Who, Why & How We Serve:

Healthcare Communities & Librarians in Social

Media PF Anderson

Technology in Libraries, MLGSCA

Cerritos, CA / March 6, 2009

Once upon a time …

• Image of an illuminated letter “A” from a Renaissance medical text.

• "When I began work for public library interests in new York we had 40 free public libraries and 40,000 saloons, so that by the law of averages a boy leaving his home in the evening would pass 999 open doors with a cordial welcome to the worst influences to every one inviting him to the companionship and inspiration of the best books.” – Melvil Dewey, The Field

and Future of Traveling Libraries, 1901

What is a librarian?Image of a

person constructed of books.

Image by Peacay: http://flickr.com/photos/85009674@N00/2658665834

What is a librarian?

• "But the modern library is less a reservoir than a fountain. Its librarian is an active, aggressive factor in popular education. He recognizes fully his duty to get and to keep, but puts far above this his greater duty to use." – Melville Dewey. On

Libraries, 1904, p. 196

What is a librarian? • Tommy sat down

next to Jonathan and reached for the keyboard -- and Mary Kay took it away from them both. "This is my pidgin," she said firmly, and they relinquished it. (Mary Kay is one of the secret masters of the world: a librarian. They control information. Don't ever piss one off.)– Spider Robinson, The

Callahan Touch, p. 64.

What is a librarian?

• Screenshot of librarians’ brief bios from Twitter, including:– Infodiva– Library Secrets– AnneHeathen– GeekLibrarian– Itinerant Poetry

Librarian– Punk Rock Librarian– Jen the Librarian– Awkward Librarian

• "A glance at the development of "A glance at the development of the library the library

ideaidea will enable us will enable us better to predict its futurebetter to predict its future, , as the astronomer computes an orbit, not by as the astronomer computes an orbit, not by study of where a body stands today, but of study of where a body stands today, but of the the track over which it has just cometrack over which it has just come."." – Melvil Dewey, 1901

The Helix Nebula from La Silla Observatory, Credit: WFI, MPG/ESO 2.2-m, Telescope La Silla Observatory, ESQ.

What do librarians

do?

Image of Ook, the Discworld Librarian (and an orangutan) from Terry Pratchett’s Discworld series.

Image by Musgo_Flickr: http://www.flickr.com/photos/30976576@N07/2967919054/

What have librarians always done?

What have librarians always done?

•discover•select•collect•organize•husband•access•preserve

•assist•share• teach•outreach• research•advocacy•create

• ““Students walked hundreds of miles, Students walked hundreds of miles, perhaps begging their way, to sit within perhaps begging their way, to sit within sound of the voice of some chosen teacher sound of the voice of some chosen teacher or to read some book securely chained to a or to read some book securely chained to a pillar. But the volume which then cost as pillar. But the volume which then cost as much as a village has by the new process much as a village has by the new process become as cheap as a lunch.”become as cheap as a lunch.”– Melvil Dewey, 1901Melvil Dewey, 1901

Objects of Our Attention

Image of old library sorting cards giving years from 1930 to 1980

• "Just tell me how you learned to hear "Just tell me how you learned to hear that corn."that corn."

• And he'd say, "It takes a lot of And he'd say, "It takes a lot of practice. You can't be in a hurry."practice. You can't be in a hurry."

• And I'd say, "I have time." … And I'd say, "I have time." … • And so he said, "Do this: go get to And so he said, "Do this: go get to

know one thing as well as you can. It know one thing as well as you can. It should be something small. Don't should be something small. Don't start with a mountain. Don't start with start with a mountain. Don't start with the whole Pacific Ocean."the whole Pacific Ocean."– Byrd Baylor & Peter Parnall, The Other Way to Byrd Baylor & Peter Parnall, The Other Way to

Listen. NY: Scribner, 1978Listen. NY: Scribner, 1978

Objects of Our Attention• Images of items collected

in early 20th century libraries, such as books and journals, microfilm, microfiche, and lantern slides.

