autistic spectrum disorder action plan in · pdf fileautistic spectrum disorder action plan in...
TRANSCRIPT
Autistic Spectrum Disorder Action Plan in Conwy
Alexandra Fryer/Ramona Murray (V5) May 2012
2
1. Introduction
1.1 This revised action plan replaces the initial Conwy & Denbighshire Action Plan prepared and submitted to the WAG in April 2009.
1.2 The revised action plan has been drawn together by the Lead Officer for ASD
in Conwy and representatives of the Conwy Autism Stakeholder group following consultation undertaken with people with ASD, parents and carers of children and adults who have ASD and professionals working within statutory, independent and voluntary organisations.
1.3 This Action Plan should be read in conjunction with the document ‘Closing the
Gap’ a report on consultation on autism services in Conwy prepared on behalf of the Conwy ASD Stakeholder Group by the independent charity Conwy Connect for Learning Disabilities.
1.4 The action plan continues to take account of the cross boundary working that
has developed between Conwy/Denbighshire but also includes the regional perspective.
2. References
2.1 This Action Plan has focused on:
‘Closing the Gap’ a report on consultation on autism services in Conwy The Welsh Assembly Government ASD Strategic Action Plan
The Welsh Assembly – ‘A Report produced by the Adult task and finish
group’ October 2009
WAG commissioned research by Bangor and Glamorgan Universities ‘The Circumstances and support needs of older people with ASD’
2.2. The Conwy ASD action plan and aims to set out key tasks that will deliver services that will meet the needs of children/young people, adults with an Autistic Spectrum Disorder (ASD) and their families ; carers.
2.3. Many areas of good practice in the field of autism spectrum disorder already
exist in Conwy. The action plan will pull together and further develop, existing good practice in this area, it will use local expertise and knowledge in developing a ‘joined up’ seamless and co-ordinated approach in delivering services for all age groups with an ASD and those with related social and communication disorders.
2.4. There are a number of definitions of ASD, however Conwy will adopt the
definition used in the Strategic Action Plan for Wales:
“The term autism spectrum disorders (ASD) is used to describe the group of pervasive developmental disorders characterised by qualitative abnormalities in reciprocal social interactions and in patterns of communication and by a restricted, stereotyped, repetitive, repertoires, interests and activities”.
3
3. Conwy Autism Stakeholder Group
3.1 Mission Statement
The aim of the Conwy Autistic Spectrum Disorder Stakeholder group is to take the lead role in supporting the implementation of the ASD Strategic Action Plan for Wales across the authority. The group will support an agreed cross-agency approach to strategic planning for and commissioning of services for people with ASD. The group will inform the CYPP, Local Heath Board, Social Care and well being Strategic Partnerships in relation to ASD issues across Conwy.
3.2 Terms of Reference
(a) To ensure that Conwy ASD Stakeholder group is recognised by the CYPP, Local Health Board, Social Care and Well Being Strategic Partnership as taking the lead role in supporting the implementation of the ASD Strategic Action Plan for Wales across the authority.
(b) To ensure that the group will have representation across all agencies,
voluntary organisations, services and relevant parents; carers. (c) To support the development, provision, and delivery of services for all
children, young people and adults with Autistic Spectrum Disorders. (d) To ensure that provision and service delivery does not discriminate on the
grounds of ethnic origin, cultural and linguistic diversity, gender, age, disability or sexual orientation.
(e) To prepare reports and proposals to go to Agency Commissioners and
service providers and from there to regional and national decision making processes.
(f) Terms of Reference to be reviewed on an annual basis.
3.3 Frequency of Meetings
Conwy Autistic Spectrum Disorder Stakeholder Group will meet on a monthly basis.
3.4 Membership of the Conwy Stakeholder Group
A young person with ASD An adult with ASD A parent of a child with ASD A parent of an adult with ASD/LD Key representatives from the following services CAMHS Child Development Team Adult Mental Health Adult Psychology Adult Psychiatry Adult Learning Disability Nursing Team Therapy Services – SALT/OT Betsi Cadwaladr University Health Board
4
Social Services – Adults Social Services – Children Local Education Authority Careers Wales National Autistic Society Autism Cymru Police Housing Youth Offending Team Disability Employment Advisor Community Development Services (Leisure etc) Cllr for Carers } Councillors will liaise Cllr for Health and Social Care } to ensure at least Cllr for Education & Lifelong Learning } one is in attendance Additionally Lead Officer for ASD for Conwy ASD Needs Analyst ASD co-ordinator Education
Current consistent attendees are highlighted. Other representatives attend on an ad hoc basis e.g. Autism Cymru. The North Wales Regional Support Officer acts as liaison between the local stakeholder groups, the North Wales Lead Officer group and the BCUHB ASD Project Board. Those individuals not paid to attend will be offered reimbursement of expenses from the grant. The arrangements of meetings will facilitate parent representative attendance and the attendance of the young person with Aspergers. Meetings will therefore be held over lunchtime. The North Wales Regional Support Officer receives a standing invitation to attend the Stakeholder Group to report on their role to members and act in advisory capacity. See Appendix for full Terms of Reference
4. Conwy & Denbighshire Stakeholder Group
4.1 Conwy and Denbighshire Local Authorities and the Health Trust started an ASD group around 10 years ago and this has been the vehicle that has enabled both Local Authorities and Health to achieve what is currently available across both authorities for children who are Autistic
4.2 In response to the Welsh Assembly Government ASD Strategic Action Plan
both Conwy and Denbighshire set up separate stakeholder groups to enable them to focus on their own local priorities.
4.3 In order to maintain cross boundary collaboration both Lead Officers and ASD
Needs Analyst Officers meet on a regular basis and have a standing invitation to attend the stakeholder group in the other authority. At the present time this way of working has assisted in identifying joint funding opportunities.
5
4.4 Recent discussion has taken place as regards re-establishing an overarching Conwy & Denbighshire ASD Stakeholder Group. The drive for this is a result of the intention for Children Health Services within the new BCUHB to work across Conwy & Denbighshire i.e. Flint, Wrexham, Denbigh, Conwy, Gwynedd, Mon and more recently the proposal that Conwy and Denbighshire Children Services may merge.
5. North Wales Regional Group
5.1. The issues that are raised at the Conwy Stakeholder group will be reported via the Conwy Lead Officer to the North Wales Regional Group.
5.2 It is hoped that the North Wales Regional group will in future be attended by
the lead commissioning managers for adult and children services across North Wales, the ASD Lead Officers and BCUHB commissioners. This group would then take forward those actions required to deliver joined up and consistent services for children and adults with ASD and their carers across North Wales.
6. ASD Regional Support Team
6.1 The ASD Regional Support Team is based in the Social Services Improvement Agency in the Welsh Local Government Association.
6
Health, Social Care & Well Being Strategic
Partnership A member of the ASD
stakeholder group reports back to the HSCWBSP
Regional Groups Commissioning managers & ASD lead officers attend the group. Chaired by
the Regional Support Officer. Key actions required regionally to support
the delivery of effective and consistent service are implemented.
Regional Support Officer
WAG ASD Strategic Action Plan Implementation Manager
Local ASD Stakeholder Group
Membership includes service users, carers and professionals. The group will support the delivery
of the Local Action Plan. The Regional Support Officer for ASD will report
to the group on regional and national actions.
Children & Young Peoples Partnership A member of the ASD
Stakeholder group reports back to the
CYPP
Coordinator / ASD Regional Support Team
All Wales Lead Officer Meeting
Attended by the WAG implementation Manager, the ASD support Team and Lead
Officers
Welsh Assembly / Assembly Member ASD Strategic Action Plan
INDEX
Strategic Actions Page 8 Social Care – Children Services Page 17 Social Care – Adult Services Page 22 Health Page 28 Education Page 34 Transition Page 40 FE/Higher Education Page 44 Employment / Benefits Page 45 Housing Page 47 Community Development Page 49 Cultural Diversity Page 52 Criminal Justice System Page 53 (YOTS, Police, Probation, Courts) Emergency Services Page 55 Communication/Information Page 56 Parents / Carers / Siblings Page 58
Work done
Work ongoing
Work to be done
7
8
Autistic Spectrum Disorder (ASD) ACTION PLAN
2009 – 2011
PRIORITY Strategic Planning
LEADING North Wales Regional Support Officer / Conwy ASD Lead Officer and Members of Stakeholder Group
Aims / Outcomes
Actions
Action By / Responsibility
Start
Finish
Financial and other Resource implications
Arrangements for monitoring and evaluating
success An established and consistently attended ASD Stakeholder Group that informs and supports cross agency approaches to strategic planning for and commissioning of services for individuals with ASD across the authority.
