by athira shridhardagda.shef.ac.uk/dispub/dissertations/2010-11/external/... · 2012-03-27 ·...
TRANSCRIPT
Evaluation of osteoarthritis websites by generic and
disease specific tool: Assessing the quality, reliability
and validity of information of evaluation tools.
A study submitted in partial fulfilment of the requirements for the degree of Masters in Information Systems
at
by
ATHIRA SHRIDHAR
Register Number: 100141346
September 2011
i
Abstract
Background: The healthcare information online is been increasingly used the
patients, families and cares suffering from osteoarthritis, still the information
available to them is not of much quality. There are many tools, both generic and
disease specific designed to evaluate the quality of information on the website, yet
there is no much focus on osteoarthritis.
Aims: The study aims to evaluate the information quality on osteoarthritis websites
by designing a new disease specific tool.
Methods: A sample of 40 osteoarthritis related websites were selected. These were
evaluated using three generic tools (HON Code, IQT and DISCERN) and a specifically
designed osteoarthritis tool based on the reported needs of suffers of
osteoarthritis. The tools were evaluated for their feasibility, reliability and validity.
Results: From comparing the previous studies results, the information quality of the
websites selected was found to be similar. All the tools (OA, DISCERN, HON Code
and IQT) scored more than half of the selected websites above 50%. From the
statistical test results it was found that all the tools are reliable, feasible and valid.
The tools did not correlate well as they measure different concepts of quality.
Conclusions: The internet serves as a great resource for Osteoarthritis patients
families and carers, but due to the dynamic nature of the internet being cautious
about the information quality is advised. The research recommends multiple users
to evaluate the websites, those with and without medical knowledge.
ii
Acknowledgement
I thank Dr Peter Bath who has provided me with much support and guidance as my
dissertation supervisor and also for his invaluable advise on using SPSS.
I also thank my family, who have continued to provide both emotional and practical
support, especially Sherly Shridhar and Pradeep Sockalingham.
iii
Contents
Abstract................................................................................................................... i
Acknowledgement.................................................................................................. ii
Contents.................................................................................................................. iii
List of figures........................................................................................................... vi
List of tables........................................................................................................... vii
Chapter 1: Introduction and context...................................................................... 1
1.1Introduction....................................................................................................... 1
1.2 Health information online: ............................................................................... 2
1.2.1 Motivation for the study................................................................................ 3
1.3 Osteoarthritis: .................................................................................................. 3
1.3.1 Osteoarthritis effects on Patients: ................................................................ 4
1.3.2 Families and carers of OA patients: .............................................................. 6
1.4 Research aims, objectives and research questions .......................................... 6
1.4.1 Aim: ............................................................................................................... 6
1.4.2 Objectives: ..................................................................................................... 7
1.4.3 Research Questions: ...................................................................................... 7
1.5 Structure of the dissertation: ........................................................................... 8
1.6 Summary: ......................................................................................................... 8
Chapter 2: Literature research............................................................................... 9
2.1 Introduction...................................................................................................... 9
2.1.1 Searching strategies used.............................................................................. 9
2.1.2 Scope of search: ............................................................................................ 10
2.2 Health information on web: ............................................................................. 11
2.2.1 Reasons people seek health information online............................................ 12
2.2.2 Disadvantages of Internet Health Care.......................................................... 15
2.3. Methods for evaluating the quality of health information on the website..... 17
2.3.1 Generic tools ................................................................................................. 18
2.3.2 Disease specific tools: ................................................................................... 19
2.3.3 Criticism of studies using generic tools and disease specific tools................. 21
2.4 Osteoarthritis and its information needs ......................................................... 22
2.5 Summary ........................................................................................................... 23
Chapter 3: Methodology........................................................................................ 24
3.1 Introduction...................................................................................................... 24
3.1.1 Research Proposal......................................................................................... 24
3.2 Website Selection............................................................................................. 25
3.2.1 Search Strategy.............................................................................................. 26
3.2.2 Sampling Strategy.......................................................................................... 26
3.2.3 Capturing Websites........................................................................................ 27
iv
3.3 Selecting generic tools...................................................................................... 28
3.3.1 Identifying generic tools................................................................................ 28
3.3.2 Justification for choice of generic tools......................................................... 29
3.4 Development of new OA tool........................................................................... 30
3.4.1 Justification for development........................................................................ 30
3.4.2 Content of the OA specific tool...................................................................... 31
3.5 Website evaluation........................................................................................... 32
3.5.1 Application of tools........................................................................................ 33
3.6 Analysis of evaluation results and tools............................................................ 34
3.6.1 Analysing the evaluated results..................................................................... 34
3.6.2 Psychometric testing of evaluation tools....................................................... 35
3.7 Summary........................................................................................................... 35
Chapter 4: Results Ι – Evaluation of Osteoarthritis Website Quality.................... 36
4.1 Introduction ..................................................................................................... 36
4.1.1 Website Description....................................................................................... 36
4.1.2 Scale Description of the Responses................................................................ 37
4.2 Assessments by each tool.................................................................................. 38
4.2.1 Scores for the OA tool.................................................................................... 38
4.2.2 Scores for the DISCERN tool........................................................................... 39
4.2.3 Scores for the HON Code tool........................................................................ 41
4.2.4 Scores for the Information Quality tool (IQT)................................................ 42
4.3 Information Quality scores by four tools.......................................................... 44
4.4 Ranking of each websites against each tool ..................................................... 49
4.5 Summary........................................................................................................... 51
Chapter 5: Results ΙΙ – Analysis of Evaluation Tools.............................................. 52
5.1 Introduction...................................................................................................... 52
5.2 Feasibility of Evaluation Tools........................................................................... 53
5.3 Reliability of the tools....................................................................................... 57
5.4 Validity of evaluation Tools............................................................................... 63
5.5 Summary .......................................................................................................... 69
Chapter 6: Discussion............................................................................................. 70
6.1 Introduction...................................................................................................... 70
6.2 Quality of information in websites.................................................................... 70
6.3 Success of OA tool............................................................................................. 72
6.4 Feasibility, Reliability and Validity of the evaluation tools............................... 74
6.4.1 Feasibility of evaluation tools........................................................................ 74
6.4.2 Reliability of evaluation tools......................................................................... 75
6.4.3 Validity of evaluation tools............................................................................ 77
6.5 Summary........................................................................................................... 78
v
Chapter 7: Conclusions and Recommendation...................................................... 79
7.1 Introduction...................................................................................................... 79
7.2 Key findings: Quality of information on Osteoarthritis on the internet........ 79
7.3 Achievements of aims and objectives............................................................... 80
7.4 Contributions of this study................................................................................ 81
7.5 Limitations of the study.................................................................................... 81
7.5.1 Sample and search strategy........................................................................... 81
7.5.2 Review and evaluation limitations................................................................. 82
7.6 Recommendation for further research............................................................. 83
7.7 Summary........................................................................................................... 84
References.............................................................................................................. 85
Appendices............................................................................................................. 95
Appendix 1: List of websites used........................................................................... 95
Appendix 2: Evaluation tools................................................................................... 97
Appendix 2.1: OA tool............................................................................................. 97
Appendix 2.2: DISCERN tool................................................................................... 98
Appendix 2.3: HON Code tool................................................................................. 104
Appendix 2.4: IQT tool............................................................................................ 106
Appendix 3: Scoring method.................................................................................. 107
Appendix 4: Frequency distribution of responses.................................................. 108
Appendix 4.1: OA tool............................................................................................. 108
Appendix 4.2: DISCERN tool.................................................................................... 118
Appendix 4.3: HON Code tool.................................................................................. 123
Appendix 4.4: IQT tool............................................................................................ 127
Appendix 5: Results of evaluation tool................................................................... 133
Appendix 5.1: OA tool............................................................................................. 133
Appendix 5.2: DISCERN tool.................................................................................... 134
Appendix 5.3: HON Code tool................................................................................. 135
Appendix 5.4: IQT tool............................................................................................ 136
vi
List of Figures
2.1: Tools Clinicians use to collaborate with patients, 2010.................................... 14
2.2: Holistic assessment of patients with OA........................................................... 22
4.1: Responses to OA tool........................................................................................ 38
4.2: Responses to DISCERN tool............................................................................... 39
4.3: Responses to HON Code tool............................................................................ 41
4.4: Responses to IQT tool....................................................................................... 43
4.5: Score distribution of websites.......................................................................... 44
4.6: Percentage obtained by websites using OA tool.............................................. 45
4.7: Percentage obtained by websites using DISCERN tool..................................... 45
4.8: Percentage obtained by websites using HON Code tool.................................. 46
4.9: Percentage obtained by websites using IQT tool............................................. 46
4.10a: Results of information quality evaluation using 4 tools (Sites 1-10)............. 47
4.10bResults of information quality evaluation using 4 tools (Sites 11-20)............ 47
4.10c: Results of information quality evaluation using 4 tools (Sites 21-30) .......... 48
4.10d: Results of information quality evaluation using 4 tools (Sites 31-40) ..........48
5.1a: Results showing time spent assessing websites using 4 tools (sites 1-10) ..... 54
5.1b: Results showing time spent assessing websites using 4 tools (sites 11-20) . 54
5.1c: Results showing time spent assessing websites using 4 tools (sites 21-30) ... 55
5.1d: Results showing time spent assessing websites using 4 tools (sites 31-40) .. 55
5.2: Distribution of scores using OA tool................................................................. 63
5.3: Distribution of scores using DISCERN tool........................................................ 64
5.4: Distribution of scores using HON Code tool..................................................... 64
5.5: Distribution of scores using IQT tool................................................................. 64
5.6: Scatter plot of correlation between OA and DISCERN...................................... 67
5.7: Scatter plot of correlation between OA and IQT............................................. 68
5.8: Scatter plot of correlation between OA and HON Code................................... 68
5.9: Scatter plot of correlation between DISCERN and IQT..................................... 68
5.10: Scatter plot of correlation between IQT and HON Code............................... 68
5.11: Scatter plot of correlation between HON Code and DISCERN...................... 69
vii
List of tables
3.1: Sequence of tool use....................................................................................... 33
4.1: Frequency distribution of Oa tool- Question 1................................................ 39
4.2: Frequency distribution of DISCERN tool- Question 1........................................ 40
4.3: Frequency distribution of HON Code tool- Question 1..................................... 42
4.4: Frequency distribution of IQT tool- Question 1............................................... 44
4.5: Ranking of each websites against each tool..................................................... 49
5.1: Time analysis of OA tool................................................................................... 53
5.2: Time analysis of DISCERN tool.......................................................................... 53
5.3: Time analysis of HON Code tool........................................................................53
5.4: Time analysis of IQT tool................................................................................... 53
5.5: Kolmogrov-Sm.................................................................................................. 56
5.6: Friedman’s Test on Time................................................................................... 56
5.7: Kendall’s W Test on Time.................................................................................. 56
5.8: Reliability statistics for DISCERN tool................................................................ 57
5.9: Reliability statistics for HON Code tool............................................................. 59
5.10: Reliability statistics for IQT tool...................................................................... 60
5.11: Reliability statistics for Oa tool....................................................................... 61
5.12: One-Sample Kolmogorov-Smirnov Test on Percentages obtained by tools.. 65
5.13: Kendall’s tau correlations on Percentages obtained by tools......................... 66
5.14: Pearson’s correlations on Percentages obtained by tools.............................. 66
5.15: Spearman’s rho correlations on Percentages obtained by tools.................... 67
6.1: Results of Cronbach’s Alpha for current and previous studies......................... 75
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Chapter 1
Introduction and context
1.1 Introduction
In recent times engaging patients in their own clinical care has been widely encouraged.
The patients play a very important role when choosing means to protect their health,
choosing suitable treatment options and managing the disease. Much research has been
done on involving patients in their own health care, some of the researchers and studies
on these topics are, Coulter et al. (2008) describing the involvement of patients in
decision-making about their own care and also by National Institute for Health and Clinical
Excellence (2009), involving patients in decisions about prescribed medicines and their
adherence in following medical advices. Salzburg Global Seminar report (2010), which
discussed about factors on informing and involving patients in decisions about their
medical care, stated that the center of healthcare relies on the well being of the patients
and in order to ensure the best medical care service to them, the patients themselves
must be routinely informed and engaged in decisions about their treatment and care.
Internet serves as the patients first hand source of information. Up to 42% of the UK
population are now said to use the Internet to seek health related information (Office for
National Statistics, 2009). However, there has been a rapid increase in the amount of
people using the Internet means but it is also important to know that it brings its own
challenges. These issues will be outlined in this chapter along with introductions to
Osteoarthritis its conditions, the purpose of the study, its aims and objectives.
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1.2 Health information online:
According to recent research, Britons are overwhelmingly choosing in and out about
health matters by looking on the Internet, stated on The Daily Telegraph, an investigation
by Lambert (2010) on finding health information on the Internet and the increase in
numbers of consumers searching the web for health information and methods for making
the optimum use from the Internet. The investigation also added that the figures,
reported in a Porter Novelli EuroPNStyles survey, showed that an astonishing 65% of
those questioned choose to surf the net when they want to know the answer to a medical
query, compared to 43% who ask their doctor, and just 27% who look for information via
television programmes.
However, as with much of the material published online, the issue of quality in relation to
online health care information has been raised due to the lack of publishing control on the
Internet (Gagliardi and Jadad, 2002). There are a number of websites which provide
health related information online but the challenge is in finding if it is quality information
and is it reliable. Many journals, articles and guidelines have been published on the
Internet enabling people to find trustful information online, for example Childs (2008), an
e-journal on He@lth information on the Internet. Purcell et al. (2002) claimed that there
are different ranges of health information online from personal accounts of illness and
patient discussion groups to peer reviewed journal articles and clinical decisions support
tools. He also added that defining a single quality standard for such a disparate collection
of resources would be challenging and further more different users may have different
quality criteria. In his journal he suggested that the criteria for determining the quality can
be categorised according to dimensions of online health information such as content,
type, and intended audience. The BMA (2010) also issued papers relating to finding health
information which are reliable on the Internet.
Many evaluation tools are available to assess the online healthcare information. In many
previous studies, a variety of generic tools have been used to examine the quality of
healthcare information on websites. Most of these studies have focused on a specific
condition like breast cancer by Meric et al. (2001). Later relating to assessing the
information quality for specific condition led to the creation of new tools which are
disease oriented and they would assess the quality of the website relating to the
information about that specific condition that the targeted audience are looking for. Few
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such studies which made use of generic tools and also created a disease specific tool have
proved that the new tool is more reliable when assessing information about a specific
condition. For example, Bouchier(2001) on Alzheimer , Harland (2004) on multiple
sclerosis, Hsu (2006) on Breast Cancer, Chandrani (2010) on Food allergy, Surman (2010)
on Stroke are some of the studies where new disease specific tools were created and was
found trustable and valid. These studies are described in detail in the Chapter 2 of this
study.
1.2.1 Motivation for the study
The above mentioned causes relating to the demand in the information needs of the
patients, their families and carers for a specific disease led to the main source of
motivation for this study. Although there have been a lot of previous studies on
Osteoarthritis and its causes and treatments, there is still not much research on
evaluating the information quality of Osteoarthritis information online using a specific
disease oriented tool. This study will answer the quality needs of the targeted audience.
1.3 Osteoarthritis
Osteoarthritis (OA) is the most common type of arthritis in the UK with an estimated 8.5
million people affected by the condition (NHS Choices, 2010). In the UK, the proportion of
those in the population aged 65 years and older is expected to rise by a quarter from 15%
in 1985 to 21% by 2030 (NHS, 2005). This change in population structure, together with
the acknowledged association between OA and increasing age, means that OA is assuming
recognition as a major public health problem and strain on health care resources
(Dawson, 2008). "The co-existence of OA and obesity has been realized by
epidemiologists for decades. Epidemiological data suggests that obesity is of very large
importance for the development of knee OA" (Bliddal et al. 2011). With the current
lifestyle and food habits, Osteoarthritis is now seen to increase in middle aged females
(Arthritis ResearchUK, 2011). The fact that it is now gradually beginning to affect the
younger generation is alarming, with the lack of proper health care and physical activity
for the body. Irlenbusch and Schaller (2010) claim that familial studies have demonstrated
that inheritance is a considerable factor, especially in hand and generalized Osteoarthritis.
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However, Osteoarthritis is not a communicable disease, it has no complete cure but there
are many treatments and medications along with diet plans, physical fitness programs to
improve the condition. There have been many studies carried out on Osteoarthritis on
improving its medications and treatments and many journals can be found on recent
research on the disease in the medical journals.
1.3.1 Osteoarthritis effects on Patients
Osteoarthritis is a disease of the joints and it is the most common forms of arthritis
(Better Health Channel, 2011). People with Osteoarthritis often have joint pain and
reduced motion (WebMD, 2011). There are also some misconceptions on Osteoarthritis
that it keeps getting worse whereas, Osteoarthritis will settle down over time and the
body will repair itself. However, sometimes the damage is too severe to repair and leads
to stiffness and pain (Bupa, 2009). Osteoarthritis mainly affects the joint cartilage and the
bone tissue next to the cartilage.
Causes
The reasons for OA development is that when normal joints and tissues in the normal life
undergo automatic repair due to wear and tear, however in some people this becomes
faulty (Patient.co.uk, 2010). OA in joints will lead the joint cartilage to become worn out.
The bone tissue next to the cartilage can also be affected; these growths can be seen in x-
rays. Other than these there are other factors that might lead to OA are age ( OA becomes
more common with increasing age), genetics (could be inherited), obesity ( knee and hip
knee strain ), sexual life , previous joint injury, damage or deformity(previous fracture),
occupational overuse of a joint (athletes) (Patient.co.uk, 2010). Primary OA develops in
previously healthy joints, as the person gets older it worsens. Secondary OA develops in
joints previously abnormal joints. Any joint can be affected by the OA but the hip, knee,
finger joints, thumb joint and lower spine are most commonly affected (Lozada, 2011).
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Symptoms
The common symptoms that are found in Osteoarthritis are pain and stiffness in full
movement of the joint (Better Health channel, 2011).Swelling and inflammation can
occur and also affected joints might look larger than normal. One of the main symptoms
is having mobility problems and a standard hip pain which result in difficulty in bending
or getting out of car (Patient.co.uk, 2011). Some of the other symptoms mentioned in
Bupa (2001) are:
Hand - the base of the thumb and the joints at the end of the fingers are affected,
resulting in firm, knobbly swellings on the back of these joints known as Heberden's
nodes.
Neck and back (spondylosis) - the discs of cartilage between the bones in the back
(vertebrae) become thinner, causing the spaces to narrow. Outgrowths form at the
edges of your vertebrae and joints, causing pain and numbness to travel down the arm.
Feet - Osteoarthritis generally affects the joint at the base of the big toe making it stiff -
leading to difficulty walking - or bent, which may cause painful bunions.
Knee - pain at the front and sides of the knee. If the Osteoarthritis is severe, knees may
become bent and bowed.
Treatments
The treatment aims at minimising the disability faced by the patients. The drugs which are
mainly used for Osteoarthritis are paracetamol, codeine, capsaicin cream and NSID (Non
Steroidal antiInflammatory Drugs) (Patient.co.uk, 2011). The drug treatments vary and
along with the drugs daily routines such as maintaining proper diet, exercising and having
physiotherapy, acupuncture and also using shoe soles and walking aids help greatly in the
daily life of the patients (Arthritis ResearchUK, 2011). There are surgery options like knee
replacement which are practised only for extreme cases (Slowik, 2011).
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1.3.2 Families and carers of OA patients
When a disease affects a person it not only affects them but also their families. From the
disabilities that a patient suffers it is necessary that they need daily care to cope up with
the disease. There are estimated to be 5.2 million people in the UK who are carers
according to The National Census (2001), of which a considerable amount of carers would
be for Osteoarthritis. According to Medic8 (2011), they provide some guidelines for carers
of arthritis suffers, claim that caring for people with OA is challenging when the family and
carers have to give them support as well as insure that they able to have their
independence to a certain level. To help OA patients their families and carers should first
have enough knowledge about OA, maintain a two way communication, and have their
ears opened to doctors and similar patients for knowing new treatments to the disease
and also by supporting and advising them. Many websites like Patients.co.uk,
ArthritisresearchUk, ArthitiscareUK provide information about Osteoarthritis and its
effects.
1.4 Research aims, objectives and research questions
1.4.1 Aim
The aim of the study is to evaluate a sample of websites that give information on
Osteoarthritis disease for patients, their families and carers by using evaluation tools on
these selected samples of websites. This study also addresses the need of evaluation tools
with qualitative and quantitative concerns from a user perspective. The paper will clearly
state how information exchanges takes place between the health consumers and the
health professionals, how the support groups and voluntary organisations publicise to the
patients and carers and it also guides them on how to make a quality judgement on a
good website.
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1.4.2 Objectives
Based on the aims mentioned above, the objectives of this project are to
Develop an evaluation tool, design it specifically for Osteoarthritis websites based on the
information about the disease and needs of the consumers.
Identify websites that hold high quality information about Osteoarthritis and has more
accessible healthcare information on the aspects of practical living and daily routines of
the patients, along with critically evaluating the websites with existing tools and specific
tools.
To make a complete analysis and examination of the tools by comparing and correlating
the disease specific and generic tool based on their performance, concordance, validity
and reliability by suitable tests.
1.4.3 Research Questions
Is Information in health websites related to Osteoarthritis answers the consumer needs?
Are they accessible and transparent from user perspective?
What is the need to evaluate health related websites for Osteoarthritis?
