diagnosing - university of kentucky...autistic symptoms become less severe. the only accurate way to...

The Great

Continuum

Diagnosing

Autism

THE FIRST SIGN that a baby may be autistic is that it stiffensup and resists being held and cuddled. It may be extremelysensitive to touch and respond by pulling away or screaming.More obvious symptoms of autism usually occur betweentwelve and twenty-four months of age. I was my mother's firstchild, and I was like a little wild animal. I struggled to get awaywhen held, but if I was left alone in the big baby carriage Iseldom fussed. Mother first realized that something was dreadfully wrong when I failed to start talking like the little girl nextdoor, and it seemed that I might be deaf. Between nonstoptantrums and a penchant for smearing feces, I was a terribletwo-year-old.

At that time, I showed the symptoms of classic autism: nospeech, poor eye contact, tantrums, appearance of deafness, nointerest in people, and constant staring off into space. I wastaken to a neurologist, and when a hearing test revealed that Iwas not deaf, I was given the label "brain-damaged." Mostdoctors over forty years ago had never heard of autism. A fewyears later, when more doctors learned about it, that label wasapplied.

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44 • Thinking in Pictures

I can remember the frustration of not being able to talk atage three. This caused me to throw many a tantrum. I couldunderstand what people said to me, but I could not get mywords out. It was like a big stutter, and starting words wasdifficult. My first few words were very difficult to produce andgenerally had only one syllable, such as "bah" for ball. It wasUke a big stutter. I can remember logically thinking to myselfthat I would have to scream because I had no other way tocommunicate. Tantrums also occurred when I became tired orstressed by too much noise, such as horns going off at a birthday party. My behavior was like a tripping circuit breaker. Oneminute I was fine, and the next minute I was on the floorkicking and screaming like a crazed wildcat.

I can remember the day I bit my teacher's leg. It was late inthe afternoon and I was getting tired. I just lost it. But it wasonly after I came out of it, when I saw her bleeding leg, that Irealized I had bitten her. Tantrums occurred suddenly, Hkeepileptic seizures. Mother figured out that like seizures, theyhad to run their course. Getting angry once a tantrum startedjust made it worse. She explained to my elementary schoolteachers that the best way to handle me if I had a tantrum wasnot to get angry or excited. She learned that tantrums could beprevented by getting me out of noisy places when I got tired.Privileges such as watching Howdy Doody on TV were withdrawn when I had a bad day at school. She even figured outthat I'd sometimes throw a tantrum to avoid going to class.

When left alone, I would often space out and become hypnotized. I could sit for hours on the beach watching sand dribbling through my fingers. I'd study each individual grain ofsand as it flowed between my fingers. Each grain was different,and I was like a scientist studying the grains under a microscope. As I scrutinized their shapes and contours, I went into atrance which cut me off from the sights and sounds around me.

Rocking and spinning were other ways to shut out the worldwhen I became overloaded with too much noise. Rockingmade me feel calm. It was like taking an addictive drug. The

Vie Great Continuum • 45

more I did it, the more I wanted to do it. My mother and myteachers would stop me so I would get back in touch with therest ofthe world. I also loved to spin, and I seldom got dizzy.When I stopped spinning, I enjoyed the sensation of watchingthe room spin.

Today, autism is regarded as an early childhood disorder bydefinition, and it is three times more common in boys thangirls. For the diagnosis to be made, autistic symptoms mustappear before the age of three. The most common symptomsin young children are no speech or abnormal speech, lack ofeye contact, frequent temper tantrums, oversensitivity to touch,the appearance of deafness, a preference for being alone, rocking or other rhythmic stereotypic behavior, aloofness, and lackofsocial contact with parents and siblings. Another sign is inappropriate play with toys. The child may spend long periods oftime spinning the wheel of a toy car instead of driving itaround on the floor.

Diagnosing autism is complicated by the fact that the behavioral criteria are constantly being changed. These criteria arelisted in the Diagnostic and Statistical Manual published by theAmerican Psychiatric Association. Using those in the third edition of the book, 91 percent ofyoung children displaying autistic symptoms would be labeled autistic. However, using thenewest edition of the book, the label would apply to only 59percent of the cases, because the criteria have been narrowed.

