who we are… - dalhousie university · the iwalk toolkit, developed through a collaboration of...
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Who we are…
Alison McDonald
Physiotherapist, Clinical Specialist (Neurosciences), on ABI Inpatient and
Outpatient Services at the Nova Scotia Rehabilitation and Arthritis Centre.
Alayne MacDonald
S-LP with inpatient and outpatient ABI Rehab Services & AAC Consultant
Natalie Thornley
Occupational Therapist in Outpatient ABI Services and Interprofessional Clinical
Leader for ABI services at NSHA.
Faculty/Presenter Disclosure
Faculty: Alayne MacDonald, Natalie Thornley, Alison
McDonald
Relationships with financial sponsors:
Grants/Research Support: None
Speakers Bureau/Honoraria: None
Consulting Fees: None
Patents: None
Other: None
CFPC CoI Templates: Slide 1 – used in Faculty presentation only.
Disclosure of Financial Support The development of the iWalk research study program
received financial support from CIHR and Ontario Stroke Network in the form of research grant funds.
Potential for conflict(s) of interest:
Alison McDonald has participated in the research study for iWalk: A guide to an Evidence-Informed Approach to Using the 10-metre and 6-Minute Walk Test Post-Stroke Research Study and gave input into development of the iWalkAssess app but receives no funding past/present/future for this.
Mitigating Potential Bias:
The iWalkAssess app is being presented as part of a series of apps that are being discussed.
CFPC CoI Templates: Slide 2
The Use of Apps to Support
Stroke Rehabilitation and
Recovery
Learning objectives
Participants will be able to:
Identify the characteristics of a good app for stroke rehabilitation and recovery.
Identify a selection of apps suitable for stroke rehabilitation and recovery including apps for stroke education, assessment, treatment and community living skills.
Why are we using apps?
An estimated 80% of the world population has a mobile phone. 5
Patients and families are looking to us for advice on the use apps
to assist in their recovery.
The use of apps can be an effective supplement to direct care;
especially with the aging population and growing demand on
our resources.
Why are we using apps?
The use of apps may help reduce the demands placed on
caregivers to provide “therapy sessions” with the patient
allowing the caregiver more time to fulfill other roles.
The use of apps may increase patient autonomy.
The use of apps is a way to modernize our “toolkits”
- efficient, less prep work, automatic scoring -
Evidence related to the use of apps
Research appears to be relatively new and rapidly growing in this area
Khalid Ameer and Khalid Ali, iPad Use in Stroke Neuro-Rehabilitation
Geriatrics 2017,2,2
Literature review from 4 databases/104 articles found
Criteria for inclusion: No date restrictions
English publications only
iPad only (no android, smart phone, or PC)
Stroke neuro-rehab trials only
Evidence related to the use of apps (cont’d)
16 eligible articles
Articles were analyzed in terms of iPAD use:
1. Feasibility
2. Acceptability
3. Role in community/home rehab
4. Impact on
Clinical outcomes
Pt engagement
Social isolation/boredom
Evidence related to the use of apps (cont’d)
Conclusions
Apps have the potential to:
Increase Pt engagement for repetitive tasks
Improve rehab outcomes
Reduce post stroke social isolation
What makes a good app?
Developer website is robust and provides empirical evidence
that use of the app leads to clinically meaningful
improvements. 5
Treatment app is designed with evidence based practice
protocols.
The app evolves with feedback and research.
Reliable – Developers are able to keep up with operating
system upgrades.
What makes a good app?
Customizable
Provides data for clinician monitoring.
Age appropriate content, images, voices, feedback.
Engaging, motivating.
What makes a good app?
User friendly /simple / suitable interface for diverse populations.
Seamless performance (fast, no glitches).
Offer a lite version to trial.
Available in multiple languages.
How We Use Apps in Clinical Practice
1. Education targeted to patients and support persons
2. Education and clinical reasoning targeted to practitioners
3. Assessment / screening tools
4. Symptom tracking
5. Intervention Remediation, Compensation, Coping and Adjustment
6. Tools for everyday living
1. Educate Patients & Support Persons
Dysphagia - Northern Speech Services
Neuro Hero One Skill Videos
(3 min – targets specific skills)
Neuro Hero One Skill Videos
3 minute videos targeting supportive communication
techniques:
What can go wrong
How to better support conversation
Reviews key points
Sample Concepts
– write key words, background noise, time to respond, offer
written choices…
https://www.neurohero.com/communication-difficulties/
2. Self Advocacy
Neuro Hero One Skill videos
(3 min – targets specific skills)
I Have Aphasia (1.5 mins)
(Dogfish Mobile Ltd)
3. Education and Clinical Reasoning
– Tactus Dysphagia Therapy
Guides Oral Mechanism Exam (OME) assessment based on relevant
cranial nerves and physiology.
