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Spring 2019

GATEWAY

CONNECTION

CALENDAR OF UPCOMING EVENTS

April

19 World Hemophilia Day “Project Gratitude”, St. Louis

20 Camp Open House Camp Wyman, Eureka, MO

20 Teen/Young Adult Day Hike Greensfelder Park

30 Camp Applications Due!

May 4 Unite for Bleeding Disorders Walk/5K, Forest Park

June 5-8 Camp Notaclotamongus Camp Wyman, Eureka, MO

27 Positive Psychology Can Help Us Thrive, Location TBD

July 12-14 Family Education Weekend DoubleTree Chesterfield

August 22 Wine Tasting Fundraiser Farotto’s, Rock Hill

September 23 Tee Off 4 Hemophilia Golf Tournament, The Legends

WWW.GATEWAYHEMOPHILIA.ORG

Stay up to date by following us on social media!

@gateway @Gateway @gateway hemophilia Hemo hemophilia association

Sign up today for GHA’s 10th Annual Walk & 5K

Date: Saturday, May 4, 2019 Time: Registration starts at 8:30 a.m. Ceremony begins at 9:30 a.m. 5K and Walk to follow Location: Forest Park Cricket Field St. Louis, MO 63112 2019 marks the 50th Anniversary of Gateway Hemophilia Association. The Unite Walk will be an important part of our year-long celebration, so we are setting big goals for this event:

50 Fundraising Teams for 50 Years, over 400 participants, and raising $70,000!

Join with us and be part of the celebration! The money raised at the Walk will be used to assist GHA’s overall mission to raise funds and awareness for bleeding disorders and to prevent complications through education, awareness, advocacy and research.

The Walk includes breakfast, chip timing for registered 5K participants, a DJ, a STLFD firetruck, Billy the Blood Drop, a pet hydration station, and fun for people of all ages!

REGISTER TODAY AT GATEWAYHEMOPHILIA.ORG

Gateway Connection

is published quarterly by

Gateway Hemophilia Association

4976 Eichelberger St. St. Louis, MO 63109

314-482-5973 gatewayhemophilia.org

Email us at [email protected]

BOARD OF DIRECTORS

President Anne Parrott

Vice President Chris Schneider

Treasurer Ben Moramarco

Secretary Stephanie Bauman

James Addie Jim Causey

Kristina Klein Amanda Meyer

Kari Moellenhoff Maria Mohler

Lori Moore Nikole Schroeder

INDUSTRY ADVISORY

CHAIRS Judy Bagato

Brian Rodgers

EXECUTIVE DIRECTOR Bridget Tyrey

COMMUNICATIONS AND

PROGRAM MANAGER Jennifer McNamee

2 GATEWAY CONNECTIONS SPRING 2019

GHA Board of Directors meetings are open to the public and held the 2nd Tuesday of every odd numbered month at 6:00pm at 4976 Eichelberger Street, St. Louis, MO 63109. Changes

to these dates may be necessary due to scheduling conflicts and will be announced at www.gatewayhemophilia.org/about-us/board-of-directors as soon as they are available.

Gateway Hemophilia Association is grateful for the contributions of so many people throughout our 50 year history that have made an impact in this community. These photos represent only a few of those individuals that we would like to recognize.

If you would like to recognize someone in the community that has had an impact in your life, you will have the opportunity to do so at GHA’s Annual Meeting in July.

In further celebration of this milestone, GHA will be presented with a Resolution from the City of St. Louis Board of Aldermen on April 15th recognizing GHA’s 50th Anniversary, Declaring March 2019 Bleeding Disorders Awareness Month, and recognizing April 17, 2019 as World Hemophilia Day in the City of St. Louis.

GHA’s 50th Anniversary

http://www.gatewayhemophilia.org/about-us/board-of-directors

SPRING 2019 GATEWAY CONNECTIONS 3


Spotlight on our Community

The seventeenth annual NACCHO (North American Camping Conference for Hemophilia

Organizations) conference was held January 17th - 20th in Phoenix, Arizona. NACCHO

brings together 180 camp directors and counselors from bleeding disorder camps

around the world to learn from experts, share with one another and collaborate on new

programs and activities for camp. GHA Executive Director, Bridget Tyrey, Washington

University HTC Nurse Coordinator, Sue Pardeshi, and GHA member Johnny Schuppe,

were joined by representatives of chapters from across the country, as well as

attendees from across the globe.

