Annual Review 2014/15 RNIB Northern Ireland

We’re RNIB Northern Ireland and Isle of Man, and we’re here for everyone affected by sight loss.

Whether you’re losing your sight or you’re blind or partially sighted, our practical and emotional support can help you face the future with confidence.

Our ambition is to make every day better for everyone affected by sight loss: by being there when you are losing your sight, supporting independent living, creating an inclusive society and preventing sight loss.

ContentsAbout RNIBContentsKey StatisticsFrom our Chair and DirectorOur work: Being thereNorthern Ireland’s first Paediatric Eye Care Liaison OfficerOur work: IndependenceKen’s storyOur work: InclusionLeighanne’s storyOur work: PreventionJoan’s storyWhat we set out to do... and what we achievedHelp from Eye Care Liaison OfficersLiving every day with confidenceAccessing welfare benefitsGetting out and about confidentlyMaking use of technologyAchieving full potential in educationSupporting people into workMaking information accessibleImproving eye health care and understanding of eye conditionsA brief look at our financesOur supportersThank youNational and European FundersHow you can helpContact us

In 2014/15... Over 4,200 people received practical and emotional support

from our Eye Care Liaison Officers Over 3,500 people took part in our confidence-building

programmes Over 1,000 people received advice about useful products 1,800 children received eye health advice We enabled 495 people to obtain over £950,000 in unclaimed

benefits

From our Chair and Director

In the next 15 minutes someone’s life will change forever. Someone will feel more alone than they’ve ever felt before. Someone’s future will feel bleak, even terrifying. In the next 15 minutes, someone will be told they are losing their sight. This year we’ve worked to ensure more people have access to an Eye Care Liaison Officer, a qualified sight loss adviser. This is absolutely necessary, so people get the practical and emotional support they need to face the future without fear.

Everyone is different and will want a different level of independence – our job is to get the right mix of skills and tools to help someone make confident choices. Across the UK, RNIB has worked to provide advice services to over 60,000 people this year, we’ve extended our confidence building services to support over 21,000 people, we identified £14.8million in unclaimed benefits and provided over 1,500 people with peer support through our telephone-based Talk and Support groups.

Getting out and about with confidence is essential. Throughout the year we have been in discussions with Translink and the Department of Regional Development about improving access to public transport in Northern Ireland.

Technology continues to change lives. Across the UK, we supported nearly 7,000 people of all ages through our digital inclusion services to develop confidence in using technology.We’ve now made over 20,000 of our Talking Books available for download via RNIB Overdrive, our new digital library, along with Insight Radio content and our most popular monthly talkingnewspapers and magazines. We also launched Sound Vision Online, our new podcasting service in Northern Ireland.

No one should needlessly lose their sight. This year we’ve worked with health service commissioners to ensure Northern Ireland patients have access to new treatments for vitreomacular traction and diabetic macular oedema. Every day of this year we have worked to ensure newly diagnosed people are reached sooner, people are supported to live the independent lives they chooseand society is a more inclusive place.

Everything we’ve achieved in the past year has only been possible through the generosity and commitment of our supporters, and we thank you all.

David GallowayDirector, RNIB Northern Ireland

David MannChair, RNIB Northern Ireland

Pull-out quote: Across the UK we identified £14.8million in unclaimed benefits and provided over 1,500 people with peer support

Our work: Being thereBeing told that you’re losing your sight can be devastating. We’re focused on making sure more people affected by sight loss are reached early. We want more eye clinics to have Eye Care Liaison Officers (ECLOs), also known as sight loss advisers, who are trained professionals who provide patients and their families with vital emotional and practical support at the point of diagnosis.

Northern Ireland’s first Paediatric Eye Care Liaison Officer

This year we appointed RNIB’s first Paediatric ECLO, Andie Morrow.The role was created in response to the considerable number of children being referred to our ECLO service, coupled with requests for dedicated ECLO support from paediatric ophthalmology staff.

Andie’s role provides vital support to families such as the Sterrits, whose son Ben was born with anophthalmia, meaning both eyes did not develop. Anne Sterrit, Ben’s mum says: “Every four to six weeks Ben has to come to the Royal and it’s quite an ordeal for him and for us.

