“You have the opportunity to light the way for an estimated 300,000

persons in the United States alone, and an untold number of families

from around the world…”

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saturday, the thirteenth of novembertwo thousand ten

anderson housewashington, district of columbia

Gala Patronsher majesty queen noor of jordan

nicholas, 14th lord fairfax of cameronlord and lady malloch-brown

the honorable and mrs. christopher burnhammr. randy theken

Steering Committeems. dorothy poppe

doctor and mrs. fraser hendersonmr. paul farrell

mr. and mrs. scott gregerson

Special Thank Youmr. joan berkhemer

ms. gay cioffimr. marcos galvanymr. richard johnson

doctor alexander markms. meghan mccallmr. andre shearer

mr. michael sheppard

Gala Highlights

cocktail receptionThe Olmsted Gallery

welcome toast, invocation and dinnerThe Ballroom

chiari & syringomyelia foundation’s visionPaul Farrell

my storyMackenzie Mathis

Ellen Icochea

patron awardsHer Majesty Queen Noor of Jordan

Nicholas, 14th Lord Fairfax of CameronLord and Lady Malloch-Brown

The Honorable and Mrs. Christopher BurnhamMr. Randy Theken

musical entertainmentJoan Berkhemer, ViolinistMichael Sheppard, PianistMeghan McCall, Soprano

Marcos Galvany, Accompanist

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Gala Supportersray of hope research sponsor

Mr. Randy Theken$125,000

gala sponsorsMr. and Mrs. Michael MikulaMr. and Mrs. Richard Tripodi

$30,000

champagne & wine sponsorDoctors Community Hospital

$20,000

musical entertainment sponsorLord and Lady Malloch-Brown

$10,000

invitation sponsorAetna Inc.

$5,000

program sponsorLong Island Veterinary Specialists

$5,000

stationery sponsorThe Farrell Law Firm, LLP

$5,000

Board of Directorspaul j. farrell

Chairman & Founding MemberCommack, New York

 james e. feisthamel

DirectorFrankfort, New York

joe fitzpatrickVice Chairman & Founding Member

Naperville, Illinois 

steve kragrudTreasurer

Beaverton, Oregon  

cathy poznikSecretary

Twinsburg, Ohio 

lory watsonDirector & Founding Member

Naperville, Illinois

Executive Directordorothy poppe

Staten Island, New York

Board of Trusteesmichael n. mikula, chairman

Owner, Excel Container

simon j. archibald, phdChief Scientific Officer, Integra Lifesciences Corporation

richard e. kuntz, mdSenior Vice President, Medtronic, Inc.

sean lilienfeldVice President - Clinical Research & Medical Affairs, Codman & Shurtleff, Inc.

robert tyre jones iv, psydClinical Psychologist in Private Practice

edwin b. jordanOfficer, Intercity Investments

douglas e. kindlonOwner, Edgewood Golf Course

robert e. rumphreyVice President of Sales, Command Web Offset Company

Medical Research Boardallison ashley-koch, phd - Duke University Medical Center

ulrich batzdorf, md - David Geffen School of Medicine at UCLA

edward c. benzel, md - The Cleveland Clinics Foundation

paolo bolognese, md - The Chiari Institute

richard g. ellenbogen, md - University of Washington

timothy m. george, md - Dell Children’s Medical Center of Central Texas

barth a. green, md - The Miami Project To Cure ParalysisUniversity of Miami School of Medicine