Stakeholder Group Meetings organised on a monthly basis at times that will enable the attendance of volunteer representatives. Clear terms of Reference for the group (see attached) Stakeholder Group lead officers in respect of service areas will be identified. They will report back to the Stakeholder Group on progress within their respective service areas.
Lucy Smith – ASD Needs Analyst Stakeholder Group Stakeholder Group members
June 2009
Ongoing Reimbursement of expenses to volunteer representatives (ASD Grant). Input of identified officers/clinicians from the following services and orgs, Social Services, Education, BCU Health Board, Voluntary Organisations, NW Police, Housing, Community Development Services, Employment Services, (inc Careers Wales) and DWP
Review of Action Plan to be undertaken in the autumn of 2010, views of 2009 consultation participants to be actively sought. Reporting to the local CYPP and HSCWB SP via ASD Lead Officer; Children Service Commissioning Manager Reporting to the Director of Social Services via ASD Lead Officer Bench marking against other Welsh Authorities via NW Co-ordinator; All Wales Regional Manger
9
The ASD Local Action Plan is developed, monitored and reviewed in partnership with local stakeholders, including parents/carers, professionals and service providers.
Provide copy of Consultation Report to participants. Publish Consultation Report on the Conwy public Web site (see Closing the Gap) and the CYPP web page in an accessible format for young people. Draft local Action Plan re-write circulated to consultation participants for comment. Undertake further consultation with young people who have ASD Undertake further consultation with adults who have ASD following publication of the Adult ASD Task and Finish Report
Conwy Connect for Learning Disabilities – Consultation re ASD Lucy Smith – Needs Analyst, Katherine Owen – Information Officer, Adult LD Ramona Murray, Conwy Connect for Learning Disabilities CYPP – Deborah Job - Participation Team Manager. Conwy ASD stakeholder group, ALENCOS, Ramona Murray, Lucy Smith Ramona Murray
September 2009
June 2010
June 2010
January 2010
July 2010
July 2010
Consultation funded via ASD Grant ASD Needs Analyst – ASD grant funded post ASD Lead Officer time – ASD grant part funded
ASD Stakeholder Group NW ASD Regional Support Officer CYPP/HSCWB Group Feedback from Consultation participants on Report and Draft Action Plan Review of Local Action Plan Autumn 2010 (see above)
10
Publish Local Action plan and Implementation Plan on the Conwy web site
Ramona Murray, Lucy Smith
An awareness of the All Wales ASD Strategic Action Plan and local priorities at SSD cabinet level.
One Cllr to attend Stakeholder Group meeting, attendance co-ordinated by the 2 cabinet representatives and 1 Councillor. Presentation to Council Members
Cllr Liz Roberts – Lead for Social Care, Cllr. Wyn Ellis Jones – Lead for Education/ Lifelong Learning, Cllr Cheryl Carlisle – lead for Carers Ramona Murray – Conwy ASD Lead Officer
September 2009
To be confirmed
Ongoing
Input of Council Members ASD Lead Officer (ASD Grant)
ASD Stakeholder Group Review of Local Action Plan Autumn 2010 (see above)
An awareness of the All Wales ASD Strategic Action Plan across all Local Authority Head’s of Service and Senior Managers in Health.
Raising awareness around the strategic requirements of the ASD Action Plan provided to all Heads of Service within the Local Authority & Health.
Ramona Murray, Sharon Walters, Members of Conwy Senior management Team, in particularly - Byron Davies - Chief Exec, Ken Finch - Resources, Sarah Ecob - Theatres & Conference Centre, Geraint Edwards - Environment, Joanna Griffiths - SSD, Marianne Jackson - Comm Development Services, Geraint James - Education Services, Sue Maskell - Services to Children, Janet Morgan - Provider Services, Eryl Rowlands -
January 2010
December 2010
ASD Lead Officer (ASD grant) Head Of Service; Business Managers time WAG – Regional Support Officer
ASD Stakeholder Group CYPP/HSCWB Group
11
Operational plans support the commissioning, development and delivery of services required to meet the needs of children, young people and adults with ASD
Review of Strategies and Operational Plans to ensure that they take account of the needs of the population within Conwy who have an ASD Consider ways of increasing involvement of people with ASD, their parents and carers in contributing to strategic planning Progress reports to the HSCWB partnership group Annual Progress reports to the CYPP group
Revenues & Benefits Assess. Services, Dilwyn Price - School Improvement Svcs All Local Authority Heads of Service NHS Lead Clinicians Pauline Roberts, Libby Evans – HSCWB Partnership Manager Pauline Roberts, David Lewis – Planning & Dev. Officer/Svcs to Children, Helen Gregson – Holmes Children & Young Peoples Co- ordinator
January 2010
January 2010
January 2010
Ongoing
Ongoing
Ongoing
An Authority wide awareness of ASD that informs the delivery of LA and Health Services to the community
Establish ASD Training sub group to develop Training Strategy
Ramona Murray, Lucy Smith, Pauline Roberts, Jan Ellard, Lesley Wilson, Helen Fitzpatrick - Link with BCUHB Proj Board training work stream
March 2010
Ongoing
Training (ASD Grant)
ASD Stakeholder Group Training evaluation forms
12
Identify staff groups within the Local Authority for whom ASD awareness raising should be mandatory Service Provider questionnaire circulated to all internal and external agencies including social workers, voluntary organisations and charities working in Conwy to establish training needs.
As above Lucy Smith – Needs Analyst
January 2010
March 2010
ASD Lead Officer; Needs Analyst (ASD Grant)
Feedback from people with ASD, their families and carers on the level of awareness locally – 2010 review with consultation participants
Data base re training Establish an ASD professional; provider forum for sharing ideas and good practice. Ensure local services, practitioners are aware of the development of the public website ASD Matters (on HOWIS)
Lucy Smith – Needs Analyst ASD Stakeholder Group, Sharon Walters Lucy Smith – Needs Analyst ASD Stakeholder Group
April 2010
To be
confirmed 2010
Autumn 2010
Ongoing
Ongoing
Reliable information in relation to the number of children and adults known to the local authority with ASD.
Interim action for SSD - to add ASD diagnosis types to client information system (PARIS) – adult and children services
Lucy Smith – Needs Analyst Robert Owen – Dev. Officer (Adult Services) Annie Evershed – ICS Practice Developer
2010
Ongoing
ASD Needs Analyst Social Services (ASD Grant)
Progress reports provided to ASD Stakeholder Group meetings. Data re prevalence of ASD locally informs strategic commissioning plans of the local authority.
13
Reliable information in relation to the number of children and adults known to Health Teams with ASD in Conwy Information re prevalence is accessible to partner agencies in order to inform strategic planning
Seek advice re data protection in relation to information sharing (WASPI). Ongoing update of LEA database Work to explore establishment of ASD Register across North Wales. SSD agree data fields that will be provided to partners by SSD, Health and the LEA.
Lucy Smith – Needs Analyst Derek O’Connor – Info. Regulations Off Bangor University and Welsh Autism Research Centre – Dr Dawn Wimpory, Dr Elin Walker Jones Assistant Psychologist, Dr Mike Jackson – Information Services SSD/LEA/BCUHB
February 2010
March 2010
March 2010
February 2011
WAG funded Conwy & Denbighshire Assistant Psychologist post to be employed within BCUHB Central area 2010-2011 (ASD grant Conwy & Denbighshire)
Partnership working with the voluntary sector is clearly established in relation to ASD and directed at meeting the gap in service for those whose needs do not meet the LA’s eligibility criteria.
Ensure Conwy Voluntary Service Council (CVSC) is aware of the ASD Strategic Action Plan and Conwy priorities. Voluntary Sector membership of the ASD Stakeholder Group (NAS, Autism Cymru, CVSC, CFIS)
Ramona Murray, Pauline Roberts – NAS, Maggie Bowen – Autism Cymru, Anne Westmoreland CVSC Ramona Murray
2010
January 2010
Ongoing
Ongoing
ASD Lead Officer and Needs Analyst (ASD Grant) Voluntary Sector staff time
ASD Stakeholder Group Progress reports provided to ASD Stakeholder Group meetings.
