Spring 2019
GATEWAY
CONNECTION
CALENDAR OF UPCOMING EVENTS
April
19 World Hemophilia Day “Project Gratitude”, St. Louis
20 Camp Open House Camp Wyman, Eureka, MO
20 Teen/Young Adult Day Hike Greensfelder Park
30 Camp Applications Due!
May 4 Unite for Bleeding Disorders Walk/5K, Forest Park
June 5-8 Camp Notaclotamongus Camp Wyman, Eureka, MO
27 Positive Psychology Can Help Us Thrive, Location TBD
July 12-14 Family Education Weekend DoubleTree Chesterfield
August 22 Wine Tasting Fundraiser Farotto’s, Rock Hill
September 23 Tee Off 4 Hemophilia Golf Tournament, The Legends
WWW.GATEWAYHEMOPHILIA.ORG
Stay up to date by following us on social media!
@gateway @Gateway @gateway hemophilia Hemo hemophilia association
Sign up today for GHA’s 10th Annual Walk & 5K
Date: Saturday, May 4, 2019 Time: Registration starts at 8:30 a.m. Ceremony begins at 9:30 a.m. 5K and Walk to follow Location: Forest Park Cricket Field St. Louis, MO 63112 2019 marks the 50th Anniversary of Gateway Hemophilia Association. The Unite Walk will be an important part of our year-long celebration, so we are setting big goals for this event:
50 Fundraising Teams for 50 Years, over 400 participants, and raising $70,000!
Join with us and be part of the celebration! The money raised at the Walk will be used to assist GHA’s overall mission to raise funds and awareness for bleeding disorders and to prevent complications through education, awareness, advocacy and research.
The Walk includes breakfast, chip timing for registered 5K participants, a DJ, a STLFD firetruck, Billy the Blood Drop, a pet hydration station, and fun for people of all ages!
REGISTER TODAY AT GATEWAYHEMOPHILIA.ORG
Gateway Connection
is published quarterly by
Gateway Hemophilia Association
4976 Eichelberger St. St. Louis, MO 63109
314-482-5973 gatewayhemophilia.org
Email us at [email protected]
BOARD OF DIRECTORS
President Anne Parrott
Vice President Chris Schneider
Treasurer Ben Moramarco
Secretary Stephanie Bauman
James Addie Jim Causey
Kristina Klein Amanda Meyer
Kari Moellenhoff Maria Mohler
Lori Moore Nikole Schroeder
INDUSTRY ADVISORY
CHAIRS Judy Bagato
Brian Rodgers
EXECUTIVE DIRECTOR Bridget Tyrey
COMMUNICATIONS AND
PROGRAM MANAGER Jennifer McNamee
2 GATEWAY CONNECTIONS SPRING 2019
GHA Board of Directors meetings are open to the public and held the 2nd Tuesday of every odd numbered month at 6:00pm at 4976 Eichelberger Street, St. Louis, MO 63109. Changes
to these dates may be necessary due to scheduling conflicts and will be announced at www.gatewayhemophilia.org/about-us/board-of-directors as soon as they are available.
Gateway Hemophilia Association is grateful for the contributions of so many people throughout our 50 year history that have made an impact in this community. These photos represent only a few of those individuals that we would like to recognize.
If you would like to recognize someone in the community that has had an impact in your life, you will have the opportunity to do so at GHA’s Annual Meeting in July.
In further celebration of this milestone, GHA will be presented with a Resolution from the City of St. Louis Board of Aldermen on April 15th recognizing GHA’s 50th Anniversary, Declaring March 2019 Bleeding Disorders Awareness Month, and recognizing April 17, 2019 as World Hemophilia Day in the City of St. Louis.
GHA’s 50th Anniversary
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Spotlight on our Community
The seventeenth annual NACCHO (North American Camping Conference for Hemophilia
Organizations) conference was held January 17th - 20th in Phoenix, Arizona. NACCHO
brings together 180 camp directors and counselors from bleeding disorder camps
around the world to learn from experts, share with one another and collaborate on new
programs and activities for camp. GHA Executive Director, Bridget Tyrey, Washington
University HTC Nurse Coordinator, Sue Pardeshi, and GHA member Johnny Schuppe,
were joined by representatives of chapters from across the country, as well as
attendees from across the globe.
The theme for the weekend was RISE UP (Resilient, Independent, Strong, Engaged,
Unique Potential) and was jam packed with information for attendees to take back and
apply to their camp programs. Shortly after the conference, I spoke to Johnny to get
his take on the experience. Here’s what he shared:
NACCHO Inspires Attendees to RISE UP
What was your favorite part of the experience?
