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When Plain isn’t Boring: Using Health Literacy Principles

to Create Engaging Communication Products

Cynthia Baur, Ph.D.

Office of the Associate Director

for Communication, CDC

National Action Plan to Improve Health Literacy

The most important actions you

can take to improve health literacy

Available at

http://www.health.gov/communicati

on/HLActionPlan/

People Want to Know

Why do I need a flu shot?

Is cholesterol important to me?

Where should I go in an emergency?

What exactly is “moderate physical activity?”

Does that recommendation about a mammogram

apply to me?

Is this moderate physical activity?

What is a 2 times greater risk for pneumonia if I don’t get a flu shot? Greater than what?

What do these rates mean

for me?

80% risk of what?

8 of 10 women?

80 of 100?

.8

Is one better than the other?

What is Health Literacy? The degree to which individuals have the

capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions

4 actions

Obtain

Process

Understand

Decide

More than Reading and Writing…

Health Literacy includes:

Reading

Writing

Numeracy

Listening

Speaking

Cultural and conceptual knowledge

Factors that Influence Health Literacy

Communication and information-seeking skills Level of complexity of information Cultural and linguistic suitability

Location of information and services

Information channels

Existing public health infrastructure

“Do-ability” of recommendations

Health Literacy Levels by Self-Assessed Overall Health

Source: U.S.

Department of

Education, Institute of

Education Sciences,

National Center for

Education Statistics,

2003 National

Assessment of Adult

Literacy

Proportion of Adults by Literacy Type

Source: National

Center for Education

Statistics, Institute for

Education Sciences

National Profile of 8th Grade Mathematics Skills

Description % of 8th graders

Basic (at or above) Partial mastery 73

Proficient (at or above) Demonstrated

competency

34

Advanced Superior performance 8

Source: U.S. Department of Education, Institute of Education Sciences, National Center for Education Statistics,

National Assessment of Educational Progress (NAEP), 2009 Mathematics Assessment.

Example: Medication Instructions

Multiple studies find medication

instructions are confusing and cause

errors

Best outcome: use concrete

instructions

Yes: Take medicine at 9 a.m., noon, 3

p.m. and 6 p.m.

No: take every 3 hours

Health Literacy Tools

Audits

http://www.ahrq.gov/qual/pharmlit/index.html

Universal Precautions

http://www.ahrq.gov/qual/literacy/

Clear Communication Guidance

http://www.cdc.gov/healthmarketing/pdf/Simply_Put_082010.pdf

Health Literacy Principles

Invest in knowing and understanding your audiences

Recognize and adjust communication for group and individual differences

Engage members of your target groups in the process

Applying the Principles

of Health Literacy

Presenter: Eileen Hanlon, MHS

This section

• Basic principles to guide your work

• Skill 1: Assessing readability

• Skill 2: Rewriting

• Skill 3: Reviewing design elements

Basic principles

in line with social marketing

• The purpose and audience are clear

• Messages are limited (3-5)

• Action and benefits are described

• Engages the reader

What is the action?

• Ensure your audience will do the behavior you want

them to

• Specific actions are easier to do

• Use easy to read language, support statements and

design to support the action

More than

90 million

Americans

would have

trouble with

this.

Reduce the content

• Less is more – focus on

desired action

• Cut unnecessary

information

• Limit the number of

messages

• More bullets; fewer

paragraphs

4 key strategies

• To make materials more understandable and

actionable:

• Use common words, conversational style

• Give examples

• Make it interactive

• Use visuals that support message

What are they saying?

• A perissodactyl ungulate may be propelled toward a

body of aqueous fluid, but such ungulate cannot be

compelled or forcibly induced to imbibe such fluid.

Readers at lower levels

• Read slowly

• Read each word separately

• Skip unfamiliar words; use other words as clues

• Take meaning literally; miss context/big picture

• Get tired quickly; may not finish reading long text

Readability

• Readability is a key component of health literacy:

o 75% of Americans can read at 6th grade level

o but 90% can read at the 3rd grade level

• Aim to write at 3rd – 5th grade level

Use clear, lay language

• Use short, simple sentences

• Use common words and analogies

• Avoid or explain medical terms

• Avoid statistics

Example

• 20th grade level: “Benzac is injected just under the

skin in the abdominal area. Benzac injections are well

tolerated with a low incidence of injection site

reactions. Another type of injection can be given

intramuscularly (into the muscle). Most patients find

both injection types of similar tolerability.”

