helped one-third of them. In particular, hefound that the device was helpful when hefitted adults who had not seemed to bene-fit from therapy in childhood.

The SFA hopes that the results of thestudy will help scientists to easily deter-

mine who will bene-fit from the deviceand who won’t.That’s especiallyimportant becausethe device costsabout $4,500 andinsurance may beunlikely to cover it.

In fact, the cost has deterred many peo-ple from purchasing the device, the SFAfound. In a survey conducted in 2003 of1,000 people who requested informationabout such devices from the SFA, 85% ofrespondents decided against purchasingone because of the prohibitive cost and thelack of insurance coverage.

The article quoted SFA President JaneFraser saying there’s no need to spend somuch money on a device unless there’s areasonable expectation that it will help.

A prominent article in USA Today, thelargest-circulation newspaper in the coun-try, spurred a dramatic jump in traffic onthe Stuttering Foundation’s Web site(www.stutteringhelp.org) in October.

The October 19 article at the top of theLife section of thenewspaper focusedon the SpeechEasydevice and whetherthis and other simi-lar electronic de-vices can help thosewho stutter. Itreported that theStuttering Foundation plans to support astudy to determine why some people findthe device helpful and not others.

Peter Ramig, pro-fessor at the Univer-sity of Colorado(Boulder) and speech-language pathologist,has fitted some of hisclients with thedevice. He reported inUSA Today that thedevice significantly

Hugo Harris Gregory Jr., internation-al expert in speech and language pathol-ogy and the treatment of stuttering, diedOctober 11 of a stroke and meningitis,following surgery at Johns HopkinsHospital in Baltimore Maryland.

Born in Texarkana, Texas, the son ofHugo and Lola Brewer Gregory, on July11, 1928, he grew up in Portland,Arkansas, a small town of 500 people.

Dr. Gregory received three degrees(Ph. D., 1959) from NorthwesternUniversity, majoring in speech and lan-guage pathology. While a student hemet his wife, Carolyn Booth Gregory.Carolyn is also a speech pathologist, andthey became life long partners in clinical

WINTER 2005

A Nonprofit Organization Since 1947... Helping Those Who Stutter

USA Today Story on Stuttering SpawnsIncreased Media Coverage, Web Site Use

Continued on page 12

1-800-992-9392 www.stutteringhelp.org

Community MournsHugo Gregory

Continued on page 4

� Stuttering: For Kids, By Kidswins Adding Wisdom Award

� Workshop Highlights� ASHA Reunion Honors Gregory� The Genius of Dean Williams—

now compiled in one publication

Hugo Gregory 1928-2004

THESTUTTERINGFOUNDATION

□

By Anne L. Foundas, MDProfessor of Neurology, TulaneUniversity Health Sciences Center

At this junctureneuroscientists be-lieve that develop-mental stuttering is acomplex motorspeech disorder witha strong genetic link.Based on convergingevidence from cogni-tive-behavioral, ge-netic, neurophysio-

logical and neuroanatomical studies, wehave learned that it is likely that stutteringdoes not result from one causative factor.Furthermore, there is increasing evidencethat biological subtypes may be demon-strable with the potential that differenttherapies may benefit different biological-ly specific types of stuttering. In a series ofrecent studies our research group has fo-cused on the anatomy and functional rep-resentation of the auditory system in indi-viduals with developmental stuttering.

It is well established that the dysfluen-cies observed in individuals who stuttermay be reduced under a number of condi-tions including choral reading and altered-auditory feedback. Delayed auditory feed-back (DAF) is a technique that can inducefluency in individuals who stutter and canmake fluent individuals dysfluent. Theauditory system, at least at the level ofauditory input, is involved in these fluen-cy inducing conditions. Thus, there maybe a defect at the level of auditory pro-cessing that is at least partially reversedwith these procedures. One hypothesis isthat alterations in the auditory signalunder conditions of DAF diminish anauditory perceptual defect in people whostutter. This auditory perceptual defectmight be related to anomalous anatomy ofauditory temporal cortex.

In a 2001 study we found atypical

DAF in Stuttering:A PotentialAnatomical Link

Anne Foundas

Peter Ramig

1-800-992-93922 www.stutteringhelp.org

□

ASHA Draws a CrowdFriends pay tribute to Hugo Gregory at ASHA 2004

The City of Brotherly Love was a fit-ting gathering place for the AmericanSpeech-Language Hearing Association’s2004 Convention and for SFA work-shoppers and friends to share remem-brances of Hugo Gregory.

Always a time for laughter andfriendship, the SFA’s annual workshopreunion at ASHA this year was especial-ly poignant as those who studied underHugo and Carolyn spoke of the tremen-dous inspiration the couple has been inboth their professional and personallives. A week after the memorial servicefor Hugo, Carolyn graced the reunion inPhiladelphia with her presence, herhumor and her enduring love and com-mitment for Hugo, for those he men-tored, and for the field of fluency.

Each year, the SFA hosts a receptionfor alumni of the Stuttering Therapy: AWorkshop for Specialists led by Hugoand Carolyn Gregory from 1985 to2001. The gathering also includes alum-ni of the five-day workshops around thecountry begun by graduates of theNU/SFA workshop.

“Thank you for sharing Hugo,” wasthe refrain from “Hugo’s girls” whoworked with him at NorthwesternUniversity and from all those wholooked to him for guidance—many ofwhom are themselves now leading ex-perts in stuttering treatment and whohave gone on to mentor a new genera-tion of speech-language pathologists.

