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DSCN 2016/03 HCWP Page 1 of 18
WELSH INFORMATION STANDARDS BOARD
DSC Notice: DSCN 2016 / 03
Date of Issue: 30th September 2016
Ministerial / Official Letter: N/A
Subject: Healthy Child Wales Programme
Sponsor: Heather Payne – Senior Medical
Officer Welsh Government
Ed Rees – Head of Obesity Prevention and Child
Health, Welsh Government
Implementation Date: 1st October 2016
DATA STANDARDS CHANGE NOTICE
A Data Standards Change Notice (DSCN) is an information mandate for a new or revised
information standard.
This DSCN was approved by the Welsh Information Standards Board (WISB) at its meeting on
1st September 2016.
WISB Reference: ISRN 2015 / 005
Summary:
Introduction of the Healthy Child Wales Programme
Data sets / returns affected:
N/A
Please address enquiries about this Data Standards Change Notice to the Data Standards
Team in NHS Wales Informatics Service
E-mail: [email protected] / Tel: 029 2050 2539
The Welsh Information Standards Board is responsible for appraising information standards.
Submission documents and WISB Outcomes relating to the approval of this standard can be
found at:
http://howis.wales.nhs.uk/sites3/page.cfm?orgid=742&pid=24632
DSCN 2016/03 HCWP Page 2 of 18
DATA STANDARDS CHANGE NOTICE Introduction
The Healthy Child Wales Programme (HCWP) sets the strategic direction for health boards in
Wales for the delivery of early intervention health services that are designed to ensure that
children achieve optimum health.
The programme underpins the concept of progressive universalism and aims to identify a
minimum set of key interventions with all families with pre-school children irrespective of
need.
It aims to provide a structured national programme for children and their families to achieve
improved health, social and educational development outcomes.
Although the full programme, listed below, includes contacts from the antenatal period to age
seven, the programme’s current scope only relates to those contacts from 10-14 days
onwards and are thus included in this DSCN.
Health Visitor Antenatal contact (Excluded)
Physical examination within 72 hours after birth (Excluded)
Neonatal hearing screening (currently recorded in a stand-alone module) (Excluded)
Blood Spot Screening (currently recorded in a stand-alone system)(Excluded)
Contact at 10-14 days
Physical examination at 6 -8 weeks
Weight and measurement at 8 weeks
Weight and measurement at 12 weeks
Weight and measurement at 16 weeks
Contact at 6 months
Health visitor contact at 15 months
Health visitor contact at 27 months
Contact at 3.5 years pre-school
Reception School Nurse screening
The data will be recorded manually on a standardised data collection form (see Appendix A)
by health visitors and entered into the child health system CCH2000 by child health clerical
staff. Two variants will be used. The forms produced by CCH2000 will be pre-populated with
the child’s demographic details. The forms generated by health boards will not include the
demographic details. In these cases, health visitors will record whatever demographic details
are known and child health clerical staff will match the form demographics to the appropriate
child on CCH2000 and then add the collected contact data.
As no demographic data will be entered onto the system as part of HCWP, there are no data
definitions for these included in this DSCN.
Family Resilience is intended to be captured using the FRAIT tool once it becomes available.
In the meantime, this field should be left blank.
The HCWP will be implemented in a phased approach with all health boards expected only to
schedule contacts from the universal set from October 2016. Full delivery of all contacts in
the universal scheduled surveillance section of the programme should be delivered by
October 2018. Therefore, for each individual contact, with the exception of the demographic
and family resilience items, all data on the data collection form should be collected at each
contact.
DSCN 2016/03 HCWP Page 3 of 18
Description of Change
To introduce a standardised set of data requirements for the Healthy Child Wales Programme
contacts.
Data Dictionary Version
Where applicable, this DSCN reflects changes introduced by DSCN and/or DDCN since the
release of version 4.8 of the NHS Wales Data Dictionary.
The changes introduced by such DSCNs will be published in version 4.9 of the NHS Wales
Data Dictionary.
Actions Required
Actions for Local Health Boards:
From 1st October 2016, ensure that all health visitors in Wales are collecting the
required data as set out in this DSCN
From 1st October 2016, ensure that all child health officers are entering the data as
set out in this DSCN into the child health system.
Actions for NHS Wales Informatics Service:
Enable the collection of the data set out in this DSCN on CCH2000.
