cochrane collaboration technology symposium

1.cheap data changes the

epistemology.

OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)

opening data attempts to reflect the epistemology.

2. we’re going to have to share.

“capacity to produce unanticipated change through unfiltered contributions

from broad and varied audiences”

accessibility

adaptability

leverage

easeof mastery

accessibility

adaptability

leverage

easeof mastery

accessibility

adaptability

leverage

easeof mastery

accessibility

adaptability

leverage

easeof mastery

accessibility

adaptability

leverage

easeof mastery

2. systematically increasing the

generativity of data sets.

accessibility

adaptability

leverage

easeof  mastery

0

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THREE  OPTIONS  TO  DOWNLOADNO  CLEAR  LICENSEPRIVACY  RESTRICTIONSMETADATA

which patients have tumor and normal samples amidst a group of celfiles?

accessibility

adaptability

leverage

easeof  mastery

IMPACT  OF  PRIVATE  INTERVENTION

3.

research + “citizen”is also coming our way.

integrating (most) patient data is (mostly) non-

generative.

http://opensnp.org/users/615

http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html

collaborations on generative data are

proven to be possible.

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4. collaboration implies new

forms of governance.

portable legal consent

populate the open layer

terms in blue pop up definitions

volunteer must click to proceed

all boxes must be checked

volunteer cannot skip video

~1500 enrolled~65% contributing

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patient

emailpatient #XYZ123

researcher

coda:if we get it wrong...

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assume 1,000,000 downloadsassume 10% false positive rate

100,000 doctor visits$1000 per biopsy

john.wilbanks@sagebase.org

wilbanks@nitrd.gov

@wilbanks