Annual Report: From September 2012 to December 2013

Executive Summary DASH Sports Education: DASH is a unique non-profit organization comprised of professional and everyday athletes who have

diabetes and impassioned Type 3’s (supporters of people living with diabetes). Our objective is to instill the belief that you can flourish and thrive because of diabetes. To accomplish this objective we use the health pedagogy of sports and shared experience.

Why work with DASH? We walk the walk of diabetes every day and have over 50 years of communal experience playing sports and managing diabetes at the elite competitive level. DASH is the only non-profit organization that runs annual sports programs for people living with all types of diabetes and their non-diabetic friends. Our founders discovered that they shared the same wish of a sports program specific for people living with diabetes and now DASH fulfills this need in the unique and scalable market niche between sports and diabetes education.

In combining diabetes education to sports games we create an atmosphere of fun and normalcy around this deadly chronic disease. Our diabetes curriculum includes topics on confidence, prevention, management, communication and coping with stress. The activities we run include all sports, and self-empowering activities such as diabetes raps, spoken word poetry, and theatrics. Our programs take diabetes education outside the clinic and into everyday life where self-efficacy can cement itself in our youth.

We do not add to the financial burden of people living with and those affected by diabetes. Our most expensive program fee is $50 per day, and for every program we offer full scholarships to all those who apply. The funding structure we employ relies heavily on grants and our tax exempt status, with the goal of local robust sustainability in the long run. We couple donation based programs in low income neighborhoods with micro-fee based programs in areas that can afford it. We are creating local diabetes coalitions around each program to ensure that the community has a voice and a role in supporting their DASH program. With just $17,000 of start-up funding and over 100 volunteers we have been able to provide direct DASH resources to 450 diverse youth and 130 parents in our first year.

Our youth have improved their impression of diabetes. All have stated they want to improve their stress coping/flourishing skills and half have increased the number of times they check their BG in a week. From parent testimonials and survey analysis, we discovered that parents need just as much diabetes education, support and life balancing training as their children. In every DASH camp program we have activities for all parents and family members.

To include as many people possible (8 and up) with Type 1, Type 2 or at risk for diabetes, we start in the clinic. With renowned clinics such as UCSF Diabetes Center, Stanford’s Lucile Packard Diabetes Center, and others, we are able to distinguish the DASH way of life. The medical professionals see DASH as a way to relate to their patients on the patients level ie in the park and not in the clinic. This gives everyone the opportunity to build human rapport and social support, which are essential to thriving with a chronic condition.

We do this work because in the end, we derive great contentment from bringing a smile to a child’s face after doing a temporary basal or first self-injection or from a mom who just needs a hug and communal setting to know that she is not alone. We bring love, personal experience and cultural competence to the diabetes population and this combination of skills gives anyone who comes out a sense of family and acceptance of differences.

Join our vision of 10 DASH programs in California and 2 internationally to help over 2000 youth living with diabetes, 2000 at risk youth and 1000 parents to play sports and thrive with diabetes by the year 2015. DASH to livabetes!

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Table of Contents

Programs: Brief description of each program, participation numbers, goals for 2014 (Pg 3-5)

Communities: Demographics, coalition building, goals for 2014 (Pg 6)

Organizational- Evolution, structure, mission, value, goals for 2014 (Pg 7-8)

Funding- What money, where is it going, how can we sustain it, goal for 2014 (Pg 9-10)

Impact- Now and for the future, and research questions (Pg 11-12)

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Programs:

Camps:

Weekend DASH Camps at Menlo Park Sept 2012 and Sept 2013: First camp ever back in 2012 was a great success with 20 campers and our second annual camp here was even better. With 32 campers and 20 parents, DASH reached its goal by retaining more than half the campers who came in 2012 and increased our participation for youth, volunteers and parents.

Week long DASH Camp and Community Health Fair at Bushrod Park 2013- First weeklong camp ever, with over 25 campers and our first Health Fair with over 30 students from Samuel Merritt University Nursing School.