Many parents with an autistic child will go to many differentspecialists looking for a precise diagnosis. Unfortunately, diagnosing autism is not like diagnosing measles or a specific chromosomal defect such as Down syndrome. Even though autismis a neurological disorder, it is still diagnosed by observing achild's behavior. There is no blood test or brain scan that cangive an absolute diagnosis, though brain scans may partiallyreplace observation in the future.

The new diagnostic categories are autism, pervasive developmental disorder (PDD), Asperger's syndrome, and disintegra-

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tive disorder, and there is much controversy among professionals about them. Some consider these categories to be trueseparate entities, and others believe that they lie on an autisticcontinuum and there is no definite distinction between them.

A three-year-old child would be labeled autistic if he or shelacked both social relatedness and speech or had abnormalspeech. This diagnosis is also called classic Kanner's syndrome,after Leo Kanner, the physician who first described this form ofautism, in 1943. These individuals usually learn to talk, butthey remain very severely handicapped because of extremelyrigid thinking, poor ability to generalize, and no commonsense. Some of the Kanner people have savant skills, such ascalendar calculation. The savant group comprises about 10 percent of the children and adults who are diagnosed.

A child with classic Kanner's syndrome has little or no flexibility of thinking or behavior. Charles Hart describes this rigidity in his autistic brother, Sumner, who had to be constantlycoached by his mother. He had to be told each step of gettingundressed and going to bed. Hart goes on to describe the behavior of his autistic son, Ted, during a birthday party when icecream cones were served. The other children immediately began to lick them, but Ted just stared at his and appeared to beafraid of it. He didn't know what to do, because in the past hehad eaten ice cream with a spoon.

Another serious problem for people with Kanner's syndromeis lack of common sense. They can easily learn how to get on abus to go to school, but have no idea what to do if somethinginterrupts the routine. Any disruption of routine causes a panicattack, anxiety, or a flight response, unless the person is taughtwhat to do when something goes wrong. Rigid thinking makesit difficult to teach people with Kanner-type autism the subtleties of socially appropriate behavior. For example, at an autismmeeting, a young man with Kanner's syndrome walked up toevery person and asked, "Where are your earrings?" Kannerautistics need to be told in a clear simple way what is appropriate and inappropriate social behavior.

The Great Continuum • 47

Uta Frith, aresearcher at the MRC Cognitive DevelopmentUrn nLondon, has found that some people with Kannersvndrome are unable to imagine what another person is thinkn" She developed a"theory of mind" test to determine the"tent of the problem. For example, Joe, Dick and apersonS autism are sitting at atable. Joe places acandy ba^. in box,nH shuts the lid. The telephone rings, and Dick leaves tneoom to a^wer the phone. While Dick is gone, Joe eats thecandy bar and put. apen in the box. The autistic person who iswtchmg is asked, "What does Dick think is in the box?Many people with autism will give the wrong answer and saySn"They are not able to figure out that D.ck, who is nowoutside the Jom, thinks that the box still contains acan yb,

people with ^^-^:^:: S:":^Xhandicapped than people with manner uy^pafthis test and generally perform better on tests of *£enroblem-solving than Kanner's syndrome aut sties. In factman^ Asperger individuals never get formafiy diagnosed, andSoften hold jobs and live independently. Children wthAsperger's syndrome have more normal speech developmentand much better cognitive skills than those w.th classic Kanner's Another label for Asperger's syndrome is "h^-functionin autism." One noticeable difference between Kanner andAsperger's syndromes is that Asperger children are oftendum y The diagnosis of Asperger's is often confused withPDD abbel that ,s applied to children with mild symptomwhich are not quite serious enough to call for one of the othe,

^Children diagnosed as having disintegrative disorder start todevelop normal speech and social behavior and then regress andiose their speech after age two. Many of them never regainhe rspeech and they have difficulty learning simple householdchores These individuals are also referred to as having low-unctioning autism, and they require supervised living arrangements for their entire fives. Some children with disintegrativ"order improve and become high-funct.oning, but overall,

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children in this category are likely to remain low-functioning.There is a large group of children labeled autistic who start todevelop normally and then regress and lose their speech beforeage two. These early regressives sometimes have a better prognosis than late regressives. Those who never learn to talk usually have severe neurological impairments that show up on routine tests. They are also more likely to have epilepsy thanKanner or Asperger children. Individuals who are low-functioning often have very poor ability to understand spokenwords. Kanner, Asperger and PDD children and adults usuallyhave a much better ability to understand speech.