14
Service mapping to identify those voluntary organisations in Conwy currently supporting people with ASD. Analysis of service mapping – focus of support; identify expertise or gaps in knowledge and skills in relation to ASD Establish links with Conwy Community Directory – CFIS (Conwy Family Information Sharing) and CVSC (Conwy Voluntary Service Council)
Lucy Smith – Needs Analyst Rhian Williams – Section Head – Culture and Info. Community Dev, Service Ramona Murray, Lucy Smith Lucy Smith – Needs Analyst
Ongoing
Ongoing
Ongoing
Ongoing
Ongoing
Ongoing
Information regarding ASD and service responses to needs from birth to the grave and across the spectrum, including the needs of parents is easily accessible.
Person centred needs pathway developed for a) child with ASD b) child with ASD/LD c) Adult with ASD d) Adult with ASD/LD e) Carers. This links in with the Directory in relation to service responses. Directory of information regarding specialist and generic services in Conwy is created – electronic, booklet and accessible
Lucy Smith – Needs Analyst Mark Kristian – Substance Misuse Service NHS Helen Jones -Clinical Nurse Manager LD Dr Helen Fitzpatrick – CAMHS, Dr Elin Walker Jones- Child LD Judith Holliman – Parent Lucy Smith, Ramona Murray
September 2009
September 2009
August 2010
August 2010
ASD Lead Officer / ASD Needs Analyst (ASD Grant) Printing, distribution of service mapping questionnaire Printing and other accessible formats for the Pathway booklet and Directory Web page creation and Ongoing hosting, maintenance costs.
ASD Stakeholder Group Review of Local Action Plan (2010) Link on Web page to customer satisfaction
15
formats, easy read, jargon free. Pathway and Directory available on a Conwy ASD web site. Directory information is maintained up to date. CYPP web site used to publish relevant and accessible information for young people with ASD
Lucy Smith, - Needs Analyst Dawn Meek - Adult Service Office Mgr Simon Jones - Web site Manager Lucy Smith – Needs Analyst Sheila Jackson Young Conwy Website - coordinator, Lucy Smith Ramona Murray
August 2009
Ongoing
Ongoing
August 2010
Ongoing
Ongoing
Conwy Web Team Ongoing costs of maintaining the web page and information Ongoing costs of maintaining the Directory ASD Lead Officer; ASD Needs Analyst, YCW co-ordinator time
Conwy CBC represents local needs at a Regional Network or Commissioning Board that supports collaborative commissioning around the delivery of specialist services for ASD across North Wales.
Establish a Regional Network/Commissioning Board for ASD Secure attendance of key individuals within the Local Authority and within the BCUHB Develop a Regional Action Plan and a commissioning strategy for the commissioning and delivery of specialist services
Sharon Waters, NW Regional Support Officer North Wales Local Authorities ASD Lead Officers BCUHB rep To include Commissioning Managers for SSD, Education and Health
September 2009
2010 Conwy ASD Lead Officer time Conwy Commissioning Managers time – Adults/ Children Services
Monitored and evaluated by the ASD Support team reporting to WAG
16
Share best practice and ensure consistency across the region in relation to service responsiveness to the needs of children and adults with ASD e.g. CWDT eligibility criteria
Assessment, treatment and service provision takes full account of the language and cultural needs of children, young people and adults with ASD.
Service deficiencies are identified and highlighted
Stakeholder group BCUHB LA’s LEA’s
Ongoing Ongoing
17
PRIORITY Social Care – Children Services LEADING Planning & Development Officer Children Services / Conwy ASD Lead Officer and Members of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
Resource implications
Arrangements for monitoring and
evaluating success Children/Young People with an Autistic Spectrum Disorder are able to access support from the Children with Disabilities Team.
Meet with the North Wales Heads of Service to highlight the fact that some children; young people with ASD are not eligible for support from CWD due to the current eligibility criteria. Provide supporting evidence across North Wales regarding the number of children/young people with ASD/Case Examples who are not able to access support. Consider need to review the Eligibility Criteria. To include a statement that where a child or young person has an ASD which significantly impacts on their education and socialisation and without support services there may be a breakdown in family life, the child would be eligible for support from the CWDT.
NW ASD Regional Support officer ASD Lead Officer David Lewis Planning & Development Officer Children Services
2010 Possible Implications regarding the number of referrals for CWDT services.
ASD Stakeholder Group Feedback from Children & Families.
18
Social care staff from the Duty and Assessment Team and the Supporting Children Team working with children; young people with ASD have access to training. Social Care Staff from DAT & SCT are able to identify appropriate resource provision. Greater knowledge of service provision for Children/ young people with Aspergers Syndrome
See Strategic Actions re training Identify which DAT & SCT staff members have received no training on ASD. WAG awareness raising agenda – on-line, CD, booklet packages aimed at family support practitioners Social Work Teams to access information from the ASD directory on line. Training strategy
Children Services training Department. Lucy Smith, David Lewis WAG ASD Needs analyst
January 2010
Autumn 10
Ongoing
Ongoing
August 2010
Planning & Development Officer time / Needs Analyst (ASD Grant)
Information available from the Trent system regarding list of staff who have accessed ASD training
Resources Teams (CST/ PST and DARRT) have access to a wide range of specialised tools to support staff members
Funding has been agreed for the Resources team to purchase training materials. Meet with LD Services, CDT and CAMHS team in relation to setting up process for appropriate professional advice and training to support community interventions.
ASD Stakeholder Group Wendy Bleach (Resources Principal Practitioner) Wendy Lemon PP Family and Community Res; Dr Elin Walker Jones, Dr Helen Fitzpatrick, Dr Nia Pickering
January 2010
January 2010
Ongoing
Ongoing
ASD Grant (09/10) Staff time
Feedback from Children & Families regarding services provided
More Children/Young People with ASD to participate at their Child in Need; Looked after Children reviews
Current levels of children/ young people with ASD attending CIN/LAC meetings are low. The Independent Reviewing Officers have identified the need to ensure that a range
Children with Disabilities Team Simon Capstick - (Unit Manager Tir Na Nog) Independent Reviewing Officers
April 2010
Ongoing Feedback from Children/young people regarding service provision. IRO to provide an annual report in relation to the
19
of communication aids; PCP tools/greater use of advocates are available to ensure that the child/young person’s views are expressed. Explore involvement of Conwy Connect in providing PCP awareness around appropriate tools to engage children in their reviews.
Tros Gynnal Advocacy Service Ramona Murray John Fozzard Conwy Connect
number of children; young people who attend their reviews. The number of referrals made to Tros Gynnal for advocacy services.
All children and young people with ASD currently placed at an out of county residential provision to be reviewed under the Auspices of the Out of County review meeting and also via LAC reviews.
The ‘Out of County’ review meeting to consider if it is possible to return children/ young people back to provision within the authority, if appropriate.
Complex Case Panel Members
February 2010
Ongoing
Reduce the number of out of county placements if appropriate
There is an improved range of services, including short breaks, for children & young people with ASD
To ensure that the ASD service mapping process/ analysis and data collection link into children services commissioning strategy.
CWD Resource Co-ordinator
Ongoing Ongoing Cymorth Funding Review of Action Plan to be undertaken in the autumn of 2010, views of 2009 consultation participants to be actively sought.
20
WD resource coordinator to report back to Cymorth steering group regarding targeted services for Children/Young people with ASD
David Lewis ASD service mapping; Needs analysis to be reflected in the Children services commissioning strategy.
Direct Payments are promoted as a way of ensuring choice and control
Awareness raising provided via ASD parent support groups, including In Control /SDS Social Workers provided with Ongoing support and training around the promotion of Direct Payments. Ensure that the Direct Payment support provider is aware of the specific needs of young people with ASD Appropriate ASD Awareness/in depth training available to PA’s (See Strategic Section – Training Strategy)
Alison Thomas – DP Lead Officer The Rowan Ramona Murray Alison Thomas ASD Training sub group
June 2010
Ongoing
January 2010
Ongoing
Ongoing
Ongoing
Ongoing
Ongoing
ASD Lead (ASD Grant)
Direct Payments Steering Group/ASD Stakeholder Group/quarterly reporting from Direct Payments Support provider
21
The development of a Multi Agency Integrated Children with Disability service
Project Proposal is in place for the development of the Integrated Children with Disability Services. Project Team to start work with in 2010. The Child Development Centre is already established at Nant y Gammar Road and provides multi agency support to children and families under % years. Further discussion needed to develop multi agency working for children and young people with LD and ASD between the ages of 5 and 18 years.