Camp One- Sports Camp with the Oakland Raiders/Raiderettes and the JDRF- Over 100 campers and 100 volunteers, Raider’s QB Terrell Pryor and CB’s Chimdi Chekwa and Phillip Adams, 1 Raiderette living with diabetes and tons of fun. Superb medical volunteers ensured that campers were safe at all times.

Parent Programs:

Parent Forum- This monthly parent engagement program never really got off the ground. We have brainstormed and have some cool and innovative ideas for 2014, incorporating College Nights, Diabetes Communication Nights and other forums with Children’s Oakland and Kaiser in the East Bay.

DASH Camp Parent Panels- During all DASH camps, Parents attend a panel discussion with endocrinologists, diabetes educators, nurses, athletes with diabetes, siblings of those living with diabetes and other parents. Each camp varies in that the discussions have a couple of lead in questions and then the unique and judgment free organic conversations occur. DASH camp is a place where parents can vent, share their story and take a break from diabetes. Special thanks to Fabiana Couto for ensuring that parents are included!

Collaborative Events-

6 week Violence Prevention in West Oakland as a part of the Friday Night Live program- Awesome event lead by the City of Oakland, YMCA and a bunch of others to distract the West Oakland community with Carbohydrate dunking contests, skate boarding, cooking, face painting, smoothie bikes and health presentations.

World Diabetes Day with the JDRF and Crew- Lighting SF Blue in 2012, Lucas spoke and Delency, Phil and other outstanding volunteers played soccer and dodge ball at Justin Herman Plaza

World Diabetes Day with DHF and Kendall Simmons at Berkeley High School – Kendall Simmons OL for the Pittsburg Steelers and New England Patriots spoke to 3 PE and 1 Health class at BHS about life with diabetes. Later in the day DASH and the Diabetes Hands Foundation collaborated to hand out over 700 flyers about 14 things to do on WDD. Lancet the Pug was a huge hit!

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Carbs in the Park and other events with CARB DM- In collaboration with Tamar Sofer Geri’s amazing organization, DASH runs sports games such as wiffle ball, parachute run, three fly’s up and kickball at Parks all throughout the Bay Area.

Diabetes Coalition in Oakland leading to West Oakland’s first Adult Diabetes program – In discovering that no community based diabetes education program exists in Oakland, DASH has decided to start one. In teaming up with the YMCA, ADA SF Bay Area, Children’s Hospital and Research Center Oakland and the West Oakland Family Resource Center we are looking to launch this program in 2014.

African American History Month Celebration Feb and June Tenth Celebration 2013- In connection with Barbra Howard, DASH received a community Diamond Award during a fantastic night of poetry, reflection and empowerment. In June Phil and Neev played sports games with youth from Oakland.

California Child Services Pediatric to Adult Endocrinology Transition Coalition Oct 2012-Current- The transition to adult endocrinology is a tumultuous time in your diabetes evolution. In collaboration with CCS, Alameda County Public Health, Endocrinologist from the Bay Area’s leading health institutions and grass roots organizations like DASH brainstorming to figure out the best way to ease this transition while increasing case management and sustained quality care for people living with diabetes. Stay tuned for more!

Call to Congress American Diabetes Association March 2013 – The ADA gave DASH founder Lucas Fogarty a scholarship to attend the conference on the hill. At the Capital, he spoke with Senator Collins from Connecticut, and head health staff of Senators Feinstein, Boxer’s Offices in addition to staff members from Representative Barbra Lee’s office. Most importantly we met and networked with several amazing diabetic and diabetes support advocates from across the country and specifically in Southern California.

California Pediatric Diabetes Coalition Member – DASH was invited to speak and then become a member of this quarterly coalition made up of school nurses, public health officials and physicians.

Partnership and Training of 30 Samuel Merritt Nursing Students- Formalized partnership with SMU nursing school with feedback from Professor Marjorie Hammer exclaiming that “DASH changed my student’s lives !”

Collaboration with UCSF’s Trail Net Diabetes Research- Oakland and SF – During talks by Dr. Steven Gitelman and Dr. Nancy Bohannan, DASH ran soccer games, relay races and made sure nobody went low.

Covered CA outreach collaborative events: These events are community health fair like forums focusing on outreach for the Affordable Care Act and how it relates to specific counties and individuals in the SF Bay Area, and we play sports with the kids.