“Learning that there’s more to the community than just camp. I met so many people from all over the world, Australia, New
York, Romania. It was a really awesome experience. I got to meet a lot of other directors and hear about the cool things they’re
doing at their camps. I met a director from Mexico who is trying to get his camp started and he interviewed me on Facebook
live. I loved everything about it.”
What would you say to a kid that’s nervous about coming to camp for the first time?
“Give it one try. After that one try, you’ll never want to leave. I’ve experienced it myself, and I’ve talked to many other people
who’ve said the same. You meet so many people and that’s just the start of it. I would encourage everyone to get out there and
take advantage of these opportunities to meet more people in the community. Don’t be afraid to put yourself out there.”
A Adventure Awaits at
Camp Notaclotamongus
Camp Open House
New campers and their families are invited to visit camp, meet staff and see what
camp has to offer!
When: April 20th 12pm - 1:30 pm
Where: Camp Wyman 600 Kiwanis Dr. Eureka, MO 63025
RSVP to [email protected]
Wish List
GHA is asking for donations of the following:
Wagon wheels Cowboy hats (any size) Cowboy boots (any size) Brown rope 15 red & white gingham table clothes
(plastic ok) 30 horseshoes 4 wooden horses (or wood to make them)
The deadline for camper applications is
April 30th!
Visit gatewayhemophilia.org for your application
today!
Bridget, Sue, & Johnny at NACCHO
SPRING 2019 GATEWAY CONNECTIONS 5
Winter Membership Meeting
By Maggie Poronto
This February, I had the amazing opportunity to attend the 2019 YETI (Youth Effectively
Transitioning to Independence) conference in Gresham, Oregon, with Jennifer
McNamee and Makenzie Sledd. I won’t lie-- I was a little nervous going across the
country to spend four days bunking with 24 teenagers I just met; however, by the end,
I never felt more comfortable than I do with my blood brothers and sisters.
We spent a good amount of time inside, participating in group and team building
activities such as YETI’s Got Talent, a spin off of the TV show America’s Got Talent,
where teens were partnered with adults from around the country to make a skit or
come up with a talent relating to our community. The teens participated in yoga and
took the Myers-Briggs personality assessment, allowing me to become mindful of who
I am and how I can best service GHA and our kids. The time spent outside included a
short hike through the gorgeous woods of Gresham and a challenging ropes course in
the treetops, building relationships and allowing us to soak up the sunshine.
YETI Conference Inspires Teen Leaders
Throughout the 4 day trip, I made a dozen friends from around the country, and now have the opportunity to volunteer at a
family camp in New Hampshire. The most important things I learned, however, will come back home to our community. I was
able to discuss our teen program with Jennifer and Makenzie, coming up with several ideas including the additions of day
programs and weekend retreats to help foster the return of teenagers throughout their most vulnerable, dynamic stages of life.
My goal going into YETI was to learn about ways to keep 13-16 year olds interested and involved in our community and I feel as
though I achieved that. I can’t wait to start building up our teen program!
After our February Membership Meeting was cancelled due to an ice storm, GHA was excited to be able to reschedule this event, which was held on March 31st at TopGolf in Chesterfield, Missouri.
The afternoon started with an opportunity for attendees to visit with exhibitors before sitting down to lunch. GHA Executive Director Bridget Tyrey then welcomed everyone and gave an update on the organization before introducing special guest speaker Dr. Christopher Walsh. Dr. Walsh is a hematologist-oncologist and associate professor at Mount Sinai Hospital in New York. He spoke on the topic of gene therapy, including what is currently happening in research, and what to know about the benefits and risks of this treatment.
Thank you to the Hemophilia Federation of America (HFA) for sponsoring Dr. Walsh’s presentation.
Jen, Maggie, & Makenzie at YETI
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EMPOWERED! By Danielle Flores
If I had to sum up the 2019 Women’s Retreat in one word, it would easily be: EMPOWERING! Over 30 women from Gateway Hemophilia Association (GHA) and Midwest Hemophilia Association (MHA) gathered at Lake Ozark from March 22-24, for an educational, relaxing and empowering weekend! Thank you Genentech for providing a grant for this program.
