applications of social media for research
TRANSCRIPT
Applications of Social Media for Research and Health Promotion
Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee
Q: Are there any other uses of social media in clinical medicine
or research that you want to learn about?
A: “No. This is a complete waste of time. This is not real research.
The fad will die out soon.”
“Teens are leaving Facebook in droves for new f r iends l ike Instagram, Snapchat and Twitter - at an estimated rate of up to a million a year…It’s hard to look cool when you’re hanging out with Mom and Dad.”
Articleurl&utm_campaign=social_42414&utm_medium=email&utm_source=healthdesignbyus Articleurl&utm_campaign=social_42414&utm_medium=twitter&utm_source=@healthbyus Articleurl&utm_campaign=social_42414&utm_medium=facebook&utm_source=healthdesignbyus
Google Analytics
Facebook Targeting by: • Age (18-25) • Location (United States or California) • Language (English) • Tobacco- and/or marijuana-related keywords
that appeared in their Facebook profiles
Patient survey about protein losing enteropathy (PLE) and plastic bronchitis (PB) • Hosted on website & Facebook page • Posted on 2 existing, patient-run Facebook
pages • Request for survey results ->asked to refer
other individuals • Google ads
Limitations • No available detailed clinical data (i.e.
hemodynamic data in CHD) • Disease verification • Bias of online communities • Privacy (social media is not secure)
Studies
• Descriptive Survey • Ethnography – Health communities/Makers
• Facebook Mining – Reliability of Health Information
• Patient powered research network?