Medical University of South CarolinaTranslational Research Community Advisory Board

Ashley River Tower Room 1119Friday, January 30, 2015

Attendees: Translational Research Community Advisory Board (TR-CAB)

Memberso In Person: Murray Brockman, Rick Foster, Pete Liggett, Laura Long,

Bernie Mazyck, Martha Scott Smith, Robert Stevens, Lisa Wear-Ellington

o Absent: Al Cannon, Roland Gardner, Andrea Marshall, Carolyn Murray Medical University of South Carolina (MUSC) South Carolina Clinical

and Translational Research Institute (SCTR)o In Person: Tara Abbott, Kathleen Brady, Dana Burshell, Marc

Chimowitz, Randal Davis, Perry Halushka, Cathy Melvin, Royce Sampson

o Absent: Stephanie Gentilin, Carolyn Jenkins, Susan Newman

AgendaI. Welcome and Wins: Rick Foster

II. SCTR Application Update a. Overall Update: Kathleen Bradyb. Review of Community Engagement Module: Cathy Melvin c. Discussion

III. TR-CAB Planning Activities a. Overview of Planning Activities: Rick Fosterb. The Role of Community Development in Translational Research: Bernie Mazyck

IV. Working Lunch: Facilitated by Rick Foster and Cathy MelvinV. TR-CAB Planning – Session Two: Rick Foster and Cathy Melvin

VI. Wrap Up and Next Steps

I. Welcome and Wins: Rick Foster Dr. Foster welcomes all attendees to the third TR-CAB quarterly meeting. Each of the attendees, 8 TR-CAB members and 8 SCTR faculty and staff, presented their organizational and personal “wins,” including changes in professional positions of TR-CAB member, projects funded, TR-CAB successful connections made, and new projects and foundations launched.

A number of TR-CAB members highlighted their positive feelings towards the TR-CAB: members work well together, members have a shared vision, and the meetings are efficient and worthwhile.

II. SCTR Application Update a. Overall Update: Kathleen Brady (PowerPoint sent via email)

Dr. Brady congratulated the MUSC SCTR team for successfully submitted the large CTSA grant application and thanked the TR-CAB members for their Letters of Support. She presented the CTSA Application Highlights.

The CTSAs now have a new paradigm of an integrated CTSA Network optimized for multi-site trails and team science. The new required programs are Team Science, Special Populations, and Multi-Site trials readiness.

Dr. Brady celebrated the many SCTR local, statewide, and CTSA Network accomplishments: 110 new translation research teams formed, ~1000 translational workforce members trained, 625 active SCreaerch.org clinical trials, the new research permissions feature in Epic and MyChart to reach MUSC patients and their families outside of the hospital (74% approval of 19,000 records who responded out of 44,000 individuals sent MyChart message), >1,000 attendees to over 11 scientific retreats, pilot projects return on investment is 10-to-1, MUSC-developed SPARC Request software adopted by 6 collaborative networks, and many others.

Dr. Brady also highlighted the impact of the CAB’s recommendations to the CTSA applications: new CAB formed to represented the whole state, quarterly meetings with a CAB Community Co-Chair who will also serve on the monthly SCTR Executive Committee, CAB members will be invited to sit on Scientific Review Committee and Scientific Retreat Planning Committees, the Community Engaged Scholars Program will be launched statewide, and CAB members will meet jointly with SCTR leadership and external scientific advisors.

A TR-CAB member pointed out that health costs were not sufficiently addressed in the CTSA Application. Healthcare is the only industry where technology has driven up cost instead of driving down cost. SCTR staff believes that efforts like telemedicine and MUSC’s new Population Health program will help address cost.

b. Review of Community Engagement Module: Cathy Melvin (PowerPoint sent via email)Dr. Melvin presented the CTSA Application Community Engagement Program’s 3 Aims to: 1) Integrate CE principles across all SCTR Programs and share innovative practices with other CTSAs, 2) Enhance systems that engage community members and stakeholder groups to inform research and accelerate the integration of research into practice, and 3) Advance the science of CE by developing and testing novel practices in a data-driven fashion.