We’ve had a few problems getting appointments but Andie has gone straight to the secretary on our behalf and found out exactly what we wanted to know, even small things like phone numbers of hospital staff we needed.

Pullout quote: “ Andie has said to us that she’ll be here for as long as we need her. I find there’s been so much support, everybody’s been so good. All I want is for Ben to be happy and I know he will be!”

Our work: Independence

We work to ensure that blind and partially sighted people can make the most of their lives. This means they can access the support, services, products and technologies that enable a good quality of life, along with opportunities to develop the skills for confident living.

Ken’s story

Ken Carson suffers from optic neuritis, which causes progressive deterioration to his sight. Things came to a difficult point for Ken when he needed to start using specialist equipment. “I wasn’t fit for work and had to be on antidepressants,” Ken recalls.

We offered Ken a place on ‘Finding your feet’, our residential programme which helps people to live confidently with sight loss. “I went into the programme feeling down and full of anxiety. But within one day, I was relaxed,” Ken says. “You think that’s it, it’s over, I’m not going to be able to do this, that and the other. ‘Finding your feet’ was a life-changer for me. It opened so many doors. I dread to think where I might be now without it. I certainly don’t think I’d be working.

At the end of the course we had to write down three goals we wantedto achieve in the next year. One of mine was to get back into golf.I used to play and never ever thought I could take it up again.Now I’m training on the swing, and should be out on the course nextspring. I’m even starting to think, ‘I wonder if I can enter tournamentsand do well.’ My friend who’s blind plays all over the world. She wonthe American Open in August and the British Open in July. I’m justgoing to give it a go and see where it takes me.”

Pullout quote: “ Be positive. Enjoy life using the sight you have. Don’t look backwards – only forwards.”

Our work: Inclusion

We want society to include blind and partially sighted people as equal citizens and consumers. Barriers to using mainstream goods and services result in isolation and exclusion. We’re raising awareness within communities and society to secure changes in behaviour that result in improved access for blind and partially sighted people.

Leighanne’s storyLeighanne Gallagher was 16 when she lost the sight in her right eye,and was left with limited sight in her other eye. “I was afraid I wouldn’tget a job, or be able to do normal things. But I’ve always been taught‘you make life what you want to make it’, so I just kept going,” says Leighanne.

Then, in 2011, Leighanne’s eyesight worsened. “I was off work for twoyears. I lost all my confidence. When I was ready to go back RNIB’s employment team spoke to my employers. They opened up the doors to work. It’s only through having that help that I’ve got my confidence back.”

“I work at Marks and Spencer in the lingerie department and I love it.I’ve had three different employee awards over the last few months,most recently the overall stores award. I’m very privileged. I assist an eclectic mix of women, including a lot of cancer patients, and it’s so rewarding to think that I can make women feel good about themselves.”

Pullout quote: “I don’t let life hold me back. I just find different ways of doing things. I’ve discovered that life can be whatever you want it to be.”

Our work: prevention

We want fewer people to lose their sight. We work to raise awareness of eye health and campaign for improved access to eye care servicesand treatments. We support people to cope with sight loss by increasing their knowledge and understanding of their eye condition.

Joan’s story

We recently celebrated success on the Isle of Man. In partnership withManx Blind Welfare Society and the local Macular Society group,we secured on-island treatment for wet age-related macular degeneration (AMD). Previously, patients had to travel to Liverpool for treatment. For the past 10 years, Joan Sherry, aged 84, had to leave her home at 5.30am and wait until late evening for a return flight, for what might often be a 20-minute appointment. Given the regular nature of treatment, this was a real strain.

Joan recalls, “As I got older, it became more and more difficult. In the last couple of years, I had to make it a two-day trip and pay for a night in a hotel. I remember one particularly bad trip when the plane was diverted to Manchester airport because of a technical issue. I was on my own in a place I didn’t know and that was an experience I neverwant to repeat.

Pullout quote: “The advantage of having the injections administered locally is tremendous! It does away with that awful journey which used to take me several days to get over.”

What we set out to do and what we achieved...