Are evaluation tools and information quality research needed to find quality of
information on Osteoarthritis?
Are these tools reliable, feasible and valid?
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1.5 Structure of the dissertation
The dissertation contains many sections:
Chapter 2 will contain the literature review on the subjects of similar studies that were
done with respect to information needs on health diseases broadly and then narrowing
down to Osteoarthritis.
Chapter 3 explains the methodology on how the study was carried out and the
approaches and technique involved in this study.
Chapter 4 produces the evaluation results and the assessments made on the websites and
Chapter 5 presents an analysis showing the tools used are reliable, feasible and valid.
Chapter 6 discusses the results and the assessments in Chapter 4 and 5 by relating them
to the literature review in the Chapter 2.
Chapter 7 consists of conclusion form the study by giving a summary on the findings and
relating them to the initial aims and objectives of the study. It also makes proposal and
guidance to future work as well as the constraints and restrictions of the study.
1.6 Summary
The health information that the patients receive from the Internet should be guaranteed
that it is of high quality for which now is become very difficult with the rise of the
Internet. With the Internet enabling people to get their needs by a single click has been a
very valuable means of resource. But there exists a difficulty in finding out ways to access
quality and reliable content on website. Considering Osteoarthritis patients this study
covers few issues faced by them. In the following chapters investigations on these issues
will be done in detail, examining needs of patients to provide more literature review to
the study and their results.
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Chapter 2
Literature review
2.1 Introduction
A broad literature research is required to have a clear understanding of the current issues
on the quality of the information that is available on the web and the user’s level of
behaviour on such health resources and also issues surrounding Osteoarthritis. Outlines of
these have been provided in the Chapter 1. The importance of evaluating quality
information online especially for suffers of Osteoarthritis is detailed. The literature review
gives details about the tools that are available on the Internet already and also about
previous studies that were done based on these tools. Further to this, it also discusses
about previous studies based on creating new tool which are disease specific and for a
targeted set of audience. Other studies on Osteoarthritis on what measures have already
been taking in helping the patients have also been discussed in this chapter.
2.1.1 Searching strategies used
Due to the nature of the study, the information was to be obtained from peer viewed
journals but because it is concentrated on a particular disease some information will be
on Osteoarthritis websites published by various groups and health organisations.
Resources can also be gathered from wide range of library databases related to health like
pubMed, British Medical Journals, Medline, Ovid, eMedicine, OMD databases and other
databases like Google scholar, Bing, Yahoo search, Ask jeeves, AOL search, answers.com.
A range of search terms can be made use of on these databases like Osteoarthritis,
evaluation of health information, quality of health information on web, website
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evaluation tools for health related websites. From these an initial result can be obtained
which would lead to better analysis.
Also references from previous dissertations submitted by Harland (2003), Shaikh (2009)
and Chandrani (2010) in the similar context of website evaluation provides an essential
framework idea which helps to throw some light by which some further work can be
carried out in the area. There are many books and journals on evaluation of health related
websites like Childs, S. (2004), developing health website quality assessment guidelines
for the voluntary sector: outcomes from the Judge Project, which suggests on few
guidelines to be approached. And also Bath (2008) on ‘From research to development to
implementation’ focusing on the challenges in health informatics and health information
management, which tells about the emergency of the issues faced in health information
and there are also previous research done with respect to other diseases like Harland
(2007) on assessing the quality of websites providing information on Multiple sclerosis
using evaluating tools and by comparing sites. Another study of Bouchier & Bath (2001)
on development and application of a tool which was designed to evaluate web Sites
providing information on Alzheimer's disease also provides a structure for the current
study.
2.1.2 Scope of search
This research focuses on information available on the Internet which is current and
therefore it leaves no gaps for outdated information, this in itself was a challenge.
Previous researches which were done on the similar topics could have their resources for
filling in the differences. But consequences might arise on the same due to information
being dynamic. The most important criteria being here be the quality of the website and
with information being evolving it becomes almost impossible to arrive at a conclusion.
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2.2 Health information on web
The web has changed a trend in the way the people seek information and it is also
acknowledged by many to be an important source of health information (Shepperd et.,
1999; Li et al., 2001; Hargrave et al., 2006 Shedlodsky-Shoemaker, 2009). But for all the
patients and their carers even though they have been given advises on the disease, for
them to cope up with it they seek information on all the means of sources that are
available to them. The greatest demand for health information appears to be in the area
of specific diseases and medical conditions with limited demand for information on the
availability and quality of care (Buckland, 1994). Even though there is huge amount of
information on health on the web there is still a hesitance prevailing in the people
whether to trust these resources.
Eysenbach and Diepgen (1999) claimed that patients are trying to use information on the
Internet as a supplement for physicians and that tele-advice might be overused by
chronically ill and frustrated patients looking desperately for additional information on
the World Wide Web. When websites publishes patients stories based on their personal
experiences this is when people accessing them have a positive feeling on those when it is
based on what their healthcare professionals have advised them. Also users have been
shown to exercise a degree of caution when looking at sources of healthcare information
(Fox and Raine, 2000; Eysenbach and Kohler, 2002; Rozmovits and Ziebland, 2004), it has
also been found that their perceptions of quality were not necessarily consistent when
asked to select quality websites, indicating a need for help in determining criteria (Barnes
et al., 2003). Seeking the help of Internet for the health and medical information may be
of greater help to make decisions and keep one informed about their health, but it is not a
substitute for seeing a registered medical doctor (GP).
Hesse et al. (2005) in their study proved with evidences that “the Health Information
National Trends Survey data portray a tectonic shift in the ways in which patients
consume health and medical information, with more patients looking for information
online before talking with their physicians”. Although this health information which is
available on the Internet can be very valuable, one needs to be aware of the risks; this is
where it is important to know how to recognise a reputed site. There should very high
caution when searching of information on these sites. There is currently no consistent
evidence to suggest that it is common for individuals to suffer harms to their health as a
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direct consequence of using online health information (Ferguson et al., 2004; Crocco et
al., 2002; Potts et al., 2002; Bessell et al., 2002). Care should be taken to stay out of scams
or dodgy information and don’t self-diagnose or self-medicate using online information.
Consulting with your registered medical doctor (GP) for proper diagnosis and treatment
advice should always be the best option to be followed. If this does not happen, there are
concerns as to how bad quality or incomplete information may impact on patients
(Coutler, 1998; Pandolfini et al., 2000). Many governmental and professional bodies have
provided guideline to help consumers evaluate the health information online like the
British Medical Association, having a checklist of factor to take into account when
searching online information and also NHS direct with their ‘medical gateways’ for
identifying useful health information.
2.2.1 Reasons people seek health information online
In the UK the average length of consultation with a general practitioner was 11.7 minutes
in 2007 (NHS Information centre, 2007). Sen (2007) argued that “Given the brevity of the
patient-physician encounter, it is perhaps not surprising that patients express a need for
more information“. Once a person is diagnosed with a specific disease, the person itself,
their carers or family members would want to gather more information about a medically
diagnosed disease or illness to help them both physically and emotionally to cope up with
it. Additionally, a European study found that, in 2005, 30% of Internet users across seven
countries felt reassurance or relief when accessing health-related information on the
Internet, while 15% stated that they had feelings of anxiety (Andreassen et al., 2007). This
information provides us with lot of options stating the alternative treatments available for
the disease. For few diseases there could be one or more options available, so by using
the Internet they get a second opinion. Studies about using social sites for health care and
treatment of Subnirmala (2010) and Kevin (2011) help the patients seeking support from
other Internet users who have the same kind of medical disease or illness. Networks
including chat rooms, online discussion forums, blogs or communities, or social media
such as Facebook, twitter, orkut will help in knowing better (Torrey, 2010). It also helps in
Finding patient support groups or other healthcare services regarding the disease by
helping in resolving the conflicts of health information, which might have known from two
different resources.
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Better Health Channel (2011) reports on health information on Internet states that:
“There has been a rapid group in the amount of increment seen in people using the
Internet to supplement their doctor’s advice. However, majority of people still seek
professional medical attention for diagnosis and information about prescription
medication or for a referral”.
Researching Medications Online
The Internet has been a huge advantages to the health care industry for various reasons,
of these the most advantageous one being the use of the Internet to research
medications. There are thousands of sites on the Internet that contain information on
anything from medications and their uses to finding out about diseases and their
causes(Complete Health news, 2010). One such website is RXList.com and Drugs.com
provides hundreds of medications details that can be researched. Everything about a drug
is listed from what illnesses the drug treats down to its structural formula. Studies show
that 71.5% of people who used Internet health care sites to do research felt more
knowledgeable about their illness and the medications they were taking (Health on the
Net Foundation, 2002).
Researching Illnesses
There are large number of websites and also other large medical databases like pubMED,
Ovid, eMedicine, OMD which can be used as a very resourceful to search illnesses. Most
of the questions, one may have about an illness or disease can be found on these sites.
But in the past years to some patients researching illness was difficult (Morris, 2000). To
all the patients who are ignorant to what their disease is, can makes use of these
resources. When a doctor informs the patient about their illness, many patients do not
understand the doctor’s terminology (Weinman et al., 2009). With this information being
available to them on these websites, the patient is able to do further research about their
illness in words and phrases they can understand. Studies show that 52% of patients who
discussed the results of Internet searches with their health care providers found the
consultation more constructive. (8th HON Survey, Health on the Net Foundation, May-
June 2002, pg. 4)
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Figure 2.1: Tools Clinicians use to collaborate with patients, 2010 – Email and Portals are most popular
Communicating with Doctors Online
Santana et al. (2010) reported:
“Online communication between doctor and patient is one aspect of eHealth with
potentially great impact on the use of health systems, patient-doctor roles and relations
and individuals' health”.
The patients email or chat with the doctor about any queries they may have respective of
their disease, as well as the doctor being able to inform the patient of any new
medications or alternative medicine that will be of help to the patients healing process
(Pal, 1999). Previously there was a resistance in communicating through email because of
security issues. Sarasohn-Kahn (2010) reported that on the changes happening today with
results of surveys from InformationWeek Analytics’ 2011 for Healthcare IT Priorities, this
report found that 24% of physicians reports “widespread” use of email to communicate
with patients, shown in the bar chart. Privacy, security, liability, and reimbursement are
the most-cited reasons for not engaging with physicians via email.
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A CNN (2009) report claimed that Internet enhances doctor-patient communication by
providing real-time communications for the patients with doctors without having to come
to the doctor’s office, this saves a lot of travel expenses to the patients and also enabled
doctors to follow up after appointment and clarify treatment plan.
Ordering Prescriptions Online
Another Internet advantage is to order prescriptions or refills on prescriptions. However
there are risks involved in it, more than 60% of drugs sold by online pharmacies are
counterfeit or substandard and only 30% were genuine branded drugs (Mayor, 2008).
Patients can also make use of official pharmacy websites to order refills which will again
save them a lot of time. Although there are advantages for online pharmacies, there are
some websites from which problems could arise from; therefore people should use only
official or approved, websites to get prescriptions filled like Patient.co.uk where they
serve this option. There are many groups now who are trying to take necessary actions
and are pushing hard for healthcare providers to exercise a great deal of caution when
they utilize the Internet to render services (Randonda, 2010).
2.2.2 Disadvantages of Internet Health Care
Usage by the Elderly
Health care on the Internet is of immense importance, this fact is an accepted one but we
cannot deny that it has its own drawbacks. When it comes to elderly people there exist a
challenge for them in using the Internet (Millward, 2003). When we see on an age scale
for people over 65 their participation on the Internet is very low and in the recent times
they have started to use it to access healthcare information (Kiel M, 2005). One basic for
this could be that they do not own a computer and therefore do not have access to
Internet and second reason is that they could be physically challenged, have problems
with vision etc (Bowmen (ed)., 2005).
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Doctor-Patient Relationship
Another reason healthcare on the Internet is not good has to do with its effect on doctor-
patient relationships. A recent report from the Royal College of Physicians (2010) found
that patient’s relationships with their doctors were changing, that such change may be
related to increased access to online health information, and that doctors need to
respond to such developments. When a patient uses Internet options to search for the
symptoms that they are experiencing, they would find medication for those and they
might follow them, and still if they do not find relieved from it, then they go to a GP for
the same. And if the GP is going to give them a same set of medication then probably the
patient could tell that she had been on the medicine on a previous course. Because the
GP would not know on what amount of drug dosage has already been used by the patient.
When it comes to tests the results can always differ when taken by an expert and when
an amateur does it. Negative results may lead to bad ends. If a patient who has a disease
is not diagnosed, it might worsen his current physical condition. And if a person who is not
and still is found to be a victim of the disease then medication to him will also harm .A
study done by the Health on the Internet Foundation shows that over half of the health
professionals (67%) agreed that there is a risk of patient self treatment (Analysis of 9th
HON Survey, 2005, p.2). The survey also found that 60.4% of health professionals were
concerned about the Internet encouraging patients to challenge a physician medical
authority• (Analysis of 9th HON Survey, 2005, p.2). When patient do not visit GP and
continues to have self medication is the worst scenario. So because of these medications
being available online to them the GP and patient do not meet, thus the physical
condition of the patient is not known to the GP.
Too Much Information
Too much Internet advice may be bad for health. Diseases can often wind up in worse
condition than if they listened to their doctors. For example, one study showed that
approximately one in four patients who used the Internet to research forthcoming
operations they were due to undergo found the information worrying or confusing
(Tamhanker et al., 2009). Sites and forums bring people to communicate who suffer from
similar diseases but this is when it should not be forgotten that every human being body
will not react to drugs in a similar way. In cases like these people self diagnose as well as
interpret and also spread misinformation. Internet will not know about your body
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condition, whereas a doctor can sit with you and advice on whatever kind of options or
food habits that you have to follow. People who do a lot of research on their disease are
more prone to avoid doctor’s advice and start treating themselves. Rankin (cited in
Phsycologytoday, 2010) on CNN article, stated about how doctors get irritated with
patients who assume they are experts in knowing the disease but does not have true
medical knowledge. But when these lead to mishaps, by the time the patient realises the
health damage caused, it is all rather a long way off.
Lack of accuracy and accreditation
8% of doctors surveyed a report that some of their patients had suffered physical harm as
a consequence of accessing online health information (Potts, 2002). Another problem
with Internet health care is its lack of accuracy. Information, whether on the Internet or
elsewhere, is not all verified for clarity or accuracy. The quality of information available is
variable there is no option in knowing whether the information is reliable (Bowi, 2003).
This problem has been recently addressed by many groups of which one is the Health On
the Net Foundation (HON) they promote and guide the deployment of useful and reliable
online health information. These groups maintain standards to protect citizens against
misleading health information. The task of monitoring these health care sites to make
sure they are accredited and that they keep up their accreditation would be very hard to
manage and so these groups and organisations manage these tasks. The most challenging
task would be to check if the information on these websites is up to date. Out dated
information should be reviewed. Another potential problem is the lack of accreditation.
This creates a risk to the patient by not ensuring the privacy of online health care. It is
very important to know if the website maintains privacy and confidentiality.
2.3 Methods for evaluating the quality of the health information on the website
There are lot of previous studies on evaluating quality information on the Internet like
standard evaluation tools for health websites done by certain groups and also disease
specific tools by researchers. Many people see if there are any certifications mentioned in
the websites. The value of accreditation or ‘kitemarking’, as applied to online health
information can be debated. For example, it has been noted that consumers cope with
un-accredited sources of health information (such as newspapers, magazines and
television programmes) despite frequent inaccuracies in information provided
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(Delamothe, 2002). But it can also be argued that accreditation is an important aid to
information-seekers given that “the objective of most quality rating tools…..is not to
inhibit publication, but to provide a system by which consumers can assess the nature of
the information they are accessing” (Wilson, 2002). Few others trust the information if
the author is a doctor and his credentials are mentioned. There are cases when they trust
the information when referred by another member with the similar disease.
2.3.1 Generic tools
There are many website evaluation generic tools available online for example, HON Code,
DISCERN, MedCircle, MedOEQ, and IQT. These tools evaluate websites based on different
criteria, like HON Code and DISCERN focuses mainly on the reliability of the information
whereas IQT focuses on the quality. The HON Code was used by over 7,300 certified
websites in 102 countries (Health On Net Foundation, 2010). Discern provided users with
a valid and reliable way of assessing the quality of written information on treatment
choices for a health problem (DISCERN On The Internet, 2009). MedIEQ attempts to
automate the quality labelling process in medical websites by providing tools that search
the Internet to locate medical websites in eight European languages to verify their
content against a set of machine-readable quality criteria (Information Technology in
healthcare journal, 2007). IQT provided consumers results stating if the website solved its
purpose and also based on criteria of not been biased and user friendliness of it. There are
lot of studies recorded on generic tools. These studies were based on accessing quality
information of healthcare on the Internet. One such study which involved in evaluating
the reliability and validity of generic tools was done by Ademiluyi et al. (2003). This study
evaluated tools of DISCERN, IQT and QS (Quality Scale). However, the results from the
generic tools varied from study to study even within their particular field itself. This
includes subjects such as anaesthesia (Caron et al., 2007), depression (Griffiths and
Christensen, 2000). Other previous studies like Lewiecki (2006) assessment of
osteoporosis website quality, perez-lopez(2006) evaluation of the content and quality of
menopause information on the World Wide Web, Lorence et al. (2008) a study of undue
pain and surfing , this study was using a hierarchical criteria to assess website quality ,
Mathur et al. (2005) surfing for scoliosis information on Internet were also performed
using generic tools.
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2.3.2 Disease specific tools
Evaluating the websites based on considering one particular disease or information needs
of a particular group of people was carried out. Tools produced by organisations of
Health On the Net and Health Summit Working where in general for all the website
containing healthcare information, but were not for any specific disease or for any
particular group of people. When using specific tools the focus is more on the content and
the evaluation is also made according to that. For example: Bouchier and Bath (2003)
focused on the content of the literature in their study also explaining that due to the
methodology , generic indicators of quality cannot be used in specifically developed tools.
Others who did their study on particular number of individuals collectively were Breckons
et al. (2008) on assessing quality of complementary medicine information, Harland and
Bath (2007) for multiple sclerosis. The commonly examined factors of the specific tools
include authorship and credibility issues, like in studies of Greene et al. (2005) on lumbar
disc herniation information and Hajjar et al. (2005) on geriatric information. In studies of
Sutherland et al. (2005) on nutrition information covers criteria of usability and
accessibility. The detailed descriptions of the criteria considered for designing the tool are
discussed below:
Criteria considered in tools for evaluation
The generic tools are in the form of questionnaires which helps consumers know the
quality of the information in the website. The criteria’s based on which the tool is made
are:
Sponsor of the website
The website should indicate the organisation sponsoring it. This is treated as an important
criterion because there are possibilities of issues arising whether the information
mentioned in the website are influenced by the funders. It is necessary to know that the
website is balanced and unbiased. Most of the tools like HON Code and DISCERN check
this criteria. The website containing information should signify whether the content was
retrieved from range of resources and evidences of external assessments on them. It is
also valuable to know that the information is not only based on a single study or objective
point of view.
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Author on the website
It is of at most necessity that the consumers know from whom they are receiving the
information from. Whether the author has medical qualifications in health or is a GP,
editorial staff, patient etc. When the person seeking information has any queries
regarding the information provided there should be a contact mentioned in the website
to enable the same. Tools like IQT check for this criteria.
Content about the disease
There are lot of websites that provide health information, but there are comparatively
less websites which are disease specific. Therefore it becomes difficult to rate the
website, there might more informative for few diseases and not for others. When it
comes to evaluating websites for a specific tool then the scale of measure is made by the
information content in it, whether the website is focused on for a specific disease, the
symptoms of the disease are mentioned, the treatment options that are available to
them, the routines that they could follow in their daily life example exercises and food
habits, If there exists a controversy in any of the disease, then solutions to them should be
in the website.
Readability of website
Flesh, SMOG, Fry are some of the tools which are used for cases of readability as they
comprise of scoring scale based on reading ease and grade level. There are studies
showing that majority of the websites which are tested are at a reading level above the
recommended 6th grade maximum that can be understood by the general public
(Hargrave et al.,2006; Khazaal et al., 2008b; Hulley et al.,2010; Fitzsimmons, 2010). There
are websites which gives an option of larger texts which enables disabled people to view
better.
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Other options
The other standards that are expected out of a quality website are it should be user
friendly for example the website should be easy to handle, the links provided in the
website should work. One of the important information that patients and carers look for
is support groups or statuary bodies who can help affected people. Some websites
provide blogs forums and groups for patients to put down their stories or to discuss issues
they face. When websites give these options to them it is a must that the site insures
privacy and confidentiality of the same.
2.3.3 Criticism of studies using generic tools and disease specific tools
The generic tools though provide measures to obtain quality online health information
there are several studies revealing that they do not comprehensively measure all ideas of
quality information. Previous studies like of Bouchier and Bath (2003) have identified
issues while using generic tools when evaluating sites on specific conditions, which prove
that these tools cannot be used to satisfy the needs of targeted people on specific
information. There is therefore a need to define generic specific templates for the
evaluation of information quality (Stvilia et al., 2009).
Studies of Hsu (2006) and of Harland and Bath (2007) state when specific tools are used
alongside generic tools it is seen that they do not correlate as well as generic tools do with
each other. This may cause to a situation of information being less valid but it is also due
to the fact that the quality of information is measured in a different scale and therefore
the results change. The tools when specific are forced to be based on the need of the
literatures , the only standard criteria to measure them is that making tools based on the
current information changes and the needs . While creating a tool with all these
specifications it is necessary to check if the tool can be handled by an ordinary person for
example the tools should not be too long and time consuming for the user (Hsu, 2006).