Insuliance at Children’s Hospital Department of Endocrinology – Monthly one on one bonding with youth at CHO.

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Highland Hospital – Patient Advocate and Diabetes Clinic team member, helping young adults and adults find management balance to flourish with life and diabetes.

New Programs for 2014:

Quarterly Sports Programs:

Teen Group- We are looking to collaborate with CarbDM, JDRF and others to create a yearlong sports and diabetes education program just for teenagers.

Parent Groups- We are looking to hold small parent tea times to educate, discuss and support parents of those living with diabetes.

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Communities:

In general we offer full scholarships to anyone who applies and we seek to match donation based camps with those we charge a $50 fee. We want DASH to be a place where everybody is welcome regardless of their income. Our locations of programs are specific in that we seek to serve everyone equally, meaning we will strive to match donation based programs to those we charge a fee in order to provide the best service to all the diverse communities that make up the broad variety of the diabetes population. This is also a great way to establish communication and build in person rapport with people who are different from each other, but yet so similar.

East Bay

Oakland CA- We serve the Oakland community by offering donation based camps for all youth (T1, T2, Pre and Friends) in specific areas of North Oakland and West Oakland (potential expansion to East Oakland). In discovering that offering scholarships was not enough we have designed and created a diabetes coalition that includes Highland Hospital, ADA SF branch, YMCA East Bay, Go Public Schools Oakland, West Oakland Family Resource Center, Alameda County Public Health, and Children’s Hospital and Research Center Oakland. We are looking forward to sustaining our camps in Oakland to create the pathway for dynamic character growth of our youth and programs.

Why Oakland and Richmond-In 2012 the Center for Disease Control listed Oakland and Richmond as the two cities with the highest rates of school age obesity in the Country. Youth living in the East Bay’s poorest neighborhoods have an almost insurmountable task. We work with them at Children’s and then at Highland with severe diabetes complications and a lack of support. DASH will not let youth from poor areas fall through the gaps of our institutional health care, especially in our own backyard. We have their backs because this fits our core mantra and it’s the right thing to do.

South Bay

Menlo Park/ East Palo Alto CA- Our co-founder Shelby Payne is a Stanford student, and there are a bunch of families living with diabetes in the South Bay so therefore we held our first camp at Flood Park in Menlo Park. East Palo Alto is the matching community in need of diabetes support and resources which is why we are building a strong and diverse team. In building this diabetes collation we have teamed up with Carb DM, Lucile Packard Diabetes Center, Ravenswood Family Health Clinic, Stanford University, and the East Palo Alto Police Department.

Future Communities: Greater SF and North Bay

SF/Marin matched with Hunters Point, and Treasure Island neighborhoods. We have been greatly received by the world renowned medical staff of UCSF’s Madison Pediatric Diabetes Clinic who send us many campers and in addition, Kipp School in Hunters Point and the YMCA Treasure Island have also reached out to us to bring them the DASH program for their youth in need. We are looking forward to strengthening these relationships to serve everyone with more while being realistic and providing continuity in our DASH programs to cement positive and dynamic character growth in the youth we work with.

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Organizational:

Evolution in one year:

DASH started as an idea dreamed up by Lucas while playing sports in Belgium. Back in the states and speaking at a JDRF College Night event two epiphanies combined. Shelby Payne now enters the picture and together they come up with the DASH camp concept because as kids growing up with diabetes they wished there was a sports camp for people who had diabetes run by athletes who also live with diabetes. There are tons of diabetes camps which are great and life changing, but for Shelby and Lucas, they had to learn diabetes management in the heat of battle and on the run. Together with impassioned friends they wrote two grant proposals that were successfully received by Stanford’s ASSU (Associated Stanford Student Union) and BASES (Business Association of Stanford Entrepreneurial Students). With the start-up funding Shelby and Lucas began to plan the first Sports and Diabetes (SAD) Camp. Luckily this named changed to DASH (Diabetes and Sports Health) and the date with destiny was set.