Pullout quote: “Knowing RNIB is there is so reassuring, like a comfort blanket. RNIB gives people the confidence to get out there and live their lives.” Peter Seaman

Help from Eye Care Liaison Officers

Eye Care Liaison Officers (ECLOs), also known as sight loss advisers, ensure that people who are losing their sight don’t have to face this life-changing event alone. ECLOs can take the time toexplain a patient’s eye condition to them and discuss treatment and medication.They provide emotional support to patients and their families along with practical help, such as putting patients in touch with key services.

Our ECLO service is available in each hospital eye clinic in Northern Ireland and the Isle of Man and we’re working hard to reach even more people with the support they need. This year, theservice was extended with the addition of a Paediatric ECLO post at the Royal Victoria Hospital, Belfast.

Our impact

In 2014/15, RNIB Northern Ireland’s ECLO service supported 4,252 people. An overwhelming majority of these people, 90 per cent, said they received all or most of the support they needed and 87 percent said they felt more reassured after seeing a sight loss adviser.

Living every day with confidence

We aim to provide people with sight loss with the support they need to improve their choices and enjoyment in daily living and to make the most of their sight.

Among the services we offer are our confidence-building programmes, which are delivered in partnership with local and national organisations to ensure that participants have full knowledge about the broad range of support services available to them. With rehabilitation services in many areas under significant

strain, these programmes play a crucial role in providing essential information.As an added benefit, the programmes have trained peer facilitators who can share their experience of being blind or partially sighted and help participants discuss the emotional impact of sight loss.

Our impact

In 2014/15 we supported 3,107 adults with sight loss to accessthe community services they needed. This support included several ‘Finding your feet’ confidence-building residential programmes, which continue to receive overwhelmingly positive feedback from participants.

In addition, our Children and families team supported 432 children and young people with sight loss by providing specially tailored confidence-building activities and courses.

All participants who took part in our evaluation said they would recommend our confidence-building programmes to other people with sight loss.

Accessing welfare benefits

We’ve continued our work to ensure blind and partially sighted people, their family and carers can maintain their independence by receiving the benefits to which they’re entitled.

Three years ago, we became deeply concerned that the proposed change from Disability Living Allowance to Personal Independence Payment (PIP) failed to recognise that sight loss can be a serious disability and that people who can’t see face extensive and ongoing extra costs.

We subsequently worked alongside our blind and partially sightedcampaigners to secure clear changes to the government’s assessment criteria and ensure people with sight loss would receive PIP.

Our impact

We’ve continued to campaign to maintain the current level of eligibility and entitlement for blind and partially sighted people.

The number of people accessing our Welfare Rights service in Northern Ireland increased to 495 in 2014/15. Our expert advisers continued to support people to claim welfare benefits to which they were entitled, identifying over £956,000 of unclaimed income.

Getting out and about confidently

Blind and partially sighted people have asked us to focus on making public transport more accessible and street environments safer. In November and December 2014 we conducted focus groups with blind and partially sighted people across NorthernIreland and a representative of the Department of Regional Development (DRD). The purpose was to gather input and feedback on the proposals for DRD’s 2015-19 Accessible Transport Strategy.

These focus groups, alongside an in-depth telephone survey to 500 people with sight loss across Northern Ireland, identified four key areas for development in 2015/16 – accessible transport, safe streets, accessible information, and welfare reform.

Our impact

Our blind and partially sighted Campaigners Active Network (CAN) has developed resources with the support of the RNIB Campaigns team to highlight how streets can be made safer, and how bus drivers can ensure safe and pleasant journeys for their passengerswith sight loss through ‘Stop for me, speak to me’ advice sessions, developed by the North West CAN group.

The impact of the advice sessions has been immense. We have received countless examples of how the end-to-end journey for many blind and partially sighted people has dramatically improved across the North West area. We hope to be able to roll out these‘Stop for me, speak to me’ advice sessions across Northern Ireland.

Pullout quote: 171 people with sight loss have been supported to improve their online skills and confidence.

Making use of technology

We know from our research that people with sight loss face significant barriers when it comes to using technology. Some people believe that their sight loss itself is a barrier, while others lack skills, cannot access training, or are unaware of the benefits of being online.

To overcome this, we’ve focused on giving people the skills, toolsand confidence they need to make the most of technology to improve their independence. We’ve transformed our product services to give our customers more choice and we’ve remained at the forefront of innovation by developing pioneering technology. In response to increasing requests from our readers, we’ve expanded our Talking Books service and launched a new digital download library called RNIB Overdrive.

