md pt nav training navigation 101 final - wordpress.com...cancer institute principles of patient...

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101

Eliz

abet

h H

atch

er, R

N, B

SNSp

ecia

l Pro

ject

s Coo

rdin

ator

GW

Can

cer I

nstit

ute

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Lear

ning

Obj

ecti

ves

At t

he e

nd o

f thi

s pr

esen

tatio

n yo

u w

ill b

e ab

le to

:•

Rev

iew

of d

efin

ition

and

prin

cipl

es o

f na

viga

tion

•R

evie

w o

f mod

els

of n

avig

atio

n•

Def

ine

role

and

resp

onsi

bilit

ies

of

navi

gato

rs•

Iden

tify

appl

icat

ion

to p

ract

ice

setti

ng-t

ips

and

tool

s

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Def

init

ion

•P

atie

nt N

avig

atio

n is

an

inte

rven

tion

that

ad

dres

ses

barri

ers

to q

ualit

y st

anda

rd c

are

by p

rovi

ding

indi

vidu

aliz

ed a

ssis

tanc

e to

pa

tient

s, s

urvi

vors

, and

fam

ilies.

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Why

is P

atie

nt N

avig

atio

n N

eede

d?

•Fr

agm

ente

d an

d co

mpl

ex h

ealth

car

e sy

stem

•N

eed

to a

ddre

ss h

ealth

dis

parit

ies

and

impr

ove

qual

ity o

f life

for t

hose

affe

cted

by

canc

er, e

spec

ially

med

ical

ly u

nder

serv

ed•

Iden

tify

and

elim

inat

e ba

rrier

s to

car

e•

Cul

tura

lly c

ompe

tent

inte

rven

tion

base

d up

on s

peci

fic p

opul

atio

n ne

eds

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Prin

cipl

es o

f Pa

tien

t N

avig

atio

n

•N

avig

atio

n is

a p

atie

nt-c

entri

c he

alth

car

e se

rvic

e de

liver

y m

odel

.•

The

core

func

tion

of p

atie

nt n

avig

atio

n is

the

elim

inat

ion

of b

arrie

rs to

tim

ely

care

acr

oss

all

segm

ents

of t

he h

ealth

care

con

tinuu

m.

•P

atie

nt n

avig

atio

n sh

ould

be

defin

ed w

ith a

cle

ar

scop

e of

pra

ctic

e th

at d

istin

guis

hes

the

role

and

re

spon

sibi

litie

s of

the

navi

gato

r fro

m th

at o

f oth

er

prov

ider

s.Fr

eem

an H

P, “

Ove

rvie

w &

His

toric

al P

ersp

ectiv

e of

Pat

ient

Nav

igat

ion.

“ Nat

iona

l Pat

ient

Nav

igat

ion

Col

labo

rativ

e.

Was

hing

ton,

DC

. Dec

embe

r 9, 2

011

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Prin

cipl

es o

f Pa

tien

t N

avig

atio

n

•D

eliv

ery

of p

atie

nt n

avig

atio

n se

rvic

es s

houl

d be

cos

t-effe

ctiv

e an

d co

mm

ensu

rate

with

the

train

ing

and

skills

nec

essa

ry to

nav

igat

e an

in

divi

dual

thro

ugh

a pa

rticu

lar p

hase

of t

he

care

con

tinuu

m.

•Th

e de

term

inat

ion

of w

ho s

houl

d na

viga

te

shou

ld b

e de

term

ined

by

the

leve

l of s

kills

re

quire

d at

a g

iven

pha

se o

f nav

igat

ion.

Free

man

HP

, “O

verv

iew

& H

isto

rical

Per

spec

tive

of P

atie

nt N

avig

atio

n.“ N

atio

nal P

atie

nt N

avig

atio

n C

olla

bora

tive.