Suggests treatment options based on OME and instrumental findings.
Provides citations for Evidence Based Practice.
Provides patient education instructions/handouts.
Assessment
Assessment
Education and Clinical Reasoning
– Via Therapy
Best practice and evidence-based recovery interventions for
upper extremity stroke rehabilitation.
Suggests treatment options based on your patient’s motor
impairment, time post-stroke and match to patients goals.
Provides opportunity to learn about the latest therapies and
recall established therapies
4. Assessment / Screening
Assessment is arguably the most important step in the
rehabilitation process, as our clinical reasoning is based on the
information it provides and it is also the basis for our decision-
making throughout the rehabilitation process.
Screening: Stroke Riskometer
Function: to assess individual stroke-related risk
Results
Manage
Education
The Stroke Riskometer Pro has been endorsed by:
World Federation of Neurology
International Association of Neurology and
Epidemiology
Auckland University of Technology
New Zealand Stroke Education Trust
Screening
Assessment: Berg
Balance Scale
The Berg Balance Scale is a widely used
clinical test of a person's static and dynamic
balance abilities to determine fall risk.
Presently, usually a paper and pen test
Categorizes results as low/medium/high fall risk
Compare overall score of tests but not each
item
Can secure test results with a PIN entry
requirement for confidentiality and lists results.
Assessment: iWalkAssess
The iWalk Toolkit, developed through a collaboration of stroke rehab researchers.
Led by University of Toronto’s Associate Professor Nancy Salbach, of the Department of Physical Therapy.
Easy-to-use app to help therapists administer walk tests, and interpret test performance for treatment, education, and goal setting.
Assessment: iWalk Assess The 10 metre walk test and the 6 minute walk test Evidence-
based mobility outcome measures for stroke.
The iWalk Assess app is supported by a guide e-book that is is available on the website and contains 4 educational modules that outline an evidence-informed approach to using the 10-metre walk test and 6-minute walk test.
The iWalk Assess app provides:
stroke-specific walk test protocols – written and videos
timing tools
algorithms to automatically compare test performance with walk test typical values, crosswalk speed, distances to walk at community locations, and minimal detectable change values.
The iWalk Assess app makes it easy for therapists to perform the walk tests and quickly interpret test results to support clinical decision-making
5. Symptom tracking
Tracking symptoms alone may not lead to better outcomes. 5
However there are benefits to tracking.
Tracking can provide opportunity for increased awareness, can identify trends in moods and symptoms, which can help in understanding and better informing our decisions around interventions which in turn can improve outcomes.
https://health.mil/About-MHS/OASDHA/Defense-Health-Agency/Operations/Clinical-Support-Division/Connected-Health/mHealth-Clinical-Integration
Symptom tracking
T2 Mood Tracker allows users to monitor their moods and symptoms on either pre-loaded or custom built scales.
Depression, Stress, Stroke / Brain Injury, General Well-Being, Fatigue, Pain, plus more.
Users rate their moods / symptoms by swiping a small bar to the left or to the right.
Ratings can be positive / negative / desirable / undesirable.
The ratings are displayed on graphs to help users track their moods / symptoms over time.
Symptom tracking
Notes can be recorded to document daily events, medication
changes and treatments that may be associated with mood
changes, providing accurate information to help health care
providers make treatment decisions.
Integrated FitBit capabilities to allow step tracking in addition to
moods.
Reminders can be set up to input ratings
A PIN can be set to secure mood tracker access on your device.
Post stroke depression
6. Interventions
“ Some things will get better, some things we will make
better, and some things we will learn to live with”
If we break that down….
“Some things will get better” - Remediation
“Some things we will make better“ -Compensatory Approaches
“Some things we will learn to live with” -Coping and Adjustment
Remediation- hand function
There are many therapeutic approaches and treatment
modalities that can be used to improve hand and upper-
limb function following stroke. 10
Task-oriented training involves practicing real-life tasks (such
as answering a telephone), with the intention of acquiring or
reacquiring a skill. 10
Repetitive training, whereby a task is usually divided into
component parts and then reassembled into an overall task
once each component is learned. 10
Remediation- hand function
We are using apps to achieve a higher volume of repetition of
movements, to improve arm activity, to isolate movements
including (finger isolation, wrist extension) and for coordination of
movements in a way that is motivating and enjoyable to the
patients.