After a casual reception and some ‘suite pizza’ sponsored by ARJ Infusion Services Friday evening, we got down to business Saturday morning! After breakfast, sponsored by Bayer, we started off getting to know each other and defining our roles in our community. We even made short term goals for the weekend, as well as long term goals to be completed by next women’s retreat! Our first speaker of the day was Lydia Johnson, HTC RN from Cardinal Glennon Children’s Hospital, who talked about how women bleed, too, but not everything is a bleed, along with what needs to happen to get you clinically diagnosed with a bleeding disorder. We then had two simultaneous sessions: “Advocating for Yourself as a Woman,” with Sarah Waite-Ardini from NHF, and “Pain Management,” with Jessica Lovercamp from Bayer. After lunch, sponsored by CSL Behring, we started our afternoon with a meditation session led by Diane Dimon, DrRS, also sponsored by CSL Behring. That was followed by a sexual intimacy discussion led by Amber Federizo, APRN, FNP-BC, sponsored by Octapharma. After a healthy snack break, also sponsored by Octapharma, we finished off the afternoon with your choice of social/free time or a
movie that we showed in the theater: “Made For More,” by Rachel Hollis. Wow. Even if you missed the women’s retreat, I highly recommend checking this out on Amazon Prime! In the evening, we received education from Vicki Oberkrom with Sanofi Genzyme, who then sponsored our art therapy session and dinner. We have some really talented and creative artists among us!
We finished up on Sunday by recapping what we’d learned, assessing our goals, both short and long term, and discussing how we would accomplish them. One of the most powerful moments of the weekend was when a poster stating, “I AM EMPOWERED TO…” was hung up in the room and we closed out listening to Kelly Clarkson’s, “Stronger” while the ladies anonymously completed that sentence on a sticky note and hung them up on our poster. I was personally moved to tears at the powerful progress we had made that weekend. Please check out GHA’s Facebook page for a clip of this emotional ending to our retreat! We hope all adult ladies can join us next year! Keep an eye out for more info, and register early, as our goal is to continue to grow this amazing program! We didn’t come this far, to only come this far!! We’re RISING UP!!!
3 Easy Ways to Support GHA!
Schnucks Escrip Card GHA gets $$ every time you shop!
1. Pick up a free Escrip card at your local Schnucks
2. Visit escrip.com to enroll and select Gateway Hemophilia Association as your charity
3. Give the cashier your Escrip card at checkout
Amazon Smile Amazon donates 0.5% of the price
of your eligible purchases to GHA!
1. Visit smile.amazon.com
2. Sign in to your regular amazon account (or create an account for free)
3. Select GHA as your charity
4. Shop!
Fresh Thyme Giving Bags $1 from the sale of each Giving Bag
will be donated to GHA!
1. Visit any Fresh Thyme location
2. Purchase a reusable Giving Bag featuring a Giving Tag
3. Direct your donation to GHA!
4. Use your Giving Bag when you shop and help the environment!
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10 GATEWAY CONNECTIONS SPRING 2019
Bleeding Disorders Awareness Month
Every March, in honor of Bleeding Disorders Awareness Month, the Missouri Bleeding Disorders Coalition, a collaboration between Gateway Hemophilia Association, Midwest Hemophilia Association, the National Hemophilia Foundation, the Hemophilia Federation of America, Missouri Hemophilia Treatment Centers, industry government relations partners, and community stakeholders, travel to Jefferson City for Missouri Advocacy Day. This year’s event was held March 6th-7th. In attendance were 18 families from across the state, totaling 41 individuals.
The evening before our visit to the Capitol, the group came together for dinner and advocacy training. The first speaker, April Littrell from Takeda, spoke about the importance of sharing your story and being your own advocate. She was followed by Kim Isenberg, Vice President of Policy, Advocacy and Government Relations at the Hemophilia Federation of America, who gave us an update on policy issues
around the country and in the State of Missouri, as well as helpful tips for engaging with our elected officials.
The next morning, we walked as a group to the Capitol Building wearing our Red Ties to celebrate Bleeding Disorders Awareness Month. After taking a group photo, the advocates departed for appointments with their state legislators. In total, we spoke to 35 legislators about issues affecting Missouri families with bleeding disorders, including access to care, access to medication, and healthcare coverage.
Between meetings, many of our group headed to the House Floor where Representative Chuck Basye of the 47th District introduced the 10 children in our group and posed for a picture with them.
While our advocates were meeting with their legislators, Erin Gillespie, RN, BSN, and Jessica Bennet, Administrative Assistant/HTC Data Coordinator from the Missouri Hemophilia Treatment Center in Columbia, MO staffed an education table in the 3rd Floor Rotunda of the Capitol Building, advocating and educating passersby about the bleeding disorders community.
