”Ancient cities and their reflection to todays world ”

2010-2012    

     

Lithuanian multiple sclerosis union

• Was founded in 2000 with the help of the Danish Multiple Sclerosis Society.

• Unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems

1. From 2002 the oorganization is a member of the European MS Platform. was founded in 2000 with the help of the Danish Multiple Sclerosis Society.

2. From 2007 we became a member of Euro carer association.

3. The Organization also is one of the initiator in the founding of the Baltic MS Alliance

People with multiple sclerosis

• What is my diagnosis…• I did not realise other people have the same

diagnosis…• Doctors did not....

AN ATTEMPT IS OF MADE TO CONCEAL THE ILLNESS FROM NOT ONLY EMPLOYERS BUT ALSO THOSE CLOSE TO THE PERSON. DISABILITY IS RAPID AND SEVERE.

Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity 20-40 years of age.

Four stage model • Out the flat

• what is wrong with me – information about the disease

• Interesting world• Support group activities• Friends, events

• We are citizens• We have right

• We have medical needs• Re-organisation or creation of the care system

Areas of activity

1. include social and psychological consultation

2. representation of patient interests in all state institutions

3. implementation of national and international projects

MS Societies – the beginning ....

• Lectures • Discussions• Support group meetings• Parties• No accountancy• No money• But a lot of enthusiasm

MS diagnosed

healthy

Management issues in MS

impairment

disability

handicap

DMT

Symptom managementrehabilitation

Psychosocial issuesCognitive function

Multiple sclerosis (MS)

• is one of the most common diseases of the central nervous system.

• Today over 2,000,000 people around the world have MS.

EMSP Members

• Latvia• Lithuania• Luxembourg• Malta• Netherlands• Norway• Poland• Portugal• Romania• Russia• Serbia• Slovakia• Slovenia• Spain• Sweden• Switzerland• UK

• Austria• Belarus• Belgium• Bosnia-Herzegovina• Bulgaria• Croatia• Czech Republic• Denmark• Estonia• Finland• France• Germany• Greece• Hungary• Iceland• Ireland• Italy

MS Barometer 2009: overall results

RomaniaPoland

Bulgaria Malta

PortugalEstonia

HungarySpain

IrelandCroatiaLatvia

Bosnia-HerzegovinaLithuania

CyprusSlovakia

SwitzerlandCzech Republic

FranceLuxembourg

ItalyGreece

SloveniaNorwayAustria

UKNetherlands

BelgiumFinland

SwedenIceland

DenmarkGermany

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162165170171171173177

192199199202

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Focus on society

Belgium Estonia Greece Italy UK0

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basicequipmentservicefinancialinformation

Kersten et al 2000

The place of multiple sclerosis in the European Union policy PRESS conference in the Parliament 2009

Our main Principles

To promote Quality of Life for People with MS which draws together the interests of national MS societies worldwide and other community in implementation activities of a global projects.

Celebration DAY without MS ( on the boat)

Summer camp in Estonia

Lithuanian group performance

Last year Lithuania Millennium celebration events. We have also prepared a special program.

Our exhibition of works

We are organizing seminars in non-traditional environments-at the restaurants

…. and in nature

One of the learning project• Partnerinės institucijos:

• Švietimo ir informacijos centras Stylida-Graikija

Nacionalinis Kapodastriano Universitetas,Geologijos fakultetas

Atenai-Graikija

Aplinkosaugos švietimo kolegija Nikosia-Kipras

First presentation in Greece

with colleagues in Nicosia

At the Archaeological Museum

With partners and guests in Lithuania

My presentation of the Lisbon Convention for Persons

with Disabilities in the publication in Greece.

At European Patients forum in London

In Brussels in the European Parliament (information hour for MS)

As always with friends from other Baltic countries.

European carer group working in Sweden seminar.

Pleasant meeting in Estonia celebrating Estonian MS societies 20th anniversary.

It is fun to celebrate for our cooperation.

Estonians like to surprise...

There was a global campaign from New York, flying in

the night over the Tallinn.

Said goodbye to the December 3 meeting in Riga.

Everything is in place

TIME FOR ACTION IS

NOW