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2.4 Osteoarthritis and its information needs
Arthritis care (2011) reported in their press release that their helpline distributed
information to the consumers (Patients, Families and carers) on coping with pain (92%),
living with OA (81%), exercises (56%), healthy eating (46%) and disability aids and
equipment/clothing (10%). This shows that clinical information servers as a large source
for them. Osteoarthritis is more often neglected by primary care as just few aches and
pains but there are more to be done to help minimise the impact of Osteoarthritis and to
support self manage (Primary care today, 2011). NHS (cited in NICE clinical guidelines,
2008) suggested may approach to assess the effect of OA on individual functions, the
Figure 2.2 show a holistic assessment of a person.
Figure 2.2: Holistic assessment of patients with OA
Source: NICE guideline 59 – Osteoarthritis, February 2008
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The consumer needs to access to consistent, accurate information about the condition and
their risk factors (National Service Improvement Framework for Osteoarthritis, Rheumatoid
Arthritis and Osteoporosis, 2011:17). Some of the basic information needs are the
symptoms of OA which they would want to know, for example pain, stiffness of the joints ,
any swelling or inflammation , or if any joint looks larger than usual, even basics of having
difficulty while wearing shoes or getting in and out of car NHS (cited in NICE clinical
guidelines, 2008). After these the very next need is to find what all the tests available are
for OA like x-rays or blood tests (Pateint.co.uk, 2011).
On gaining information on the condition the next desire is to gain knowledge on community
and support groups available to them. Chard J et al. (2002) claimed that support groups by
rheumatologists is of greater use that GPs is important and also added that it may reflect
greater knowledge of support groups by rheumatologists.
2.5 Summary
Concluding on the fact that there are lot of benefits using the Internet to access health
information there still remains a question of quality. There are many studies of tools and
instruments to ensure the quality by using evaluation techniques, disease specific tools and
other numerous specific conditions to access quality healthcare information on the
Internet. Considering OA, there are not much evaluation tools found to evaluate
information about OA on sites. The patients, families and carers of OA have unmet needs,
these needs are both clinical and practical. Although the Internet attempts to fulfil all the
needs of them it is the responsibility of the website holders to satisfy their need. There are
few gaps in the above mentioned literature which this current attempts to address for
example addressing questions of using best tools for OA, finding quality OA information on
the Internet. The methodologies used to obtain answers to these questions are discussed in
the next chapter.
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Chapter 3
Methodology
3.1 Introduction
As mentioned in the Chapter 2 literature review, there were some gaps in the research.
This study aspires to address this gap by the methodology which is detailed in this
chapter. From the previous studies of Bouchier (2001), Surman (2010) and some of those
which were mentioned in the literature review deeply have an impact on this study and
also serves as guidance. These previous study though were on different subjects, the
methodologies carried out by them are same. Many health databases like PubMed have
journals of Harland and Bath (2006), Hsu (2006) in the field of health informatics which
are acknowledged to be of high standards in researches of the same. On further
examining the methodologies which were used by them, it deemed to be applicable for
the improving and progressing in the development of the methodology for the current
study, in cases of searching the data, finding out strategies for selecting websites,
identifying the generic tools to be used, developing the new tool for the study and also to
diagnose the suitable of tests for the chosen websites and in determining statistically the
results of these tests.
3.1.1 Research Proposal
Initially the study was approached from addressing all the elementary details then as a
matter of course progressing to the consequence and priority of the study. Approaching
to the matter of contention, there were lot of observations and examination of the data
was done and also these data were analysed. Further in the study a scrutiny of the
evaluation instruments was done involving psychometric testing.
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As this study demanded a lot of data handling, it was decided to use some of the
quantitative approaches that were suggested by researches like Sandvik (1999) and Ismail
(2005) which tells about many strategies and methods describing basic descriptive and
inferential statistical analyses. Therefore based on this approach and with the use of the
availability of generic tools for the evaluation of the information on health websites, a
strict computation of websites and judgmental differentiation comparing the results using
the tools on the websites selected and the result of which were statistically tested.
Chandrani (2010) and Surman (2010) in their studies also followed the similar experiment
being in the role of a consumer who needs the information from these websites which
were evaluated. When ignorant person evaluate there would be a lot of difference
compared to when it is evaluated by a person who have knowledge of the field and who
will be able to review it from a medical view and therefore it was easier for the researcher
to evaluate it as a person with no medical knowledge.
The study was carried out by first planning the tasks that can to be done in a organised
manner, beginning with selecting the websites which had information about
Osteoarthritis for evaluation, then the next task was to select generic tools that were
available in the Internet which were used to evaluate help related information and also to
develop a tool which was specifically designed for the use of Osteoarthritis. The third task
was to implement these selected tools to the selected websites and finally to analyse and
scrutiny the results from the websites which were evaluated and summarise on the
quality of the information that were available on the websites based on their feasibility,
reliability and validity of the tools that were used.
3.2 Website Selection
Selection few sample websites based on Osteoarthritis was challenging, as we all know
how vast and deep the Internet is and also the fact that consumers mostly do not look
beyond a point in a display of results only a first few on the display will grasp their
attention. Therefore based on all these reasons it was decided that for all the websites
that were listed on Osteoarthritis an evaluation cannot be done with the tools and also it
lead to the idea of sampling them which would give good quality information in the
websites.
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In many of the health informatics journal which were published like Harland and Bath
(2004), they have analysis of tests results showing this, and also there are several other
studies which suggest that being given a particular time line for the completion of the
study it is advised to take a sample of 30-40 websites as a sample for analysis as done by
Surman (2010) and Chandrani (2010) in their study. Using some of the basic search
strategies it deemed that it was possible to capture good websites which provided
Osteoarthritis information and was consequently used in this study as a model.
3.2.1 Search Strategy
The commencement of the research started with the search for the websites providing
Osteoarthritis information, this was done by using search engines on Google chrome such
as Google , Yahoo ,Ask and Bing. By using various search engines we can be sure of the
websites that were commonly searched for Osteoarthritis information. By using search
engines, it is suggested that a more comprehensive portion of the Internet is searched,
thereby returning the best representation of websites available (Lawrence and Giles,
1998). On these search engines simple search terms such as ‘Osteoarthritis information’,
‘care for Osteoarthritis’ were used so that it would result in a display of websites which
had Osteoarthritis information in them. For example websites like nhs.co.uk has a
database which stores information about all the diseases, these search strategy helped in
not only finding websites which were focused only on Osteoarthritis but on others as well.
Whilst a large majority of consumers do not venture past the first two pages of search
results (Jansen and Spink, 2005), and therefore in every search engine not more than the
first 2-3 pages were considered. This resulted in having a list of websites that were most
commonly found by the consumers and was also assuring that they can be considered as
a comprising sample of all the other relevant sites that were available.
3.2.2 Sampling Strategy
The aim was to find out which websites would be more appropriate to use in the
evaluation process and the selection criteria was developed accordingly. While searching
it was found that very few websites were fully focused on Osteoarthritis for example
arthritis.co.uk and most them gave information on the study but was not particularly
devoted to it. There were a large variety of websites which difficulty to capture sites
which were more information when it was narrowed down particularly for Osteoarthritis
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and based on this even those websites were included in the study. But then considering a
fact that when consumers search for Osteoarthritis information on the net, even they will
come across websites which do not give much information about it, so therefore it felt
like it was appropriate to include such websites in the study that matched few criteria
(these criteria were adopted from previous study of Hsu (2006); Harland (2004); Surman
(2010)) like for example , the website content should have information related to
Osteoarthritis, The website was used to provide more information to the consumers like
patients, their families or their carers rather than aiming at clinicians , the website was in
an understandable language more specifically in universal language-English and mainly it
was focused to use website which were not owned by any single organisation or any
charities. There are websites run by government bodies or individually so the websites
had to be unbiased and the content should be not supporting any organisations. The
reason for not including websites that were run by single organisation is because of the
fact that their websites would be focused on the information what their charity or
community has to offer to the sufferers and also a fact that they may give very few
information and therefore it would result in making it hard to evaluate the website quality
rather than evaluating websites those are not biased and freelanced. While selecting the
websites it was important to make sure that some websites were parent websites to the
other. Their links many be different but they both where opening on the same page so
after filtering the websites on the criteria 40 websites were finally selected. When more
websites are included, it leads to increase the scope of the study resulting in a good
conclusion and 40 websites was a reasonable count in the time allotted for the study.
3.2.3 Capturing Websites
In a previous study of Chandrani (2010) and Hsu (2006), they captured the web pages by
using the offline mode of the browser and in this study their method was adopted.
Capturing of websites was made possible in 2 days time, it was necessary to capture
websites all at the same time because the Internet keeps changing, the content on these
pages might get updated every now and then so by capturing all of them at a time it
helped in maintain a standard like at a particular date all these selected websites had
these information and accordingly they were evaluated. For few website a choice of
caches and archives were available which may lack information and therefore it will be
unfair to compare it with other sites. With all these constraints it was able to capture
websites and do a genuine and justifiable evaluation. All these resources were stored in
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small files based on their relevance to the focused study area. As mentioned above the
amount of information captured by each website varied due to the fact that, it was based
completely on Osteoarthritis and some were general websites and therefore depending
on the nature of the websites, it was recorded accordingly.
3.3 Selecting generic tools
Based on the literature review discussed in Chapter 2 we know that a lot of generic tools
are developed by various organisations in the past years, which aim at evaluating the
quality of the health information online. It is also known that these generic tools were
developed on more of a general aspect and were not focused on any particular disease or
any specific condition, and that leads to the reason why they are called as generic tools. It
was necessary to select appropriate generic tools to evaluate the quality of the
information on the selected 40 websites. There are previous studies , were these generic
tools were made use of for example in Surman (2010) , Hsu (2006), Harland (2004) they
used tools like DISCERN, HON, IQT, Hi Quality guidelines . In the current study three
generic tools were made use of, they were DISCERN, HON and IQT. The current study also
aims at developing a new tool which is focused on Osteoarthritis and to evaluate the
information on it on those selected sites. On a total, four tools were selected which was
considerable good to enough to perform and fulfil the evaluations of the website in a
compromising way and at the same time making it remain feasible.
3.3.1 Identifying generic tools
As discussed earlier in the literature review, few generic tools were identified based on
that. A lot of medical databases and journal databases, such as Medline, Web of Science
and PubMed were searched on the areas relating to the study. Identifying tools were
made easy from previous studies and it also had evident proof of it having results that
could be relied on. While searching for websites it was noticed that few sites had these
tools on their sites. For example sites like arthrolink.com had HON Code certification on
its website. From all the researches DISCERN, HON Code and IQT were selected.
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Each tool had different categories based on which they evaluated the quality of the
website. HON Code focused more on the quality of the information while DISCERN was
more focused on the information than on categories of who owned it. So when all these
categories differ when evaluating the website, they result in different scoring for each
websites when different tools are applied on them. So it was decided to use tools which
were from different categories from which the results could be correlated. All the generic
tools are directly available on their respective websites.
3.3.2 Justification for choice of generic tools
As the selected generic tools had shown proven results in the previous studies of Hsu
(2006) and Surman (2010), they were chosen to be used in the current study. These tools
were easily available on the net and also they were well authorized. The selected tools
were found to be reliable in many situations and were found to be useful for the
consumers while assessing online information about health. These tools were generalised
and so in this study it was necessary to involve information needs of Osteoarthritis such as
the symptoms and the availability of choices when it comes to treatments and other stuffs
and also what information need when it came to cognitive and affective, for example
coping up with their daily routines and to have a independent life. As mentioned earlier
each tools have different categories of assessments for their evaluation, like DISCERN tool
is got 16 question of which 8 are relating to the reliability of the information and the rest
7 refer to the quality of information based on the choices of treatments available and the
last question rates the publication on an overall basis. The questions in all 4 tools may be
seen in the Appendix 2. Similarly, HON Code and IQT tools have set of 16 and 22 questions
each based on set of principles like authenticity of websites, issues being addressed. But
most likely it was found that the tools each websites scored differently as each tools
scoring system was found to have a different weightage for different categories. So in
order make all the tools on a same scoring base, it was decided to have a scale which had
values from 0 to 5, where 0 was for no, 1 for partially present, 2 for unclear, 3 for
intermediate, 4 for present in some pages and 5 for yes. The scoring strategy may be
viewed in the Appendix 3.
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3.4 Development of new OA tool
A condition specific tool was developed to assess online quality information about
Osteoarthritis. For development of this tool, it had to be sensed and realised with regard
to the needs of Osteoarthritis. The categories and the questions under each of them were
based on the literature review in the Chapter 2. The tool had to be tested and scrutinised
before it was used along with the generic tools based on the level and fields of the
condition and the website information it covered. The justification and content of the tool
are discussed below.
3.4.1 Justification for development
A number of previous studies like Bouchier and Bath (2003), Harland and Bath (2006),
Surman and Bath (2010), Hsu (2006), all show that previous tools which were generic
though helped in finding quality of the information online but they did not address to the
specific needs of a group of people. This eventually led to the fact of giving rise to new
tools, which are disease specific or condition specific. This is also the case when it comes
to Osteoarthritis websites, but there are few researches carried out on the similar
condition. The sample of websites which were selected based on Osteoarthritis was
evaluated using the generic tool to know, how these websites score when evaluated on a
general basis. But it is evident to know that on this type of evaluation using generic tools
and their scores we cannot determine if the websites are particular good and provides
quality information for those who need Osteoarthritis information.
Harland (2004) says that, in addressing the information needs of a group, a specific tool
may be said to examine the issue of relevance as regards the quality of information
content. As mentioned earlier, we cannot conclude on any decision based on the
evaluation of a website with generic tools as it is not going to answer the needs of actually
what the consumer is looking for. When it comes to serious issues of where the patient or
their families or their carers have to come to a decision in a specific case, they look
forward to find valuable information and they hope to find that the information address
their needs of Osteoarthritis. After viewing all the choices that are available to them and
later when the GP suggests any of those they take these information as a valuable and
trustable resource. It will also try to fulfil the information divide in the condition.
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3.4.2 Content of the OA specific tool
Based on the literature review discussed in the Chapter 2 and also by reviewing previous
studies of Chandrani (2010), Surman (2010), Harland (2004) and many more, all these led
to a broader framework for the current study. The development of Osteoarthritis tool was
purely indeed an adoption from those studies.
Initially, to develop a tool, considerations must be made on basic criteria such as will the
tool be useful to the consumers, will the consumer find it easy to use and to address these
two issues the tool has to solve the purpose and also it must not take a lot of time to use
this tool thus resulting in a tool which must be purposeful and not too lengthy. While
designing the tool, immense care was taken to address all the needs that the consumer
would have when it came to Osteoarthritis, having in mind this, the tool related closely to
the core content of the disease. The quality, accuracy and the currency issues of a
websites were well covered by generic tools so this disease specific OA tool focused more
on the other issues which generic tools did not cover. In this current study few academic
considerations were also made and the questionnaire consists of 32 questions which
could be well used by the consumer, as the length of the tool becomes a reason of greater
concern and also this study was a proposed for academics.
Having in mind all the limitations and constraints that had to followed, the development
was made. Firstly, based on the literature review discussed in Chapter 2, the information
needs what the Osteoarthritis suffers are experiencing and accordingly a close
examination of the same was done. Then they were detailed into various sections based
on which more focus was needed. Secondly, a draft of the tool or a sample was created
based on the initial investigation. The details were made to give more importance and
prioritised on conditions of, the need for Osteoarthritis information and the content
information. When it comes to content, it had to emphasis on lot of information as
Osteoarthritis being very common, the consumers will want to know information on
needs of how to cope up with their daily routines, general enquires on pain killers to be
used, what are all the options available to them in terms of treatment and what are its
symptoms.
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One such important issue and need they would like to know is about mobility so
information about shoe insoles and walking aids. All these content of the condition were
grouped under single label. This information covered both aspects of clinical and practical
information. Most of the important questions about Osteoarthritis were covered in the
tool under this section. Not only has this information helped the patients but also their
families and their carers.
The tools consisted of other sections which were not that significant, but still added value
like covering topics of quality, currency and credentials of authors. After having a fair view
on what all sections to be covered then a fair tool was made, this can be viewed in the
Appendix 2.1. Since all the generic tools were scaled on a same scoring system, the same
was applied to it, so it would be easier to analyse the data and correlate them. All though
previous studies had different scoring system for each tool, for ease of better analysis,
common scoring system was decided on all tools.
3.5 Website evaluation
Based on previous studies evaluations were carried out. Surman (2010), Hsu (2006) all had
similar approaches of evaluating based on how consumers will handle data. To evaluate
information form a point of view of a consumer, few basic things had to be known, one is
the consumer need not be a person who is medically sound and the next is that the
consumer definitely has someone close who is suffering from the specific condition. So
the consumer can easily access information, as how it would be for a person who is
experiencing the issues of Osteoarthritis. With the review of the literature it was easy to
find the needs of the specific group of people and also to have more knowledge about the
condition.
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3.5.1 Application of tools
All the selected 40 websites were evaluated using the tool one by one and with the
designed scoring system. All the websites were opened on multiple tabs and websites
were evaluated in a sequence of tools as seen in the Table 3.1. So before evaluating the
next Website, each website was made to encounter with all three generic tool and OA
specific tool.
The responses to each question of each tool were noted down. By creating an MS excel
sheet and the data was recorded with respect to the labels like the name of the website
and the question number in the tool. The time taken for each tool on each website was
also recorded so that the tools could be evaluated for further feasibility study. A timer
was used to calculate the time and record it. The time was recorded right from the start of
the initial question to the last question and was rounded to the nearest second. Hsu
(2006) suggests that changing the order of the tools in which the evaluation was done was
more helping than to follow a system of using tools in the same order for each website
which is not reasonable in its implementation and it will also prevent any automation in
using subsequent tools on the part of the researcher. When a researchers follows same
sequence, the issue that arises is that, for example when cases where two questions are
similar in two tools, so the researcher is well aware of it and so without searching for
proper evidence they score the website. And this will eventually result in less time being
recorded for that tool. This was the cause for the change in the sequence of tools for each
Table 3.1: Sequence of tool use
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website. So on a rotational basis tools were used as seen in Table 3.1. In cases when a
website performed very badly, then researchers knew the approximate scoring rate of the
website. In the excel sheet, the sum, the average, the percentage and also the time taken
for each website was calculated using inbuilt functions and also the maximum and
minimum time taken while using each tool on a website was also recorded.
3.6 Analysis of evaluation results and tools:
While analysing the evaluation which was carried out, it involved two tasks one was to the
evaluation results and the other was to the tools used in the process.
3.6.1 Analysing the evaluated results:
As mentioned earlier in Section 3.5, the score which were recorded into the excel
spreadsheets was made to automatically generate the sum, average and percentage of
each of the websites and also how much each website score for each questions
mentioned in the tool. By having all the data in a proper standard it would be useful to
have a better analysis. The results from each tool was then exported into SPSS IBM
Statistics 19 and then a frequency analysis was made depending on the number of scores
like from 0 to 5 each question is got and also the reliability of the website was checked.
For example, it suggested that by deleting which questions the reliability of the website
can be increased. On the same software, charts and graphs were drawn for the score
secured by each website in each tool. The scores recorded were also used to rank the
website which helped to determine the best website that was selected by each tool.
Finally, an overall ranking was given to the websites based on the mean of the ranking
from all the individual tools.
These methods were followed to select how well the data could be analysed and these
results could be used to further analyse statistically. Histograms, bar charts were all
drawn for each tool along with reliability tests based on Cronbach’s Alpha and mean and
standard deviations are found, it also tabulates how the scale mean and variance would
be when if a particular question is deleted. While analysis the frequency distribution it
checks for total number of 0s, 1s, 2s, 3s, 4s and 5s but displays them as per their label
mentioned.
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3.6.2 Psychometric testing of evaluation tools
SPSS package helped in better statistical analysis of the evaluation results, while exporting
the recorded results from excel sheets. This kind of analysis benefited in testing the
credibility of the tools which were used to evaluate the websites.
On a basis of feasibility, reliability and validity the determination of analysis was made.
Firstly, feasibility was depended on the time that was taken for each of the tool to assess
the information on each of the website. As mentioned earlier in Section 3.6.1, the
reliability check was done determining the internal consistency, using Cronbach’s Alpha
Coefficient. Validity of the tool was tested to measure if the tool satisfied the purpose of
its creation. A set of both parametric and non-parametric tests were used, reasons for
using both are detailed later in the study. Firstly, Kendall’s Coefficient of concordance was
used to find if the tools agreed with each other. Then Pearson’s and Spearman’s
Coefficient for correlation were done to measure the degree of correlation better each
tool. Also graphical representation of the correlation was done using set of histograms
and scatter plots.
3.7 Summary
From a large number of previous studies this study adopted this methodology and also
designed it aiming to retrieve the various information quality and reliability by defining
them under each tools and applying them on selected sample of websites which had
information on Osteoarthritis. This also led to a development and use of a specific
condition oriented tool which would evaluate website based on the needs of the
consumers having this particular condition. By evaluating those on these basis and by
statistically analysing it led to further conclusions of the evaluation tools. These analyses
give solid evidence to the employment of the tools. In the following Chapter 4 and 5, the
analysed result of the evaluation will be presented and also an evaluation of the tools will
be done. Chapter 6 would focus more on these results aiming to address the objective of
the current study alongside referencing to the literature review.