After the appointments had concluded, the group walked back to the hotel for lunch and a wrap up meeting. Overall there was a lot of positive feedback about the meetings with our legislators. Among the highlights was a Proclamation from the Governor’s office declaring March 2019 Bleeding Disorders Awareness Month. Thank you to all who participated in Advocacy Day.
Become an Advocacy Ambassador!
The key to a successful Advocacy program is year-round engagement. GHA’s Advocacy Ambassador program includes advocacy training and access to GHA’s Advocacy Ambassador
E-newsletter, a monthly publication with policy updates and tips on engaging in year-round advocacy. If you are interested in becoming an Advocacy Ambassador, learning more about the program, or subscribing to the Advocacy Newsletter, contact Jen McNamee at
Missouri Advocacy Day
NHF’s Washington Days Every year during the month of March,
individuals and families from around the
country gather in Washington, D.C. to meet
with their federal legislators to advocate for the
bleeding disorders community. In an ever
changing political landscape, it is vitally
important that our legislators are aware of the
impact they can have on the lives of patients
with pre-existing conditions. The only way to
ensure that is to make the voices of this
SPRING 2019 GATEWAY CONNECTIONS 11
community heard by these decision makers. This year, 450 people
representing 47 different states came together on March 27th-29th to do
just that.
Representing the State of Missouri was GHA Executive Director Bridget
Tyrey, GHA members Brian & Trenton M., Christina & Alyssa C., and
Rieley Schneider, and MHA Board member Jaci Colter. The Missouri
delegation attended 6 appointments with Missouri legislators and their
staff, advocating on behalf of all Missourians with bleeding disorders.
If you are interested in advocating in Washington, D.C., GHA offers a
travel scholarship to help offset some of the costs of this trip. Visit
gatewayhemophilia.org at the end of the year to apply for Washington
Days 2020.
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14 GATEWAY CONNECTIONS SPRING 2019
In years past, many people who depend on high cost specialty medications, like those with hemophilia, have been able to utilize manufacturer co-pay assistance to meet part, or even all, of their deductible and annual max out of pocket (OOP) expenses.
Once the max OOP is reached, the health plan covers 100% of all subsequent qualified medical and pharmacy expenses for the remainder of the plan year.
So, what’s changing? Health plans and pharmacy benefit managers are continually adjusting their management strategies to control costs and mitigate their risk; and the latest strategy involves what’s known as copay accumulator adjustment programs.
Simply put, health plans who implement a copay accumulator adjustor program will still allow the use of manufacturer copay assistance cards, HOWEVER, they NO LONGER allow them to apply towards the members deductible or maximum OOP.
The BIGGEST impact will be felt by those on High Deductible Health Plans (HDHPs). Here’s why: HDHP’s require you to pay your entire deductible BEFORE the health plan begins to contribute a dime. Once the deductible is met, co-insurance kicks in (a cost share, generally 80/20) and any medical or pharmacy co-pays, until the member meets his/her annual maximum out of pocket, set by the plan; which for 2019 can’t exceed $7,900 individual or $15,800 per family.
Using manufacturer copay assistance cards will help for the first few months, but they have annual limits, and since those dollars will no longer count towards the deductible or the out of pocket because it wasn’t paid by the insured member; they will be left to meet the ENTIRE deductible before cost sharing even begins to kick in.
SPRING 2019 GATEWAY CONNECTIONS 15
What is NHF doing? NHF and HFA are raising national awareness about their existence and raising concerns about the unintended consequences that these programs can have on chronic disease patients, such as Hemophilia, who have no generic or biosimilar equivalents and will be left with no option but to abandon their prophy treatment and will have to go to the ER for bleeds; which is costly to both the patient and the insurance health plan.
NHF, in conjunction with NORD, the Arthritis Foundation, AIDS Institute and MS Foundation started a National Steering Committee and formed a coalition (currently 58 advocacy organizations participating on a state and federal level). The steering committee took the issue to CMS/CCIO and are working to determine what, if any, legislation can be drafted to protect our patient community around these troublesome new policies.
In the meantime, most health plans have agreed that they are not trying to hurt patients that are truly needs based and therefore are willing to allow patients who receive funding from a third party nonprofit, such as PAN Foundation or the Assistance Fund (the only two nonprofits offering copay assistance for Hemophilia) to count towards the covered members deductible and out of pocket expenditures; provided it is independently administered and based on a set of needs based criteria.