Our partnership with Libraries NI allowed us to deliver training at convenient locations throughout Northern Ireland, particularly appreciated by those from rural areas.

Our impact

In 2014/15, we developed our Go On RNIB digital technology project after securing funding from the Department of Finance and Personnel. We supported 171 people with sight loss across Northern Ireland to improve their online skills and confidence. The high demand for this project highlighted the need to reduce the isolation felt by many blind and partially sighted people, and increase independence through new technologies.

Partnering with Business in the Community provided us with 20volunteers from Arthur Cox solicitors and Lloyds Bank, who received training in visual awareness and accessible digital technology, enabling them to assist at future training sessions.

Achieving full potential in education

Last year our Children and Families service launched ‘Looking ahead: a parent’s guide’ for parents of children who are blind or

partially sighted. This guide was supported by the Health and Social Care Board.

The in-depth guide provided key information on our Children and Families service which supports any child with sight loss aged 0-19 years. Among other elements, the guide focused on providing parents with practical guidance on what to do when their child is about to go to school, and highlighted the various kinds of help available to children with sight loss in educational settings.

Explanations were provided about the role and function of a Qualified Teacher of the Visually Impaired (QTVI) in signposting parents to secure a Statement of Special EducationalNeeds (SEN) for their child.

The ‘Looking Ahead’ guide also provided a comprehensive list of other support professionals and services available from RNIB Northern Ireland that parents and children could access throughouttheir sight loss journey.

Our impact

There are 2,346 children and young people aged 0-25 who have sight loss in Northern Ireland. In 2014/15 we supported 800 children and their families, but the need for our services is increasing. Last year, over 100 new families contacted our Children and Families service for practical and emotional support.

Supporting people into work

Government figures show that only 45 per cent of blind and partially sighted people of working age are in employment. We’ve been working to change this by continuing to provide employment advice and support to people with sight loss.

We’ve also continued working with employers to encourage them to employ more blind and partially sighted people. Last year our Eye Work project supported 20 people with sight loss to develop the skills and experience necessary to gain employment. The project was funded by the European Social Fund, Department of Employment, and Learning and the Disability Employment Service.

Participants took part in an eight-week series of pre-employment workshops on job search, application forms, CV development and interview practice. They also heard from a range of guest speakers including blind and partially sighted people currently in employment, and local employers who support Eye Work.

Our impact

In 2014/15, we helped 32 blind and partially sighted people to obtain a job and a further 51 to keep their existing job following sight loss. We also delivered significant employment advice and support to a further 53 people to move them closer to the labour market.

Making information accessible

We’ve maintained pressure on government services to ensure people with sight loss are not excluded as service delivery continues to move to digital channels. Our particular focus has been on ensuring people can access information they receive from health, employment and banking services.

Research indicates that 72 per cent of people with sight loss cannot read information given to them by their GP. We worked in partnership with the Health and Social Care Board and Action on Hearing Loss to produce best practice guidelines on creating accessible primary care services for people with sensory loss.

Our guide, entitled ‘Creating accessible primary care services for people with sensory loss’ provides a practical approach to improving access to services at GP surgeries. The same principles could equally be applied in other primary care settings such as community pharmacies, dental surgeries, optometry practices andcommunity based services provided by local Health and Social Care Trusts.

Our impact

Our ‘Creating accessible primary care services for people with sensory loss’ guide reflected the views and experiences of people with sensory loss in accessing GP services across the region. Over 5,000 copies of the guide were distributed to GP surgeries

across Northern Ireland and accessible versions were produced for key partner websites.

Pull out quote: 72 per cent of people with sight loss cannot read information given to them by their GP.

Improving eye health care and understanding of eye conditions

We’ve pushed on with our work to raise awareness of sight loss, and to campaign for better eye care services and access to sight saving treatments. We’ve provided eye health information and advice by phone, face-to-face and via digital channels, and engaged with the Health and Social Care Board, Public Health Agency (PHA) and Health and Social Care Trusts to ensure they have effective plans for eye care that reflect the needs of people in Northern Ireland.

