fun with hae!

www.haecanada.org

FUN with HAE!A Patient Services Story

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Patient ServicesWhat are Patient Services? 1. HAE Updates2. HAE Summit3. Awareness and Education4. Patient Assistance

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HAE UpdatesWhat are they? • Fun meetings held across the country

where you can meet other patients, hear a physician speaker, and get your questions answered.

• Often the first time a patient has ever met another patient.

• Free food!

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HAE Updates

Physician Speaker

Patients & Family! Free Food

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HAE Updates

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HAE UpdatesComing this Fall• Vancouver• Edmonton• SaskatoonComing this Winter• Montreal• Ottawa• KingstonComing this Spring• Regina• Halifax

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HAE SummitWhat’s the purpose? To unite the national community by once a year bringing patients together from across the country:• To participate in educational sessions • Attend our annual AGM• Hear physician speakers• And meet other patients!

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HAE SummitThe Future of the Summit: • The location will change every year. • We hope it will grow into a can’t miss

event for HAE patients in Canada!

Like the Stanley Cup!

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Awareness and EducationWho do we want to reach?1. Undiagnosed patients2. Diagnosed patients (you guys!)

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Awareness and EducationWe do this in several ways….One is by creating a presence for the HAE community online via:• Our Website• Social Media• Public Awareness• Participation

www.haecanada.org

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Awareness and Education

www.haecanada.org

Awareness and Education

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Awareness and EducationSocial Media:

Facebook.com/HAECanada Twitter.com/HAECanada

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Awareness and EducationPublic Awareness• Create press releases• Talk to media outlets• Arrange interviews• What do we need?

YOU!

www.haecanada.org

www.haecanada.org

Awareness and EducationYou can help!

Please send us your stories and photographs!

Email it to Lucy.harris@haecanada.org

(You can also find me later and get my business card… )

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Awareness and Education• Participation in:

HAE Walk

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Patient AssistanceWe have patient assistance programs in practice and in production. 1. Comprehensive Care Stop-Gap2. Ancillary Supply Program3. Centers of Excellence

But….you need to be a MEMBER!

www.haecanada.org

How You Can Help1. Attend HAE Events (updates + summits)2. Follow us on Facebook/Twitter 3. Check the Website frequently (all the time!)4. Write up your patient story and email it to us!5. Sign-up for membership!Bonus: Sign friends/family up for membership!

www.haecanada.org