Also, some self-funded employer plans have agreed that they can see the risk of unintended consequences that can occur and have decided to hold off implementation for now; and others have placed hemophilia drugs on their preventative drug list (placing certain drugs that are preventative in nature, to be dispensed outside the deductible at no cost to the patient). We will continue to work on finding solutions that will not cause a disruption to patients.
For further understanding of these programs, NHF has an explainer video that can be viewed at: www.youtube.com/watch?v=7ExMnOJs-h8&t=50s
By: Kollett Koulianos, MBA ● Senior Director Payer Relations
National Hemophilia Foundation
If you have experienced issues with accumulator adjusters, please contact Kollet at [email protected]
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SPRING 2019 GATEWAY CONNECTIONS 17
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the first quarter of 2019 with
general donations, Honorariums, and Memorials.
$15,000 - $19,999
The Hemophilia Alliance
Foundation
$10,000 - $14,999
Genentech
$5,000 - $9,999
CSL Behring
NovoNordisk
Octapharma
$3,000 - $4,999
Bayer, Inc.
BioRx
Takeda
$1,000 - $2,999
Apex Specialty Pharmacy
ARJ Infusion Services, Inc.
Carleton, John & Pam
Eschbacher, Bob & Gina
Express Scripts, Inc.
Grifols
Superior Biologics, Inc.
$500 - $999
Accurate Rx
Campbell, Kristi
Colburn-Keenan Foundation
CVS/Caremark
Heritage Biologics
Icon Mechanical
Kiwanis Club of Hampton
Midtown
Rakey, Rachel
$100 - $499
Addie, Kate
Albers, Susan
Anderson, Jennifer
Bagato, Judy & Ray
Bauman, Jake & Stephanie
Bauman, Jane
Bieler, Terry
Boeing
Bouhasin, Dr. John & Nina
Charpentier, Jason
Charpentier, Tina
Cudzilo, Ron
Degenhardt, Ashley
Degenhart, Mike
Ellebrecht, Kevin & Lee
Flores, Tony & Danielle
Frey, Mark
Gindling, Judy
Glendale Chrysler
Guignon, Tom
Gute, Pat & Cathy
Herring, Diane
Hill, Nichole
Hilmes, Bruce
Jochum, Katy
Joggerst, Chris
Johannes, Dan & Charla
Johannes, Stephen
Jung, Theresa
Klein, Dwayne
Klein, Michael & Kristina
Lewis, Andrea & Mike
Link, Rachel
MacDonald, Craig
Magee, Brian & Carly
Majerus, Dr. Elaine
Milhauser, Carl & Ruth
Moellenhoff, Kari
Nickelson, Christine
Oberkrom, Vicki
Paragon Specialty Pharmacy
Phillips, Stacie
Renkoski, Benjamin
Reynolds, Chuck
Ruckman, Rita
Schneider, Chris & Abby
Schroeder, Nikole
Shrout, Jeff
Sims, Janet & Bryan
Sledd, Makenzie
Smith, Christopher
Stafford, Brandy
Stringer, Dirk & Trudy
Taake, Lisa
Thompson, Scott
Thrivent
Tisone, Bob
Tyrey, Bridget
UMB Bank
Ungerer, Amy
Ward, Margaret
Washington University
Witt, Christine
Witt, Jeff
Your Cause
$50 - $99
3 Margaritas
Bechtel, Becky
Bevan, Lisa
Brueggeman, Amanda
Cason, Tina
Conrad, Ken
Cooke, Katherine
Daley, Sarah
Deere, Travis
Dunning, Judith
Edler, Tracey
E-Script
Fahey, Nic & Sara
Fantozzi, Eileen
Frese, Jan
Gaj, Jennifer
Gehrlein, Maureen
Guest, Bud & Mary
Hammer, John
Heaney, Janelle
Heck, Rani
Hemmann, Jessica
Hiatt, Susan
Hoelscher, Kelly
Hoenig, Linda
Hubbman, Sharon
Huff, Laura
Huff, John & Carolyn
Hutsler, Phil
Lawson, Clint
Leffler, Lindsay
Love, Alan
Mazdra, Gerri
McDonald, Karen
McNamee, Jennifer
McNamee, Tim & Deb
McShane II, T. Patrick
Menk, Theresa
Miller, Pam
Mitchell, Victoria
Moher, Lisa
Mohler, Maria
Moore, Chad & Lori
Moore, Randy
Morrison, Patrick
Mytyk, Paula
Nave, Jason
Newsom, Marci
Osterbur, Lisa
Parrott, Anne
Phillips, Chelan
Pierson, Kathleen
Pittenger, David
Power, Brian
Preis, Susan
Primm, Samuel
Prives, Nancy
Puleo, Karie
Pustinger, Kimberly
Rendezvous Café & Wine Bar
Rosenfelt, Kim
Scanlon, Joe
Scheibe, Timothy
Schroeder, Kathleen
Schuch, Joe
Schwartz, Lindsay
Sellers, Bobbi
Semple, Don & Mindy
Shrum, Jane
Simburger, Gail
Sirko, James & Ruth
Sledd, Cornelia
Stafford, Janet
Thomas, Dawn
Thrower, MaryKay
Travers, Jennifer
Valdeabella, Malena
Walls, Ashly
Watts, Ken
18 GATEWAY CONNECTIONS SPRING 2019
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the first quarter of 2019 with
general donations, Honorariums, and Memorials.
