changing landscapes...patients and the public part in research the most outcome of my involvement in...

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Changing landscapes

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Page 1: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

Changing landscapes

Page 2: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

Chairing

1995 Throat Cancer

Cancer Voice

Nottingham, England

Teacher

Consumer Liaison Group in Cancer Research

Nottingham Citizens Advice Bureau

Ayr, Scotland

Associate Director for Patient Involvement & Engagement

Derek C Stewart

Page 3: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

The NHS landscape

• Clinical Commissioning Groups

• Clinical Senates and Networks

• Health & Wellbeing Boards

• Healthwatch

• Overview and Scrutiny Committees

• Joint Strategic Needs Assessments

• JSNA• OSC• CS&N• H&WbB• HW• CCG

Page 4: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

From the top

Local Oversight & Direction

Watching over

Working together

Spending the money & delivering services

Page 5: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking
Page 6: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

The research landscape

Page 7: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

RESEARCH

FACULTY

INFRASTRUCTURE

SYSTEMS

What is NIHR?

Page 8: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking
Page 9: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

Simple StagesYourNHS

RESEARCHNeeds…

YOU!

AWARENESS

ACCESS

QUALITY

DELIVERY

for Effective Participation,

Involvement & Engagement in

Research

INVOLVEMENT

IDEAS

Page 10: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

Research, and becoming involved in research, has changed the way I manage my condition and has led to me more fit and healthy.

Chris PetersResearch participant

NIHR Annual Report

Page 11: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

The demographic landscape

Page 12: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

The welfare landscape

• Responsibilities

• Individualised services

• Cost effective and productive

• Less legal aid

• Duties rather than rights

Page 13: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking
Page 14: Changing landscapes...Patients and the public part in research the most outcome of my involvement in health is to get me back — a person mislaid for a few years stro ke." — taking

• Plan

• Support

• Self management

• Skills - use of information

• Advocate

• Work together