We’ve campaigned at local and national levels to make sure eye health is a public health and research priority in Northern Ireland and across the UK. We’ve also been doing pioneering work with those at risk of avoidable sight loss through community engagement with specific target groups.

Our impact

We’ve improved access to eye care services by working with the Health and Social Care Board to ensure that new treatments for vitreomacular traction and diabetic macular oedema are available to Northern Ireland patients.

We have also worked with the PHA and Health and Social Care Trusts to ensure that rapid referral processes for patients with wet AMD are working effectively. We’ve influenced the implementation of changes to care pathways for individual eye conditions by working directly with the Health and Social Care Board and clinicians so that the needs of patients are firmly at the centre of care.

Pullout quote: Over 4,250 received advice and supportabout their eye condition.

A brief look at our financesIn 2014/15…

We spent £20.8 million to raise £65.8 million – a three-to-one return on investment.

For every £1 we receive, we spend 81p on supporting people with sight loss. The rest is used to raise further funds and on running costs.

The RNIB group of charities focused expenditure on the following areas of work:

Being there £6.5m Independence £80.5m Costs to generate funds £20.8m Governance £1.4m Prevention £1m Inclusion £8.3m

Total expenditure £118.6m

The RNIB group of charities’ income came from the following sources:

Merchandising and sponsorship £0.5m Investment income £0.6m Income from charitable activities £46.2m Other incoming resources £2.5m Donations and legacies £64.6m

This gave a total income of £114.5m and a planned operating deficit of £4.1m

The RNIB group of charities’ resources at 31 March 2015 consisted of the following:

Restricted funds £20.3m Endowment funds £5.7m Plus pension surplus £12.6m Unrestricted funds £67m

This gives total net assets of £105.7m

These figures are taken from the full Trustees’ report and financial statement for the year ending 31 March 2015, as audited by PricewaterhouseCoopers LLP. If you would like a copy of the full report, available in print, audio, braille and by email, please contact our Helpline on 0303 123 9999 or email helpline@rnib.org.uk

Our supporters

Last year, our amazing supporters and volunteers across the UK helped us raise £65.8million. Not only did they generously donate their time and money, but they also helped to raise awarenessof sight loss, such as through our ‘Wear dots...raise lots’ events which encourage school children to learn about sight loss and braille while taking part in fundraising.

We received an incredible £36million in gifts from 1,518 generous people who remembered us in their Will last year. One such supporter was Miss Margaret Howard, who left the residue of herestate to RNIB, resulting in a very special legacy of £1.27million.

One of our most successful fundraising campaigns was our Christmas appeal, which featured nine-year-old Maddie, who is gradually losing her sight but loves the accessible books she gets through RNIB Reading Services. Maddie’s story highlighted that only seven per cent of all books are available in formats that blind and partially sighted people can read. Our kind supporters were moved to give over £370,000.

Our dedicated volunteers and supporters are vital in achieving our ambition of making every day better for everyone affected by sight loss. Thank you.

Pullout quote: Last year our supporters helped us raise £65.8m UK-wide

Last year we also held four Glow Neon Fun Runs, attracting 1,200 people who ran, dressed up or volunteered to help guide and cheer on our runners. Our family of volunteers has grown afterwe recruited and launched an additional 49 local volunteer fundraising groups.

We won a £5.8million grant from the Big Lottery Fund for Online Today, a UK-wide project to help people with sensory loss to develop skills that will enable them to use technology and the internet with confidence. We look forward to telling you about the successes of this two-year project in next year’s Annual review.

To all our supporters and volunteers – thank you for helping to make every day better for people with sight loss.

Thank you

We’re honoured to have the support of our Patron Her Majesty The Queen. We’re indebted to our President Dame Gail Ronson DBE,and to our Vice-Presidents:

Sir John Beckwith CBEThe Rt Hon David Blunkett MPRichard BrewsterProfessor Ian Bruce CBEJeremy BullDr Haruhisa HandaDr Euclid HerieLady JarvisPenny Lancaster-StewartLord Low of Dalston CBETrevor Pears CMGSir Mike RakeDr Dermot SmurfitRod Stewart CBEThe Rt Hon Earl of StocktonHis Grace The Duke of Westminster KG,CB, CVO, OBE, TD, CD, DL

