social media and health

Jodi  Sperber,  MSW,  MPH  October  21,  2010  

Social  Media  and  Health  

Before  you  take  notes…  

www.slideshare.net/jsperber

What  is  it  NOT?  

Same  thing,  only  different  

 Communication  is  always  evolving   Social  media  is  the  latest,  and  perhaps  most  significant,  shift  in  communication  

 Does  not  replace  other  media  

What  is  different?  

Many            Many  

One            Many  

Why  is  this  important?   Dramatic  shift  in  how  information  is  shared   Barriers  to  participation  greatly  reduced     Anyone  has  the  chance  to  be  heard   With  free  tools  and  expanding  platforms,  creativity  beats  $$  

Basic  Principles  

  Participation    Openness    Conversation    Community    Connectedness  

Adapted  from  http://is.gd/cWWZ9  

Access  to  information  online  

Spring  2000   Spring  2009  

Access  to  Internet   <50%   75%  

Broadband   5%   57%  

Seek  health  info  online   25%   61%  

Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  

Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  

Health  is  social   57%  turn  to  Internet  when  they  need  info  and  assistance  in  dealing  with  health  or  medical  issues.  

 60%  say  information  found  online  affected  a  decision  about  how  to  treat  an  illness  or  condition.  

 56%  say  it  changed  their  overall  approach  to  maintaining  their  health  or  the  health  of  someone  they  help  take  care  of.  

Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  

Decisions  &  actions  impacted   53%  -­‐  led  them  to  ask  a  doctor  new  questions,  or  to  get  a  second  opinion  from  another  doctor.    

 49%  -­‐  changed  the  way  they  think  about  diet,  exercise,  or  stress  management.  

 38%  -­‐  affected  decision  about  whether  to  see  a  doctor.  

 38%  -­‐  changed  the  way  they  cope  with  a  chronic  condition  or  manage  pain.  

• Use  of  mobile  devices  is  rising  

• Blacks  and  Latinos  less  likely  to  have  broadband  access  at  home,  more  likely  to  use  mobile  phones  

Are  you  thinking  socially?  

Photo  credit:  See-­‐ming  Lee,  via  Creative  Commons  License  

Hospitals  have  started  to  adopt   2,259  social  networking  sites  as  of  10/19   871  Hospitals  total   All  50  states  represented   421  YouTube  Channels   679  Facebook  pages   648  Twitter  Accounts   417  LinkedIn  Accounts   94  Blogs  

Full  list:  http://ebennett.org/hsnl/        

Mission:  Lead  the  social  media  revolution  in  health  care,  contributing  to  health  and  

well  being  for  people  everywhere.  

Consulting   Speaking  

Coaching   Training  

Network  Building  

One  story:  Twitter  leads  to  diagnosis  and  Tx    1.  Mother  reads  story  USA  Today  re:  wrist  pain  2.  Tells  daughter  about  news  story  3.  Daughter  participates  in  #wristpain  tweet  

chat  hosted  by  Mayo  4.  Talks  with  same  doctor  from  news  story  and  

reviews  Mayo  site  for  information  5.  Makes  appointment  with  doc  6.  Diagnosis  made,  surgery  within  24  hours  7.  Blog  post  about  experience,  which  further  spreads  

information…    

Technology  is  just  a  platform;  it’s  what  people  do  with  the  technology  

that  makes  a  difference.  

Are you thinking socially?  

Photo  credit:  The  Washington  Post  Peeps  Show  IV  

How  is  it  used?  

To  learn  

To  connect  along  commonalities   Patients   Providers   Staff   Constituencies  

To  share  experiences  

To  share  experiences  

To  make  “health  thinking”  fun  and  normative  

To  host  conversations  

Full  list  here:  http://bit.ly/dsnQoj    

Are  you  thinking  socially?  (and  mobile?)  

Photo  credit:  maistora,  via  Creative  Commons  license  

“Facebook  for  doctors”  

• Find  office  phone  or  fax  for  virtually  any  US  physician  

• Search  for  24hr  pharmacies,  hospitals,  and  labs  

• Locate  former  classmates  and  residents  

• Exchange  private  phone  lists,  back  lines,  and  pagers  

• Send  HIPAA-­‐compliant  text  messages  to  colleagues  

“[I]ntegrating  social  media  into  health  communication  campaigns  

and  activities  allows  health  communicators  to  leverage  social  

dynamics  and  networks  to  encourage  participation,  

conversation,  and  community  –  all  of  which  can  help  spread  key  messages  and  influence  health  

decision  making”  

What’s  next?  

Photo  credit:  FreeFoto.com,  via  Creative  Commons  license  

Other  resources   We  are  Media  Presentation  for  AIDS.gov  team  

 CDC  Social  Media  Kit  (pdf)   Social  Media  University,  Global  (SMUG)   35  Social  Media  Theses  

Type   Concept   Examples  

Blogs  

Online  journal  where  posts  are  arranged  in  reverse  chronological  order.    Often  combines  text,  pictures,  links,  video.  

Talking  Points  Memo,  Disease  Management  Care  Blog,  many  newspapers  

Content  Communities  

Place  to  organize  and  share  content.  

YouTube,  Flickr,  del.icio.us,  digg,  SlideShare  

Forums   Online  space  for  open  discussion.  

ACOR,  PatientsLikeMe  

Adapted  from  http://is.gd/cWWZ9  

Type   Concept   Examples  

Microblogs   A  very,  very  short  blog.   Twitter,  Yammer  

Podcasts  

Audio  and  video  recordings,  which  can  be  downloaded  one  by  one,  or  automatically  via  subscription.  

Name  your  area  of  interest,  and  there’s  likely  a  podcast…    

Social  Networking  Service  

Online  space  to  build  a  personal  profile  and  connect  with  others.  

Facebook,  MySpace,  Twitter  

Wikis  A  site  that  allows  users  to  enter  and  edit  content.  

Wikipedia,  answers.com  

Adapted  from  http://is.gd/cWWZ9