ukrdc_ukrr_22052014n.ppx. uk renal data collaboration (ukrdc) ukrr birmingham 22 may 2014 keith...
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UKRDC_UKRR_22052014n.ppx
UK Renal Data Collaboration(UKRDC)
UKRR Birmingham22 May 2014
Keith Simpson
medical advisor to the UK Renal Registry
keith.simpson@nhs.net
UK Renal Registry UKRR
Scottish Renal Registry SRR
Renal Patient View RPV Renal PatientView
UK Registry for Rare Kidney Diseases RaDaR
British Association for Paediatric Nephrology BAPN
NHS Blood & Transplant
Northern Ireland Nephrology Forum
Welsh Renal Clinical Network
UK Renal Data Collaboration(UKRDC)
UKRDCWebsite
Board
Members IT suppliers
Terminology & coding
Infrastructure
Projects
UKRDC – draft structure
Supports its members to improve use of data to:
1) Care for patients
2) Research
3) Teach & learn
4) Run the services
5) Quality & safety improvement
UK Renal Data Collaboration
RPV
.
Labs
RenalUnits
UKRR
SRR
RaDaR
NHSBT
OtherNational data
BAPN
UK Renal Data
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
RPV
.
UK Renal Data Collaboration
UKRR
SRR
RaDaR10-20 gps
BAPN
Regular meeting with the UKRDC members
Data sets collected
UKRDC Data Model – bigger picture
.
UK Renal Data Collaboration
Warehouse
Secure server within N3
InterSystems software
FastPowerfulFlexibleExpandableTrainingSupported
Translation engine – middle wareSupports SQL
.
UK Renal Data CollaborationRenalUnits
Presentations at RA Meetings Bournemouth & GlasgowBAPN annual Meeting – BirminghamSRR Meeting AyrClinical Directors Meeting – ManchesterWritten to all CDsarticles on RA website and UKRR newsletters
Renal IT companiesPlenary session BristolIndividual meetings at their offices
Communications:What2 wayDiscussions with HSCIC – Leeds – SNOMED CT for diagnoses & proceduresRCP Health Info Unit – Clinical Document ArchitectureRoyal Col path – Lab results – NLMCWill include ability to send free textmeta data (when what how, ref range, assay used -possible
HowEncryptedLoggedHL7 – possibly ‘FHIR’
Request for a new lab test
JM – Data set group of UK Renal Terminology Committee:Check it is new, get NLMC code, confirm meta data, publish on UKRDC websiteReply to request
Send to Dr James Medcalf
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
National Laboratory Medicine Catalogue(cross referenced to SNOMED CT)
Request for a new Diagnosis or Procedure
AC – Diagnosis & Procedures groupUK Renal Terminology Committee:Check it is new, get SNOMED CT code, confirm semantic relationshipsPublish on UKRDC websiteReply to request
Send to Dr Afzal Chaudhry
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
An early project• D4D Grant
Enabling patients to initiate medicine reconciliation via RPV
Summary• A new collaboration for managing data in UK
Renal Medicine• Using industry standard tools• Enabling patients to see and contribute to their
medical record• Enabling our 5 functions
• Support from Patients, Renal units, Renal IT Industry, NHS, Colleges
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