Thank you to the many individuals, companies, trusts and publicbodies that have supported us this year and made our work possible. We can’t possibly name you all but here’s a list of some of those who have contributed significantly to our cause:

All of our fundraising volunteers and groupsAll Saints Clooney Scout GroupAntrim Police StationAsda BangorAsda ColeraineAsda EnniskillenAsda KilkeelAsda LarneAsda NewtownardsAsda OmaghAsda PortadownAsda Strabane

Asda WestwoodAtlas CommunicationsBanagher Parish ChurchBanbridge Methodist Girls BrigadeBelfast Association for the BlindBloomfield Presbyterian Men’sBowling ClubDavid Boyle MBE (Caring Caretaker)Bryson RecyclingBuick Memorial Primary SchoolCarrick Primary SchoolClarawood Gospel HallClare Presbyterian Sunday SchoolClough Presbyterian ChurchCo Armagh Grand Royal ArchPurple ChapterCookstown District CouncilCooley Primary SchoolCountry Connections LinedancersDrumcree Parish ChurchFirst Newry Presbyterian ChurchSabbath SchoolFold HousingGarvaghy Parish ChurchGlenally PlayersGlengormley PlaygroupGrahame & Son Ltd, BellaghyHoliday Saturday FundipowerIvan Jackson ButcheryJunior Ranks ClubKilmaine Primary SchoolLarne Mission HallMacan TrustMrs Betty MacaulayManx Blind Welfare SocietyMcDuffy Insolvency PractitionersMeadowbank Rangers Supporters ClubMeadowbank Social ClubMeeting Point Group, Abbots CrossPresbyterian ChurchMilestone RafthfrilandMillisle Slimming World

Monkstown ScoutsMusic RoomsNorthern Ireland Charities Together(NICT) donorsOak Centre ClarawoodRamoan Presbyterian ChurchDistrict Registrar, Tandragee Royal Black District Chapter 1 Rotary Club of OmaghSeven Towers Probus ClubSpringhill Primary SchoolSt Mark’s ChurchSt Matthew’s Parish ChurchSt Peter’s Church Prayer GroupSt. Luke’s Church, Select VestryThe Music RoomsThe Woods Parish ChurchU3A BangorUlster R B P 768Ulster Weavers LtdUU Students Union Coleraine

National and European Funders:

Big Lottery FundChildren and Young People’s Strategic PartnershipDepartment for Employment and LearningDisability Employment ServiceEuropean Regional Development Fund - INTERREG IVAEuropean Social FundHealth and Social Care BoardHeritage Lottery FundJohn Atcheson FoundationSouthern Health and Social Care TrustYouth Council for Northern IrelandBritish Council, Youth In Action

How you can help

Every day 100 people start to lose their sight. We need your help to provide vital services for blind and partially sighted people. Do something today and make a difference.A brighter future

About a third of our work is supported by gifts in Wills so we are hugely grateful to those people who have supported us in this way. Every penny we are left is used wisely to provide a brighter future and help blind and partially sighted people live their lives with confidence. You don’t have to be wealthy to make a difference;legacies of all sizes are vital to our work.

If you’d like to know how you can help in this way please call 0845 600 0313 or visit rnib.org.uk/legacy

Fundraise

Without financial support from donations and legacies we simplycouldn’t provide many of the products and services that help people find their lives again. There are many ways you can show your support, such as getting involved in ‘Wear dots...raise lots’, taking on a challenge or making a one-off donation. Visit rnib.org.uk/fundraise

Volunteer

Without volunteers we couldn’t run our services. There are over 100 volunteering opportunities across the UK where you could make a real difference in your local community.Visit rnib.org.uk/volunteer

Campaign

Without active campaigners we’d never get changes made to health, social care, employment and benefits. Join our campaigns on issues that matter to blind and partially sighted people. Visit rnib.org.uk/campaignCall today on 028 9032 9373 to find out more or email

campaignsni@rnib.org.uk

Contact us

RNIB HelplineIf you, or someone you know, is living with sight loss, we’re here to help. Call our Helpline on 0303 123 9999 from Monday to Friday between 8.45am and 5.30pm or email helpline@rnib.org.uk

You can order more copies of this review in print, audio and braille as well as our range of products and publications.

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