DSCN 2016/03 HCWP Page 4 of 18
Appendix A: Table reflecting areas that are impacted as a result of this DSCN
The following table shows where there are changes to the scope and/or definitions of
applicable data sets, data items, terms and other associated areas that are linked with the
changes documented within this DSCN.
Each data definition type is listed in alphabetical order and is shown in the sequence in which
it appears in this DSCN.
Data Definition
Type Name
New/Retired/
Changed
Page
Number Live Data Sets and Aggregate Data Collections / Aggregate Proformas
Healthy Child Wales Programme
New 5
DSCN 2016/03 HCWP Page 5 of 18
Appendix B: Highlighted changes to be made to the NHS Wales Data Dictionary
Changes to the NHS Wales Data Dictionary are detailed below, with new text being
highlighted in blue and deletions are shown with a strikethrough. The text shaded in grey
shows existing text copied from the NHS Wales Data Dictionary.
Healthy Child Wales Programme Requirements
Scope
The HCWP includes contacts from the antenatal period to age 7 as listed below:
Health Visitor Antenatal contact
Physical examination within 72 hours after birth
Neonatal hearing screening (currently recorded in a stand-alone module)
Blood Spot Screening (currently recorded in a stand-alone system)
Contact at 10-14 days
Physical examination at 6 -8 weeks
Weight and measurement at 8 weeks
Weight and measurement at 12 weeks
Weight and measurement at 16 weeks
Contact at 6 months
Health visitor contact at 15 months
Health visitor contact at 27 months
Contact at 3.5 years pre-school
Reception School Nurse screening
There will be no change to current arrangements where information is already recorded e.g.
neonatal hearing screening, blood spot screening, child measurement programme at
reception age or information covering immunisations and infant feeding.
For the first two contacts (antenatal and 72 hours) there is currently no national routinely
reported information.
There is minimal change to the data requirements within the HCWP. As the aim of the
programme is to standardise the contacts themselves, none of the data items included in the
programme have been reviewed prior to implementation and these definitions will remain as
they are.
Information Requirements
Contact at 10-14 days
These are the data requirements that relate to the contact at 10-14 days:
Data Item Description Values
Contact Contact code
Contact at 10 – 14 days
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
DSCN 2016/03 HCWP Page 6 of 18
Consent Records consent provided by person with parental responsibility
Yes No
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern within the home (routine enquiry)
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Development Assessment of development status
Development as expected Concern: requires additional support
Family resilience
Will be captured using the FRAIT in due course
To be left blank
DSCN 2016/03 HCWP Page 7 of 18
Feeding Status See existing data item for Feeding Status
1 Exclusive Breast Milk 2 Combined Milk Feeding – Predominantly Breast 3 Combined Milk Feeding – Partially Breast 4 Artificial Milk Feeding
Physical examination at 6-8 weeks
These are the data requirements that relate to the Physical examination at 6-8 weeks:
Item Description Values (including codes where exist)
Contact Contact code
Physical examination at 6 – 8 weeks
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent provided by person with parental responsibility
Yes No
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No
DSCN 2016/03 HCWP Page 8 of 18
Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern within the home (routine enquiry)
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Family resilience
Will be captured using the FRAIT in due course
To be left blank
Feeding Status See existing data item for Feeding Status
1 Exclusive Breast Milk 2 Combined Milk Feeding – Predominantly Breast 3 Combined Milk Feeding – Partially Breast 4 Artificial Milk Feeding
Physical examination outcomes
In relation to heart, hips, eyes, testes (boys), general physical examination
Heart - satisfactory, concern, not assessed Hips - satisfactory, concern, not assessed Eyes - satisfactory, concern, not assessed Testes - satisfactory, concern, not assessed General - satisfactory, concern, not assessed
Contacts at 8, 12 and 16 weeks
These are the data requirements that relate to the contacts at 8, 12 and 16 weeks:
Item Description Values (including codes where exist)
Contact Contact code
Weight and measurement at 8 weeks Weight and measurement at 12 weeks Weight and measurement at 16 weeks
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent provided by person with parental responsibility
Yes No
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
DSCN 2016/03 HCWP Page 9 of 18
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Family resilience
Will be captured using the FRAIT in due course
To be left blank
Feeding Status See existing data item for Feeding Status
1 Exclusive Breast Milk 2 Combined Milk Feeding – Predominantly Breast 3 Combined Milk Feeding – Partially Breast 4 Artificial Milk Feeding
DSCN 2016/03 HCWP Page 10 of 18
Contact at 6 months
These are the data requirements that relate to the contact at 6 months:
Item Description Values (including codes where exist)
Contact Contact code
Contact at 6 months
Date of Contact The date of contact Standard date field
Reason Not
Examined
Records the reason a
child was not examined.