victor haughton, md - University of Wisconsin

john d. heiss, md - National Institutes of Health

bermans iskandar, md - University of Wisconsin Hospital

roger w. kula, md - The Chiari Institute

francis loth, phd - University of Akron

dominic j. marino, dvm, dacvs - Long Island Veterinary Specialists

arnold menezes, md - University of Iowa College of Medicine

miseo nishikawa, md - The Chiari Institute

Letter from the Chiari & Syringomyelia Foundation

On behalf of the Chiari & Syringomyelia Foundation (CSF), it is our pleasure to welcome you to the CSF Night of Light Children’s Gala. We are thrilled to have you join us for this wonderful event. We are honored to be joined tonight by our distinguished patrons, whose collective presence has made this an evening to remember. Please join us in welcoming Her Majesty Queen Noor of Jordan; Nicholas, 14th Lord Fairfax of Cameron; Lord and Lady Malloch-Brown, the Honorable and Mrs. Christopher Burnham, and Mr. Randy Theken. Tonight, we hope you enjoy the company of good friends, while you learn about CSF and the work we are doing to find a cure for Chiari malformation (CM) and syringomy-elia (SM). These little known but devastating neurological disorders affect over 300,000 people in the United States alone, and many more worldwide. Your support and presence this evening is greatly appreciated and energizes CSF in our pursuit to fund a research endowment, which will enable us to fund much needed research into the causes of and, ultimately, the cure for CM and SM. Our goal for this evening’s Gala is to provide funding for a collaborative research project, headed by Dr. Fraser Henderson, into the connection between CM and autism spectrum disorders (ASD). CSF has had several meetings with the National Institutes of Health (NIH) to discuss funding for research related to CM and SM. Documentation to establish a connection with other diseases and disorders, such as autism, goes a long way to opening doors at the NIH and obtaining much needed funding.  On behalf of CSF, have a wonderful evening and thank you for your support.

Paul J. Farrell Dorothy J. Poppe Chairman Executive Director

Letter from Dr. Fraser Henderson

I want to thank you for your generous contribution and to express the great appreciation of the Chiari & Syringomyelia Foundation, of our extended research group, and of the children and adults who have been disabled by Chiari malformation and syringomyelia.

To be 15 years old, bright and optimistic, and then to become totally disabled with pain, weakness, sensory loss and periods of confusion and insomnia is a great human tragedy. Many patients are given psychiatric diagnoses because most physicians are unaware of the profoundly disabling and varied neurological deficits caused by Chiari malformation. A greater tragedy occurs when a child already diagnosed with autism spectrum disorder (ASD) develops the neurological deficits associated with Chiari malformation: the latter are assumed to be part of ASD and the neurological Chiari deficits fail to be diagnosed because of the overarching diagnosis of autism.

This gala is to thank you, who have given of yourselves, to help this vital research move forward. In addition to funding this groundbreaking research, our hopes are to continue to raise awareness of the disorders associated with Chiari malformation. The dinner and the talented performers are a gift from our sponsors. Your contribution will directly help fund the CSF Autism Spectrum Disorder Study. 

On behalf of our research group from many institutions around the world, I want to thank you for your generosity of spirit, and your ongoing support and encouragement in this cutting edge endeavor.

Dr. Fraser Henderson CSF Autism Spectrum Disorder Study Chair

The CSF Project to Analyze the Prevalence of Chiari Malformation within the Autism Spectrum Disorder Population

There appears to be a substantial underserved population of children and adults harboring both a Chiari malformation and diagnosis of autism spectrum disorders (ASD). The ASD population of 2 million is increasing by 28,000 new cases every year, at least 1 per 150 live births (Bertrand, J. Pediatrics Vol. 108 No. 5 Nov 2001), and accounts for expenditures of $35 billion per year within the US.

Children with Chiari frequently have a tendency to headaches, neck pain, speech and swallowing difficulties, sensori-motor disorders, gastro-esophageal reflux, disordered respiration and sleep apnea - the same findings observed in the ASD population (Rimland, B. Autism Research Review International, 2005). Other shared deficits include loss of smooth ocular pursuit, dysarthria, abnormal motor initiation, disordered neuro-endocrine modulation within the reticular activating system and possibly cerebellar mediated alterations of cerebral activity (Courchesne, E. Neuroanatomic Imaging. Suppl 781-790, 2001).  This overlap of characteristics suggests that these disorders may be co-morbid conditions.  In the course of routine surgical correction of Chiari disorders, CSF researchers have measured substantial improvement in pain, function, and quality of life in ASD patients (Bolognese, Kula 2010; Henderson 2008, 2010).