As always, the SFA thanks those whovolunteered in the exhibit booth, somefor more than one shift! Special thanksto: Joe Donaher, Susan Cochrane,Maureen Tardelli, Susan Hamilton, PeterRamig and Lorrie Scott, SherylGottwald, Trish Zebrowski, MarybethAllen, Fran Cook, Willie Botterill, JoanBabin, Julie Anderson, Larry Molt, LisaScott, Marybeth Allen, Bill Murphy,Courtney Byrd, Mark Pellowski,Adriana di Grande, Charlie Healey,David Evans, Jennifer Watson, PatriceCarothers, Judy Kuster, Barry Guitar,Stacia Thompson Paganelli, NancyRibbler, Tony Buhr, John Ellis, RickArenas, Darrell Dodge, Ryan Pollard,Bill Shannon, Elizabeth Mendez, andmany more hearty souls!

Hot new materials this year includedthe Stuttering: For Kids, By Kids andWorking With Preschoolers Who Stutter:Successful Intervention Strategies onDVD and video.

Carolyn Gregory and Susan Cochrane.

June Haerle Campbell, Simona Bernardini andLuisella Cocco Raison.

Kathleen Mallory Chase, class of ‘’85.

Larry Molt and Susan Cochrane.

Sheryl Gottwald and Jennifer Watson.

Camera phone! Rosanna Portley andDavid Daley snap a shot.

Fran Cookand NanRatner.R i g h t :L o u r d e sR a m o sHeinrichsand JaneFraser

Marybeth Allen, David Evans and Joe Fulcher.

Here are some other top stories in thenews:

■ Morningdrive-time newsanchor LindaNunez of KNXtalk radio in LosAngeles inter-viewed Jane Fraserfollowing thereport in USAToday. The award-winning reporter co-anchors the news with Tom Haule week-days from 9 a.m.–12 noon on KNX 1070NEWSRADIO. Nunez joined KNX inMay 1990 and later became the firstwoman in KNX’s history to anchor themorning drive time slot.

■ The Washington Post on October 12ran a photo of U.S. Congressman FrankWolf (R-Va.) holding theSFA’s 15 FamousPeople Who Stutterposter, which includeshis likeness. Wolf servedas SFA’s spokesman forNational StutteringAwareness Week in2000.

“Had I not stuttered, Idon’t think I would havebeen in Congress,” the12-time incumbent isquoted as saying. “Itgave me the drive andthe determination to staywith it. I’d go so far as tosay, maybe, it was anuncommon gift. I’m notso sure you could have convinced me ofthat at 15.”

Wolf, who stuttered badly as a teenag-er, was often taunted about his stutteringby classmates. He has become an outspo-ken advocate for the abused worldwide.

■ News radio station WBZ CBSChannel 4 in Boston aired a story on stut-tering on November 8. The broadcast fea-tured the SFA Web site as a source forinformation.

■ The nationally-syndicated column,Parent to Parent, on October 24 featuredSFA as a source for help and information onsecuring speech services through the publicschool system. Columnist Jodie Lynn alsorecommended the SFA’s newest video/DVD,Stuttering: For Kids, By Kids to the mother

of an 8-year-old girl who stutters. (Editor’snote: The brochure, Special Education Law,offers more information on services avail-able through the public school system. Itmay be downloaded for free on the SFA’sWeb site, www.stutteringhelp.org.)

■ Reporter Laura Faber of WZTVFox 17 News in Nashville aired a story inNovember on stuttering, using the SFA asa resource for information and photos offamous people who stutter. The stationalso aired an Associated Press story on thedifficulty schools in Tennessee are havingin recruiting enough speech-languagepathologists.

WINTER 2005 31-800-992-9392

Media Efforts Promote Stuttering Awareness

□

Congressman Frank Wolf is seen holding the SFA’s 15 FamousPeople Who Stutter poster in this photograph in the October 12,2004 issue of The Washington Post.

Web Use Soars withFocus on Fluency

With the in-creased focus in themedia on stutter-ing, use of theSFA’s Web site alsosoared. On October19, prompted by astory in USAToday, SFA’s Web site had 32,665 hits,with 27,715 the following day. InOctober, there were 658,315 hits onwww.stutteringhelp.org, attributed inpart to the record number of public ser-vice ads in magazines nationally. TheSpanish site, www.tartamudez.org, had16,074 hits in October. □

Record Year forPublic Service Adsin Magazines

Pick up a copy of Time magazineon the newsstands and chances areyou’ll spot a plug for The StutteringFoundation. Leaf through other mag-azines, such as Golf, Seventeen,Newsweek and People, and you’llfind more.

About 560 magazines ran publicservice ads for the SFA in 2004, gen-erating thousands of phone calls, e-mails and letters from people seekinghelp. The magazines cater to all sortsof interests and include those youmight find in the supermarket check-out lane (Good Housekeeping), in theairplane seat pocket (SouthwestAirlines Spirit), or at the feed store(Soybean Digest).