Children in all of the diagnostic categories benefit fromplacement in a good educational program. Prognosis is improved ifintensive education is started before age three. I finallylearned to speak at three and a half, after a year of intensivespeech therapy. Children who regress at eighteen to twenty-four months of age respond to intensive educational programswhen speech loss first occurs, but as they become older theymay require calmer, quieter teaching methods to prevent sensory overload. If an educational program is successful, manyautistic symptoms become less severe.

The only accurate way to diagnose autism in an adult is tointerview the person about his or her early childhood and obtain descriptions of his or her behavior from parents or teachers. Other disorders with autistic symptoms, such as acquiredaphasia (loss of speech), disintegrative disorder, and Landau-Kleffner syndrome, occur at an older age. A child may havenormal or near-normal speech and then lose it between theages of two and seven. In some cases disintegrative disorder andLandau-Kleffner syndrome may have similar underlying brainabnormalities. Landau-Kleffner syndrome is a type of epilepsythat often causes a child to lose speech. Small seizures scramblehearing and make it difficult or impossible for the child tounderstand spoken words. A proper diagnosis requires very sophisticated tests, because the seizures are difficult to detect.They will not show up on a simple brain-wave (EEG) test.

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These disorders can often be successfully treated with anticonvulsants (epilepsy drugs) or corticosteroids such as prednisone.Anticonvulsant medications may also be helpful to autistic children who have abnormal EEGs or sensory scrambling. Otherneurological disorders that have symptoms of autism are FragileX syndrome, Rhett's syndrome, and tuberous sclerosis. Educational and treatment programs that help autistic children areusually helpful for children with these disorders also.

There is still confusion in diagnosing between autism andschizophrenia. Some professionals claim that children with autism develop schizophrenic characteristics in adulthood. Likeautism's, schizophrenia's current diagnostic criteria are purelybehavioral, though both are neurological disorders. In the future, brain scans will be sophisticated enough to provide anaccurate diagnosis. Thus far, brain research has shown thatthese conditions have different patterns of abnormalities. Bydefinition, autism starts in early childhood, while the firstsymptoms of schizophrenia usually occur in adolescence orearly adulthood. Schizophrenia has two major components, thepositive symptoms, which include full-blown hallucinationsand delusions accompanied by incoherent thinking, and thenegative symptoms, such as flat, dull affect and monotonespeech. These negative symptoms often resemble the lack ofaffect seen in adults with autism.

In the British Journal of Psychiatry, Dr. P. Liddle and Dr. T.Barnes wrote that schizophrenia may really be two or threeseparate conditions. The positive symptoms are entirely different from symptoms of autism, but the negative ones may partially overlap with autistic symptoms. Confusion of the twoconditions is the reason that some doctors attempt to treat autism with neuroleptic drugs such as Haldol and Mellaril. Butneuroleptics should not be the first-choice medications for autism, because other, safer drugs are often more effective.Neuroleptic drugs have very severe side effects and can damagethe nervous system.

