UK IBD Registry coming soon!

How Clinical Information Can Improve Future IBD Care and Outcomes Dr Fraser CummingsClinical Lead UK IBD RegistryConsultant Gastroenterologist University Hospital Southampton NHS FT IBD Registry. All rights reservedibdregistry.org.ukQuestionDo you have a means of data capture which allows you to easily obtain your colonoscopy caecal intubation rate? Y/NDo you have a means of data capture which allows you to easily obtain your mean comfort score for colonoscopy? Y/NAre your endoscopy GRS outcomes part of your annual appraisal documentation? Y/N

IBD Registry. All rights reservedibdregistry.org.uk IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Do you have a means of data capture which allows you to easily obtain your colonoscopy caecal intubation rate?3Poll: Do you have a means of data capture which allows you to easily obtain your colonoscopy caecal intubation rate? IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Do you have a means of data capture which allows you to easily obtain your mean comfort score for colonoscopy?4Poll: Do you have a means of data capture which allows you to easily obtain your mean comfort score for colonoscopy? IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Is your endoscopy GRS outcomes part of your annual appraisal documentation?5Poll: Is your endoscopy GRS outcomes part of your annual appraisal documentation?

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.ukQuestionDo you have a system for identifying patients who have been on steroids for >3 months? Yes/NoDo you have a robust system for Immunomodulator monitoring? Yes/NoDo you have a system for initiating and monitoring patients on biologics? Yes/No IBD Registry. All rights reservedibdregistry.org.ukIf it is thought about as proceedures for example safely starting someone on azathioprine or a biologic, its not that different to 12 IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Do you have a system for identifying patients who have been on steroids for >3 months?13Poll: Do you have a system for identifying patients who have been on steroids for >3 months? IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Do you have a robust system for Immunomodulator monitoring?14Poll: Do you have a robust system for Immunomodulator monitoring? IBD Registry. All rights reservedibdregistry.org.ukFrom Conferences i/o: Poll: Do you have a robust system for initiating and monitoring patients on biologics?15Poll: Do you have a robust system for initiating and monitoring patients on biologics?

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.ukPoint of care data entry systemsCIMS Patient Management SystemIBD Registry Web ToolAscribe/Emis gastroenterology system

IBD Registry. All rights reservedibdregistry.org.ukIBD PMS FunctionsPatient SummaryMDTFlarelineNursing supportDrugsBiologicsIMM monitoringSteroids5-ASA

Cancer Surveillance systemBonesLettersGPPatient Summary, information etc.Virtual clinics

IBD Registry. All rights reservedibdregistry.org.uk

IBD Registry. All rights reservedibdregistry.org.ukIBD Anaemia ProjectDetermine level of service and treatment IBD patients receive with respect to iron deficiencyOutputsPrevalence of iron deficiencyTotal iron deficitTreatment in an IBD outpatient population5 centres, 10 consecutive UC and 10 CD patients each IBD Registry. All rights reservedibdregistry.org.ukConclusionsHow do you use data?Can you use it more effectively to improve:Patient outcomes?Quality of patient care?Service development?Research?What are the barriers to this?www.ibdregistry.org.uk IBD Registry. All rights reservedibdregistry.org.uk