what the initiative seeks to do

Better Funding For Services For People With A Learning Disabilities - Learning Disability Coalition

What The Initiative Seeks To Do

• Persuade the government that more funding is necessary and can be found for learning disabilities.

The Story So Far

• December 2008 research shows numbers needing care up by 3-5%

How We Know The Initiative Is A Success

• Department of Health accepts figures e.g. population going up

• Department of Health Acknowledge legitimacy of campaign

Next Steps

• Campaign based on research and cost benefit of early interventions and interventions for people with moderate learning disabilities.

http://www.learningdisabilitycoalition.org.uk/latestnews.asp



Kissing It Better Independent website (Personal Initiative) www.kissingitbetter.co.uk


• Highlight how simple ideas can make the world of difference

The Story So Far

• The website was recently launched

• Feedback has been made, the site has been well accepted


• Feedback has been made

• Personal contact

• People are willing to share their stories with us

Next Steps

• Sustainability - funding

• Promotion through media

• Spreading the word

The Orders of St John Care Trust


• To ensure person centred care reflects the whole person and not just their physical care needs

• Create a social interactive tool

The Story So Far

• Staff trained to enable clients to complete life histories

• Discussions/meetings with clients/families/friends


• Much better interaction between staff resident and family

• Respect for the person and their past lives knowledge that enables staff to understand clients with dementia and other social care needs

Next Steps

To continue with programme across all specialities

•To introduce memory books so the person is remembered after death

Dignity Matrix (My Home Life) – Help the aged/Age concern


• Tool to measure whether organisations (primarily aimed at care homes) using dignity initiatives are meeting them

• From the users prospective

The Story So Far

• Tool launched winter 2008/2009 (through my home life project available on web site)

• Four country participation


• Evaluation is integral to the process, timing of this will be notified

Next Steps

• To be advised (information is not currently available)

Registration of Health & Social Care

What The Initiative Seeks To Do• Central to the new registration system is a specific regulation on ‘respecting and involving service users’• This includes the need for the registered personnel provider as far as reasonably practicable to make suitable arrangements to ensure the dignity, privacy and independence of service users

The Story So Far• Scope of regulation consulted by Department of Health• Guidance on compliance criteria for registration drafted and currently consulted on• Feedback and involvement of public and people who use services in progress• Proposals for working with LINks in future planned

How We Know The Initiative Is A Success•Compliance with registration criteria•Many examples of high quality demonstrating users are treated with dignity and respect and human rights are protected•Feedback from service user

Next Steps•Completion of consultation process•Registration of health care providers April 2010•Registration of social care providers 2019

Promoting Dignity In Dementia Care Training Course – Anchor Trust


• Deliver training to staff from day care, home care and small residential care settings about person centred care and promoting dignity in dementia care

The Story So Far

• Researching

• Development of course


• This is a pilot (September 2009)

• It builds upon and compliments the range of other 30+ courses delivered within the portfolio available from dementia

Next Steps

• Deliver training

Standards and Values(Methodist homes –MHA Care Group)

What The Initiative Seeks To Do• Evidence that we do what we say we do• Commitment to the people we support and staff• Support and share good practice• Quality and service improvement

The Story So Far• Set up around 4 years ago• Developed with lots of people who had something important to tell us• A separate team spend 2 days in the home and provide a report and keep supporting them• Helps us do things better but also helps the people who inspect us from outside see what we do

How We Know The Initiative Is A Success•The staff find the reports really helpful•Just had our first audit where we scored good on everything (100%)•Staff are proud and confident about what they do•The people we support talk to us about their experiences – good and not so good

Next Steps•Review it each year•Raise the pass mark each year•Link with dementia champions•Feel everyone should see dignity as part of what they are about•All staff should deliver the values of the organisation

Behind Closed Doors - British Geriatrics Society


• Share ‘best practice’ for ‘toileting’ with dignity with professionals and individuals

The Story So Far

• Set of standards developed and distributed to named hospital staff for care of older people