Patients diagnosed with ASD at 1-3 years of age rarely undergo neurological assessment or MRI to look for other co-morbidities, such as Chiari malformation. In the ASD population, therefore, the opportunity for diagnosis and treatment of Chiari malformation is missed.

The CSF sponsored research project has three goals:  first, to establish the prevalence of Chiari related disorders within the population of ASD; second, to develop clinical biomarkers to more readily select which patients within the ASD population need further evaluation; and third, to determine in a randomized, prospective manner whether surgical correction of these established neurological disorders provides a significant improvement in neurological function, pain and quality of life in the affected children and adults. 

The investigators believe that this proposed research represents an important opportunity to pursue a breakthrough in the treatment of some of the manifestations of autismspectrum disorder and Chiari malformation.

Her Majesty Queen Noor of Jordan

Her Majesty Queen Noor is an international public servant and an outspoken voice on issues of world peace and justice. She plays an active role in promoting international exchange and understanding of Arab and Muslim culture and politics, Arab-Western relations, and conflict prevention and recovery issues such as refugees, missing persons, poverty and disarmament and has helped found media programs to highlight these issues.  Queen Noor’s work in Jordan and the Arab world has focused on education, conserva-tion, sustainable development, human rights and cross-cultural understanding. She is also actively involved with international and UN organizations that address global challenges in these fields.   Since 1979, the initiatives of the Noor Al Hussein Foundation (NHF), which she chairs, have transformed development thinking in Jordan and the Middle East through pioneering programs in the areas of sustainable development, women’s empowerment, microfinance, health, environmental conservation, and arts as a medium for social development and cross-cultural exchange, many of which are internationally acclaimed models for the developing world.  She has served as expert advisor to the United Nations on the implementation of the Millennium Development Goals in conflict regions.   She is also President of the United World Colleges, a pioneering education for Peace initiative with 13 campuses around the world.  She has published two books, Hussein of Jordan (KHF Publishing, 2000) and Leap of Faith: Memoirs of an Unexpected Life (Miramax Books, 2003), a New York Times best seller published in 17 languages.

Nicholas, 14 th Lord Fairfax of Cameron

Nicholas, 14th Lord Fairfax of Cameron is successor in title to Thomas, 6th Lord Fairfax, Proprietor of the Northern Neck of Virginia and friend of George Washington. Grandson of Albert Kirby Fairfax, who was born an American citizen in Landover, Maryland and who reclaimed the Fairfax title in 1908 before settling in England.

Educated at Eton College and Cambridge University and married with three children, Nicholas Fairfax is a member of the Executive Board of the SCG Group, Russia’s largest ship owning company. He was also the leader of “ The White Nights Ride”, a 7500 mile charity motorcycle ride across Russia in 2005.

Lord & Lady Malloch-Brown

Lord Mark Malloch-Brown is Vice Chairman of the World Economic Forum, as well as a consultant to a number of international companies. Formerly, he was Minister of State in the Foreign Office, covering Africa and Asia, and was a member of Gordon Brown’s cabinet. He had previously served as Deputy Secretary-General and Chief of Staff of the UN under Kofi Annan. For six years he was Administrator of the UNDP, leading the UN’s development efforts around the world. Other positions have included Vice Chairman of George Soros’s Investment Funds, as well as his Open Society Institute, a Vice President at the World Bank and the lead international partner in a political consulting firm. He began his career as a journalist on The Economist. He is chair of the Royal Africa Society and on a number of non-profit and advisory boards. He is a member of the House of Lords and was knighted in 2007.