The SFA tries to reach differentaudiences with ads tailored to readersof the magazine. For example,Seventeen magazine ran ads that fea-tured Nicholas Brendon, star of thetelevision series Buffy the VampireSlayer. Time and People preferredthose featuring conservationist andauthor Alan Rabinowitz. Of course,the ad with a photo of WinstonChurchill is always a favorite, appear-ing in Forbes, Fortune, and AARPpublications. Some magazines, suchas the Journal of the AmericanMedical Association and Kiplinger’sPersonal Finance magazine, prefer torun ads without photos. “To someonewho stutters, it’s easier done thansaid” is a popular text-only ad.

So the next time you pick up amagazine, be on the lookout! An SFAad may jump out at you.

□

One of his proudest accomplishmentswas his directorship of an annual two-week professional workshop, StutteringTherapy: Workshop for Specialists, heldat Northwestern from 1985 to 2001. Theworkshop was limited to 20 participants ayear, and over time he and his staff en-hanced the training of more than 255 clin-icians from the U. S. and Canada andmore than 75 clinicians from other coun-tries representing all continents. Parti-cipants developed professional skillswhich they carried to programs through-out the world, and also formed lastingfriendships.

“I can think of no one who has donemore to promote and help carry out spe-cialization in the field of stuttering thanHugo Gregory, not only in this country,but also around the world,” said JaneFraser, president of the SFA.

At Northwestern he mentored hundredsof students, directing 15 doctoral disserta-tions. He was Head of the Speech andLanguage Pathology Program for sevenyears, and served on professional commit-tees of the American Speech-Language-Hearing Association and the InternationalAssociation of Logopedics andPhoniatrics. He had a particular interest ininternational affairs in his field and he andhis wife Carolyn traveled widely, present-ing short courses on four continents.

His friends, colleagues and family willremember forever his smile, relaxed styleof speaking, and twinkle in the eye. Heknew how to listen, and was a natural clin-ician and wise counselor.

president John Tarver. Ruth stutteredfrom the time she was a young child,said Kirk, vice-president of the compa-ny. “It didn’t matter to us, but it embar-rassed her. Back in the ‘30s there wasn’tany help.”

Noted baritone Robert Merrill,who sang more than 500 perfor-mances at the Metropolitan Opera,died October 22. He was 87.

Merrill, a cross-over artist, wasequally known for popular rolessuch as in “Fiddler on the Roof”and as the voice of the national an-them on opening day at YankeeStadium.

Less well known was Merrill’sstruggle with stuttering.

Merrill served as SFA’sspokesman and honorary chair-man of National StutteringAwareness Week in 1995. “I thinkit’s a tremendously importantissue because stuttering can makeor break you as a human being,”Merrill said then. “You can lose somuch from your life unless youconquer it and come to terms withit—not only in your professionallife, but in your personal life aswell. Stuttering makes you unsureof yourself, it make you feel thatyou are really less than you are—which is a terrible thing.”

A Brooklyn native, Merrill,“ended his career as one of themost beloved singers of his time,”wrote Washington Post staff writerTim Page in an October 27 tributeto the singer “Part of this was dueto Merrill’s personal warmth anddecency. He seems to have been agenuinely nice man.”

Merrill is survived by his wifeof 50 years, Marion Machno, hisson, David, daughter, Lizanne,and three grandchildren.

4 www.stutteringhelp.org

□

1-800-992-9392

International Expert in Stuttering Mourned by ColleaguesContinued from page 1

Jane Fraser with Kirk Tarver. ShelbyRailroad Services’ Tin Cup GolfTournament raised $3,500 for the SFA.

Shelby Railroad Services again thisyear chose to benefit the SFA throughtheir annual golf tournament, raising$3,500 to help those who stutter.

The Memphis-based company heldit’s annual Tin-Cup tournament on a inOctober.. The blustery weather couldn’tdampen high spirits, and the benefitraised $1,000 more than last year.

“We are thrilled to again be the bene-ficiary of this tournament,” said SFA

President Jane Fraser.“I would like to thankeveryone who gave tothis worthwhile cause,especially John andKirk Tarver of ShelbyRailroad Services formaking this possible.”

The Tarvers againchose The Stuttering Foundation fortheir gift in honor of Ruth Tarver, thelate mother of company founder and

Shelby RR Tourney Raises $3,500

□

Opera Great, SFASpokesman RobertMerrill Dies at 87

work, research, and writing about theproblem of stuttering.

Dr. Gregory was Professor of Speechand Language Pathology at NorthwesternUniversity in Evanston, IL, from 1962-1993. He authored or edited six books onstuttering.. His most recent textbook,Stuttering Therapy: Rationale andProcedures (2003), focused on the rela-tionships among theory, research find-ings, and clinical procedures in treatingstuttering.

He has been recognized with numerousawards at the state, national and interna-tional levels including as the first recipientof the Malcolm Fraser Award (StutteringFoundation of America), Honorary Degree(Universidade Camilo Castelo Branco, SanPaulo, Brazil), and the Honors of theAmerican Speech-Language-HearingAssociation (the highest honor of theAssociation).

National Stuttering AwarenessWeek poster featuring 1995 SFAspokesman Robert Merrill.

John Tarver

□

roughly 100 in-dividuals inthree genera-tions, while theother has 48members, alsoin three genera-tions. In thesetwo familiesthere are a re-markable 60 in-dividuals whostutter.