The theme for the weekend was RISE UP (Resilient, Independent, Strong, Engaged,

Unique Potential) and was jam packed with information for attendees to take back and

apply to their camp programs. Shortly after the conference, I spoke to Johnny to get

his take on the experience. Here’s what he shared:

NACCHO Inspires Attendees to RISE UP

What was your favorite part of the experience?

“Learning that there’s more to the community than just camp. I met so many people from all over the world, Australia, New

York, Romania. It was a really awesome experience. I got to meet a lot of other directors and hear about the cool things they’re

doing at their camps. I met a director from Mexico who is trying to get his camp started and he interviewed me on Facebook

live. I loved everything about it.”

What would you say to a kid that’s nervous about coming to camp for the first time?

“Give it one try. After that one try, you’ll never want to leave. I’ve experienced it myself, and I’ve talked to many other people

who’ve said the same. You meet so many people and that’s just the start of it. I would encourage everyone to get out there and

take advantage of these opportunities to meet more people in the community. Don’t be afraid to put yourself out there.”

A Adventure Awaits at

Camp Notaclotamongus

Camp Open House

New campers and their families are invited to visit camp, meet staff and see what

camp has to offer!

When: April 20th 12pm - 1:30 pm

Where: Camp Wyman 600 Kiwanis Dr. Eureka, MO 63025

RSVP to [email protected]

Wish List

GHA is asking for donations of the following:

Wagon wheels Cowboy hats (any size) Cowboy boots (any size) Brown rope 15 red & white gingham table clothes

(plastic ok) 30 horseshoes 4 wooden horses (or wood to make them)

The deadline for camper applications is

April 30th!

Visit gatewayhemophilia.org for your application

today!

Bridget, Sue, & Johnny at NACCHO


Winter Membership Meeting

By Maggie Poronto

This February, I had the amazing opportunity to attend the 2019 YETI (Youth Effectively

Transitioning to Independence) conference in Gresham, Oregon, with Jennifer

McNamee and Makenzie Sledd. I won’t lie-- I was a little nervous going across the

country to spend four days bunking with 24 teenagers I just met; however, by the end,

I never felt more comfortable than I do with my blood brothers and sisters.

We spent a good amount of time inside, participating in group and team building

activities such as YETI’s Got Talent, a spin off of the TV show America’s Got Talent,

where teens were partnered with adults from around the country to make a skit or

come up with a talent relating to our community. The teens participated in yoga and

took the Myers-Briggs personality assessment, allowing me to become mindful of who

I am and how I can best service GHA and our kids. The time spent outside included a

short hike through the gorgeous woods of Gresham and a challenging ropes course in

the treetops, building relationships and allowing us to soak up the sunshine.

YETI Conference Inspires Teen Leaders

Throughout the 4 day trip, I made a dozen friends from around the country, and now have the opportunity to volunteer at a

family camp in New Hampshire. The most important things I learned, however, will come back home to our community. I was

able to discuss our teen program with Jennifer and Makenzie, coming up with several ideas including the additions of day

programs and weekend retreats to help foster the return of teenagers throughout their most vulnerable, dynamic stages of life.

My goal going into YETI was to learn about ways to keep 13-16 year olds interested and involved in our community and I feel as

though I achieved that. I can’t wait to start building up our teen program!

After our February Membership Meeting was cancelled due to an ice storm, GHA was excited to be able to reschedule this event, which was held on March 31st at TopGolf in Chesterfield, Missouri.

The afternoon started with an opportunity for attendees to visit with exhibitors before sitting down to lunch. GHA Executive Director Bridget Tyrey then welcomed everyone and gave an update on the organization before introducing special guest speaker Dr. Christopher Walsh. Dr. Walsh is a hematologist-oncologist and associate professor at Mount Sinai Hospital in New York. He spoke on the topic of gene therapy, including what is currently happening in research, and what to know about the benefits and risks of this treatment.

Thank you to the Hemophilia Federation of America (HFA) for sponsoring Dr. Walsh’s presentation.

Jen, Maggie, & Makenzie at YETI


EMPOWERED! By Danielle Flores

If I had to sum up the 2019 Women’s Retreat in one word, it would easily be: EMPOWERING! Over 30 women from Gateway Hemophilia Association (GHA) and Midwest Hemophilia Association (MHA) gathered at Lake Ozark from March 22-24, for an educational, relaxing and empowering weekend! Thank you Genentech for providing a grant for this program.

