cochrane collaboration technology symposium
DESCRIPTION
Keynote delivered at #CochraneTech 18 September 2013. http://tech.cochrane.org/programmeTRANSCRIPT
1.cheap data changes the
epistemology.
OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)
opening data attempts to reflect the epistemology.
2. we’re going to have to share.
“capacity to produce unanticipated change through unfiltered contributions
from broad and varied audiences”
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
2. systematically increasing the
generativity of data sets.
accessibility
adaptability
leverage
easeof mastery
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THREE OPTIONS TO DOWNLOADNO CLEAR LICENSEPRIVACY RESTRICTIONSMETADATA
which patients have tumor and normal samples amidst a group of celfiles?
accessibility
adaptability
leverage
easeof mastery
IMPACT OF PRIVATE INTERVENTION
3.
research + “citizen”is also coming our way.
integrating (most) patient data is (mostly) non-
generative.
http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
collaborations on generative data are
proven to be possible.
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4. collaboration implies new
forms of governance.
portable legal consent
populate the open layer
terms in blue pop up definitions
volunteer must click to proceed
all boxes must be checked
volunteer cannot skip video
~1500 enrolled~65% contributing
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patient
emailpatient #XYZ123
researcher
coda:if we get it wrong...
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assume 1,000,000 downloadsassume 10% false positive rate
100,000 doctor visits$1000 per biopsy