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Chapter 4
Results Ι – Evaluation of Osteoarthritis Website Quality
4.1 Introduction
As described in the Chapter 3 of the study, all the websites and tool were selected and
analysed based on the methodology discussed. The results that were found from all the
analysis are described in detail in the further sections and also the scores that were
obtained by the websites are tabulated according to the overall ranking. A detailed
comparison showing each site scoring to each tool is shown, their performances have
been discussed based on their scores and also a distribution with scores have been done.
For the details of the scores attained by each website are given in the Appendix 5.
4.1.1 Website Description
The 40 websites that were selected for the study were of a wide range of types. Some of
the types of websites that were used included general healthcare information sites like
patient UK , disease specific websites like Arthritis UK , Community group sites and also
websites which gave information not only about the disease but also its related conditions
and health care issues which would address the needs of the patients carers and family.
As all these websites were of various categories, it was difficult to find one website that
would fit into all the categories. And therefore websites from every category was chosen
and taken into the study. This was decided in this manner because when a person with
information needs searching on the Internet is looking for the type of website it is, but
provided the website answers to their needs.
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A UK search engine was used to capture the websites , the top results of the search was
used in this study because when consumers search for websites on the Internet we know
that only the first few pages of the search will be maximum seen by them. For this very
reason, from all the search engines that were used in the study, only the most viewed and
top listed websites on the search list were considered for this study. Although in the
search there were many websites which belong to other countries like America and
Australia were found , it was decided that it would not be relevant to use another country
related information for UK Osteoarthritis based study even though there was information
in general that was applicable on conditions and treatments. Thus majority of the sites
that were used in this study were UK sites.
4.1.2 Scale description of the responses
All the tools that were used in the study were decided to use the same scale for scoring.
This was decided this way to have better statistical approach and it would be easier to
evaluate the results if all the tools had same scale of scoring. And therefore each tool has
a scale of 6 (0-5), where ‘0’ denoted a ‘no’ response, ‘1’ denoted a ‘partially present’
response, ‘2’ denoted a ‘Unclear’ response, ‘3’ denoted a ‘Intermediate’ response, ‘4’
denoted a ‘Present in some pages’ response, ‘5’ denoted a ‘Yes’ response. A ‘Yes’
response was given when website answered the question in the tool directly for example,
whether the author name is mentioned in the website. A ‘Present in some pages’
response was given when the information was only in some of the web pages on the site
for example, whether the last date that the page was modified. An ‘intermediate’
response was given when it does not give complete information for example, is any
information on NSID mentioned. An ‘Unclear’ response is given to questions like if the
choice of treatments for the disease is not mentioned in detail. A ‘Partially present’
response is given to questions like contact information on the website or forums on the
website is not effective or does not run on the site. A ‘No’ response is given to questions
where there is no such information found on the website for example, having options for
large texts. Thus based on the above mentioned scale the scores have been processed.
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4.2 Assessments by each tool
4.2.1 Scores for the OA tool
The OA tool (see Appendix 2.1) was designed to assess the information quality of the
selected websites based on how well they addressed the need of the Osteoarthritis
patients their carers and families. This tool was made according to the needs that a
patient or their families would require based on symptoms, treatments, and also giving
attention to acute details. The tool was determined to cover information requests that
will not be generally in other generic tools. Figure 4.1 below shows the scores obtained by
each website in response to the OA tool and it explains how the websites have met the
requirements when evaluated using this tool.
Out of 32 questions in the tool, 16 questions (1, 2, 4, 7, 8, 9, 10, 11, 12, 13, 17, 18, 19, 24,
25, 26) scored a 50% or greater number with a ‘Yes’ response (97.5%, 92.5%, 70.5%,
32.5%, 52.5%, 60%, 67.5%, 50%, 80%, 75%, 67.5%, 62.5%, 60%, 62.5%, 67.5% and 60%
respectively). The tool had set of questions that related to the clinical information and
under this section is where the overall performance was varying based on each website.
Under this section is where details that directly addressed the Osteoarthritis information ,
and all these questions scores based on different responses like ‘Yes’, ’Present in some
pages’ and ‘intermediate’.
Questions 1 and 4 have scored the maximum of 97.5% these questions were related to
the general and assessable details. Questions (3, 5, 6, 16, 21, 27, 38, 29, 30, 31, and 32)
which have scored less were mostly based on the reliability, feedback and very little
clinical information. The rest of the questions which have scored between the ranges of
50%-70% are regarding the clinical information about the disease itself. Based on the
Figure 4.1: Responses to OA tool
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above scores we see that the most of high scores have been obtained by websites are
related to general information, currency, reliability and user friendliness of the website
and these do not directly answer user needs but based on clinical information is where
the evaluation should be concentrated on. Adding more to the results, a detailed list in a
tabulated form for the responses against each question is shown below. The frequency
distribution for each question on each tool was done using SPSS software. A sample for
question 1 of OA tool is shown in Table 4.1 the other questions can be seen in Appendix
4.1
4.2.2 Scores for the DISCERN tool
The DISCERN tool is a generic tool which is designed in a manner that addresses the
reliability standards and as well as the choices that it has towards the treatments based
on the information needs. Figure 4.2 below shows the scores obtained by each website in
response to the DISCERN tool and explains how the websites have met the requirements
when evaluated using this tool with 16 questions.
Figure 4.2: Responses to DISCERN tool
Table 4.1: Frequency distribution of OA tool- Question 1
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The DISCERN tool (see Appendix 2.2) consists of sixteen questions, these questions are
categorised based on two criteria. The question numbers one to eight are concerned with
the reliability of the website based on evaluation when in publication, while question
numbers nine to fifteen are concerned with the quality of the information about the
choices that the websites have towards the treatment options for Osteoarthritis. The last
question number sixteen give an overall rating score to the website. From the Figure
above, we can deduce that question numbers one to eight have had more 4 and 5 score
which relates to a ‘Yes’ and ‘Present in few pages’ response. We can also see a fewer
‘unclear’ response to these set of question numbers. Comparatively on analysis the next
set of question numbers from nine to fifteen which is based on information quality have
had a mixed response from ‘Yes’, ’Present in few pages’ and ‘no’.
In question numbers nine and ten we can see that they have got the maximum number of
‘yes’ response which falls under information quality and by scrutinising further we deduce
that, the question number eleven and twelve which falls under the same category also
have had greater ‘No’ response. The questions which have had responses of
‘intermediate’ , ‘unclear’ and ‘ present in few pages’ have been not taken as a positive
response, as we see a large number of questions on the websites have been answered
under these responses. No combinations of the response have been done so that we can
analyse every detail acutely. The reasons for choosing such a methodology have been
discussed in the Chapter 6. Adding more to the results, a detailed list in a tabulated form
for the responses against each question is shown below. The frequency distribution for
each question on each tool was done using SPSS software. A sample for question 1 of
DISCERN tool is shown in Table 4.2, the other questions can be seen in Appendix 4.2.
Table 4.2: Frequency distribution of DISCERN tool- Question 1
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4.2.3 Scores for the HON Code tool
The HON Code tool is based on the quality of the website content Production and its
ethics. The tool enables the website developers to know the expectations of the
information quality of the consumers, the standard that they are looking for and their
needs. Therefore with these guidelines they can create a website fulfilling all the above.
Figure 4.3 below shows the scores obtained by each website in response to the HON Code
tool and explain how the websites have met the requirements when evaluated using this
tool with 16 questions.
The question number from one to seven were based on the website content production
and from the above figure we can deduce that they have had more of a ‘yes’ and ‘Present
in some pages’ response. This states that most of websites have scored pretty well under
this category. The question numbers from eight to twelve are based on ethics for
example, on personal information, site’s mission etc. Both the categories have has scores
high range of percentage if we combine scores of 4 and 5 (‘Present in some pages’ and
‘yes’ respectively), Question numbers 1,3,5,7 have had more than a 50% of ‘yes’ response.
These question numbers are based on website content. On the other hand the rest of the
ethics categories have scores more with a ‘present in some pages’ response which is
almost equal to a ‘yes’ response. The maximum number of ‘no’ response was given to
question number 9 and next highest to the question number 2, these questions dealt with
up to date details and if they were for the targeted audience (see Appendix 2.3 for
details).
Figure 4.3: Responses to HON Code tool
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From the result we do not see much of an ‘unclear’ or an ‘intermediate’ response. Even
in testing this tool on the evaluation process. No combinations of scores have been done
to make sure the exact details in the website have been captured and the genuine
information quality results have been found. The results also clearly show that it had not
received any ‘partially present’ response from any of the website that was used in the
study. These results are different from those of the other tools as they are more
concerned on areas of the website content than more on the disease. Adding more to
the results, a detailed list in a tabulated form for the responses against each question is
shown below. The frequency distribution for each question on each tool was done using
SPSS software. A sample for question 1 of HON Code tool is shown in the Table 4.3, the
other questions can be seen in Appendix 4.3.
4.2.4 Scores for the Information Quality tool (IQT)
The IQT is based on the information quality of the websites. The questions in the tool are
more focuses and related to the quality of information detailed in the website from the
author details to the up-to-date information. Compared to other generic tool IQT was
more concerned about out of dated information and also about the reliability of the
information. The quality of information is more made from where the information is
obtained, who gives it, can it be trusted or is it biased. Figure 4.4 shows the scores
obtained by each website in response to the IQT tool and it explains how the websites
have met the requirements when evaluated using this tool with 21 questions.
Table 4.3: Frequency distribution of HON Code tool- Question 1
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The question numbers from one to six and also question numbers 11, 18, 20, 21 have
found to have more of a ‘No’ response. These questions are more related to the author
information, up to date information and search engine options (see Appendix 2.4 for
details). The question number eight, thirteen and twenty one based on sponsorship,
relevant information and search engine options.
But when we closely scrutiny the results for the question number 20 we can see that the
particular question have had more or else equal number of ‘yes’ and ‘no’ responses. But
when look at the results on a overall basis we see that they have scored less when
analysed individually with responses ‘yes’ and ‘present in few pages’. But with a combined
evaluation we can be sure that they have scored well about 50% and above. As this tool
aims at authenticity we do not find many responses of ‘unclear’ and ‘intermediate’.
Responses to ‘partially present’ have not been made in many websites. As done in
previous tools even in this, no combinations of scores have been as every information
detail is made into consideration. Adding more to the results, a detailed list in a tabulated
form for the responses against each question is shown below. The frequency distribution
for each question on each tool was done using SPSS software. A sample for question 1 of
IQT tool is shown in table 4.4, the other questions can be seen in Appendix 4.4.
Figure 4.4: Responses to IQT tool
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4.3 Information Quality scores by four tools:
A score distribution of all the websites in the evaluation process was recorded, as regards
information quality, seen in the Figure 4.5 below
Form the results we can see that the websites have done well in the evaluation tests used
on them using each tool. All the four tools between sixteen to twenty websites have
scored 75% and above. Similarly, twelve to twenty four websites fall under 50% to 70%.
Up to eight websites or less only fall under the scores between ranges 25%-50% and less
than 25%. The highest score is obtained by the OA tool which twenty four websites in the
score range between 50%-75% and the next highest is obtained by HON Code tool with
twenty websites in the range between 75% and above.
Table 4.4: Frequency distribution of IQT tool- Question 1
Figure 4.5: Score distribution of websites
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Results were obtained individually on each tool over the selected websites, they are seen
in the Figures 4.6 to 4.9. They also show each percentage obtained by each website
highlighted on each bar of the graph. Comparatively, results showing standardised
percentage scores of each website against each tool are summarised in figure. This
enables to study, analyse and examine the results individually and together with all tools.
Figure 4.7: Percentage obtained by websites using DISCERN tool
Figure 4.6: Percentage obtained by websites using OA tool
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Figure 4.8: Percentage obtained by websites using HON Code tool
Figure 4.9: Percentage obtained by websites using IQT tool
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From the Figure 4.10a, we may see that the results of information quality evaluation using
all the 4 tools (OA, DISCERN, Hon Code and IQT) in websites 1 to 10. It may be seen that
all the websites have scored more than 50% and also expect for website number 5 and 9,
the others have performed well comparatively.
From the Figure 4.10b, we may see that in websites 11 to 10, all the websites have scored
more than 50% expect for website number 12, 18, 19 and 20. We may notice that in
websites 18 and 19, the DISCERN tool has scored the websites less compared to the other
3 tools (OA, HON Code, IQT).
Figure 4.10a: Results of information quality evaluation using 4 tools (Sites 1-10)
Figure 4.10b: Results of information quality evaluation using 4 tools (Sites 11-20)
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From the Figure 4.10c, we may see from the results of information quality evaluation, the
website numbers 21, 23, 24, 28 and 29 have scored less compared to the others, and it is
noticeable that in websites 21, 23 and 29 similar to the results of Figure 4.11 the DISCERN
tool has scored them lesser compared to other tools.
From the Figure 4.10d, we may see from results of information quality evaluation all
websites have scored more than 50% expect for website number 37 and 38. Unlike in
Figure 4.10a and 4.10c all the 4 tools (OA, DISCERN, Hon Code and IQT) have scored
websites similarly.
Figure 4.10c: Results of information quality evaluation using 4 tools (Sites 21-30)
Figure 4.10c: Results of information quality evaluation using 4 tools (Sites 31-40)
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4.4 Ranking of each websites against each tool
To examine and to clarify the above results even further, all the websites were ranked
based on their scores that they had obtained end of the evaluation process and all these
results were calculates and tabulates in the Table 4.5. The tabulation not only shows the
ranks obtained by websites in each tool, but it also shows the overall rank obtained by the
websites based on an average from all its ranked in other tools.
Websites
Nos Site Name
Overall
Rank
OA-
RANKS
DISCERN-
Ranks
HON
Code-
Ranks
IQT-
Rank
W13 NetDoctor 1 2 3 5 4
W14 Arthritis Care 2 1 3 3 13
W17 eMedicineHealth 3 7 5 2 6
W11 ArthritisResearch
UK 4 1 11 6 3
W8 Patient UK 5 4 2 6 10
W25 Mayo Clinic 6 15 4 1 7
W27 Wrong Diagnosis 7 4 9 1 13
W10 Nhs choices 8 5 10 5 8
W30 Niams 9 6 10 7 5
W1 Arthrolink 10 13 2 8 7
W22 WebMD 11 6 8 11 6
W32 Private Health 12 8 15 6 2
W35 Disaboom 13 16 1 10 6
W3 Arthritics org 14 3 14 5 14
W31 Private Health 15 9 16 7 5
W6 IhaveOsteoarthritis 16 12 12 4 11
W4 Orthovisc 17 11 6 8 16
W16 Bupa 18 14 11 9 8
Table 4.5: Ranking of each websites against each tool
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W26 Family Doctor 19 20 18 3 1
W33 Arthritis Today 20 7 7 8 23
W7 Health.com 21 15 14 11 9
W15 MapofMedicine 22 10 18 10 12
W39 Third Age 23 15 9 7 19
W2 OAhealthinfo 24 22 6 8 15
W40 Drugs.com 25 15 21 16 9
W34
CSK(Clinical
Knowledge
Summaries
26 17 19 12 17
W5 Orthovisc 27 17 15 10 25
W36 ArthritisU 28 18 17 7 26
W28 Good To Know 29 21 13 15 22
W9 Durolane 30 27 9 18 21
W12 MedInfo 31 24 20 13 25
W24 Benefits Now 32 19 19 17 27
W19 Medic8 33 28 26 14 19
W23 Arthritis.com 34 30 23 17 18
W18 BBC 35 23 26 21 21
W21
CSP(Charity
Society of
Physiotherapy)Org
36 26 27 20 20
W38 Virgin media 37 27 24 19 24
W37
CSK(Clinical
Knowledge
Summaries)
38 25 22 24 29
W29 Surgery Door 39 29 25 22 28
W20 Osteoarthritis UK 40 31 26 23 30
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From the Table above we will see that the top five websites are identified as Net Doctor,
Arthritis care, eMedicine Health, Arthritis Research UK and Patient.co.uk. The bottom
three websites are BBC, CSP, Virgin Media, CSK, Surgery door and Osteoarthritis UK. But
when analysed closely we can see that there exists a disagreement in the ranking using
tools, cause some websites which have been ranking well overall might have not been
ranked well in other tool further in the next chapter, the correlation and reliability factors
of the tools have been discussed which will give help in determining the reasons to these
disagreements and also their time scale difference have been discussed. Further to this,
Chapter 6 contains the discussions giving reasons to the contradictory results.
4.5 Summary
This Chapter has presented the results obtained by evaluating the forty websites related
to Osteoarthritis. They were evaluated using four tools and their results have been
examined. The results show differences in the scores that they have gained with tool.
Some of them have higher scores and some with lower once. Due to these disagreements
it was necessary to do a study to compare these results with those of previous studies to
conclude and decide on the basis of the information quality that the website provide for
this study. In the next chapter, the four tools used in assessing the websites will be
analysed on few cases of time, parametric and non parametric tests, and discussions
based on them will be discussed in Chapter 6.
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Chapter 5
Results ΙΙ – Analysis of Evaluation Tools
5.1 Introduction
As discussed in the Chapter 4, the results of the assessments of websites, the evaluation
of the tools had to be done. One the important criteria in evaluating the quality of
information using these tools are that, we must be sure if the tools can be reliable,
feasible and valid. In order to find answers to all these, a list of tests were conducted on
each tool used in the evaluation process on the basis of parametric and non parametric
tests. For example, to check if the tool was feasible in its use, then it should not take
much of user’s time. Similarly if the website shows different results went tested using
different tools, then we cannot rely on the tool. Provided the scores of the websites have
drastic difference. The validity of the tool can be measured by analysis if it solves its
purpose for which it had been used. Therefore we can see that using evaluation tools in
evaluating information quality can only be valuable, if and only if the tool is feasible,
reliable and valid. The sections below will show performance of each tool on tests aiming
to find the above tasks.
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5.2 Feasibility of Evaluation Tools
The feasibility of a tool can be known by calculating the time spent by using it. In this
study the time it takes to use on each tool has been recorded and has been tabulated in
the Tables 5.1 to 5.4.
Table 5.3: Time analysis of HON Code tool
The mean time taken to assess the websites using the tools ranges between 3m9s
(DISCERN tool) to 6m35s (OA tool), these results include the time taken to review the
quality criteria, its measures and processes. The results also shows the maximum taken to
assess the websites ranges between 7m37s (IQT) to 14m21s (OA tool). The minimum time
taken to assess the websites ranges between 1m15s (DISCERN tool) to 2m6s (OA tool) and
also the standard deviation ranges between 1m47s (IQT) to 2m87s (OA tool). To analyse
even further the above results, with all the tools used in the study, a graphical
representation seemed a better option. The Figures from 5.1a to 5.1d shows the results of
time spent assessing each websites using all the four tools.
Table 5.1: Time analysis of
OA tool
Table 5.2: Time analysis of DISCERN
tool
Table 5.4: Time analysis of IQT tool
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From the Figure 5.1a, we may see that all the websites have taken approximately same
time for each tool. In Websites 1 to 6, it can be noticed that OA tool has spent more time
assessing the websites and in Website 8 and 10 DISCERN tool has taken more time than
other 3 tools.
From the Figure 5.1b, we may see in most of the websites OA tool has spent more time
assessing the websites. Except for websites 18 to 20, where all the 4 tools (OA, DISCERN,
Hon Code and IQT) have taken similar time to assess the websites.
Figure 5.1a: Results showing time spent assessing websites using 4 tools (sites 1-10)
Figure 5.1b: Results showing time spent assessing websites using 4 tools (sites 11-20)
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From the Figure 5.1c, we may see that all the websites have taken approximately same
time for each tool. In Websites 21, 22, 23, 24, 25, 26, 27 and 30, it can be noticed that OA
tool has spent more time assessing the websites. However, these differences are not very
large.
From the Figure 5.1d, we may see that in almost all websites all the 4 tools (OA, DISCERN,
Hon Code and IQT) has spent approximately equal time assessing the websites. Unlike in
Figures 5.1a to 5.1c, this graph shows more of a standard result.
Figure 5.1c: Results showing time spent assessing websites using 4 tools (sites 21-30)
Figure 5.1d: Results showing time spent assessing websites using 4 tools (sites 31-40)
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Table 5.7: Kendall’s W Test on Time
Kendall's W Test
These findings are found similar to the previous studies by Harland (2007), Bouchier
(2003), Chandrani (2010) and Surman (2010). From the Table 5.5 we may see that the OA
tool has .121 sig compared to other tools. From Table 5.6 and 5.7 the results have been
found satisfying and the tool is feasible to use as the other generic tools. The factors
contributing to these are discussed in the following Chapters.
Table 5.5: Kolmogrov-Smirnov Test on Time
Table 5.6: Friedman’s Test on Time
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5.3 Reliability of the tools
There are many ways to test the reliability of the tool, first by assessing the extent to
which two evaluations of the same website match, or by reviewing it with different users
and finally by using reliability tests. Internal consistency tests, to asses such internal
reliability, examine if the tool measures a single idea or not (Bryman and Cramer, 1997).
Cronbach’s Alpha is a commonly used statistical measure for finding internal consistency
or reliability of a psychometric test score and has been recommended as the measure of
choice in the assessment of reliability of tools that intends on rating explicit factors like
quality, trough a series of steps to ascertain whether the individual items in a tool are
adequately correlated to each other i.e. the scale consists of homogeneous items (Bland
and Altman, 1997).The value resulting from Cronbach’s Alpha coefficient results between
the range zero to one, if the value is closer to one the better the tool is got reliability. It is
suggested that however that a score of 0.8 or above is desirable in order to accept the
internal reliability of a tool (Bryman and Cramer, 1997).