Over ten years ago, Dr. Peter Tanguay and Rose Mary Ed-

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wards, at UCLA, hypothesized that distortion of auditory inputduring acritical phase in early childhood development may beone cause of handicaps in language and thinking. The exacttiming of the sensory processing problems may determinewhether achild has Kanner's syndrome or is anonverbal, low-functioning autistic. 1hypothesize that oversensitivity to touchand auditory scrambling prior to age two may cause the rigidityof thinking and lack of emotional development found in Kan-ner-type autism. These children partially recover the abi ity tounderstand speech between the ages of two and a half andthree. Disintegrative disorder children, who develop normallyup to two years of age, may be more emotionally normal because emotional centers in the brain have had an opportunity-to develop before the onset of sensory processing problems. Itmay be that asimple difference in timing determines whichtype of autism develops. Early sensory processing problems mayprevent development of the emotional centers of the brain inKanner-type autistics, while the acquisition of language is moredisturbed when sensory processing difficulties occur slightlylater. ,

Research has very clearly shown that autism is aneurologicaldisorder that reveals distinct abnormalities in the brain. Brainautopsy research by Dr. Margaret Bauman has shown that thosewith both autism and disintegrative disorder have immaturedevelopment of the cerebellum and the limbic system. Indications of adelay in brain maturation can also be seen in autisticchildren's brain waves. Dr. David Canter and his associates atthe University of Maryland found that low-functioning children between the ages of four and twelve have EEC readingsthat resemble the brain-wave pattern of a two-year-old. lhequestion is what causes these abnormalities. Studies by manyresearchers are showing that there may be acluster ol genes thatcan put aperson at risk for many disorders, including autismdepression, anxiety, dyslexia, attention deficit disorder, anaother problems.

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some other developmental disorder. Some parents suspect thatan allergic reaction to early childhood vaccinations triggers autistic regression. If this is true it is likely that the vaccine interacts with genetic factors. Another possibility is immune systemabnormalities which interfere with brain development. However, there is still too much that is not known, and neitherparent should be held responsible for an autistic child. Scientificstudies and interviews with families indicate that both the father's and the mother's side contribute genetically to autism.

The Autistic Continuum

Countless researchers have attempted to figure out what factorsdetermine the difference between high- and low-functioningautism. High-functioning children with Kanner's or Asperger'ssyndrome usually develop good speech and often do well academically. Low-functioning children are often unable to speakor can say only a few words. They also have trouble learningsimple skills such as buttoning a shirt. At age three, both typeshave similar behaviors, but as they grow older the differencebecomes more and more apparent.

When my speech therapist held my chin and directed me tolook at her, it jerked me out of my private world, but for othersforcing eye contact can cause the opposite reaction—brainoverload and shutdown. For instance, Donna Williams, the authorof Nobody Nowhere, explained that she could use only onesensory channel at a time. Ifa teacher had grabbed her chin andforced eye contact, she would have turned off her ears. Herdescriptions of sensory jumbling provide an important bridgeto understanding the difference between high-functioning andlow-functioning autism, which I would describe as a sensoryprocessing continuum. At one end of the continuum is a person with Asperger's or Kanner's autism who has mild sensoryoversensitivity problems, and at the other end of the spectrumis the low-functioning person who receives jumbled, inaccurateinformation, both visually and aurally.

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The Great Continuum ' 53

, was able to learn to speak because I could understandspeech, but low-functioning autistics may never learn to speakbecause their brains cannot discriminate among speechsounds. Many of these people are mentally retarded, but afewindiv.duals may have anear-normal brain trapped inside asensory system that does not work. Those who escape the prisonof low-functioning autism probably do so because just enoughundistorted information gets through. They do not totally losecontact with the world around them.

Twenty years ago, Carl Delacato, atherapist who workedwith autistic children, speculated that low-functioning individuals may have "white noise" in their sensory channels. In hisbook The Ultimate Stranger, he described three kinds of sensoryprocessing problems: hyper, hypo, and white noise. Hypermeans oversensitive, hypo means undersensitive, and whitenoise means internal interference.

In questioning many people with autism, I soon found thatthere was a continuum of sensory abnormalities that wouldprovide insight into the world of nonverbal people with autism.I imagine that the extent of sensory jumbling they experiencewould be equivalent to taking Donna's sensory problems andmultiplying them tenfold. I am lucky in that I responded wellwhen my mother, teachers, and governess kept encouragingsocial interaction and play. I was seldom allowed to retreat intothe soothing world of rocking or spinning objects. When 1daydreamed, my teachers yanked me back to reality.

