jacob b weiss, phd 4/24/2009 canconnect.org department of biomedical informatics, vanderbilt...

Jacob B Weiss, PhD4/24/2009

CanConnect.orgDepartment of Biomedical Informatics, Vanderbilt University

Catch It Early

Themes from Summit Day 1Collaboration

Community-based participatory research

Cancer survivorship

Awareness of community resources

Emerging Web Technologies?Emerging Web Technologies?

Cancer as a Chronic Illness

DiagnosisDiagnosis TreatmentTreatment SurvivorshipSurvivorship

Community-Based Support

InpatientClinic Team

OutpatientCommunity Support

Clinical CareTeam

Clinical CareTeam

Patients and Families

Patients and Families

LocalCommunity

Support

Institute of Medicine (IOM). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: The National Academies Press, 2007

Gustafson DH, Hawkins RP, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics. 2002;65(3): 169-177.

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations

Local cancer-related calendar & news blogLocal cancer-related calendar & news blog

Local resource listings (tagged by keywords)Local resource listings (tagged by keywords)

Design of the Online Community

www.canconnect.org

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations

Patient-to-patient mentorship connection

Patient-to-patient mentorship connection

Social networking profiles

Social networking profiles

Design of the Online Community

www.canconnect.org

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations

Private community partner forum

Private community partner forum

Design of the Online Community

www.canconnect.org

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations Stories shared emphasize life

lessons and humor

Stories shared emphasize life

lessons and humor

Focus on community support resources and

partners

Focus on community support resources and

partners

Design of the Online Community

www.canconnect.org

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations

Google map to visualize support

organizations

Google map to visualize support

organizations

Searchable archive of local events, news, program contacts

Searchable archive of local events, news, program contacts

Design of the Online Community

www.canconnect.org

Awareness

Connecting

Collaboration

Community & Survivorship Focus

Knowledge Management

Underserved Populations

Increase visibility through shared stories

and relevant resources

Increase visibility through shared stories

and relevant resources

Design of the Online Community

www.canconnect.org

A Home

To Share

A Home

To Celebrate and Recognize

Provide Access

To Information

Synthesize and Filter

“Windows” into the Community

Listen and Participate

The Pulse of the Community

www.twitter.com/canconnectwww.twitter.com/canconnect

www.youtube.com/canconnectwww.youtube.com/canconnect

Partner

Supporting Community Activities

“As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.”

“As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.”