diabetesmine patient survey results - 2013 summit overview

DiabetesMine Patient Voices Survey

A Patient-Led Initiative to Improve Tools & Care

Nov. 15, 2013

Patient Voices Respondents: by Diabetes Type

N=796

Type 1Type 2 (No insulin)Type 2 (Taking insulin)Caregiver of a child with diabetesOther

©2013 DiabetesMine Patient Voices Survey

Learnings Summary

1. Outcome Priorities are not aligned (i.e. not patient-driven)

2. Cost/ Insurance Access is a huge barrier 3. Adherence/ Compliance is significantly

impacted by design factors


Priorities Not Aligned


What Quality of Life Improvements Are Most Important?

Feel less alone

Fewer shots

Fewer finger pricks

Improvement in mental state

Less daily hassle

Feel in control of my own care

Fewer glucose highs/lows

0 100 200 300 400 500 600 700

Very ImportantExtremely Important

N=654


I Want…

“More consistency, fewer blood glucose spikes and lows”

“A complication-free lifespan”

“Better quality of life”


Outcome Measures That Insurers Should Focus On

Other quality of life measures

Medication records

Mental health assesments

Fewer hospital visits

Improvements in daily glucose results

Frequency/severity of complications

Improvements in A1C

0 50 100 150 200 250 300 350 400

Very UsefulUseful


N=487

Access is a Barrier


Influence of Insuranceon Diabetes Technology Choices

N=705

Extremely/very influential Somewhat/Slightly In-fluentialNot at all influential


Biggest Frustrations with Current Diabetes Tools

N=649


Too hard to use

Doesn't improve control

Complicate my life

Unappealing/uncomfortable

Too much hassle

Too expensive

0 100 200 300 400 500

AgreeStrongly Agree

Biggest Drawbacks of a CGM

Out of pocket costs too highTime investmentAnnoying alarmsUncomfortable to wearNeed easier way to ana-lyze

N=630


“I’d like to get more accurate devices, at better prices”


Unworkable Tools


Frequency of Downloading Data from Monitoring Devices

Never Less than

once a month

Once a month 2-3

times a month

Weekly

0

50

100

150

200

250

300

From my finger stick meterFrom my CGM

N=657


Use of Diabetes Logging Software or Mobile Apps

Often (once a month or more)Sometimes (every few months)Rarely (a few times per year)Only before a doctor's appointmentNever

N=639


Use of Smartphone Apps for Diabetes Care

Diet/food ap

p

Exerci

se tr

ackin

g app

Glucose

logg

ing apps

Other

04080

120160200

N=589

N=589


“I hate it that… interfaces aren’t user-friendly”


“… results aren’t accurate enough to rely on.”


“… neither software nor hardware work together – and are not integrated with Mac and iOs.”


“Vendors should quit with the proprietary shenanigans and make technology that will actually help patients and give them access

to their own medical information!”


Changes Needed to Make Diabetes Logging Data Valuable to Patients

Guaranteed doctor/CDE would review and discuss

Better ability to view/share data

If all data was in one place

If program could suggest a plan of action

If program spotted trends

0 100 200 300 400 500

AgreeStrongly Agree


N=551

What Patients Want


What Would Most Motivate You to Put Extra Effort Into D-Management?

"Gamification"

Working in a group/team

Having a diabetes mentor

Incentive program

Positive feedback

0 50 100 150 200 250 300 350 400

LikelyVery Likely

N=609


“I’d like to receive positive feedback for my efforts to control glucose levels regardless of the results.”


“I’d like to have a system that holds patients accountable, while

assisting me to make treatment adjustments in a timely manner.”


“I want to free up brain cells, with less D-math — and tools designed

to not look like a scary medical device, which would also help with

the emotional/social issues.”

“To get there I need affordable, comfortable, discrete, and accurate

devices that minimize hassle.”


diabetesmine patient survey results - 2013 summit overview

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