A testimony from young patients

Timo NerkkoFinlandCeapir

Budapest, October 25, 2010

The involvement of young patientsCeapir has two meetings

- spring with GA

- autumn with some special theme

Ceapir’s youngsters have their own planning group

- own report

- what they want and are looking forward to receiving from “the old kidneys”

Conferences for young kidney patients

Knowing- what can we do together?

Seeing- there are many other young patients

Being- a good and living organisation needs me

and I need them

Young patients’needs and interests

Young patients want fast action

=> something will have to happen!!!

Meet others

Work together

Have some fun and good feelings

Young patients’ involvementFuture – and dreams

- how patients’ work would look ‘sexier’ in the media

- every patient organisation must be seen and heard in social media (facebook, twitter)

- national and local levels: every board has to give room for the young (plans and actions)

- young patients have the right to make decisions about their own patient work

- involvement in decision-making

Have a good time with the young ones!

Take good care of

your young patients!

Give a chance!

Tinja 1,5 years

Thank you!

Kiitos!

Köszönöm! Tinja 12 yrs