Table 5.8: Reliability statistics for DISCERN tool
Cronbach's
Alpha
N of
Items
.862 16
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The tabulation 5.8 above shows reliability results for DISCERN tool. The tabulation shows
details of the scale variance for each question and also shows that scale variance when
the particular question is deleted. The overall Crobach’s Alpha Coefficient for DISCERN
tool is found as .862, but closely analysing each questions contribution to the reliability
we can see some variance when particular question is removed. Similarly for Crobach’s
Alpha Coefficient when a particular question is deleted is also given, for example Question
numbers 1, 3, 5, 8, 11, 12 shows Crobach’s Alpha Coefficient more than .85 and the others
show lesser. But for Question number 2, which has Coefficient of .918 when deleted it
shows highest reliability of the tool.
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Table 5.9: Reliability statistics for HON Code tool
The Tabulation 5.9 above shows reliability results for HON Code tool. The overall
Crobach’s Alpha Coefficient for HON Code tool is found as .778, but closely analysing each
questions contribution to the reliability we can see fewer variances comparing with
DISCERN tool. Examining Crobach’s Alpha Coefficient when a particular question is
deleted we see most of the question numbers shows Crobach’s Alpha Coefficient in the
range .749 to .778. But for Question number 9, which has Coefficient of .809 when
deleted it shows highest reliability of the tool.
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Table 5.9: Reliability statistics for HON Code tool
Item-Total Statistics
Questio
n Nos.
Scale
Mean if
Item
Deleted
Scale
Variance if
Item Deleted
Corrected
Item-Total
Correlation
Cronbach's
Alpha if Item
Deleted
Q1 68.88 397.599 .769 .922
Q2 68.28 400.358 .791 .921
Q3 67.93 406.789 .755 .922
Q4 69.95 411.741 .587 .926
Q5 69.40 402.913 .655 .925
Q6 69.10 399.631 .704 .923
Q7 67.73 413.128 .791 .921
Q8 67.00 447.179 .501 .927
Q9 67.60 447.323 .327 .930
Q10 67.65 447.362 .529 .927
Q11 69.50 407.385 .602 .926
Q12 67.23 450.948 .531 .928
Q13 67.08 445.148 .688 .926
Q14 67.25 440.500 .753 .925
Q15 67.25 439.782 .774 .925
Q16 67.25 435.628 .718 .925
Q17 67.20 441.754 .729 .925
Q18 68.48 416.051 .593 .926
Q19 67.53 428.820 .725 .924
Q20 67.78 421.717 .492 .928
Q21 68.98 428.640 .493 .927
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The Tabulation 5.9 above shows reliability results for IQT tool. The overall Crobach’s Alpha
Coefficient for IQT tool is found as .929, unlike other tools IQT does not show much
variance. On examining Crobach’s Alpha Coefficient when a particular question is deleted
we see most of the question numbers shows Crobach’s Alpha Coefficient in the range .921
to .930. On comparing with all the other tools, in IQT tool we may see that even when any
question id deleted its Crobach’s Alpha Coefficient does not show much of a change in its
reliability and it also records highest Coefficient.
Table 5.11: Reliability statistics for OA tool
Item-Total Statistics
Questio
n Nos.
Scale
Mean if
Item
Deleted
Scale
Variance if
Item Deleted
Corrected
Item-Total
Correlation
Cronbach's
Alpha if Item
Deleted
Q1 102.83 559.276 .163 .836
Q2 102.95 557.690 .101 .836
Q3 105.93 566.687 -.105 .847
Q4 102.93 541.712 .494 .831
Q5 105.83 506.507 .464 .827
Q6 106.45 523.177 .413 .829
Q7 104.30 509.241 .549 .824
Q8 103.55 521.638 .608 .825
Q9 103.65 523.362 .475 .828
Q10 104.45 522.356 .364 .830
Q11 103.15 543.362 .485 .831
Q12 103.45 541.228 .278 .833
Q13 103.83 524.866 .388 .830
Q14 105.05 485.587 .674 .818
Q15 104.83 499.481 .586 .822
Reliability Statistics
Cronbach's
Alpha
No of
Items
.836 32
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Q16 104.93 511.610 .461 .827
Q17 104.18 528.097 .326 .832
Q18 104.00 514.513 .489 .826
Q19 104.00 518.923 .451 .828
Q20 105.18 504.610 .486 .826
Q21 105.28 512.666 .414 .829
Q22 105.20 509.651 .437 .828
Q23 104.43 538.661 .198 .836
Q24 104.00 527.436 .335 .831
Q25 103.98 545.102 .129 .838
Q26 104.43 549.738 .055 .842
Q27 106.10 567.836 -.116 .848
Q28 105.38 527.984 .251 .835
Q29 106.00 551.795 .061 .840
Q30 103.93 525.404 .649 .826
Q31 103.80 533.549 .605 .828
Q32 103.88 528.728 .672 .827
The Tabulation 5.11 above shows reliability results for OA tool. The overall Crobach’s
Alpha Coefficient for OA tool is found as .836, this tool results are similar to IQT and does
not show much variance. On examining Crobach’s Alpha Coefficient when a particular
question is deleted we see most of the question numbers shows Crobach’s Alpha
Coefficient in the range .822 to .847. On comparing with all the other tools, OA like IQT
tool does not show much of a change in its reliability when any question is deleted on its
Crobach’s Alpha Coefficient and it also records second highest Coefficient.
Summarising from the tabulated results above, the results of the cronbach’s Alpha tests
used on the evaluation of the tools in this study have scored a bench mark of 0.8. The
statics show a comparative study where it shows based on which question in the tool the
reliability of the website is increased and also deleting which question would affect the
tools reliability. But on concluding on the whole from the results we can see that the tools
used in this study are reliable.
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5.4 Validity of evaluation Tools
Validating the tools is necessary because only then it is possible for us to assure that the
extent to which they measure criteria that they purport to measure (Bowling, 2009). They
are options to test the validity of the tool used. One such option followed in this study it
to use correlations between the tools. The tests that should be used depend on the
behaviour of the data. If the data meets conditions such as the samples being randomly
selected, the sample data of interval or ratio type, the two populations being
approximately normally distributed and if the standard deviation of any two samples must
be similar then parametric tests should be carried out to verify the validity of the tools; if
it does not meet the conditions then non-parametric tests should be carried out
(Vaughan, 2001:122).
According to the methodology mentioned in Chapter 3 of this study, we may note that the
samples were randomly selected and also the data is not of the interval or ratio type. To
determine the third condition histograms with distribution curves are used and the results
are shown below in the Figures 5.2 to 5.5.
Figure 5.2: Distribution of scores using OA tool
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Figure 5.4: Distribution of scores using HON Code tool
Figure 5.5: Distribution of scores using IQT tool
Figure 5.3: Distribution of scores using DISCERN tool
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From the histogram charts above we may see the distribution is not normal for OA and
HON Code, fairly normal for IQT and DISCERN. On considering the fourth condition where
the standard deviations of the samples are examined, we make use of Kolmogorov-
Smirnov test sown in the Table 5.12.
Table 5.12: One-Sample Kolmogorov-Smirnov Test on Percentages obtained by tools
We may see that the standard deviations of the data are not similar, they vary between
the ranges 14.79 (OA) to 23.74 (DISCERN). Therefore from all the tests we note that the
data satisfies two conditions fully and two conditions partially, a selection of both
parametric and non parametric tests are need to further analyse the validity of the
websites. Kendall’s Coefficient, Spearman’s and Pearson’s Coefficients were used to test
the validity of the tools that were used in this study. From the figure it can be seen the
correlations between the scores obtained by each tools, this helps in examining whether
the tool is valid. If the results were negative then we could have concluded that the
results obtained by using tools which are not valid, cannot be taken for this study.
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Table 5.14: Pearson’s correlations on Percentages obtained by tools
Table 5.13: Kendall’s tau correlations on Percentages obtained by tools
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Table 5.15: Spearman’s rho correlations on Percentages obtained by tools
From the results of the correlation we may see that most part is statistically significant,
resulting in most of the ρ (significance) values at < 0.01. The highest correlating pair was
found to be between HON code tool and OA tool. While considering the correlation
between the information quality tools, the highest score is between DISCERN and HON
Code tool. Also the tools used in the study are valid, this statement would be justified as,
though the tools used in the study measure different quality aspects DISCERN and HON
Code tool measure almost similar qualities of information. But when we consider OA tool,
it measures differently as it covers the entire quality criterion considered by most of the
generic tools and it is also disease specific. Further to this, in order to examine this more
closely the correlation of the scores where represented graphically which would enable us
to have a better understanding of the validity of the tools. This was done using scatter
plots as may be seen in the Figures 5.7 to 5.11 below.
Figure 5.6: Scatter plot of correlation between OA and DISCERN
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Figure 5.10: Scatter plot of correlation between IQT and HON Code
Figure 5.7: Scatter plot of correlation between OA and IQT
Figure 5.8: Scatter plot of correlation between OA and HON Code
Figure 5.9: Scatter plot of correlation between DISCERN and IQT
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Figure 5.11: Scatter plot of correlation between HON Code and DISCERN
From the figures above we may see that correlation factors between two tools of each
combination have been selected and analysed. In most of the scatter plot graph we notice
that the selected tools behave similarly and their scores have been plotted in the same
range of scores except for few exceptions. The correlation combinations consist of
generic tools with each other and the OA tool to the generic tools. Also adding to the
reason for choosing non parametric test was that it would not assume on results on the
normal distribution. Therefore by using both parametric and non parametric tests we are
able to examine each detail acutely.
5.5 Summary
This chapter has tested the feasibility, reliability and validity of the evaluation tools. It was
necessary to check the internal reliability and also consider if it was feasible. From the
tests it was found that the new OA tool was feasible as all the other generic tools and also
the statistical tests which were taken prove that the tool had covered all the different
aspects of information quality. The tool deals specifically with Osteoarthritis information
needs and since from the tests we can see it does not have much short comings, the tool
is performing well. However from these tests we can conclude how important it is include
them while evaluating the websites. Chapter 6 will further analyse and examine closely
the website evaluation results from the study and also detail about the tools used with all
the results, findings and conclusions obtained from all the previous chapters and this
chapter.
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Chapter 6
Discussion
6.1 Introduction
From the previous Chapters 4 and 5, we have seen both the evaluation results and the
tools used in them. However from the findings we have seen in few cases the results have
been in disagreement with few others and also have been contradicting. On analysing the
correlation of the websites, a detailed discussion is found to be necessary. In the Chapter
2 of the study, the literature review we have used more of the framework and followed
structure used in the similar type of study and therefore even in this case, it would be
justified if these results were compared to those results that have been found in previous
studies. Chapter 6 will help in discussion these issues and Chapter 7 will make conclusions
based on the study on the whole from all the analysis, results and discussions made.
6.2 Quality of information in websites
From the results that have been obtained from the Chapters 4 and 5 we can see that the
new OA tool have been very specific about Osteoarthritis and also have made sure to
cover most of all the quality criterion for the evaluation of the websites. We have seen
from the results the score distribution of the websites results when used against each
tool, they have not shown same results even though they are all generic tools, this is
because each generic tool has different quality criterion. For example, HON Code and
DISCERN tool have similar criteria for evaluating the information quality even then they
have produced different results. The OA tool has recorded about twenty four websites
between the range 50%-70% and thirteen websites between the range 70% and above.
These results have been found to be very much similar to those that have been carried
out in the previous studies with similar specification. From these we can assure that the
information found on the sample websites can produce different results depending on the
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tools that have been used on them. This has been seen in previous studies on cancer
information (Hsu, 2006), stroke information (Surman, 2010), multiple sclerosis (Harland,
2004) and food allergy information (Chandrani, 2010). From the current study we can see
that when a website scores highly well when evaluated against one tool and the same
website does not score that high when evaluated with other websites. One such example
would be, in the website WebMD has been scored well with the IQT but it has not scored
that well with the other three tools that were used to evaluate in the study. From these
finding we may say that it would help people in the health care roles and also information
searching person can find about the Osteoarthritis information needs online.
The study would be helpful to the website developers by informing them from its results
that based on one evaluation by a tool might not give them the correct test result, and
when evaluating for a specific disease it would be advisable to use disease specific tools
for optimum results. Each generic tool has a different criterion, for example DISCERN tool
is more concentrated on the website reliability than on the information content. The
same applies to HON Code as well, so will result in such a way that, the websites will score
more when based on questions of reliability than on the questions of the actual disease,
so as a end product, the consumer will not get answer for his needs, but will know that
the information provided on the website is reliable. In the previous study of Surman
(2010), claims that the purpose of the information needs will not be solved if the
consumers did not know from where the information came from, for example, the
credentials of the author who wrote it. Therefore by only knowing from where the
information has been obtained, the user will be able to decide if they can rely on the
information that they have found on the Internet. For instance, for a specific special case
the user finds two different results on two different website for a particular condition, in
such a circumstance, the user would definitely prefer using the information of the author
is from a trustable group, like say a healthcare professional and who has similar high
credentials. While when we take into considerations of previous studies we see that some
of them of Surman (2010), Chandrani (2010), Hsu (2006) all their results show difference
in their scorings, some seemed to score better with information quality, some seemed to
score better with the reliability issue and also with the currency criterion.
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As mentioned earlier in the Chapter 4 of the study, where we found from the results that
there existed few disagreements in the scores of the websites and the justifications to
them are as follows. From the results, we saw that a particular website which scored very
well when used against a tool did not score that well when used to evaluate using another
tool. These led to the fact that the ranking of the website using each tool differed, and
therefore on such a difference with its ranking scheme we cannot be able to tell whether
the website is good and can be recommended to the consumers. The reasons to these
disagreements are that, every tool including both generic and specific disease oriented
tool, they all evaluate the quality of the information in the website based on different
aspects. For example, the DISCERN tools measures the quality of the website based on its
reliability and its information quality but whereas the OA tool, which is a disease specific
tool focuses more on the information needs of the patients and families suffering from
the disease, so it would rate the website based on how well it satisfies the needs of the
consumers respect to this disease. Further to justify these statements we conducted an
more analysis and examine the results and the tools in the Chapter 5 of this study, where
we have made use of the correlations and also performance various test on the feasibility,
validity and reliability of the tools. While doing the correlation we have seen that the
degree of correlation between the tools satisfies most of our questions and answers the
contradiction. For the test result see Figure 5.4 .Even there are cases when the tools are
of different criterion like one based on reliability and other on information quality they
have seemed to produce similar results. According to this theory, we can well justify the
differences that have been produced by the test results.
6.3 Success of OA tool
From the results obtained we may see that the responses to the sample websites against
the OA tool had been fairly well. From the score distribution in Figure 4.5 we may see that
those 24 websites have score between the range 50%-70% and 13 websites have scored
above 70%. So this says that the selected forty websites have been good enough to
address most of the issues that were put forward by this OA tool. The tool was divided
into different sections based on general information, Information on the disease, the
currency, and ease in using the website and also feedback on general basis. From all these
different sections we may see that about 40% to 60% of them have been scored well in
individual areas. But when evaluating websites such as Patients UK, which is a general
website and not a disease oriented website, these kind of websites scored well in sections
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of general information, currency and usability rather than in Information specifically
relating to this disease (Osteoarthritis).These sites seemed to score well on the clinical
information about Osteoarthritis from the results in Figure 4.1 we may see that number of
‘yes’ responses given to them and also to the practical information about the disease. In
general websites the information that was lacking was mostly based on the alternative
measures or options for their treatment and also about the support groups. Many website
did not have a discussion place or a forum where users could communicate to other users
who have been suffering from similar disease.
On an overall basis, we can see that the websites have performed significantly well using
the OA tool. Even though the website have scored well using generic tools, but when we
closely analyse the need for information corresponding to the Osteoarthritis disease
specific needs, we may not be able to use the website cause it has a high score by the
results after evaluating with generic tools. There might not be a need in using the website
although it is rated to be good if it does not answer the need to what the consumer is
searching for. When evaluating website which are oriented to only Osteoarthritis like say
Arthritis UK and Arthritis org these websites have been found to have scored good results
on the OA tool. But when comparing to other general websites which have scored poorly
when evaluated against OA tool. There are also few websites which have information
relating to Osteoarthritis but they do not cover all the information needs relating to the
disease. While we make a comparison with the previous studies that have been carried to
similar disease specific tools, even they have found variance in evaluating websites with
generic tools and when evaluating websites with disease specific tools. In addition to this,
Hsu (2006) found that only 28% of BC sites met more than 50% of the criteria of his
specifically designed tool. Surman (2010) found that 50 % of the PCF (Patients, Carers and
Families) sites have met the information criteria in his study. Even in other studies of
Bouchier (2001) and Harland (2004) we can see results being varying.
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Therefore from all the above discussions we may conclude that the OA tool is very useful
along with the other generic tools, as it not only covers all the information quality
mentioned in the generic tools but it also focuses on the disease Osteoarthritis and
satisfies most of all the possible need of the disease that interests the consumers. From
the results it has been proved that it is feasible, reliable and valid. From the degree of
correlation comparing to the other tools we may see it is very useful. Such a tool for
Osteoarthritis has not been previously available and it has helped in evaluating all the
Osteoarthritis information websites and to found how useful those websites can be for
Osteoarthritis and also have rated the quality of information found in them.
6.4 Feasibility, Reliability and Validity of the evaluation tools
6.4.1 Feasibility of evaluation tools
The time each tool takes to evaluate the website measures the feasibility of the website.
If the tools take longer time to evaluate the websites, then it might not be feasible. In this
study we have seen that, the mean time taken to assess the websites using the tools
ranges between 3m9s (DISCERN tool) to 6m35s (OA tool), these results include the time
taken to review the quality criteria, its measures and processes. The results also shows
the maximum taken to assess the websites ranges between 7m37s (IQT) to 14m21s (OA
tool). The study demands several issues to be considered before while the results being
observed. While creating the tools, the first foremost thing that tells the feasibility of the
tool is that the number of questions that are there in the tool. While HON Code has 15
questions, DISCERN tool has 16 questions, IQ tool has 21 questions and OA tool has 32
questions. Even though the OA tool has most number of questions it did not take much
longer time compared to the other tools. The time spent on website varied when, for
instance few websites had all the information for the questionnaire on the very first page
of the website, whereas in few other websites there were links inside where we has to
search for them in the website which was time consuming. And also further explaining it is
obvious that when website is large with many pages it consumes more time than the ones
which are small. But adding to the fact that the OA tool has the maximum number of
questions and therefore it records the maximum time spent on the website compared to
all the other tools when applied to websites. And also these websites which recorded
maximum time were large websites. We may also take into consideration that while using
the tool for the first time it takes time to evaluate cause of not being familiar with the
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tool, but later while evaluating many website, the tool gets familiarised, but also to be
justified to all the tools, the tools were used in a sequential manner as described in the
methodology in the Table 3.1. We may also see from results in Figure 5.1a to 5.1d that
there is a difference in the time taken by the same tool when applied on the first websites
than to the ones applied later in the study. To be not partial to any tool, the research
made sure that it always visited correct links on the website for every question, even if
the same website had answered similar questions on the websites when applied to a
different tool.
6.4.2 Reliability of evaluation tools
In Chapter 5 we saw the reliability tests conducted on the tools based on the Cronbach’s
alpha test. The results showed a great deal of reliability on all tools and also on the newly
developed OA tool. From the figure below we may see how the Cronbach’s alpha test has
scored the tools that were used in previous studies.
Table 6.1: Results of Cronbach’s Alpha for current and previous studies
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There are difference in the value shown, and this is because each tool is been assessed
based on certain set of reliability factors and it is evident not to expect a higher score
when it comes to tool which are disease specific. In the previous study of Hsu (2006) has
also found value almost similar range to this study. Each of previous study considered
different sample of websites, for example, this study used a sample of 40 websites similar
to Hsu (2006) and Harland (2006), while Surman (2010) used 51 websites and Chandrani
(2010) used 39 websites. This variance in the score is greatly affected by the number of
websites used in them. In fact, Kline (2000, cited in Hsu, 2006) states that a sample size of
at least 100 is necessary in order to return the most useful reliability statistics.
Each tool, now has different versions which are revised, it might be a possibility that even
due the change in these might affect the scores of reliability. For example, in HON Code
where different versions have been released, so this leads to fact that the contents in
them also get changed. In previous studies of Harland (2004) used a version having 9
questions, Surman (2010) used a version having 15 questions, Hsu (2006) used a version
having 17 questions, whereas this study used a version consisting of 12 questions. In
previous studies we have noticed that the each tool have different scoring schemes, but in
this study we have scored all the websites on a single scoring method as followed by
DISCERN tool. The reason to this is similar to the same reason given for not combing the
response of partial with yes, only by scoring all tools will same marking scheme would
help us not to be partial and rank them in a justified manner.
But from all the previous studies we may see that, each studied have followed different
procedures for the evaluation. Some studies assessed websites using the same tool twice
and then compare the scores which would result in better reliability of the tool like in
Harland (2006) where IQT is been used twice. But in studies of Surman (2010) and
Chandrani (2010) the procedures for evaluating where based on how it has been
specifically told by each tool but for their new too, they have maintained a different
scoring system. This study has maintained the same scoring system for all the tools.
