Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide j.kremer@obgyn.umcn.nl

The Individual Formerly Known As Patient TIFKAP

Inspiration

Inspiration 1: Clayton Christensen

•Sustaining innovations make good things better•Disruptive innovations make things more affordable and simple•Disruptive innovations are not good for current organizations, but are good for mankind

Inspiration 2: Clay Shirky

• The power of organizing without organizations

• Spectacular developments of internet 2.0 and its social consequences

• Web 2.0 is a platform of virtual communication & participation

• Consumers are the new producers in agile and fluent networks

Inspiration 3: Prince

• The Artist Formerly Known As Prince (TAFKAP)

• Patient comes from the Latin word Patientia: patience, suffering, endurance

• The Individual Formerly Known As Patient (TIFKAP)

How did I get involved?

• Gynaecologist (1996)• Reproductive Medicine• IVF team Nijmegen

• 1 of 6 couples• 16.000 IVF treatments• 1 of 38 children

Heyendael Castle, 2001

What do you think of our IVF care?

Patient centredness

From paradigm shift to dream

Patient-centredness

•Being respectful of and responsive to individual patient preferences, needs and values; and ensuring that patient values guide all clinical decisions. (Institute of Medicine, 2001)

•One of the dimensions of Quality of Care:4. Timeliness5. Equity of access6. Patient centeredness

1. Safety2. Effectiveness3. Efficiency

• Stress and IVF Chris Verhaak, Jesper Smeenk• Online prevention of stress/anxiety Angelique van Dongen• Shared decision making in SET/DET Arno van Peperstraten• Guideline implementation Selma Mourad• Guideline development Elvira den Breejen• Patient education via wiki’s Tom van de Belt• Patient-centredness questionnaire NL Inge van Empel• Patient-centredness questionnaire EU Eline Dancet• Patient-centredness improvement Dana Huppelschoten

• Virtual IVF Clinic Wouter Tuil• Health Communities Annemijn Aarts

Patient-centredness research in Nijmegen

Virtual IVF Clinic

1. General information 1.0interviews, education leaflets, PDA

2. Personal Health Record (PHR)test results, pictures, letters, reports

3. Communicationchat and forum (P2D & P2P)

Evaluation Virtual IVF Clinic

•9 years successful•> 4000 patients online, •> 100.000 forum items•Patients are the motor of this innovation•More trust, less complaints, better culture•Less consultations, marketing benefits, prizes

Next step: Health Social Networks

•We have organized Healthcare from the institution of the provider•We should organize Healthcare from the network of the patient

•MijnZorgNet (MyCareNet): the social network of Dutch healthcare

Connect patients and professionals

1. Private health communitiesCommunities of a professional team with their patients (members-only)

2. Personal health commutiesCommunity of the patient (personal information and communication about this information)

Modern medicine

The new doctor:•from god to guide•from host to guest (Don Berwick)

The new patient:•from passive object to active subject•from patient to person (TIFKAP)

The new healthcare organization:•from better/expensive, to simple/affordable•from physical centre to virtual community

The Individual Formerly Known As Patient

In conclusion

• Modern patients are changing from passive objectives to active subjects.

• Helped by the new possibilities of Web 2.0, they grow into the role of co-producers of their own care.

• We should anticipate on these developments and invest in web tools that can really help these TIFKAP’s.

We are quite disappointed in your website: no blogs, no wikis, no twitter, no

PHR, no HC, no PHC…

…how static & top-down.

As modern care consumers, we want more than just being

treated!

Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide j.kremer@obgyn.umcn.nl

The Individual Formerly Known As Patient TIFKAP