Wesley, John
Whelan, Linda
Wigge, Dennis & Mary
Wilson, James
Zinschlag, Edward G.
$1 - $49
Ameiss, Brenda
Arnold, Ashley
Berger, Bill & Julie
Bernstein, Kim
Bollinger, Anne
Boston, Kim
Bradshaw, Angie
Bruhn, Cara
Brungardt, Sandra
Buekman, Audree
Carney, John & Suzanne
Carson, Peggy
Charities Aid Foundation
of America
Christy, Lauren
Collier, Heather
Collins, Lisa
Collora, Natalie
Colon, Kena
Cook, Christine
Cope, Shelly
Couch, Angela
Cox, Leslie & Brian
Crider, Vicki & Steve
Daube, Todd & Sharon
Deere, Katherine
Deere, Taylor
Eagen, Michael
Ellis, Holly
Fantozzi, Julie
Feretti, Faye
Flores, Gabi
Fox, John
Franklin, Delta
Fresh Thyme
Geilhausen, Amber
Gerstenkorn, Dorothy
Golec, Lynn
Gorczyca, Nicole
Graham, June
Grass, Mary
Greenwood, Roberta
Griffard, Lori & Steve
Hadler, Angela & Dwayne
Harrell, Jenny
Hilmes, Donna
Hogan, Rich
Holtgrieve, K.A.
Horton, Lori
Housley, Julie
Huntoon, Jeana
Illinger, Lindsay
Irvin, Mary
Kemling, Lori
Kidd, Kecia
Kinion, Rachel
Klable, Kerry
Krystoff, Cheryl
LaFlamme, Liz
Lane, Veronica
Laughlin, Charlene
Laughlin, Patrick
Lehmen, Gidget
Lich, Brian
Lotz, Jessica
Markwardt, Gary
McConnell, Kristy
McFarland, Vivian
Mercer, Lindsay
Metcalf, Christopher
Miller, Rob
Mogelnicki, Nancy
Moore, Karla
Motter, Jaime
Nelson, Barbara
Obermark, Cacey
O’Hara, Kelly
Olson, Heather
Papenberg, Jami
Pascale, Hallie
Patton, Karen
Pierce, April
Pope-Kalkbrenner, Theresa
Powers, Jennifer
Puetz, Dr. John
Rohwedder Dobecki, Sarah
Rossi, Rocio
Rossi, Sharon
Sanders, Autrell
Sansegraw, Kimberly
Schermaul, Danielle
Scheurich, Gretchen
Schneider, Linda
Schneider, Mike
Schroeder, Stephen
Schulze, Mary
Scott, Regina
Sharley, Deanna
Shelton, Darlene
Siebert, Shannon
Simburger, Gary
Stuckmeyer, Tim
SPRING 2019 GATEWAY CONNECTIONS 19
Tinsley, Cindy
Tinsley, Ryan
United Health Group
Vahlkamp, Alexandra
Vaughn, David
Ward, Tara
Welch, Donna
Wheeler, Maureen
White, Erin
Wittman, Ann
Zoellner, Gail
IN HONOR OF
Austin Hanse
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4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org
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Email us at: [email protected]
Save the Date for Family Education Weekend! Join us for GHA’s annual meeting, where community members come together for educational sessions on the treatment of bleeding disorders and have the opportunity to meet and network with other people who have the same disorder. The theme of this year’s meeting is “Be Mindful” and will explore ways that we can take care of our mental health, as well as our physical health.
Date: July 12-14, 2019
Location: DoubleTree Chesterfield
16625 Swingley Ridge Rd.
Chesterfield, MO 63017
Registration will open May 1st at www.gatewayhemophilia.org