Structure:

The structure of our organization involves a board of directors with a president, and 4 committees of advisers. Most of the advisers are informal, but the help, insight and knowledge they bring to the table is outstanding and invaluable. Our advisers in the medical profession come from UCSF’s Madison Pediatric Diabetes Clinic, Lucile Packard Diabetes Clinic, Alameda County Medical Center and Samuel Merritt University Nursing School. The directors of the American Diabetes Association (ADA) SF Branch, YMCA East Bay, and The Diabetes Hands Foundation create a source of diverse business leadership intertwined with positive diabetes impact. Our cohort of young leaders in diabetes is made up of Fabiana Couto, Shelby Payne, Sarah Afzal, and Leigh Mason. Our cohort of Type 3’s include Philemon Abraham, Alvin Lee, Brad Thoresen, Julian James, Suhail Shaikh, and Neev Garbi. We are extremely greatful to DASH Mom’s Kimberely Wendt, Amy Wallace, Carol Korade and Robin Bousquets for their continued support and unyielding energy they give to DASH throughout the year. Together with these advisers, the rest of our volunteers and the DASHers, we are all flourishing because of diabetes.

Mission Statement: To instill the belief that you can flourish and thrive because of diabetes!

Vision: A world where people who have diabetes believe they can do anything. A place where diabetes is no longer a source of division, but a catalyst for cohesion to thrive with life

Organizational Goals for 2014:

Expand Board of Directors with diversity Expand and create formal adviser roles Include more young leaders with Type 2 and Pre-Diabetes Expand and create volunteer coordination role and parent coordinator role Become certified by AADE (American Association of Diabetes Educators)

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FundingReceived in 2012

$2,750 Awarded for the Social Entrepreneurial grant from Stanford’s ASSU $5,000 Awarded for the Social E-Capital grant by the Business Association of Stanford

Entrepreneurial Students (BASES) $10,000 Awarded for the Big Blue Test grant by the Diabetes Hands Foundation $200 received from program fees $50 received from donations thanks AP!

Total = $18,000

Received in 2013

$2,000 received from donations $500 received from program fees

Total = $2,500

Costs in 2012

$5,000 DASH Camps (See itemized budget here) $950 501©3 filling $1,900 Marketing (flyers, postcards, social media, banner)

Total = $7,850

Costs in 2013

$7,000 DASH Camps (See itemized budget here) $2,000 Assistant DASH Director $1,500 Marketing (flyers, postcards, social media) $1,500 Scholarships (25 individual and 10 for friends/family members)

Total = $12,000

Budget for 2014

$20,000 DASH Camps (5 camps) $10, 000 West Oakland Diabetes Coalition and Adult Diabetes Education Program $3,000 Marketing (flyers, postcards, social media, Intro video) $3,000 Collaborative Events (Coalition building, organizing, curriculum development, logistics) $2,000 Quarterly Teen Group $1,500 Parent Programs $2,500 Program management $2,500 Curriculum development and evaluation

Total = $44,500

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Plan for funding in 2014:

$20,000 from Event Sponsorship Grants $3,000 from Vender fees $5,000 from donations $1,000 from online store revenue $15,000 from Program grants $5,000 from local and small business donations $10,000 from Corporate Sponsorship $2,000 from program fees

Total = $61,000

Where is the money going now and where will it go in the future?

From 2012-2013 almost all our funding went into startup costs, program costs and marketing. On average one day of DASH camp costs $2,500. It costs $150 per participant during our DASH Camps and collaborative events. We charge $50 maximum per participant and we use our grant and donation funding to cover the rest of the cost. Our goal is not to have a financial burden associated with any DASH program or event.

In the future we are developing a sustainable revenue structure for each program in collaboration with local business, local community organization and local health clinics. We are cautiously looking for potential corporate sponsors to relieve us locally and we will ensure that all of our partners have similar missions, morals and responsibilities. 50% of our programs are donation based now and we want to improve on this number in the future.