Almost half of all very young children with autism respondwell to gendy intrusive programs in winch they are constant yencouraged to look at the teacher and interact. Brightlycolored wall decorations made learning fun for me, but theymay be too distracting for achild with sensory jumbling. Thepopular Lovaas program, developed at UCLA, is being usedsuccessfuUy there to mainstream nearly half of young autisticchildren into a normal kindergarten or first grade. The Lovaasmethod pairs words with objects, and the children are rewardedwith praise and food when they correctly match aword with

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an object. While this program is wonderful for some kids, it iscertain to be confusing and possibly painful for children withsevere sensory jumbling and mixing problems.

These children require a different approach. Touch is oftentheir most reliable sense, and they learn best if teachers use atactile system. One mother taught her nonverbal daughter todraw a circle by holding her hand and guiding it to make acircle. Plastic letters that can be felt are often useful for teachingwords. The more protected these children are from distractingsights and sounds, the more likely it is that their dysfunctionalnervous system will be able to perceive speech accurately. Tohelp them hear better, teachers must protect them from visualstimuli that will cause sensory overload. They may hear best inaquiet, dimly illuminated room that is free of fluorescent lightsand bright wall decorations. Sometimes hearing is enhanced ifthe teacher whispers or sings softly. Teachers need to speakslowly to accommodate a nervous system that processes information slowly. And sudden movements that will cause sensoryconfusion should also be avoided.

Children who are echolalic—who repeat what they hearmay be at a midpoint on the sensory processing continuum.Enough recognizable speech gets through for them to be ableto repeat the words. Dr. Doris Allen, at the Albert EinsteinHospital in New York, emphasizes that echolalia should not bediscouraged, so as not to inhibit speech. The child repeats whathas been said to verify that he heard it correctly. Research byLaura Berk, at Illinois State University, has shown that normalchildren talk to themselves to help them control their behaviorand learn new skills. Since autism is caused by immature braindevelopment, it is likely that echolalia and self-talking, whichoccur in older autistic children, are the result of immaturespeech patterns.

Unlike normal children, who naturally connect language tothe things in their lives at a remarkable rate, autistic childrenhave to learn that objects have names. They have to learn that


words communicate. All autistic children have problems withlong strings of verbal information. Even very high-functioningpeople have difficulty following verbal instructions and find iteasier to follow written instructions, since they are unable toremember the sequence of the information. My college mathteacher once commented that I took excessive notes. He told

me that I should pay attention and understand the concept.The problem was that it was impossible for me to rememberthe sequence of the problems without the notes. I learned toread with phonics and sounding out words, because I was ableto understand speech by age three. Children with more severeauditory processing problems often learn to read before theycan speak. They learn best if a written word is paired with anobject, because many of them have very poor comprehensionof spoken words.

As an adult my method for learning a foreign language maybe similar to how a more severely impaired autistic child learnsto understand language. I cannot pick words out of a conversation in a foreign language until I have seen them written first.

Two basic patterns of autistic symptoms can help identifywhich children will respond well to intensive, gently intrusiveteaching methods, and which will not. The first kind of childmay appear deaf at age two, but by age three he or she canunderstand speech. I was this kind. When adults spoke direcdyto me, I could understand them, but when they talked amongthemselves, it sounded like gibberish. The second kind of childappears to develop normally until one and a half or two andthen loses speech. As the syndrome progresses, the ability tounderstand speech deteriorates and autistic symptoms worsen.A child that has been affectionate withdraws into autism as hissensory system becomes more and more scrambled. Eventuallyhe may lose awareness ofhis surroundings, because his brain isnot able to process and understand sights and sounds aroundhim. There are also children who are mixtures of the two kindsof autism.


Children of the first kind will respond well to intensive,structured educational programs that pull them out of the autistic world, because their sensory systems provide a more or lessaccurate representation of things around them. There may beproblems with sound or touch sensitivity, but they still havesome realistic awareness of their surroundings. The second kindof child may not respond, because sensory jumbling makes theworld incomprehensible. Gently intrusive teaching methodswill work on some children who lose their speech before agetwo if teaching is started before their senses become totallyscrambled. Catherine Maurice describes her successful use ofthe Lovaas program with her two children, who lost speech atfifteen and eighteen months of age, in her book, Let Me HearYour Voice. Teaching was started within six months of the onsetof symptoms. The regression into autism was not complete,and her children still had some awareness. If she had waiteduntil they were four or five, it is very likely that the Lovaasmethod would have caused confusion and sensory overload.