W

ashi

ngto

n, D

C. D

ecem

ber 9

, 201

1

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Type

s of

Nav

igat

ion

Mod

els

•Lo

ngitu

dina

l–

Nav

igat

ors

at e

ach

stag

e of

the

canc

er c

ontin

uum

su

ch a

s ou

treac

h an

d pr

even

tion,

scr

eeni

ng,

diag

nosi

s an

d tre

atm

ent,

and

surv

ivor

ship

–A

cros

s th

e “e

ntire

con

tinuu

m” w

ith a

nav

igat

or g

uidi

ng

them

from

sus

pici

ous

findi

ng to

pos

t-tre

atm

ent

surv

ivor

ship

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Type

s of

Nav

igat

ion

Mod

els

•Tu

mor

-site

spe

cific

–O

ften

clin

ical

role

, may

sta

rt w

ith h

igh

volu

me

popu

latio

n su

ch a

s br

east

•G

ener

alis

t–

Wor

k w

ith p

atie

nts

with

gre

ates

t nee

d

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Type

s of

Nav

igat

ors

•N

urse

Nav

igat

ors

(clin

ical

)•

Soc

ial W

orke

rs (p

sych

osoc

ial)

•La

y, tr

aine

d N

avig

ator

s (re

sour

ce lo

cato

rs,

care

coo

rdin

ator

s)•

Pee

r Nav

igat

ors

(sur

vivo

rs/c

areg

iver

s)•

Com

mun

ity H

ealth

Wor

kers

(out

reac

h)

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Role

of

Nav

igat

ors

•P

atie

nt e

duca

tion

•R

esou

rce

refe

rral

•C

are

coor

dina

tion

–S

ched

ulin

g ap

poin

tmen

ts–

Obt

aini

ng a

ppro

pria

te re

ferr

als

•S

erve

as

mai

n po

int o

f com

mun

icat

ion

for

patie

nts,

car

egiv

ers

& h

ealth

care

pro

vide

rs

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Role

of

Nav

igat

ors

•A

sses

s an

d ad

dres

s ba

rrie

rs to

car

e–

Lang

uage

–Fi

nanc

ial

–Tr

ansp

orta

tion

–C

hild

/eld

er c

are

–In

sura

nce

•C

onne

ct p

atie

nt w

ith c

linic

al tr

ials

•S

uppo

rt an

d em

pow

er p

atie

nts

thro

ugho

ut

the

canc

er jo

urne

y

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Def

inin

g th

e Ro

le o

f N

avig

ator

s

•N

atio

nal C

oalit

ion

of O

ncol

ogy

Nur

se

Nav

igat

ors

(NC

ON

N)

•A

cade

my

of O

ncol

ogy

Nur

se N

avig

ator

s (A

ON

N)

•O

ncol

ogy

Nur

sing

Soc

iety

(ON

S)

•A

ssoc

iatio

n of

Com

mun

ity C

ance

r Cen

ters

(A

CC

C)

–R

oles

and

resp

onsi

bilit

ies

for n

avig

ator

s

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

ACCC

: Ro

le o

f N

avig

ator

s

•P

oten

tial r

espo

nsib

ilitie

s in

clud

e–

Ass

ista

nce

with

pap

erw

ork

to e

nsur

e ac

cess

to c

are

–A

ct a

s si

ngle

poi

nt o

f con

tact

for p

atie

nts

and

fam

ilies

–A

sses

s cl

inic

al, e

mot

iona

l, ps

ycho

soci

al, f

inan

cial

spi

ritua

l, an

d ot

her n

eeds

–H

elp

deve

lop

a tre

atm

ent p

lan

that

is u

nder

stan

dabl

e to

the

patie

nt–

Acc

ompa

ny p

atie

nts

to a

ppoi

ntm

ents

–R

efer

pat

ient

s to

sup

porti

ve c

are

serv

ices

–D

irect

pat

ient

s to

ava

ilabl

e co

mm

unity

reso

urce

s–

Coo

rdin

ate

disc

harg

e pl

anni

ng a

nd fo

llow

up

to e

nsur

e co

mpl

ianc

e–

Enc

oura

ge p

atie

nts

to k

eep

and

upda

te m

edic

al re

cord

s

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

ACCC

: Ro

le o

f N

avig

ator

s

•P

oten

tial r

espo

nsib

ilitie

s in

clud

e–

Coo

rdin

ate

mul

ti-di

scip

linar

y co

nsul

tatio

ns o

r tum

or c

onfe

renc

es–

Dev

elop

pat

ient

edu

catio

n m

ater

ials

, clin

ical

pat

hway

s, a

nd q

ualit

y st

udie

s–

Wor

k to

ens

ure

timel

y ap

poin

tmen

ts, r

esul

ts re

port,

and

co

mm

unic

atio

n–

Wor

k w

ith c

omm

unity

org

aniz

atio

ns to

iden

tify

serv

ice

gaps

–M

onito

r and

repo

rt on

out

com

es m

easu

res

–O

utre

ach

to u

nder

serv

ed a

nd/o

r rur

al p

opul

atio

ns

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

ACCC

: Ro

le o

f N

avig

ator

s

•R

espo

nsib

ilitie

s m

ust f

it na

viga

tor’s

ex

perie

nce

and

scop

e of

pra

ctic

e•

Nav

igat

ors

and

supe

rvis

ors

mus

t be

clea

r on

the

navi

gato

rs ro

le•

Ser

vice

s pr

ovid

ed m

ay d

epen

d on

pat

ient

vo

lum

es

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

ON

S Ro

le D

elin

eati

on

•O

NS

Onc

olog

y N

urse

Nav

igat

or R

ole

Del

inea

tion

Stu

dy (2

012)