Lady Trish Malloch-Brown began her career at The Sawyer Miller Group, an International Political Consulting firm and, after completing her Masters Degree in International Affairs at Columbia University, served as Program Director at the Open Society Institute, focusing on technology exchanges, media and educational programs in Eastern Europe. Trish was Marketing & Sales Director with Lori Wilkins Immerman and a Partner at Ann McGuire Studios for several years. Currently, Trish is an indepen-dent consultant to charities and NGO’s focusing on the coordination and development of projects, programs and fundraising strategies. Trish has dedicated herself to humanitarian projects internationally and in her own community. She is co-founder of the Washington Circle, an outreach group targeted at women in Washington, DC who are interested in humanitarian affairs.

Lord & Lady Malloch-Brown live in London, England and Buck Hill Falls, Pennsylvania with their four children.

The Honorable Christopher Burnham

Mr. Christopher Burnham is Vice Chairman and member of Deutsche Asset Management Global Operating Committee; Global Co-Head, DB Climate Change Advisors in New York. He joined the company in 2006 after extensive leadership experience in both the public and private sectors, including 25 years in the financial industry. Most recently, he was Under-Secretary General of the United Nations and the highest-ranking American in the UN Secretariat, reporting to Secretary General Kofi Annan. Before joining the UN he spent four years with the US Department of State as Assistant Secretary of State, Chief Financial Officer, and acting Under Secretary of State for Management.

Previously, Mr. Burnham was Vice Chairman of PIMCO Funds Company and President and CEO of its equity management subsidiary, Columbus Circle Investors. Earlier, he served as Treasurer of the State of Connecticut, where he successfully restructured what was then the worst-performing state pension fund in the US. Before serving as State Treasurer, he was an investment banker with CS First Boston and with Advest, Inc. He is a 23-year veteran of the United States Marine Corps Reserve, and served in the first Gulf War. Mr. Burnham received his BA from Washington & Lee University and MPA from Harvard University.

Mr. Randy Theken

Mr. Randy Theken (pronounced “taken”) was born and raised in Northeast Ohio, and is the founder of four orthopedic medical device companies, known as the Theken Family of Companies. A master-degreed electrical and mechanical engineer, Mr. Theken became interested in spinal implants while conducting research for his Masters Thesis at the University of Akron. After finishing graduate school in 1992, he founded Theken Orthopaedic, which provides FDA mechanical testing of orthopedic implants for major medical device companies.

In 1998, he founded Theken Spine which designs, develops, manufactures and distributes spinal implant devices nationwide. In 2003, he founded Theken Disc which designs and develops spinal motion preservation devices, such as the revolutionary microelectronic artificial replacement spinal disc known as the edisc.

In July 2005, Mr. Theken purchased Therics Corp located in Princeton, NJ that designs, develops and manufactures a variety of synthetic bone substitute products. Most recently, three of these four medical device companies were acquired by Integra Life Sciences.

Your Gift Makes a Difference

CSF Autism Spectrum Disorder StudyThe CSF Autism Spectrum Disorder Study will fundamentally change the way children and adults with ASD and Chiari malformation are treated. We are not trying to treat ASD. Our goal is to determine the extent to which this co-morbidity exists, to define clinical bio-markers for children with ASD who also have Chiari malformation; and to then determine whether the disabling features of Chiari can be mitigated by surgical intervention. To do this, we must raise the money needed to run a large study at two major centers. The research is conducted on a very lean budget. The surgeons are contributing their time and skills in the firm belief this study will yield profound results. Funds will be used to reimburse the cost of testing, equipment and expenses not routinely covered by insurance.

CSF Hydrodynamics SymposiumJuly 8-9, 2011Zurich, SwitzerlandThis is an engineering/physics symposium focused on the motion of cerebrospinal fluid. Approximately 20 to 30 invited speakers from around the world will present their research that involves either experiments or computational methods to better understand normal physiology and diseases related to CSF motion, such as Chiari malformation, syringomyelia and hydrocephalus. While the speakers will be mainly from a technical background, there will be neurosurgeons present to help lead a discussion on the challenges of translating engineering and physics analyses into clinically relevant results. Nevertheless, the focus will clearly be on modeling and how it can help, rather than on clinical solutions.

