Down Syndrome Guild

of Southeast Michigan

Annual Meeting: August 14, 2012 (for

Fiscal period July 2010- June 2011)

OUR MISSION

The mission of the Down Syndrome Guild of Southeast Michigan (is a 501)c(3) non-profit organization established in 1989. We have a proven history of responding to the changing needs of people with Down Syndrome and their families. The DSG provides support, resources, and advocacy with the aim of increasing awareness and opportunities for individuals

with Down Syndrome.

THANK YOU TO OUR VOLUNTEERSWE COULDN’T DO IT WITHOUT YOU

OVER 350 VOLUNTEERS GENEROUSLY GAVE OF THEIR TIME IN 2010/2011 IN THE FOLLOWING AREAS

• STEP UP FOR DOWN SYNDROME

• CONFERENCES

• EDUCATIONAL SPECIALIST TRAININGS

• ONE CALL NOW

• SIBSHOPS

• YOUNG ATHLETES PROGRAM

• NEW PARENT SUPPORT– MENTORING– MEDICAL OUTREACH

• FAMILY PICNIC

• HOLIDAY PARTY

• OFFICE SUPPORT

• LENDING LIBRARY

• MICHIGAN MIRACLE LEAGUE

• COMMUNITY GROUPS

IN AWE OF YOUR DEDICATION AND SERVICE TO THE MISSION OF DSG

What Independent Sector Says About Volunteer Service Hours

Independent Sector is the leadership forum for charities, foundations, and corporate giving programs worldwide. It is a nonpartisan consortium of about 600 organizations. Every year, Independent Sector determines the dollar value of a volunteer hour, and this number is used by the majority of charities across the country.

For 2010, a volunteer hour of service was valued at $21.36.

VOLUNTEERINGWhat Does That Mean for the Down Syndrome

Guild of Southeast MichiganOur Board of Directors donated almost 800 hours

during fiscal 2010-2011

This translates to a service contribution = to $17,088

Volunteers participated in multiple areas and contributed over 2,300 hours of service

This translates to a service contribution = to $49,128

Together, this was a conservative estimate of volunteer service hours = to $66,216

Erin and Danny

BOARD ELECTIONS

New Executive Officers

New Board Members

Renewing Board Members

Retiring Board Members

THE BOARD OF DIRECTORS2011 - 2012

Current Board Members (18)David Buckley Paul Nobles

James Hanggi Nancy Faralisz

Laurie Whell

Kim Reynolds

Kirk Anderson

Tricia Dewar

Denise Dunn

Colleen Holmes

ELECTION OF NEW EXECUTIVE OFFICERS

President: David Buckley

Vice President: James Hanggi

Treasurer: Kim Reynolds

Secretary: Laurie Whell

ELECTION OF GENERAL BOARD MEMBERS

Renewing Terms• David Buckley, Jim Hanggi, Laurie Whell,

Kim Reynolds– 3 year term (2012 – 2015)

New Board Members• Nancy Faralisz(2012 – 2015)• Paul Nobles(2012 – 2015)

RETIRING BOARD MEMBERS

Thank You for Your Generous Service

Nancy Nelson

Nadia Cosovic

Mary Mazur

Bob Spamen

Laurie Mathes

Caryn Ivey

Tom Liike

BELIEVE IN ME

Celebrating 20+ years of service to our members…and growing

How We Serve Our MembersFAMILY SUPPORT PROGRAMS• New Parent Support • Medical Outreach• Information & Referral• Community Groups• Family Picnic• Holiday Party• Scholarships• Hired full time staff• Leased 1st office

EDUCATION PROGRAMS• Michigan Miracle League• Down Syndrome Education Specialist Training• Conferences• Speakers Bureau• Resource Library

AWARENESS & ADVOCACY• Step Up For Down Syndrome• Walk in the Park• Calendar• “I’m Down with That”• Bumper stickers, window clings and

bookmarks

MEMBER COMMUNICATIONS• Website• Friday E-Blasts• Facebook & Twitter• Newsletters• Annual Report• Annual Meeting• One Call Now

FAMILY SUPPORT PROGRAMSand

AWARENESS & ADVOCACY

HOLIDAY PARTY AND FAMILY PICNIC 2010 - 2011

FAMILY SUPPORT PROGRAMS

NEW PARENT SUPPORT

&

MEDICAL OUTREACH

NEW PARENT SUPPORTMaking a Difference for our Families

• 60 families were welcomed into our DSG family since July, 2010

• 10 of these families contacted us

with a pre-natal diagnosis

• 50 New Parent packets were distributed since July, 2010

• 24 new Moms (46%) elected to receive New Parent Support Mentoring

• 214 mentoring hours were provided by the Wayne State Genetics Department

• 403 New Parent families have been served since program inception in 2005

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN

Where Our New Parents LiveAnd Receive Our Services

The DSG serves southeast Michigan; including Wayne, Oakland, Macomb,

Washtenaw, Livingston, Monroe, Lapeer, Genesee, and St. Clair Counties.

