jacob b weiss, phd 4/24/2009 canconnect.org department of biomedical informatics, vanderbilt...
TRANSCRIPT
Jacob B Weiss, PhD4/24/2009
CanConnect.orgDepartment of Biomedical Informatics, Vanderbilt University
Catch It Early
Themes from Summit Day 1Collaboration
Community-based participatory research
Cancer survivorship
Awareness of community resources
Emerging Web Technologies?Emerging Web Technologies?
Cancer as a Chronic Illness
DiagnosisDiagnosis TreatmentTreatment SurvivorshipSurvivorship
Community-Based Support
InpatientClinic Team
OutpatientCommunity Support
Clinical CareTeam
Clinical CareTeam
Patients and Families
Patients and Families
LocalCommunity
Support
Institute of Medicine (IOM). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: The National Academies Press, 2007
Gustafson DH, Hawkins RP, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics. 2002;65(3): 169-177.
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations
Local cancer-related calendar & news blogLocal cancer-related calendar & news blog
Local resource listings (tagged by keywords)Local resource listings (tagged by keywords)
Design of the Online Community
www.canconnect.org
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations
Patient-to-patient mentorship connection
Patient-to-patient mentorship connection
Social networking profiles
Social networking profiles
Design of the Online Community
www.canconnect.org
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations
Private community partner forum
Private community partner forum
Design of the Online Community
www.canconnect.org
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations Stories shared emphasize life
lessons and humor
Stories shared emphasize life
lessons and humor
Focus on community support resources and
partners
Focus on community support resources and
partners
Design of the Online Community
www.canconnect.org
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations
Google map to visualize support
organizations
Google map to visualize support
organizations
Searchable archive of local events, news, program contacts
Searchable archive of local events, news, program contacts
Design of the Online Community
www.canconnect.org
Awareness
Connecting
Collaboration
Community & Survivorship Focus
Knowledge Management
Underserved Populations
Increase visibility through shared stories
and relevant resources
Increase visibility through shared stories
and relevant resources
Design of the Online Community
www.canconnect.org
A Home
To Share
A Home
To Celebrate and Recognize
Provide Access
To Information
Synthesize and Filter
“Windows” into the Community
Listen and Participate
The Pulse of the Community
www.twitter.com/canconnectwww.twitter.com/canconnect
www.youtube.com/canconnectwww.youtube.com/canconnect
Partner
Supporting Community Activities
“As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.”
“As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.”