CSF Regional ChaptersCSF has established six regional chapters around the United States, affiliated with major medical institutions. These chapters provide educational lectures from world-class physicians that are recorded and available for viewing on the CSF website. In addition, support groups are provided for individuals and families in those regions. Chapter affiliations include the University of Washington/Seattle Children’s Hospital, Chiari Care Center at the Medical Center of Aurora, Cleveland Clinic, North Shore-Long Island Jewish Health System, Duke University Medical Center, and Doctors Community Hospital.

Cape Classics was established by Andre Shearer in 1992, with a mission of bringing the crème de la crème of South Africa’s then-fledgling wine industry to the American market. Cape Classics remains the preeminent US importer of the Cape’s vinous trea-sures, and represents 21 of South Africa’s finest estates and labels. With a focus solely on South African wine, Cape Classics is committed to providing customers with a unique range of selections that are exciting and delicious and that offer outstanding value. 

Currently distributing in 49 states, with key national partners including the Darden Restaurant Group (Seasons 52, Capital Grille and Red Lobster), Uno Chicago Grill, Ruth’s Chris Steak House, Flemings, Walt Disney World, Trader Joe’s, Costco and Whole Foods Market. 

In their pioneering days, Apartheid-related political tension translated into an often-hostile American market for South African goods. The embrace of honesty and integrity in all that they do coupled with a tenacious, “can-do” attitude enabled them to succeed through those initial struggles and challenges. The same ethical principles that guided them then continues to shape the way Cape Classics conducts business today.

As an organization, Cape Classics stands for proficiency and professionalism, and we maintain consistently high standards of excellence. They deeply value the personal relationships they’ve established over the years, and treat their customers, suppliers, and employees with respect. They strive to make a positive impact on their community through their work, and support sustainability by partnering with wine farms and growers who espouse environmental preservation and holistic farming practices. 

In addition to receiving the “Best Wine Importer” accolade in Food & Wine magazine’s Wine Awards, Cape Classics was the focus of a ‘Spotlight On’ feature in Robert Parker Jr.’s The Wine Advocate, and has been hailed a “Name You Can Trust”/ “Reliable Import-er” in Food & Wine’s annual Wine Guide for ten consecutive years. Through our award-winning portfolio, Cape Classics is pleased to continue to contribute to South Africa’s emergence as a wine producing nation worth toasting. 

The wines served this evening have been provided by Cape Classics.

Gay Cioffi

Gay Cioffi is a Fine Art photographer whose work has been exhibited at the National Museum of Women in the Arts, the Ralls Collection, the American Institute of Architects, the Embassy of Peru and 57N Fine Arts in Washington, DC, the Silver Eye Gallery in Pittsburgh, the Woman Made Gallery in Chicago, the Gallery of the Catholic University Cultural Center in Lima, Peru, in conjunction with the Corcoran Museum of Art, and the American Embassy in Albania. Her most recent exhibition was at the Die Botschaft Gallery in Baltimore, MD in May, 2010. Her work is part of the permanent collection of the DC Arts and Humanities Commission in Washington, DC, the Dayton Art Institute, the Long Beach Museum of Art and the Las Vegas Museum of Art. Ms. Cioffi studied at the Museum School of Fine Art in Boston in conjunction with her Masters Degree from Tufts University, as well as the Corcoran School of Fine Arts. Her studies include a semester at Rosary College in Florence, Italy.

Joan Berkhemer

The Dutch-born violinist Joan Berkhemer studied in Amsterdam with Herman Krebbers and in Tel-Aviv with Rami Shevelov. He won several prizes such as the National violin competition “Oscar Back”, the Prix d’Excellence and, with the Amsterdam Piano Trio, the International Chamber Music Competion at Colmar.

As a soloist he appeared with orchestras like the Royal Concertgebouw Orchestra, the Rotterdam Philharmonic Orchestra, the Dutch Chamber Orchestra, the Orchestras of the Dutch radio and most of the provincial orchestras with conductors such as Sir Colin Davis, Ernest Bour, Jean Fournet and David Zinman.

