big data in cancer control
DESCRIPTION
A talk given to NIH and invited scientists to set the stage of data visualization in cancer control.TRANSCRIPT
“Big Data” in Cancer Control & Prevention
Bradford W. Hesse, PhDChief, Health Communication & Informatics Research
Thursday, February 9, 2012
Thursday, February 9, 2012
Thursday, February 9, 2012
Unravelling the complex gene x environment interactions in
cancer may be the “emperor” of all science problems
Thursday, February 9, 2012
The Network I.T. solutions must include patients, practitioners” -
PCASTThursday, February 9, 2012
Cost of data production is plummeting
Thursday, February 9, 2012
We need data discovery tools
Thursday, February 9, 2012
Clinical data from multiple sources
Thursday, February 9, 2012
Visualization at bedside
Thursday, February 9, 2012
Inform Support Decisions
Educate Persuade
NCI Investments in Data Presentation
Thursday, February 9, 2012
SOURCE: http://alleydog.com/topics/sensation_and_perception.php
Perceptual Basics
Thursday, February 9, 2012
Cognitive / Perceptual Research
source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.
• Constructive process
• Gaze goes to center for pattern
• Contiguous labels for meaning
• Left to right tendency in western culture
• Perceptual rules guide meaning
Thursday, February 9, 2012
Visualizing Long Term Change
source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.
• Constructive process
• Gaze goes to center for pattern
• Contiguous labels for meaning
• Left to right tendency in western culture
• Perceptual rules guide meaning
Thursday, February 9, 2012
Overcome Cognitive Biases
Thursday, February 9, 2012
Overcome Cognitive Biases
Exceptional Case
Fallacy of small numbers;Tversky & Kahneman, 1971
Thursday, February 9, 2012
Clinical / Personal Decision-making
See: Fagerlin, A., Ubel, P. A., Smith, D. M., & Zikmund-Fisher, B. J. (2007). Making numbers matter: present and future research in risk communication. Am J Health Behav, 31 Suppl 1, S47-56.
Centers of Excellence in Cancer Communication
Research: p-50
Thursday, February 9, 2012
Using Interface Opportunities in EHR
Thursday, February 9, 2012
Dissolving Barriers between Clinical & Public Health
Added User Controls14 datasets spanning 6 years
NSF, NIH Collaboration
Thursday, February 9, 2012
Dissolving Barriers between Clinical & Public Health
Added User Controls14 datasets spanning 6 years
NSF, NIH Collaboration
Thursday, February 9, 2012
Data-based Interfaces for Policy
BLS USDA CDC
Thursday, February 9, 2012
Data-based Interfaces for Policy
BLS USDA CDC
Thursday, February 9, 2012
Dose > Response
Old question: How do we communicate in such a way and in such frequency so as to change behavior?
Thursday, February 9, 2012
New question: How do we structure the communication environment to support self-determined pathways of health for individuals, loved ones, and communities?
Institute of Medicine’s Crossing the Quality Chasm series
“Meaningful Use”
Safety, Quality Improvement
Patient Engagement
Continuity of Care
Population Health
Privacy, Security TRUST
* Hesse, B. W., & Shneiderman, B. (2007). eHealth research from the user's perspective. Am J Prev Med, 32(5 Suppl), S97-103.
Thursday, February 9, 2012