Objects of Our Attention• Images of items typical in

libraries in the mid to late 20th century, including Index Medicus …

Objects of Our Attention• Images of items collected in

libraries from the late 80s onward.

afterafter

• "The reason I’m spending so much time on

literacy, I think, is because I am trying to wrap my head around this paradox: libraries are among the institutions striving to undo some of the inequity in our world, and yet, the principal action we take is to privilege a mode of communication used primarily by the elite."– Caleb. “A Paradox in Librarianship.” February 28,

2009 – 9:18 pm.command-f - a collaborating library thing <http://command-f.info/caleb/a-paradox-in-librarianship>

A Month in the Life of an ETechLib

A2Seniors

A2Seniors Wetpaint Wiki &

Community Forums

• discover• select• collect• organize• husband• access• preservepreserve• assist• share• teach• outreach• research• advocacy• createcreate

• Tech & Support– Research competing products – Blogs, Ning, Wikia, pbwiki, Wetpaint– Building content– Flickr, CC Image Search

• Communities– Healthcare Consumers– Healthcare Advocates– Researchers (Grant team)

ASA(SL)

• Image of Auttism Society of American support group meeting in Second Life. Topic: IEPs

ASA(SL)• Image 1: Twitter: “Hoping 2

livetweet this evening’s meeting in Second Life abt IEPs @ Autism Society of America

• Image 2: Image of Second Life avatar in front of sign: “Not being able to speak is not the same thing as not having anything to say

• Image 3: Screenshot from SLHealthy Wiki of meeting notes on tips for IEPs

ASA(SL)

• Feedback from meeting via twitterImage 1: That’s a great tip. I’m

writing this one on my calendar so I can make a call on Monday.

Image 2: I guess I really need to get on Second Life if they have ASA meetings

ASA(SL)• discover?• select• collect• organize• husbandhusband• access• preserve• assistassist• share• teach• outreach• researchresearch• advocacy• createcreate

• Tech & Support– Twitter– Second Life– SLHealthy Wetpaint wiki – Blogging (Flickr)

• Communities– Healthcare Consumers– Teaching/Learning Communities

iGoogle Widget Health Collections

iGoogle Widget Health Collections

iGoogle Widgets• discover• select• collect• organize• husbandhusband• access• preservepreserve• assistassist• share• teach• outreach• researchresearch• advocacy• createcreate

• Tech & Support– iGoogle– Shareable links– Blogging – RSS Feeds

• Communities– Healthcare Consumers– Researchers

Move Blog to Wordpress

Move Blog to Wordpress

• discover• select• collectcollect• organizeorganize• access• preservepreserve• assistassist• shareshare• teachteach• outreach• researchresearch• advocacyadvocacy

• Tech & Support– Blog platform comparison/selection– Troubleshooting– Twitter, identi.ca– Web searching

• Communities– Peers

Rare Disease Day

Rare Disease Day• discover• select• collect• organize• access• preserve• assistassist• share• teachteach• outreach• researchresearch• advocacy

• Tech & Support– Social networks: Facebook, Twitter, Flickr,

Youtube– RDD09 web page, ebooks, NORD – Flickr– Blogging

• Communities– Healthcare consumers

Cool Toys - Slideshare

Cool Toys - Momentile

Flickr - Amulet Example

• Convergence culture

Serious Games

• Screenshot of website: Serious Games for Healthcare Markets

Serious Games

• Screenshot of Delicious collections of gaming in health bookmarks - overview of issues

Serious Games

• Demographics: Virtual worlds for 10-20 yr-olds

• http://www.kzero.co.uk/blog/?page_id=2092

Serious Games

• “Overall age demographics continue much as expected. 73% of the population for September were 25 years and older. The older you are, the more time you spend in Second Life: over-45's spent an average of 64.13 hours in September, 35-44 spent 57.06 hours, 25-34 spent 45.06 hours, and the 18-24's spent less than 30 hours.

• Females spent nearly twice as long online in Second Life in September as the boys.

• Face it, your Aunt Tilley is more likely to be spending more of her time in Second Life than that early-adopting, tech-savvy young fellow.”– http://www.secondlifeinsider.com/

2007/10/15/september-key-metrics-and-statistics/

http://blog.brainstormbrand.com/higher-ed-marketing/2007/02/second-life-exploding-in-unlikely-segments

Serious Games / Virtual Worlds

• Montage of health care images from Second Life showing clinical simulations, patient communities, meditation spaces, anatomical models many times larger than life, hospitals, and disaster response simulations

Serious Games

• http://seriousgames.org/

Henry Ford Hospital LiveTweets Surgery

• Tweet answering a question during surgery: – No. Sometimes the

uterus is cut into smaller pieces and removed through one of the laparoscopic ports

Henry Ford LiveTweets Surgery

• Twitter Search: Realtim Results for #HFHGYN

Henry Ford LiveTweets Surgery

• YouTube video during surgery

More

• Science 2.0 - course planning– Skype– Google Docs– Adobe Connect– Mendeley– Slideshare– Online scheduling tools

