fun with hae!
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FUN with HAE!. A Patient Services Story. Patient Services. What are Patient Services? HAE Updates HAE Summit Awareness and Education Patient A ssistance. HAE Updates. What are they? - PowerPoint PPT PresentationTRANSCRIPT
www.haecanada.org
FUN with HAE!A Patient Services Story
www.haecanada.org
Patient ServicesWhat are Patient Services? 1. HAE Updates2. HAE Summit3. Awareness and Education4. Patient Assistance
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HAE UpdatesWhat are they? • Fun meetings held across the country
where you can meet other patients, hear a physician speaker, and get your questions answered.
• Often the first time a patient has ever met another patient.
• Free food!
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HAE Updates
Physician Speaker
Patients & Family! Free Food
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HAE Updates
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HAE UpdatesComing this Fall• Vancouver• Edmonton• SaskatoonComing this Winter• Montreal• Ottawa• KingstonComing this Spring• Regina• Halifax
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HAE SummitWhat’s the purpose? To unite the national community by once a year bringing patients together from across the country:• To participate in educational sessions • Attend our annual AGM• Hear physician speakers• And meet other patients!
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HAE SummitThe Future of the Summit: • The location will change every year. • We hope it will grow into a can’t miss
event for HAE patients in Canada!
Like the Stanley Cup!
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Awareness and EducationWho do we want to reach?1. Undiagnosed patients2. Diagnosed patients (you guys!)
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Awareness and EducationWe do this in several ways….One is by creating a presence for the HAE community online via:• Our Website• Social Media• Public Awareness• Participation
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Awareness and EducationW
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Awareness and Education
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Awareness and Education
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Awareness and EducationSocial Media:
Facebook.com/HAECanada Twitter.com/HAECanada
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Awareness and EducationPublic Awareness• Create press releases• Talk to media outlets• Arrange interviews• What do we need?
YOU!
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Awareness and EducationYou can help!
Please send us your stories and photographs!
Email it to [email protected]
(You can also find me later and get my business card… )
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Awareness and Education• Participation in:
HAE Walk
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Patient AssistanceWe have patient assistance programs in practice and in production. 1. Comprehensive Care Stop-Gap2. Ancillary Supply Program3. Centers of Excellence
But….you need to be a MEMBER!
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How You Can Help1. Attend HAE Events (updates + summits)2. Follow us on Facebook/Twitter 3. Check the Website frequently (all the time!)4. Write up your patient story and email it to us!5. Sign-up for membership!Bonus: Sign friends/family up for membership!
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