• Through word of mouth, the original print run of 5,000 leaflets and has since been reprinted FOUR times

• Difficult to assess and impact

Next Steps

• Share standards more widely with the care home sector

• Expand the ‘standards’ to include personal hygiene and bed control (enabling people to eat sitting ‘out’ rather than ‘in’ bed

http://www.bgs.org.uk/campaigns/dignity.htm

The Role Of Local Councillors Extending The Scope For Dignity

What The Initiative Seeks To Do• To champion dignity as elected members• To challenge how we deliver services• Dignity central to commissioning• Workforce/staff development notebooks outside social services e.g. leisure, libraries, parks, no-traditional organisations

The Story So Far• Collecting data on service use/non-use• Two senior councillors lead on wellbeing (including dignity)• Produced a dignity code published and launched• Carers champion in place• Free swimming for U18’s and over 60’s (real example of initiative being implemented

How We Know The Initiative Is A Success• Measuring the outcomes through data collection (against targets) engaging listening to service users)• Ongoing process• Positive results

Next Steps• Initiative needs to broaden across local strategic partnerships e.g. housing, community safety• Needs to be raised to level of safeguarding adults – just as important

• Broaden across other councils – sharing best practice – driven by Local Government Association

Amanda Waring Films & Training Packs On Dignity www.amandawaring.com

What The Initiative Seeks To Do• Through the films what do you see etc…and the interactive training pack on dignity be able to support the emotional and spiritual aspects of the dignity and person centred care initiatives• As a speaker at conferences Amanda aims to engage and inspire others to get involved and KEEP involved

The Story So Far•Amanda is the keynotes speaker at over 12 conferences this year and her films on end of life care will be ready in September 2009•Her films and the What Do You See training pack are being used by major organisations, hospitals, care homes and domiciliary organisations

How We Know The Initiative Is A Success• The films have sold in their thousands around the world and the feedback is constantly positive• What do you see training pack is being used in care homes and by dignity champions• Amanda is speaking regularly in End of Life issues and the media ask her to contribute to T.V, radio etc regularly too

Next Steps• To continue promoting the films on pack effective Dignity Training Aids• To make a new film on intergenerational healing and to continue the campaigning around dignity and end of life care

Life Story NetworkWhat The Initiative Seeks To Do• Share good practice around life story networks• Creating clearer understanding of the value of like work and networks on delivery of personalised care• Develop sustainability for the work through research, commissioning and everyday delivery of care

The Story So Far•Builds on experience of individual carer, supported by local overview and Scrutiny Committee•Held event in North on November 2008 – invitation out to share good practice – overwhelming support – more than 100 attendees – identified lots of exiting good practice•Established small steering group convened (Chaired Ruth Eley) to develop and support network•Short report on outcome of event and examples of good practice•Ongoing discussions with Department of Health regarding hosting the network of the dignity webpage•Seeking funding to appoint a part-time network coordinator nationally

How We Know The Initiative Is A Success• Positive feedback from patients/carers/service users – also empowering for carers• High degree of interest from key stakeholders• South-west Yorkshire Mental Health Trust – recognised for work and value of work in this area.• Oldham adopted system and embedded practice• Buy-in from Social Care in Excellence, Admiral Nursing• Positive impact for transition of care/across pathways – more seamless transfer of personal information makes it easier

Next Steps•Publish report •Appoint coordinator•Develop a webpage – possibly as part of Department of Health website•Prepare/plan for national launch event later in 2009

Putting People First Without Putting Carers Second – The Princess Royal Trust for CarersWhat The Initiative Seeks To Do

• Ensures that we take a WHOLE FAMILY APPROACH

• Five PRACTICAL examples of schemes that work (to ensure personalisation for user doesn’t adversely affect family)

The Story So Far

• Published document. Phil Hope launched (February 2009)

• Disseminating (ongoing)

How We Know The Initiative Is A Success• Outcome-focused• Evaluating now• Starting to see relationship between adult and children services to give a whole family approach

Next Steps

• Working with other organisations

• Evaluation – has a difference been made?