Strategic Development and Commissioning Manager
January 2010
Ongoing Clear advantages for families of children with ASD to have combined assessments, plans and reviews. Service user feedback
The ASD Action plan is reflected in the Children and Young People Partnership Plan
ASD stakeholder chair reports back to core aim group 3.
Pauline Roberts Core Aim group 3 members
Ongoing CYPP plan acknowledges the ASD action plan
Specialist Advocacy is available to children and young people with ASD
Additional training provided to Tros Gynnal advocates (See Strategic Section – Training Strategy )
Ramona Murray David Lewis Tros Gynnal ASD training sub group
April 2010
Ongoing Feedback from young people with ASD
22
PRIORITY Social Care – Adult Services LEADING Operational Manager Adult Services / Conwy ASD Lead Officer and Members of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Adults with ASD (and no other presenting disability i.e. LD) are able to access appropriate assessment and support via Adult Services
Agreement with Adult Commissioners as to which service will undertake the assessment of need for adults with ASD who do not have additional learning or physical disability. Awareness raising to Customer Care Officers (See Strategic Actions re Training) Liaison with BCUHB Project Board in relation to the impact of increased diagnosis and the development of a multi agency approach Liaison with BCUHB re ASD work streams
Joanna Griffiths – Statutory Head SSD Adult Service Operational Managers Ramona Murray ASD Training Sub Group Joanna Griffiths – Statutory Head SSD NWSIC Dr Peter Woods – work stream 4 Mike Jackson – BCUHB West Clinical Programme Group – adults Ramona Murray
To be confirmed
To be confirmed
To be confirmed
May 2010
June 2010
Implications regarding the number of referrals for Adult services following increased access to diagnosis ASD Grant
ASD Stakeholder Group HSCWB Group Customer satisfaction surveys
23
Nominated Social Worker or Social Workers who are appropriately trained to work with adults who have an ASD (including welsh speaker)
Undertake review of existing Adult service clients (LD/PDSI/OP) who have a) diagnosis of ASD/hf
Aspergers b) no formal diagnosis but
with ASD Traits Consider the creation of a Specialist Social Worker from within existing staffing resource Awareness raising to Social Workers within adult services focussing on ensuring assessment takes account of ASD needs within the process and in meeting eligible needs Identify specialist training needs e.g. ADOS (See Strategic Section, Training Strategy)
Lucy Smith Tesni Hadwin - PDSI Marian Hankin - OP Sue Adams – MH Ramona Murray - LD Joanna Griffiths Adults Operational Managers ASD Training Sub Group WAG Regional Project – training in under- taking ASD assessments for professionals As above
To be confirmed
March 2010
To be confirmed
Ongoing
Needs Analyst (ASD Grant)
ASD Stakeholder Group
Increased awareness amongst commissioners and service providers of the support needs of older people who have ASD
Raising awareness amongst commissioners and providers of the recent research in to the ‘Circumstances and Support Needs of Older people with ASD’ including
Ramona Murray Marian Hankin, Operational Manager Older People
July 2010
24
proposed links with the NSF for OP in terms of taking forward ASD issues WAG awareness raising agenda – booklets, CD, on-line packages aimed at older people
WAG
Autumn 10
WAG funded
Direct Payments are promoted as a way of ensuring choice and control
Awareness raising provided via ASD parent support groups, including In Control ;SDS Social Workers provided with Ongoing support and training around the promotion of Direct Payments. Ensure the Direct Payment support provider is aware of the specific needs of adults with ASD Appropriate ASD awareness/in depth training available to PA’s (see Strategic Section – Training Strategy)
Alison Thomas – DP Lead Officer The Rowan Ramona Murray Judith Holliman Alison Kristian Alison Thomas – DP Lead Officer, The Rowan Ramona Murray Alison Thomas – The Rowan Ramona Murray Alison Thomas ASD Training sub group
2010
Ongoing
January 2010
April 2010
2010
Ongoing
Ongoing
Ongoing
DP & ASD Lead Officer (ASD Grant)
Direct Payments Steering Group/ASD Stakeholder Group
25
Day opportunities; activities are available to meet the specific support needs of adults with ASD and LD
Re-modelling of Conwy provider unit services following the closure of CYO to take account of the needs of people with LD and ASD i.e. further development of the Lle Ni ASD service. WAG awareness raising agenda – booklets , CD’s, on-line packages aimed at day services for adults
Chris Griffiths - Ops Manager Provider Unit, Fiona Jones – Team Leader Provider Unit, Claire Lister - Commissioning Operational Manager WAG
January 2010
Autumn 10
December 2010
WAG
Feedback from service users
The workforce have the necessary skills to meet the support needs of adults who have ASD
Development of the Conwy Autism Service based at Grosvenor Road with specialist support workers providing outreach work. Individualised training is provided by specialist nurses to meet the specific support needs of adults with ASD and LD. Support is provided via Additional Support Team and the Emergency Intervention Service i.e. challenging behaviour, physical intervention strategies, placement breakdown.
Ramona Murray, Adrian Roper – CEO Cartrefi Cymru Marguerite O’Brien – Area Manager Helen Jones – Clinical Nurse Manager, LD Helen Jones – Clinical Nurse Manager, LD/ Paul Baker - AST, Sue Harris - EIS
Ongoing
Ongoing
Ongoing
Ongoing
Ongoing
Ongoing
ASD Lead Officer (ASD Grant) Possible resource implications should the BCUHB decide to locate adults with Aspergers/ASD with LD Nursing As above
Conwy Autism Service Management Group LD MAP Clinical work stream (ASD)
26
See strategic actions re Training WAG awareness raising agenda – on-line, CD, booklet packages
WAG Autumn 2010
WAG
The future support needs of adults with ASD living with older parents is planned for.
Identify individuals with ASD and living with parents over 65, over 70 and over 80. Engage individuals in future planning using a range of person centred planning tools. Support provided to Social Workers. Information re future service commissioning needs fed in to strategic planning.
Lucy Smith Ramona Murray Adult Services Op Mgrs Conwy Connect for Learning Disabilities Adult Operational Managers Conwy Connect for Learning Disabilities Adult Service Operational Managers
April 2010
April 2010
April 2010
To be confirmed
To be confirmed
October 2010
ASD Needs Analyst; Lead Officer (ASD grant) LA staff time SLA with Conwy Connect LA staff time
ASD Stakeholder Group LD MAP OP MAP PDSI MAP
Active Support Model is rolled out to all community living projects as appropriate
All Learning Disability Nurses within the Conwy team are trained to provide Active Support training Social Workers are trained to provide Active Support training.
Jason Devereux – Community Learning Disability Nurse Jason Devereux Claire Lister Rwth Roberts ASD Training Sub Group
Ongoing
2010
Ongoing
Ongoing
ASD Stakeholder Group LD MAP Case management reviews Customer feedback Clinical governance
27
Adults and young people with ASD have access to support to facilitate social skills and social understanding.
Social eyes Facilitator training commissioned. Establish social group/ network for adults with hf Aspergers currently accessing services via Adult learning Disability Services WAG regional project – development of social networking sites for young people with ASD and parents/carers
Ramona Murray Lucy Smith NAS Ramona Murray Lucy Smith Alexandra Fryer Rhys Jones WAG
April 2010
May 2010
April 2010
March 2010
£3,780 across Conwy/ Denbighshire - 12 participants. Regional Slippage bid
NAS Training and evaluation forms and Local Authority evaluation forms. Feedback to ASD Stakeholder group via follow up consultation Annual reviews
Specialist Advocacy is available to adults with ASD
Additional training provided to NWAAA advocates
Ramona Murray, Bethan R. Jones – Monitoring Manager Caroline Campbell – NWAAA, ASD Training sub group
April 2010
To be confirmed
ASD grant ASD Stakeholder Group SLA with NWAAA
28
PRIORITY Health LEADING BCUHB Project Board – Work Streams / North Wales ASD Support Officer / Conwy ASD Lead Officer and Members of Stakeholder
Group
Aims / Outcomes
Actions
Action By / Responsibility
Start
Finish
Financial and other resource implications
Arrangements for monitoring and
evaluating success There is a multi agency diagnostic team working across North Wales and the pathway for access to assessment and diagnosis is clear and accessible for children, young people and adults.
