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Contents
Autism .......................................................................................... 2
Equalities and Inclusion ............................................................. 6
Family Carers .............................................................................. 8
Hate Crime (and Safeguarding) ................................................ 10
Health ......................................................................................... 12
Leadership and Advocacy ........................................................ 15
Transport ................................................................................... 17
No Reports this time –
Moving On
Workforce Development
Key to Ratings
= Not Started
= Making progress but behind schedule
= Making Progress and on Target
= Making progress and ahead of target
= Done
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Autism
The Group in Charge
Autism Steering Group
The ‘Champion’
Lesley Walls
1. Provide a link between the Autism
Steering Group and the Learning
Disability Partnership Board
Lesley Walls is the link. This will be strengthened by service user representation once the Learning Difficulties and Autism Council is Established.
2. Increase awareness and
understanding of autism
Have delivered presentation on the Strategy and presentations by people with autism on their personal experiences at 2 sessions of GP Protected Learning Time.
Autism Conference 6th April 2016. Feedback has been very positive. Lots of new connection made.
Session booked with Barnet, Enfield & Haringey Trust for 30th June
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End of project Conference booked for 22nd March at Dugdale Centre. This will be combined with an Autism exhibition in the Dugdale foyer.
Still to make contact and offer training to Enfield front of house
Clinical Commissioning Group hosting training programme
Also planning to develop training for London Borough of Enfield ‘What does peer support look like’
Any suggestions for other organisation that we can offer training to?
3. Develop a clear and consistent
pathway for diagnosis
Autism Team (Practitioners Working Group) established and three meeting held. Chair - Dr. Brian Fitzgerald - Clinical Psychiatrist
Lead Service Head – Niel Niehorster - Head of Learning Disability Service
Reference Group representatives
Representation from:
London Borough of Enfield
Barnet Enfield & Haringey Mental Health Trust,
Central & North West London NHS Foundation Trust
Royal Free London NHS Foundation Trust
NHS Enfield Clinical Commissioning Group
Autism Steering Group Reference Groups
The membership open to people who want to bring their skills and experience to achieving the stated aims and may include:-
Psychiatry, Psychology, Occupational Therapy, Speech and Language Therapy, Social Work, Commissioning, Nursing,
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Customer Pathway, Children’s and Transition, Forensic and Criminal Justice.
At the Conference there was a presentation about what they are doing in Tower Hamlets and debate about diagnosis
Commissioners Peppa Aubyn (Learning Disabilities) and Keith Dean (Mental Health) working on identifying resources for local diagnosis.
This group is now combined with the Steering group.
4. Improving access for adults with
autism to the services and support they
need to live independently within the
community
A Providers Network is being established to take this forward
5. Local partners to develop relevant
services for adults with autism to meet
identified needs / priorities
One-to-One has successfully bid for Lottery funding for an Enfield Learning Disabilities and Autism Council
Enfield National Autistic Society have gained grant from LBE Wellbeing Fund to increase activities for people with High Functioning Autism
6. Increased numbers of adults with
autism working and/or taking part in
meaningful activity’
Initially this is being led by the Learning Disability Partnership Board Employment sub-group.
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Attendance from target agencies e.g. Job Centre Plus and DWP is poor.
It is hoped that this work will be taken up by a Borough wide employment group which would include Disabilities and Autism as agenda items. This has been discussed at the Learning Disabilities Partnership Board and the Voluntary Sector Strategy Group and has their support.
One volunteer with Autism has started paid employment
Drop-in sessions started.
Monthly meetings at Baskervilles Café
Monthly Social Group.
Six people with Higher Functioning Autism have joined and actively participating in One-to-One’s activities of these three have trained as volunteers with Higher Functioning Autism are also volunteering with One-to-One
Membership of One-to-One now opened up to include people with Higher Functioning Autism
A group to look at IT support is being established.
Peer support and Social Media groups are being established.