Was not brought
Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent
provided by person
with parental responsibility
Yes
No
Location Location of contact GP Surgery Clinic School At home
Hospital Telephone contact
Examiner Health care
professional who carried out contact
Doctor – paediatrician
GP Health Visitor Audiometrician
Vision Screener School Nurse Practice Nurse Midwife
Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start
services
Receiving Flying Start services at this contact
Yes No
Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child
Protection
Register
On the Child Protection
Register at this contact
Yes
No
Not known
DSCN 2016/03 HCWP Page 11 of 18
Evidence of
FGM
Evidence of FGM
observed
FGM observed
FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Family resilience
Will be captured using the FRAIT in due course
To be left blank
Feeding Status See existing data item for Feeding Status
1 Exclusive Breast Milk 2 Combined Milk Feeding – Predominantly Breast 3 Combined Milk Feeding – Partially Breast 4 Artificial Milk Feeding
Contact at 15 months
These are the data requirements that relate to the contact at 15 months:
Item Description Values (including codes where exist)
Contact Contact code
Health visitor contact at 15 months
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent provided by person with parental responsibility
Yes No
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
DSCN 2016/03 HCWP Page 12 of 18
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Development Assessment of development status
Development as expected Concern: requires additional support
Development - further
Whether further developmental assessment is required e.g. Schedule of Growing Skills (SoGS)
Yes No
Family resilience
Will be captured using the FRAIT in due course
To be left blank
Contact at 27 months
These are the data requirements that relate to the contact at 27 months:
Item Description Values (including codes where exist)
Contact Contact code
Health visitor contact at 27 months
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent provided by person with parental responsibility
Yes No
DSCN 2016/03 HCWP Page 13 of 18
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Development Assessment of development status
Development as expected Concern: requires additional support
Development - further
Whether further developmental assessment is required
Yes No
DSCN 2016/03 HCWP Page 14 of 18
e.g. Schedule of Growing Skills (SoGS)
Family resilience
Will be captured using the FRAIT in due course
To be left blank
Contact at 3.5 years pre-school
These are the data requirements that relate to the contact at 3.5 years pre-school:
Item Description Values (including codes where exist)
Contact Contact code
Contact at 3.5 years pre-school
Date of Contact The date of contact Standard date field
Reason Not Examined
Records the reason a child was not examined.
Was not brought Unwell or uncooperative child Examination refused Parent / Carer not present
Consent Records consent provided by person with parental responsibility
Yes No
Location Location of contact GP Surgery Clinic School At home Hospital Telephone contact
Examiner Health care professional who carried out contact
Doctor – paediatrician GP Health Visitor Audiometrician Vision Screener School Nurse Practice Nurse Midwife Community Nursery Nurse Registered Nurse Other examiner
Height / length Child’s Height / length. Not required at this contact but should be possible to record it if concerned.
Recorded in centimetres (to 1 decimal place).
Weight Child’s weight Recorded in kilos (to 3 decimal places).
Head Circumference
The circumference of the child’s head
Recorded in centimetres (to 1 decimal place).
Onward referrals made
Referrals made Yes No
DSCN 2016/03 HCWP Page 15 of 18
Receiving Flying Start services
Receiving Flying Start services at this contact
Yes No Not known
Looked after child
Looked after child at this contact
Yes No Not known
On the Child Protection Register
On the Child Protection Register at this contact
Yes No Not known
Evidence of FGM
Evidence of FGM observed
FGM observed FGM disclosed FGM not present Not examined
Domestic violence concern
Domestic violence concern
Domestic violence concern - assessment completed Domestic violence concern - assessment not completed No concern
Family resilience
Will be captured using the FRAIT in due course
To be left blank
DSCN 2016/03 HCWP Page 16 of 18
APPENDIX A
DSCN 2016/03 HCWP Page 17 of 18
DSCN 2016/03 HCWP Page 18 of 18
APPENDIX B
Community Child Health 2000 - Healthy Child Wales Programme: Operational Guidance
document
APPENDIX C
Community Child Health 2000 – Healthy Child Wales Programme: User Guidance document