•33

0 nu

rses

sur

veye

d•

Rat

ed ta

sks,

kno

wle

dge

area

s, a

nd s

kills

of

ON

Ns

•C

alle

d fo

r add

ition

al re

sear

ch a

nd

cons

ensu

s bu

ildin

gB

row

n, C

., C

antri

l, C

., M

cMul

len,

L.,

Bar

kley

, D.,

Die

tz, M

., M

urph

y, C

. & F

abre

y, L

. (20

12).

Onc

olog

y nu

rse

navi

gato

r rol

e de

linea

tion

stud

y: A

n O

ncol

ogy

Nur

sing

Soc

iety

repo

rt. C

linic

al J

ourn

al o

f Onc

olog

y N

ursi

ng,

16(6

): 58

1-58

5

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

ON

S Ro

le D

elin

eati

on

•Ta

sks:

Em

otio

nal &

edu

catio

nal s

uppo

rt,

empo

wer

pts

to s

elf-a

dvoc

ate,

col

labo

rate

with

ph

ysic

ians

, ass

ist p

ts to

mak

e in

form

ed

deci

sion

s•

Kno

wle

dge

Are

as: G

oal o

f tre

atm

ent,

ther

apeu

tic

optio

ns, E

BP

gui

delin

es, p

rofe

ssio

nal s

cope

of

prac

tice

•S

kills

: Com

mun

icat

ion,

pro

blem

sol

ving

, tim

e m

anag

emen

t, ad

voca

cyB

row

n, C

., C

antri

l, C

., M

cMul

len,

L.,

Bar

kley

, D.,

Die

tz, M

., M

urph

y, C

. & F

abre

y, L

. (20

12).

Onc

olog

y nu

rse

navi

gato

r ro

le d

elin

eatio

n st

udy:

An

Onc

olog

y N

ursi

ng S

ocie

ty re

port.

Clin

ical

Jou

rnal

of O

ncol

ogy

Nur

sing

, 16

(6):

581-

585

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Mod

els

in P

ract

ice:

