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Use the following Hashtags when talking about the Summit:

#LungCancerSummitNC

#ChangeLungCancer

Welcome

Use the following Hashtags when talking about the Summit:

#LungCancerSummitNC

#LungCancerVoices

Join the Conversation!

9:45 AM– Lung Cancer 101 & ASCO Update

10: 45 – Break 11:00 – Clinical Trials Panel Discussion

12:00 – Networking Lunch

1:00 – Making the Message & the Medium Matter

2:00 – Break

2:15– Translating Your Experience into Action – Legislative Advocacy

3:15– The Social Network

3:45 – Wrap Up and Closing

4:00 PM - Adjourn

Agenda

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Mission

Saving lives and providing support to those affected by lung cancer through research,

awareness, education and access programs across North Carolina

Responsible Stewards

Research, Education,

Awareness & Access Programs

75%

Admin 20%

Fundraising 5%

2015 Spending Chart

Who We Are

• 501(c)(3)

• State’s leading non-profit organization supporting lung cancer research and education

• Specializing in connecting patients, survivors and loved ones with the medical and research community

• Dedicated to increasing lung cancer awareness and research funding

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Heather Hooper, Executive Director

Our Staff!

Lynne Ritter, Director of Finance

Khaki Stelten, Communications & Development Manager

Jenni Danai Programs Manager

Parker Shields Administrative & Program Assistant

Cynamon Frierson, Communication & Marketing Manager

Our Board

Jennifer Garst, MD, Board Chair

Duke Cancer Institute at Duke Raleigh Cancer Center

Amy Cipau, MBA, President

Advocate

Tomma Hargraves, MS, CCC-SLP, Secretary

Survivor

Gary Hicks, Treasurer

Susan C. Hicks Hope Charities

Jeremy Holden

Chief Strategy Officer, Clean Design

Edward S. Kim, MDLevine Cancer Institute

Carolinas Healthcare System

Hiren Mehta, MD

UNC REX Pulmonary Specialists

Sandy Oehler

Survivor

Emily Parks

Organize for Success, LLC, Parks Automotive Group

Gerald Postema

UNC- Chapel Hill

Jared Weiss, MD

UNC Lineberger Comprehensive Cancer Center

Jennifer Garst, MD Duke Cancer Institute at Duke Raleigh Cancer Center

Jared Weiss, MD UNC Lineberger Comprehensive Cancer Center

Ed Kim, MD Levine Cancer Institute

Jeff Petty, MD Wake Forest Baptist Comprehensive Cancer Center

Paul Walker, MD Brody School of Medicine at East Carolina University

Amy Cipau, MBA Key Healthcare Partners

Geoff Stroud, PharmD, BCOP, CPP Brody School of Medicine at East Carolina University

Patti Pozella, PhD Pursuit-Solutions

Liling Warren, PhD OmicSoft Corporation and Acclarogen

Tomma Hargraves, MS, CCC-SLP Survivor

Research Advisory Committee

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Did you know? Site Deaths

1. Lung 158,080

2. Colon/Rectum 49,190

3. Breast 40,890

4. Prostate 26,120

116,200

Cancer Facts and Figures 2014. Atlanta: American Cancer

Society; 2014.

Lung Cancer in North Carolina

In 2016

• about 7,870 are expected to

be diagnosed

• approximately 5,820 are

expected to die

Sources: American Cancer Society, Cancer Facts and Figures 2016

Lung Cancer: A Snapshot

American Cancer Society. Cancer Facts and Figures 2015. Atlanta:

American Cancer Society; 2015.

99%

90%

18%

0%

20%

40%

60%

80%

100%

ProstateCancer

Breast Cancer Lung Cancer

Five-Year Survival Rates

Prostate Cancer

Breast Cancer

Lung Cancer

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US Cancer Deaths vs. Federal Funding

Source: https://report.nih.gov/categorical_spending.aspx

Not Just For Smokers!

20-25,000

people in the

U.S. get lung

cancer each

year, despite

never smoking.

Those who have

quit smoking

remain at risk.

Never Smoked

18%

Former Smoker

61%

Current Smoker

21%

• Research

• Awareness

• Education

• Access

What We Do

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Research

Since 2008, we have funded $1.1M in lung cancer research

Our support has jump-started the careers of researchers who

have gone on to receive further funding from the National Institute of Health, Department of Defense and the American

Cancer Society.

2016 Research Fellows

Katherine Cox Ansley, MD

Wake Forest Baptist Medical Center

Jordan A. Torok, MD

Duke University Medical Center

Jennifer Ersek

Levine Cancer Institute

Sanggyu Bae

University of North Carolina at Chapel Hill

Meera Yogarajah, MD.

Position: Hematology & Oncology Brody School of Medicine at East Carolina University

We will also be co-funding $400,000 this year

Collaboration

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We are committed to increasing public awareness about lung cancer, through:

• Events

• Education & Outreach Initiatives

• And other grassroots opportunities

Awareness

Expert Speaker Series

• Allows for patients and their families to come together to hear from experts on topics related to lung cancer and research

HCP Education

• Educates health care providers on lung cancer screening through CME as well as non-CME events

Materials Distribution

• Distributes free print and online materials to patients and physician offices

Advocate Speakers Program

• Free lung cancer educational sessions to businesses and civic groups to increase wellness

Education

Patient Access to Care Gas Card Program:

• The goal is to lessen the financial burden for patients to receive appropriate lung cancer treatment

• Since 2014, we provided over 1,000 Gas Cards to patients across North Carolina

Access Grant Program:

• To support local centers in improving access to lung cancer screening, treatment, clinical trials, molecular testing or precision medicine

• In 2016, we have awarded $20,000

• To fund screening programs in Eastern North Carolina

• To fund medications for lung cancer patients in the Triad

• To improve access to lung cancer treatment and screening information in minority communities

Access

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Raleigh, NC – September 25 Greensboro, NC – Nov 12 Charlotte, NC – May 20, 2017

www.LUNGeForward.org

Evening of Hope Gala

April 1, 2017 – Raleigh, NC

New Location: North Ridge Country Club

Build a Movement! Why?

• Too many affected cannot speak for themselves

• We cannot make progress without research, education and awareness about this disease

We need EVERYONE clamoring for more

research dollars and researchers in the field

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• We cannot do it without you!

• There is strength in numbers!

• This is the first step…

Why are we here?

Lung Cancer Initiative Summit:

• Attend all sessions

• Listen effectively

• Contribute – your questions, ideas, perspective

• Respect others who may have different viewpoints from your own

What we expect of you

• There is a bingo form in your folder. Network, fill it all out and win a prize!

• Please fill out your evaluations throughout the day!

• Fill out your action plan before leaving.

Housekeeping

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Attendees:

60 Registered

Over 20 cities & towns

throughout NC Survivors: 15!

Who is here

Thank you to our Sponsors

Corporate Sponsors

Summit Sponsors Exhibitors Biodesix Celgene

Guardant Health Myriad Genetics

• Name

• City, State

• TWO SENTENCES describing why

you’re here

PLEASE HOLD ALL APPLAUSE UNTIL EVERYONE IS FINISHED!

Introductions

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You Can Help!

Participate in local awareness

and fundraising events!

Visit our website: www.LungCancerInitiativeNC.org

Like our Facebook Page!

Facebook.com/nclungcancer

Build Hope. Take Action.

End Lung Cancer.