The rare oc-currence ofthese familiespresents re-markable op-portunities forresearch. Wedon’t yet know if the gene or genes re-sponsible for stuttering in these familiescause stuttering in other populations, butwe’re making progress finding thesegenes. If and when we find them, we hope

A compilation of classic articles by the the renownedauthority on stuttering is now available in a single vol-ume with the publication of The Genius of DeanWilliams. Edited by Carroll Guitar, M.L.S., this collec-tion covers the full range of topics on which Williamswrote. Gathered in one 102-page book, The Genius ofDean Williams represents a unique philosophy andapproach to stuttering therapy and to clients from agiant in the field. The book is available from the SFAfor $10 each by calling 800-992-9392 or at the on-line store at www.stutteringhelp.org.

WINTER 2005 51-800-992-9392

□

□

The Genius of Dean WilliamsBook Offers Compilation of Work

NSAW posters andbrochures inspire! Ournewest poster featureswildlife conservationist,explorer and authorAlan Rabinowitz.. Greatto increase awareness inyour school, clinic, com-munity, library or work-place. Order now forNSAW in May, online atwww.stutteringhelp.orgor call 1-800-992-9392.

Order Now for National Stuttering Awareness Week in May

Alan Rabinowitz

NSAW poster

15 Famous PeopleWho Stutter, posterand brochures

Stuttering research volunteers in Cameroon, West Afrrica. workiing with Dr.Dennis Drayna, National Institute on Deafness and Other CommunicationDisorders into genetic factors in stuttering.

Studies of several remarkable fami-lies in West Africa have reinforced evi-dence for genetic factors in some casesof stuttering, and these families are giv-ing us opportunities for research aimedat understanding these factors.

These families live in the Republic ofCameroon, and were originally discov-ered due to the efforts of the Speak ClearAssociation of Cameroon (SCAC), oneof the leading stuttering self-help orga-nizations in Africa. Led by Mr. JosephLukong, Founder and Coordinator

G e n e r a l ,SCAC hasreached outto stutterersacross themany diverseregions ofCameroon ,and helpedc o o r d i n a t etherapy train-ing and prac-tice in that

country, with the aid of stuttering pro-grams from both Europe and the UnitedStates.

In the course of SCAC’s outreach ac-tivities, they became aware of severallarge families in which almost half of allfamily members stutter beyond youngchildhood. SCAC then contacted re-searchers at the National Institutes ofHealth, in Bethesda, Maryland, regard-ing these families, which sparked the in-terest of researchers there. Over the pastfew years, these families have beencarefully documented, and the stutteringthat occurs has been shown to be typicalof stuttering worldwide. Importantly,the affected individuals in these familiesdo not appear to have any other symp-toms or disorders beyond stuttering,making them especially helpful for ge-netic studies.

Two families have been carefullystudied so far. One family consists of

African Families Provide New Avenues for Genetics ResearchBy Dennis Drayna, Ph.D.

Do you give through UnitedWay? You can still directly

designate your gift to the SFA!Proof of nonprofit status can besent to your employer by fax,

mail or email.

Give the United Way

they’ll tell us important things about thecause of stuttering in general.”

Stuttering therapy might be signifi-cantly improved if these underlyingcauses of stuttering were known.

□

□

6 www.stutteringhelp.org 1-800-992-9392

Southern WorkshopFosters Network

The toughest teachers at the WesternWorkshop were only chest-high to mostworkshop participants. But they knewtheir stuff and were strict taskmasters.

School-age clients were the “experts,”training and testing participants on theirknowledge of the speech mechanism,their ability to explore stuttering mo-ments and their ability to use tools withthe help of client models.

The kids’ parents also engaged partic-ipants, bringing up all aspects of treat-ment in a panel discussion.

Workshoppers, who came from arecord 12 states, left inspired and betterprepared for stuttering therapy.

“I feel so much more confident aboutmy abilities,” said Candi Epperson.

“Thanks for helping us and conse-quently helping our clients,” added KatieGoudie.

Other highlights of the five-day work-shop held in June at the University ofWashington were demonstrations of clin-ical techniques by co-leaders SusanHamilton and Jennifer Watson and guid-ed practice with participants role-playingtreatment scenarios.

Guest lecturer David Prins was also ahit with his morning session on evi-dence-based treatment.

The terrific trio of Lisa Scott, KristinChmela and Joe Donaher led the 2004Southern Workshop this past summer.

“This was my first experience work-ing on a five-day conference,” said co-di-rector Joe Donaher, M.A., of Children’sHospital in Philadelphia. “What I foundwas an amazing learning experience sur-rounded by people who were equally ex-cited about stuttering.”

“The workshop was a great successbecause of the dedication of our attendeesand my colleagues,” said Lisa Scott,Ph.D., Florida State University. “It’s aprivilege to spend a week interacting andlearning from others who are passionateabout helping children who stutter. Notonly did we learn from one another butwe had a lot of fun. I am thrilled to be partof such a wonderful experience.”

“This year the extended role playgave the participants the opportunity topractice skills being learned,” Chmelasaid. “I hope we can continue to dia-logue about the kids they are workingwith who stutter!”

“Toughest Teachers” Train SLPs at SFA’s Western Workshop

Western Workshop 2004, from left, back: Beatrice Lomonace, James Lautenschlager, David andGloria Prins, Pat Carothers, Alex Johnson, Jennifer Watson, Susan Hamilton, second row:Patricia Boyd, Linda Shulman, Janet Tilstra, Carole Roth, Treva Graves, Katie Goudie,AbbyFarr-Petterson, third row: Deborah Squires, Lorraine Garvey-Will, Shana Gibson, Marie Lambe,Becky Evans, Candi Epperson, Devra Milligan, Joe Fulcher, front: Roxanne Lang, Elisa Huff,Karin Fleming, Ashleigh Hautala, and Julia Steifel.