After a casual reception and some ‘suite pizza’ sponsored by ARJ Infusion Services Friday evening, we got down to business Saturday morning! After breakfast, sponsored by Bayer, we started off getting to know each other and defining our roles in our community. We even made short term goals for the weekend, as well as long term goals to be completed by next women’s retreat! Our first speaker of the day was Lydia Johnson, HTC RN from Cardinal Glennon Children’s Hospital, who talked about how women bleed, too, but not everything is a bleed, along with what needs to happen to get you clinically diagnosed with a bleeding disorder. We then had two simultaneous sessions: “Advocating for Yourself as a Woman,” with Sarah Waite-Ardini from NHF, and “Pain Management,” with Jessica Lovercamp from Bayer. After lunch, sponsored by CSL Behring, we started our afternoon with a meditation session led by Diane Dimon, DrRS, also sponsored by CSL Behring. That was followed by a sexual intimacy discussion led by Amber Federizo, APRN, FNP-BC, sponsored by Octapharma. After a healthy snack break, also sponsored by Octapharma, we finished off the afternoon with your choice of social/free time or a

movie that we showed in the theater: “Made For More,” by Rachel Hollis. Wow. Even if you missed the women’s retreat, I highly recommend checking this out on Amazon Prime! In the evening, we received education from Vicki Oberkrom with Sanofi Genzyme, who then sponsored our art therapy session and dinner. We have some really talented and creative artists among us!

We finished up on Sunday by recapping what we’d learned, assessing our goals, both short and long term, and discussing how we would accomplish them. One of the most powerful moments of the weekend was when a poster stating, “I AM EMPOWERED TO…” was hung up in the room and we closed out listening to Kelly Clarkson’s, “Stronger” while the ladies anonymously completed that sentence on a sticky note and hung them up on our poster. I was personally moved to tears at the powerful progress we had made that weekend. Please check out GHA’s Facebook page for a clip of this emotional ending to our retreat! We hope all adult ladies can join us next year! Keep an eye out for more info, and register early, as our goal is to continue to grow this amazing program! We didn’t come this far, to only come this far!! We’re RISING UP!!!

3 Easy Ways to Support GHA!

Schnucks Escrip Card GHA gets $$ every time you shop!

1. Pick up a free Escrip card at your local Schnucks

2. Visit escrip.com to enroll and select Gateway Hemophilia Association as your charity

3. Give the cashier your Escrip card at checkout

Amazon Smile Amazon donates 0.5% of the price

of your eligible purchases to GHA!

1. Visit smile.amazon.com

2. Sign in to your regular amazon account (or create an account for free)

3. Select GHA as your charity

4. Shop!

Fresh Thyme Giving Bags $1 from the sale of each Giving Bag

will be donated to GHA!

1. Visit any Fresh Thyme location

2. Purchase a reusable Giving Bag featuring a Giving Tag

3. Direct your donation to GHA!

4. Use your Giving Bag when you shop and help the environment!


Bleeding Disorders Awareness Month

Every March, in honor of Bleeding Disorders Awareness Month, the Missouri Bleeding Disorders Coalition, a collaboration between Gateway Hemophilia Association, Midwest Hemophilia Association, the National Hemophilia Foundation, the Hemophilia Federation of America, Missouri Hemophilia Treatment Centers, industry government relations partners, and community stakeholders, travel to Jefferson City for Missouri Advocacy Day. This year’s event was held March 6th-7th. In attendance were 18 families from across the state, totaling 41 individuals.

The evening before our visit to the Capitol, the group came together for dinner and advocacy training. The first speaker, April Littrell from Takeda, spoke about the importance of sharing your story and being your own advocate. She was followed by Kim Isenberg, Vice President of Policy, Advocacy and Government Relations at the Hemophilia Federation of America, who gave us an update on policy issues

around the country and in the State of Missouri, as well as helpful tips for engaging with our elected officials.

The next morning, we walked as a group to the Capitol Building wearing our Red Ties to celebrate Bleeding Disorders Awareness Month. After taking a group photo, the advocates departed for appointments with their state legislators. In total, we spoke to 35 legislators about issues affecting Missouri families with bleeding disorders, including access to care, access to medication, and healthcare coverage.

Between meetings, many of our group headed to the House Floor where Representative Chuck Basye of the 47th District introduced the 10 children in our group and posed for a picture with them.

While our advocates were meeting with their legislators, Erin Gillespie, RN, BSN, and Jessica Bennet, Administrative Assistant/HTC Data Coordinator from the Missouri Hemophilia Treatment Center in Columbia, MO staffed an education table in the 3rd Floor Rotunda of the Capitol Building, advocating and educating passersby about the bleeding disorders community.