Structurally speaking, grant writing for specific events and neighborhood programs, incorporating corporate social responsibility through small and big local business, and creating community diabetes coalitions in each area we work in, help us to financially sustain each program. The community helps us scale appropriately based on the community need. Grants and corporate sponsorship help to improve our validity as an organization and our health care partners reinforce the quality of work we do. Our train the trainer framework and the volunteers that stem from this adds another layer of sustainability that creates the dynamic growth from the bottom up to help people coping with diabetes to flourish with diabetes.

Impact

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Goals for Impact:

1) Increase positive impressions of life with diabetes2) Increase confidence and knowledge in three areas (personal diabetes identity, carbohydrate counting,

blood glucose decreasing and increasing strategies)3) Increase safe diabetes management with sports (Increasing BG Checking prior, during and post,

increase preparedness for lows and highs, communication before)4) Increase awareness and united community amongst Type 1, Type 2, Type 3, Pre-Diabetic and the

general population5) Instil the belief that one can flourish because of diabetes

Evolution:

In 2012 DASH camp was a place for youth to play sports and parents to vent about living with diabetes. Throughout 2013 DASH camp evolved by using a rotation of traditional and non-traditional sports with specific topics related to diabetes education, such as Diabetes Myth’s, Differences and Carb Counting. In addition, we added afternoon activities to include skits and role playing about stress and how to breathe in between action and response situations due to heavy survey reports indicating a need to address overwhelming amounts of stress. From Parents we have learned that they want more, more education, more activities, and maybe a DASH camp just for them.

Analysis:

We measure our impact with objective and subjective survey comparison, participant testimonials, medical and volunteer peer review and reported metabolic data. We are still working on the perfect survey and have a lot of work to do, but we were surprised to learn that we are modeling the evaluative techniques used at many of the institutions we work with, including UCSF Diabetes Center. In our first type1, type 2 and prediabetic mosaic DASH Camp, survey analysis showed that 91% of campers reversed their negative impressions of diabetes and all campers doubled their knowledge of preventative and management techniques. We look to learn more from continuous evaluation in addition to adding quantified self-activity monitoring data for better physical activity evaluation.

Numbers:

Numbers in total direct interaction from September 2012 to December 2013 are 106 T1’s, 98 T2’s, 75 friends and siblings and 200 at risk youth from Oakland and Richmond. This totals to 479 youth, with a rough estimate of 130 Parents, bringing DASH’s total direct interaction in the SF Bay Area diabetes community to 609 people. In terms of volunteers we have grown from 10 in 2012 to over 60 in 2013. If you include the 15,000 unique views of our international blogs, unknown amount of views on our website, and our Facebook likes and Tweeter followers, DASH has made an amazing 20,000 person initial impact on the US diabetes population, and the greater population of those at risk both locally in the SF Bay Area and internationally. Pretty good in just 1 year and with only one full time unpaid dyslexic staff member.

Program # Goals for 2014: Participant # Goals for 2014: Volunteers # Goals in 2014:

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2013 2014 20132014 2013 2014

Camps: Youth (6-18) Core Volunteers:4 5 479 675 10 20

Parent Programs: Young Adult’s w/diabetes Event Volunteers:3 6 10 25 45 80

Quarterly Sports Programs: Parents and Fam Board 0 1 130 200 3 4

Collaborative Programs: Total 2013 Total 2014: Medical Staff10 12 619 / 900 people with 714

Direct interactionAdult Programs: Total 2013/Total 20140 1 65 volunteers in 2013 128

volunteers in 2014

Total 2013/ Total 2014:17 in 2013 22 Programs in 2014

In conclusion:

We can feel, see and now prove the impact we have on just one person. When asked what’s the minimum number of participants DASH needs to run an event, our answer is one. We believe in our hearts that if we work with just one person we can change their life. We give our participants the power of believing in themselves, the tools for sustained success and the role model support that helps to maintain their light to flourish with this very difficult chronic individual and community condition.

Help us to continue our mission of instilling the belief that you can flourish and thrive because of diabetes by visiting our website and social media platforms. Volunteer and camper applications are up on the website and to show more love, visit us at rally.org/dashsportseducation or snail mail us a card of support at 2222 Prince Street Berkeley, CA 94705.

Lots of love,

Lucas Fogarty- Founder and President DASH Sports Education (aka DASH Team QB)

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