Southern Workshop 2004, from left, back: Joe Donaher, Stacia Thompson, Sandra Ferguson,Ashley Jackson, Terry Clark, Amie King, Mary Chamier, center: Lisa Scott, Janaye MattesonHoughton, Vina Kahre, Valeria Silver, Felix Matias, Wendy Sprague, Hazel Hewitt, EllenGermain, Elaine Rau, Delores Hudson, Heidi Chew, Rob Burroughs, Edie Jones. front: NadiaBrown, Joe Fulcher, Jane Fraser, Heather Bersuch, Kristin Chmela. Not pictured: Itza D'Avila.

“The setting provided time for deepdiscussions, debates and conversationson concomitant disorders which fre-quently coexist with stuttering.” Donaheradded. “All of us, leaders included,

walked away better prepared to workwith children who stutter. Participantsbecame part of a strong network whichwill foster their future learning and sup-port them in their clinical pursuits.”

Swish—the ro-tund little animatedbasketball— and hisreal friends whostutter in Stuttering:For Kids, By Kidsare hitting the road.

From the ASHAConvention inPhiladelphia to theOSHA conferencein Portland, Oregonto an in-service inCleveland, Swish and friends are mak-ing the rounds and scoring points withSLPs, parents and kids who stutter.

“I am thrilled with the StutteringFoundation’s new video,” wrote JudyButler of Franklin, Mass. “I would liketo know other SLPs’ experiences withshowing it. Here are some of my own...

Fourth grader’s mother: You [child]do some of those things in that video,like eye rolling. Second grader: turnsaway saying, “I don’t want to go toschool.” Second grader: smiling throughmost of it, looking at parents with ap-parent feelings of gratitude and relief.

“How are others helping kids processthis video?”Butler asked.

“I have a big picture on my therapywall with Swish,” said Joe Donaher, aSLP with Children’s Hospital inPhiladelphia and member of the teamthat created the video. “When kids seehim we talk about the famous basketballplayers who stutter like Kenyon Martinand Bill Walton. I then talk about howSwish wanted to learn more about stut-tering and this leads into the tape.

“Swish has become an integral part of

my classroom pre-sentation,” headded. “Childrenthoroughly enjoylistening to himwhile learningabout stuttering.The tape presentsinformation in anon-threatening andsensitive fashion.”

“I am thrilledwith the video. I

have shown it to several clients with par-ents in my practice. We have discussedmany issues and I find that the parentswill focus on one or two things and thechildren on a couple of points, but thebottom line is that the dialogue resultingfrom the video is wonderful!” wroteDiane Games, an SLP in Cincinnati,Ohio. “I also used the video in my grad-uate class as a teaching tool when intro-ducing transcription of samples andtypes of disfluencies. The video provid-ed several short samples of speech witha variety of types of fluency.”

Swish has become a darling of thepress as well.

Fox Channel 13 in Memphis choseSwish as the focus of their back toschool program in September. LongIsland Parenting and Woman’s Day—with a circulation of 4 million—havechosen Swish to launch 2005 with arti-cles in January and March on helpingschool-age children who stutter.

Reporter Angela Daidone of KABCChannel 7 in Los Angeles is using ForKids, By Kids with live interviews ofchildren from L.A. and Drs. Glyndonand Jeanna Riley for a segment.

And stacks of press clippings, withmore arriving daily, attest to the charmand effectiveness of the 12-minutevideo, which features kids of all agestalking about whether their stutteringbugs them, dealing with bullying, howto tell people you stutter, and more.

Many parents and children who stut-ter have never met anyone else who stut-ters, and hearing and seeing other kidswho do talk honestly about it is atremendous benefit in itself.

“The tape has been an invaluable toolfor parent training,” Donaher said. “Theysee many children, each with their owncharacteristics, who all stutter. Too oftenparents have a stereotypical view of whata ‘stuttering child looks like. By demys-tifying stuttering, this tape has helpedparents put things into perspective.”

WINTER 2005 71-800-992-9392

Swish and Friends Are Scoring Big!

DVD Honored with anAdding Wisdom AwardStuttering: For Kids, By Kids, wasselected for an Adding WisdomAward by Parent to Parent, the syn-dicated column. Products are chosenfor outstanding quality and support-ing family values. The award guidesparents in choosing products fortheir children that not only entertain,but also “add wisdom.” (See SpecialNeeds Products for Education,www.AddingWisdomAward.com.)

wwiitthh

SSwwiisshh!!

SSttuutttteerriinngg ::FFoorr KKiiddss,, BByy KKiiddss

□

Morning host Ron Mahoney with Jane Fraserand Swish on Fox 13 News in Memphis.

Editor’s Note: Here’s a great idea fora project for NSSLHA groups and localself-help support groups in the U.S.!

Saying they want to put a copy inevery school, the British ColumbianAssociation of People Who Stutter hasordered 300 copies of Stuttering;Straight Talk for Teachers from the SFA.

