#whywedoresearch tweetfest so far · #whywedoresearch tweetfest so far! thisyear’s#...

#WhyWeDoResearch tweetfest so far

This year’s #WhyWeDoResearch twee3est has been huge!

@keeling_Michael has been keeping an eye on the numbers and: Ø  Each day there has been over 2 million impressions

Ø With more than 1,500 #WhyWeDoReseach twee3est tweets per day Ø Over 10 countries taking part (across Kme zones and different languages)

Please remember to include #WhyWeDoResearch in all your

tweets so that everyone who is joining us can see your tweet.


Really couldn’t think of a beSer to start the #WhyWeDoResearch twee3est -‐

@DerekCStewart opened up with hosKng a chat on

‘Benefits and Disadvantages of Social Media to Health’.

(Link to the transcript is included in this tweet.)




@DerekCStewart: ‘Benefits and Disadvantages of Social Media to Health’.

What came across for to me was that some people found that there was good and bad

aspects to social media. It can overwhelming with the volume of informaKon that you get

but can also allow you to connect and share. I think overall people found the social media

was beneficial to them.




@SimonRStones hosted the second tweetchat with

‘NavigaKng the Ethics System for your Research Studies’.





@SimonRStones: ‘NavigaKng the Ethics System for your Research Studies’

The take home point for me was that we need more paKent and public involvement in

the ethics system. Also interesKng to see how ethics is applied to social media research

and the difficulKes faced when not affiliated to a university or healthcare organisaKon




@uoscares & @TracyCallen2 finished the first day with

‘CTAs (Clinical Trial Assistants) -‐ Improve the Research Recipe’





@uoscares & @TracyCallen2 : ‘CTAs (Clinical Trial Assistants) -‐ Improve the Research Recipe’

This is a role that isn’t available in Ireland, so for me this tweetchat was all about learning!

Was interesKng to see how the role and responsibiliKes varies across different areas and

that so far CTAs are not PIs for studies of their own. And we need a day to celebrate CTAs!




@DerekCStewart started day two of the twee3est with

‘PaKent Voice in Health Research’





@DerekCStewart:‘PaKent Voice in Health Research’

Health literacy came up quite a bit during this tweetchat, how we reach marginalised

voices in research and how we involve paKents and their families in research (quesKons,

designs, protocols etc). Healthcare researchers need to go to the paKent, stop making

paKents come to healthcare researchers!




@ClinEdge & @AskGuideStar & @BTC_Network hosted the fidh tweetchat on

‘PaKent Recruitment for Rare Diseases’





@ClinEdge & @AskGuideStar & @BTC_Network: ‘PaKent Recruitment for Rare Diseases’

Having paKents and their families as an essenKal part of that interdisciplinary team and

using branding were seen as key points for paKent recruitment. It also encouraged others

to host their own tweetchat on rare diseases!




@GordonHill1 & @SRNCN1 & @IACRNUKandIRE hosted the sixth tweetchat on

‘Exploring the RelaKonship between CRN/Ms & their Nursing/Midwifery Colleagues’





@GordonHill1 & @SRNCN1 & @IACRNUKandIRE:

‘Exploring the RelaKonship between CRN/Ms & their Nursing/Midwifery Colleagues’

This started lots of conversaKons! Main tweets on where on the benefits of having a

relaKonship between CRN/Ms and their nursing/ midwifery colleagues and how to

support these relaKonships and grow them.




@sharon_kempson started Wednesday with

‘Increasing Recruitment in Paediatric Research’





@sharon_kempson: ‘Increasing Recruitment in Paediatric Research’

This is a topic close to my heart! And lots of topics were discussed including MDT

relaKonships for increasing recruiKng, how to involve children in research, parental

consent and child assent and training for paediatric research staff.




@ClinEdge & @AskGuideStar & @BTC_Network hosted the eight tweetchat on

‘Budget NegoKaKons & Financial Management in Clinical Trials’





@ClinEdge & @AskGuideStar & @BTC_Network:

‘Budget NegoKaKons & Financial Management in Clinical Trials’

What I found interesKng about this tweetchat was how much interested it generated from research

staff who are not involved in financial management but from the quesKons asked during the tweetchat

they are now looking at how to become more aware of the structures etc involved in budgets.




@VickyLShepherd hosted the a tweetchat on

‘Research Involving Adults Who Lack The Capacity To Consent’





@VickyLShepherd: ‘Research Involving Adults Who Lack The Capacity To Consent’

Brilliant tweetchat that discussed how healthcare researchers can address the exclusion of

those who lack capacity to consent and the legal and ethical issues to consider. One of the

biggest learning points for me was who can make decisions, for research parKcipaKon, for

those who do lack the capacity to consent.




@TinkleLin started the twee3est on Thursday with

‘Research into Social Media as a method of Consent for Contact (ContactME-‐IBS)’





@TinkleLin: ‘Research into Social Media as a method of Consent for Contact (ContactME-‐IBS)’

Unfortunately I missed this tweetchat but read through the transcript I was really interested to

see how much social media reached out to people who did not know that there were research

studies they could take part in if they wanted to. They then shared the informaKon with

friends and family!




@carmenvillarb hosted a tweetchat in Spainish!

‘How Can We Improve CollaboraKon in Research?’





@carmenvillarb: ‘How Can We Improve CollaboraKon in Research?’

Unfortunately I don’t speak Spainish but this tweetchat lasted close to 2hrs and this morning I could

sKll see the conversaKon was sKll going on! Most of the tweetchat was under #WhyWeDoResearch but

I did noKce some tweets used #WyWeDoResearch (so for the Spainish tweetchat look out for both).




@NHS_NSResearch & @PwSiobhan hosted the first tweetchat for Friday with

‘Living Longer, Aging Well’





@NHS_NSResearch & @PwSiobhan: ‘Living Longer, Aging Well’

This tweetchat raised some interesKng points the need for a more inclusive and MDT

approach to research examining longevity, the impact of co-‐morbidiKes on living longer,

how research impacts on paKents and on how well we implement research findings into

pracKce.




@EmmaYhnellhosted finished the 2018 twee3est with ‘Public Engagement & Involvement in Research’




#whywedoresearch tweetfest so far · #whywedoresearch tweetfest so far! thisyear’s#...

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