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6.4.3 Validity of evaluation tools
From the validation tests performed in Chapter 5 we may see that the degree of
correlation between the tools differed. They scored well in some tests and not in others,
this is due to the fact that each tests have different criteria based on which they evaluated
and score them. From Kendall tau_b tests, none of the tools have gained a minimum of
0.6, OA tool with HON Code have managed to gain a 0.595. Whereas in the case of
Pearson’s test we see that same pair scoring 0.788 and with Spearman’s test 0.775. This
indicates that the tools have good validity as they desire. But in previous studies where
the correlation between generic tools and disease specific tools they have not obtained
such high score, like in the case of Surman (2010), using Pearson’s test his Stroke tool and
HON Code scored only 0.454. Similarly when we correlate two generic tools like say
DISCERN and HON Code which are more similar in terms of the criteria which they
evaluate the website, when they were correlated the results from this study were using
Kendall’s tau_b was 0.476 , by Pearson’s was 0.765 and by Spearman’s was 0.651.
However, we cannot say that these scores are very poor while comparing them with
previous studies we see that in Hsu (2006), where both DISCERN and HON Code was used
to evaluate BC websites, they scored below 0.5.
This study the correlation results fell between the range of 0.595 and 0.788, in studies of
Harland (2006) was between 0.249 and 0.368 and in Surman (2010) was between 0.454
and 0.629. From the previous studies we may see that the new OA tool has been
performing well compared to those that were done earlier for a specific disease. The
reasons for these disagreements in the results could be as same as the ones explained in
the case of reliability results, like issues where the number of websites used in the study
may affect the score. In this study due to time constrains only 40 websites were used.
From the discussions it may be evident that these validity tests do not satisfyingly give the
answer to the question of whether the website is valid.
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But it is necessary to think when we are checking the validity of the tool which is designed
for a particular disease, it would focus more on the content of the website the
information in it, that relates to the disease than the website answering well the
questions based on reliability. For example, the most common question that was not well
answered based on the choice of treatments found than knowing that the information
which is present is from a trustable source. But even with all these shortcomings the OA
tool seemed to be scoring well compared to the other generic tools and therefore it does
not require much revision before the tool has to be used, and also some fields were more
concentrated on the disease than on the subjects covered by the websites.
6.5 Summary
On summarising the discussions above, from the results of this study show the reliability
of the OA tool and how well the OA tool tests the websites which provide Osteoarthritis
information based on its quality. Although the consumers are more concerned with the
information that they need more than the validity, this one fact has been accepted by all
the previous studies in the same field. By having a closer research and examination of the
discussions we may conclude the scope of further research on the study. These
conclusions are well presented in the following chapter along with how well the study has
made justification to the using the evaluation tools for evaluation the quality of
information on the Internet by using both the generic tools and the disease specific tool,
in this case being OA tool based on Osteoarthritis. Even though the correlation results
between the tools don correlate that well, but still they do indicate that these
assessments are necessary for evaluation. A summary on the key findings, its limitations,
scope for further research and also recommendations resulting from the study is
presented in the following chapter.
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Chapter 7
Conclusions and Recommendation
7.1 Introduction
From the previous Chapters of 4, 5 and 6, we have seen that this study has come up with
interesting findings, like finding a Osteoarthritis disease oriented tool called OA tool which
is specific for this disease and helps in finding quality information based on this condition
and also about other generic tools which helps in assessing the information quality of the
websites. On comparing this study with the previous studies we can see that its results
have been consistent with those and also on examining closer we have been able to see
few similar results. This study has met its aims and objectives but there is a need to
analyse and understand the limitations of the study and also about the scope in the study
that would lead to further research in the similar field. The limitations and
recommendations of the study will be discussed in the sections below in this Chapter.
7.2 Key findings: Quality of information on Osteoarthritis on the Internet
From the findings which have been carried out, we may be able to see that the
information online regarding Osteoarthritis is fairly good when assessed by the tools
detailed in the previous Chapters. From all the 40 websites that were used in the study,
some gave high quality information and some gave information of low quality. But it was
also indicated that when it was known from a trustable source it gained a better rank like
from say a health care professional or from a person with high credentials.
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From the results in the previous chapters we have also found that the OA tool has been
feasible to use, as the time it consumes compared to other generic tools has been almost
on the same time line. While designing a new tool , checking the feasibility of it very
important because even if the tool is very good with checking the quality of the
information and if it cannot be used by consumers then it is not serving its purpose thus
feasibility servers a main role in the tool being successful.
From the correlation results in the Chapter 5, we may notice that the degree of
correlation obtained differed from those of the previous studies. The reasons for these
disagreements have been stated and discussed in the Chapter 6 of the study. However, it
may be concluded that the information quality criteria for then would be very useful
when assessing the websites thoroughly. From our results we have seen that the new
tool, OA tool, seemed to correlate well compared to the disease specific tools correlation
scores in the previous studies. As we have already discussed, the reason for some less
correlation scores could be that, assessing website for specific condition is only done to
satisfy the consumer with that specific needs so this need is satisfied than looking out for
information that proves the reliability of the website, which might not be what the user is
looking for. It is also noticed that out of 40 websites, very few websites were completely
oriented to Osteoarthritis and so the rest had some reservations. Also we may see that,
when website has very high quality information and the content of the website is also well
informed, and if the user did not know the author information or the source from where
the information was retrieved, then the user will not be satisfied even after receiving the
information. Another fact is that the targeted audience look for more options that are
mentioned in the OA tool than the ones based on general information by the generic
tools.
7.3 Achievements of aims and objectives
As mentioned earlier in the section 1.3 of the study, detailing on the aim and objectives of
the study, we may see that they have been met and also the limitations that where
encountered in the study are detailed in the further Chapters. The study has successfully
designed a disease oriented tool, OA tool which is focused on Osteoarthritis information
that is available on the Internet, and this tool enables to assess the website evaluate it
and find whether the information mentioned in the website is reliable and useful. This
study has investigated on the quality of information on websites aiming at Osteoarthritis,
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and also the reliability of the tool has been checked and has come out with positive
results. For the tool to be made use for general purpose then the tool might need further
development. By using this tool along with generic tools we have seen that the results
obtained that which websites perform well when evaluated for Osteoarthritis
information. However, we know that the websites have been taken on sample from
search engines and with this information we cannot apply it generally. As generic tools
and new tools were used, a number of tests based on feasibility, reliability and validity
gave answers for a closer examination and generalised results.
7.4 Contributions of this study
From the previous studies based on similar disease specific tool designing and website
evaluating, we may see that this study has not made any conclusions that are not similar
to the ones made by them except for in few cases. For example in most of the previous
studies, when see the marking scores for the tools, most of them have followed score
scheme as already mentioned by each tool. Whereas in this study, the tools have followed
similar marking scheme to maintain a non partial and close examining of their results
when evaluated on the same scale. The tool have been designed using previous disease
specific tool as a framework to this, and this has successfully been able to assess whether
the websites meet the information needs of the people, their families or their carers
experiencing Osteoarthritis.
7.5 Limitations of the study
The limitations in this study were mostly related to the time constrains, as this study had
to be completed in restricted time period. Other than time, fewer limitations have been
listed in Section 7.5.1 and 7.5.2 and they cannot be avoided.
7.5.1 Sample and search strategy
This study used 40 sample websites to assess the quality of information. From previous
discussions we saw that using a larger number of websites would have enabled the study
to come to better conclusion as in many test cases with minimum 100 websites the
results would vary. This would have then resulted in a more comprehensive study stating
the quality of the information based on Osteoarthritis on the websites. But we also know
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that the Internet is vast and dynamic and therefore it is not practically possible to give an
end result. There are possibilities of the websites in the Internet to disappear of the
information on them to change due to the nature of the Internet.
The limitation of the study extends to the fact that not many tools were used in the study
with more ranges in the criteria they evaluated the websites. This would have results in
more examination and analysis of the websites. And also if many websites were going to
be used and all of them being applied to large number of websites would not be
practically be possible in the time limited. However, it is not known how many websites
would have been able to evaluate in the time limit.
The other limitation found in this study is that, the websites that were used where all
English language websites and also most of them were UK based websites. It would have
been a better option to use website from other languages also because Osteoarthritis is a
commonly found disease globally. However, using websites outside UK could be looked
from two perspectives, firstly since the study is based in UK it is understandable that to
use UK websites would be more appropriate, secondly when a consumers searches on the
Internet for an information, he would be more concerned about seeing if their need is
satisfied than considering to which country the website belongs to. But contradicting the
same, we have to also consider situation where the consumer is looking for an
information on support groups or GP information, then it would be appropriate to use a
UK based website.
7.5.2 Review and evaluation limitations
As mentioned in the earlier sections we have seen that time constrain play a very great
part constituting to the limitation of the study even in its review and evaluations. It would
have been much more reliable is the tests applied by each tool on the websites could be
applied multiple times that would give us a much more clearer picture of not only the
information quality but also the reliability of it.
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Similarly, the results would have been varied if the assessments were performed by
multiple researchers. Since the research is performed by one researcher it has its
limitations which are inevitable. And moreover, it would have resulted in a different set of
results of the evaluation was done by a researcher who has medical background. This
study had limitations to resources as well.
When a human researcher is analysing the websites at a certain period of time he gets
familiar with the website that he might assume some answers for other tools, these are
environmental factors and human nature of being biased. Even though lot of care was
taking to minimise them, a few shortcoming cannot be avoided. And as previously seen,
the quality of the information may have inherited subjectively.
The another limitation that was found in this study is that, even when a website has
gained a very good score while evaluated by the tools and still if the consumer looking at
it, does not get the answer to his needed information then there is no purpose in the
website holding a good rank. Therefore there exists a large difficulty in carrying out
research from the point of view of a particular consumer who is searching for the
particular specific information on Osteoarthritis. Thus results of his study cannot be made
transferable for every person’s need.
7.6 Recommendation for further research
From the limitations mentioned in the previous section we may see that they have an
impact on the recommendations for the further research on this study. This study also
suggests some of the similar recommendations that were suggested that were made by
previous studies in the similar field.
This study may be useful in performing assessments of websites based on reliability and of
the tools used in them. As mention in the earlier section, future researches could make
use of more than one researcher to perform the evaluation by applying the tools to the
websites. Also there can be a possibility of using a researcher with health care knowledge
and other researcher without health healthcare knowledge and a comparative study on
the results produced by both of them can be analysed. And also in addition to this, when
the research has medical knowledge, they would be able to judge the clinical information
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on the website than the researcher who is ignorant about this field. Furthermore, as
recommended by many previous studies, the use of the user group may be very
thoughtful during the investigation process. By using this we can be sure of which criteria
tool is being used for the research, and also for creating disease specific tools it would
form a framework. In this case for OA tool, it may be redeveloped using this information.
By involving consumers in the study, they would be very interested in assessing it
themselves and also we will be able to know what the needs that they look for are and
what is of most relevance to them.
7.7 Summary
This study has found results and facts that could be made use of in the future and also has
contributed leaving a good scope for further development of the research in this field. As
this study can be challenging as it is based on analysis and evaluating information on the
Internet, and we know how vast and dynamic the Internet is and also there is huge
possibility for the information found to be out dated. However this study has provided a
framework for the current situation in the given time and also have given benchmarks and
recommendations on what can be improved in this kind of research and what had to done
to make the information online reliable and relevant for the targeted users.
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Harland, J. and Bath, P. (2007). “Assessing the quality of websites providing information on multiple sclerosis: evaluating tools and comparing sites”. Health Informatics Journal, 13(3), pp. 207-221. Harvey, S. and Wylie, I. (2000). “Patient Power”. British Medical Journal. 320(7227). pp. 126. Health on the Net Foundation (2002). “Excerpt of the 8th HON's Survey of Health and Medical Internet Users”. [Online]. http://www.hon.ch/Survey/8th_HON_results.html . [Last assessed 21st August 2011]. Health on the net Foundation (2011) “Health website evaluation tool”, *Online+ Health On the Net Foundation, http://www.hon.ch/HONcode/Patients/HealthEvaluationTool.html [Last Assessed 20th August 2011]. Health.gov.au (2011) “Reduce the risk of osteoarthritis, rheumatoid arthritis and osteoporosis” *Online+, National Service Improvement framework for Osteoarthritis, Rheumatoid Arthritis and Osteoporosis.http://www.health.gov.au/internet/main/publishing.nsf/content/0C3F942CC20D06CFCA2571410075841F/$File/arth1.pdf [Last Assessed 20th August 2011]. Healthlit.org (2011) “Finding High Quality Health Information Online” *Online+, http://www.healthlit.org/pdfs/profile_finding_high_quality.pdf [Last Assessed 20th August 2011]. Hesse BW. et al. (2005) “Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey.” Archievs of Internal Medicine. 165(22). pp. 12-26. Hsu, W. (2006). “An evaluation of Breast Cancer websites: a study investigating the quality of health information and the reliability and validity of evaluation tools”, MSc, University of Sheffield.
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Kerr, K. A. et al. (2008). “The strategic management of data quality in health care”. Health Informatics Journal .14 (4). 000–000. Kevin (2011) “Patients Use Social Networks for Healthcare Questions” [Online] MTM Blog, http://www.mtmweb.biz/blog/2011/patients-use-social-networks-for-healthcare-questions/ [Last Assessed 20th August 2011]. Khazaal Y.et al. (2009) “Brief DISCERN, six questions for the evaluation of evidence-based content of health-related websites”. Patient Education and Counseling. 77(1). pp. 33-7. Khazaal, Y. et al. (2008b). “Quality of web-based information on social phobia: a cross sectional study”. Depression and Anxiety, 25, pp. 461-465. Kiel, J.M. (2005). “The digital divide: Internet and e-mail use by the elderly”. Informatics for Health and Social Care. 30(1). pp. 19-23. Lambert, V. (2010) “Finding health information on the internet” *Online+, The Telegraph .http://www.telegraph.co.uk/health/wellbeing/8066878/Finding-health-information-on-the-internet.html [Last Assessed 20th August 2011]. Lawrence, S. and Giles, C. L. (1998). “Searching the world wide web”. Science, 280, pp. 9-100. Lewiecki, E.M. et al. (2006). “Assessment of osteoporosis-website quality”. Osteoporosis International. 17(5), pp. 741-52. Li, L. et al. (2001). “suffering for back pain patients the nature and quality of back pain information on the internet”. Spine, 26(5), pp. 545-557. Lodewijk, B. (2007). “The Journal of information Technology in Healthcare”. Medical and Care Compunetics: The Future of Pateint-Related ICT. [Online] Academia.edu, http://independent.academia.edu/LodewijkBos/Papers/391894/Medical_and_Care_Compunetics_The_Future_of_Patient-Related_ICT [Last Assessed 20th August 2011]. Lorence, D. and Abraham, J. (2008). “A study of undue pain and surfing: using hierarchical criteria to assess website quality.” Health Informatics Journal. 14(3), pp. 155-73. Lozada, C. J. et al. (2011) “Osteoarthritis”. Medscape Reference. [Online], http://emedicine.medscape.com/article/330487-overview [Last Assessed 20th August 2011]. MacDonald, J. (2008). “Healthcare managers’ decision making: findings of a small scale exploratory study”. Health Informatics Journal .14 (4); pp. 000–000. Mathur, S. et al. (2005). “Surfing for scoliosis: the quality of information available on the Internet.” Spine (Phila Pa 1976. 30923). pp. 2695-700. Mayo Clinic.com (2009) “Doctor-patient communication: How to connect with your doctor online” *Online+, Mayo Foundation for Medical Education and Research (MFMER). http://edition.cnn.com/HEALTH/library/doctor-patient-communication/MY00512.html [Last Assessed 20th August 2011].
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Mayor, S. (2008) “More than half of drugs sold online are fake or substandard”. British Medical Journal. 337. pp. a618. Medic 8 (2011). “Caring for an arthritis sufferer” [Online], http://www.medic8.com/healthguide/arthritis/caring-for-an-arthritis-sufferer.html [Last Assessed 20th August 2011]. Medical Library Association (2011) "A user's guide to finding and evaluating health information on the web". [online] Medical Library Association. http://www.mlanet.org/resources/userguide.html [Last Assessed 20th August 2011]. Meric et al. (2001). “Breast Cancer on the world wide web: cross sectional survey of quality of information and popularity of websites”. British Medical Journal. 324(7337), pp. 577-581. Millward, P. (2003). “The "grey digital divide": Perception, exclusion and barrier of access to the Internet for Older People”. [Online]. http://www.itu.int/wsis/docs/background/themes/digital_divide/grey_digital_divide.pdf [Last Assessed 20th August 2011]. Morris, D. E. et al. (2000). “Cataloging Staff Costs Revisited”.Library Resources & Technical Services, 44(2), pp. 70-83. NHS-National Institute for Health and Clinical Excellence (2009) “ Medicines adherence Involving patients in decisions about prescribed medicines and supporting adherence” [Online], http://www.nice.org.uk/nicemedia/live/11766/43042/43042.pdf [Last assessed 21st August 2011]. NHS-Northamptonshire Heartlands Primary Care Trust (2005). Public Health Annual Report.[Online],http://www.northamptonshire.gov.uk/en/councilservices/cyp/cypp/Documents/PDF%20Documents/PublicHealthAnnualReport200405NorthamptonshireHeartlandsPCT%5B1%5D.pdf [Last assessed 21st August 2011]. Nuffield council of bio ethics (2011) Online health information- Clinical information. [Online], http://www.nuffieldbioethics.org/sites/default/files/files/Personalised%20healthcare%20-%20Chapter%205%20Online%20health%20information.pdf [Last assessed 21st August 2011]. Office for national Statistics. (2009). Internet Access: Households and Individuals 2009. [Online]. Newport: Office of National Statistics. http://www.statistics.gov.uk/pdfdor/iahi0809.pdf. [Last assessed 21st August 2011]. Pal, B. (1999). “Email contact between doctor and patient” British Medical Journal. 318. 1428. Pandolfini, C, et al. (2000). “Parents on the Web: risks for quality management of cough in children”. Pediatrics,105(1), e1. Partick, K. et al. (1999). “Policy issues relevant to evaluation of interactive health communication applications”. Am J Prev Med (Science Panel on Interactive Communication and Health.). 16: pp. 35–42.
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Paterson, G. I. et al. (2008). “Topic maps for exploring nosological, lexical, semantic and HL7 structures for clinical data”. Health Informatics Journal .14 (4). 000–000. Patient.co.uk (2011) Osteoarthritis [Online], http://www.patient.co.uk/health/Osteoarthritis.htm [Last assessed 21st August 2011]. Perez-lopez, F.R (2006) “An evaluation of the contents and quality of menopause information on the World Wide Web.” Maturitas. 22(12). pp. 669-675. Potts, HWW and Wyatt, JC (2002). “Survey of doctors' experience of patients using the internet”. Journal of Medical Internet Research. 4(1): e5 Potts, HWW and Wyatt, JC. (2002). “Survey of doctors' experience of patients using the internet”. Journal of Medical Internet Research. 4(1). e5. Primary Care Today. (2011). Osteoarthritis the cause of most enquiries to Arthritis Care's helpline.[Online].http://www.primarycaretoday.co.uk/?pid=4216&lsid=4216&edname=29560.htm&ped=29560 [Last Assessed 20th August 2011]. Purcell, G. P.et.al. (2002) “The quality of health information on the internet-As for any other medium it varies widely; regulation is not the answer”. British Medical Journal. 324(7337). pp. 557 Radonda (2010). Advantages and Disadvantages of Internet health care. [Online]. Essay for students. http://essaysforstudent.com/Business/Advantages-Disadvantages-Internet-Health-Care/40873.html [Last Assessed 20th August 2011]. Rakowski, W. et al.( 1990). “Information-seeking about health in a community sample of adults: correlates and associations with other health-related practices”. Health Education. 17. pp. 379–39. Rankin, L. (2011). “When docs get annoyed by overwhelming patients”. Psychology today journal [Online], http://www.psychologytoday.com/blog/owning-pink/201107/when-docs-get-annoyed-empowered-patients [Last Accessed 19 July 2011] Rippen, H. and Risk, A. (2000). “e-Health ethics draft code”. J Med Internet Res .2. e2 Rozmovits, L. and Ziebland, S. (2004). “Waht do patients with prostate or breast cancer want from an internet site A qualitative study of information need”. Patient Education and Councelling, 53, pp. 57-64. Salzburg Global Seminar (2010) “The Greatest Untapped Resource in Healthcare? Informing and Involving Patients in Decisions about Their Medical Care” [online] Austria, http://www.salzburgglobal.org/current/Sessions.cfm?IDSPECIAL_EVENT=2754 [Last Accessed 19 July 2011] Sandvik, H. (1999). “Health Information and interaction on the internet: A Survey of Female Urinary Incontinence”. British Medical Journal, 319(7201), pp. 29-32. Santana, S. et al. (2011). “Informed citizen and empowered citizen in health: results from an European survey”. BioMed Central Ltd. 12, pp. 20.