“Over the years, BCAPS has noticedthat teachers in the school system appearto have a general lackof awareness and un-derstanding of whatstuttering is, how toidentify it, and whatactions to takeonce it has beenidentified,” saidLisa Avery, SLPAdvisor to theBCAPS Board.“To help teach-ers to supportchildren whostutter in schools,BCAPS is developing a TeacherEducation Pro-gram. This program willinclude a package of multimedia materi-als for distribution to teachers and othereducators in the public and privateschool system.”

The SFA’s 20-minute video will beshown to teachers in 60 schools. SLPswill use the free 40-page handbook tofacilitate the sessions, and teachers willreceive a two-page fact sheet on stutter-ing and classroom strategies.

“It is expected that this program willhelp to build a closer partnership amongteachers, parents and school speech-lan-guage pathologists so that appropriateand effective treatment can be providedas early as possible to school-age chil-dren who stutter,” Avery said.

BCAPS Buys 300Tapes for Schools

□

union after 17 years since graduation.When I entered the big hall, a formerteacher approached me and said: “I hopedthat you would come tonight. I have a stu-dent who stutters and I want him to get intouch with you!” I was so happy that mycourage in 1998 had left an impression.

Stefan HoffmanGermany

What’s Up with Stuttering?Stuttering makes me feel...

Angry when I can’t get a word out.Nervous because kids might make funof me.Different from everybody else.Frustrated when kids finish my sen-tence and they are sometimes wrong.Proud because I sometimes getthrough words without getting stuck.Excited on some days I don’t stuttermuch at all.Happy because my real friends listento me!Jacob S., 10

Sometimes I Just StutterThe following letters were written to

Eddie a 13-year-old boy and Jenny a 7-year-old girl whose stories appear in oneof the SFA’s most popular books,Sometimes I Just Stutter by Eelco deGeus (Publication No. 0031).

8 www.stutteringhelp.org 1-800-992-9392

Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org.

Dear SFA: Reader ResponseStuttering is... art to Share

Dear SFA:My name is Jacob. I live in Coeur

d’Alene, Idaho. I have two brothers andone sister. I have six cats and one dog. Ilike to play video games. I have green-blue eyes and blond hair. I wear twowatches because one of them tells theright hour and the other tells the rightminutes.

I am in the fourth grade at BorahElementary. I am really good at math. Istutter a lot. Lots of kids tease me aboutmy stuttering and get on my nerves. Ihave gone to speech for five years and itis a lot of fun. I have been stuttering mywhole life.

Here at Borah School we have stutter-ing parties. Kids that stutter in SchoolDistrict #217 are invited. I have beenpresident of the parties for two years andthis is my third. I get to think of any typeof food I want and in May I don’t have togo to class for one whole day.

Two years ago I made this picture. Itwas done with watercolor. I just startedpainting and it turned out this way. Thereal painting looks better and it is at mymom’s house.I am sending you this pic-ture and letter because my speech teach-er said that if I wanted to I could. Shethinks my picture is the best out of all the14 years that she has seen kids’ artworkin speech. I think my painting is awe-some. My speech teacher and I were hop-ing that you could put on one of themovies that you make, or in or on one ofthe front pages of your booklets. The pic-ture will show other kids and adults thatthey are not the only ones who stutter andfor people who don’t stutter to learn moreabout stuttering.

Jacob M.President of Stuttering in School

Sharing Story of StutteringHelps Others Years Later

I want to tell you all a wonderful story.In 1998 I went back to my high schooland in front of all teachers I told themwhat had been the matter with me andmy stuttering when I was in the schoolfrom 1978 to ‘87. I left with them theteachers’ brochure of the GermanAssociation, so that they know what todo with other stuttering children.

[Last week] we had a high school re-

“This picture will show other kids andadults that they are not the only ones whostutter,” writes fourth-grader Jacob M.from Coeur d’Alene, Idaho.

Dear Eddie:I’m Brandon I’m 11 years old and I

know I like to stutter. Why? Because whenI talk I just let me stutter. Because if youdon’t want to stutter it can be a problem. Ihave a lot of problems. I know you havesome problems too. But when someone isteasing you just say “Come back whenyou can stutter better than me.”

Brandon, 3rd grade

Dear EddieI know it’s hard. I think stuttering is a

gift. Do you? I know that we both like tostutter. Oh, by the way, my name isJoshua. Some kids don’t like to stutter.That’s because they’re embarrassed. I toldmy friends that I stutter. They said “OK,we won’t laugh.” Only have a good timeand don’t let stuttering get you down.

Joshua, 4th grade

Dear Jenny:We know that you have problems

about people teasing you. Just make ajoke out of it and just make something up.Like if kids are calling you “Stutterface”just tell them that “you should see myfishface.” Or tell them “Is that all yougot?” And shake their hand. They say,“But we just called you a name.” And wesay “I know. You did a very good job.”Then they are the ones to get confused. Iwait ‘til I get home to cry. I tell myselfthat I don’t stutter that much.

This is Joshua and Brandon signing off.

Please Send HelpGood morning, SFA:I have read about your organization

and I was wondering if there is anychance you would be able to send materi-al so that I may be able to help myself (oreven read stories about how others arecoping with stuttering). I live inCameroon and there will be no way forme to attend anything in the U.S., how-ever if there is any way I could receivenewsletters, self-help guides, books, etc, Iwould really appreciate it. Thank you andGod bless.

Victor Banseka Wirba Cameroon, Africa

Victor was sent free copies of Adviceto Those Who Stutter and Self-Therapyfor the Stutterer.