Cas

e St

udie

s

•D

CC

C’s

City

wid

e P

atie

nt N

avig

ator

N

etw

ork

•A

CC

C B

reas

t Can

cer N

avig

atio

n P

rogr

am•

LIV

EST

RO

NG

Nav

igat

ion

Ser

vice

s•

Ulm

an C

ance

r Fun

d fo

r You

ng A

dults

•G

W C

ance

r Ins

titut

e

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

DCC

C Ci

tyw

ide

Pati

ent

Nav

igat

or

Net

wor

k (C

PNN

) 20

10-2

012

•N

etw

ork

of p

atie

nt n

avig

ator

s at

16

partn

er

inst

itutio

ns in

Was

hing

ton,

DC

fund

ed b

y D

C C

ance

r Con

sorti

um•

Pro

vide

s na

viga

tion

serv

ices

in c

omm

unity

an

d cl

inic

al s

ettin

gs a

cros

s th

e co

ntin

uum

•D

iffer

ent t

ypes

of n

avig

ator

s pr

ovid

ing

varie

d se

rvic

es

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Role

of

CPN

N N

avig

ator

s

•E

duca

te a

bout

scr

eeni

ngs,

dia

gnos

is,

treat

men

t, an

d su

rviv

orsh

ip•

Bui

ld p

artn

ersh

ips

in th

e co

mm

unity

•D

iscu

ss a

cces

s to

clin

ical

tria

ls•

Coo

rdin

ate

appo

intm

ents

with

pro

vide

rs to

en

sure

tim

ely

deliv

ery

of d

iagn

ostic

and

tre

atm

ent s

ervi

ces

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Role

of

CPN

N N

avig

ator

s

•M

aint

ain

com

mun

icat

ion

with

pat

ient

s, s

urvi

vors

, fa

mili

es, a

nd th

e he

alth

car

e pr

ovid

ers

•E

nsur

e ap

prop

riate

reco

rds

and

refe

rral

s ar

e av

aila

ble

at s

ched

uled

app

oint

men

ts

•A

rran

ge fo

r lan

guag

e, fi

nanc

ial,

trans

porta

tion,

ch

ild/e

lder

car

e, in

sura

nce,

med

icat

ion,

hom

e he

alth

car

e an

d ot

her f

orm

s of

sup

port

•C

onne

ct p

atie

nts

to re

sour

ces

and

supp

ort

serv

ices

•H

elp

patie

nts

lear

n to

nav

igat

e th

emse

lves

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

LIVE

STRO

NG

Nav

igat

ion

Serv

ices

•O

ne-o

n-on

e su

ppor

t thr

ough

edu

catio

n, re

ferra

ls, a

nd

coun

selin

g se

rvic

es–

In p

erso

n in

Aus

tin, T

X–

Via

pho

ne o

r onl

ine

•P

artn

ersh

ips

help

dire

ct p

atie

nts

to a

ppro

pria

te

reso

urce

s•

Ser

vice

s of

fere

d in

Eng

lish

& S

pani

sh

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

LIVE

STRO

NG

Nav

igat

ion

Serv

ices

•A

ssis

t with

–Fe

rtilit

y pr

eser

vatio

n–

Find

ing

assi

stan

ce w

ith in

sura

nce

issu

es–

Ref

errin

g to

reso

urce

s fo

r fin

anci

al a

ssis

tanc

e–

App

lyin

g fo

r sta

te &

fede

ral p

rogr

ams

–C

opin

g w

ith c

ance

r–

Tele

phon

e &

onl

ine

supp

ort g

roup

s–

Tips

for c

omm

unic

atin

g w

ith d

octo

rs, f

amily

–Fi

ndin

g cl

inic

al tr

ial o

ptio

ns–

Acc

ess

to tr

eatm

ents

and

med

ical

dev

ices

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

GW

CI’s

Pat

ient

Nav

igat

ion

Prog

ram

•La

y na

viga

tors

acr

oss

the

cont

inuu

m to

hel

p el

imin

ate

barri

ers

to c

are

and

prov

ide

supp

ort

•D

iagn

osis

–A

von

Pat

ient

Nav

igat

or•

Pro

vide

s su

ppor

t, en

sure

s ac

cess

to c

are

(insu

ranc

e an

d re

ferr

al is

sues

), tra

nsla

tion

serv

ices

, exp

lana

tion

of te

stin

g an

d co

nnec

tion

to re

sour

ces

as n

eede

d (tr

ansp

orta

tion,

cou

nsel

ing,

etc

)