After the appointments had concluded, the group walked back to the hotel for lunch and a wrap up meeting. Overall there was a lot of positive feedback about the meetings with our legislators. Among the highlights was a Proclamation from the Governor’s office declaring March 2019 Bleeding Disorders Awareness Month. Thank you to all who participated in Advocacy Day.

Become an Advocacy Ambassador!

The key to a successful Advocacy program is year-round engagement. GHA’s Advocacy Ambassador program includes advocacy training and access to GHA’s Advocacy Ambassador

E-newsletter, a monthly publication with policy updates and tips on engaging in year-round advocacy. If you are interested in becoming an Advocacy Ambassador, learning more about the program, or subscribing to the Advocacy Newsletter, contact Jen McNamee at

[email protected]

Missouri Advocacy Day

NHF’s Washington Days Every year during the month of March,

individuals and families from around the

country gather in Washington, D.C. to meet

with their federal legislators to advocate for the

bleeding disorders community. In an ever

changing political landscape, it is vitally

important that our legislators are aware of the

impact they can have on the lives of patients

with pre-existing conditions. The only way to

ensure that is to make the voices of this


community heard by these decision makers. This year, 450 people

representing 47 different states came together on March 27th-29th to do

just that.

Representing the State of Missouri was GHA Executive Director Bridget

Tyrey, GHA members Brian & Trenton M., Christina & Alyssa C., and

Rieley Schneider, and MHA Board member Jaci Colter. The Missouri

delegation attended 6 appointments with Missouri legislators and their

staff, advocating on behalf of all Missourians with bleeding disorders.

If you are interested in advocating in Washington, D.C., GHA offers a

travel scholarship to help offset some of the costs of this trip. Visit

gatewayhemophilia.org at the end of the year to apply for Washington

Days 2020.

In years past, many people who depend on high cost specialty medications, like those with hemophilia, have been able to utilize manufacturer co-pay assistance to meet part, or even all, of their deductible and annual max out of pocket (OOP) expenses.

Once the max OOP is reached, the health plan covers 100% of all subsequent qualified medical and pharmacy expenses for the remainder of the plan year.

So, what’s changing? Health plans and pharmacy benefit managers are continually adjusting their management strategies to control costs and mitigate their risk; and the latest strategy involves what’s known as copay accumulator adjustment programs.

Simply put, health plans who implement a copay accumulator adjustor program will still allow the use of manufacturer copay assistance cards, HOWEVER, they NO LONGER allow them to apply towards the members deductible or maximum OOP.

The BIGGEST impact will be felt by those on High Deductible Health Plans (HDHPs). Here’s why: HDHP’s require you to pay your entire deductible BEFORE the health plan begins to contribute a dime. Once the deductible is met, co-insurance kicks in (a cost share, generally 80/20) and any medical or pharmacy co-pays, until the member meets his/her annual maximum out of pocket, set by the plan; which for 2019 can’t exceed $7,900 individual or $15,800 per family.

Using manufacturer copay assistance cards will help for the first few months, but they have annual limits, and since those dollars will no longer count towards the deductible or the out of pocket because it wasn’t paid by the insured member; they will be left to meet the ENTIRE deductible before cost sharing even begins to kick in.


What is NHF doing? NHF and HFA are raising national awareness about their existence and raising concerns about the unintended consequences that these programs can have on chronic disease patients, such as Hemophilia, who have no generic or biosimilar equivalents and will be left with no option but to abandon their prophy treatment and will have to go to the ER for bleeds; which is costly to both the patient and the insurance health plan.

NHF, in conjunction with NORD, the Arthritis Foundation, AIDS Institute and MS Foundation started a National Steering Committee and formed a coalition (currently 58 advocacy organizations participating on a state and federal level). The steering committee took the issue to CMS/CCIO and are working to determine what, if any, legislation can be drafted to protect our patient community around these troublesome new policies.

In the meantime, most health plans have agreed that they are not trying to hurt patients that are truly needs based and therefore are willing to allow patients who receive funding from a third party nonprofit, such as PAN Foundation or the Assistance Fund (the only two nonprofits offering copay assistance for Hemophilia) to count towards the covered members deductible and out of pocket expenditures; provided it is independently administered and based on a set of needs based criteria.

Also, some self-funded employer plans have agreed that they can see the risk of unintended consequences that can occur and have decided to hold off implementation for now; and others have placed hemophilia drugs on their preventative drug list (placing certain drugs that are preventative in nature, to be dispensed outside the deductible at no cost to the patient). We will continue to work on finding solutions that will not cause a disruption to patients.