Example – Magic Piano by Smule, Pigment or Color Therapy
coloring apps, Tap Typing, Typing Rehab
Remediation – Strategy practice- scanning
We are using apps as a tool to provide the opportunity for individuals for repeated practice of strategies that may assist with difficulties noted with visual attention.
The apps are engaging which may in turn provide motivation to some patients to practice strategies
There is conflicting evidence of the effectiveness of visual scanning interventions. 10
Example - Word Mess, Tactus – Visual Attention Therapy, Category Therapy
Remediation – fitness trackers
Physical activity levels are significantly reduced post-stroke with high levels of time spent inactive and sedentary.
People post-stroke took an average of 5535 steps per day in the subacute phase and 4078 steps per day in the chronic phase
age-matched healthy controls took an
average of 8338 steps per day
6500 – 8500 steps/day are recommended for
people with disability/chronic illness
Average daily walking duration was higher in the chronic phase than subacute phase
Sedentary time was > 78% regardless of time post stroke12
Step counting increases physical activity by ~ 2000-2500 steps/day
Daily monitoring is effective especially combined with purposeful goals
Remediation – SLP-Tactus Therapy Apps
Meet all 12 criteria for “what makes a good app”
Remediation- Tactus Therapy
Evidenced Based – cited within the app
• ACRT - Anagram, copy, and recall treatment
• Cueing hierarchies - semantic, phonemic, orthographic
• Multi-modal presentation
• Semantic feature analysis - nouns and verbs
• Phonological component analysis
• RET - Response Elaboration Treatment
• VNeST -Verbal Network Strengthening Treatment
• Motor Learning principles- Integral Stimulation Therapy
Remediation- Tactus Therapy
Robust Website
• Excellent resources
• Therapy ideas that go beyond the apps
• Newsletter
Remediation –S-LP Other Options
Constant Therapy Small Talk
Lingraphica Dexteria
Remediation –S-LP Other Options
Language Rehabilitation Bundle – Virtual Speech Centre – US
5 apps – word retrieval, verbal reasoning, comprehension, problem solving, reading
Talk Around It-Neuro Hero - UK
Topic/Catgory specific “card decks”
Targets word retrieval, self-cueing, circumlocution
Aphasia Toolkit – Aptus -UK
4 apps
Keyword Understanding, Therapy for Verbs, Noun Trainer home & Noun Trainer personal.
Compensatory- AAC Apps
Personally relevant scripts
Talking photo album – Pictello (AssistiveWare)
Visual Scene displays – Scene & Heard (Therapy Box)
– Snap Scene (Tobii Dynavox)
Simple communication apps - ex Small Talk’s:
Pain Scale, ICU, ADL apps
Aphasia, Common Phrases
Self-cueing apps for speech – ex Small Talk apps
Compensatory- AAC Apps
GPS Enhanced Apps –ex Locabulary
Word and phrases made available by GPS location
Ex local coffee shop
Compensatory- Social Interaction
Mainstream Apps for Social Interaction:
Skype, Facetime – can use multimodal strategies, social
interaction.
Facebook – like comments & images, use of emoticons.
Game apps – ex angry birds with grandchildren.4
Compensatory -Organization & Pacing
Notes (apple ios) Reminders (apple ios)
Wunderlist Alarmed
Medisafe Anylist- shopping list & recipe
Voice memo Pace my day to manage fatigue
Calendar 30/30
Coping &Adjustment -mood, meditation & mindfulness
Virtual Hope Box Mindshift
Headspace Relax melodies
Resources to help you find Apps
https://www.aphasiasoftwarefinder.org/
Tavistock Software Finder
Resources to help you find Apps
https://www.my-therappy.co.uk/medical-condition/stroke-brain-injury
In Summary…
Apps DO have a role to play in stroke rehabilitation
and recovery.
Emerging research indicates use of apps
Increase Pt engagement for repetitive tasks
Improve rehab outcomes.
Reduce post stroke social isolation.
App Caveats
Apps must not replace clinical expertise, judgement and
guidance.
Apps are just one of the tools that clinicians employ.
Apps may not be for everyone – simple non technical supports /
compensation may be faster and easier.