□

WINTER 2005 91-800-992-9392

dents, clients and colleages, from experi-ences in a long career in the academicworld, and from a life-long immersion innature. Call 800-992-9392 for details.

Treating the School-AgeChild Who Stutters byCarl Dell Now in Czech� The Carl Dell classic, Treating theSchool-Age Child Who Stutters: A Guidefor Clinicians, is now available inCzechoslovakian thanks to the efforts ofElizabeth Peutelschmiedova, Ph.D., ofthe University of Olomouc. She has alsobeen on TV and radio in the CzechRepublic to talk about the book.

Alex Johnson ElectedPresident of ASHA

� Congratulations toAlex Johnson on hiselection to Presidentof ASHA. Johnsonwill serve asPresident-elect for2005 and then asPresident in 2006.Johnson, a 1998graduate of theSFA’s Workshop for

Specialists, will lead a five-day work-shop for SLPs on stuttering therapy oncehis ASHA duties are over.

Surviving Adversity� Two of the SFA’s spokesmen are sub-jects in a book by Gord Carley. FormerChicago Bulls great Bob Love and actorNicholas Brendon talk about how theyovercame their struggles with stuttering inSurviving Adversity. The book includes30 other profiles of individuals who haveovercome adversity. It may be purchasedthrough the SFA for $12.95. Fifty per-cent of the sales price to the SFA!

Stuttering andYour Child: Q &A in Korean� Moonja Shin hastranslated one of SFA’smost popular publica-tions, Stuttering andYour Child: Questions& Answers, for parents of youngchildren into Korean. This is her secondtranslation of an SFA book.

Cuban Congress IncludesLecture on Stuttering � Havana, Cuba was the host city for anInternational Congress on “Education andDiversity” attended by 160 participantsfrom the U.S., England, France, Finland,Mexico, Spain and Brazil. Fred Murray,one of the presenters, writes that his trilin-gual capacities “were pressed to the limitwhen it became apparent that that commu-nications between Cubans, the English andFrench guests had to pass through me—quite a challenge for one with a history ofstuttering! Fred’s 40-minute talk was onthe theme of “Interdisciplinary Aspects ofManagement of Stuttering.”

Buy Sharing the Journeyand Get Free Magnet� Sharing the Journey... Lessons from mystudents and clients with tangled tonguesis available to readers through a specialoffer by the SFA and North CountryPublishing. Buy the book at the regularprice of $14.95 and receive a free refrig-erator magnet with talking tips for parentsof children who stutter. Author LonEmerick, Ph.D., is a former universityprofessor, therapist and severe stutterer.The book’s journey is highlighted by 10maxims for good living, gleaned from stu-

□

News Shorts

□

A group from the Shanghai Stuttering Association gathers for a photo at ISAD in Oct.

SFA Supporters UseWeb Site, Media toReach SpanishSpeakers WorldwideSpecial to The Stuttering Foundation

The Stuttering Foundation Spanishwebsite, www.tartamudez.org, isreaching new heights. Not only is it thefirst website of its kind in the Spanishlanguage to serve people who stutterand their families, but it has now beenfeatured in newspapers all over theworld.

Several ardent SFA supporters sub-mitted letters to the editor of dailynewspapers and at least one newspaperin every Spanish-speaking countryprinted the letter, including EquatorialGuinea, the only Spanish-speakingcountry in Africa.

In addition, Spanish-languagenewspapers in the U.S. and Canadaprinted info about the website as well.The number of “hits” on the websitehas increased substantially since theletters appeared in November. In a fu-ture newsletter, we will print a break-down of the requests that came fromeach country to show the progress thathas been made with this website.

Furthermore, publication of theseletters by SFA boosters have resulted ininquiries by a couple of newspapersabout doing feature articles on stutter-ing and the website; such articles willlikely be posted on the website in thefuture.

We thank all of our supporters whohave contacted us with their kindwords about our new Spanish-lan-guage website and welcome sugges-tions. □

□

□

□

□

10 www.stutteringhelp.org

STUTTERINGFOUNDATIONTM

1-800-992-9392

A Nonprofit OrganizationSince 1947 — Helping Those Who Stutter3100 Walnut Grove Road, Suite 603P.O. Box 11749 ● Memphis, TN 38111-0749

1-800-992-9392 ● 1-800-967-7700www.stutteringhelp.orginfo@stutteringhelp.org

■ The Stuttering Foundation two-day conference for speech-lan-guage pathologists working withschool-age children who stutter,Practical Ideas for the SchoolClinician, will be held in June,2005. For dates, place, and anapplication form, call the StutteringFoundation at 1-800-992-9392 orcheck www.stutteringhelp.org. ■ The Stuttering FoundationEastern Workshop, Diagnosis andTreatment of Children Who Stutter:Practical Strategies, directed bySusan Dietrich, Ph.D., SherylGottwald, Ph.D., Edward G.Conture, Ph.D. in collaborationwith Diane Parris, M.A., will beheld at Boston University. For