For further understanding of these programs, NHF has an explainer video that can be viewed at: www.youtube.com/watch?v=7ExMnOJs-h8&t=50s

By: Kollett Koulianos, MBA ● Senior Director Payer Relations

National Hemophilia Foundation

If you have experienced issues with accumulator adjusters, please contact Kollet at [email protected]

http://www.youtube.com/watch?v=7ExMnOJs-h8&t=50s

http://www.youtube.com/watch?v=7ExMnOJs-h8&t=50s

DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the first quarter of 2019 with

general donations, Honorariums, and Memorials.

$15,000 - $19,999

The Hemophilia Alliance

Foundation

$10,000 - $14,999

Genentech

$5,000 - $9,999

CSL Behring

NovoNordisk

Octapharma

$3,000 - $4,999

Bayer, Inc.

BioRx

Takeda

$1,000 - $2,999

Apex Specialty Pharmacy

ARJ Infusion Services, Inc.

Carleton, John & Pam

Eschbacher, Bob & Gina

Express Scripts, Inc.

Grifols

Superior Biologics, Inc.

$500 - $999

Accurate Rx

Campbell, Kristi

Colburn-Keenan Foundation

CVS/Caremark

Heritage Biologics

Icon Mechanical

Kiwanis Club of Hampton

Midtown

Rakey, Rachel

$100 - $499

Addie, Kate

Albers, Susan

Anderson, Jennifer

Bagato, Judy & Ray

Bauman, Jake & Stephanie

Bauman, Jane

Bieler, Terry

Boeing

Bouhasin, Dr. John & Nina

Charpentier, Jason

Charpentier, Tina

Cudzilo, Ron

Degenhardt, Ashley

Degenhart, Mike

Ellebrecht, Kevin & Lee

Flores, Tony & Danielle

Frey, Mark

Gindling, Judy

Glendale Chrysler

Guignon, Tom

Gute, Pat & Cathy

Herring, Diane

Hill, Nichole

Hilmes, Bruce

Jochum, Katy

Joggerst, Chris

Johannes, Dan & Charla

Johannes, Stephen

Jung, Theresa

Klein, Dwayne

Klein, Michael & Kristina

Lewis, Andrea & Mike

Link, Rachel

MacDonald, Craig

Magee, Brian & Carly

Majerus, Dr. Elaine

Milhauser, Carl & Ruth

Moellenhoff, Kari

Nickelson, Christine

Oberkrom, Vicki

Paragon Specialty Pharmacy

Phillips, Stacie

Renkoski, Benjamin

Reynolds, Chuck

Ruckman, Rita

Schneider, Chris & Abby

Schroeder, Nikole

Shrout, Jeff

Sims, Janet & Bryan

Sledd, Makenzie

Smith, Christopher

Stafford, Brandy

Stringer, Dirk & Trudy

Taake, Lisa

Thompson, Scott

Thrivent

Tisone, Bob

Tyrey, Bridget

UMB Bank

Ungerer, Amy

Ward, Margaret

Washington University

Witt, Christine

Witt, Jeff

Your Cause

$50 - $99

3 Margaritas

Bechtel, Becky

Bevan, Lisa

Brueggeman, Amanda

Cason, Tina

Conrad, Ken

Cooke, Katherine

Daley, Sarah

Deere, Travis

Dunning, Judith

Edler, Tracey

E-Script

Fahey, Nic & Sara

Fantozzi, Eileen

Frese, Jan

Gaj, Jennifer

Gehrlein, Maureen

Guest, Bud & Mary

Hammer, John

Heaney, Janelle

Heck, Rani

Hemmann, Jessica

Hiatt, Susan

Hoelscher, Kelly

Hoenig, Linda

Hubbman, Sharon

Huff, Laura

Huff, John & Carolyn

Hutsler, Phil

Lawson, Clint

Leffler, Lindsay

Love, Alan

Mazdra, Gerri

McDonald, Karen

McNamee, Jennifer

McNamee, Tim & Deb

McShane II, T. Patrick

Menk, Theresa

Miller, Pam

Mitchell, Victoria

Moher, Lisa

Mohler, Maria

Moore, Chad & Lori

Moore, Randy

Morrison, Patrick

Mytyk, Paula

Nave, Jason

Newsom, Marci

Osterbur, Lisa

Parrott, Anne

Phillips, Chelan

Pierson, Kathleen

Pittenger, David

Power, Brian

Preis, Susan

Primm, Samuel

Prives, Nancy

Puleo, Karie

Pustinger, Kimberly

Rendezvous Café & Wine Bar

Rosenfelt, Kim