With the Klavier Trio Amsterdam and as a soloist he toured throughout Europe, North and South America, the Far East and the Middle East. Joan Berkhemer recorded several CDs with violin concertos, Chamber Music and solo repertoires.  Joan is also a successful conductor and composer. 

Michael Sheppard

Already a rising star of his generation of artists, Michael Sheppard is a pianist of dazzling virtuosity and penetrating musicianship. Trained at the Peabody Conservatory of the Johns Hopkins University in Baltimore, he studied with the great Leon Fleisher and Ann Schein. As one of two 2003 Classical Fellows of the American Pianists Asso-ciation he toured Southern Asia and the Middle East in collaboration with the Cultural Programs Division of the United States Department of State. Throughout the tour he played concerti with national orchestras, was guest soloist with resident chamber music groups, played public solo recitals as well as private recitals for the diplomatic community, gave master classes at higher institutes of music and conducted informal presentations in secondary schools and universities. Upon his return he made his Kennedy Center debut. Since then he has made his debuts with orchestras in the Midwest, Southeast, Southwest and Pacific Northwest in addition to solo recitals, radio-broadcasts, and master classes throughout the nation and Europe, including several Weill (Carnegie) Hall recitals.

Mr. Sheppard has received critical acclaim as a grand interpreter of transcriptions of operatic tunes as well as American musical theatre in addition to the traditional piano repertory. Deeply committed to new music, he has worked closely with composers Nicholas Maw, Michael Hersch, Robert Sirota and John Corigliano. Mr. Sheppard is a composer in his own right and often programs his original compositions.

In addition to being a Classical Fellow of the American Pianists Association, Mr. Sheppard has also been a Fellow at the Tanglewood Music Center and the La Gesse Foundation and a prizewinner in the National Federation of Music Clubs National Competition.  His recently-released album of contemporary American music for the Harmonia Mundi label has been getting rave reviews.  A native of Philadelphia, he resides in Baltimore.

Meghan McCall

Praised for her “bell-like clarity and fine control” and “radiant full-bodied voice” by The Washington Post, American soprano Meghan McCall is establishing herself as a fine young artist of opera today. She has been hailed for possessing a “beautifully and flawlessly operatic voice” by The West Highland Press. She most recently made her Carnegie Hall Stern Auditorium debut in a world premiere where she created the role of Mary Magdalene in Marcos Galvany’s opera Oh My Son.

Ms. McCall’s career has taken her to stages both in the United States and Europe. She has performed the roles of Fiordiligi in Cosi Fan Tutte, Lauretta in Gianni Schicchi, Musetta in La Bohème, Adina in L’Elisir d’Amore, Gilda in Rigoletto, Gretel in Hansel and Gretel, Marie in La Fille du Régiment, Giulietta in I Capuleti e i Montecchi, Donna Anna in Don Giovanni, Susanna in Le Nozze di Figaro, Princess (#1) in Transformations, Lucia in Lucia di Lammermoor, Miss Jessel in The Turn of the Screw, Blondchen in Die Entfuhrung aus dem Serail and Norina in Don Pasquale.

Ms. McCall earned her BA in Music Literature from Northeastern University and her MM from The University of Maryland Opera Studio where she worked with world-renowned bass Francois Loup. Directly after her graduation she was invited to join the Opera Lafayette Young Artist Program which specializes in 17th and 18th century French repertoire.  Ms. McCall made her Kennedy Center debut in May of 2010 with Opera Lafayette as Juliette and La Bergere in Philidor’s Sancho Panza.  She also made her debut recording with the ensemble for the classical music label NAXOS, which will be released in 2011. 

For more information please visit her website at www.meghanmccall.com.

Marcos Galvany

Marcos Galvany has been called “a melody gifted composer” by John Rutter and “one of the most talented and passionate composers of our time”. His music has been heard throughout the USA, Canada, Europe, Russia, Australia, South Africa, Mexico, Puerto Rico, and Jamaica where he conducted his own compositions with the New England Symphonic Ensemble.

