff

l people who train about RI.

The advice will help staff care for peoplewhose behaviour can be very difficultbecause of:

l their mental health

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l autism

l learning disability

l dementia an illness that can makepeople very confused. People over 65are more likely to get it than youngerpeople.

RULES

There are different rules for the police andprison staff.

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The Care Quality Commission (CQC)

The CQC check health and adult socialcare services in England.

This advice will help them decide whetherservices give good safe care.

They will think about how services userestraint (hold people) to stop themhurting themselves or other people.

They will check that services write downevery time they do this.

October2014

NRU

EWLE

From October 2014 CQC will have a newstandard or rule to check whether servicesgive people the right type of safe care.

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Other people

The advice might also help:

l people who use services

l families and carers

l advocates and advocacy organisations

l the police

RULES l organisations that make rules aboutservices

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l councils

l lawyers

l security staff in health and social careservices.

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What our advice says

We want to make sure abuse neverhappens.

Staff need to understand why someone might hurt other people.

Some people do not get the right serviceor can’t say what they need.

This can make them upset or angry.

This might mean they hurt themselves orother people.

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Some services know someone might needRI.

uve B ha io rnPo

Supp rt la

They will have a behaviour support planthat says:

l what might make them angry or upset

l how to help them get angry or upsetless often

l how to calm them down

l what people who support them need.For example, training for support staff.

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Some services like hospitals or the policedo not know people well.

They must make things better for anyonewho might get angry or upset.

For example, having food or drink orsomewhere safe to go outside.

Their staff need to know about the MCA.

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The most important things webelieve

This advice is to help services only use RIwhen nothing else will work.

HumanRights Think about human rights the things that

every person has the right to expect.

For people whose behaviour is verydifficult this means:

l being involved in thinking about riskand support

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LAW

HumanRights

l staff who know about the law andhuman rights

l not being treated worse than anyoneelse because of who you are or whatyou believe in

l knowing about rights

l services that understand laws abouttreating people equally and fairly.

Understand the way people behave andhelp them do things that are important tothem.

LAW

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Involve people and their family or carerswhenever they can.

Treat people kindly and think about whatthings are like for them.

Support people to be safe without takingaway all their choices.

Make sure people who run services andpeople who use them can understand andtrust each other.

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Actions - the most importantthings to do

RI can be dangerous for both staff and forpeople whose behaviour is very difficult.

These things will help services:

l support people better

l keep everyone safe

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l give people better lives

l use RI much less.

Make care betterviour

Beha at Suppor Pl n

People who might need RI must have abehaviour support plan about how to helpthem:

l not get angry and upset so often

l calm down if they get angry or upset.

viour Beha at Suppor Pl n This information will be in their care plan.

It will help staff use RI less often.

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Services will involve people, their familiesand carers in planning and checking alltheir care and support.

Staff must not hold people in ways thatcan stop them breathing.

Staff must not hurt people on purpose tomake them do something unlesssomeone’s life is in danger.

Staff should only use RI if they really needto and for as short a time as possible.

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Make sure services give good safecare

Directors or senior managers must show itis important to use RI less.

They will have a plan for this and check ifit is happening.

They will also agree what training staffneed.

viour Beha at Suppor Pl n

Directors or senior managers must look atbehaviour support plans each year.

They will use this to plan safer services.

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Services must write down how to keeppeople safe when they use RI.

Services must have a plan for using RI thatis easy for people and their carers tounderstand.

Services must tell commissioners if theyuse RI so they can check and act if theythink this is wrong.

Commissioners buy services for localcouncils or health organisations.

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Check what is happening

The CQC will:

l think about how services use RI whenthey decide how good they are

l check how a service plans to use RIless often to give safe care

uve B ha io rnPo

Supp rt la

l look at behaviour support plans whenthey check services.

Commissioners will:

l make sure services are safe and rightfor the person

l check staff are well trained.

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Making sure RI happens less

RI should happen less because:

l it can hurt people

l sometimes it does not need to happen

l it stops people from doing what theywant

l it can mean people are left out.

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Services must have a plan that says:

l how managers will tell staff it isimportant to use less RI

l how staff will involve people, theirfamilies and advocates

l better ways to support people

l how they will talk about it and learn ifthey have to use RI

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l how they will know RI happens less.

If staff need to use RI they must talk tothe person afterwards about:

l what it felt like for them

l whether they need any help or support

l why they got angry or upset

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l anything that could have been better

l how to stop it happening again.

If staff have to use RI

Some people have died or been hurt whenstaff did not use RI properly.

LAW

Services must stick to the law and:

l only use RI if they really need to

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l only do RI for as short a time aspossible

l write down what they do and talkabout it afterwards

l be honest about what happened andwhy they did it

l never hurt someone to stop themdoing something

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l make sure the right staff are helpingwhen they do RI

l always think about what the personwants.

LAW There are laws about treating people andmaking them stay in hospital.

Staff must talk to the person about whatthey are going to do.

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The MCA says what staff must do:

l if the person understands the decisionand refuses

l if the person does not understand thedecision.

What support organisations need todo

Services that support people need to:uve B ha io rnPo

Supp rt la

l check plans about the support peopleneed, like their behaviour supportplans. CQC will look at these when theycheck services

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l have plans to keep staff safe and makesure they know the best ways tosupport people

l write down when they use RI and whythey have used it. Let the public seethis information each year and sayhow they will make care safer

l services must also tell the NHS andother people who collect informationso services can learn how to do thingsbetter

l have clear plans about using RI safely.They should involve people who useservices and family carers or advocatesin writing the plans and checking howthey use them.

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Training

Staff who might use RI need specialtraining.

All staff need to understand RI and thinkabout:

l what it is like for people who useservices

l how to support people well

l what support staff need

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LAWl the law

l how to keep people safe

l how to talk to people after they haveused RI.

The training must help staff understandthe needs of people they support.

The training should involve people whouse services and carers. This will help staffknow what RI feels like for them.

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Staff must only use RI that they have beentrained to do.

What people who plan and buyservices must do

Commissioners buy services for the NHSor local councils.

They must make sure services are safeand staff are well trained.

They must:

l only put people in services that haveplans to use RI less often

l make sure the service can supportthem safely if their behaviour is verydifficult

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l check how the service is supportingthe person

l make sure the service trains its staffwell

l act quickly if they think a service is notsafe.

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Credits

This paper has been designed andproduced for the Department of Health bythe EasyRead service at Inspired ServicesPublishing Ltd. Ref ISL238/13. March 2014.

www.inspiredservices.org.uk

It meets the European EasyRead Standard.

It has been user-checked by theMaking It Easier Group of people withlearning disabilities.

Inspired

Artwork is from the Inspired Photocollection and cannot be used anywhereelse without written permission fromInspired Services Publishing Ltd.

www.inspiredphotos.org.uk