My experience and that ofothers has shown that an effectiveteaching method coupled with reasonable amounts of effortshould work. Desperate parents often get hooked into lookingfor magic cures that require ten hours a day of intensive treatment. To be effective, educational programs do have to be doneevery day, but they usually do not require heroic amounts ofeffort. My mother spent thirty minutes five days a week forseveral months teaching me to read. Mrs. Maurice had ateacher spend twenty hours aweek on the Lovaas method withher children. In addition to participating in formal educationalprograms, young autistic children need a structured day, bothin the school and at home. Several studies have shown thattwenty to twenty-five hours a week of intensive treatmentwhich required the child to constantly interact with his teacherwas most effective. A neurologist gave my mother some verygood advice: to follow her own instincts. Ifachild is improvingin an educational program, then it should be continued, but if


there is no progress, something else should be tried. Motherhad a knack for recognizing which people could help me andwhich ones could not. She sought out the best teachers andschools for me, in an era when most autistic children wereplaced in institutions. She was determined to keep me out ofaninstitution.

Acontroversial technique called facilitated communication isnow being used with nonverbal people with autism. Using thetechnique, the teacher supports the person's hand while he orshe taps out messages on a typewriter keyboard. Some severelyhandicapped people have problems with stopping and startinghand movements, and they also have involuntary movementsthat make typing difficult. Supporting the person's wrist helpsto initiate motion of the hand toward the keyboard and pullshis fingers off the keyboard after he pushes a key to preventperseveration and multiple pushing of a single key. Merelytouching the person's shoulder can help him initiate handmovements.

Several years ago, facilitated communication was hailed as amajor breakthrough, and wild claims were made that the mostseverely handicapped autistic people had completely normalintelligence and emotions. Fifty scientific studies have now-shown that in the vast majority of cases, the teacher was moving the person's hand, as if it were aplanchet on aOmja board.The teacher was communicating, instead of the person withautism. Asummary of forty-three studies in the Autism ResearchReview showed that 5 percent of nonverbal, severely handicapped people can communicate with simple one-word responses. In the few cases where facilitated communication hasbeen successful, someone has spent many hours teaching theperson to read first.

It is likely that the truth about facilitated communication issomewhere between wishful hand-pushing and real communication. Carol Berger, of New Breakthroughs in Eugene, Oregon, found that low-functioning audstics could achieve 33 per-

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cent to 75 percent accuracy in typing one-word answers. Someof the poor results in controlled studies may have been due tosensory overload caused by the presence ofstrange people. Reports from parents indicate that a few adults and children initially need wrist support and then gradually learn to type independently. But the person must know how to read, andfacilitator influence cannot be completely ruled out until wristor arm support is removed.

Parents who are desperate to reach their autistic childrenoften look for miracles. It's hard not to get caught up in newpromises ofhope, because there have been so few real breakthroughs in the understanding of autism.

The Autistic Continuum

It appears that at one end ofthe spectrum, autism is primarily acognitive disorder, and at the other end, it is primarily a sensory processing disorder. At the severely impaired sensory processing end, many children may be diagnosed as having disintegrative disorder. At a midpoint along the spectrum, autisticsymptoms appear to be caused by equal amounts of cognitiveand sensory problems. There can be mild and severe cases at allpoints along the continuum. Both the severity and the ratio ofthese two components are variable, and each case of autism isdifferent. When a person with autism improves because of either educational or medical intervention, the severity of a cognitive or sensory problem may diminish, but the ratio betweenthe two seems to stay the same. What remains inexplicable,however, are rigid thinking patterns and lack ofemotional affect in many high-functioning people. One of the perplexingthings about autism is that it is almost impossible to predictwhich toddler will become high-functioning. The severity ofthe symptoms at age two or three is often not correlated withthe prognosis.