Mr. Galvany studied in Spain at the “Oscar Espla Conservatory” and “Elche Conserva-tory” were he graduated with a bachelors degree in Piano Performance. He then studied composition in the U.S. at Columbia Union College becoming the “Composer in Resi-dence” and serving as the Assistant Conductor of the New England Symphonic Ensem-ble which has performed more than a hundred times at Carnegie Hall in New York.

Mr. Galvany has received commissions by The New England Symphonic Orchestra, the State of the Arts Cultural Series at the US Department of State in Washington D.C., and by the Saint Albans and Washington National Cathedral Schools. His first opera Oh My Son premiered as a concert at Carnegie Hall in April 2010.

The Farrell Law Firm, LLPspecializing in worldwide intellectual property protection in

patent, trademark, trade secret and copyright law

Paul J. Farrell, Esq.

290 Broadhollow Road, Suite 210 EMelville, NY 11747

(516) 228-3565 (Telephone)(516) 228-8475 (Facsimile)email: pjf@farrelliplaw.com

The Farrell Law Firm, LLP is Proud to Support CSF and The CSF Night of Light Children’s Gala

History of the Anderson House

The Anderson House was built between 1902 and 1905 in the heart of Dupont Circle, which was at that time our capital’s most fashionable neighborhood. At a cost of nearly $750,000, the Boston firm, Arthur Little & Herbert Browne, designed this Beaux Arts mansion to be the winter home of Larz Anderson III (1866-1937), an American diplomat, and his wife, Isabel (1876-1948), an author and Red Cross volunteer.

The fifty-room mansion is Little & Browne’s finest architectural achievement. The original property also included a walled garden, tennis courts, and a three-story stable and carriage house. The eclectic interiors of Anderson House dominated by English and Italian influences feature the painstaking work of craftsman who adorned the house with carved wood walls, gilded papier-mâché ceilings, ornate iron staircases, and intricate marble floors.

The Andersons built their winter residence in Washington, D.C. so that the rising diplomat could entertain American and foreign dignitaries and the capital city’s high society in a grand setting. For thirty-two years, Larz and Isabel Anderson were among the most popular hosts in the capital. During the Washington social season, generally between New Year’s Day and Easter, the Andersons hosted diplomatic and inaugural receptions, formal dinners and luncheons, concerts, and performances of Isabel’s plays.

The Andersons’ guest lists included Presidents William H. Taft and Calvin Coolidge, Sir Winston Churchill, General John J. Pershing, Henry A. du Pont, and members of the Vanderbilt family. Anderson House also served a public role as the occasional residence of foreign dignitaries on official visits to the United States, including the visits of King Albert I and Queen Elisabeth of Belgium in 1919 and King Pradjadhipok and Queen Rambai Barni of Siam (now Thailand) in 1931.  

To furnish their domicile and provide an elegance befitting prominent guests, the Andersons assembled a world-class collection of paintings, sculptures, furniture, ceramics, books, and various other artifacts reflecting their personal interests and tastes, as well as the trends of that era. English paintings, French furniture, Flemish tapestries, Asian decorative arts, and antiquities fill the mansion.  

Our MissionTo advance knowledge through research and to educate the medical,

allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

About UsThe Chiari & Syringomyelia Foundation, Inc., a 501(c)(3) organization built on leadership, vision and commitment to find a cure for Chiari malformation (CM), syringomyelia (SM) and related CSF (cerebrospinal fluid) disorders, was founded

in October 2007.

Many recognized world-class physicians, scientists and professionals agreed to collaborate and form a superior Medical Research Board. The trusted and

dedicated members of our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families, and patients, who have been advocates in the CM/SM community for years. They have theskills and passion to create, fund, and direct programs and research that will

change the lives of the 300,000 people affected by CM/SM.

eFor More Information

please visit www.csfinfo.org