Scanlon, Joe

Scheibe, Timothy

Schroeder, Kathleen

Schuch, Joe

Schwartz, Lindsay

Sellers, Bobbi

Semple, Don & Mindy

Shrum, Jane

Simburger, Gail

Sirko, James & Ruth

Sledd, Cornelia

Stafford, Janet

Thomas, Dawn

Thrower, MaryKay

Travers, Jennifer

Valdeabella, Malena

Walls, Ashly

Watts, Ken


DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the first quarter of 2019 with

general donations, Honorariums, and Memorials.

Wesley, John

Whelan, Linda

Wigge, Dennis & Mary

Wilson, James

Zinschlag, Edward G.

$1 - $49

Ameiss, Brenda

Arnold, Ashley

Berger, Bill & Julie

Bernstein, Kim

Bollinger, Anne

Boston, Kim

Bradshaw, Angie

Bruhn, Cara

Brungardt, Sandra

Buekman, Audree

Carney, John & Suzanne

Carson, Peggy

Charities Aid Foundation

of America

Christy, Lauren

Collier, Heather

Collins, Lisa

Collora, Natalie

Colon, Kena

Cook, Christine

Cope, Shelly

Couch, Angela

Cox, Leslie & Brian

Crider, Vicki & Steve

Daube, Todd & Sharon

Deere, Katherine

Deere, Taylor

Eagen, Michael

Ellis, Holly

Fantozzi, Julie

Feretti, Faye

Flores, Gabi

Fox, John

Franklin, Delta

Fresh Thyme

Geilhausen, Amber

Gerstenkorn, Dorothy

Golec, Lynn

Gorczyca, Nicole

Graham, June

Grass, Mary

Greenwood, Roberta

Griffard, Lori & Steve

Hadler, Angela & Dwayne

Harrell, Jenny

Hilmes, Donna

Hogan, Rich

Holtgrieve, K.A.

Horton, Lori

Housley, Julie

Huntoon, Jeana

Illinger, Lindsay

Irvin, Mary

Kemling, Lori

Kidd, Kecia

Kinion, Rachel

Klable, Kerry

Krystoff, Cheryl

LaFlamme, Liz

Lane, Veronica

Laughlin, Charlene

Laughlin, Patrick

Lehmen, Gidget

Lich, Brian

Lotz, Jessica

Markwardt, Gary

McConnell, Kristy

McFarland, Vivian

Mercer, Lindsay

Metcalf, Christopher

Miller, Rob

Mogelnicki, Nancy

Moore, Karla

Motter, Jaime

Nelson, Barbara

Obermark, Cacey

O’Hara, Kelly

Olson, Heather

Papenberg, Jami

Pascale, Hallie

Patton, Karen

Pierce, April

Pope-Kalkbrenner, Theresa

Powers, Jennifer

Puetz, Dr. John

Rohwedder Dobecki, Sarah

Rossi, Rocio

Rossi, Sharon

Sanders, Autrell

Sansegraw, Kimberly

Schermaul, Danielle

Scheurich, Gretchen

Schneider, Linda

Schneider, Mike

Schroeder, Stephen

Schulze, Mary

Scott, Regina

Sharley, Deanna

Shelton, Darlene

Siebert, Shannon

Simburger, Gary

Stuckmeyer, Tim


Tinsley, Cindy

Tinsley, Ryan

United Health Group

Vahlkamp, Alexandra

Vaughn, David

Ward, Tara

Welch, Donna

Wheeler, Maureen

White, Erin

Wittman, Ann

Zoellner, Gail

IN HONOR OF

Austin Hanse

Icon Mechanical

4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org

Presort Standard US Postage

PAID St. Louis, MO

Permit No.

Email us at: [email protected]

Save the Date for Family Education Weekend! Join us for GHA’s annual meeting, where community members come together for educational sessions on the treatment of bleeding disorders and have the opportunity to meet and network with other people who have the same disorder. The theme of this year’s meeting is “Be Mindful” and will explore ways that we can take care of our mental health, as well as our physical health.

Date: July 12-14, 2019

Location: DoubleTree Chesterfield

16625 Swingley Ridge Rd.

Chesterfield, MO 63017

Registration will open May 1st at www.gatewayhemophilia.org

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