The world of the nonverbal person with autism is chaoticand confusing. Alow-functioning adult who is still not toilet-

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The Great Continuum ' 59

trained may be living in acompletely disordered sensory world.It is likely that he has no idea of his body boundaries and thatsights, sounds, and touches are all mixed together. It must belike seeing the world through a kaleidoscope and trying tolisten to a radio station that is jammed with static at the sametime Add to that a broken volume control, which causes thevolume to jump erratically from a loud boom to inaudible.Such aperson's problems are further compounded by anervoussystem that is often in agreater state of fear and panic than thenervous system of a Kanner-type autistic. Imagine a state ofhyperarousal where you were being pursued by a dangerousattacker in a world oftotal chaos. Not surprisingly, new environments make low-functioning autistics fearful.

Puberty often makes the problem worse. Birger Sellin describes in his book IDon't Want to Be Inside Me Anymore howhis well-behaved son developed unpredictable screaming fitsand tantrums at puberty. The hormones of adolescence furthersensitized and inflamed an overaroused nervous system. Dr.John Ratey, at Harvard University, uses the concept of noise inthe nervous system to describe such hyperarousal and confusion. Medications such as beta-blockers and clomdine are oftenhelpful because they can calm an overaroused sympathetic nervous system.

Autistics with severe sensory problems sometimes engage inself-injurious behavior such as biting themselves or hitting theirheads Their sensory sensations are so disordered that they maynot realize they are hurting themselves. Though arecent studyby Reed Elliot published in the Journal of Autism and Developmental Disabilities showed that very vigorous aerobic exercisereduced aggression and self-injury in half of mentally retardedautistic adults, educational and behavioral training will help almost all people with autism to function better. Early intervention in agood program can enable about 50 percent of autisticchildren to be enrolled in a normal first grade. Though mostautistics will not function at my level, their ability to live a

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productive life will be improved. Medication can help reducethe hyperarousal of many low-functioning older children andhelp them control their behavior. Many nonverbal autistics arecapable of doing simple jobs such as washing windows or routine manual work. Few nonverbal autistic adults are able to readand are capable of doing normal schoolwork.

Many parents and teachers have asked me where I fit on theautistic continuum. I still have problems with rapid responses tounexpected social situations. In my business dealings I can handle new situations, but every once in a while I pamc whenthings go wrong. I've learned to deal with the fear of traveling,so that I have abackup plan if, for example, my plane is late. Ihave no problems ifI mentally rehearse every scenario, but Istill panic if I'm not prepared for a new situation, especiallywhen I travel to a foreign country where I am unable to communicate. Since I can't rely on my library ofsocial cues, I feelvery helpless when I can't speak the language. Often I withdraw.

If I were two years old today, I would be diagnosed withclassic Kanner's syndrome, because I had delayed abnormalspeech development. However, as an adult Iwould probably bediagnosed as having Asperger's syndrome, because I can pass asimple theory-of-mind test and I have greater cognitive flexibility than aclassic Kanner autistic. All of my thinking is still invisual images, though it appears that thinking may become lessvisual as one moves along the continuum away from classicKanner's syndrome. My sensory oversensitivities are worse thanthe mild difficulties some Kanner autistics have, but I do nothave sensory mixing and jumbling problems. Like most autistics, I don't experience the feelings attached to personal relationships. My visual world is aliteral one, though I have madeprogress by finding visual symbols to carry me beyond the fixedand rigid worlds of other people with classic Kanner autism.

In an article written by Oliver Sacks in The New Yorker, I wasquoted as saying, "IfI could snap my fingers and be nonautis-tic, I would not. Autism is part of what I am." In contrast,


Donna Williams says, "Autism is not me. Autism is just aninformation processing problem that controls who I am." Whois right? I think we both are, because we are on different partsof the autism spectrum. I would not want to lose my ability tothink visually. I have found my place along the great continuum.

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diagnosing - university of kentucky...autistic symptoms become less severe. the only accurate way to...

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