Collate information about the process of diagnosis in the local health teams
BCUHB Project Board – Mary Burrows, Dr Roger Banks North Wales CAMHS Clinical Strategy Implementation group (ASD work stream)
To be confirmed
C/O BCUHB and specific WAG funding for ASD
Review of Action Plan to be undertaken in the autumn of 2010, views of 2009 consultation participants to be actively sought on Health development Health own monitoring; evaluation processes
CAMHS and Children and Young People’s Learning Disability Services, Child Development Team, determine the agreed standard for assessment, diagnosis and intervention for children and young people with ASD
Agree the range and nature of evidence based interventions which can be offered by CAMHS, LD and Child Development Services. Identify resource requirements for fully comprehensive ASD provision which also address core deficits of ASD
Dr Helen Fitzpatrick, Patrick Howells Dr Steve Boyd, Dr Val Klimach, Dr Elin Walker Jones, Dr Elin Roberts-Puw, other team members
November 2009
September 2010
Partial
29
ADOS (Autism Diagnostic Observation Schedule) training. To improve diagnostic skills and extend capacity for diagnosis within some teams. To standardise diagnostic practice and process across teams.
Dr Dawn Wimpory, Consultant Clinical Psychologist
Regional bid in place for ADOS training for Adult service/CAMHS/ Children Learning Disability Services/ Child Development Team
Complete
Audit of agreed standards of assessment, diagnosis and intervention undertaken in health teams
CAMHS/CYP/Learning Disabilities Services/Child Development – to conduct audit of practice in health teams in the Central area of the Trust
Assistant Psychologist Dr Elin Walker-Jones Dr Helen Fitzpatrick
April 2010
March 2011
Partial
WAG funded – Welsh Autism research Centre and Bangor University – way children and young people are assessed for ASD across Wales
WARC and Bangor University
Timescales for accessing health services, including diagnosis, assessment and treatment for adults are consistent across the region.
BCUHB Project Board
BCUHB – Mary Burrows Sharon Walters – NW ASD Support officer
November 2009
To be confirmed
C/O BCUHB and specific WAG funding for ASD
As above
Gain an accurate picture of timescales for diagnosis, assessment and intervention for the various CAMHS teams across the region
North Wales CAMHS Clinical Strategy Implementation Group (ASD work stream)
March 2010
September 2010
Partial
30
Identify resources required to bring greater consistency in timescales
Dr Helen Fitzpatrick, Patrick Howells, Dr Steven Boyd, Dr Val Klimach, Dr Elin Roberts-Puw, Dr Elin Walker-Jones
Partial
Post diagnostic health services are available based on clinically assessed need e.g. OT, SALT, Psychology
Identify what post diagnostic health services are currently in place and whether they meet the needs of the population Work alongside the Early Support initiative to provide multi agency support and intervention for the child and his/her family
Assistant Psychologist Dr Elin Walker-Jones BCUHB Project Board Assistant Psychologist Dr Elin Walker-Jones, Dr Elin Roberts-Puw, Dr Val Klimach, Dr Steven Boyd, Dr Nia Pickering, Dr Helen Fitzpatrick
April 2010
March 2011
ASD Grant C&D As above
Health Services are provided by staff who have had additional training in ASD and taking in to account the bilingual needs of the local population
BCUHB Project Board
BCUHB – Mary Burrows Sharon Walters – NW ASD Support officer
November 2009
To be confirmed
As above
31
Explore the possibility of a regional bid to fund a specialist SALT to identify the current provision of specialist SALT across CAMHS/CYP LD services/ Child Development Team and Adult services for people with ASD and Aspergers.
Wen Hayton Ramona Murray Michael Duke Dr Elin Walker Jones Helen Fitzpatrick Sharon Walters
January 2010
TBC
Has not happened
Explore training needs of the CAMHS, CYP LD Services and Child Development across the region. Identify priority training needs Identify a specialist OT within the OT service.
North Wales CAMHS Clinical Strategy Implementation Group (ASD Work stream) Dr Helen Fitzpatrick, Patrick Howells, Dr Steven Boyd, Dr Elin Roberts-Puw, Dr Elin Walker Jones, other staff Iain Mitchell, Steve Grayston
March 2010
September 2011
Partial
Partial
General Practitioners/ Health Visitors/Practice Nurses etc have an improved awareness of ASD
WAG awareness raising agenda – booklet, CD, On-line
WAG Autumn 2010 WAG funded
32
Local General practitioners are aware of ASD local support networks and service provision.
Contact LHB re attendance of ASD stakeholder reps at GP prescribing meetings to present information re ASD Local Action Plan and local services
Ramona Murray, Sue Murphy LHB
To be confirmed
March 2011
ASD lead Officer (ASD Grant)
ASD Stakeholder Group
Local Opticians, Optometrists, Dentists and Pharmacists have an awareness of the needs of young people and adults with ASD in accessing their services and treatment; services provided.
WAG funded project looking at the awareness raising needs of the high street outlets
Sharon Walters – Regional Support Officer, Marc Kristian, Pauline Roberts, Conwy ASD Stake- holder Group Reps
September 2009
May 2010
Central ASD grant - WAG funded
Small standards panel WAG
Bilingual post diagnosis information pack provided – including all relevant information re contacts, roles of various professional staff and clinicians, services, and specific information re ASD
BCUHB Project Board See also Strategic Actions – Directory of Information WAG pilot re the development of post diagnostic packs for SE Wales – possible roll out throughout Wales Link with NAS Regional Co-ordinator – NAS resources
BCUHB – Mary Burrows, Sharon Walters – NW ASD Support officer WAG/Regional Support Team Pauline Roberts - NAS Regional Coordinator
Ongoing Ongoing
Ongoing Ongoing
C/O BCUHB and specific WAG funding for ASD Cost of resources
Review of Action Plan to be undertaken in the autumn of 2010, views of 2009 consultation participants to be actively sought on Health development
33
North Wales CAMHS Clinical Strategy Implementation Group (ASD Work stream) CYP LD and Child Development team
Dr Helen Fitzpatrick, Patrick Howells Dr Steven Boyd, Dr Elin Roberts-Puw, Dr Val Klimach Dr Elin Walker Jones
Completed for Specialist CAMHS
34
PRIORITY Education LEADING LEA ASD Coordinator / Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
An Education information pack is available for parents, schools, Pupil Referral Unit’s, governors and other agencies
Develop an Information Pack Pack to include - SEN Code of Practice
(Wales), A description of the
characteristics of ASD and associated conditions.
Contact points for key personal who can offer help, support and advice.
Role and structure of schools and key persons e.g. ALENCO.
A landscape of the available continuum of provision.
Contact details for voluntary agencies and other support agencies i.e. SNAP, NAS, Autism Cymru.
Lesley Wilson
January 2010
July 2010
Printing, publicity, translation. Staff/personnel hours to produce pack
All outcomes of the Conwy Education ASD Action Plan will be monitored through Conwy Education ALN Business Plan
35
Draft to be consulted upon Final document to all schools, parents with a pupil (diagnosed), GPs, Paediatricians, Learning Disabilities Team (Adults/Children’s Services CDC, Libraries WAG awareness raising agenda, primary and secondary school packages – booklets/CD on-line
WAG Autumn 2010
WAG
An extended and refined database of pupils with a diagnosis and/or significant number of key indicators is established and actively maintained. The database includes schools and Pupil Referral Units, is centrally administered by the LEA but with data provided from multi agencies and parents.
Establish a database Extend and refine the active database for Early Years, Key Stages 1-4 and Post 16, include school location, provision and intervention offered. Share anonymous data with schools via the ALNCO forums and Head Teacher forums. Enable all multi agency professionals to be aware of the incidence of ASD in Conwy schools
Lesley Wilson Lesley Wilson, TC/GH Lesley Wilson Lesley Wilson
September 2009
Ongoing initially by
August 2010
September 2010
September 2010
Ongoing
December 2010
December 2010
December 2010
Education Officer time Via Conwy Education ALN Business Plan
36
Inform LEA and LA strategic and financial planning. Link with Social Services Dept and Health databases.
