long hospitalization multiple hospitalization longer stays at home multiple or long school absences

INTEGRATION AND REINTEGRATION OF SICK CHILDREN AND ADOLESCENTS INTO MAINSTREAM SCHOOLSHOPE WS 17, OCTOBER 2012

SINJA JANČAR

HOSPITAL SCHOOL LEDINA

LJUBLJANA, SLOVENIA

Will I be able to rejoin the group or will I be rejected?

I will be remembered by being frequently absent from school because of my chronic illness, cystic fibrosis.

TIME OF HOSPITALIZATION

Long hospitalization

Multiple hospitalization

Longer stays at home

Multiple or long school absences

Communication

First levelCommunication among

Hospital school

Medical team Parents

Sharing practices

Good

Bad

Planning

Second levelCommunication between

Mainstream school

Hospital school

Sharing practices

Good

Bad

Joint planning

Third levelCommunication between

Parents

Mainstream school

Sharing practices

Good

Bad

Joint planning

Fourth levelCommunication among

Hospital school

Mainstrean school

Parents

Medical team

Sharing practices

Good

Bad

Joint planning

Fifth levelCommunication among

Medical team

School peers

Hospital school Sharing

practices

Good

BadWithout

Joint planning

School peers

Education for mainstream school teachers

Self-seeking resources

Other organisations(Cancer Association, Kidney Patients Association…)

Pedagogical University

Hospital school (act as consultants)

Slovenian Legislation

How is it with legislation in your country?

still defines still guarantees

Five hours of extra

professional help a week

By the Hospit

al school

By the Mainstr

eam school

Where do the children and adolescents with long term diseases in your country belong to?

Children with special needs

Others

Children and adolescents

with long term diseases

Differences in legislation

COUNTRY LEGISLATION

SI •The children and adolescents with long term diseases as the children with special needs.•Five hours of extra professional help a week (individual learning help).

The goverment gives money for children with long term diseases - unlimited