7. Make Enfield an Autism friendly place.
Conference held on 6th April well attended and lots of people committed to making Enfield autism friendly
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Equalities and Inclusion
The Group in Charge
Equalities and Inclusion sub group
The ‘Champion’
Lesley Walls
1. Develop a learning disability council.
One-to-One (Enfield) has achieved funding from the Big Lottery for this as part of their ‘Let’s Speak Out’ project.
Project is being supported by Claude Gajadhar and Leyla Cag from One-to-One’s staff team. All current representatives have been contacted and they will lead the work on electing now representatives.
2. The council will be a transparent way
of selecting members of the Partnership
Board and Sub groups.
See above. Project is now underway. Council will be established late 2016
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3. Make sure the Partnership Board is
representative of the community it
serves, including people from black and
minority ethnic communities and the
lesbian, gay, bisexual and transgender
communities.
See above. Project is now underway. Council will be established late 2016
4. Represent the partnership board on
the Equalities stakeholder group
Still need to make links with Equalities stakeholder group
5. Support Partnership Board members
to meet with community groups to talk
about the work of the Partnership Board
and the priorities for the coming years.
See above. Project is now underway. Council will be established late 2016, plan for this will be made at that stage.
6. Once established, the Council may
take on more of the work plan.
See above. Project is now underway. Council will be established late 2016, plan for this will be made at that stage
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Family Carers
The Group in Charge
Focus Group
The ‘Champions’
Wendy Berry and
Surogit Walawalker
1. Develop sustainable support for
family carers in their caring role by -
No Progress on securing future of L.D. specific carers’ groups. Groups (CAPE and Carer 2 Carer) continue to function but the future of these groups is uncertain. Funded support for carers is primarily via Enfield Carers Centre (ECC).
2. To ask about the views and
opinions of family carers and
represent them at meetings and
forums including – L.A. meetings and
Voluntary Sector meetings
L.D. Carers have monitored L.A. documents and have written to the Leader of the Council and to other senior council members and officers to request clarification of information being sent to Councillors. This clarification has been passed on to other carers
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and carers’ responses have been received and reported. Carers’ representatives continue to attend many meetings to obtain other carers’ views and represent these effectively. LD Carers supported and participated in the ‘Make Enfield Autism Friendly’ event.
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Hate Crime (and
Safeguarding)
The Group in Charge
The Hate Crime Forum,
Disability Sub Group
The ‘Champion’
Deanna Rogers
1. Work to help make sure safe guarding
issues that are also hate crimes are reported
by –
No update this time
2. Increase the awareness of Hate Crime
amongst people with Learning Disabilities
and the wider community.
‘Is this Abuse?’ from Invisible Reflections, with Community Link Women’s Group Edmonton & Enfield, covering various scenes of abuse within a mental health unit
Currently working on a Hate Crime Awareness training pack
EDA hosted Hate Crime Forum evening on Mental Health 22March
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3. Represent the partnership board on
relevant groups
Attended Disability Hate Crime Matters event at New Scotland Yard 31st March 2016
Attended Enfield Hate Crime Forum Executive Committee Working Group 14th April 2016
Hate Crime Case Management Panel – no meetings since June 2015 due to lack of administrative staff – advised there will be a meeting on 26th May 2016
Member of One to One Hate Crime Network – attend meetings whenever possible
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Health
The Group in Charge
Health Sub Group
The ‘Champion’
Jon Robson
1. Implement the “Staying Healthy” part of
the joint Self-Assessment framework
NHS England, the Care Quality Commission and their partners have decided that the priority this year is ‘Transforming Care’ rather than a Self-Assessment.
Transforming Care is a programme that has grown out of the Winterbourne View concordat. It is a strategy to improve services for people with learning disabilities and/or autism, who display behaviours that can be challenging, including those with mental health conditions.
Although many areas have struggled to do everything required by the Winterbourne Concordat, Enfield did very well.
The Community Interventions Team have been shortlisted for a municipal journal local government achievement award for their work.