Lesley Wilson, REO/AIW Lesley Wilson, Ramona Murray, Lucy Smith, Dr Elin Walker Jones Helen Fitzpatrick
Ongoing August 2010
Ongoing 2010/1
Ongoing
There is an identification process which includes a range of simple tools, (checklists etc) to be used by schools and PRUs to assist in gathering evidence and information to enable identification of pupils who have significant social communication difficulties and who may be on the spectrum.
Identify and produce a range of appropriate checklists, assessment schedules and indicators in conjunction with other professionals. Provide training in use of tools to all schools. Schools to use this process supported by the Education Psychologist Consultation Procedure
Lesley Wilson CW Lesley Wilson CW Education Psychologists
January 2010
September 2010
January
2011
October 2010
Ongoing
Ongoing
Purchase/production of tools ASD Coordinator time Printing materials/EP/ others time
Via Conwy Education ALN Business Plan
A comprehensive Training Strategy for governors, school staff, parents and pupils (where appropriate) is available.
Provide ASD Awareness for Early Years, Key Stages 1-4, Post 16 provision for ALL schools and PRUs
CW Lesley Wilson, ASD Team
Ongoing
Ongoing
Staff replacement costs; ASD Team time
Via Conwy Education ALN Business Plan
37
Provide specific training for identified schools or resource centres at all Key Stages Provide individual pupil focussed training in identified schools
CW Lesley Wilson, ASD Team CW Lesley Wilson, ASD Team
Ongoing
Ongoing
Ongoing
Ongoing
All mainstream schools are provided with support and advice for identified pupils with ASD to facilitate inclusion and curriculum access.
Appoint a Co-ordinator Extend Outreach Team Appoint a Team Leader Identify and update a referral process and criteria for access ASD support service. Offer advice to school staff to support individual pupils in consultation with parents and other professionals Develop with Ysgol y Gogarth (YYG), an outreach capacity in line with ‘Unlocking Potential’ Initiative
REO REO Lesley Wilson Lesley Wilson TC TC ASD Team Jonathan Morgan, Lesley Wilson
) ) September ) 2009
September
2009
Ongoing
March 2010
) ) December ) 2010
Ongoing
Ongoing
To be confirmed
LEA Staffing costs ASD Coordinator time ASD Team staff resource and travel ‘Unlocking Grant’
Via Conwy Education ALN Business Plan
There is a continuum of provision for pupils with ASD in Conwy from pre-school to post 16.
Establish a Child Development Centre (CDC) in county.
AIW
September 2009
Budget provided
Gogarth Governors
38
Develop an early years provision structure via Portage; TAs in nursery/ Foundation Phase, YYG
NH Lesley Wilson, Jonathan Morgan
Ongoing
Ongoing
Education, ALN Business Plan
Develop and extend resource centre provision at Key Stage 1
REO Lesley Wilson
Ongoing Ongoing Budget Provided
Annual Reviews; Monitoring Team
Develop the capacity of all current resourced provision to provide for pupils with ASD via a review of these facilities, consultation process and training.
REO AIW
Ongoing December 2011
Training and replacement costs
Paper to Cabinet if remit of Resource Provision needs to change
Extend the project in Ysgol John Bright (YJB) in conjunction with YYG Development Plan (facilitate re-introduction of pupils from YYG to mainstream) Develop a series of Primary and Secondary resource bases in line with the outcomes of the YJB pilot to facilitate inclusion and curriculum access.
GD Jonathan Morgan Lesley Wilson REO/AIW
September 2010
Post YJB Evaluation
Ongoing
To be confirmed
Within current staff resources
Paper to Cabinet if remit of Resource Provision needs to change Education Management Team
Extend YYG provision for pupils with ASD at all key stages. Achieve NAS Accreditation
Jonathan Morgan
January 2010
September 2012
Ongoing NAS cost to LEA ALN Budget
NAS Accreditation ; Classes established; YYG Governors; Estyn
39
Out of County provision for pupils whose needs cannot be met within Conwy LEAs continuum of provision.
REO/Moderation, Jenny Williams – (Chair) SMAP
September 2009
Ongoing Significant ALN Recoupment budget
REO, AIW, Finance
There is collaborative multi agency working and parental involvement.
Develop via the Communication Forum direct access strategies to enable close working with SALT. Develop working links with parents and voluntary groups to ensure consultation and involvement re services and provision. Develop contact processes to gain advice and input from health professionals e.g. OT/ Therapies/CAMHS/ Paediatricians. Develop contact processes with Transition Team; Careers Wales to facilitate appropriate Transition to Further Education and Adult Services.
CW WH Lesley Wilson, CW, TC CW Lesley Wilson Clive Noble
April 2010
January 2010
Ongoing
Ongoing
Strategic Management Conwy ASD Stakeholder Group Monitoring Team (ALN) Transition Planning Group
40
PRIORITY Transition Service LEADING Commissioning Manager Services to Children / Conwy ASD Lead Officer / Transition Manager and Member of Stakeholder
Group
Aims / Outcomes
Actions
Action By / Responsibility
Start
Finish
Financial and other resource implications
Arrangements for monitoring and evaluating
success The Transition support needs of young children with disabilities in to primary school, juniors and on to secondary education are managed appropriately
LEA Primary/Secondary transition process implemented by schools Teaching staff at Gogarth to be supported to develop use of PCP tools within the school to support planning for young people in Transition 14+ Development of transition protocol for children with disabilities aged 5+
Lesley Wilson – ASD Co-ordinator Ramona Murray, Jonathan Morgan, Clive Noble, Conwy Connect for Learning Disabilities John Fozzard
Ongoing
To be confirmed
Ongoing Staff replacement costs; PCP Awareness raising session costs Bid to WAG for transition key Working and PCP
Individual transitions are monitored and reviewed by schools & the LEA to ensure effectiveness of arrangements and lessons learned inform future service delivery
The Conwy & Denbighshire Transition Protocol takes account of the support needs of young people with ASD 14+ in their transition to adult life
The Transition Protocol to be fully implemented in Conwy The Transition protocol to be available for all post 14 children with disabilities via their Transition school review
Ramona Murray, Conwy ASD Lead Officer Transition Service Manager ALENCO’s
2009
Ongoing
March 2011
Ongoing
Transition Manager – (HWB Grant to March 2011) WAG Transition key Worker bid to be submitted for additional resource.
Via NSF reporting Transition protocol to be reviewed in 12 months time by the Conwy Transition Planning Group ASD Stakeholder Group CYPP ; HSCWB
41
Discussion with CAMHS/ Adult Mental Health Service re extending the Transition Protocol to include young people with severe mental health difficulties and ASD Information about the Transition protocol and service to be made available to those children with ASD and their parents who do not have additional support at school i.e. School Action, School Action Plus or Statement. The Transition protocol to be published on the Conwy ASD web site and CYPP Web Site to include information on referral process.
Ramona Murray Joanna Griffiths Sue Maskell Andy Wilcox Jones Sue Adams Clive Noble ALN Officer – LEA Mainstream ALENCO’s Ramona Murray, Lucy Smith
April 2010
Ongoing
January 2010
To be confirmed
Ongoing
April 2010
Additional funding from MH to support role of Key Worker / or WAG Key Worker bid Possible implications of increased service demand
A young person with ASD who has a need for continuing support in to adult life will be offered a Transition Service from SSD.
Establish a Transition Team working across Children and Adult services.
Ramona Murray
Ongoing
May 2010
Transition Manager – (HWB Grant to March 2011)
An evaluation of effectiveness of the Transition Team to be undertaken by March 2011 Transition protocol to be reviewed in 12 months time by the Conwy Transition Planning Group.