Social Media in PubMed

• <http://tinyurl.com/am93sq>• ("second life" AND (virtual OR 3d OR

immersive)) OR "virtual worlds" OR "web 3.0" OR "medicine 2.0" OR "health 2.0" OR "web 2.0" OR mashup OR "social media" OR digg OR "del.icio.us" OR "social bookmarking" OR wikis OR folksonomy OR wikipedia OR flickr OR twitter OR youtube OR facebook OR myspace

• Open Source Marketing: Camel cigarette brand marketing in the Web 2.0 world.• Watch how Great Ormond Street uses WHO checklist on YouTube.• Facebook medicine.• Using blogs and wikis in a graduate public health course.• Web 3D for public, environmental and occupational health: early examples from second life.• Foresight scanning: future directions of clinical and pharmaceutical research.• Real-time Ambulance Location Monitoring using GPS and Maps Open API.• Trust evaluation in health information on the World Wide Web.• Use of Facebook in academic health sciences libraries.• Web 2.0 tools in medical and nursing school curricula.• Scale-rotation invariant pattern entropy for keypoint-based near-duplicate detection.• Teenagers Wanting Medical Advice: Is MySpace the Answer?• Reducing at-risk adolescents' display of risk behavior on a social networking web site: a randomized controlled pilot intervention trial.• Display of Health Risk Behaviors on MySpace by Adolescents: Prevalence and Associations.• Broadcast yourself--the YouTube phenomenon.• An untapped resource: using YouTube in nursing education.• New tools to support collaboration and virtual organizations.• The evolution of the Web and implications for eResearch.• "Web 2.0, i.e. the second generation of the World Wide Web". Editorial.• Blogging as a social tool: a psychosocial examination of the effects of blogging.• X-ray tube to YouTube.• The potential role of Web 2.0.• Get a [second] life.• Isolated to integrated: an evolving medical informatics curriculum.• Web 2.0 systems supporting childhood chronic disease management: a pattern language representation of a general architecture.

Social Media in PubMed

• n = 426 total• 2008 = 161• 2007 = 80 (>14 not relevant)• 2006 = 37 (>16 not relevant)• 2005 = 26 (8 relevant)

SocMed Articles in PubMed by Year

0 50 100 150 200

Yr 2005

Yr 2006

Yr 2007

Yr 2008

Year

Number

Quantity

Social Media in PubMed

• n = 426• Largest concepts:

– Web 2.0– Virtual worlds– Wikis/Wikipedia– Myspace– Youtube

SocMed in PubMed by Type

Del.icio.usDiggFacebookFlickrFolksonomyHealth 2.0MashupMedicine 2.0MySpaceSecond LifeSocial BookmarkingSocial MediaTwitterVirtual WorldsWeb 2.0Web 3.0WikipediaWikisYouTube

community community

consumers

special needs advocates

teachingteachinglearninglearning

cliniciansallied health

researchersresearchers

life sciencelife scienceclinicalclinical

informaticsinformaticstranslational translational

Image by BWJones: http://flickr.com/photos/bwjones/3315105563/

health managementhealth management

peerspeers

• "One of the responsibilities of information professionals in the digital age is to point researchers to papers or interesting blogposts about emerging topics." – Dean Giustini. 'Open Science' & 'Research

2.0' in Scholarship. Posted on February 27, 2009 - 18:59 Open Medicine Blog.

Social Media Risks: Intellectual Property / Privacy

• Screenshot of a delicious collection including an image that is blocked in Flickr.

Strategy: Sorry

• Accept that some content will be stolen.

• Create your content with your brand embedded throughout.

• The best defense is a strong offense

• But no real answer at this time

Social Media Risks: Looking Silly

Strategy: Use Common Sense

• Tweet: Early Show rules for tweeting: Treat it like e-mail -- you can’t take it back. Don’t tweet when you’re angry or drunk.

Social Media Risks: Spam & Griefers & Bots (Oh, My)

• “ever since @haikutwaiku started aggregating twaiku without giving credit to the authors, I’ve been turned off posting twaiku here” @moritherapy, Jan 8, 2009

Strategy: Open/Closed Balance

• Don’t follow everyone• Especially don’t

AUTOFOLLOW• Check out the people

you do follow• Don’t be afraid to file a

griefing or spam report• Enlist support of others

with same problem

Social Media Risks: QualitySocial Media Risks: Quality

• ‘‘If not by Scriptures, how can we be If not by Scriptures, how can we be sure,’ sure,’

• Replied the Panther, ‘what tradition’s Replied the Panther, ‘what tradition’s pure?pure?

• For you may palm upon us new for old:For you may palm upon us new for old:• All, as they say, that glitters, is not All, as they say, that glitters, is not

gold.’gold.’– John Dryden, The Hind and the Panther John Dryden, The Hind and the Panther

(1687), lines 212-215.(1687), lines 212-215.