Best Practice Bank Mentoring: Mentoring and Befriending Foundation


•Providing an information hub for best practice, all sectors

The Story So Far•Collated a range of case studies and other materials, such as research studies, publications etc that are available on-line•Contributed to government consultations


•Influenced national policy

•Increased number of visits to the website

•Up take of national training programme courses

Next Steps

• Developing best practice bank across all sectors

• Developing additional training courses in key areas

• Promoting approved provider standards

Access With Respect – Multi-agency – Safeguarding Vulnerable adults


• Facilitating IMMEDIATE access for authorised personnel in to people’s homes to deliver multi-agency care

The Story So Far

• Using a ‘Key safe’ for authorised entry by way of a code system allowing multiple access for multiple services

• Also linked to Telecare buttons response


• 1.6 million homes now access this service

Next Steps

• Looking at ways to promote Dignity in Care via training systems and packs for our service providers

Health: Wellbeing In Care Homes Campaign


• Promote Health: Wellbeing and Dignity by sharing good practice, developing information materials and involving relatives as partners

The Story So Far

• 3 conferences

• 2 newsletters

• 1 publication

• On-going networking and promotional work

How We Know The Initiative Is A Success• Increased awareness amongst staff, relatives and managers and residents•Reduction in complaints •Increased attendance at conferences•Increased requests for publications

Next Steps

• More conferences

• More publications: newsletters

• More activities to promote multi-disciplinary involvement

• Embedding in core Policy

Anchor Trust Dignity In Care Champions


• All staff who have completed a day developing Dementia care practice course have the opportunity to be registered as Dignity champions taking forward the change in culture and practice in the home in which they work. Nominated to lead and influence

The Story So Far

• 449 champions registered to date

• Regional networks of dignity champions meet on a regular basis to share practice information


• Supporting meetings

• Evaluating

• Difference being made to peoples lives: life history work, working with friends and families, creating enabling environments

Next Steps

• Continue to train, support and make a difference

• Create wider networks to continue to promote dignity in care

‘With Respect’ Dignity In Homecare Resource Guide And Training Programme

What The Initiative Seeks To Do• Provide homecare organisations with an off-the-shelf training programme to provide dignity training in-house for their staff• Provide a resource guide to give information about dignity in care

The Story So Far• Awaiting publication of materials on CD which will be sent to all home care organisations in England• A similar resource guide and training programme has been produced for residential care


Next Steps

Care with Dignity Steering Group Shrewsbury and Telford NHS Trust


•Embed dignity in the culture of Hospital Trust (2 Hospitals)

The Story So Far• Steering groups • 4 work streamsGovernanceDevelopmentPartnershipScholarship & research


• Success

• Implementation

Next Steps

• Outcome measures

• Job Description

• Review/Appraisals

RCN Dignity Campaign


•Surveyed opinions of nursing teams•Raise awareness•Utilising learning resources•Influencing for positive change•Share good practice. Through networks

The Story So Far•In the first year:•Events and workshops locally/nationally•Identifying issues, making changes, feeding back•Creating networks•Inclusive of everyone•Linked with equality diversity and human rights•Linking with other work/campaigns

How We Know The Initiative Is A Success•Huge interest•Positive stories and case studies•Evaluation report due summer 2009•Has put dignity onto agenda as a priority•Has created dignity champions

Next Steps•Embedding good practice into everything we do•Continue to raise awareness and challenge poor attitudes and behaviours •Champion good practices•Work in partnership with other organisations•Continue to drive up standards

Review of Standards and GuidancePre registered Care and Health Around End Of Life, Dementia, Chronic


•Produced standards and guidance to underpin practice to inform the people in our care services, public and professionals

The Story So Far•Framework•Review – stakeholder engagement•Pre consultation – desk research•Focus group across UK NMC pre-registered•Consultations•Dissemination•Evaluation


Next Steps

what the initiative seeks to do

Documents