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Sarasohn-Kahn, J. (2011) Patients want online communication with doctors, and more clinicians are listening [Online] Health Populi, http://healthpopuli.com/2011/07/26/patients-want-online-communication-with-doctors-and-more-clinicians-are-listening/ [Last Accessed 19 July 2011]
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Tamhankar, A.P. et al. (2009) “Use of the internet by patients undergoing elective hernia repair or cholecystectomy Annals of the Royal College of Surgeons of England”. 91. pp. 460–3. Torrey T (2010) Use Social Networking to Find Healthcare Information [Online] About.com Patient Empowerment. http://patients.about.com/od/socialnetworking/a/socialnetwork.htm [Last Accessed 19 July 2011] Vanghan, L. (2001). Statistical Methods for the information Professional: a practical, painless approach to understanding, using and interpreting statistics. Medford, New Jersy: Information Today. Vidrighin, C. and Potolea, R. (2008). “ProICET: a cost-sensitive system for prostate cancer data.” Health Informatics Journal . 14 (4). pp. 000–000. WebMD (2011). Arthritis health centre. [Online]. Boots. http://www.webmd.boots.com/arthritis/default.htm. [Last Assessed 20th August 2011]. Weinman J. et al. (2009) “How accurate is patients' anatomical knowledge: a cross-sectional, questionnaire study of six patient groups and a general public sample”. BioMed Central Ltd. 10. pp. 43 Wilson, P. (2002). “How to find the good and avoid the bad or ugly: A short guide to tools for rating quality of health information on the internet”. British Medical Journal .324: pp. 598–602
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Appendices Appendix 1: List of websites used Websi
tes Nos.
Website Names Website Links
W1 Arthrolink http://www.arthrolink.com/eng/home
W2 OAhealthinfo http://oahealthinfo.com/
W3 Arthritics org http://www.arthritis.org/
W4
Allwebhunt
http://allwebhunt.com/dir-wiki.cfm/Top/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Arthritis/Osteoarthr
itis
W5 Orthovisc http://www.orthovisc.com/patient-
resources/arthritis-websites
W6 Ihaveosteoarthritis http://www.ihaveosteoarthritis.com/about-
us.php
W7 Health.com http://www.health.com/health/condition-
article/0,,20327342,00.html
W8 Patient UK http://www.patient.co.uk/
W9 Durolane http://www.durolane.com/index/1/About-
osteoarthritis.html?gclid=CIiVrPP556kCFcsb4QodwSIlWg
W10 Nhs choices http://www.nhs.uk/Pages/HomePage.aspx
W11 ArthritisResearch UK http://www.arthritisresearchuk.org/arthritis_information/arthritis_types__symptoms/osteoart
hritis.aspx
W12 MedInfo http://www.medinfo.co.uk/conditions/osteoart
hritis.html
W13 NetDoctor http://www.netdoctor.co.uk/diseases/facts/ost
eoarthritis.htm
W14 Arthritis Care http://www.arthritiscare.org.uk/AboutArthritis/
Conditions/Osteoarthritis
W15 MapofMedicine
http://healthguides.mapofmedicine.com/choices/map/osteoarthritis1.html?gclid=CJn-
xK7856kCFcVO4QodGTFMVw
W16 Bupa http://www.bupa.co.uk/individuals/health-
information/directory/o/osteoarthritis
W17 eMedicineHealth http://www.emedicinehealth.com/osteoarthriti
s/article_em.htm
W18 BBC http://www.bbc.co.uk/health/physical_health/conditions/in_depth/arthritis/aboutarthritis_ost
eoarthritis.shtml
W19 Medic8 http://www.medic8.com/healthguide/articles/o
steoarthritis.html
W20 Osteoarthritis UK http://www.osteoarthritis.co.uk/
W21 CSP(Charity Society of
Physiotherapy)Org http://www.csp.org.uk/your-
health/conditions/osteoarthritis
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W22 WebMD http://www.webmd.boots.com/osteoarthritis/g
uide/osteoarthritis-basics
W23 Arthritis.com http://www.arthritis.com/osteoarthritis_sympt
oms.aspx
W24 Benefits Now http://www.benefitsnowshop.co.uk/content/de
fault.asp?bid=JZDY-1501086&contentId=17
W25 Mayo Clinic http://www.mayoclinic.com/health/osteoarthri
tis/DS00019
W26 Family Doctor http://familydoctor.org/online/famdocen/hom
e/common/bone/616.html
W27 Wrong Diagnosis http://www.wrongdiagnosis.com/o/osteoarthri
tis/intro.htm
W28 Good To Know http://www.goodtoknow.co.uk/health/127601/
Osteoarthritis--arthritis-
W29 Surgery Door http://www.surgerydoor.co.uk/advice/diseases
/osteoarthritis-related-disorders/
W30 Niams http://www.niams.nih.gov/health_info/Osteoar
thritis/default.asp
W31 Private Health http://privatehealth.co.uk/search/?q=osteoarth
ritis
W32 Up to Date http://www.uptodate.com/contents/patient-
information-osteoarthritis-treatment
W33 Arthritis Today http://www.arthritistoday.org/conditions/osteo
arthritis/index.php
W34 CSK(Clinical Knowledge
Summaries)
http://www.cks.nhs.uk/osteoarthritis/management/quick_answers/scenario_osteoarthritis_a
ny_joint#-332216
W35 Disaboom http://www.disaboom.com/osteoarthritis-
information
W36 ArthritisU http://www.arthritisu.com/english/practools/p
atientInfo/OA.asp
W37 Your Joint Pain Solutions http://www.your-joint-pain-
solutions.com/osteoarthritis.html
W38 Virgin media http://health.virginmedia.com/nhstopic/Osteoa
rthritis.htm
W39 Third Age http://www.thirdage.com/hc/c/what-is-
osteoarthritis
W40 Drugs.com http://www.drugs.com/osteoarthritis.html
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Appendix 2: Evaluation tools
Appendix 2.1: OA tool
General Details
1. Is the website address mentioned?
2. Is the sponsor information of the website mentioned?
Information for Parents and carers
3. Is the website focuses only on OA?
4. Is the information on the website in accessible / downloadable format?
5. Does the website contain patients or carers stories/forums/community?
6. Does website have information for emergency issues?
7. Does website give information on any diet that should be followed for OA patients?
8. Does the website contain information on daily routines to be followed (walking aid)?
9. Does website give advice on physiotherapy or weight loss programs?
10. Does website advise on shoe insoles?
11. Are the symptoms for OA given?
12. Are any tests recommended for OA (blood/x-ray)?
13. Are there any surgery advised on the website?
14. Does the website give information on Pain killers?
15. Does the website give information on OA relief drugs like glucosamine or NSID tablets
or creams advised?
16. Is there any information about health care professionals?
17. Is there information about any support groups mentioned in the website?
18. Is there any information about research activities on OA?
Currency
19. Is the date when the website was accessed mentioned?
20. Is there information about the last updated date?
21. How often are the website information updated?
Using the website
22. Is the website user-friendly / easy to read and understand?
23. Does external/internal link work?
24. Is there a search option mentioned in the website?
25. Is the author contact information given in the website?
26. Is there a feedback option in the website?
27. Are there options for disabled users (larger text)?
28. Does the website contain personal information and maintain privacy and
confidentiality?
Conclusion
29. Do you think the site is useful?
30. Do you think the website is reliable?
31. Will you recommend this website to others?
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Appendix 2.2: DISCERN tool
I s the publ icat ion rel iable?
1. Are the aims clear?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for a clear indication at the beginning of the publication of:
what it is about
what it is meant to cover (and what topics are meant to be excluded)
who might find it useful
If the answer to Question 1 is 'No', go directly to Question 3
2. Does it achieve its aims?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Consider whether the publication provides the information it aimed to as
outlined in Question 1
3. Is it relevant?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Consider whether:
the publication addresses the questions that readers might ask.
recommendations and suggestions concerning treatment choices are realistic or
appropriate.
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4. Is it clear what sources of information were used to compile the
publication (other than the author or producer)?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT
Check whether the main claims or statements made about treatment choices are
accompanied by a reference to the sources used as evidence, e.g. a research study
or expert opinion.
Look for a means of checking the sources used such as a bibliography/reference list
or the addresses of the experts or organisations quoted, or external links to the
online sources.
Rating note: In order to score a full '5' the publication should fulfil both hints. Lists
ofadditional sources of support and information (Question 7) are not necessarily
sources of evidence for the current publication.
5. Is it clear when the information used or reported in the publication
was produced?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for:
dates of the main sources of information used to compile the publication
date of any revisions of the publication (but not dates of reprinting in the case of
print publications)
date of publication (copyright date).
Rating note: The hints are placed in order of importance - in order to score a full '5'
the dates relating to the first hint should be found.
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6. Is it balanced and unbiased?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for:
a clear indication of whether the publication is written from a personal or objective
point of view
evidence that a range of sources of information was used to compile the
publication, e.g. more than one research study or expert
evidence of an external assessment of the publication.
Be wary if:
the publication focuses on the advantages or disadvantages of one particular
treatment choice without reference to other possible choices
the publication relies primarily on evidence from single cases (which may not be
typical of people with this condition or of responses to a particular treatment)
the information is presented in a sensational, emotive or alarmist way.
7. Does it provide details of additional sources of support and
information?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINTLook for suggestions for further reading or for details of other organisations
providing advice and information about the condition and treatment choices.
8. Does it refer to areas of uncertainty?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT
Look for discussion of the gaps in knowledge or differences in expert opinion
concerning treatment choices.
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Be wary if the publication implies that a treatment choice affects everyone in the
same way, e.g. 100% success rate with a particular treatment.
SECTION 2
How good is the qual i ty of information on treatment choices?
N.B. The questions apply to the treatment (or treatments) described in the
publication.Self-care is considered a form of treatment throughout this section.
9. Does it describe how each treatment works?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for a description of how a treatment acts on the body to achieve its
effect.
10.Does it describe the benefits of each treatment?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Benefits can include controlling or getting rid of symptoms, preventing
recurrence of the condition and eliminating the condition, both short-term and
long-term.
11. Does it describe the risks of each treatment?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Risks can include side-effects, complications and adverse reactions to
treatment, both short-term and long-term.
12. Does it describe what would happen if no treatment is used?
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RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for a description of the risks and benefits of postponing treatment, of
watchful waiting (i.e. monitoring how the condition progresses without treatment)
or of permanently forgoing treatment.
13. Does it describe how the treatment choices affect overall quality of
life?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for:
description of the effects of the treatment choices on day-to-day activity
description of the effects of the treatment choices on relationships with family,
friends and carers.
14. Is it clear that there may be more than one possible treatment
choice?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT: Look for:
a description of who is most likely to benefit from each treatment choice
mentioned, and under what circumstances
suggestions of alternatives to consider or investigate further (including choices not
fully described in the publication) before deciding whether to select or reject a
particular treatment choice.
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15. Does it provide support for shared decision-making?
RA T I N G T H I S Q U E S T I O N
No
Partially
Yes
1 2 3 4 5
HINT Look for suggestions of things to discuss with family, friends, doctors or other
health professionals concerning treatment choices.
SECTION 3. Overal l Rat ing of the Publ icat ion
16. Based on the answers to all of the above questions, rate the overall
quality of the publication as a source of information about treatment
choices
RA T I N G T H I S Q U E S T I O N
Low
Moderate
High
Serious or extensive shortcomings
Potentially important but not serious shortcomings
Minimal shortcomings
1 2 3 4 5
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Appendix 2.3: HON Code tool
Quality of the website content production
1. Authors' medical/health qualifications in health (i.e. MD, editorial staff, patient, etc) are mentioned
Yes Yes for only few pages No qualifications are
mentioned No authors are mentioned 2. The date the page was last modified is provided
Yes, the date the page was created/updated is provided on each page of the website containing
health/medical contents
Yes, for all the pages on the website
Yes, only for a few pages on the website
No page has the date last modified
I'm not sure 3. Are the sources of information available clearly identified?
Yes, valid HTML links to the source information are provided
Yes, a bibliographic reference to the source of information is given
Yes, but the contents on the website are originally written by the editor
No, no reference to the source of information is made
Don't know 4. The website provides information on treatments, medications, diets
Yes No 5. Are controversial issues supported by scientific knowledge?
Yes No Don't know There are no controversial issues
6. The sponsors and / or funders do not influence the editorial contents
Yes No Don't know
7. All advertisements, banners and logos are clearly identified with words like [advertisement], [Google ads]
Yes No Don't know Ethics
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8. Do you think the website contents adhere to the site's mission?
Yes No 9. Do you think the website contents suit the targeted audience?
Yes No 10. The website clearly indicates how my personal data is treated (email address, name, or other personal information)
(see the privacy part)
Yes No 11. A valid email address for the webmaster or a link to a valid contact form is available
Yes No
12. Based on a general conclusion from the questions above, how reliable do you think this website is?
Very reliable Reliable Unreliable
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Appendix 2.4: IQT tool
1. Is the author identified in the article?
2. When the author refers to another source, are appropriate references provided?
3. If the author is not referring to a source, does he/she clearly state that it is only
his/her opinion?
4. Are the site author's credentials listed?
5. Does the site author's credentials relate to the knowledge of the field that is
required for the site’s subject discussions?
6. Are the author's experiences relevant to the topic? Question was retained as-is.
7. Is a means provided to contact the author directly? Question was retained as-is.
8. Can you determine who has paid for or sponsored this website?
9. Is any financial conflict or bias explained? 10. Does the site state that
contributors or sponsors have no control over content?
11. Is there a means to determine how current the information in the website is, for
example - date of last update or posted date?
12. Is the information current?
13. Is the information still relevant?
14. From your own knowledge and experience, does this site give good medical
information?
15. Is the medical information presented in a balanced and neutral form?
16. Are the linked sites current?
17. Do the linked sites give good medical information?
18. If you are allowed to input information or submit queries, is a statement
provided that explains whether or not this information is confidential and secure?
19. Is the site easily navigable and presented in an organized manner?
20. Is a search engine provided?
21. Does the search engine assist you in using the site?
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Appendix 3: Scoring method
To calculate the percentage score of the websites to determine it to a 100%, the
following procedure was followed:
Scores assigned to the responses:
Yes = 5;
Present in some pages = 4;
Intermediate = 3;
Unclear = 2;
Partially present = 1;
No = 0;
Calculation of scores:
Total score = *(no of ‘yes’ responses)*5 + (no of ‘present in some pages’
responses)*4 + (no of ‘intermediate’ responses)*3 + (no of ‘unclear’ responses)*2 +
(no of ‘partially present’ responses)*1 + (no of ‘no’ responses)* 0+
For OA percentage:
No of questions = 32; Maximum Score = (32*5) = 160;
Percentage = (Total Score*100)/160
For IQT:
No of questions = 21; Maximum Score = (21*5) = 105;
Percentage = (Total Score*100)/105
For HON Code:
No of questions = 12; Maximum Score = (12*5) = 60;
Percentage = (Total Score*100)/60
For DISCERN:
No of questions = 16; Maximum Score = (16*5) = 180;
Percentage = (Total Score*100)/180
For example:
Total score = 115 for OA
Then, percentage = (115*100)/160;
= 71.875 %
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Appendix 4: Frequency distribution of responses
Appendix 4.1: OA tool
OAQ4
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Yes 39 97.5 97.5 100.0
Total 40 100.0 100.0
OAQ1
Frequency Percent Valid Percent
Cumulative
Percent
Valid Present in some pages 1 2.5 2.5 2.5
Yes 39 97.5 97.5 100.0
Total 40 100.0 100.0
OAQ2
Frequency Percent Valid Percent
Cumulative
Percent
Valid Intermediate 3 7.5 7.5 7.5
Yes 37 92.5 92.5 100.0
Total 40 100.0 100.0
OAQ3
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 21 52.5 52.5 52.5
Partially present 1 2.5 2.5 55.0
Unclear 1 2.5 2.5 57.5
Intermediate 6 15.0 15.0 72.5
Present in some pages 1 2.5 2.5 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
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OAQ5
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 22 55.0 55.0 55.0
Unclear 2 5.0 5.0 60.0
Intermediate 2 5.0 5.0 65.0
Present in some pages 1 2.5 2.5 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
OAQ6
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 22 55.0 55.0 55.0
Partially present 3 7.5 7.5 62.5
Unclear 5 12.5 12.5 75.0
Intermediate 4 10.0 10.0 85.0
Present in some pages 1 2.5 2.5 87.5
Yes 5 12.5 12.5 100.0
Total 40 100.0 100.0
OAQ7
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 6 15.0 15.0 15.0
Partially present 2 5.0 5.0 20.0
Unclear 4 10.0 10.0 30.0
Intermediate 3 7.5 7.5 37.5
Present in some pages 4 10.0 10.0 47.5
Yes 21 52.5 52.5 100.0
Total 40 100.0 100.0
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oaQ8
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 2 5.0 5.0 5.0
Unclear 2 5.0 5.0 10.0
Intermediate 4 10.0 10.0 20.0
Present in some pages 7 17.5 17.5 37.5
Yes 25 62.5 62.5 100.0
Total 40 100.0 100.0
OAQ9
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 4 10.0 10.0 10.0
Unclear 2 5.0 5.0 15.0
Intermediate 1 2.5 2.5 17.5
Present in some pages 6 15.0 15.0 32.5
Yes 27 67.5 67.5 100.0
Total 40 100.0 100.0
OAQ10
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 8 20.0 20.0 20.0
Partially present 3 7.5 7.5 27.5
Intermediate 5 12.5 12.5 40.0
Present in some pages 4 10.0 10.0 50.0
Yes 20 50.0 50.0 100.0
Total 40 100.0 100.0
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OAQ13
Frequency Percent
Valid
Percent
Cumulative
Percent
Valid No 6 15.0 15.0 15.0
Unclear 1 2.5 2.5 17.5
Intermediate 2 5.0 5.0 22.5
Present in some pages 4 10.0 10.0 32.5
Yes 27 67.5 67.5 100.0
Total 40 100.0 100.0
OAQ14
Frequency Percent
Valid
Percent
Cumulative
Percent
Valid No 16 40.0 40.0 40.0
Intermediate 3 7.5 7.5 47.5
Present in some pages 4 10.0 10.0 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
OAQ11
Frequency Percent Valid Percent
Cumulative
Percent
Valid Intermediate 6 15.0 15.0 15.0