42
This includes an identified Transition key Worker and Person Centred Planning if required
Eligibility criteria for accessing the Transition Service to be clearly defined and linked to the adult Unified Assessment process. There is an inter-organisation system to identify children who will require transition into adult services in the year before their 14th birthday (in year 8.) this informs the strategic planning for all organisations Each child referred to the Transition Service will have an allocated Key Worker from the age of 14 who will co-ordinate the transition plan and will continue to monitor and have contact until the age of 25 years if appropriate. Conwy Connect for Learning Disabilities to offer PCP to children with disabilities aged 16+ at Ysgol Gogarth (will include children with LD and ASD) using appropriate
Ramona Murray Ramona Murray, Clive Noble Ramona Murray Sue Davies Conwy Connect, Simon Ingham Conwy Connect, Jonathan Morgan Ysgol Gogarth, SALT
Ongoing
Ongoing
Ongoing
January 2010
May 2010
Ongoing
Ongoing
March 2010
Transition Key Workers – 2.5 WTE Learning Disability Nurse – Transition 0.5 WTE WAG Transition key Worker bid to be submitted for additional resource. Specialist training
Customer satisfaction Questionnaire to be devised for the Transition Service – liaise with the CYPP Participation Team
43
communication adaptations Additional training/info to be provided to the Transition team in relation to the specific Transition planning needs of young people with ASD. Explore the possibility of a specialist Transition Key Wkr for children with ASD 14+
Ramona Murray Rwth Roberts Ramona Murray, Sally Rees CCNUK
April 2010
April 2010
Ongoing
Cost of individual PCP’s (Big Plan project funded via Cymorth bid)Additional advice of SALT ASD Grant WAG Transition key Working bid
Parents and carers of children in Transition and young people are able to contribute to the development of the service.
The Transition Protocol will be reviewed by the Transition Planning Group including parents and young people. A Transition Service questionnaire will be developed. The Transition Team will support the development of local parent groups; meetings in relation to Transition.
Ramona Murray, Clive Noble Ramona Murray Alex Fryer - Transition Key Wkr Jonathan Morgan – Ysgol Gogarth Head Teacher, LEA Officers
August 2010
2010
Ongoing
October 2010
Ongoing
Transition Team input CYPP Participation Team
Feedback from parents and young people regarding participation
44
Local Transition services in Conwy learn from good practice across North Wales
Transition key Worker forum established
CCNUK – Anne Davies
April 2010
45
PRIORITY Further / Higher Education LEADING TBC / Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Improved awareness via accessible information for those working in further and higher education
WAG awareness raising agenda – booklets, CD, on-line packages
WAG Autumn 2010
Ongoing WAG
Young people with ASD are able to access higher and further education courses at colleges that take account of their additional needs
Meet with Careers Wales to identify additional training needs/advice/support needs of Careers officers working within the mainstream schools in Conwy
Ramona Murray Bethan Crow – Careers Wales
May 2010
Ongoing
Young people with ASD are able to access additional social support to enable their attendance at college; university
The local further education college is able to meet the needs of young people with ASD
Meet with Llandrillo college to identify key actions required to improve the chances of young people with ASD accessing courses.
Ramona Murray Sam McIlvogue
December 2009
Ongoing
46
The curriculum of relevant courses at the local further education college e.g. social care, Teaching assistants includes an awareness of ASD
Smiles project to create links with the local further education colleges and provide opportunities for students to attend the bi monthly Smiles sessions to meet children with ASD and their parents
Sharon Hadley Bateman (Llandrillo)
Ongoing Ongoing
47
PRIORITY Employment / Benefits LEADING TBC / Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Improved awareness via accessible information for those working in employment related services
WAG awareness raising agenda – booklets, CD, on-line packages
WAG Autumn 2010
Ongoing WAG
Adults who have ASD are appropriately supported to secure and maintain employment
New Work Connections Business Plan aims to reduce economic inactivity within the most disadvantaged groups locally; this will include people with ASD. See New Work Connection Business Plan for range of activities to include detailed needs assessments, intensive support with job finding, mentoring, monitoring, financial advice, child care and working with potential employers. Additional ASD awareness raising to Job Coaches and potential employers via New Work Connections – matching jobs to peoples skills and knowledge.
Claire Lister Chris Griffiths – (Operational Mgr - Provider Unit) Terry Ducker – (Operational Mgr Children’s Service) Barbara Burchell – Principal European Project Dev. Wkr Claire Lister Chris Griffiths Terry Ducker
April 2010
April 2010
Ongoing 3 years
Ongoing 3 years
ECF ASD grant - ensuring no duplication of funding
The performance of the project, in achieving targets, will be monitored by the Regional Management Team and will be reported to WEFO on a regular basis. Robust systems will be put in place for monitoring progress in a way that is measurable
48
Disability Employment Advisor invited to ASD Stakeholder Group Explore opportunities for people with ASD as employees of CCBC.
Ramona Murray Ramona Murray Chris Griffiths Carol Roberts – (Corp. Personnel)
April 2010
Ongoing
Ongoing
ASD Lead Officer (ASD grant)
There is appropriate support for self employment and franchising opportunities, linking with specialist agencies
Meet with Principal Development Officer; Business and Enterprise to develop local actions. Training to frontline staff working within Business and Enterprise
Ramona Murray Linda Ford – Principal Development Officer
May 2010
ASD Lead Officer (ASD grant)
49
PRIORITY Housing LEADING Head of Housing Strategy / Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Appropriate accommodation is available for adults with an ASD taking in to account individual needs e.g. sensory issues (ASD Building Bulletin 93)
Meet with Housing Development Manager for Conwy to raise awareness of housing need Undertake consultation with young people who have ASD in Transition to establish their future accommodation needs Accommodation needs of people with ASD is included in the Adult Services Commissioning Strategy The accommodation needs of adults with ASD and LD to form part of the Learning Disability Accommodation Strategy Liaison with specialist ASD provider to act in advisory capacity in relation to housing features helpful to people with ASD
Ramona Murray Ramona Murray Hilary Kewley – Development Off, Pat Williams – Participation Co- ordinator CYPP Ramona Murray Hilary Kewley Penny Garnett (Op Business Mgr) Claire Lister (LD Op. Manager) Hilary Kewley Cartref Ni
To be confirmed
To be confirmed
To be confirmed
Ongoing
To be confirmed
To be confirmed
To be confirmed
ASD Lead Officer (ASD Grant) Participation Team staff resource
ASD Stakeholder group Review of accommodation strategy
50
Information is available regarding the housing options available to people with ASD locally.
Accommodation hand book published.
Hilary Kewley, Development Officer LD
April 2009
Ongoing LD Development Officer
Feedback from service users
Appropriate Housing Support is provided to young people and adults with ASD to maintain their tenancies.
Awareness raising provided to Housing Support Officers working within RSL’s. (See Strategic Actions)
Training Sub Group, RSL’s
April 2010
ASD Lead Officer (ASD Grant)
RSL reviews
51
PRIORITY Community Facilities / Leisure / Libraries / Social Clubs etc LEADING Head of Community Development Services / Conwy ASD Lead Officer and Members of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Children, young people and adults with ASD are able to access the full range of leisure activities available within Conwy
Leisure Services – link with ASD Stakeholder group Key actions identified to improve access to and inclusion in leisure activities for children and young people with ASD Training strategy developed for leisure staff (see strategic actions) ASD Stakeholder Group/ Community Development Services support the development of ‘Smiles’ charitable org supporting children and their families in Conwy & Denbighshire to access leisure activities together.
Marianne Jackson - HOS CDS, John Hardy – Section Head – Active & Creative Lifestyles Ramona Murray, Julie S Williams – Children’s Activity Workforce Dev Mgr Richard Hughes – NW Outdoor Partnership Outdoor Dev. Officer Mark Richards – Disability Sports Wales Dev. Officer ASD Stakeholder Group, John Hardy - Section Head Active & Creative Lifestyles
February 2010
April 2010
Ongoing
April 2010
Ongoing
AD lead Office (ASD Grant) Training (ASD Grant) North Wales Regional slippage bid Conwy/ Denbighshire
Training evaluation forms Feedback from people with ASD, their families and carers on the level of awareness – 2010 review with consultation participants ‘Smiles’ - Board of Trustees. Feedback to ASD Stakeholder group re progress of ‘Smiles’
52
Children, young people and adults are able to access a range of social activities within Conwy (see also actions re Social group SSD section)
Meet with Section Head, Youth Service to identify key actions to improve access to and inclusion for young people with ASD to youth service activities (age 11 to 25) Training strategy to be developed for Youth Service staff Include Youth Service rep no Training sub group Awareness raising with the Urdd, Youth Clubs, Rainbows, Brownies, Girl Guiding, Scouts, etc See strategic actions re training Explore possibility of linking Youth Service workers with LEA ASD Outreach service for advice/support
Ramona Murray Jane Williams – Section Head Conwy Youth Service Jane Williams, Anne D Smith, Ramona Murray, Pauline Roberts Ramona Murray, Anne D Smith As above Ramona Murray, Lesley Wilson, Jane Williams
April 2010
June 2010
June 2010
To be
confirmed
To be confirmed
ASD Lead Officer (ASD Grant) Training (ASD Grant) NAS resources
Feedback from people with ASD, their families and carers on the level of awareness – 2010 review with consultation participants
Children, young people and adults can gain access to library services appropriate
Meet the Section Head to develop key actions in terms of ASD awareness
Ramona Murray, CDW representatives to be confirmed
To be confirmed
53
to their needs. Library resources for ASD are co-ordinated and accessible to people with ASD and their carers
within Conwy library services. Discuss possibility of developing an ASD resource within a library in Conwy linking to the resource at the NAS office and elsewhere in Conwy
Ramona Murray, CDW representative to be confirmed Pauline Roberts, Jonathan Morgan
To be confirmed
54
PRIORITY Cultural Diversity LEADING Conwy ASD Lead Officer and Members of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
There are a range of support services for young people and adults with ASD and their families, from different cultural and ethnic backgrounds.