Enfield also did very well on the use of medication, with medication being used correctly and regularly reviewed.
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Although we are not doing a Self-Assessment this year, the health sub group will still be monitoring the standards from the last assessment. They are highlighted in bold below.
Training on Learning Disability Annual Health Checks was delivered at a recent GP protected learning time event. Some GP’s were still unaware of Annual Health Checks and their remuneration for doing them. Some Practices have asked for direct training.
The Community Nursing Team is aiming for everyone to have a hospital passport by the end of the year.
There is now a full time acute liaison nurse at the Royal Free Hospital (Sarah Lally), as well as a full time post at Barnet and Chase farm Hospitals (Tamara McNamara). There is an acute liaison nurse at the North Middlesex Hospital three days a week (Paulette Blackwood).
Tamara told the health sub group about her progress at Barnet and Chase Farm –
‘Purple Safeguarding Folders’ have been handed out to all wards.
There will be stands promoting awareness throughout the hospital for learning disability awareness week in June.
The hospital training strategy has been redeveloped to include Learning Disability awareness.
Tamara is delivering corporate inductions once a week, which include learning disability awareness for health care assistants and newly qualified nurses.
Tamara will be developing specific learning disability champions over the next six months.
Tamara is looking at improving the friends and family test, to include more details of what works and what needs improving.
Tamara is looking at putting a case together to purchase ‘sensory boxes’ to help people reduce anxiety with appropriate stimulation.
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The ‘See Ability’ website now lists opticians who support people with learning disabilities, including non-verbal tests. There are two in Enfield.
2. Increase the life expectancy of people
with Learning Disabilities in Enfield so they
live longer and better lives (national
average 56..)
Not yet
rated
Not discussed at this meeting
3. Ensure reasonable adjustments are in
place for people with learning disabilities
to access Sports facilities.
Not yet
rated
Not discussed at this meeting
4. Prevent unnecessary admissions to
hospital.
Not Yet
rated
Not discussed at this meeting (although see referenced to Community Interventions Team, above)
5. To monitor the work of the Health
Steering Groups
The current dementia pathway being reviewed.
The steering group has delivered some bespoke training, which
can now be rolled out to carers groups, or carers could attend
future sessions.
The End of Life Care steering group has delivered its first session of the revised training course. Future dates will now be rolled out to providers.
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Leadership and
Advocacy
The Group in Charge
Focus Group
The ‘Champions’ –
Sue Wilkinson
1. To support individuals to have
access to appropriate advocacy support
as required by
We continue to provide an advocacy service to individuals by referral on a spot-purchase basis. Providing Advocacy to Formont Centre, Community Link Enfield and Edmonton and facilitating a Saturday Self Advocacy Group.
We continue supporting individuals on forums and at meetings and sign-posting where necessary. Ongoing.
2. To monitor that local advocacy
support is provided within legal
guidelines and good practice guidelines
by -
Good practice guidelines have been written by Enfield Disability Action and are available. Work has been done in
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conjunction/partnership with other agencies to ensure good practice guidelines have been adopted. However there is no remit to monitor the quality of the advocacy provided by other agencies from EDA. As the Learning Difficulties and Autism Council develops, the representatives may have a role here.
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Transport
The Group in Charge
The Transport Sub Group
The ‘Champions’
Stephen Smith
1. To survey local transport services.
Survey completed and launched at a meeting with Transport Providers, including Transport for London, Safer Transport Police and the local authority. Easy read summary in process of completion.
2. Provide training to People with Learning
Disabilities and transport staff.
Travel Training and Bus Days in conjunction with Transport for London are ongoing.
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3. Monitor the effects of the Transport
Policy on People with Learning
Disabilities
This has been done and changes made.
4. Represent the Partnership Board on
wider user forums
Stephen Smith is attending a regular forum organised by Transport for London. Other forums will be attended as notified and as time is available. No more info received from Enfield Transport Users Group.
5. Contribute to the Cycle Enfield
Consultation
Contribution made. See last report.