III. TR-CAB Planning Activities a. Overview of Planning Activities: Rick FosterIn future quarterly meetings, there will be a topic of interest. Both a TR-CAB member and an MUSC or other speaker related to the topic will present.

b. Presentation: The Role of Community Development in Translational Research: Bernie Mazyck

SCACED: South Carolina Association for Community Economic Development (new name) is a statewide trade association. It attracts public-private partnerships, and legislation has provided and continues to provide support. The goal is to help create economic opportunities in communities without as many economic opportunities and help people build wealth and accumulate assets.

South Carolina has very rural and often land is an available asset. Building on this asset, increasing use of farm land would increase the amount of local, healthy food potentially decreasing the cost of healthy food and decreasing rates of obesity, diabetes, and other related complications. Dr. Melvin discussed successes of MUSC farmer’s market and FQHCs where results included more healthy food, job development, in addition to an increase in health care visits.

The TR-CAB discussed the comparison of cost between healthy and unhealthy food. Currently, the healthy choice is not always the easy/affordable/accessible choice. Often individuals deal with their challenges in isolation. Recreating this healthy food conversation can bring people together to develop solutions and create a support system to help the individuals meet their health goals.

Unfortunately, our state often sends mixed signals. For example, the previous day, unhealthy foods were allowed back into school vending machines because of pushback from parents and school (negatively affecting their bottom line).

To accomplish change, we need to work at the grassroots level (parents, teachers, schools, Adopt-A-Doc) and at high levels (e.g., TR-CAB, organizations).

IV. Working Lunch: Facilitated by Rick Foster and Cathy MelvinAttendees split into two groups facilitated by Rick and Cathy to discuss “what” they or their organizations are now doing in relation to community development and translational research and “how” they can develop shared agendas and activities going forward.

V. TR-CAB Planning – Session Two: Rick Foster and Cathy MelvinThe two groups presented a summary of their discussions. Some of the major themes are described below.

As a state, we could make greater strides if we focused our collective and shared agenda on 5 goals. We need to be patient and give ourselves the time to build sustainable partnerships and affect change. If we focus on the data, we could combine the efforts of many organizations around the state, better identify shared priorities, and track quality and evidence.

Topical themes included healthy nutrition, physical activity, obesity, behavioral health, and access points for behavioral health including primary care, and access to big data. How we talk about community engagement and research is very important. Much of the community is not as welcoming when the word “research” is used. Community Engagement has become a buzz word that can mean many different things depending on the context. We need to work with our partners and our communities to ensure we are using a common and comfortable language to keep us on the same page.

The TR-CAB can play a role by helping to develop a network/framework for building partnerships, sustain and build upon relationships and successes by activating our networks, identify health-related priorities, identify and connect partners, and focus on the data. It is important that SC organizations with different primary interests (e.g., education, health, economics) gain the perspective that they are all related and the efforts of one should not

detract from the other. The TR-CAB can help educate their Networks and focus on identifying each other’s assets and building together.

Science and research need to align and actively address community priorities and get involved in the community’s conversations. MUSC can play a role by collecting, collating, analyzing, disseminating, and sharing health-related data. They can help connect researchers and community members for data and research purposes.

VI. Wrap Up and Next StepsThe Co-Chairs will draft the TR-CAB Operating Procedures and will send out to the group for approval.

Al Cannon will no longer be able to serve as a TR-CAB member. The group brainstormed about who would be a good addition: law, big data, younger/older generation, someone from the Hispanic community.

Because this meeting was postponed due to the CTSA grant application submission, we will reschedule March’s meeting. April 10th was suggested for the next meeting, and everyone was in agreement that the next meeting should be outside of MUSC. Next meeting will be related to FQHCs and led by Roland. The new MUSC-FQHC partnership, PERLS, may be invited to speak, and ResearchMatch may also speak. The following meeting will be about Big Data and Population Health.

SCTR CTSA Application Organizational Chart