• 2nd grade level: “Benzac is given with a shot.

You can get this shot in your belly, or in a muscle.

Most men have no problems either way.”

Source: MM&M article

Skill 1: Assess readability

• Readability is measured by assessing multi-syllable

words and sentence length

• Three common methods:

o Word processing software

o Fry

o SMOG

• Checking readability by hand helps you see where

problems are

14

MSWord: Spelling & Grammar check

Statistics: Commonly misunderstood

Most statistics are meaningless to consumers:

• Half of Americans cannot complete simple calculation

• Half cannot give simple probabilities (i.e., flip of a coin)

• Most interpret risk as higher or cannot put in context of

other risks or benefits

o Example: 5% risk of death seems scarier than 95% survival

Why use statistics?

• Define the purpose of using the statistics or numbers:

o Show how common/rare

o Establish community: “you’re not alone”

o Explain risk

o For self-monitoring

o Calculate dosing; give instructions like frequency

• Find out what numbers will be meaningful to the reader

to do the action

Skill 2: Rewrite statistics

• Use simple verbal interpretation (“there is a small

chance”; “you are at greater risk if…”)

• Give context; compare risk to more familiar events

• Use simpler numbers (1 in 4)

• Add a simple visual depiction

• Stick to one type of number representation (ie, do not

mix rates and percentages)

Skill 2: Rewrite statistics

• Look at text

o Who is the target audience?

o What is the desired action?

o What information is necessary for the reader to lead to the desired

action?

Rewriting text

Before:

• Achieving the A1c goal of

less than 7% is essential,

since every 1% increase

above 6% elevates the risk

of diabetes complications

and the risk of heart

attacks.

After:

• It’s so important to set

and meet your A1c goal,

because lowering your

blood sugar can reduce

your risk of complications,

such as blindness, loss of

limbs, heart attack, and

stroke.

Eliminated statistics

Included a specific action

Provided the rationale for consumers

Skill 2: Rewrite statistics

• Measles can be a serious disease, with 30% of

reported cases experiencing one or more

complications. Death from measles occurred in

approximately 2 per 1,000 reported cases in the United

States from 1985 through 1992. Complications from

measles are more common among very young

children (younger than five years) and adults (older

than 20 years).

Immunization Action Coalition, Measles: Questions and Answers.

Use design as a communication tool

• Look at more than language and reading level

• Design, layout, and color are important

• Ask: “Does this design element support the message

and drive behavior?”

Visuals aid understanding of instructions

A study of 234 patients given trauma care at home

Discharge instructions Text only Text + visuals

Read the material 79% 98%

Recalled the material 6% 46%

Followed instructions 45% 86%

Source: Academic Emergency Medicine, March 1996.

Skill 3: Design for clarity

and ease of reading

• Leave more white

space

• Use larger fonts

• Use color appropriately

• Avoid technical

graphics

• Make illustrations

relevant to the content

Choose a clear, serif typeface

• This is a serif font (Times Roman). It has

little “feet” that connect the letters, making it

easier to read, especially in large blocks of

text.

• This is a sans serif font (Arial). While it

may look “cleaner,” it requires the

reader’s eyes to work harder, especially

in large blocks of text.

Put body parts in context

Source: CDC (2010). Prevent and Control Diabetes Guide

Design guides the reader

Before: 36 page booklet After: 16 page booklet

Bold type conveys the key

messages of the booklet

Using content to create a tool

From blue-ribbon panel statement To pocket card

508 compliance

• Ensures that people of all abilities can access Web

and electronic materials

• 508-compliant material doesn’t look very different from

non-compliant materials, but the internal coding and

programming is designed to be accessible by all

www.tobacco-cessation.org

Todd Phillips – AED

Creating Materials to Help Smokers Choose

Evidence-Based Cessation Treatments

www.tobacco-cessation.org

www.tobacco-cessation.org

100

184

268

Some HS GED HS diploma Some college Associates College Post grad

Below

Basic

Inter-

mediate

225

Source: National Assessment of Adult Literacy 2003, The Health Literacy of American Adults, September 2006.