dates, place, and an application form, callthe Stuttering Foundation at 1-800-992-9392 or check www.stutteringhelp.org. ■ The Stuttering Foundation two-weekWorkshop for Specialists will be held atthe University of Iowa, Iowa City, Iowa, inJune 20-July 2, 2005, directed by PatriciaZebrowski, Ph.D. and Toni Cilek, M.A.For more information, contact theStuttering Foundation at 1-800-992-9392,or write Dr. Zebrowski, c/o SFA, 3100Walnut Grove Road, Suite 603, Memphis,TN 38111-0749. This unique workshopbrings together speech-language patholo-gists from all over the world.■ To purchase a poster entitled The Bill ofRights and Responsibilities of PWS, con-tact Michael Sugarman atMSugarman1@aol.com. It represents thecombined effort of the IFA and ISA.■ Cours d’immersion a la fluidite offrirades l’automne 2004, une fin de semaine in-tensive sur la fluidite. Pour renseigne-ments, faire venir un courriel a abcbe-gaiement@sympatico.ca.■ LISTSERV for doctoral students in stutter-ing. Membership is limited to doctoral studentsonly. To subscribe, send the following messageto listserv@listserv.temple.edu: subscribe stut-terdoc firstname lastname or contact JoeDonaher at turtlecraw@aol.com.■ For those interested in joining ToastmastersInternational, their address is: ToastmastersInternational, Inc., Attention: MembershipDepartment, P.O. Box 9052, Mission Viejo,CA 92690, Telephone: (714) 858-8255; Fax:(714) 858-1207.■ For Self-Therapy for the Stutterer inJapanese, write to Dr. Shokichi Nakajima,2-21-1 Ogawa Machida-shi, Tokyo 194,Japan, Phone: 0427 (96) 5092.■ For Self-Therapy for the Stutterer inFrench, write the Association des Beguesdu Canada, 2596 A rue Chapleau,Montreal, Quebec, Canada, H2K 3H6; 1-877-353-1042. Enclose $20 Canadian forprinting, postage, and handling costs.■ For Stuttering and Your Child: Questionsand Answers in Hindi, write to: Dr. SajivAdlakha, Adlakha Speech and Hearing Clinic,A67 Dayanand Colony, Lajpat Nagar - 4, NewDehli-110024, India, or e-mail: adlakhas@hot-mail.com Those interested in joining a fluencyand public speaking skills group should alsocontact Dr. Adlakha at the above address.For a list of books on stuttering or relatedtopics, please visit our web site.

NE

WS

BR

IE

FS

Two-Day WorkshopStuttering Therapy: PracticalIdeas for the School Clinician

� June 17-18, 2005Minneapolis, MN

Charles Healey, Ph.D., Peter Ramig,Ph.D., Patricia Zebrowski, Ph.D., Bill

Murphy, M.A., and Kristin Chmela, M.A.

Five-Day WorkshopTreating Children and

Adolescents Who Stutter� June 22-26, 2005

Boston, MAEdward G. Conture, Ph.D., SusanDietrich, Ph.D., Sheryl Gottwald,

Ph.D., and Diane Parris, M.S.

Two-Week WorkshopStuttering Therapy:

Workshop for Specialists� June 20-July 1, 2005

Iowa City, IAPatricia Zebrowski, Ph.D., Toni Cilek,M.A., Edward G. Conture, Ph.D. and

Peter Ramig, Ph.D.

Applications may be downloaded fromthe Web site, www.stutteringhelp.org.Click on applications for professionalworkshops or call 1-800-992-9392.

SFA Workshops

From left, back: Susie Hall, Lisa Scott, Lisa Hinton, Joan Warner, Jane Fraser; front: Pat Hamm,Roberta Brugge. Not pictured, Anne Edwards, John Bell and Deborah Squires.

Our best wishes for ahappy new

year!From the

staff at SFA.

anatomy in auditory temporal brainregions (planum temporale, PT) in a groupof adults with persistent developmentalstuttering (PDS). We postulated that hisanatomic defect may be functionally rele-vant, and the results of a recent study sug-gest that there may be a structure-functionrelationship. In this study (November2004, Neurology) we examined a group ofadults with PDS and fluent adults. The PTwas measured on volumetric MRI brainscans, and subjects were classified as hav-ing a typical leftward PT asymmetry (leftlarger than right) or atypical rightward PTasymmetry. Prose passages were read atbaseline, with non-altered feedback(NAF), and with DAF, and fluency wasmeasured in these three conditions. In theadults with PDS and atypical PT anatomy,fluency was improved with DAF. In con-trast, the adults with PDS and typical PTanatomy did not improve fluency withDAF. Our results suggest that anomalousPT anatomy may be a neural risk fordevelopmental stuttering in some individ-uals. It may be that atypical rightward PTanatomy may alter speech feedback, andtreatment with DAF might allow thesepeople to compensate.

References:Foundas AL, Bollich AB, Corey DM, Hurley

M, Heilman KM. Anomalous Anatomy in Adultswith Persistent Developmental Stuttering: AVolumetric MRI Study of Cortical Speech-Language Areas. Neurology, 2001 57:207-215.

Foundas AL, Corey DM, Hurley M, HeilmanKM. Anomalous auditory processing in adultswith persistent developmental stuttering:Dichotic listening measures of free recall anddirected attention Cognitive and BehavioralNeurology. (in press).

Foundas AL, Bollich AM, Feldman J, CoreyDM, Hurley M, Lemen LC, Heilman KM.Aberrant auditory processing and atypicalplanum temporale in developmental stuttering.Neurology, 2004, 63:1640-1646.

Continued from page 1

DAF in Stuttering

□