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

GW

CI’s

Pat

ient

Nav

igat

ion

Prog

ram

•Tr

eatm

ent

–B

reas

t Car

e C

ente

r Nav

igat

or•

Pro

vide

s re

sour

ces

and

supp

ort f

or a

ll br

east

ca

ncer

pat

ient

s un

derg

oing

sur

gery

–R

adia

tion

Onc

olog

y N

avig

ator

•A

mer

ican

Can

cer S

ocie

ty/G

WC

I par

tner

ship

to

prov

ide

navi

gatio

n to

pat

ient

s re

ceiv

ing

radi

atio

n tre

atm

ent

–A

ddre

ss fi

nanc

ial,

psyc

hoso

cial

, tra

nspo

rtatio

n,

depe

nden

t car

e, tr

ansl

atio

n, a

nd c

omm

unic

atio

n ba

rrier

s

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

GW

CI’s

Pat

ient

Nav

igat

ion

Prog

ram

•P

ost-t

reat

men

t–

Sus

an G

. Kom

en F

ound

atio

n/G

WC

I par

tner

ship

to

prov

ide

surv

ivor

ship

nav

igat

ion

serv

ices

to in

divi

dual

s in

the

Thriv

ing

Afte

r Can

cer A

dult

Sur

vivo

rshi

p C

linic

–N

avig

ator

add

ress

es b

arrie

rs to

car

e &

pro

vide

s ed

ucat

ion

on p

ost t

reat

men

t iss

ues

such

as

late

and

lo

ng te

rm e

ffect

s of

can

cer a

nd tr

eatm

ents

–R

efer

rals

to s

uppo

rt se

rvic

es a

nd p

rogr

ams

to

impr

ove

self-

effic

acy

and

supp

ort o

vera

ll w

elln

ess

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

WH

Y yo

u do

wha

t yo

u do

: Be

nefi

ts o

f N

avig

atio

n

•P

atie

nt B

enef

its–

Impr

oved

acc

ess

to c

ance

r scr

eeni

ng a

nd d

iagn

ostic

s–

Impr

oved

acc

ess

to ti

mel

y m

edic

al tr

eatm

ent

–Im

prov

ed p

rogn

osis

with

ear

ly id

entif

icat

ion

and

treat

men

t of

canc

er–

Impr

oved

coo

rdin

atio

n of

car

e–

Impr

oved

com

fort

leve

l with

hea

lth c

are

prov

ider

s an

d th

e he

alth

ca

re s

yste

m–

Impr

oved

acc

ess

to fi

nanc

ial r

esou

rces

–Im

prov

ed a

cces

s to

sup

port

reso

urce

s

C-C

hang

e C

ance

r Pat

ient

Nav

igat

ion

Tool

kit:

ww

w.c

ance

rpat

ient

navi

gatio

n.or

g

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Bene

fits

of

Nav

igat

ion

•O

rgan

izat

iona

l Ben

efits

–E

arlie

r ide

ntifi

catio

n of

pat

ient

s w

ith c

ance

r, an

d be

tter p

rogn

osis

–Im

prov

ed c

oord

inat

ion

of c

are

with

can

cer p

rovi

ders

in th

e he

alth

car

e sy

stem

and

in th

e co

mm

unity

–Id

entif

icat

ion

and

rem

oval

of s

yste

mic

bar

riers

in a

cces

s to

car

e–

Impr

oved

effi

cien

cy in

use

of r

esou

rces

–Im

prov

ed p

atie

nt s

atis

fact

ion

with

can

cer t

reat

men

t exp

erie

nce

–Im

prov

ed in

tegr

atio

n of

the

com

mun

ity’s

can

cer s

uppo

rt re

sour

ces

–E

nhan

ced

conn

ectio

n to

the

cultu

ral a

nd g

eogr

aphi

c co

mm

unity

C-C

hang

e C

ance

r Pat

ient

Nav

igat

ion

Tool

kit:

ww

w.c

ance

rpat

ient

navi

gatio

n.or

g

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Mea

suri

ng P

atie

nt N

avig

atio

n

•N

CI P

atie

nt N

avig

atio

n R

esea

rch

Pro

gram

(P

NR

P) f

unde

d n

ine

(9) s

ite d

emon

stra

tion

proj

ects

& te

sted

:•E

ffect

iven

ess

of p

atie

nt n

avig

atio

n fro

m

scre

enin

g to

tim

e of

dia

gnos

is a

nd

treat

men

t•I

mpa

ct o

n pa

tient

sat

isfa

ctio

n•C

ost-e

ffect

iven

ess

of p

atie

nt n

avig

atio

n pr

ogra

ms

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Mea

suri

ng P

atie

nt N

avig

atio

n

•Im

porta

nt to

trac

k im

pact

of p

rogr

am•

Set

ting

goal

s, d

eter

min

ing

the

eval

uatio

n pl

an &

trac

king

Ret

urn

on In

vest

men

t (R

OI)

are

impo

rtant

in p

lann

ing

a na

viga

tion

prog

ram

in o

rder

to m

easu

re

and

sust

ain

prog

ram

s

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

Proc

ess

Mea

sure

s

•P

atie

nt E

ncou

nter

s–

Nav

igat

or c

asel

oad

–C

omm

unic

atio

n be

twee

n na

viga

tor a

nd

patie

nt–

Adh

eren

ce to

sc

hedu

led

clin

ical

vi

sits

–B

arrie

rs/A

ctio

ns

•P

atie

nt S

atis

fact

ion

–D

ecre

ase

in

outm

igra

tion

•P

rogr

amm

atic

–S

ervi

ces

acro

ss

cont

inuu

m–

Mar

ketin

g of

pro

gram

–P

olic

y an

d pr

oces

s–

Eva

luat

ion

–P

atie

nt E

duca

tion

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Appl

icat

ion

•W

hat m

odel

doe

s yo

ur p

rogr

am a

lign

with

?•

Wha

t rol

e do

you

pla

y?•

Wha

t ser

vice

s do

you

pro

vide

?•

How

do

you

com

mun

icat

e w

hat y

ou d

o to

ot

hers

?