Present in some pages 2 5.0 5.0 20.0
Yes 32 80.0 80.0 100.0
Total 40 100.0 100.0
OAQ12
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 2 5.0 5.0 5.0
Unclear 3 7.5 7.5 12.5
Intermediate 2 5.0 5.0 17.5
Present in some pages 3 7.5 7.5 25.0
Yes 30 75.0 75.0 100.0
Total 40 100.0 100.0
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OAQ16
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 12 30.0 30.0 30.0
Partially present 1 2.5 2.5 32.5
Unclear 1 2.5 2.5 35.0
Intermediate 7 17.5 17.5 52.5
Present in some pages 4 10.0 10.0 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
OAQ17
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 7 17.5 17.5 17.5
Partially present 1 2.5 2.5 20.0
Intermediate 6 15.0 15.0 35.0
Present in some pages 4 10.0 10.0 45.0
Yes 22 55.0 55.0 100.0
Total 40 100.0 100.0
OAQ15
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 11 27.5 27.5 27.5
Partially present 2 5.0 5.0 32.5
Unclear 2 5.0 5.0 37.5
Intermediate 4 10.0 10.0 47.5
Present in some pages 4 10.0 10.0 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
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OAQ18
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 7 17.5 17.5 17.5
Unclear 1 2.5 2.5 20.0
Intermediate 3 7.5 7.5 27.5
Present in some pages 4 10.0 10.0 37.5
Yes 25 62.5 62.5 100.0
Total 40 100.0 100.0
OAQ19
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 6 15.0 15.0 15.0
Partially present 1 2.5 2.5 17.5
Unclear 1 2.5 2.5 20.0
Intermediate 3 7.5 7.5 27.5
Present in some pages 5 12.5 12.5 40.0
Yes 24 60.0 60.0 100.0
Total 40 100.0 100.0
OAQ20
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 16 40.0 40.0 40.0
Partially present 1 2.5 2.5 42.5
Intermediate 4 10.0 10.0 52.5
Present in some pages 3 7.5 7.5 60.0
Yes 16 40.0 40.0 100.0
Total 40 100.0 100.0
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OAQ21
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 16 40.0 40.0 40.0
Partially present 1 2.5 2.5 42.5
Unclear 1 2.5 2.5 45.0
Intermediate 5 12.5 12.5 57.5
Present in some pages 2 5.0 5.0 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
OAQ22
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 16 40.0 40.0 40.0
Partially present 1 2.5 2.5 42.5
Intermediate 5 12.5 12.5 55.0
Present in some pages 2 5.0 5.0 60.0
Yes 16 40.0 40.0 100.0
Total 40 100.0 100.0
OAQ23
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 8 20.0 20.0 20.0
Partially present 1 2.5 2.5 22.5
Unclear 1 2.5 2.5 25.0
Intermediate 6 15.0 15.0 40.0
Present in some pages 6 15.0 15.0 55.0
Yes 18 45.0 45.0 100.0
Total 40 100.0 100.0
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OAQ24
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 7 17.5 17.5 17.5
Unclear 1 2.5 2.5 20.0
Intermediate 3 7.5 7.5 27.5
Present in some pages 4 10.0 10.0 37.5
Yes 25 62.5 62.5 100.0
Total 40 100.0 100.0
OAQ25
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 7 17.5 17.5 17.5
Unclear 1 2.5 2.5 20.0
Intermediate 4 10.0 10.0 30.0
Present in some pages 1 2.5 2.5 32.5
Yes 27 67.5 67.5 100.0
Total 40 100.0 100.0
OAQ26
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 11 27.5 27.5 27.5
Partially present 1 2.5 2.5 30.0
Intermediate 2 5.0 5.0 35.0
Present in some pages 2 5.0 5.0 40.0
Yes 24 60.0 60.0 100.0
Total 40 100.0 100.0
OAQ27
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 24 60.0 60.0 60.0
Partially present 1 2.5 2.5 62.5
Intermediate 3 7.5 7.5 70.0
Present in some pages 2 5.0 5.0 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
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OAQ28
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 18 45.0 45.0 45.0
Unclear 2 5.0 5.0 50.0
Intermediate 2 5.0 5.0 55.0
Present in some pages 3 7.5 7.5 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
OAQ29
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 15 37.5 37.5 37.5
Partially present 7 17.5 17.5 55.0
Unclear 4 10.0 10.0 65.0
Intermediate 4 10.0 10.0 75.0
Present in some pages 5 12.5 12.5 87.5
Yes 5 12.5 12.5 100.0
Total 40 100.0 100.0
OAQ30
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Partially present 1 2.5 2.5 5.0
Unclear 1 2.5 2.5 7.5
Intermediate 9 22.5 22.5 30.0
Present in some pages 15 37.5 37.5 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
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OAQ31
Frequency Percent Valid Percent
Cumulative
Percent
Valid Partially present 1 2.5 2.5 2.5
Unclear 1 2.5 2.5 5.0
Intermediate 8 20.0 20.0 25.0
Present in some pages 17 42.5 42.5 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
OAQ32
Frequency Percent Valid Percent
Cumulative
Percent
Valid Partially present 1 2.5 2.5 2.5
Unclear 3 7.5 7.5 10.0
Intermediate 6 15.0 15.0 25.0
Present in some pages 18 45.0 45.0 70.0
Yes 12 30.0 30.0 100.0
Total 40 100.0 100.0
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Appendix 4.2: DISCERN tool
DiscQ1
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Unclear 1 2.5 2.5 5.0
Intermediate 8 20.0 20.0 25.0
Present in some pages 15 37.5 37.5 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
DiscQ2
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Unclear 1 2.5 2.5 5.0
Intermediate 11 27.5 27.5 32.5
Present in some pages 14 35.0 35.0 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
DiscQ3
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 2 5.0 5.0 5.0
Unclear 1 2.5 2.5 7.5
Intermediate 4 10.0 10.0 17.5
Present in some pages 18 45.0 45.0 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
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DiscQ4
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 7 17.5 17.5 17.5
Unclear 2 5.0 5.0 22.5
Intermediate 8 20.0 20.0 42.5
Present in some pages 10 25.0 25.0 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
DiscQ5
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 25 62.5 62.5 62.5
Unclear 1 2.5 2.5 65.0
Intermediate 3 7.5 7.5 72.5
Present in some pages 2 5.0 5.0 77.5
Yes 9 22.5 22.5 100.0
Total 40 100.0 100.0
DiscQ6
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 11 27.5 27.5 27.5
Unclear 1 2.5 2.5 30.0
Intermediate 12 30.0 30.0 60.0
Present in some pages 8 20.0 20.0 80.0
Yes 8 20.0 20.0 100.0
Total 40 100.0 100.0
DiscQ7
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 9 22.5 22.5 22.5
Unclear 1 2.5 2.5 25.0
Intermediate 4 10.0 10.0 35.0
Present in some pages 10 25.0 25.0 60.0
Yes 16 40.0 40.0 100.0
Total 40 100.0 100.0
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DiscQ8
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 28 70.0 70.0 70.0
Unclear 4 10.0 10.0 80.0
Intermediate 7 17.5 17.5 97.5
Present in some pages 1 2.5 2.5 100.0
Total 40 100.0 100.0
DiscQ9
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 4 10.0 10.0 10.0
Intermediate 3 7.5 7.5 17.5
Present in some pages 7 17.5 17.5 35.0
Yes 26 65.0 65.0 100.0
Total 40 100.0 100.0
DiscQ10
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 6 15.0 15.0 15.0
Intermediate 4 10.0 10.0 25.0
Present in some pages 5 12.5 12.5 37.5
Yes 25 62.5 62.5 100.0
Total 40 100.0 100.0
DiscQ11
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 20 50.0 50.0 50.0
Unclear 1 2.5 2.5 52.5
Intermediate 6 15.0 15.0 67.5
Present in some pages 1 2.5 2.5 70.0
Yes 12 30.0 30.0 100.0
Total 40 100.0 100.0
DiscQ12
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Frequency Percent Valid Percent
Cumulative
Percent
Valid
No 33 82.5 82.5 82.5
Intermediate 5 12.5 12.5 95.0
Yes 2 5.0 5.0 100.0
Total 40 100.0 100.0
DiscQ13
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 10 25.0 25.0 25.0
Unclear 2 5.0 5.0 30.0
Intermediate 4 10.0 10.0 40.0
Present in some pages 10 25.0 25.0 65.0
Yes 14 35.0 35.0 100.0
Total 40 100.0 100.0
DiscQ14
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 6 15.0 15.0 15.0
Intermediate 6 15.0 15.0 30.0
Present in some pages 6 15.0 15.0 45.0
Yes 22 55.0 55.0 100.0
Total 40 100.0 100.0
DiscQ15
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 12 30.0 30.0 30.0
Partially present 1 2.5 2.5 32.5
Intermediate 2 5.0 5.0 37.5
Present in some pages 15 37.5 37.5 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
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DiscQ16
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 4 10.0 10.0 10.0
Partially present 1 2.5 2.5 12.5
Unclear 1 2.5 2.5 15.0
Intermediate 7 17.5 17.5 32.5
Present in some pages 22 55.0 55.0 87.5
Yes 5 12.5 12.5 100.0
Total 40 100.0 100.0
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Appendix 4.3: HON Code tool
HonQ1
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 13 32.5 32.5 32.5
Unclear 1 2.5 2.5 35.0
Intermediate 2 5.0 5.0 40.0
Present in some pages 3 7.5 7.5 47.5
Yes 21 52.5 52.5 100.0
Total 40 100.0 100.0
HonQ2
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 19 47.5 47.5 47.5
Intermediate 4 10.0 10.0 57.5
Present in some pages 2 5.0 5.0 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
HonQ3
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 4 10.0 10.0 10.0
Intermediate 5 12.5 12.5 22.5
Present in some pages 11 27.5 27.5 50.0
Yes 20 50.0 50.0 100.0
Total 40 100.0 100.0
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HonQ4
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 3 7.5 7.5 7.5
Intermediate 1 2.5 2.5 10.0
Present in some pages 12 30.0 30.0 40.0
Yes 24 60.0 60.0 100.0
Total 40 100.0 100.0
HonQ5
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 9 22.5 22.5 22.5
Intermediate 10 25.0 25.0 47.5
Present in some pages 10 25.0 25.0 72.5
Yes 11 27.5 27.5 100.0
Total 40 100.0 100.0
HonQ6
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 3 7.5 7.5 7.5
Unclear 3 7.5 7.5 15.0
Intermediate 8 20.0 20.0 35.0
Present in some pages 17 42.5 42.5 77.5
Yes 9 22.5 22.5 100.0
Total 40 100.0 100.0
HonQ7
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 2 5.0 5.0 5.0
Present in some pages 17 42.5 42.5 47.5
Yes 21 52.5 52.5 100.0
Total 40 100.0 100.0
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HonQ8
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 2 5.0 5.0 5.0
Intermediate 10 25.0 25.0 30.0
Present in some pages 15 37.5 37.5 67.5
Yes 13 32.5 32.5 100.0
Total 40 100.0 100.0
HonQ9
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 23 57.5 57.5 57.5
Intermediate 3 7.5 7.5 65.0
Present in some pages 7 17.5 17.5 82.5
Yes 7 17.5 17.5 100.0
Total 40 100.0 100.0
HonQ10
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 3 7.5 7.5 7.5
Unclear 1 2.5 2.5 10.0
Intermediate 15 37.5 37.5 47.5
Present in some pages 15 37.5 37.5 85.0
Yes 6 15.0 15.0 100.0
Total 40 100.0 100.0
HonQ11
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Unclear 1 2.5 2.5 5.0
Intermediate 3 7.5 7.5 12.5
Present in some pages 28 70.0 70.0 82.5
Yes 7 17.5 17.5 100.0
Total 40 100.0 100.0
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HonQ12
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 2 5.0 5.0 5.0
Intermediate 8 20.0 20.0 25.0
Present in some pages 23 57.5 57.5 82.5
Yes 7 17.5 17.5 100.0
Total 40 100.0 100.0
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Appendix 4.4: IQT tool
IQTQ1
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 15 37.5 37.5 37.5
Intermediate 7 17.5 17.5 55.0
Present in some pages 8 20.0 20.0 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
IQTQ2
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 10 25.0 25.0 25.0
Intermediate 7 17.5 17.5 42.5
Present in some pages 9 22.5 22.5 65.0
Yes 14 35.0 35.0 100.0
Total 40 100.0 100.0
IQTQ3
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 8 20.0 20.0 20.0
Intermediate 2 5.0 5.0 25.0
Present in some pages 15 37.5 37.5 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
IQTQ4
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 26 65.0 65.0 65.0
Intermediate 4 10.0 10.0 75.0
Present in some pages 2 5.0 5.0 80.0
Yes 8 20.0 20.0 100.0
Total 40 100.0 100.0
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IQTQ5
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 21 52.5 52.5 52.5
Intermediate 4 10.0 10.0 62.5
Present in some pages 5 12.5 12.5 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
IQTQ6
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 18 45.0 45.0 45.0
Intermediate 4 10.0 10.0 55.0
Present in some pages 8 20.0 20.0 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
IQTQ7
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 5 12.5 12.5 12.5
Unclear 1 2.5 2.5 15.0
Intermediate 4 10.0 10.0 25.0
Present in some pages 15 37.5 37.5 62.5
Yes 15 37.5 37.5 100.0
Total 40 100.0 100.0
IQTQ8
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Intermediate 1 2.5 2.5 5.0
Present in some pages 15 37.5 37.5 42.5
Yes 23 57.5 57.5 100.0
Total 40 100.0 100.0
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IQTQ9
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 3 7.5 7.5 7.5
Unclear 1 2.5 2.5 10.0
Intermediate 4 10.0 10.0 20.0
Present in some pages 20 50.0 50.0 70.0
Yes 12 30.0 30.0 100.0
Total 40 100.0 100.0
IQTQ10
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Intermediate 9 22.5 22.5 25.0
Present in some pages 25 62.5 62.5 87.5
Yes 5 12.5 12.5 100.0
Total 40 100.0 100.0
IQTQ11
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 22 55.0 55.0 55.0
Intermediate 4 10.0 10.0 65.0
Present in some pages 4 10.0 10.0 75.0
Yes 10 25.0 25.0 100.0
Total 40 100.0 100.0
IQTQ12
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 1 2.5 2.5 2.5
Intermediate 3 7.5 7.5 10.0
Present in some pages 22 55.0 55.0 65.0
Yes 14 35.0 35.0 100.0
Total 40 100.0 100.0
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IQTQ13
Frequency Percent Valid Percent
Cumulative
Percent
Valid Intermediate 6 15.0 15.0 15.0
Present in some pages 13 32.5 32.5 47.5
Yes 21 52.5 52.5 100.0
Total 40 100.0 100.0
IQTQ14
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 1 2.5 2.5 2.5
Intermediate 7 17.5 17.5 20.0
Present in some pages 15 37.5 37.5 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
IQTQ15
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 1 2.5 2.5 2.5
Intermediate 7 17.5 17.5 20.0
Present in some pages 15 37.5 37.5 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
IQTQ16
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 1 2.5 2.5 2.5
Unclear 2 5.0 5.0 7.5
Intermediate 1 2.5 2.5 10.0
Present in some pages 19 47.5 47.5 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
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IQTQ17
Frequency Percent Valid Percent
Cumulative
Percent
Valid Unclear 2 5.0 5.0 5.0
Intermediate 3 7.5 7.5 12.5
Present in some pages 18 45.0 45.0 57.5
Yes 17 42.5 42.5 100.0
Total 40 100.0 100.0
IQTQ18
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 11 27.5 27.5 27.5
Intermediate 6 15.0 15.0 42.5
Present in some pages 14 35.0 35.0 77.5
Yes 9 22.5 22.5 100.0
Total 40 100.0 100.0
IQTQ19
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 2 5.0 5.0 5.0
Partially present 1 2.5 2.5 7.5
Unclear 1 2.5 2.5 10.0
Intermediate 2 5.0 5.0 15.0
Present in some pages 22 55.0 55.0 70.0
Yes 12 30.0 30.0 100.0
Total 40 100.0 100.0
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IQTQ20
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 9 22.5 22.5 22.5
Present in some pages 8 20.0 20.0 42.5
Yes 23 57.5 57.5 100.0
Total 40 100.0 100.0
IQTQ21
Frequency Percent Valid Percent
Cumulative
Percent
Valid No 12 30.0 30.0 30.0
Unclear 1 2.5 2.5 32.5
Intermediate 13 32.5 32.5 65.0
Present in some pages 12 30.0 30.0 95.0
Yes 2 5.0 5.0 100.0
Total 40 100.0 100.0
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Appendix 5: Results of evaluation tool Appendix 5.1: OA tool
Websites Nos. Website Names Score Rank Time W1 Arthrolink 71.875
13 14.57
W2 OAhealthinfo 58.125 22 9.26
W3 Arthritics org 85.625
3 10.52
W4 Allwebhunt 73.125 11 9.23
W5 Orthovisc 65.625 17= 9.19
W6 Ihaveosteoarthritis 72.5 12 14.31
W7 Health.com 70 15= 5.47
W8 Patient UK 85 4= 7.01
W9 Durolane 50.625 27= 4.45
W10 Nhs choices 81.875 5 4.09
W11 ArthritisResearch UK 90 1= 10.1
W12 MedInfo 55 24 5.28
W13 NetDoctor 86.875 2 6.18
W14 Arthritis Care 90 1= 7.39
W15 MapofMedicine 74.375 10 4.33
W16 Bupa 71.25 14 8.12
W17 eMedicineHealth 77.5 7= 10.14
W18 BBC 55.625 23 3.41
W19 Medic8 50 28 3.56
W20 Osteoarthritis UK 20 31 2.06
W21 CSP(Charity Society of
Physiotherapy)Org 51.25 26 5.29
W22 WebMD 78.75 6= 6.11
W23 Arthritis.com 43.75 30 8.51
W24 Benefits Now 63.125 19 7.17
W25 Mayo Clinic 70 15= 5.46
W26 Family Doctor 62.5 20 5.23
W27 Wrong Diagnosis 85 4= 5.14
W28 Good To Know 61.25 21 2.27
W29 Surgery Door 44.375 29 3.43
W30 Niams 78.75 6= 8.21
W31 Private Health 76.25 9 4.42
W32 Up to Date 76.875 8 5.21
W33 Arthritis Today 77.5 7= 6.01
W34 CSK(Clinical Knowledge
Summaries) 65.625 17= 5.53
W35 Disaboom 68.125 16 4.48
W36 ArthritisU 64.375 18 5.53
W37 Your Joint Pain
Solutions 51.875 25 3.44
W38 Virgin media 50.625 27= 4.54
W39 Third Age 70 15= 4.27
W40 Drugs.com 70 15= 5.09
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Appendix 5.2: DISCERN tool
Websites Nos. Website Names Score Rank Time W1 Arthrolink 86.25 2= 8.2
W2 OAhealthinfo 81.25 6= 6.05
W3 Arthritics org 66.25 14= 5.56
W4 Allwebhunt 81.25 6= 6
W5 Orthovisc 65 15= 5.12
W6 Ihaveosteoarthritis 71.25 12 3.09
W7 Health.com 66.25 14= 5.01
W8 Patient UK 86.25 2= 5.49
W9 Durolane 77.5 9= 3.55
W10 Nhs choices 76.25 10= 3.45
W11 ArthritisResearch UK 73.75 11= 2.26
W12 MedInfo 46.25 20 2.03
W13 NetDoctor 85 3= 4.51
W14 Arthritis Care 85 3= 4.4
W15 MapofMedicine 53.75 18= 3.22
W16 Bupa 73.75 11= 4.52
W17 eMedicineHealth 82.5 5 5.01
W18 BBC 15 26= 2.53
W19 Medic8 15 26= 2.47
W20 Osteoarthritis UK 15 26= 3.1
W21 CSP(Charity Society of
Physiotherapy)Org 13.75 27 2.21
W22 WebMD 78.75 8 4.28
W23 Arthritis.com 27.5 23 2.47
W24 Benefits Now 48.75 19= 5.12
W25 Mayo Clinic 83.75 4 3.09
W26 Family Doctor 53.75 18= 5.01
W27 Wrong Diagnosis 77.5 9= 5.49
W28 Good To Know 67.5 13 3.55
W29 Surgery Door 20 25 3.45
W30 Niams 76.25 10= 2.26
W31 Private Health 62.5 16 4.41
W32 Up to Date 65 15= 3.59
W33 Arthritis Today 80 7 3.52
W34 CSK(Clinical Knowledge
Summaries) 48.75 19= 2.51
W35 Disaboom 91.25 1 4.2
W36 ArthritisU 56.25 17 3.29
W37 Your Joint Pain
Solutions 36.25 22 1.15
W38 Virgin media 23.75 24 1.58
W39 Third Age 77.5 9= 7.17
W40 Drugs.com 43.75 21 5.14
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Appendix 5.3: HON Code tool
Websites Nos. Website Names Score Rank Time W1 Arthrolink 75 8= 7.37
W2 OAhealthinfo 75 8= 6.41
W3 Arthritics org 80 5= 7.33
W4 Allwebhunt 75 8= 7.26
W5 Orthovisc 71.6667 10= 6.54
W6 Ihaveosteoarthritis 83.3333 4 4.46
W7 Health.com 70 11= 5.42
W8 Patient UK 78.333 6= 4.44
W9 Durolane 51.6667 18 5.12
W10 Nhs choices 80 5= 5.1
W11 ArthritisResearch UK 78.333 6= 4.41
W12 MedInfo 66.6667 13 4.4
W13 NetDoctor 80 5= 4.23
W14 Arthritis Care 85 3= 3.57
W15 MapofMedicine 71.6667 10= 4
W16 Bupa 73.333 9 5.03
W17 eMedicineHealth 91.6667 2 5.12
W18 BBC 41.6667 21 1.58
W19 Medic8 65 14 3.46
W20 Osteoarthritis UK 30 23 2.49
W21 CSP(Charity Society of
Physiotherapy)Org 46.6667 20 3.23
W22 WebMD 70 11= 3.09
W23 Arthritis.com 56.666 17= 5.01
W24 Benefits Now 56.666 17= 5.49
W25 Mayo Clinic 93.333 1= 3.55
W26 Family Doctor 85 3= 3.45
W27 Wrong Diagnosis 93.3333 1= 2.26
W28 Good To Know 60 15 4.41
W29 Surgery Door 31.6667 22 4.48
W30 Niams 76.66667 7= 5.53
W31 Private Health 76.66667 7= 3.44
W32 Up to Date 78.3333 6= 4.54
W33 Arthritis Today 75 8= 4.27
W34 CSK(Clinical Knowledge
Summaries) 68.333 12 5.09
W35 Disaboom 71.666 10= 3.45
W36 ArthritisU 76.666 7= 2.49
W37 Your Joint Pain
Solutions 26.666 24 3.2
W38 Virgin media 48.333 19 3.09
W39 Third Age 76.666 7= 2.32
W40 Drugs.com 57 16 1.45
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Appendix 5.4: IQT tool
Websites Nos. Website Names Score Rank Time W1 Arthrolink 85.7142 7= 7.21
W2 OAhealthinfo 69.523 15 6.12
W3 Arthritics org 70.476 14 4.57
W4 Allwebhunt 68.57 16 4.21
W5 Orthovisc 44.761 25= 4.35
W6 Ihaveosteoarthritis 74.285 11 3.54
W7 Health.com 80 9= 4.01
W8 Patient UK 77.1428 10 6.4
W9 Durolane 57.142 21= 3.51
W10 Nhs choices 80.952 8= 5.38
W11 ArthritisResearch UK 94.2857 3 7.17
W12 MedInfo 44.761 25= 3.46
W13 NetDoctor 92.3809 4 3.44
W14 Arthritis Care 71.4285 13= 4.51
W15 MapofMedicine 73.3333 12 4.39
W16 Bupa 80.9523 8= 4.2
W17 eMedicineHealth 89.523 6= 6.1
W18 BBC 57.1428 21= 4.19
W19 Medic8 62.857 19= 3.54
W20 Osteoarthritis UK 13.33 30 1.41
W21 CSP(Charity Society of
Physiotherapy)Org 59.0476 20 2.49
W22 WebMD 89.52 6= 4.27
W23 Arthritis.com 64.761 18 6.11
W24 Benefits Now 37.142 27 3.46
W25 Mayo Clinic 85.7142 7= 2.49
W26 Family Doctor 96.1904 1 3.23
W27 Wrong Diagnosis 71.4285 13= 3.09
W28 Good To Know 52.3809 22 5.01
W29 Surgery Door 36.19 28 5.49
W30 Niams 90.476 5= 3.55
W31 Private Health 90.476 5= 3.45
W32 Up to Date 95.238 2 6.59
W33 Arthritis Today 48.571 23 3.44
W34 CSK(Clinical Knowledge
Summaries) 67.619 17 4.58
W35 Disaboom 89.523 6= 6.04
W36 ArthritisU 42.857 26 2.28
W37 Your Joint Pain
Solutions 25.7142 29 1.47
W38 Virgin media 47.619 24 2.34
W39 Third Age 62.857 19= 4.37
W40 Drugs.com 80 9= 5.59