Basic

Health Literacy Scores by Education

www.tobacco-cessation.org

0

10

20

30

40

50

GED HS diploma Some college Associates College Post grad

Cu

rre

nt

sm

ok

ers

(%

)

Source: CDC, MMWR Tobacco Use Among Adults—United States, 2005. October 27, 2006.

Smoking by Education Level

www.tobacco-cessation.org

What Does This Tell Us

Millions of smokers may lack the skills to correctly use evidence-based cessation products and services

May partially explain the appeal of “cold turkey” and the use of non-evidence-based products (“Smoke Away,” herbal supplements, hypnosis, etc.)

Only 20-30% use evidence-based cessation treatment

www.tobacco-cessation.org 13-page fact sheet

www.tobacco-cessation.org 40-page booklet

www.tobacco-cessation.org

About NTCC

NTCC is a coalition of leading tobacco control organizations working together to advance tobacco cessation efforts

CDC, NCI, NIDA, RWJF, ACS, Legacy

Card development funded by RWJF

Goal: Get more smokers to use evidence-based treatments when quitting

Consumer Reports

www.tobacco-cessation.org

NTCC PHS Guideline Recommendations Outreach

In collaboration with RWJF and Dr. Michael Fiore, developed a “Consumer Reports” style card

Translated the recommendations for consumers

Provides objective and easy-to-understand information on cessation choices

Visually appealing and easy-to-read format

www.tobacco-cessation.org

Consumer Testing

6 triad discussions (small group discussions with 3 participants)

3 each in 2 phases of research; 1 low-education group in each phase

Current smokers interested in quitting smoking but not currently making a quit attempt.

www.tobacco-cessation.org

Phase I Concepts

www.tobacco-cessation.org

Phase I Concepts

www.tobacco-cessation.org

Phase I Findings

Positive response to cards overall

Participants found the cards informative, easy-to-understand, and helpful

Amount of information was ideal; not too overwhelming

Participants liked the design and colors

Pocket-sized format was useful

www.tobacco-cessation.org

Phase I Findings

Font size was too small

Lower education group wanted the cards to be more personal and wanted to see pictures and testimonials from smokers like themselves.

Some felt card was too “clinical” and would be something you would get in a doctor’s office

www.tobacco-cessation.org

Phase II

Feedback from Phase I was incorporated into new designs

To enlarge the size of the chart but still retain a pocket-sized product, folded cards were created.

Allowed for larger font as well as additional features, such as photos and quotes.

www.tobacco-cessation.org

Phase II Concepts

www.tobacco-cessation.org

Phase II Concepts

www.tobacco-cessation.org

Phase II Concepts

www.tobacco-cessation.org

Phase II Findings

Similar feedback as Phase I cards

Felt the photos/quotes were a way of “easing into” the information; not immediately overwhelmed by a lot of text

Felt the quotes were accurate statements about quitting

Participants thought the photos made the cards more personal and eye-catching

Response to actual images was mixed; some felt portrayed everyday life, but others felt the images were not realistic enough

www.tobacco-cessation.org

Phase II Findings

Participants preferred a combination of the three versions tested

The final version of the card is based on the blue card from Phase II

A additional fold was added to create a pocked-sized version

Photos/quotes were added to create a more personal feel

www.tobacco-cessation.org

Final Consumer Card

www.tobacco-cessation.org

Final Consumer Card

www.tobacco-cessation.org

Final Consumer Card

www.tobacco-cessation.org

Consumer Reports

www.tobacco-cessation.org

Final Consumer Card

www.tobacco-cessation.org

Website (whatworkstoquit.tobacco-cessation.org)

www.tobacco-cessation.org

Promotion/Distribution

Can be adapted by other groups

Distribute to doctors, clinics, retail outlets, pharmacies

Partnering opportunities

www.tobacco-cessation.org

Lessons

To support behaviors/action, people need tools, not just prose

Health literacy guidelines can greatly improve the utility of tools

Health literacy principles are particularly important for reaching lower SES audiences

www.tobacco-cessation.org

Questions/Comments

Todd Phillips, AED

tphillip@aed.org

www.tobacco-cessation.org

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