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•N

eeds

ass

essm

ent o

f pat

ient

pop

ulat

ion

info

rms

prog

ram

dev

elop

men

t and

de

cisi

ons

•K

now

you

r sco

pe o

f pra

ctic

e–

Res

pons

ibili

ties

shou

ld b

e ap

prop

riate

for

leve

l of e

xper

ienc

e, e

xper

tise

•C

linic

al e

duca

tion,

reso

urce

refe

rral,

psyc

hoso

cial

as

sess

men

t, et

c.

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•D

ocum

ent e

ncou

nter

s–

EM

R/H

ER

–E

xcel

–N

avig

atio

n so

ftwar

e

•Tr

ack

outc

omes

–W

hat i

s im

porta

nt to

kno

w to

sho

w s

ucce

ss?

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•C

onne

ct w

ith p

atie

nts

–H

ow w

ill y

ou g

et re

ferr

als?

–H

ow w

ill p

atie

nts

be a

ppro

ache

d fo

r ser

vice

s w

hile

mai

ntai

ning

con

fiden

tialit

y?–

Do

you

feel

com

forta

ble

prov

idin

g cu

ltura

lly

com

pete

nt s

ervi

ces?

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•E

stab

lishi

ng ra

ppor

t with

pat

ient

s–

Cre

ate

a po

sitiv

e en

viro

nmen

t •

Res

pect

ing

priv

acy

•B

eing

aw

are

of y

our b

ody

lang

uage

–Th

ink

abou

t the

tim

ing

of th

e en

coun

ter

•B

efor

e or

afte

r mee

ting

with

the

MD

–U

se a

sses

smen

t/int

ake

tool

s to

gat

her a

ll th

e in

form

atio

n yo

u ne

ed

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•K

now

wha

t nat

iona

l res

ourc

es a

re

avai

labl

e:–

Can

cerC

are

–P

atie

nt A

dvoc

ate

Foun

datio

n–

LIV

EST

RO

NG

–C

ance

r Leg

al R

esou

rce

Cen

ter

–C

ance

r and

Car

eers

–A

ssoc

. of C

omm

unity

Can

cer C

ente

rs (A

CC

C)

Pat

ient

Ass

ista

nce

& R

eim

burs

emen

t Gui

de

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Tip

s

•K

now

wha

t loc

al re

sour

ces

are

avai

labl

e:–

Food

and

Frie

nds

–O

ffice

s on

Agi

ng–

Chu

rch

& c

omm

unity

gro

ups

–S

uppo

rt gr

oups

and

act

iviti

es a

t oth

er

inst

itutio

ns

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Too

ls

•A

ctiv

ity–

How

will

you

com

mun

icat

e th

e se

rvic

es y

ou

are

prov

idin

g to

phy

sici

ans

and

othe

r m

embe

rs o

f the

car

e te

am?

•Im

porta

nt fo

r peo

ple

to k

now

wha

t you

do,

whe

n to

re

fer p

atie

nts,

whi

ch p

atie

nts

to re

fer,

and

how

you

he

lp im

pact

the

over

all g

oals

of t

he o

rgan

izat

ion

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Nav

igat

ion

101:

Too

ls

•Ti

ps fo

r Cra

fting

an

Ele

vato

r Pitc

h–

Sum

mar

y of

ser

vice

s yo

u pr

ovid

e an

d th

e va

lue

you

add

•S

hort,

sim

ple,

com

pellin

g, in

clud

e pl

an fo

r fol

low

or

addi

tiona

l con

tact

–Ta

ilore

d to

diff

eren

t aud

ienc

es•

Clin

icia

ns•

Pat

ient

s•

Inst

itutio

n•

Fund

ers

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Conc

lusi

on

•P

atie

nt n

avig

ator

s pr

ovid

e m

uch

need

ed

serv

ices

to a

ssis

t can

cer p

atie

nts

to

over

com

e ba

rrier

s to

car

e th

roug

h co

ordi

natio

n, re

ferra

l, ed

ucat

ion

and

supp

ort.

Can

cer I

nstit

ute

Cent

er f

or t

he A

dvan

cem

ent

of C

ance

r Su

rviv

orsh

ip,

Nav

igat

ion

and

Polic

yC

ance

r Ins

titut

e

Than

ks!

Eliz

abet

h H

atch

er, R

N, B

SN

eoha

tche

r@gw

u.ed

u20

2-99

4-22

15