App Caveats
Apps may make false claims that are not based on evidence and best practices. 5 .
Apps may lack of reference for app content. 5 Look for evidenced based references/protocols.
Apps may claim to be appropriate for adults but are based on platform for pediatrics.
Free & inexpensive apps may become obsolete with ios or software updates or have ads, nag window, or in app purchases.
App Caveats
Apps may be designed for limited platforms ( e.g. may be
available on ios but not android or vice versa).
Some apps are web-based and require reliable wifi to operate.
Useful websites
Aphasia Software Finder by The Tavistock Trust for Aphasia https://www.aphasiasoftwarefinder.org/
Constant Therapy (on-line) https://www.constanttherapy.com/
GPS Supported AAC http://locabulary.com/
Lingraphica TalkPath Therapy (on-line) https://therapy.aphasia.com/
Therapy app finder https://www.my-therappy.co.uk/medical-condition/stroke-brain-injury
Self Advocacy/Education https://www.neurohero.com/communication-difficulties/
Useful websites
Neuro Hero EducationResourceshttps://www.pinterest.ca/NeuroHero/pins/?showPulsar=true
Tactus Website https://tactustherapy.com/
Tactus 150+ apps FOR Neuro SLP https://tactustherapy.com/downloads/
Sign-up for emailed Tx Newsletterhttps://tactustherapy.com/newsletter/
Virtual Speech Centre https://www.virtualspeechcenter.com/Apps#
http://www.tbistafftraining.info/SmartPhones/SmartPhones1.htmltoolkit for smart phone in ABI
iWalk http://www.iwalkassess.com/
References
1. Stoyanov, S. R., Hides, L., Kavanagh, D. J., Zelenko, O., Tjondronegoro, D., & Mani, M. (2015). Mobile App Rating Scale: A New Tool for Assessing the Quality of Health Mobile Apps. JMIR MHealth and UHealth, 3(1). doi:10.2196/mhealth.3422
2. Ameer, K., & Ali, K. (2017). IPad Use in Stroke Neuro-Rehabilitation. Geriatrics,2(1), 2. doi:10.3390/geriatrics2010002
3. DesRoches, C. A., Balachandran, I., Ascenso, E. M., Tripodis, Y., & Kiran, S. (2015). Effectiveness of an impairment-based individualized rehabilitation program using an iPad-based software platform. Frontiers in Human Neuroscience, 8. doi:10.3389/fnhum.2014.01015
4. Holland, A., Weinberg, P., & Dittelman, J. (2012). How to Use Apps Clinically in the Treatment of Aphasia. Seminars in Speech and Language, 33(03), 223-233. doi:10.1055/s-0032-1320042
5. Kwan, V., Bichelek, N., Anderson, v. and Yeates, K. A Review of Smartphone Applications for Persons with Traumatic Brain Injury: What is Available and What is the Evidence? J Head Trauma Rehabil – Copyright © 2018 Wolters Kluwer Health. Inc
6. Palmer, R. (2012). Computer therapy versus usual stimulation for people with long standing aphasia. Http://isrctn.org/. doi:10.1186/isrctn91534629
References
7. Short, N., Harmsen, R., Kjellgren, G., Oneill, C., Pinney, H., Rivera, A. D., & Warnaar, V. (2017). Use of Dexteria application to improve fine motor coordination in the nondominant hand. Journal of Hand Therapy, 30(1), 106-108. doi:10.1016/j.jht.2016.03.014
8. Stark, B. C., & Warburton, E. A. (2016). Improved language in chronic aphasia after self-delivered iPad speech therapy. Neuropsychological Rehabilitation, 28(5), 818-831. doi:10.1080/09602011.2016.1146150
9. Wilkins, A., Stokes, P., & Kurland, J. (2014). IPractice: Piloting the Effectiveness of a Tablet-Based Home Practice Program in Aphasia Treatment. Seminars in Speech and Language, 35(01), 051-064. doi:10.1055/s-0033-1362991
10. Canadian Stroke Best Practices – Management of Upper Extremity Following Stroke http://www.strokebestpractices.ca/ October 30, 2018
11. Stroke Engine https://www.strokengine.ca October 30, 2018
12. Fini NA, Holland AE, Keating J, Simek J and Bernhardt J (2017) How Physically Active are People Following Stroke? Systematic Review and Quantitative Synthesis. Physical Therapy. 97;7;707-717
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