Contact the North Wales Race Equality Network for support and advice in developing specific local actions. See previous sections in relation to bilingual needs e.g. therapy services SSD workforce development strategy takes account of the specific needs of young people and adults with ASD for services provided in the language of their choice
Ramona Murray, Manu Patiar Corp. Personnel, Ramona Murray
April 2010
ASD Lead Officer (ASD Grant) Resources
ASD Stakeholder group
55
Materials, resources, training and information are available bilingually and with consideration to other cultural and linguistic backgrounds.
Ensure that the Welsh Language Policy is adhered to – ASD action Plan documents available bilingually/appropriate workers/translation services available. Contact North Wales Race Equality network for support and advice.
Ramona Murray, Translation Services Ramona Murray
Ongoing
To be confirmed
Ongoing Cost of translation – Closing the Gap, questionnaires, Action Plan - ASD grant
ASD Stakeholder Group
56
PRIORITY Criminal Justice System (YOTS, Police, Probation, Courts) LEADING Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other resource implications
Arrangements for monitoring and evaluating
success The additional needs of young people and adults with ASD are recognised and addressed by those working in the criminal justice system locally
See Strategic actions re Training Commission training to develop awareness amongst staff in YOTs, Probation service and the Police. Promote the widespread use of identification cards (produced by Autism Cymru and North Wales Police). Explore possibility of introducing ID cards to young people with ASD via schools (ALENCO’s) Disseminate and promote the use of ‘autism at a glance, guide for criminal justice professionals’
Ramona Murray North Wales Police, ALENCO’s, Social Workers etc Ramona Murray, Clive Noble, Lesley Wilson To be confirmed
April 2010
Ongoing
April 2010
To be confirmed
To be confirmed
Ongoing
ASD Lead Officer & Training (ASD Grant)
Via NAS
57
WAG awareness raising agenda – booklets, on-line and CD packages targeting the Criminal Justice System
WAG Autumn 2010
WAG
Special measure available to vulnerable witnesses are made available to young people and adults with ASD including use of specialist SALT intermediaries wherever appropriate.
Awareness raising amongst criminal justice staff and SSD staff.
To be confirmed To be confirmed
Professionals working within the adult commissioning teams are able to undertake HCR (Historical Clinical Risk Management) and SCR (Sexual Violence Risk Management) assessments
Undertake a review of the vulnerable adults known to the service who have ASD and who offend Provide training in SCR and HCR to Social Workers within SSD
Ramona Murray Jason Devereux Ramona Murray Rwth Roberts Training Officer SSD
To be confirmed
April 2010
To be confirmed
April 2010
ASD Grant SCUDWP
58
PRIORITY Emergency Services LEADING Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Local Emergency services have an appropriate awareness of the needs of people with ASD
Representative from NW Fire and Rescue Service to be invited to attend Stakeholder Group meeting to explore possible actions e.g. awareness raising,
Ramona Murray, Pauline Roberts, Angela Michelmore
To be confirmed
59
PRIORITY Communication; Information; Awareness Raising - in the community LEADING Conwy ASD Lead Officer and Member of Stakeholder Group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
There is improved access to and quality of local information and support available to children, young people, and adults with ASD and their carers and families.
See strategic actions re Service Directory, web page development, and links with CYP website.
Lucy Smith, Ramona Murray
Ongoing August 2010
See strategic actions Review of Action Plan to be undertaken in the autumn of 2010, views of 2009 consultation participants to be actively sought
There is a Conwy ASD Face Book Group/Page that provides information/links/ events, is able to gauge views of people with ASD/ other interested individuals e.g. parents/carers/ professional and offers the facility for like minded people to communicate re ASD issues
Paper to Director of Social Services outlining proposal and monitoring arrangements Feedback from WAG regional projects – development of social networking sites
Lucy Smith – Needs Analyst Ramona Murray – Lead ASD WAG
March 2010
August 2010
ASD Needs Analyst – monitoring site Ongoing cost of monitoring
As above
60
Public awareness of ASD is improved via poster campaigns, leaflets on ASD in public places, use of local media, an annual Autism Awareness week
ASD Stakeholder Group and parents group collect positive ‘stories’ for Autism week Work with voluntary organisations e.g. NAS to improve the information available locally Liaise with Cartrefi Conwy; NAS re conference style event
ASD Stakeholder Group Lucy Smith Ramona Murray Corp Info Team Ramona Murray Pauline Roberts Ramona Murray Adrian Roper – CEO Cartrefi Cymru
Ongoing
Ongoing
February 2010
Ongoing
August 2010
ASD Lead Officer Needs Analyst Resources ASD Grant ASD Lead Officer Needs Analyst Resources ASD Grant
As above
Bilingual resources are available and accessible to parents, carers, professionals and providers, as well as in other languages where possible
C-SAW, NAS information resource/library accessible and publicised across Conwy and Denbighshire.
Ramona Murray Lucy Smith
February 2010
As above
61
PRIORITY Parents / Carers / Siblings LEADING Conwy ASD Lead Officer and member of Stakeholder group
Aims / Outcomes
Actions Action By /
Responsibility
Start
Finish Financial and other
resource implications Arrangements for
monitoring and evaluating success
Parent groups/support groups are supported and publicised by the Local Authority and the ASD Stakeholder Group
Lead officer attends parent support group meetings on a regular basis Chairs of parent support groups attend the ASD stakeholder group and feedback issues
Ramona Murray Simon Humphreys Judith Holliman
Ongoing
Ongoing
Ongoing
Ongoing
ASD Lead officer (ASD grant) Costs
Feedback from parents
Appropriate training is available to support parent support groups and individual parents; carers
Awareness of the various strategies and tools available, including the principles e.g. PECS Offer 2 spaces for Socialeyes facilitator training to parents
Ramona Murray Dr Elin Walker Jones Wen Hayton Ramona Murray Alison Kristian Judith Holliman
May 2010
Ongoing
October 2010
ASD grant Slippage bid
Feedback from parents – review of Action Plan late 2010 Evaluation to feed back to WAG
Carers or parents of adults and children with ASD are aware of how to access an assessment of their needs
Information provided on the ASD web page ; Care Pathway and Directory
Ramona Murray Lucy Smith All Social Workers
Ongoing August 2010
Possible resource implication due to increased referrals
Feedback from parents – review of Action Plan late 2010
62
Siblings of a person with an ASD are aware of how to access an assessment of their needs
Information provided on the ASD web page / Care Pathway and Directory
Ramona Murray Lucy Smith All Social Workers
Ongoing August 2010
Possible resource implication due to increased referrals
Feedback from parents/ siblings – review of Action Plan late 2010
Local Authority Carers Officers and Carers Outreach service have appropriate awareness of the specific needs of parents and carers of young people and adults with ASD.
See strategic actions re training strategy
Training Sub Group March 2010
ASD lead Officer; Needs Analyst - ASD Grant
Feedback from parents – review of Action Plan late 2010
Families are offered follow up support post diagnosis including support around any identification of ASD in the parent following diagnosis of a child
Explore the feasibility of providing a Family Support Worker to develop and provide a Family Support service for parents and carers of a child, young person, or adult who has ASD
ASD Stakeholder Group
April 2010