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN

WHERE OUR NEW PARENT SUPPORT

VOLUNTEERS LIVE

MEDICAL OUTREACH SERVICESEducating & Increasing Knowledge

for New Families & Medical Professionals

• 85+ hospital packets have been distributed this fiscal year among our 7 hospitals

• 87 OB/GYNs, Geneticists, Pediatric Nurses, and Counselors received informational materials through our exhibiting at a region 5 ACOG conference.

• Genetic Counseling students at Wayne State University received our Medical Professional Packets

HOSPITALS THAT HAVE OURPACKETS READY TO DISTRIBUTE TO NEW

PARENTS

WAYNE:Oakwood

OAKLAND:Beaumont-Royal OakBeaumont- TroyCrittinton RochesterHuron Valley- Sinai HospitalProvidence (South John Hospital)- SouthfieldSt. Joseph MercyBotsford Hospital- Farmington Hills

LIVINGSTON:U of M- Ann Arbor

COMMUNITY GROUPSSustaining Support Groups in 9 Counties

COMMUNITY GROUPS SUPPORTED

BY THE DSG OFFICE

Baby Buddies/ Playgroup

Birmingham, Clarkston, Dearborn, Detroit, Dexter, Farmington/Farmington Hills, Flint/ Grand Blanc, Grosse Point,

Heartland/ Highland, Holly, Lake Orion, Livonia, Macomb, Mount Clemons, Plymouth/Canton, Rochester/ Rochester Hills,

Royal Oak, Southfield, Southgate, South Lyon, Taylor, Troy, Walled Lake/ Commerce Township, Wyandotte, Hispanic

Families, African American Families.

EDUCATION PROGRAMS

Sibshops Belightful Yoga

Club 21

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MAKING A DIFFERENCE FOR OUR FAMILIES AND THE EDUCATIONAL COMMUNITY

DOWN SYNDROME EDUCATION

SPECIALIST TRAINING• 125 teachers, administrators, therapists, and

counselors participated in 24 hours of training in 2010-2011

• 13 school districts in Oakland County were represented, a parochial school in Wald Lake, a charter school in Detroit have named a specialist

• 3 community agencies were trained• 125 participants have completed the certification

since the program was implemented in 2009

Down Syndrome Ed Specialist Program2010-2011 PARTICIPATING SCHOOL DISTRICTS AND

COMMUNITY AGENCIESAvondale Public Schools

Berkley Public Schools

Birmingham Public Schools

Bloomfield Hills Public Schools

Caesar Chavez Academy- Detroit

Clarkston Public Schools

Clawson Publics Schools

Farmington Hills Public Schools

Ferndale Public Schools

Lake Orion Public Schools

Lamphere Public Schools

Livonia Public Schools

Novi Public Schools

Plymouth-Canton Public Schools

Rochester Public Schools

St. Williams Parochial Schools

Troy Public Schools

Walled Lake Public Schools

CONFERENCE• 128 participants attended the Saturday all-day

session on “Reaching for Opportunity- Educating Students with Down Syndrome” at U of M Dearborn

• 12 volunteers helped create and manage these sessions

• 90 volunteer hours were contributed

ADDITIONAL EDUCATIONAL SERVICES

RESOURCE LIBRARY• 400+ Books, DVD’s, and CD’s are available for

check-out by our families

INFORMATION & REFERRAL• 1,250 Calls were received requesting information

about a variety of topics, including community service recommendations, physician referrals, counseling referrals, services we provide, etc.

SPEAKERS BUREAU• 5 Presentations were given to area schools and

community groups• 30 Volunteer hours were donated • 5 Presentations were given by staff

AWARENESS & ADVOCACY

STEP UP FOR DOWN SYNDROME (SUDS)

INCREASING COMMUNITY UNDERSTANDING

• 1600+ Members and friends participated in the Step Up Walk on October 9, 2010

• 2,000+ Members and friends participated in Step Up For Down Syndrome on October 8, 2011

• 10 Volunteers donated 20 hours of service to “I’m Down with That” on June 25, 2011

• 350 Volunteers donated 320 hours of service • 500 Calendars were purchased

• 3 Volunteer photographers donated 60 hours of service

COMMUNICATIONS• 40 Friday E-blasts were created

• 3,000+ members receive our E-blast

• 6 Bi-monthly “ A Little Something Extra”

• 560+ Facebook fans are signed up

• One Call Now: an automated phone service has saved the DSG 881 hours, 33 minutes to date.

FINANCIALS

INCREASED ACCOUNTABILITY

IMPROVING OUR FINANCES