Strategy: Well, duh!

• Come on - we’re librarians!!– Grain of salt– Consider the

source– Who watches the

watchers

Social Media Risks: Social Media Risks: Magpie MomentsMagpie Moments

• ““But it But it GLITTERSGLITTERS!!” the !!” the magpie replies. “Ooooh, magpie replies. “Ooooh, shiny, shineeeee!” shiny, shineeeee!” – PF Anderson, 2009.PF Anderson, 2009.

Strategy: Blink Think

• Also called “Thin Slicing”

• Cast your virtual net widely”, skim, see what sticks or jumps out at you

• Don’t worry about what you miss - someone else will find it and tell you about it

Social Media Risks: Speed & Stress

• We typically regard our snap judgment as best on immediate trivial questions. Is that person attractive? Do I want that candy bar? But Dijksterhuis is suggesting the opposite: that maybe that big computer in our brain that handles out unconscious is at its best when it has to juggle many competing variables.– Gladwell, Malcolm. Afterword. Blink.

NY: Back Bay Books, 2005, p. 267.

Strategy: Time Limits

Dunbar’s Number - NOT!

• Hutchinson Carpenter, I’m Not Actually a Geek: <http://bhc3.wordpress.com/2009/02/25/the-serendipity-of-attention/>

Social NOT-WorkingWHY NOTanonymity fear of reprisalmarketing control IP/brandpersonal gain don't see valuesocial search/efficiency don't have time

don't have techtransparency/trust HIPAA; contracts; scoopingisolation > belonging isolation > don't knowbrainstorming independenceemotional support privacyaltruismcollaborationconversation

Science 2.0: Scooped

• Fear of Scooping: http://kochlab.blogspot.com/2009/03/fear-of-scooping.html

Trends: Mobile

Trends: Media

Trends: Economics• “In evolution, you don’t find

innovative mutation occurring at the warm core of the herd—it’s the organisms at the brink of starvation that change. In microbial populations like cyanobacteria, the organisms literally switch modes from storing fat to just mutating like crazy if all else fails. They literally up their mutation rate when they’re deprived of all essential nutrients.”– Steve Jurvetson on nature’s

nanotechnology: http://www.foresight.org/nanodot/?p=2977

Let’s put it all togetherLet’s put it all together

Image by bwjones: http://flickr.com/photos/bwjones/248388437/

How Do You Serve?

content

contentconversation

conversationconnectionnection

connectionnectionconvergence

convergenceconfluence

conconfluencefluence

ininfluencefluence

influenceintent

inintenttentconcontenttent

Collaborative Librarianship

• content• conversation• connection• convergence• confluence• influence• intent• content

• discover• select• collect• organize• husband• access• preserve• assist• share• teach• outreach• research• advocacy• create{}

• "The

cheapness and quickness of modern methods of communication has been like a growth of wings, so that a thousand things which were thought to belong like trees in one place may travel about like birds.”– Dewey, 1901 Image by 1sock: http://flickr.com/photos/1sock/339095161/

The One Slide Project / EngageWithGrace.org

Can you and your loved ones answer these questions?

1. On a scale of 1 to 5, would you rather die in your own bed with no intervention (1) or try any proven or unproven intervention possible to preserve your life (5)?

2. If there were a choice, would you rather die at home or in a hospital?3. Could a loved one correctly describe how you’d like to be treated in the case of a terminal illness?

4. Is there someone you trust that you’ve appointed to advocate on your behalf when the time is near?

5. Have you completed any of the following: written a living will, appointed a healthcare power of attorney, or completed an advanced directive?

Contact

PF AndersonHSL/UM, 1135 E

Catherine Ave, Ann Arbor, MI 48109-2038

http://friendfeed.com/pfanderson

Credits

• All images by RosefireRising or PF Anderson unless other attribution is provided.

• Dewey (1901) quotations from:– Dewey, Melvil. Field and Future of Traveling Libraries.

Published by University of the State of New York, 1901. Original from Harvard University. Digitized Apr 5, 2006. <http://books.google.com/books?id=y9tRt3MaMZ8C>

• Dewey (1904) quotations from:– Dewey, Melvil. On Libraries: For Librarians. Published by

Dodd, Mead & co., 1904. Original from the University of Michigan. Digitized Oct 2, 2006. <http://books.google.com/books?id=8HMZAAAAMAAJ>

• Thank you very

much

See you next time!

PF AndersonEmerging Technologies Librarian, UM

pfa@umich.eduhttp://friendfeed.com/pfanderson